More Than "Just" Anxiety? Doctor Explains Postural Tachycardia Syndrome (POTS)
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- Опубліковано 27 чер 2024
- Do you have anxiety, fatigue and other random debilitating symptoms? Maybe it's actually POTS... Postural orthostatic tachycardia syndrome (POTS) is a little known condition and often misdiagnosed as anxiety or panic attacks due to the similar symptoms. (TIMESTAMPS BELOW)
POTS symptoms can be debilitating and patients can suffer for years before getting a proper diagnosis. POTS can be an invisible disability. October 25th each year is POTS Awareness Day! So I'm aiming to raise awareness of this condition amongst health professionals and the public!
POTS can cause symptoms like fatigue, dizziness when standing, palpitations (heart racing), fainting, shortness of breath, chest pain, headaches or migraines, and digestive problems like reflux/constipation/diarrhoea.
The cause may be unknown, but POTS may be triggered by viral infections, pregnancy or trauma. It may be associated with conditions such as hypermobile Ehlers-Danlos syndrome (EDS / hEDS / HSD), chronic fatigue syndrome, diabetes and other systemic conditions.
⌚ TIMESTAMPS
0:00 Intro
0:39 What is this mystery condition?
1:16 A quick disclaimer
1:28 What happens in POTS?
2:21 POTS symptoms
3:19 What causes POTS?
4:11 How is POTS diagnosed?
5:11 How is POTS treated?
6:51 POTS Awareness Day 25th October
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📚 RESOURCES
NHS - www.nhs.uk/conditions/postura...
POTS UK - www.potsuk.org/
Dysautonomia International - www.dysautonomiainternational....
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Have you heard of POTS before? For such an important condition, it's very little known!
Chronic fatigue, dizziness, palpitations, headaches... these can make sufferers feel really ill, and sometimes they aren't believed! It's our job to raise as much awareness as possible so people get the diagnosis & treatment they deserve! Links in description for more info - PoTS UK and Dysautonomia International are fantastic charities!
Thankyou for shedding light on this, this wasn’t something i was aware existed thank you for the info Doc 😊
@@monouch Thanks so much for watching!🙌 We gotta keep raising awareness of important conditions that are less well known 😊
i knew someone with pots. its really not believed by society since noone knows about it :/ it is fucked up
@@meirin5316 yeah it's such a struggle for patients with legitimate physical symptoms being dismissed as "difficult patients" or worse... being blamed for their pain and discomfort or the perception that they're lazy, when all they want is to be believed, their struggle legitimised, and receive appropriate treatment
@@DoctorAzmain you know it is bad when you get dismissed already for smaller issues. my doc said i am 'too fat for a lumbal puncture' i apologized to the doc in a hospital 3 days ago for making it hard for her w my weight and she was like "what do you mean your spine is perfectly visible. which doc told you you are too fat for an lp?" i was like wow... if shit hits the fan for such tiny matters how is it when you have a complicated issue ? :/ (my pcos for example took 13 years to be diagnosed)
Ive had a problem with tunnel vision, weakness, and confusion upon standing since I was in high school. Sometimes, even if I were to be sitting for a while and slowest get up. I had an EEG done and they didn’t find anything except some signals that had to do with my brain stem. I’ve also had an ekg and an ultrasound on my heart and nothing but a heart murmur was found. After graduating highschool I ended up breaking my back and over the next few months experiences some traumatic events and also had delayed healing for over two years on my back. About a year after breaking my back, I got my first “panic attack” where I felt depersonalization, derealization, sense of dread, rapid heart rate, and a strange wave of heat and pain that coursed from my chest in waves which caused me to scream in pain and arch my back while lying down. They said it was a panic attack… I was not anxious about anything beforehand. I just started to feel “weird” and derealization kicked in and that is what scared me. I was in bed for months afterwards, blacked out most of the time, and only ate from what I can remember a couple bowls of clam chowder per month. I still have “panic attacks” and I still have trouble standing up without feeling lightheaded and I have trouble concentrating and brain fog and still also bad lower back pain. I don’t have money for insurance anymore and never got a fully healed back mri when I had insurance in my old state. I also have hypnopompic hallucinations, occasional sleep attacks, and fatigue all day if that’s even related to any of this
Also I’ve had bad posture since I broke my back. Neck and upper back posture isn’t as good as it use to be. I was always strict on my posture up until it got painful to straighten my back. Now if I stand up and straighten my back up, I begin to feel tingly and light headed
Hi there, I'm so sorry to hear about everything you've been through - thank you for sharing! I appreciate that it's such a struggle to go through complex health issues, chronic pain, chronic fatigue, and seemingly random symptoms without clear answers.
I'm obviously not allowed to give any kind of medical advice on social media, and definitely not a diagnosis. However, I would recommend researching POTS further and discussing with your doctor. Reputable websites include Dysautonomia International. I'd also recommend UK websites including: NHS.uk, potsuk.org, STARS.org.uk.
While POTS has many differential diagnoses, may be secondary to other conditions, and may co-exist with anxiety/panic attacks etc. - if POTS is present, there are things that can be done, whether conservative measures or medication, that can relieve symptoms.
I wish you all the best! 😊 Keep going and stay strong! 💪
I have POTS and life is just so hard. Thank you for this video! Sharing with friends and family who don’t understand. Great video, very accurate.
Great job explaining this syndrome. I have a coworker that suffers from it. I’m a hospital medical coder and like to follow different doctors on UA-cam to help me better understand the pathophysiology of different diseases. Thank you for educating all of us.
Thanks so much for your kind comment! I appreciate your willingness to keep learning and appreciate your line of work, my pleasure to educate! I always try to write my discharge summaries with clinical coders in mind - because ICD-10 is a beast, let alone ICD-11 looming! Wish you and your coworker all the best!
@@DoctorAzmain Thank you Doctor Azmain. I like to think of my role as support and partnering with the physician or provider in order to accurately document what happened to the patient so the hospital is reimbursed appropriately for the services rendered. Plus I appreciate how the codes are used nationally and internationally to improve overall health in our society. I really enjoy my role as a certified professional coder. The ongoing education we’re required to do to keep our certification is helpful but it’s not the same as having that conversation with the provider who has had many more years of intense education and training than we have. I enjoy channels like yours were I can continue my learning. It helps me become a better coder and provider patient care by ensuring I am capturing the appropriate diagnoses and procedures. Happy to be a new subscriber to your channel.
@@failte9910 thank you for your thoughtful comment! You've actually given me an idea, I could make a short video explaining the importance of the job that clinical coders do! I'm a big advocate of the fact that every team member in a healthcare scenario is super important, so it would be great to highlight your work!
Getting better Doc, keep up the great work on the channel!
Jubair my man! Thanks so much 😊 Really appreciate your kind comment!!
thanks for educating us
Thanks so much for watching!! I really love making educational videos that raise awareness on important issues, so I really appreciate your comment 🙌
I've pretty much had this my whole life. My lower limbs turn deep purple and sweat like crazy. As a 210lb very muscular dude, I have found it difficult to find doctors who take it seriously. I finally found some who do. Also, perhaps related, but hormone therapy has helped this a lot. Testosterone and HCG, remarkable improvement. Interesting you mention a woman's cycle affects this.. Hormones no doubt.
I had Scheuermann's disease as a kid and have often wondered if it's somehow related, since it affects the thoracic spine. I had my spine surgically corrected and it looks and feels great, but the weird bloodflow stuff has persisted my whole life. Been told I have had anxiety since I was 4 years old... But 30 years later, and no amount of therapy has ever helped. Guanfacine helps a little. But nothing is perfect. Working out is the only thing that consistently improves it for me. Stimulants (Vyvanse in particular, as the levoamphetamine in Adderall is nasty for bloodflow and Vyvanse lasts like 16 hours for me) helps, but amphetamine is of course somewhat vasoconstrictive, so it's a balancing act. I also had a completely random retinal detachment in 2014, surgically corrected. I personally have many symptoms of EDS, but I'm not flexible at all!!! 😂 So maybe not... Life... Currently seeing rheumatologist and neurology and so far everything is pretty much unremarkable.
My calves are HUGE!! some doctors have noticed they're so big, they question muscular dystrophy. My mom has CPT II. I don't have any muscle symptoms. But I sometimes feel maybe the blood gets trapped in my massive legs... Frustrating.
Thanks!!
My calves are abnormally huge too. I definitely think it’s the POTS.
Recently got diagnosed and trying to inform myself better, tysm!
That's brilliant! Diagnosis is the first step to managing the condition, and it can be so hard struggling until then without knowing what's going on. So glad I could help, thanks for watching!!
imagine getting a diagnosis for something like that last time i was in a room with a doctor i thought i was having a heart attack (overdose on amphetamines, awake for 5 days, not eating, constantly working with little water on very hot days, so imagine what i felt like) the doc said to me with my heart on like a solid 180 beating in the most irregular ways, "what do you want me to do? pump it out of your blood? dont be surprised if you die sometime soon🤷🏻♀️" and sent me home (pretty sure there actually is a pill that undoes the amphetamine effects, i got nothing tho)
Doctor, you should make UA-cam Shorts. The algorithm will push you a lot
That's a brilliant idea!! I've got some shorts ideas in the works! What kind of topics would interest you?? Thanks for watching, please consider subscribing 😊✌️
@@DoctorAzmain case studies of patients having rare diseases
@@serotoneend5725 great idea, I will see what I can find!! I'm really keen on raising awareness of rare diseases so this is perfect!
I wonder if we count all the syndromes+disease how much will it be
I'm not sure it's possible to accurately count! There are various numbers, in the range of 3,000 to 10,000 but many of them are rare, and some we may not even have discovered - so I have no idea of the true number!
your eye is extremely white . I can hardly find any red veins. Lol good video. I used to have forward head posture and now i use a rope to keep my head from going forward. As long as my head doesnt go forward without me knowing it , i can keep my anxiety down.
LOL ok that might just be the colour grading 🤣 thanks for watching!