In this video, Dr Sanjay Gupta, consultant cardiologist in York discusses POTS or postural orthostatic tachycardia syndrome and what to do about it. My website is http:yorkcardiology.co.uk/book
Did a doctor just say he didn't know very much at the beginning but learned through his interactions with the patient and they learned from each other?!! WOW! A whole new respect for Dr. Sanjay Gupta. If only ALL doctors could learn this stance toward patients instead of acting like we know NOTHING about our own condition.
yes! and dr gupta advised searching the internet - that is definitely not something i've heard from a doctor before! thank you, dr gupta for your informative and hopeful videos!
Yep, totally unheard of that a doctor would actually admit that he doesn't know much about a patient's condition but is willing to listen with an open mind instead of dismissing the patient's experience and misdiagnosing. This man is as rare as gold dust - I wish I had a doctor like him!
Dr Gupta, you are the kindest and most compassionate doctor I have ever seen. There is a genuine concern and care you have for people. May God bless you and reward you for your beautiful heart ♥️
Thank you Dr. My daughter 13 years old started symptoms overnight after a viral infection. The struggle in Canada we are facing is that since POTs is not considered a life threatening condition is has been really had to get a cardiologist to see her . The waiting period is over 6 months . Thank you for your candid approach and your guidance to a condition seems no doctors here in Canada know nothing about. I will not give up on my daughter until we find a cardiologist that can see her for her condition ❤ keep posting please 🙏
I’m sorry to hear that. I have 2 young daughters that were diagnosed one last Dec2022, the other this Jan. with Pots. There symptoms affect their digestion, heart, brain, concentration, finger clubbing, blood pooling in extremities, one passes out frequently during flare up, anxiety, etc. They both see a neurologist, a gastroenterologist, genetics, cardiologists, physical therapy, immunologist. Dermatologist, orthopedics. We’re recently referred to a Pots Clinic here in California. They have compression stockings. A oxygen pulse meter. Get her compression stocking see if they help, and an oxygen pulse meter. Keep a journal when she sits and stands up. Try supplements. Try and take her to one of these & keep going in. Eventually they will send her to a cardiologist. If she complains of heart palpitations, shortness of breath, chest pain, & fatigue maybe you can get her in sooner. I’ll be praying for both you and your daughter. I know how difficult this can all be. Don’t give up! I think my girls got this from covid and the vax. I was diagnosed with long haul Covid, now they are calling it a form of Pots. The symptoms are about the same and the severity is different from person to person.
Thank you for this video. I was recently diagnosed with POTS. I’ve already been through kidney failure, dialysis and transplant in my young life. I’m 5 years post op from that have a hard time dealing with the fibromyalgia I gained from my body breaking for many years to now be diagnosed with this. I appreciate all the information, right now because it’s so new I’ve just been getting adrenaline dumps my sympathetic nervous system is completely out of whack the even the television or certain shows are setting off my flight response. It’s hard to stand but I’m trying my best because I don’t want to lose any tone in my legs and I’m exhausted because of all of the above plus disturbances in my sleep cycle which I don’t full understand yet. I got for more testing next week and another apt with my electrophysiologist. Again, thank you for your explanation and care. I’ve been absolutely upset, feeling crazy & very discouraged and your video helped me to feel a bit better and hopeful!
You are a real gem, the most amazing doctor i've listen to, you even use the same sentences that I use when I describe my problems! I definitely have more knowledge than most neurologist who stick to what they learnt at univerity. I 've been fighting with my problems for 15 months, I am 65 and keep seeing doctors who don't listen to me, not to mention look at me. As soon as I tell them I am an an Engish teacher and that I listen to prominent experts and doctors on the Interner, they react as if I slapped them, which is not a bad idea - when you meet sush a doctor tell him to go to hell!!! Neutologicsl problems are very difficult, combined with Covid, it's a ticking bomb in a person' body. You are one of very few doctors who bring hope .to terribly suffering humanity.There is no way to thank you
I was diagnosed after Covid !! It’s been unbelievable!!! I was feeling so down doctors after doctors so hard to have a doctor who understands this and how my quality of life has declined. I’m in a vicious cycle. I wish you were in the US!! Very informative and YES was told over and over I’m just anxious
My 15 year old daughter, my 23 year old son and myself (almost 49) have POTS. My son does much better with his (or hides it better... not sure), but it has been very disabling to both my daughter and myself for most of our lives. Things seem much worse recently, for her especially, and I would love to know if you have had patients who have had this condition their entire life and what genetic disorders you would be looking into to help figure out how to improve our health. I am a single mom and live alone with my daughter and it is incredibly difficult living day to day when both of us feel so incredibly bad on a constant basis. Our symptoms are numerous and continual. We are hoping to be seen at Vanderbilt hospital in the future and if you know of anyone in particular who would be interested in studying our situation or someone you just simply suggest we see, I would love to hear about them. Thank you for the great info. I appreciate what you have shared.
It's just me and my baby at home during the day. It has become difficult for me to take care of him when I dont feel good. I'm scared I'll faint leaving him unsupervised 😣 this is horrible.
We appreciate you, Dr. Gupta! I didn’t even know what I was dealing with until I started doing research and found your YT channel. As for POTS, lots of water and regular exercise has done wonders for my condition. Along with Magnesium Citrate and breathing techniques for my anxiety and ectopic heartbeats. POTS is a LOT more common than we tend to believe. Is it possible that it could have lead me to other horrible psychological conditions like Agoraphobia and panic disorder?
I was just diagnosed after being on a SNRI for 11 months which intensified my symptoms. So I’m on a medical leave from work to learn as much as I can about POTs, tackle my symptoms, learn how to cope, find doc that specialize in this area of medicine. I am a nurse and I’m also a full time student persuing my nurse practitioners degree.
Hi Dr Gupta Thank you for making this video I have just been diagnosed with POTS following autonomic testing. This is really helpful and helps me to understand it. i am just working on the process of treatment options so this will be really helpful. Many Thanks
I am so thankful for this video. 100% right on. I was finally correctly diagnosed with this a few months ago yet have had difficulty trying to get close family to understand. Thank you for clearly explaining it, for helping, and giving hope.
i have diagrams ofPOTS which i have sent to my doubting relatives. my true friends want to know and then understand why some days i can and some are head on pillow.
I just need to go see you. I keep on coming back to watch your videos since I keep on getting diagnosis from my cardiologist. Been at it for two years now.
Thank you so much for this video. I have CFS & autonomic dysfunction. My doctors are very good but their are no specializing doctors in this area. Your videos bring hope that functioning daily can be reached again. Jeannine
I have been having these “episodes” weekly for 5 years. Started shortly after a colon perforation with sepsis due to abdominal adhesions from endometriosis. They start with ringing in my ear then the room starts spinning so bad that I have to lay down with my feet elevated for about 20 minutes. The nausea is so bad that I quite often vomit afterwards. I’m sick and tired for the rest of the day. Problem is I get these episodes standing, sitting, laying down. I’ve actually woke up in the middle of the night having this happen. Doctors keep playing with meds but no one can seem to help. Could there be something else going on besides POTS? I’ve increased fluids and salt, exercise daily, compression socks, calf raises, greatly reduce caffeine and sugar, intermittent fasting (actually got episodes to 3 weeks apart). Recently was in hospital with necrotizing soft tissue in small intestine from lack of blood volume.
What happens after stress hormones like adrenaline are secreted? How are they cleared away? Do we have to do something to clear them away or else they accumulate? Are stress hormones produced and stored somewhere and only released when needed?
I have Long Covid. The first year I didn't have POTS. But after a short course of benzoes (10 days) I started having POTS. And it's been like that for a year since then. No let up in symptoms. It's horrible
I am so happy that I found this video. My 59 year old husband has been experiencing rapid heart rate when he walks for several months now and we originally thought it was just his body getting back to normal after foot surgeries. It has not been determined yet what form of tachycardia he has but I am feeling like this is possibly the answer. As additional information that may be relevant, he had surgery on both of his feet the past year so was consequently not as mobile as he should have been. I am wondering if the surgeries could be the catalyst for this and if wearing compression socks would help him? He has as an appointment with a cardiologist soon but want to help alleviate any additional episodes for him while he is waiting. Almost as soon as he sits back down the heart rate starts declining. What are your thoughts on this please?
I don't know if what I have POTS, but what I have is similar though not as debilitating. I am a 59 yr old female, and I was was infected with TB in Dec of 2019 but only experienced the symptoms in May of 2021. In the course of recuperation, I experienced tachycardia with HBPM of 214 resulting in an enlarged aorta. I can stand up and move around now, even do chores for a couple of hours but I do feel tired with palpitations after a while. Most of the time, going to a cold room to rest is enough but at other times, my HB just continues to rise. I usually induce a mild hypothermia and drink Trimetazidine dihydrochloride 35 mg with a modified release and my heartbeat slows down.
Hey doctor thank you for explaining it well. The hospital diagnosed me with pots not long ago but my heart doctor isn't too convinced so I'm going to be doing testing before I'm diagnosed with it. Along with the pots symptoms I also get body jerking and stuttering randomly and I wonder if it's associated with pots. It goes and comes just like the pots symptoms. All of these symptoms I have are new except for feeling faint. It seems like my symptoms increase as time passes. I also have numb tingling in my hands and feet which go and come as well. I am anemic so I wonder if this triggered my pots to develop. Thank you for believing in this condition as not many do
Dr. Gupta that was another great video ! Can you have this condition almost in reverse , for example ,I get the same thing but when sitting / lying , it is only brief but my heart rate goes up , could it be associated with my Cardiac Syndrome X ?
I've become exactly the same recently, Gillian! In my case it stays very high, even after I've slept for an hour or so! It's horrible and really makes my pulse pound madly. Let's hope we can both be helped too!
I think my Son has this ! He has heart tests for a year and they still don’t know why his heart goes up so fast ! He also has high blood pressure . So worried about him using salt 🧂 They put my Son was put on beta blockers . But now he has had to quit working and driving and he went from a active life , good job . He is 44 . He sits on the couch 😢😢I’m scared to death for him . The Dr mentioned Pots . But I wonder . I just want him to have a diagnosis . He is seeing no one . He was an electrician . He can’t just sit on the couch . He gets dizzy and shakes . Can you please respond Dr. Please . Worried Mom
I think I may have hyper adrenergic pots. My question is can amitriptyline make the heart racing worse if you have hyper adrenergic pots? Ever since I started taking amitriptyline for my migraines my heart racing has gotten worse, I have had to increase my bp meds quite a bit since I started taking it and seems like I have to increase my bp meds everytime I have the amitriptyline increased. I am taking propranolol and cardizem. I asked my pharmacist if amitriptyline can cause your heart to race and they said yes but it’s not that significant, could I just be more sensitive to it if I have pots? Thank you.
I think with Hyperadrenergic POTS, anything that can cause an increase in heart rate or blood pressure can affect you more so than a person who does not have HyperPOTS. We already have more adrenaline/noradrenaline pumping though our bodies than others, so adding drugs on top of that seems like it would exacerbate an already heightened heart rate/blood pressure. I am not a medical professional nor am I qualified to give medical advice, this is just my opinion based on my own experience. Hope your doing well! 😊
Yes I have. I have not been officially diagnosed with pots but amitriptyline definitely me with some of my other symptomss. I take cardizem and propranolol and and they both help a lot. I also try to make sure i am well hydrated and eat foods with enough salt in them
hi there iv had pots for about 5 months now diagnosed 2 months ago. fo you have any tips you could give me to help with symtoms chest pain fast heart rate dizzy faint muscle spasms tingling adrenaline rushes heart palpitations headaches feeling sick fast heart rate apon standing rolling over sitting
Hello doctor I'm from India, I'm suffering pots from 2009 I have all the symptoms like fatigue, Low bp, anxiety you doctor what kills me it's extreme feitge and I have brain fog totally exosted all the time I did all the test finally I got this that I have pots my heart races up right now I'm on beta blockers .Plz doctor help me thank you I'm suffering so long plz and plz help me
hi Gupta....I have a condition which is similar...when I am at bed may be just slept for few min...if someone awake me or I got up on some nice etc..I feel my heart rate is high for few min and then it goes normal within few min...let me know your comments on this..Thanks
I don't have my official POTS diagnosis yet but my doctor and PT both strongly suspect it and I'm just waiting to get in with a Dysautonomia specialist. I have to wonder about the link between Epstein Barr Virus, as that is something I contracted last year and it turned my whole world upside down. I haven't been the same since, neurologically, cognitively, mentally or physically. Thank you for being a light in the dark. I doubt there are doctors in the U.S. that are as caring and compassionate as you are but I sure hope that I can find one! THANK YOU!!!
Finally someone that understands what we go through. We are not crazy, this is not made up. Omg!!! I can’t stop my emotions right now you just made me feel great
I know this is an old video but if you're still looking for good and understanding doctors, try Satish Raj. Sunil Patel has a really good understanding too. His field of medicine deals with brain surgery. He is brilliant and incredible to listen to.
I've been experiencing some weird and uncomfortable symptoms ( anxiety, fast heart rate, exhaustionn, blood pooling, patchy legs when standing for 10-15 minutes and pvcs) since the past 4 years now. I've had a series of tests done in different hospitals and every single time I'm told that's it's " nothing" and it's just anxiety. It's gotten to the point where I am experiencing a couple pvcs ( skipped heartbeats) every single day and the doctors don't even bat an eye because all my heart tests came out to be just fine. I know my body and what I am feeling and I KNOW it's not anxiety... in FACT these symptoms cause me anxiety. I've had many people tell me that I might have pots. Does anyone relate? :(
Oh my god yes!! Literally all of this happens to me. I've gone to cardiologists and they've put 24 hr holter monitors on me as well as 72 hour ones and they've noted that I have PVCs once in awhile, and I get them every day, mostly at the end of the day, or if I stand up to fast, feels like a quick punch to the chest and i have to wait a second and take a big breath after, it literally knocks the wind out of me. But my cardiologists all say that the structure of my heart is fine, and that everything is okay and I'm healthy and it's just anxiety.. but it doesn't happen when I'm anxious! It MAKES me anxious after it happens! I hope you've gotten better now, and I hope you've found a doctor thst understands you. I don't have any other type of palpitation btw. Just PVCs as far as I know. I HATE the feeling. scares me so much that I'll just sit down for an hour after because I'm scared to move and have another one.
From all of the stuff that has saying, i think we definitely have POTS lol. And honestly some people are just more susceptible to PVCs as well. Mine happen more after excersize, or if I bend down too fast, stand up too fast, shift body position in bed too fast, or just as soon as I lay down. It sucks and it's so debilitating because it scares me out of living my life. I feel like my heart's gonna stop. But I've been reassured that it won't, and it happens to a lot of people. And if they did a heart ultrasound of you like they did to me, and they said it was fine and we have no structural damage to our hearts, then we have like zero risk of these PVCs causing any type of issue. Some people literally have PVCs for 20% of all their heart beats.. can you imagine? I literally have 1 or 2 every other day or so and it freaks me out. We're just one of the ones that can feel it more I guess. Some people, even the ones that have very frequent PVCs, can't even feel them, or can barely feel them.
There is a very easy way to tell if it is likely to be pots. You need to sit for several minutes making sure you feel relaxed and check your pulse rate. Write it down. Now stand up without walking, wait 2 minutes and check your heart rate while you are standing. Write it down. If the difference in your heart rate is over 40 beats per minute faster than you need to take that information to your doctor or GP. It is good if you do this at different times over at least a week and make a journal to include how you felt while standing and after sitting back down if you feel breathless, palpitations, sweaty, head throbbing. The most important part is recognising that every time you stand for at least 2 minutes, your heart rate must be at least 40bpm faster. It's what is called the poor man's tilt table test. When the doctor can check your pulse and bp and see you are correct, you will be taken seriously. It's a battle and knowledge is your best weapon.
@@francesmarie73 would need to be 30 beats per minute faster unless they are under 19yrs of age in which case its 40 beats per min. If it is over 30beats per minute or over 120beats per minute at any point within 10minutes of standing (and keeps standing) and stays elevated for the whole time you are standing
Finally. Explained how debilitating it is. It's real. It's not in our heads. It's not anxiety. This guy is amazing how he explained it, the vicious cycle of because wheelchair bound, and everything. So good! Going to share this video.
I want to be hopeful, but I just miss my old life... I miss running, I miss waking up energetically without being afraid to stand up. I miss going up a single flight of stairs without panting... I want my life back. I didn’t do anything wrong...
I finally got a NordicTrack treadmill. No more being afraid of tripping, heat, etc. It is worth it. I hope you don't have to give up running for the rest of your life.
@@annaamrin1719 that’s not a great question. Sometimes people don’t or can’t know why they have POTS or it’s a combo of things. Some people catch the flu or mono. Some people are born with a connective tissue disorder.
I've been working out my legs and flutes and this has helped a lot. Putting my legs up at night helps too. Drinking water first thing in the morning helps, I suggest everyone here write down in a journal what you are doing and how you are feeling everyday and/or several times a day. You can show this to you doctor, they will appreciate it, I was prescribed beta blockers but I did not take them. Salt makes me feel good and so does potassium in foods.
Potassium makes a difference for you? That is interesting to read. Since January of 2019 my potassium consistantly dropped all the way untill April where my potassium levels were critical, 2.6 at its lowest. I felt horrible and ever since that happend, I have never been the same. My potssium levels have returned to normal but I have developed POTS symptoms and now waiting for an official diagnosis. I hope you are well and happy!
Thank you for finally legitimising my horror story of the past few years. I am finally getting amazing treatment here in Australia and am even getting regular fluids through an implanted port, but my family still think it's all in my head. I am going to send them this video right now.
Doctor, this seems common in collegen disorders in my experience. Eds, chronic fatigue syndrome, fibromyalgia...women seem to have less collagen in their bodies..what you say here makes total sense..it's just something i've noticed...is it the poor vaso constriction door to poorer collagen fibre that causes the sympathetic arousal? obviously anxiety disoerdes or illness could cause this just collagen and mast cell diseased patients do seem to have a lot of pots type symptoms
I was diagnosed with POTS, then undiagnosed with it and told it was anxiety. I’m at a loss of what to do from now on. Personally, all my symptoms point towards POTS and I know I’m not imagining things and it’s not just my anxiety. I wish I had some type of answer 😭
Overall this is a great video! I have one note. As someone with hyperadrenergic POTS I have been being successfully treated with what is considered a very high dose of beta blocker for POTSies. I was on a low dose for over a year and that led to me getting extremely deconditioned before I got to Mayo Clinic and got my hPOTS dx. I was already having problems, but then went without proper treatment because docs thought low dose was the only thing years ago. Thankfully getting on a higher dose, similar to what is used for anxiety, I take 180mg of propranolol ER daily. The higher dosing along with the extended release changed my life! Thanks for making these videos!
How are you doing now Brittany? I know this is a year old but I hope your still doing well if not better! I belive i may have hyper POTS and I am also on 50mg of Metoprolol ER twice daily. I am more symptomatic some days and less on other days. I am still trying to figure out and research as much as I can about what can diminish or eliminate our issue with POTS/Hyper POTS. I want to get back to life and leave POTS in the past and NEVER look back!
@@lauralovesjesus Woah. I’ve never seen that written out so clearly before: “The jolt of adrenaline that happens when I transition to REM sleep.” That is EXACTLY what used to happen to me. Or so I think now that I’m reading this. IS that what happens? That our bodies produce an increase in adrenaline as we go into REM?? That would explain SO much about my own experience waking up from sleep with my heart racing, sometimes with intense feelings of doom, and even shakiness/tremors, and always about the same time each night it has happened.
wow.. when i was taking 100 mg of metropolol i could not keep my eyes open. i still wake up with tachcardyia. some say it is the cymbalta, which i take low dose for generalized pain since i am on blood thinners as well/ [acemaker and afib issues.
Fantastic Dr, thankyou, it's nice to hear there are medical professionals out there that are willing to support you knowing you aren't making symptoms up lol, next step try to get referred to you!
Thanks, this is really helpful and as a york resident it is very reassuring to know that someone here knows about pots. I have EDS and have developed POTS type symptoms. My GP is not great at helping me, I know a lot more about EDS and POTS than she does. At the moment she is just telling me to wait and see what happens and increase salt and fluids. What's the best thing for her to do given that this isn't helping much?
I didn’t have a cardiologist I am confident in to look for POTS so I went to one that also has a degree in electrocardiograph. Well he didn’t know anything about POTS. Wasted my time.
Hi Dr, I'm a 27 year old male with POTS, thank you for your video it is a very clearly explained. One thing i have found is that prolonged sitting can actually be worse than standing. When you stand you do tend to move around a bit which i think helps with circulation. While the tachycardia isn't as bad sitting I still find I have the worst POtS symptoms from sitting upright
Nick Blythe You are spot on! Sitting is worse for us POSTsies than being upright and active. What he generally is referring to is at the beginning of the disorder when you are afraid of what is happening, while for you it may feel better to keep moving, many struggle with the standing up/actual posture change and that leads them to moving less and to deconditioning. This sensation also probably explains why sitting feels worse to you; you may be changing position to sitting and that feels crappy. There is also a fear of what is happening in the early days and whether or not it is safe to push limits with exercise. This also easily leads to deconditioning.
Nick Blythe That is also one of my problems cause I sleep sitting up cause I have sleep apnea. When I'm trying to sleep my heart rate goes up over 100bpm. My chest hurts, not only that but I have heat intolerence too. I am constantly thirsty and need to get up in the middle of the night to take a lukewarm shower cause I'm so hot and I do not sweat so much and need to take a cold wet cloth and pass it all over my body. It doesn't let me sleep. It's horrible.
Yes I'm a male with POTs and I passed out while driving my car. Doctors didn't want to give me permission to drive. I agree sitting and being afraid to stand up leads to apathy and de conditioning. Everyone I do aerobic exercise I feel like I'm dying. Probably because I have a weak heart and haven't been working out.
Identifying and understanding POTS is the beginning of treating and hopefully curing it. Glad it was you that tackled it, Sanjay. Sounds to me like you are knowledgeable and well informed about POTS. Hundreds of people will benefit just from your taking it on. The more you learn, the closer you are to a cure. Thank you for being that kind of Doctor!
Just wanted to thank you for this video! I am only 33 and have two young children. Last year my husband had to give up work when I became bedridden. I have now been bedridden for 11 months (I also have severe ME and Fibromyalgia) however the symptoms that I’m find the hardest to live with are the POTS symptoms! I’ve been waiting 10 months to see a cardiologist and I’m terrified when I do finally see him he won’t know anything about POTS. My heart rate has gone up to 209bpm in the past and A&E hasn’t a clue what to do. My normal daily hr is 40-170bpm, but I only feel unwell with the high heart rate and have come very close to passing out in the past (edges of eye sight going black and ringing in my ears). I am absolutely praying the doctor I see is as knowledgeable and understanding as you are because I’m desperate for my life back with my children. I’d also like to add that your the first person to explain how de-conditioning affects POTS! Until now I didn’t understand, all I knew is that the doctors just keep telling to exercise but I can’t (due to my ME as well as Pots) but after hearing you explain it, I’m thinking I’m going to try do some form of leg lifts while lying in bed to start to re-build the very obvious muscle wastage I have going on! I now at least understand why it’s getting progressively worse! Thank you!
After this happens to me my chest hurts for like actual hours mine wakes me up and then I stand up then I can't breathe my chest hurts actually Burns really bad
Wow. This is so helpful. I feel like no one understood me up til this point. I've done less and less excersize because of this. And i worry about getting up at night because my POTS is worse at night for a few reasons. 1. I'm on beta blockers and they stop being affective in the evening. 2. I'm on a diuretic and i urinate more during the day and am less hydrated at night. Ever since I was younger I would lose vision and have the blood rushing through my upper body feeling, and my doctor said I would grow out of it, but as I've gotten older, not only does it still happen, but now I have PVCs when i stand up (and after excersize etc) . Also, i feel worse when I shower. This has helped me so much though. Thank you.
A huge THANK YOU for this. You explained it clearly enough to get through my foggy brain and inspired me to not give up. Back to my yoga tomorrow. I had to stop after an operation but fellow potsies I found it really helped me with building up leg muscles while helping breathing too. Again thank you Dr.
I acquired POTS after my PCP put me on meds for B/P. Then he wanted to refer me for reconditioning exercise. (He never monitored electrolytes). Turns out my electrolytes were depleted by a diuretic. I took myself off the B/P meds and concentrated intensely on rehydration electrolytes, vitamins and other nutrients that had been depleted. That helped to reduce the POTS from 150bpm to 130bpm. Also minimized dizziness and GI malfunction.
Thankyou for this, I'm fixed due to Ivabradine 5mg BD after four other cardiac drugs, I just wish my doctors knew what they were doing for 2 years prior.
Thank for taking the time to explain this . It helps me to think back on the times I have struggled and we’re it might fit . Having Gastroperesis I’m searching for a solution to calm my system down so I can get back to somewhat balance of normalcy. I might be grabbing at straws but some things fit . I’m thinking that my symptoms might be worse because my hair started falling out for who knows what reason . Curious if the diuretic I went on for hair loss possibly caused my stomach to go a little haywire . Not really the stomach but whatever system that is causing the delay in the stomach be thrown off by the system you described being out of balance ? Im headed towards surgery in a few weeks , sure would prefer non-surgical during a pandemic. But it is interesting how one system impacts another .
I got diagnosed with orthostatic hypotension after I nearly passed out playing tennis and also washing up. My vision starts to go dark and I feel dizzy and tired when it's bad. I'm managing it OK with increased fluid and salt but it definitely makes life more difficult having to sit down often between tasks some days and feeling dizzy quite often.
This condition is like your grieving for a life you have lost. I am very grateful that I have a fatigue clinic I attend and another patient recommended following. not many people understand.. especially those who you haven't seen for a while or those who you once knew from a fitness class. I'm going to send this to friends & family as I cant quite get the words out like this specialist with a foggy brain that leads to confusion thanks again
Thank you Dr! Watching from Canada. I have ME/CFS and a new symptom began a few months ago which made me nervous because it’s so debilitating....just by standing up for a period of time causes all the symptoms you have explained. Thank you for this because I feel so much better learning what I have from you. I am very grateful to you for your time to assist those of us who are always looking for doctors like you.
I am so grateful to you for making these videos Sanjay. I’m 56, have had a lifetime of this, am now completely debilitated by the Covid vaccines causing the most severe episode I have ever had…..and you my dear man have helped me hold on…..in all honesty, if I wasn’t so fearful & didn’t have a supportive husband, I’d have committed suicide a few times in life because of this illness….now at 56 Im off to see a Cardiologist instead of a “Psychiatrist” to get this treated with medicines, thankyou 🙏🏼🙏🏼
I have suffered for 5 years with POTS. Over this past year it has got worse , at accident and emergency yesterday due to tachycardia and pulse not coming down and also dizziness, shaking and unable to breathe. Today is worse at home, 176bpm and oxygen stats are jumping down to 54 when I am feeling dizzy. This is a horrible disability.
Thank you, do you have advice regarding pots in long covid? Is exercise or walking still recommended? Would you recommend specific drugs for pots in long covid?
THANK YOU SOOOO MUCH for this insight! My life was completely up-ended by this nightmare condition in 2016,and I am only now recovering. Through much trial and error, Ive found that copious amounts of Magnesium, Vitamin B Complex, Chlorella, Iron, and strength training have helped my body regain it's equilibrium. God,if only I had seen your video 3 years ago,i wouldn't have suffered with this for so long. But I'm so grateful to you for disseminating this info Dr. Keep it up! Sending you blessings from Baltimore USA☺️
Hello Wendy! I was curious how are you are feeling today? I am interested if your still having POTS symptoms. I too have started taking supplements and have made diet changes trying to combat this syndrom. I hope you are well.
I'm on 2:23 second in and already crying . Im suffering so bad from pots since I was 13 I'm 32 now and it has definitely took my life away from me. I'm so happy he makes it well known it's so scary and we are not crazy!!
@@unnikrishnanpillai4499 I have never been diagnosed pots and I’ve seen to many doctors to count. Thankfully I’ve been given medical clearance but it still doesn’t help answer why the fast heart rate, why the dizziness etc.
wish i could send this video tio every doctor that told me it was impossible to have all these symtoms.. one even tried to pin a conversion disorder on me.. sooooooo grateful to you.. wishing many blessings!!!
I was Dignosed with Hyperadrenergic POTS December 19th 2016 at the University of Washington. what other medications would you recommend besides ivabradine? my insurance doesn't cover that medicine and there's no way I can afford 493.00 every month. I've been on propranolol, metoprolol, nortriptyline, fluoxetine, methocarbamol, and some other ones. I'm currently taking Fludrocortisone, but it isn't helping. is there a combination of medication that I should be taking? doctors in WA don't have experience in POTS. I'm desperately searching for advice. my doctor is still trying to find out the underlying cause. is there anyway it could be because I have a narrow valve in my heart? the cardiologist told me he didn't want to do anything about it because I'm too young. (31) I would appreciate any advice. Thank you so much
Crystal Cooper I also struggle to pay for ivabradine but it has helped me so much, Walgreens was able to get me in a program with the manufacturer of ivabradine for a big discount, it's still pricey but much more manageable, maybe contact Walgreens customer service and ask about it if your still interested.
Hi I live in WA. Too... what are your symptoms and what test did they do? I'm on hold for a tilt table test. And I also paid to do a phone consultation with dr. Gupta. He recommended the test.
Hello Crystal. I hope you are doing better today. HyperPOTS kinda requires a different treatment method than the more common subtypes of POTS. I am not a doctor nor am I qualified to give medical advice. From all the reasearch I have done, it seems that hyperpots patiens don't suffer from the hypovolemia as much, so increased salt and fluid intake would not be helpful, nor would a steroid. Although if you find relief in these methods by all means use them! I am currently waiting on an official diagnosis, suspect HyperPOTS. The only medication I am on at the moment is Metoprolol ER 50mg twice daily. I was on a diuretic but that dropped my potassium levels. I find that small meals through out the day and a lower sodium (to help combat the postural hypertension) and lower carb diet has been helpful. I have also be reading in a few different places that eliminating gluten can be easier on your body in general. I hope that you are doing well and that we can be cured in the near future! 😊
I have hyper pots! I used to take Metoprolol ER but it started to stop working over time. My POTS doctor said that wasn’t the right drug, and he put me on Carvedilol (Coreg) and my symptoms have improved a ton! It’s an alpha/beta blocker, not just a beta blocker.
Great informative video and thankyou Dr Gupta. I am 54 and was diagnosed by a cardiologist in Bedford last September and then found the Autonomic clinic in London. I was a distance runner and had started training for another marathon this year and now find myself in this situation of not being able to stand passed out more times than i care to think about now and using a wheelchair with chronic pain headaches nausea and the worst symptom is the chronic fatigue . The neurologist in London believes that I also have EDS as an underlying cause having the Autonomic function tests late May. But my symptoms have been coming on for years. My only wish is that more doctors had the knowledge of this. I was initially lucky when a young locum doctor at my surgery had an idea about my dizziness and referred me to a cardiologist.
I get those symptoms but it is seldom postural. I feel presyncope sitting. Mainly when I don’t move for a long time, that’s when I get it more. Someone at the Cleveland Clinic said it still qualifies at POTS, but Dr. Raj would say it only comes with postural changes. If all this is not postural and symptoms not always reflect on vitals, what kind of Dysautonomia would it be?
Why does Dr Gupta say “flight or fright” instead of “fight or flight”? Is this deliberate based on new science to do with adrenal response or just a simple mis-speak?
I add this comment under many POTS videos' as I found few things that worked for me and reversed(not cured yet) the progress of my POTS , so I hope they can do it for you too.. I am a guy with POTS, a rare bird I know and it took a while to get diagnosed, but once I was the most help I was given was a handful of medication. Before my diagnose I was, as most of you, mistaken for having anxiety. A busy doctor prescribed me Xanax and let me go. That thing works, but it comes at a HUGE price so I took it twice and did not anymore. Since the other pills did help some, but not enough, I went on and did a internet research on substances like Xanax, benzos in general, and why the positive effect on POTS. It turns out the answer is simple - neurotransmitters. We lack some, our immune system is causing problems with some attacking specific receptors like ACH2 one. Knowing this then I went and did a research on what non addictive, no side effect substance can do similar thing as the benzos as they were not an option and for my surprise found one. Found a German study on special Lavender extract, did try it and it did miracles for me! In US it is sold as CalmAid lavender. I take one in the morning and sometimes one before bed. Recently I am not taking it on regular basis anymore as I don't need it much. No side effects, no withdrawal symptoms, only lavender burps. Usually taking it on empty stomach, Gave me my life back and allowed me to start exercising. On exercising - very important for POTS, and almost impossible for us! But there is a work around for that too - start swimming! When in water you don't get the orthostatic effects from gravity. Actually standing in upright in water will increase the blood volume your hearth can work with and will make exercising easy. Exercising will on its turn increase you blood volume and hearth strength, that will make standing easy. It does not happen overnight, but in few weeks you will feel the benefits. I hope all of you find this helpful.
I was just diagnosed and I’m afraid to go on Beta blockers , so I am trying a high sodium and high water intake, and it’s helped, and thank God for videos like this, because I will be eating smaller meal, I think it’s a better strategy as well as drinking water in the morning AM, with exercises while laying down. I’ve never really taken a pill continuously so it’s hard for me to go on medication, I am 34, and it’s been a pain, I feel light headed a lot of my days, but after hearing this video I will actually start taking my Mag. Gly. At night to help me with sleep, I hope to make it better and get out of this soon. Thank you for explaining so well ❤
Have been struggling with PoTS symptoms for over 18 years. Unfortunately my GP (in the Netherlands) never mentioned PoTS. Symptoms got so bad over the years that I got housebound and she only put me on antidepressants which didn’t help at all. Just recently came to know about PoTS myself. All the things that should help and that I could do myself have helped a lot. Unfortunately my GP still isn’t helpful at all. So glad there are doctors out there coming to understand more and more about PoTS and sharing their insights 🙏
They convinced me it was all in my head. Prescribed me Prozac. And now I am having a horrible flare with bradycardia and hypotension. Now what? 😕 I hate medical gaslighting.
Nearly a decade late to the party, but just wanted to say that doctors and researchers ignore low-grade infections by common viruses. If the infection doesn't register on the Richter scale, they rule it out. While it takes a major viral infection to cause fever and respiratory distress, it takes only a few to cause subtle nerve damage.
I am in desperate need of help I live in Northern Ireland faint daily and have all of the above along with Ehlers Danlos Syndrome. No one here knows about either so I am left after being told sorry we don’t do ANS tests here and can’t treat you …… where do I turn. I feel helpless
Did a doctor just say he didn't know very much at the beginning but learned through his interactions with the patient and they learned from each other?!! WOW! A whole new respect for Dr. Sanjay Gupta. If only ALL doctors could learn this stance toward patients instead of acting like we know NOTHING about our own condition.
yes! and dr gupta advised searching the internet - that is definitely not something i've heard from a doctor before! thank you, dr gupta for your informative and hopeful videos!
Yep, totally unheard of that a doctor would actually admit that he doesn't know much about a patient's condition but is willing to listen with an open mind instead of dismissing the patient's experience and misdiagnosing. This man is as rare as gold dust - I wish I had a doctor like him!
This is by far the best video and advice I've had for POTs! I'll be letting my friends know!
You are, hands down, my favorite doctor on the internet. Every doctor should be this wonderful and caring.
Dr Gupta, you are the kindest and most compassionate doctor I have ever seen. There is a genuine concern and care you have for people. May God bless you and reward you for your beautiful heart ♥️
Thank you Dr.
My daughter 13 years old started symptoms overnight after a viral infection. The struggle in Canada we are facing is that since POTs is not considered a life threatening condition is has been really had to get a cardiologist to see her . The waiting period is over 6 months . Thank you for your candid approach and your guidance to a condition seems no doctors here in Canada know nothing about. I will not give up on my daughter until we find a cardiologist that can see her for her condition ❤ keep posting please 🙏
I’m sorry to hear that. I have 2 young daughters that were diagnosed one last Dec2022, the other this Jan. with Pots.
There symptoms affect their digestion, heart, brain, concentration, finger clubbing, blood pooling in extremities, one passes out frequently during flare up, anxiety, etc.
They both see a neurologist, a gastroenterologist, genetics, cardiologists, physical therapy, immunologist. Dermatologist, orthopedics. We’re recently referred to a Pots Clinic here in California. They have compression stockings. A oxygen pulse meter.
Get her compression stocking see if they help, and an oxygen pulse meter. Keep a journal when she sits and stands up. Try supplements.
Try and take her to one of these & keep going in. Eventually they will send her to a cardiologist. If she complains of heart palpitations, shortness of breath, chest pain, & fatigue maybe you can get her in sooner.
I’ll be praying for both you and your daughter. I know how difficult this can all be. Don’t give up!
I think my girls got this from covid and the vax.
I was diagnosed with long haul Covid, now they are calling it a form of Pots. The symptoms are about the same and the severity is different from person to person.
Wonderful presentation doctor, keep up the great work!
Thank you for this video. I was recently diagnosed with POTS. I’ve already been through kidney failure, dialysis and transplant in my young life. I’m 5 years post op from that have a hard time dealing with the fibromyalgia I gained from my body breaking for many years to now be diagnosed with this. I appreciate all the information, right now because it’s so new I’ve just been getting adrenaline dumps my sympathetic nervous system is completely out of whack the even the television or certain shows are setting off my flight response. It’s hard to stand but I’m trying my best because I don’t want to lose any tone in my legs and I’m exhausted because of all of the above plus disturbances in my sleep cycle which I don’t full understand yet. I got for more testing next week and another apt with my electrophysiologist. Again, thank you for your explanation and care. I’ve been absolutely upset, feeling crazy & very discouraged and your video helped me to feel a bit better and hopeful!
Wow amazing videos 1) great teaching 2) compassionate, patient-centered care 3) great practical tips.
You are a real gem, the most amazing doctor i've listen to, you even use the same sentences that I use when I describe my problems! I definitely have more knowledge than most neurologist who stick to what they learnt at univerity. I 've been fighting with my problems for 15 months, I am 65 and keep seeing doctors who don't listen to me, not to mention look at me. As soon as I tell them I am an an Engish teacher and that I listen to prominent experts and doctors on the Interner, they react as if I slapped them, which is not a bad idea - when you meet sush a doctor tell him to go to hell!!! Neutologicsl problems are very difficult, combined with Covid, it's a ticking bomb in a person' body. You are one of very few doctors who bring hope .to terribly suffering humanity.There is no way to thank you
I was diagnosed after Covid !! It’s been unbelievable!!! I was feeling so down doctors after doctors so hard to have a doctor who understands this and how my quality of life has declined. I’m in a vicious cycle. I wish you were in the US!! Very informative and YES was told over and over I’m just anxious
My 15 year old daughter, my 23 year old son and myself (almost 49) have POTS. My son does much better with his (or hides it better... not sure), but it has been very disabling to both my daughter and myself for most of our lives. Things seem much worse recently, for her especially, and I would love to know if you have had patients who have had this condition their entire life and what genetic disorders you would be looking into to help figure out how to improve our health.
I am a single mom and live alone with my daughter and it is incredibly difficult living day to day when both of us feel so incredibly bad on a constant basis. Our symptoms are numerous and continual.
We are hoping to be seen at Vanderbilt hospital in the future and if you know of anyone in particular who would be interested in studying our situation or someone you just simply suggest we see, I would love to hear about them.
Thank you for the great info. I appreciate what you have shared.
God. Bless you and youe children your a strong mother God grant u all a healing with no trace of it behind
It's just me and my baby at home during the day. It has become difficult for me to take care of him when I dont feel good. I'm scared I'll faint leaving him unsupervised 😣 this is horrible.
How are you all doing currently?
You might look into EDS. It is genetic and can cause POTS.
How are you doing now?
We appreciate you, Dr. Gupta! I didn’t even know what I was dealing with until I started doing research and found your YT channel. As for POTS, lots of water and regular exercise has done wonders for my condition. Along with Magnesium Citrate and breathing techniques for my anxiety and ectopic heartbeats. POTS is a LOT more common than we tend to believe. Is it possible that it could have lead me to other horrible psychological conditions like Agoraphobia and panic disorder?
I was just diagnosed after being on a SNRI for 11 months which intensified my symptoms. So I’m on a medical leave from work to learn as much as I can about POTs, tackle my symptoms, learn how to cope, find doc that specialize in this area of medicine. I am a nurse and I’m also a full time student persuing my nurse practitioners degree.
Hi Dr Gupta
Thank you for making this video I have just been diagnosed with POTS following autonomic testing. This is really helpful and helps me to understand it. i am just working on the process of treatment options so this will be really helpful.
Many Thanks
I am so thankful for this video. 100% right on. I was finally correctly diagnosed with this a few months ago yet have had difficulty trying to get close family to understand. Thank you for clearly explaining it, for helping, and giving hope.
i have diagrams ofPOTS which i have sent to my doubting relatives. my true friends want to know and then understand why some days i can and some are head on pillow.
I just need to go see you. I keep on coming back to watch your videos since I keep on getting diagnosis from my cardiologist. Been at it for two years now.
Thank you so much for this video. I have CFS & autonomic dysfunction. My doctors are very good but their are no specializing doctors in this area. Your videos bring hope that functioning daily can be reached again.
Jeannine
Recent diagnosis and still trying to learn about POTS. This was very helpful!!!!! Thank you for taking the time.
WE APPRECIATE YOU!!! ❤️💛💚💙💜❤️💛💚💙💜❤️💛💚💙💜❤️💛💚💙💜❤️💛💚💙💜
Thanks for giving detail information about POTS .
I have been having these “episodes” weekly for 5 years. Started shortly after a colon perforation with sepsis due to abdominal adhesions from endometriosis. They start with ringing in my ear then the room starts spinning so bad that I have to lay down with my feet elevated for about 20 minutes. The nausea is so bad that I quite often vomit afterwards. I’m sick and tired for the rest of the day. Problem is I get these episodes standing, sitting, laying down. I’ve actually woke up in the middle of the night having this happen. Doctors keep playing with meds but no one can seem to help. Could there be something else going on besides POTS? I’ve increased fluids and salt, exercise daily, compression socks, calf raises, greatly reduce caffeine and sugar, intermittent fasting (actually got episodes to 3 weeks apart). Recently was in hospital with necrotizing soft tissue in small intestine from lack of blood volume.
Very useful video thank you. It certainly shows the importance of walking daily. Our legs are like pumps to the heart.
What happens after stress hormones like adrenaline are secreted? How are they cleared away? Do we have to do something to clear them away or else they accumulate? Are stress hormones produced and stored somewhere and only released when needed?
I have Long Covid. The first year I didn't have POTS. But after a short course of benzoes (10 days) I started having POTS. And it's been like that for a year since then. No let up in symptoms. It's horrible
I am so happy that I found this video. My 59 year old husband has been experiencing rapid heart rate when he walks for several months now and we originally thought it was just his body getting back to normal after foot surgeries. It has not been determined yet what form of tachycardia he has but I am feeling like this is possibly the answer. As additional information that may be relevant, he had surgery on both of his feet the past year so was consequently not as mobile as he should have been. I am wondering if the surgeries could be the catalyst for this and if wearing compression socks would help him? He has as an appointment with a cardiologist soon but want to help alleviate any additional episodes for him while he is waiting. Almost as soon as he sits back down the heart rate starts declining. What are your thoughts on this please?
Was your husband diagnosed?
Awesome video Doc!
I don't know if what I have POTS, but what I have is similar though not as debilitating. I am a 59 yr old female, and I was was infected with TB in Dec of 2019 but only experienced the symptoms in May of 2021. In the course of recuperation, I experienced tachycardia with HBPM of 214 resulting in an enlarged aorta. I can stand up and move around now, even do chores for a couple of hours but I do feel tired with palpitations after a while. Most of the time, going to a cold room to rest is enough but at other times, my HB just continues to rise. I usually induce a mild hypothermia and drink Trimetazidine dihydrochloride 35 mg with a modified release and my heartbeat slows down.
Hey doctor thank you for explaining it well. The hospital diagnosed me with pots not long ago but my heart doctor isn't too convinced so I'm going to be doing testing before I'm diagnosed with it. Along with the pots symptoms I also get body jerking and stuttering randomly and I wonder if it's associated with pots. It goes and comes just like the pots symptoms. All of these symptoms I have are new except for feeling faint. It seems like my symptoms increase as time passes. I also have numb tingling in my hands and feet which go and come as well. I am anemic so I wonder if this triggered my pots to develop. Thank you for believing in this condition as not many do
I have pots i can't running.please tell how solve
Dr Gupta, thank you for this video. Can you send me the correct spelling of the tablets you are talking about. Thank!
Dr. Gupta that was another great video ! Can you have this condition almost in reverse , for example ,I get the same thing but when sitting / lying , it is only brief but my heart rate goes up , could it be associated with my Cardiac Syndrome X ?
I've become exactly the same recently, Gillian! In my case it stays very high, even after I've slept for an hour or so! It's horrible and really makes my pulse pound madly. Let's hope we can both be helped too!
Pots & B12 deficiency ?
Thanks for sharing this video! Do you find that people are also ANA positive in this group of patients?
I have the same question. I am ANA positive!
I think my Son has this ! He has heart tests for a year and they still don’t know why his heart goes up so fast ! He also has high blood pressure . So worried about him using salt 🧂 They put my Son was put on beta blockers . But now he has had to quit working and driving and he went from a active life , good job . He is 44 . He sits on the couch 😢😢I’m scared to death for him . The Dr mentioned Pots . But I wonder . I just want him to have a diagnosis . He is seeing no one .
He was an electrician . He can’t just sit on the couch . He gets dizzy and shakes . Can you please respond Dr. Please . Worried Mom
thank yoy dr reallllly ur explanation is verrrrry helpful
I think I may have hyper adrenergic pots. My question is can amitriptyline make the heart racing worse if you have hyper adrenergic pots? Ever since I started taking amitriptyline for my migraines my heart racing has gotten worse, I have had to increase my bp meds quite a bit since I started taking it and seems like I have to increase my bp meds everytime I have the amitriptyline increased. I am taking propranolol and cardizem. I asked my pharmacist if amitriptyline can cause your heart to race and they said yes but it’s not that significant, could I just be more sensitive to it if I have pots? Thank you.
I think with Hyperadrenergic POTS, anything that can cause an increase in heart rate or blood pressure can affect you more so than a person who does not have HyperPOTS. We already have more adrenaline/noradrenaline pumping though our bodies than others, so adding drugs on top of that seems like it would exacerbate an already heightened heart rate/blood pressure. I am not a medical professional nor am I qualified to give medical advice, this is just my opinion based on my own experience. Hope your doing well! 😊
I have the same reaction from Nortripline for nerve pain. My resting pulse is like 96. Have you found any relief ?
Yes I have. I have not been officially diagnosed with pots but amitriptyline definitely me with some of my other symptomss. I take cardizem and propranolol and and they both help a lot. I also try to make sure i am well hydrated and eat foods with enough salt in them
Jennie Toering Same here, I have a appt with a Neurologist in June. We shall see. Happy you got some relief!😀
What is some good information about POTS that I could print out for my cardiologist?
What is the name of the medicine alternative to bethablokers? Idobriden????
hi there iv had pots for about 5 months now diagnosed 2 months ago.
fo you have any tips you could give me to help with symtoms
chest pain fast heart rate
dizzy faint
muscle spasms tingling
adrenaline rushes heart palpitations
headaches
feeling sick
fast heart rate apon standing rolling over sitting
Does pots leads to heart failure ? Plz reply 😭
Hello doctor I'm from India, I'm suffering pots from 2009 I have all the symptoms like fatigue, Low bp, anxiety you doctor what kills me it's extreme feitge and I have brain fog totally exosted all the time I did all the test finally I got this that I have pots my heart races up right now I'm on beta blockers .Plz doctor help me thank you I'm suffering so long plz and plz help me
We can’t find a doctor who knows about POTS in IA.
hi Gupta....I have a condition which is similar...when I am at bed may be just slept for few min...if someone awake me or I got up on some nice etc..I feel my heart rate is high for few min and then it goes normal within few min...let me know your comments on this..Thanks
Sampath Eswar how u feeling now
Sampath Eswar how u treat
think i heard him say "ma" cells. can anyone tell me?
Mast
I don't have my official POTS diagnosis yet but my doctor and PT both strongly suspect it and I'm just waiting to get in with a Dysautonomia specialist. I have to wonder about the link between Epstein Barr Virus, as that is something I contracted last year and it turned my whole world upside down. I haven't been the same since, neurologically, cognitively, mentally or physically. Thank you for being a light in the dark. I doubt there are doctors in the U.S. that are as caring and compassionate as you are but I sure hope that I can find one! THANK YOU!!!
Hi
Who is the Dr / specialist in Newcastle?
Thanks
Finally someone that understands what we go through. We are not crazy, this is not made up. Omg!!! I can’t stop my emotions right now you just made me feel great
Hello beautiful ...I am struggling with pots too I was also considered crazy by others...I can understand ur feeling much love from ladakh..
I know this is an old video but if you're still looking for good and understanding doctors, try Satish Raj. Sunil Patel has a really good understanding too. His field of medicine deals with brain surgery. He is brilliant and incredible to listen to.
I've been experiencing some weird and uncomfortable symptoms ( anxiety, fast heart rate, exhaustionn, blood pooling, patchy legs when standing for 10-15 minutes and pvcs) since the past 4 years now. I've had a series of tests done in different hospitals and every single time I'm told that's it's " nothing" and it's just anxiety. It's gotten to the point where I am experiencing a couple pvcs ( skipped heartbeats) every single day and the doctors don't even bat an eye because all my heart tests came out to be just fine.
I know my body and what I am feeling and I KNOW it's not anxiety... in FACT these symptoms cause me anxiety. I've had many people tell me that I might have pots.
Does anyone relate?
:(
Oh my god yes!! Literally all of this happens to me. I've gone to cardiologists and they've put 24 hr holter monitors on me as well as 72 hour ones and they've noted that I have PVCs once in awhile, and I get them every day, mostly at the end of the day, or if I stand up to fast, feels like a quick punch to the chest and i have to wait a second and take a big breath after, it literally knocks the wind out of me. But my cardiologists all say that the structure of my heart is fine, and that everything is okay and I'm healthy and it's just anxiety.. but it doesn't happen when I'm anxious! It MAKES me anxious after it happens! I hope you've gotten better now, and I hope you've found a doctor thst understands you. I don't have any other type of palpitation btw. Just PVCs as far as I know. I HATE the feeling. scares me so much that I'll just sit down for an hour after because I'm scared to move and have another one.
From all of the stuff that has saying, i think we definitely have POTS lol. And honestly some people are just more susceptible to PVCs as well. Mine happen more after excersize, or if I bend down too fast, stand up too fast, shift body position in bed too fast, or just as soon as I lay down. It sucks and it's so debilitating because it scares me out of living my life. I feel like my heart's gonna stop. But I've been reassured that it won't, and it happens to a lot of people. And if they did a heart ultrasound of you like they did to me, and they said it was fine and we have no structural damage to our hearts, then we have like zero risk of these PVCs causing any type of issue. Some people literally have PVCs for 20% of all their heart beats.. can you imagine? I literally have 1 or 2 every other day or so and it freaks me out. We're just one of the ones that can feel it more I guess. Some people, even the ones that have very frequent PVCs, can't even feel them, or can barely feel them.
There is a very easy way to tell if it is likely to be pots. You need to sit for several minutes making sure you feel relaxed and check your pulse rate. Write it down. Now stand up without walking, wait 2 minutes and check your heart rate while you are standing. Write it down. If the difference in your heart rate is over 40 beats per minute faster than you need to take that information to your doctor or GP. It is good if you do this at different times over at least a week and make a journal to include how you felt while standing and after sitting back down if you feel breathless, palpitations, sweaty, head throbbing. The most important part is recognising that every time you stand for at least 2 minutes, your heart rate must be at least 40bpm faster. It's what is called the poor man's tilt table test. When the doctor can check your pulse and bp and see you are correct, you will be taken seriously. It's a battle and knowledge is your best weapon.
@@francesmarie73 would need to be 30 beats per minute faster unless they are under 19yrs of age in which case its 40 beats per min. If it is over 30beats per minute or over 120beats per minute at any point within 10minutes of standing (and keeps standing) and stays elevated for the whole time you are standing
@@francesmarie73 ...since we feel the worst immediately after standing...why wait 2 whole minutes? Why not 20-30 seconds?
Finally. Explained how debilitating it is. It's real. It's not in our heads. It's not anxiety. This guy is amazing how he explained it, the vicious cycle of because wheelchair bound, and everything. So good! Going to share this video.
Exactly the same for me, at last an explanation.
Yes I have been told i and anxiety and it’s pots
I want to be hopeful, but I just miss my old life... I miss running, I miss waking up energetically without being afraid to stand up. I miss going up a single flight of stairs without panting... I want my life back. I didn’t do anything wrong...
I finally got a NordicTrack treadmill. No more being afraid of tripping, heat, etc. It is worth it. I hope you don't have to give up running for the rest of your life.
What caused your POTS?
@@annaamrin1719 that’s not a great question. Sometimes people don’t or can’t know why they have POTS or it’s a combo of things. Some people catch the flu or mono. Some people are born with a connective tissue disorder.
Your pots may not ever go away but it will wax and wane in severity and you will figure out how to get your life back in spite of it
right now I'm 25 ,It distoyed my teenage life 😢😢
Did you get better
I've been working out my legs and flutes and this has helped a lot. Putting my legs up at night helps too. Drinking water first thing in the morning helps, I suggest everyone here write down in a journal what you are doing and how you are feeling everyday and/or several times a day. You can show this to you doctor, they will appreciate it, I was prescribed beta blockers but I did not take them. Salt makes me feel good and so does potassium in foods.
Potassium makes a difference for you? That is interesting to read. Since January of 2019 my potassium consistantly dropped all the way untill April where my potassium levels were critical, 2.6 at its lowest. I felt horrible and ever since that happend, I have never been the same. My potssium levels have returned to normal but I have developed POTS symptoms and now waiting for an official diagnosis. I hope you are well and happy!
Thanks for the journal idea!
I spend more time in sunlight,it makes me feel little better
Are you better now?
Thank you for finally legitimising my horror story of the past few years. I am finally getting amazing treatment here in Australia and am even getting regular fluids through an implanted port, but my family still think it's all in my head. I am going to send them this video right now.
Where are you getting the treatment from in Australia? Because no one here is listening to me.
can you share what else they are doing besides the iv fluids? thanks.
Doctor, this seems common in collegen disorders in my experience. Eds, chronic fatigue syndrome, fibromyalgia...women seem to have less collagen in their bodies..what you say here makes total sense..it's just something i've noticed...is it the poor vaso constriction door to poorer collagen fibre that causes the sympathetic arousal? obviously anxiety disoerdes or illness could cause this just collagen and mast cell diseased patients do seem to have a lot of pots type symptoms
@Odile Lalanne do you know of a dr in the US?
@@justjan2576 check the Dysautonomia International website. They have a list of doctors.
Dr. Blair Grubb in Toledo Ohio is the specialist I’m seeing.
I was diagnosed with POTS, then undiagnosed with it and told it was anxiety. I’m at a loss of what to do from now on. Personally, all my symptoms point towards POTS and I know I’m not imagining things and it’s not just my anxiety. I wish I had some type of answer 😭
Thank you for giving me hope with managing my POTs symptoms! You are a very caring/smart doctor!
Overall this is a great video! I have one note. As someone with hyperadrenergic POTS I have been being successfully treated with what is considered a very high dose of beta blocker for POTSies. I was on a low dose for over a year and that led to me getting extremely deconditioned before I got to Mayo Clinic and got my hPOTS dx. I was already having problems, but then went without proper treatment because docs thought low dose was the only thing years ago. Thankfully getting on a higher dose, similar to what is used for anxiety, I take 180mg of propranolol ER daily.
The higher dosing along with the extended release changed my life!
Thanks for making these videos!
How are you doing now Brittany? I know this is a year old but I hope your still doing well if not better! I belive i may have hyper POTS and I am also on 50mg of Metoprolol ER twice daily. I am more symptomatic some days and less on other days. I am still trying to figure out and research as much as I can about what can diminish or eliminate our issue with POTS/Hyper POTS. I want to get back to life and leave POTS in the past and NEVER look back!
I have to take 200mg of Propranolol to fall asleep because of the jolt of adrenaline that happens when I transition into REM sleep 🙃
@@lauralovesjesus Woah. I’ve never seen that written out so clearly before: “The jolt of adrenaline that happens when I transition to REM sleep.” That is EXACTLY what used to happen to me. Or so I think now that I’m reading this. IS that what happens? That our bodies produce an increase in adrenaline as we go into REM?? That would explain SO much about my own experience waking up from sleep with my heart racing, sometimes with intense feelings of doom, and even shakiness/tremors, and always about the same time each night it has happened.
wow.. when i was taking 100 mg of metropolol i could not keep my eyes open. i still wake up with tachcardyia. some say it is the cymbalta, which i take low dose for generalized pain since i am on blood thinners as well/ [acemaker and afib issues.
Fantastic Dr, thankyou, it's nice to hear there are medical professionals out there that are willing to support you knowing you aren't making symptoms up lol, next step try to get referred to you!
Thanks, this is really helpful and as a york resident it is very reassuring to know that someone here knows about pots. I have EDS and have developed POTS type symptoms. My GP is not great at helping me, I know a lot more about EDS and POTS than she does. At the moment she is just telling me to wait and see what happens and increase salt and fluids. What's the best thing for her to do given that this isn't helping much?
I didn’t have a cardiologist I am confident in to look for POTS so I went to one that also has a degree in electrocardiograph. Well he didn’t know anything about POTS. Wasted my time.
Hi Dr, I'm a 27 year old male with POTS, thank you for your video it is a very clearly explained. One thing i have found is that prolonged sitting can actually be worse than standing. When you stand you do tend to move around a bit which i think helps with circulation. While the tachycardia isn't as bad sitting I still find I have the worst POtS symptoms from sitting upright
Nick Blythe You are spot on! Sitting is worse for us POSTsies than being upright and active. What he generally is referring to is at the beginning of the disorder when you are afraid of what is happening, while for you it may feel better to keep moving, many struggle with the standing up/actual posture change and that leads them to moving less and to deconditioning. This sensation also probably explains why sitting feels worse to you; you may be changing position to sitting and that feels crappy. There is also a fear of what is happening in the early days and whether or not it is safe to push limits with exercise. This also easily leads to deconditioning.
According to my specialist, sitting in a normal, upright position, also restricts the blood flow to the brain
Same here. Sitting too long is as bad as standing long. Walking, I'm able to help the flow but sitting sucks.
Nick Blythe That is also one of my problems cause I sleep sitting up cause I have sleep apnea. When I'm trying to sleep my heart rate goes up over 100bpm. My chest hurts, not only that but I have heat intolerence too. I am constantly thirsty and need to get up in the middle of the night to take a lukewarm shower cause I'm so hot and I do not sweat so much and need to take a cold wet cloth and pass it all over my body. It doesn't let me sleep. It's horrible.
Yes I'm a male with POTs and I passed out while driving my car. Doctors didn't want to give me permission to drive. I agree sitting and being afraid to stand up leads to apathy and de conditioning. Everyone I do aerobic exercise I feel like I'm dying. Probably because I have a weak heart and haven't been working out.
Thank you so much for all of your videos, they are the most helpful I've found so far!
thanks!
@@YorkCardiology can ablations help especially with the skipped heart beats?
Identifying and understanding POTS is the beginning of treating and hopefully curing it. Glad it was you that tackled it, Sanjay. Sounds to me like you are knowledgeable and well informed about POTS. Hundreds of people will benefit just from your taking it on. The more you learn, the closer you are to a cure. Thank you for being that kind of Doctor!
Just wanted to thank you for this video! I am only 33 and have two young children. Last year my husband had to give up work when I became bedridden. I have now been bedridden for 11 months (I also have severe ME and Fibromyalgia) however the symptoms that I’m find the hardest to live with are the POTS symptoms! I’ve been waiting 10 months to see a cardiologist and I’m terrified when I do finally see him he won’t know anything about POTS. My heart rate has gone up to 209bpm in the past and A&E hasn’t a clue what to do. My normal daily hr is 40-170bpm, but I only feel unwell with the high heart rate and have come very close to passing out in the past (edges of eye sight going black and ringing in my ears). I am absolutely praying the doctor I see is as knowledgeable and understanding as you are because I’m desperate for my life back with my children. I’d also like to add that your the first person to explain how de-conditioning affects POTS! Until now I didn’t understand, all I knew is that the doctors just keep telling to exercise but I can’t (due to my ME as well as Pots) but after hearing you explain it, I’m thinking I’m going to try do some form of leg lifts while lying in bed to start to re-build the very obvious muscle wastage I have going on! I now at least understand why it’s getting progressively worse! Thank you!
What’s your diet like? Vitamins?
Update?
After this happens to me my chest hurts for like actual hours mine wakes me up and then I stand up then I can't breathe my chest hurts actually Burns really bad
Linda Marzucco me too
Same
Same
Same
Thank you for explaining this SO clearly!! I have the diagnosis and know how it affects me but have never understood WHY!
Wow. This is so helpful. I feel like no one understood me up til this point. I've done less and less excersize because of this. And i worry about getting up at night because my POTS is worse at night for a few reasons. 1. I'm on beta blockers and they stop being affective in the evening. 2. I'm on a diuretic and i urinate more during the day and am less hydrated at night. Ever since I was younger I would lose vision and have the blood rushing through my upper body feeling, and my doctor said I would grow out of it, but as I've gotten older, not only does it still happen, but now I have PVCs when i stand up (and after excersize etc) . Also, i feel worse when I shower. This has helped me so much though. Thank you.
My BP does drop sometimes but my heart sky rockets
A huge THANK YOU for this. You explained it clearly enough to get through my foggy brain and inspired me to not give up. Back to my yoga tomorrow. I had to stop after an operation but fellow potsies I found it really helped me with building up leg muscles while helping breathing too.
Again thank you Dr.
I acquired POTS after my PCP put me on meds for B/P. Then he wanted to refer me for reconditioning exercise. (He never monitored electrolytes). Turns out my electrolytes were depleted by a diuretic. I took myself off the B/P meds and concentrated intensely on rehydration electrolytes, vitamins and other nutrients that had been depleted. That helped to reduce the POTS from 150bpm to 130bpm. Also minimized dizziness and GI malfunction.
Thankyou for this, I'm fixed due to Ivabradine 5mg BD after four other cardiac drugs, I just wish my doctors knew what they were doing for 2 years prior.
Jenny Weyman ivabradine has helped me immensely also
Excellent presentation!
Thank for taking the time to explain this . It helps me to think back on the times I have struggled and we’re it might fit . Having Gastroperesis I’m searching for a solution to calm my system down so I can get back to somewhat balance of normalcy. I might be grabbing at straws but some things fit . I’m thinking that my symptoms might be worse because my hair started falling out for who knows what reason . Curious if the diuretic I went on for hair loss possibly caused my stomach to go a little haywire . Not really the stomach but whatever system that is causing the delay in the stomach be thrown off by the system you described being out of balance ? Im headed towards surgery in a few weeks , sure would prefer non-surgical during a pandemic. But it is interesting how one system impacts another .
I got diagnosed with orthostatic hypotension after I nearly passed out playing tennis and also washing up. My vision starts to go dark and I feel dizzy and tired when it's bad. I'm managing it OK with increased fluid and salt but it definitely makes life more difficult having to sit down often between tasks some days and feeling dizzy quite often.
This condition is like your grieving for a life you have lost. I am very grateful that I have a fatigue clinic I attend and another patient recommended following. not many people understand.. especially those who you haven't seen for a while or those who you once knew from a fitness class. I'm going to send this to friends & family as I cant quite get the words out like this specialist with a foggy brain that leads to confusion thanks again
Thank you Dr! Watching from Canada. I have ME/CFS and a new symptom began a few months ago which made me nervous because it’s so debilitating....just by standing up for a period of time causes all the symptoms you have explained. Thank you for this because I feel so much better learning what I have from you. I am very grateful to you for your time to assist those of us who are always looking for doctors like you.
i believe it is all connected to malfunctioning adrenogenic [ots
I am so grateful to you for making these videos Sanjay. I’m 56, have had a lifetime of this, am now completely debilitated by the Covid vaccines causing the most severe episode I have ever had…..and you my dear man have helped me hold on…..in all honesty, if I wasn’t so fearful & didn’t have a supportive husband, I’d have committed suicide a few times in life because of this illness….now at 56 Im off to see a Cardiologist instead of a “Psychiatrist” to get this treated with medicines, thankyou 🙏🏼🙏🏼
Does pots leads to heart failure ? Plz reply
You are a true healer. Old times real doctor. God bless you 🙏🏼
I've never felt more understood in my life! Thank you so much!
I have suffered for 5 years with POTS. Over this past year it has got worse , at accident and emergency yesterday due to tachycardia and pulse not coming down and also dizziness, shaking and unable to breathe. Today is worse at home, 176bpm and oxygen stats are jumping down to 54 when I am feeling dizzy. This is a horrible disability.
KerryHutchisonx I’m so sorry Kerry. How are you now?
Thank you, do you have advice regarding pots in long covid? Is exercise or walking still recommended?
Would you recommend specific drugs for pots in long covid?
THANK YOU SOOOO MUCH for this insight! My life was completely up-ended by this nightmare condition in 2016,and I am only now recovering. Through much trial and error, Ive found that copious amounts of Magnesium, Vitamin B Complex, Chlorella, Iron, and strength training have helped my body regain it's equilibrium. God,if only I had seen your video 3 years ago,i wouldn't have suffered with this for so long. But I'm so grateful to you for disseminating this info Dr. Keep it up!
Sending you blessings from Baltimore USA☺️
Hello Wendy! I was curious how are you are feeling today? I am interested if your still having POTS symptoms. I too have started taking supplements and have made diet changes trying to combat this syndrom. I hope you are well.
I'm on 2:23 second in and already crying . Im suffering so bad from pots since I was 13 I'm 32 now and it has definitely took my life away from me. I'm so happy he makes it well known it's so scary and we are not crazy!!
How are you now?
@@vee9133 Do you have pots ?
@@unnikrishnanpillai4499 I have never been diagnosed pots and I’ve seen to many doctors to count. Thankfully I’ve been given medical clearance but it still doesn’t help answer why the fast heart rate, why the dizziness etc.
@@vee9133 Sorry to hear that 🥺
@@vee9133 Does pots leads to heart failure ? This is my biggest fear 😭
wish i could send this video tio every doctor that told me it was impossible to have all these symtoms.. one even tried to pin a conversion disorder on me.. sooooooo grateful to you.. wishing many blessings!!!
Do those with hyper pots have to increase salt? wont that raise the bp even more?
I was Dignosed with Hyperadrenergic POTS December 19th 2016 at the University of Washington. what other medications would you recommend besides ivabradine? my insurance doesn't cover that medicine and there's no way I can afford 493.00 every month. I've been on propranolol, metoprolol, nortriptyline, fluoxetine, methocarbamol, and some other ones. I'm currently taking Fludrocortisone, but it isn't helping. is there a combination of medication that I should be taking? doctors in WA don't have experience in POTS. I'm desperately searching for advice. my doctor is still trying to find out the underlying cause. is there anyway it could be because I have a narrow valve in my heart? the cardiologist told me he didn't want to do anything about it because I'm too young. (31)
I would appreciate any advice.
Thank you so much
Crystal Cooper I also struggle to pay for ivabradine but it has helped me so much, Walgreens was able to get me in a program with the manufacturer of ivabradine for a big discount, it's still pricey but much more manageable, maybe contact Walgreens customer service and ask about it if your still interested.
Hi I live in WA. Too... what are your symptoms and what test did they do? I'm on hold for a tilt table test. And I also paid to do a phone consultation with dr. Gupta. He recommended the test.
Hello Crystal. I hope you are doing better today. HyperPOTS kinda requires a different treatment method than the more common subtypes of POTS. I am not a doctor nor am I qualified to give medical advice. From all the reasearch I have done, it seems that hyperpots patiens don't suffer from the hypovolemia as much, so increased salt and fluid intake would not be helpful, nor would a steroid. Although if you find relief in these methods by all means use them! I am currently waiting on an official diagnosis, suspect HyperPOTS. The only medication I am on at the moment is Metoprolol ER 50mg twice daily. I was on a diuretic but that dropped my potassium levels. I find that small meals through out the day and a lower sodium (to help combat the postural hypertension) and lower carb diet has been helpful. I have also be reading in a few different places that eliminating gluten can be easier on your body in general. I hope that you are doing well and that we can be cured in the near future! 😊
I have hyper pots! I used to take Metoprolol ER but it started to stop working over time. My POTS doctor said that wasn’t the right drug, and he put me on Carvedilol (Coreg) and my symptoms have improved a ton! It’s an alpha/beta blocker, not just a beta blocker.
Great informative video and thankyou Dr Gupta. I am 54 and was diagnosed by a cardiologist in Bedford last September and then found the Autonomic clinic in London. I was a distance runner and had started training for another marathon this year and now find myself in this situation of not being able to stand passed out more times than i care to think about now and using a wheelchair with chronic pain headaches nausea and the worst symptom is the chronic fatigue . The neurologist in London believes that I also have EDS as an underlying cause having the Autonomic function tests late May. But my symptoms have been coming on for years. My only wish is that more doctors had the knowledge of this. I was initially lucky when a young locum doctor at my surgery had an idea about my dizziness and referred me to a cardiologist.
I get those symptoms but it is seldom postural. I feel presyncope sitting. Mainly when I don’t move for a long time, that’s when I get it more. Someone at the Cleveland Clinic said it still qualifies at POTS, but Dr. Raj would say it only comes with postural changes. If all this is not postural and symptoms not always reflect on vitals, what kind of Dysautonomia would it be?
Why does Dr Gupta say “flight or fright” instead of “fight or flight”? Is this deliberate based on new science to do with adrenal response or just a simple mis-speak?
I add this comment under many POTS videos' as I found few things that worked for me and reversed(not cured yet) the progress of my POTS , so I hope they can do it for you too..
I am a guy with POTS, a rare bird I know and it took a while to get diagnosed, but once I was the most help I was given was a handful of medication. Before my diagnose I was, as most of you, mistaken for having anxiety. A busy doctor prescribed me Xanax and let me go. That thing works, but it comes at a HUGE price so I took it twice and did not anymore. Since the other pills did help some, but not enough, I went on and did a internet research on substances like Xanax, benzos in general, and why the positive effect on POTS. It turns out the answer is simple - neurotransmitters. We lack some, our immune system is causing problems with some attacking specific receptors like ACH2 one. Knowing this then I went and did a research on what non addictive, no side effect substance can do similar thing as the benzos as they were not an option and for my surprise found one. Found a German study on special Lavender extract, did try it and it did miracles for me! In US it is sold as CalmAid lavender. I take one in the morning and sometimes one before bed. Recently I am not taking it on regular basis anymore as I don't need it much. No side effects, no withdrawal symptoms, only lavender burps. Usually taking it on empty stomach, Gave me my life back and allowed me to start exercising. On exercising - very important for POTS, and almost impossible for us! But there is a work around for that too - start swimming! When in water you don't get the orthostatic effects from gravity. Actually standing in upright in water will increase the blood volume your hearth can work with and will make exercising easy. Exercising will on its turn increase you blood volume and hearth strength, that will make standing easy. It does not happen overnight, but in few weeks you will feel the benefits.
I hope all of you find this helpful.
Thank you A LOT Dr. Gupta - I keep learning from your generous videos.
I was just diagnosed and I’m afraid to go on Beta blockers , so I am trying a high sodium and high water intake, and it’s helped, and thank God for videos like this, because I will be eating smaller meal, I think it’s a better strategy as well as drinking water in the morning AM, with exercises while laying down. I’ve never really taken a pill continuously so it’s hard for me to go on medication, I am 34, and it’s been a pain, I feel light headed a lot of my days, but after hearing this video I will actually start taking my Mag. Gly. At night to help me with sleep, I hope to make it better and get out of this soon. Thank you for explaining so well ❤
Have been struggling with PoTS symptoms for over 18 years. Unfortunately my GP (in the Netherlands) never mentioned PoTS. Symptoms got so bad over the years that I got housebound and she only put me on antidepressants which didn’t help at all. Just recently came to know about PoTS myself. All the things that should help and that I could do myself have helped a lot. Unfortunately my GP still isn’t helpful at all. So glad there are doctors out there coming to understand more and more about PoTS and sharing their insights 🙏
They convinced me it was all in my head. Prescribed me Prozac. And now I am having a horrible flare with bradycardia and hypotension. Now what? 😕 I hate medical gaslighting.
I think i have this they just said bradycadia and eptopic beat depression and extreme social anxiety lol im gunna show this my cardiologist
would love to know what he said!
Can POTS be caused by AF or vice versa?
Nearly a decade late to the party, but just wanted to say that doctors and researchers ignore low-grade infections by common viruses. If the infection doesn't register on the Richter scale, they rule it out. While it takes a major viral infection to cause fever and respiratory distress, it takes only a few to cause subtle nerve damage.
The only piece on info i can not seem to find is can you still have symptoms after u lay back down
I have POTS now since total knee replacement. I am 73. I use taurine and magnesium lots of water, and ashwagandah at night to stop it.
I am in desperate need of help I live in Northern Ireland faint daily and have all of the above along with Ehlers Danlos Syndrome. No one here knows about either so I am left after being told sorry we don’t do ANS tests here and can’t treat you …… where do I turn. I feel helpless
Thank you for this video.
this has ruined my life. we call ourselves first world nations yet cant cure a autonomic nervous system dysfunction.