Thank you for sharing. It's hard to stay positive when our bodies fail us. We work so hard to "pace" and avoid crashes but like you said "it is what it is". 😃
I want to write an essay about this, but that might be too much. I completely understand and have days like these. And the “what if’s “, budgeting energy, avoiding things that are too emotional, including things that would be too FUN!
Hello Hannah. Thank you for the video, it really resonated with me, especially your thoughts about the guilt and upset we sometimes feel when having to cancel plans and let people down. I definitely experience a lot of 'FOMO'. Have you tried amitriptyline yet? Although different meds are different for everyone, this one has been like a miracle for me in terms of lessening my symptoms. I have almost felt like how I used to, before ME. I am going to invest in CBD oil soon and make the swap (a lot more expensive but a lot more natural). Love Charly x
Hi may I ask how you got diagnosed with cfs m.e ? I for many years have been suffering and going through all of the symptoms experiencing nasty crashes but mist of the time I suffer alone. I'm keeping a diary to talk to my doctor in hope I get taken seriously. Many people around me think I'm a flake because of cancelling plans and hiding away but inside I feel I'm slowly melting away it's hell! Wonder if you have any advice on how I can get help. Many thanks in advance if you are able to reply. Hugs Katie x
I'm so sorry. :( Crashing today. The hardest part for me is feeling worthless. Prayers for you, sweetheart.
Thank you for sharing. It's hard to stay positive when our bodies fail us. We work so hard to "pace" and avoid crashes but like you said "it is what it is". 😃
I hate the crashes.
Keep speaking, you inspire me.
I feel your pain!!! Sending you positive energy 💖
I want to write an essay about this, but that might be too much. I completely understand and have days like these. And the “what if’s “, budgeting energy, avoiding things that are too emotional, including things that would be too FUN!
Thanks for filming this can relate so much.
You are not alone. Hold in there.
Hello Hannah. Thank you for the video, it really resonated with me, especially your thoughts about the guilt and upset we sometimes feel when having to cancel plans and let people down. I definitely experience a lot of 'FOMO'. Have you tried amitriptyline yet? Although different meds are different for everyone, this one has been like a miracle for me in terms of lessening my symptoms. I have almost felt like how I used to, before ME. I am going to invest in CBD oil soon and make the swap (a lot more expensive but a lot more natural). Love Charly x
Hi may I ask how you got diagnosed with cfs m.e ? I for many years have been suffering and going through all of the symptoms experiencing nasty crashes but mist of the time I suffer alone. I'm keeping a diary to talk to my doctor in hope I get taken seriously. Many people around me think I'm a flake because of cancelling plans and hiding away but inside I feel I'm slowly melting away it's hell! Wonder if you have any advice on how I can get help. Many thanks in advance if you are able to reply. Hugs Katie x
The Optimum Health Clinic are very good and specialise in Cfs. I highly recommend them. X
Hey how are you?