I’m convinced that I got rid of my fibromyalgia by getting in a hot tub at 102°F for 1 hour every day. It took a few years, but I could feel differences within the first month. I’ve been without symptoms now for about 15 years.
I've been in pain since I was 9 years old, and I'm 56 now. I've joked for years that Fibromyalgia is a fancy word that means: "We don't know what your problem is, so we'll give it a complicated name that sounds impressive".
Absolutely correct, but now you've got a choice. You can go get your trigger points checked out and use the trigger point massage techniques (link at end of video).
I also was having excruciating pain. Recently I found something that absolutely worked. Here's what I do. I take 3,000mg of liquid liposomal C first thing when I wake up on an empty stomach. Don't take lipsomal C pills. They don't work as well. Two hours later I take 1000mg of B1 (Benfothiamine) and 10,000mg of vitamin D3 at breakfast time! These three vitamins really solved my problem in addition to the minerals I take right before bedtime. At night I take chelated magnesium (buy on Amazon) and take twice the recommended dose. I also take a zinc supplement, iodine supplement and an iron supplement. Fibromyalgia is really a condition in which the body is not able to repair itself each night because there is a deficit of vitamins and minerals. For me I discovered that because of stress my body was constantly deficient in vitamins and minerals. Other people didn't seem to have the same issues I did with being deficient when they experienced stress. I can't prove this but I really think my body absorbs vitamins and minerals less than the average person so I need higher doses! Within about 2 weeks of taking these supplements 90% of my pain was gone. Some days I don't have any pain! What a miracle!
I’m a Traditional Acupuncturist and have successfully treated many people with fibromyalgia. In my experience it is always rooted in past or long ongoing emotional imbalances or trauma to the body (physically, mentally or emotionally). The very reason blood tests or machines can’t detect this is because western medicine is not trained to pick up emotional imbalances they work on a physical level. This is also why western medicine struggles with dealing with mental health issues. Treating with drugs just masks the issue.
I'd normally just delete this comment as being irrelevant, but I'm curious. Yes we know that western medicine is really just the sales arm of the drug companies. However, I'm wondering how you pick up emotional balances and so forth. Do you have ying and yang meters to see if they are out of balance? Do you have life force detectors so you can see if some acupuncture point is blocking them, and if they are flowing again after you fix it? Do you have some way of checking emotional problems that's better that measures a psychologist would use? It's fine to make claims that you're balancing all this stuff, but really what do you do??? If you haven't got answers for these your's is just a tall story.
@@jlys5037 OceanSunset didn't,, are you able to explain whether you have life force detectors to see if a channel is being blocked, or how you have a better way to measure emotional problems than a psychologist would use?? Otherwise it's all just a story.
@@kayleeallen3371 I normally just delete completely ignorant posts like this, but I checked the scientific papers on it. It's a total BS story made up about a fantasy interconnection between the vascular system, the nervous system, DNA and who knows what else. There is no scientific evidence or any semblance of logic about it.
Fibromyalgia is hell on earth. No doctor has given me hope. They pretty much ignore that I have it. It's really bizarre. I force myself to move 😳 some days are better than others.
I would suggest reading Daniel C Dantini's book "The New Fibromyalgia Remedy: Stop Your Pain Now with an Anti-Viral Drug Regimen" That got rid of most of my pain. Then John Hill's "Natural Treatments for Genital Herpes, Cold Sores and Shingles: A Review of the Scientific and Medical Literature" because the Epstein Barr virus and HCMV are herpes viruses. High dose vitamin C protocol is on there.
Ok, I listened the whole way through. It's not only the pain, what about the other 199 other symptoms that come with Fibromyalgia? This condition is NOT only the pain!!
I hate it when people make ignorant comments because they don't listen. I said that sensitisation of the nervous system amplifies pain, plus because the nervous system controls pretty much every function in your body you get a host of seemingly unrelated symptoms. The worst thing is you are making comments when you should be taking the info and trying to help yourself.
@@drgraeme Thank you for replying. It would of helped if the other symptoms were mentioned. Many people have the impression that it's "only" pain that we suffer. It is a huge part of it, but there is so much more to this cruel condition. 🇦🇺 Ps. I like our flag. My ancestors were convicts lol.
It is caused by insulin resistance and inflammation. The Ket/Carnivore diet cured my 15 year struggle with fibromyalgia within one month. If I eat too many carbs, pain comes back. Lower carbs down under 20, better under 10, no pain at all! Try it, what can you lose! I lost weight, lowered my A1C, watch Dr. Ken Berry or Dr. Shawn Baker, Dr. Robert Cywes
I had long term stress and anxiety (bereavement and burnout) over 5 years, became run down so caught two nasty viruses and then couldn't get up off the floor without my body feeling like a elephant was sitting on my back. Still have this. I ended up with widespread pain etc etc and got told I had Fibromyalgia. It's just hideous and you're just handed a leaflet with some info about it, pills and left to deal with it on your own so you don't know what to do.
@ Sammy - I am so sorry you are in so much pain. I know what that feels like. I was diagnosed with FM (fibromyalgia) 31 years ago, though I have had it for 33 years. It will be 34 years later this year. I was seeing a different doctor for the first 2 years, and he didn't have a clue. He told me I had early Osteoarthritis, and I thought I don't ever want to know what late OA is like, because I was in so much pain, I thought I had Bone Cancer! Anyway, two years later, I went to see a Rheumatologist, and he asked me questions the previous doctor never did, like how are you sleeping? My sleep was terrible. I was waking up around 6 to 8 times each night, and never felt rested. I would go to bed in pain, and wake up in pain every morning. I still do, though the pain is managed better during the day, and I take Amitriptyline (Elavil) at night that gets me to stage 4 sleep, and keeps me there for at least 6 hours. Six is much better than almost none, and after 6 hours my pain medication wears off, and that's what wakes me up every day. Pain. If you're not sure if you have FM, there is a blood test for it that has been in use since 2012, and is reliable 99% of the time. I had the blood test done in 2021, better late than never, and tested positive for FM with an overall score of 93. There are a series of tests run on your blood samples, and are scored in a scale from 0 to 100. Any score at 50 or above is considered positive. If your scores are below 50, that's considered negative. Lupus is a disease that causes bodywide pain too. I don't know if the Lab that tests your blood sample will tell you if it's Lupus or some other disease or not. The test is called the FM/a® blood test, and when the Lab calls you, you can ask them if they do. The testing Lab is called Epic-Genetics, Inc. It's in Los Angeles, CA. If there is a Quest Diagnostics Laboratory near you, you can go there to have the blood draw. Epic-Genetics will pay Quest Diagnostics to draw your blood sample. The FM/a® test is covered by Medicare Part B, and most Private Commercial Health Insurance Companies. Epic-Genetics will check your insurance coverage for you. For more information on the test, and apply, go to: www.fmtest.com Applying for the test/filling out the online form is not legally binding. If you have test, and it's positive, you will be eligible to volunteer for a FDA Approved tests Epic-Genetics believes might reverse the effects (pain, sleep disirder, etc) of FM. They started the FDA approved treatment trials shortly before the Pandemic hit the USA, and when Covid19 started getting out of control, Epic-Genetics stopped the trials, because treating the volunteers and making them well, would increase the volunteers chances of catching Covid19. Good Luck, and Good Health to You. Be well and Be Happy.
After a fibromyalgia diagnosis from a doctor, I went to a N.A.E.T Practitioner… 3 months later (after 3 debilitating years of suffering) turns out it WAS LAYERED FOOD ALLERGIES. Pains were all gone, and I began living my 60 yr old life like I was 20 yrs again.🥰 crazy…!!
I’ve been suffering horribly for 4 years and i had to bring up Fibromyalgia. Doctors don’t even want to say that word. I felt like i was laying on glass any time my body made contact with even the slightest thing, opioids making it a living hell. They gave me drug after drug and used depression and anxiety as a way to medically gaslight me.
I've shared with you about what the scientists have found and on our website there is a massive amount of info about treating trigger points. You'll find a lot of help there.
Carnivore diet cured my 15 year struggle with fibromyalgia within one month. If I eat too many carbs, pain comes back. Lower carbs down under 20, better under 10, no pain at all! Try it, what can you lose!
Fibromyalgia is unexplained pain. The American diet is synthetic and toxic. We have chronic illnesses from this. I suffered with fibromyalgia for 11 years begging doctors for the cause. Was told “we don’t know , here take this drug “. And “ diet has nothing to do with it “ Our medical profession sucks. Dr Anthony Chaffee on UA-cam. Please find what he says about chronic illness. I’ve been on the carnivore diet for 5 years and pain free since. Please look into this. We are being fooled. Nobody is trying to cure anything. Just pushing a new synthetic high priced poison to add to our poison diet. No wonder we are all aggravated and depressed. Our brains are starving so we can’t even think
There is one school of thought that says the deposits of lactic acids in the muscles are what cause it. A chiropractor told me this, and that apple juice in large quantities would dissolve the lactic acid. But I said, "So the lactic acid is coming from dairy products?" He said it was. So I said, "So why don't we just stop eating dairy products?" He said, "Yes, you could do that." Since I am a sufferer of all over body pain, and an eater/drinker of milk products, I tried it out. I stayed away from dairy for a week. The pain went away. Unfortunately, like many milk/cheese addicts, I fell off the wagon. But I want to get back to eliminating it from my diet. That includes the ghee I use, which is just clarified butter. Finding quality and tasty alternatives to dairy can be a challenge.
You need to stop listening to that sort of stuff. Lactic acid is formed after exercise then dissipates. If there were deposits they would be easily detected. If a professional is telling you this that would not exactly inspire confidence.
The doctor was probably quoting a single study where fibromyalgia patients were given sodium dichloroacetate DCA to relieve this presumed lactic acid buildup, some patients claiming some relief. The toxicity of the DCA became a problem and there were no followup studies. I tried it. Experienced no relief. Then started to get sick from the toxicity. The trigger point remedy I believe has validity. That's probably why my insurance doesn't cover it. But then pays every dollar for my pain doctor and meds. Often doctors quote things they've read, with which they've had no direct experience with, just to seem knowledgeable. Good luck.
I’ve been in pain for decades. Three rheumatologist told me I have fibromyalgia. I will not take drugs. I walk a lot and try to keep on the go. At 62, I’m still dealing with the pain. Some days are better than others and Winter it seems worse. Hope everyone can find some relief. Thank you for this info Doc! 😊
I came down with FM after being married to a severe narrist, When I left him, I became at peace, as soon as I was at peace, the pain came on, I lived many years tensed up, walking on egg shells, never knowing when he would strick. My body didnt know how to handle the peace and tranquility I was now living, my central nervious system was shot. Its taken me 10 years to start healing, and think my nervioys system is finally realizing that all that trauma is gone, and adjusting its self.
Yes sensitisation can be caused by many things. The same principle applies as to the trigger points, ie. remove whatever is causing the sensitisation and the nervous system will recover. As the following video discusses once you have fibromyalgia it creates its own stress that help it self-perpetuate. You have unexplained pain, dealing with medics, and not knowing if you will ever get better. Understanding what's really going on will be a big help. Wishing you the best in getting better. ua-cam.com/video/pSmMoKX7Bmw/v-deo.html
I've had this girl over 20 years. I've had constant stress since I was little. I got worse when I got married and worse with children. All kinds of abuse from parents and then my now x husband. Everyone says relax .. destress. We ell I became a single mom that had to work and handle court and all kinds of stuff. It was horrible and sooo to tired. Kids are grown and gone and still stressed trying to pay the bills. Destressing takes way longer than it does to get stressed. Thanks for this video!
Try carnivor diet. Search it and give it a try. Made my wife heal within weeks. After three weeks drug dosage was cut to half. We are excited how much more she will heal. Check Dr Shawn Baker or Ken Berry!
I have been a massage therapist for almost 30 years. I also do Cranial Sacral Therapy. My clients who recieve both massage and cranial sacral have the best results. It was great to see such a great video posted on this subject. True about trigger points. Find a good massage therapist and commit to regular sessions in order to heal your body. You cannot heal instantly from stress and pain that has built up over many years. Cranial Sacral Therapy is very helpful for fibromyalgia, as this technique works specifically with the nervous system.
raniosacral therapy (CST) is a form of alternative therapy that uses gentle touch to palpate the synarthrodial joints of the cranium. CST is a pseudoscience, and its practice has been characterized as quackery.
As a massage therapist I've found several things that help fibrmialgia. 1 is diet, removing all inflammatory foods and high oxalate foods. Second massage therapy. Start with Manual Lymphatic Drainage, myofascial release, then as the client tolerates it deeper massage techniques like myotherapy and deep tissue. Regular sessions are needed.
I've already figured out what caused mine, childhood narcissistic abuse. The mental and emotional abuse triggers the brain into thinking you're in physical pain, but since there's no actual physical input, the brain turns the pain receptors up because it thinks there's something wrong with them smh
Read the book the body keeps the score. It really goes into details on how diseases and mental health issues manifest due to trauma. The audio book is available for free on UA-cam.
I’ve had this condition for years and the only thing that has helped me long term is acupuncture. Acupuncture releases the pain and there’s a correlated improvement in the overall nervous system at the sand time, in my experience. Also note that many needle points are at commonly known trigger points, except they are not called ‘trigger points’ in Chinese medicine. Their names for the various points are MUCH more specific. For me, I had a lot of points on liver and gallbladder meridians. This does NOT mean there’s a problem with the organ itself, it’s the meridians (points) that are treated. What helps me short term is using a high quality Magnesium Oil on the skin (transdermal) lathering it on my larger muscle groups like gluts, quads and across the sacrum. Or across the trapezius and shoulder joint muscles. It does something to I’ve also experienced shorty term relief through cranial osteopathy, along with a good old fashioned chiropractic adjustment. I’ve had trigger point therapy hundreds of times across 20 years. It certainly helps, but for me was just a short term alleviation,
Hi Bee Bee. Thank you for your comments. You raise a couple of worthwhile points. The first is that yes acupuncture points and trigger points are often the same. However, rather than being "much more specific" acupuncture points were discovered long before scientist science as we know it existed so so the ancient cultures made up stories about them. Your acupuncture charts might give you specific points with fancy names but to my knowledge you can't even tell if they are really involved. Do you have a life force meter you can stick on the meridian and see if it is blocked, or whether your acupuncture unblocked it? Trigger points are much more specific because scientists have actually found something they can check and test. For more info please see www.drgraeme.com/articles/2022/04/what-is-the-difference-between-trigger-points-acupressure-points-and-other-pressure-points The second issue is that you have had trigger point therapy hundreds of times over 20 years but only had short-term relief. That is something I discuss regularly as a very bad and deceptive thing with trigger point therapies. Their goal is usually only to just deactivate trigger points, which means temporarily stop them from shooting pain. Of course they are still there though so next time you aggravate them the pain starts again. For more info (and the solution) please see www.drgraeme.com/articles/2020/08/why-do-trigger-points-keep-coming-back
Carnivore diet cured my 15 year struggle with fibromyalgia within one month. If I eat too many carbs, pain comes back. Lower carbs down under 20, better under 10, no pain at all! Try it, what can you lose!
Thank you. I have magnesium oil and going to start ASAP. I was diagnosed in 2017 after the most painful Dr session ever. I cannot tolerate the lack of energy
Interesting. I am a fibro patient in the US. I still take my meds since my fibro feeds migraines. However, I have been working on a holistic approach as well - increase in magnesium intake, seeing a chiropractor, and will soon start dry-needling. Dry-needling releases trigger points. I’ve done it before - years ago. It is said that the procedure can extreme emotional responses. I can attest that to be true since I sobbed gut-wrenching sobs. By that point, I was 41 and had been narcissistically abused since birth. It only got worse with time. So, yes, I cried, it will be interesting to see what happens this time around since 8 years has passed since then. Thanks for the info!
Lisa, I will give it to you straight. You will not win with the dry needling. You will have all the issues associated with needles. It will cost you an arm and a leg, and all you are likely to achieve is a temporary moderate improvement. Why don't you check out the video on self massage for fibromyalgia that is linked at the end of this one?
My mom was diagnosed with fibromyalgia. Then my sister. Nothing helped. I didn’t bother going to the doctor with my pain, but I did seek answers when my daughter began experiencing pain in her teens. Turns out hypermobile Ehlers Danlos Syndrome runs in the family. The men inherit the gene, but are less bothered by it.
@@anothercampervanchannel My daughter has been helped by physical therapy to some degree. What has helped me is learning to try to stay active, but also very intentional about not doing much of any one type of motion. I hope your family (and mine) eventually find treatments that help.
Wow! This is a revelation.. How come they don't offer trigger points right away? I've been getting regular massages focused on my shoulders and upper back, every 2 weeks or so and it has helped me get my life to nearly normal. I read an article from a physician who treats Joint Hypermobility which is my underlying cause and I've been receiving beta blocker and tizanidine low doses for before bed. This has allowed me to sleep and has kept me from having too severe of fatigue. Now I still have pain and fatigue, but it's manageable and not disabling. I hope this helps. I've gotten so much better that I recently did a 5K run with 20 obstacles, which is a huge deal considering the fibromyalgia.
Hi Suzan. I'm really happy that you are getting such good results. They usually don't mention trigger points at all, as this would be detrimental to drug sales. I don't want to cut in on your massage person who is obviously doing a great job and helping people, but if you can do extra therapy yourself you can get effective therapy several times a week rather than every two weeks or so, and that makes a huge difference. Please see our article on self massage techniques: www.drgraeme.com/articles/2021/09/trigger-point-therapy-for-fibromyalgia
Thank you so much Doctor. My sister has been suffering for almost 20 years now has become almost totally disabled and has Dr's appointments sometimes 4 or 5 times a week. She even spent several years in long term care in her 40's. The doctors just keep sending her to more doctors and now she is on 32 medications including high doses of dilaudid and also I can't tell you how many anti inflammatory drugs,psychiatric meds, 3600 mgs of gabapentine just for another doctor to ONCE AGAIN tell her that there's nothing wrong with her. This may be life saving to her as she has all but given up and I worry that if all the meds don't kill her she may harm herself. THANK YOU SO VERY MUCH. This sounds exactly like what is going on with her!!!!!
I had to retire at 40 too. I have so many conditions, I am on 32 medications a day. I was finally diagnosed with non-classical Ehlers Danlos Syndrome. It's a connective tissue disorder.
If theres nothing wrong with her qhy are they givi g her 30 odd drugs. Thats incompetence or corruption for big pharma if they are medicati g her for nothi g
Huh. My improvements have been from self-massage of trigger points. A theracane and hard balls against the wall I'm leaning towards, applied for several years, because of the immediate relief it offered. Now, my only remaining "fibromyalgia' is in my arms and hands. Your message has given me hope that those pains, too, I can overcome. Thank you!
Thank you for confirming what I have been thinking for years! I refused all drugs the doctors wanted me to take and I will continue to fight for my right to refuse them. I have witnessed many people taking drugs to try to make their lives with fibromyalgia better and none of them feel better than I do. In fact, many of them suffer difficult side effects. A few years ago I started to work on my trigger points myself and yes, it did help! Thank you for bringing that to my attention today! I’m about to “refresh” my own anti-fibromyalgia routine plan, and trigger points will be part of it.
Thank you very much. It is nice to have someone who wants to do something positive. Each day I have to delete comments from people who just want a forum to tell people about how hard done by they are.
@@drgraeme It's difficult enough as it is. I never felt any comfort, support or positive feeling on any groups where people complained a lot about fibromyalgia but wouldn't try anything else than drugs. Don't get me wrong...I do complain! lol But I also try to find things that will help me in natural ways. Sometimes I succeed, sometimes I don't. The past 2 years, some life difficulties have made me neglect many of the things that used to help me and now it's time for me to reintroduce those healthy habits into my daily routines. Finding your video and infomrations couldn't have come at a better time! Thanks again.
Carnivore diet cured my 15 year struggle with fibromyalgia within one month. If I eat too many carbs, pain comes back. Lower carbs down under 20, better under 10, no pain at all! Try it, what can you lose!
So glad I came across this. Some time ago, I was in physical therapy. This particular therapist worked on trigger points and boy, was it painful. However, I did feel better after each session. Unfortunately, insurance only helps with only so many visits. I does make sense to me that "knots" in the muscles could be a sort of quiet pain until your body couldn't stand it any longer. That pain overloading nerve endings and creating that very low pain thresh hold. Knowing a good massage therapist is essential for my FM, I am going to look for one that might specialize in trigger points. Thank you.
Please check out this video for fibromyalgia trigger point options that you can do yourself and aren't as painful. ua-cam.com/video/EtLyL9zuAw0/v-deo.html
Carnivore diet cured my 15 year struggle with fibromyalgia within one month. If I eat too many carbs, pain comes back. Lower carbs down under 20, better under 10, no pain at all! Try it, what can you lose!
If you have to keep handing over money to have somebody dig their fingers into you, you haven't found a cure, you've found a form of pain relief. Massage is a temporary distraction from the pain.
In reality they are both the same thing. They are a sensitisation of the nervous system resulting from prolonged or excessive stimuli such as pain or emotional stress. The only difference is that if the medics can identify the cause they call it chronic complex pain disorder, and if they cannot they call it fibromyalgia. I really hate it when medics mislead patients to make themselves appear less ignorant.
Thanks for the video. Now I finally know the reason why I have had sever fatigue and why my body has been aching for a very long time. And going to see a regular doctor would have been a waste of time because all they seem to do nowadays is write more and more prescriptions.
Having had fibromyalgia in 1987 after the sudden death of my husband, unable to get a diagnosis for several years until I got a rheumatologist who knew how to treat it, I know how horrible it is. Narcotics and other drugs don’t help. Acupuncture and trigger points treatments restored my life. It’s never come back. I’m pain free. Retired a few months ago! Thank you for this!
I've had fibromyalgia for years now and we have found that I have Ehlers Danlos syndrome a connective tissue disease and it has a connection to my fibromyalgia condition. It's a rare Germanic tribe genetic condition passed on by family members. My pain is not in my bones other than my arthritis but in my muscles all over my body. There is no cure for Ehlers Danlos syndrome (EDS) currently. Hot tub therapy is what I found to help me greatly . Only you aren't supposed to stay in a hot tub more than 20+/- min.
Celiac disease or type 2 diabetes or pre diabetes along with many other inflammatory diseases can cause peripheral neuropathy. Cut gluten and sugar and look for other possible triggers for inflammation. Begin self message. Get a vibrator. Streatch, walk, and prioritize your health. I find icepacks on my trigger points very very helpful. I have celiac disease and it kicked my ass as I was diagnosed late in life. Love yourself and cut yourself some slack. Doing a whole 30 elimination diet or a gaps diet could help identify food triggers. This Doc is right. Healing can take time. Love to all. Dont give up.
I believe your correct Stress! I have been diagnosed with major recurrent depressive disorder with psychotic features and depression and I was a single parent with four daughters life was hard in 2009 I had a mental breakdown and I was hospitalized I ended up with alopecia areata which sent me into a further depression at the same time I had my first phase of fibromyalgia I physically wasn't able to eat sleep I was in pain constantly and ultimately I shocked my nervous system and the trauma that it caused left me with nerve damage especially throughout my hands and arms so because all these things are happening to me at once I ended up not being able to control my stress levels. I got out of the mental hospital and I stopped using pills pills for my pain pills to self-medicate. And what I'm left with now is the fibromyalgia a severe state of fibromyalgia nerve damage throughout my whole nervous system and because I don't take any pills anymore I have pain all the time it took a lot out of me and it still does everyday I would love to say that it's gotten better but it hasn't sometimes you just got to deal. So yes I believe you're correct I believe that your nervous system is is the culprit to this chronic pain disorder. So if you can learn to control ur stress levels
I worked at the court in San Diego which many people have been leaving in recent years, and I had a horrible supervisor and manager that triggered my fibromyalgia. It felt like I was being electrocuted, was the worst symptom, about every 30 minutes. The whole place is getting worse unfortunately. They’ve been sued through arbitration multiple times and have lost. I should have sued them too. My doctor confirmed and supported me looking at my history and what I had told him over time and he suggested I leave the place if possible.
Hopefully you have left and all is good now. I've done an updated video that includes how psychological stress can be an issue as well. ua-cam.com/video/NBqeMg8rczY/v-deo.html
Seriously as a social worker I have seen some people crippled after a traumatic experience, some From work related matters. Please just leave, Love yourself to move to a new environment, I had to do the same. Thank God for giving me another option. I pray the same for you!
There are a lot of people or doctors that just treat symptoms and don’t look for the root cause. there’s no money in the cure. Thanks for sharing. Blessings.
I was injured a few times while on Active Duty, yet they kept saying I had Fibromyalgia. My general response for nearly 20 years was, "so, multiple head injuries, multiple hyper extentions and compressions of my spine, a chemical burn to my eye, metal in my eye, a spud bar across the clavicle... that has nothing to do with it? it's just an unexplained mystery?"
I was diagnosed in 2005 and have been seen by two different Drs. The first one is the one that diagnosed me, but she left her practice to teach. The second one didn't believe in fibromyalgia. So I have been trying to find another one in my city,but the closest one is 40 miles away. I have been in pain for many years. I would try anything to rid my symptoms.
Did you get that the first doctor who has gone off to teach gave you a diagnosis that mislead you that she knew what was going on? Why are you after another and not a professional who understands trigger points?
As a retired massage therapist i can attest to the fact that trigger point pain can cause wide spread , persistent and referred pain but with trigger point therapy work they do go away - melt away like boom ! Its amazing and very rewarding work 🙌
Thank you,, most people do not get these treated properly. First doctors do not recognise the cause, then eventually your nervous system becomes sensitised.
I was diagnosed with Fibromyalgia years and years ago…but, I have NEVER had the trigger point pain that they say diagnoses it! However, I have severe Deg.Disc Disease, and spinal stenosis and have had two major spine surgeries. My muscle knots have returned along with the loss of improvements from surgeries. I also have other diseases now, but firmly believe had I received proper treatment, I would still be mobile today, without all these knots all over my body, and the pain that goes with it. My knots are in my abdomen , ribs, neck, spine, arms legs….everywhere! better research and treatment would have made a difference for Thousands of people who are suffering today!
I normally just delete comments that blatantly incorrect and misleading, but decided to leave this one as an illustration of the stupidity that exists. Fibromyalgia is supposed to be diagnosed when the medics cannot find a cause of pain. yet Gizmo has has severe disc generation, stenosis and two major spinal surgeries. Gizmo says that he never had trigger point pain, but later says their where "knots" all over his/her body. "Knots" are a non technical term that describes trigger points. Lastly Gizmo says that better research and treatment would make a huge different. There is no argument about the need for better treatment, but the research has already been done. As stated in the video though that research is swept under the carpet so drug companies can sell more drugs.
Fibromyalgia, a wastebasket term that has only brought doubt and judgement into my already stressed life. Wish I'd never heard of it. I have been dealing with this on my own since 1997. I don't go to the doctor unless I absolutley have to, and I don't take anything. I use massage, osteopathy and accupunture to help me through. I also eat well, take certain supplements to various degrees of success, and listen to my body when it says to slow down. My version of fibro effects all my systems. I have just plowed through life with this disorder. I have been at the same job for 23 years, and only this past year, have told my boss that I deal with this as it seems worse as I get older and I need some compassion and accomodation. They have been giving me both, and I am grateful.
I have adhd and ocd. After my twins I developed lupus. I have a few other lesser issues but was told I also have fibro. I rarely tell it because lupus is enough. But my doc knows. I think my whole system is overloaded.
This is interesting and I will investigate further. My doctor never prescribed any pain relief or other medication. He did refer me to a support group.
Yes, do check it out further. Even though a lot of info is withheld from doctors many are aware of the push to sell drugs and look for other solutions.
I had a diagnosis of Fibro for around seven years. However when I got together with other Fibro patients I really did not have the same symptoms, mine were all right sided and I was getting slower year by year. Also none of the standard meds worked in fact one completely floored me. Eventually I asked to be re-referred and it was obvious my symptoms were neurological. After going through some substantial testing and observational sessions in spite of not exactly fitting the new diagnosis exactly I was diagnosed with atypical Parkinson’s. I was 52 then and widely regarded as being too young. Since then many young onset patients have emerged many far younger than I was on first symptoms. That was twenty years ago today. I am very slow and shuffled but do not have tremor. I am also as sharp as a tack at the moment! The Parkinson’s standard medication worked for me right from the off and my doctors and I between us kept them to the lowest dose possible so I do not have many of the medication side effects earlier patients often got. Fibro for me was the dustbin diagnosis I got chucked into. I was lucky to have a specialist who was very experienced and understood that not all Parkinson’s looked the same. And it really doesn’t as anyone who has been to a major Parkinson’s conference knows. A LOT of people did start off with very similar initial symptoms though…. Medicine needs to stop creating these silos of people when they do not have answers, it is dishonest and does not help patients. Moreover when the dx becomes discredited then the patient is left feeling disbelieved. No one goes to the doctors when nothing is wrong, if they are describing physical symptoms that are limiting their lives they deserve not to be the victims of medicines fragility. They really deserve a lot better than that. An acknowledgement that they are definitely unwell for instance. Unwell and untreatable because their condition is as yet not known. If those patients get sent to rheumatology rather than neurology or endocrinology for instance the chances are they will never get close to the treatment they need.
That is the big problem having a "diagnosis" for something you don't know about and make because you cannot find anything else. There's always a reason.
@@drgraeme I would amend that, there is always a root cause. There should be no shame for medicine to admit they do not always know or understand what those are. I always think that some deep listening to the patient holds so much information too. A doctor is observing a short period in time, but the patient is living with it on a daily basis.
@@lindyashford7744 They are well-meaning thoughts, but it doesn't matter how deeply a doctor listens to a patient if they have no scientific understanding or rationale.
@@drgraeme I was diagnosed with Fibro in the mid 1990’s, we knew about myofacial pain disorders then as well as trigger points, and how to work with them, even about guiafenesin etc. It was through this awareness that I became doubtful that I actually had the condition and in fact when I described my symptoms well that was the first time someone suggested Parkinson’s as she had looked after a family member with it. I was doubtful because of my age and it took years for anyone medical to suspect it. However I did learn a lot about Fibro, and also about amytriptiline etc. they were definitely not a fit for me, for a start I was not tired, I was the other way! I am really surprised things have not moved on a lot further, that was nearly 30 years ago. In my country there are still a lot of people in denial of conditions like Fibro, ME/CFS, and even encephalitis. Also I now find post sepsis syndrome and long Covid. There are commonalities with these conditions and their causes. I once met a woman who had CFS for many years, and underwent a lot of testing with cultures etc done because she was unmistakeably very ill, eventually they isolated typhus from biopsies from her deep muscles. She had in fact been in a city that had an epidemic at the same time she was there, she had fallen I’ll but in her home country they never saw such illnesses, and so had no history of treating it in modern times. Certainly the vast majority of clinicians had never seen a live case. If you scratch hard enough you will find causes for most illnesses, there are just a lot of them and not enough experienced doctors to go round.
Uhhhh.... and what causes the "trigger points" ? I agree with you on the big pharma point... great explanation there... but my trigger points are caused by Stress... Trauma (emotional)... and living in a society that suppresses Human Life well being.
I never had health issues or diagnosed with fibromyalgia until after having autoimmune reaction to the JJ cov vaccine. It started day after with a lot of pain, electric shocks and progressed to entire body nerve pain. 2.5 yrs later and now diagnosed with osteoarthritis, tinnitus, snow vision and tendon ligament issues.
This is an example of the stupidity related to diagnosing "fibromyalgia". By the medical definition, it is having the symptoms but not being able to find a cause, yet you have had a vaccine reaction, osteoarthritis and "tendon ligament issues" whatever the hell they mean by that.
Check out Dr Bryan Arias, not on UA-cam bcz he will get censored. From medical doctors on the cutting edge if I remember correctly, that all long covid peeps in their studies show micro blood clots. They diminish the normal amount of oxygen to reach everything in your body... organs, lungs etc. I kept telling my doctors that something seemed like it wasn’t connecting. This makes sense to me. I watch cutting edge docs at the front line that are researching long covid. And doctors that analyze studies. It’s like putting the pieces of the puzzle together.
You and me both. But good news is today is another day and those people are out of my life. Hope you are doing well. It is so sad when parents and siblings abuse their kids. Hang in there.
Why do they bring up depression anxiety I don’t have that. I’ve been prescribed anti depressions to help with pain and of course pan killers I did try them in the earlier days I was still in dreadful pain so I stopped them as I was still in pain what will help the central nervous system Their just has to be a solution … in the mean time my quality of life is not what I would expect due to CHRONIC PAIN 😩😭
Which answer do you want: that they are really just the sales arm of the drug companies so it's their job to hook you on stuff like that, or that with all your pain and frustrations you are bound to be depressed. Now rather than giving us a sob story how about you take the info in the video and do something about it.
Thank you so much! Ive been told to take drugs for the rest of my life ..i decided against it !! Very informative content ..will check more vidéos now on trigger points
I was on tramodal for 30 years & still had pain. I was sick of the fight to get it so I weened myself off of it. So glad I did that, I still get spells where it feels like every nerve in my body is in pain. I don't know if what I stumbled upon will work for you but I take one regular aspirin & two Tylenol with caffeine & it will make the pain subside for 6 hours. I also see a Chiropractor who is amazing. He does trigger point therapy & has helped me tremendously.
@@animallover4ever229 That's great. Please check out our article on trigger point therapy for fibromyalgia, and if you are not already doing so you might be able to discuss with your Chiropractor doing some extra therapy at home. The article: www.drgraeme.com/articles/2021/09/trigger-point-therapy-for-fibromyalgia
Carnivore diet cured my 15 year struggle with fibromyalgia within one month. If I eat too many carbs, pain comes back. Lower carbs down under 20, better under 10, no pain at all! Try it, what can you lose!
I discovered this more than 2 decades ago. No help from medical but I self treat with Clare Davies "Trigger Point Therapy Workbook" and a Theracane. I figured it out myself. Was DX with Fibro and CFS in 1996. It really has been a battle. Massage is the best TX but doesn't last long enough. I'm really worn out now in my 70's - it's getting harder and a recent visit to a Rheumatologist showed me that they still know nothing. So very discouraging. I'm going to your website to see if I can find anything new. Thanks for the research.
@@drgraeme Thank you SO much for your super fast reply. I put you on my FAVS and will definitely be on your site as soon as I can. I live in a rural area and have not found a trigger-point specialist. Found a couple that claimed to be but weren't. :^) I had a neighbor once that was not a massage therapist but she was gifted. She was an optician but wanted to be a MT. She had her own table. Had never had a lesson and gave the best massages I'd ever had. She had magic fingers that just went right to those knots. I'd even say a gift of healing. She moved. :^( Anyway, this sure has made life difficult. I've not even been using my faithful old Theracane lately. I'm just too tired. Lately I've just been hobbling along and staying home and off my feet. (sigh) Anyway, when I can pull myself out of this funk, I'll check out your site. :^)
@@drgraeme :^D THAT is SO right! That sweet girl was SO dedicated as I suspect are you. Thank you again for that uncommonly fast reply. Why is it that all the exceptionals are vast distances away. :^D Well, anyway, you are a great emotional boost! Thanks so very much! p
What a stupid comment. The nervous system is sensitised, not inflamed. There is a difference. I get morons telling me about insulin resistance all the time like it's some revelation. It's probably one of the hundreds of secondary effects, and what are you supposed to do,, get a heap of insulin injections. I'm sure that if the drug companies could patent insulin and make huge profits from it the doctors would be pushing it like crazy.
Wow thank you Sir for caring about this matter enough to attempt to help others. So many have been looking for answers that don't seem to be there. Many Blessings❤️💥🙏
Trigger points = stuck fascia (from emotional and physical trauma) = major pain. Stuck fascia = little or no nutrients and blood getting through, hence the pain. I've heard that sugar can also create sticky fascia. Find a myofascial therapist for help !!!!!!!!!!!!!!! :) PS For at home treatments, I use yoga balls (tennis balls okay but not as good) especially for the occipital lobes and knots in my back) which gives me instant relief and Paida Lajin is remarkable for relieving fatigue.
Normally when people leave comments containing information that is incorrect and ill-informed I just delete it. However, I decided to leave this as an example of the stupid ideas people have about trigger points. There is no such thing as "sticky fascia", and that bit about sugar creating it leaves me a bit lost for words. Where do people get these crazy ideas??
There are a number of medications that have Fibromyalgia pain listed as a side effect - a Doctor suggested it for symptoms to me. Yes- your body feels like broken glass,it might be rheumatic too. Often follows a bad viral infection - flu,glandular. The childhood trauma theory is a wildcard. It is an autoimmune illness.
Yes anything that can sensitise the nervous system can cause fibromyalgia, including medical side effects, but the scientists found (myofascial) trigger points to be the biggest and overlooked one. You also need to consider that the effects of these things add up and that trigger points are extremely common. It might be that medication plus trigger points caused the sensitisation, and with either eliminated the nervous system would cope.
Both my sister and I have PTSD, with her case being much worse. She has fibro and I suspect I may have. Traumas impact on the cns is real, especially the vagus nerve system. It is well known that childhood abuse impairs the development of some parts of the brain sometimes even permenantly.
The weather causes flair ups of fibromyalgia. I have had it for about 30 years. Nothing helps. Drs don’t want to give pain pills for the long haul. Most Drs don’t get it
This is interesting and sort of where I have ended up. I'm interested in learning about the development of Fibromyalgia pain and a possible association with teeth clenching, jaw grinding and nail biting. Perhaps there are trigger points that line up with the Tmj area and the neck.
I have Occipital Neuralgia on top on FM and I’ve had a lot of success with having Botox injected in various places along the occipital nerve lines. It quiets them for up to six months and also help me to not feel migraines. I went ten years without a migraine until the plague hit. Would Botox be an option for these knots in the muscles? It relaxes everything on my head, so would it not do the same for FM sufferers? Because I’ve had this for 22 years and I’m officially at the end of all attempts to find a cure.
No, injecting botox into trigger points is not a solution. I've given you the proper solution so if you can break your official end go try that. As a retired chiropractor I know that medics diagnose upper cervical problems and trigger points as suboccipital neuralgia, then inappropriately treat it and it turns into disasters like yours. For background info please see www.drgraeme.com/articles/2021/11/what-is-a-subluxation
I have had chronic pain down my left side since I was in a bus crash in 2009. The pain is in my neck and in my head with tingling kn my toes and fingers. Nothing at all will help me. I am on Amitryptaline at night. I was in hospital and one Dr said he thought I had Fibromyàlgia. I was also in a bus crash in 2009 and many of these symptoms started not long after that event.
This illustrates how idiotic a lot of doctors are. Their diagnosis of fibromyalgia includes not being able to find another cause of the pain, and the pain is down one side following a bus crash.
I have tried the myofascial release techniques for months, I was better for maybe 2 or 2 days, then the pain was coming back. I could try another therapist. I am 30 and I cannot work anymore due to pain. I am not taking medications - nothing works for me. I take lots of food supplements, and having mineral bath salts everyday. the pain in the morning is unbearable. I sleep very badly, I have nightmares, and restless leg syndrome. I was diagnosed with fibromyalgia bu also arthrosis , spondylosis , scoliosis, lordosis. My hips are not the same height Most recently I got Arnold chiari INdiagnosis, which made things even more confusing,. But no one knows why I have all of this, and no one was ever able to fix me! A miracle - that's what I need .
Hi Stella. Your experiences show that mypfascial trigger points are a big part of your problem. However, seeing a therapist for myofascial release is very unlikely to fix your problem long cause. It's painful, expensive, and you are unlikely to get all the care you need. For your solution please see our article where we describe a much better way. www.drgraeme.com/articles/2022/09/how-to-massage-fibromyalgia
@California Karen789 Yes, the "diagnostic criteria" for fibro is that you have the symptoms but the doctors can't find anything wrong. As discussed calling it a diagnosis is really deceptive but using their criteria if there is something it's not fibro
Mine came after my 19 1/2 y/o son passed after 6 wks on life support. I couldn't walk down the hall at work w/o the seam in my jeans causing leg pain. I do exercises that help some but don't alleviate the pain. I don't like to get cold but I also sweat profusely - I think Cymbalta causes this. I reduced myself from 60 to 30 MG and eventually will try to get off it.
Being a lmt I find it's caused by stress, trauma, burnout. You are correct that it's associated with trigger points. It's always diagnosed in women and I have yet to see it diagnosed in a man. People don't realize how much we hold on to situations emotionally. If you've been diagnosed, find a good massage therapist and use that instead of meds to keep it under control. Also find healthy ways of dealing with trauma, stress and burnout on an emotional level.
Thanks for the comment. For more info about the role of emotional stresses and so for the please see this video ua-cam.com/video/pSmMoKX7Bmw/v-deo.html
I had a knot in my back which I believe you would call a trigger point. The way mine was treated was very painful using freezing spray on the spot and then pressing into it to work the knot out. In order to keep me from tensing up, I think, he didn't warn me about what was about to happen. I can't say it helped me and it might have just been a symptom of another issue. But I imagine this was one of the ways to help get rid of the trigger point. But this was years before the firbro treatment was found out and I wasn't diagnosed with fibro. So this treatment maybe unrelated. But it did sound alot like what was being discussed in the video. PS. The cold spray felt cold, but didn't hurt at all. But it made the pressure pushing into that knot really hurt. Not intolerable, but not fun.
What you describe is a ridiculous therapy that was promoted by a couple of medics who we suspect were sponsored by the makers of the cold spay. Check this out for the best way to deal with your trigger points. www.drgraeme.com/articles/2022/09/how-to-massage-fibromyalgia
You could, but trigger points with fibromyalgia are tough and take effective therapy over a long time so you'd probably fail with such an approach. Check out www.drgraeme.com/articles/2022/03/massage-for-fibromyalgia
Many cases after jabs...like me... Nervous system gone and pain from 23 months, after 2nd dose of pfizer my life is ruined... Was really fit and healthy...
@@almabollinger yes but you get covid. You did not sign to ruin your life when you was healthy. Only because doctors told a lot of lies. And jabs injuries are way worse than covid one...if you are injured by covid doctors listen to you. If you are injured by jabs doctors won't even try to help. Injured are the living proof of their lies. The order is "not help and admit".
I agree with the medical industrial complex part of this video. My FM/CFS or ME/CFS is not caused by this. I was first diagnosed in 1998 and I have figured out my cause and I now am able to control it. I spent over 10 years mostly horizontal rather than vertical. Maybe the diagnosis of FM is the problem. If it can be cured by so many different ways then it must have many different causes.
Likely a secondary effect, not a cause. There are many. In the video I discuss how medics tend to investigate and make these out to be the real issue. If they tell you that it's insulin resistance they can sell you more insulin or some drugs to make you less resistant. There's a lot more profit in that than treating the real cause.
I am a long term experiencer of fibro. Chronic back pain plus unhelpful spinal surgeries saw decades of suffering. Now in my 60s,i have turned to yoga which I try to do daily plus trigger point therapy which I do myself. No more back pain, other prob areas flare very occasionally. Skin still hurts to touch so massage is an uncomfortable process.
My fibromyalgia went from debilitating to a nuisance when my crumbling, dysplastic knee was surgically fused. When my severe knee pain, which I needed 45-60 mg of morphine to function with (but didn't help the fibro pain at all), subsided so did the fibro pain. I now take MSM which reduces the fibro pain from a 5-6 level to 0-1 most days. Before the surgery, the MSM appeared to do very little. My fibromyalgia still flares if I do too much physical activity.
Fibromyalgia is sensitisation from other pain. Often from trigger points but in this case the knee. For more info on causes ua-cam.com/video/pSmMoKX7Bmw/v-deo.html
Having some experience with 3 generations of doctors, I believe they are getting progressively more ignorant with each iteration. Medical schools, like the military, are forced to accept less intelligent students and trainees, and the indoctrination techniques to limit the problem solving abilities has improved.
Just appreciate that superficially they are trained to help people, but covertly they are trained to be the sales force for drugs and medical technology.
I've had issues since the 90's. I've said for years and years, that if insurance would cover massage...I could rid myself of most of my pain. That, and if I had someone closer than 2 hours away that does the massage necessary to actually help. I've also been told that FM never gets worse. So why is my pain getting worse? I'm just now learning I likely have hypermobility EDS. Could there be a connection to FM?
There are perfectly good self massage options (see link). What idiot told you that FM doesn't get worse, and why did you believe them??? www.drgraeme.com/articles/2022/03/massage-for-fibromyalgia
Thank you...I'll look at it...but I'm sort of losing use of my hands some. More specifically, my thumbs and index fingers. It was a friend's doc that told them FM doesn't get worse, to start with, then a few other docs say similar and some still say it isn't real...I didn't think it was true. I brought it up because there are docs telling people this crap. I had a chiropractor tell me that the "only" people that have "real" FM are the ones that have these ridges in their muscles...and no one in the US is likely to have it. That one really ticked me off...how smug he was about it all. True or not...I did then and have the whole time, had ridges in some of my muscles. That is where I have had massage work done most of the time. Anyway, I was curious about if there was a connection between FM and HEDS because I know two other gals with EDS that also have FM. I realize that is nothing by way of crazy numbers. Just something I was thinking about.
I've showed the commonly overlooked problem, and pointed you in the right direction with the video on the end screen and in the description. Others have managed to follow these and get great outcomes. If you can't understand it that's not my problem.
Hello 👋 I just happened upon your video, I subscribed because I'm very interested. I was diagnosed with fibromyalgia long ago, and I now have so many muscle spasms just about everywhere in my body. It just gets worse as time goes on 😢 I'm not understanding why I keep getting new ones and so many. I've tried so many medications, injections, physical therapy, and acupuncture. I have to keep nitroglycerin with me because my esophagus goes into spasms as well. I wish there was a dr that could/would work with patients that have fibromyalgia because most doctors don't take it seriously 😔 I'm hoping that I can find some relief and learn more here 😊 Thank you, doctor, for being one that believes and cares ❤
Hi Linda. From the doctor's point of view fibromyalgia is symptoms when they cannot find anything going on. You definitely have some musculoskeletal/neurological condition going on.
I was diagnosed when I was 19 yr old, I'm almost 69. Nothing the doctors have done or given to me has helped. I have other pain causing health problems also.
This year I thought about getting on full-time disability and I’m only 42 and I have a four year old. I have had fibromyalgia with severe chronic fatigue since youth. After I got Covid this summer, I felt like I was going to die. I had a lot of childhood trauma from a borderline narcissistic mother, and I also had severe 60* scoliosis and had a full spinal fusion at age 12. I felt very suicidal over the years, due to the chronic fatigue and chronic pain and also chronic illnesses. I felt like I was always on the verge of a sore throat. I thought maybe I had lymes, or something else and I know that I’ve had Epstein-Barr on snd off. A few things that helped me over the years were taking desecrated adrenal and Thyrroid supplements. That was night and day change, but eventually didn’t work anymore. My endocrinologist said that my hormone levels were fine prior, but I still don’t have answers as to why it helped so much, for so long, but then later stopped working as well. Taking high quality zinc staved off the Epstein-Barr virus along with liquid vitamin D. I also now take a high dose of lithium orate to help with my mood and depression. DHA for peri menopause. The only thing that has ever helped my chronic fatigue is taking D-Ribose. I’m still sorting out my issues with my crazy narc mother but I have half a Klonopin on the nights that I can’t sleep and I wake up refreshed and I don’t advise this but for me and not getting into deep sleep as what drives my physical body pain. I know that the triggerpoints help because when I get a massage it just really have something in my hot body and I feel better but it’s never a long-term fixed but I’d be interested to know more.
The main issue here is that the massages that make you feel better may temporarily quieten down any trigger points, but would have negligible long term effects. You need a proper strategy to eliminate the trigger points www.drgraeme.com/articles/2021/08/does-massage-help-fibromyalgia
@@Flo1918I wonder if you would say that if her mother was physically abusive? Long term emotional abuse (which is pretty much guaranteed with a Borderline narc mother) can be equally and even more damaging.
I have fybromyalgia since 2004 and it’s got worse I’ve changed my diet I take moringa and omegas all the B vitamins . And D vitamins so good . Intermet fasting and it’s helped a bit but know I been diagnosed with MS O boy ….. But I’m positive even when I’m pain … Thankyou …
I normally just delete comments like this as totally ridiculous and irrelevant, but will leave it as an example. I've clearly stated in the video that a "diagnosis" of fibromyalgia is doctors misleading you that they have found the cause when they really haven't. However, Nonna says it's helped her to know she's been diagnosed. I've given something positive she can go and investigate, but she's carrying on about vitamins and how she is positive with pain. If you want to go check out your trigger points and possibly get better that's great. If you just want someone to tell your irrelevant story to find somewhere else.
I used to be a positive person when I was really young trauma in my childhood, something in my body changed. Forced abortion when I was 13, then I started having more pain I didn't understand. Then an abusive marriage in my early twenties my pain turn to bad case of the flu that wouldn't go away. Had kids, more trauma and stress with confronting childhood abuser when I was 30. My pain got worse, now my pains are extremely hard like pains which lasts my entire life I'm 62 now and I'm nearly crippled by it but I still do normal things and walk around or I should say hobble around. I wish I could have stayed positive but I didn't I have to take medicine for depression I cry a lot this is affected my relationship with my kids. If you have pain depression comes and with depression it's hard to be positive.
I’ve had fibromyalgia since I was a kid I can remember how I felt and hurt back in the day It really really got bad in February 1991 I was in a car accident in November 1990 then my son passed in Feb 1991 I’ve gotten worse through the years I’ve lived with it so long now that it’s a way of life Tramadol at night Ibuprofen or Tylenol during the day I’m 64 yrs old and have learned on my own how to treat it
I sympathise with your son passing away and the car accident, but who are you trying to convince that you've learned how to treat it by doping yourself with Ibuprofen and Tylenol? I've given you a possible solution,, go explore it rather than make these pathetic comments.
Omg, What a reply to a woman who lives with a lot of pain. Telling her to stop making pathetic comments because you don’t agree with her medication… and accusing her for doping herself on ibuprofen and tylenol. Yeah, those pills are really heavy shit, not…. (Yes, I know all drugs have sideeffects) I have been living with fibromyalgia for 20 years, and if I had a doctor with so little empathy as you, I would rather die. Btw, take some lessons in how to become an inspirational speaker. You are so plain and boring that the topic you are trying to teach people get lost.
@@kristinl.b9741 A lot of people use UA-cam comments as a forum for all sorts of stuff and most of it is irrelevant. A lot of the time they are using youtube because people in real life won't put up with them listening to their whinging, opinionated comments or stupidity. My guess is that the people in your life don't want to be involved in stupid arguments.
Few conventional doctors are taught about muscle knots/ trigger points as a source of many pain problems including referred pain (which can cause misdiagnoses and unnecessary surgeries that don't work). The money is in toxic drugs, surgery, and assorted diagnostic tools that really don't help and can make things worse. I had a trigger point in my mid back. A chiropractor passing said something about it as he went to treat what he could treat on me. I later went to a doctor who just happened to point it out -that same trigger point- and he injected it with a lidocaine (?). It went away. Sadly, I believe he retired.
The doctor you went to was a bit more enlightened than your typical drug pusher. However, lidocaine is just the anaesthetic dentists use which as we all know just temporarily kills pain but doesn't fix anything. Instead of telling people how much you miss this doctor why don't you do something constructive like check out the video on massage for fibromyalgia linked at the end of this video and learn how to fix your problem properly.
@@leoandolino4668 Correct, but deactivate just means temporarily stopping them shooting pain. Of course they are still there and start shooting pain again when something stirs them up. For more info please check out www.drgraeme.com/articles/2020/08/why-do-trigger-points-keep-coming-back
I had those muscle knots Sensitization is plain BS. There may be a subset of FMS that have a milder form of pain that is viewed as FMS. The reality is that no real objective diagnose exist so multiple conditions are being called FMS.. I had CFS / Fibromyalgia for well over 40 years. Research into this disease has been suppressed since the 1950s. Around 70 percent of people who have CFS have FMS, I view most Fibromyalgia is an infectious type of arthritis. I cured mine completely within one to two week using minocin/minocycline in 1999. Some minocycline products don't work so just research online. I currently use minocyline for osteoarthritis. I did use boron successfully for rheumatoid arthritis. Took one month to cure. Use antibiotic with an enzyme like bromelain, nattokinase, lumbrokinase etc to prevent antibiotic resistance biofilm.
I wonder if unexplained back pain could be caused by something similar. I started with what seemed like sciatica six months ago, the pain changed from my butt, to my calf to my foot...and then it changed sides. Apparently there is NOTHING wrong with my back and I'm not making this up so I'm wondering if I should just go and get work on my trigger points. Interesting side note here, I always had such bad knots in my back from my work which was writing on a blackboard all day. When the sciatica began, my decades long pain from knots in my traps and scapula disappeared. Could never explain that but this video has got me curious!
Absolutely yes. Trigger points are a massive cause of undiagnosed back pain, and of course if the pain becomes wide spread and medics cant find the cause they diagnose "fibromyalgia".
Nice video! I've recently been told i have this fibro thing. I'm receiving fascia treatment at physio and heing pumped with magnesium and potassium. Bloods show I'm low on protein and vitamin D. My follow-up is in 2 weeks. I would like to know more about the fascia . Fascinating stuff, thank you
It likely will be trigger points. I think you need someone proper to find them rather than thinking you just have muscle pain that feels like lactic acid build up,
@@drgraeme Trust me I have. I’ve been diagnosed with fibromyalgia. My symptoms are muscles burning. It feels like I’m always lifting weights when I raise my arms or legs. I’ve seen 2 rheumatologist.
@@melevonne Did you not get that the "diagnosis" from the two Rheumatologists you have seen just means that they could not find anything wrong, and "fibromyalgia" is a name they give you to make it seem like they did? It is highly likely that no one has checked for trigger points because it is in the best interest of drug companies that doctors are not told about them.
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hi thank you for this information. I slipped a disc in my lower back and the disc wall also split leaking out the contents and while that was going on I was also diagnosed with Endometriosis. The specialist said it was the worst they had ever seen. 2ft of bowel had died and I had massive amounts of adhesions that were sticking my organs to each other. I've had around 12 surgeries and now I'm left with chronic adhesions and no surgeon that i have seen will go inside to divide them because theres too many! I ²was diagnosed with Fibromyalga around 14yrs ago. I would give anything to be pain free or at least 50% better. 😢 I get aches and pains but at least once a week I feel like I have the flu every bit of me hurts and it feels like a virus. when this happens I can't get out of bed. Do you think it's worth going back to my drs and ask them to do other testing? I've been told I have symptoms that overlap with other illnesses like CFS, M.E, rheumatoid arthritis & polymyalgia. Is there any specific testing I should be asking them to do? what type of specialist could I ask to see? Thanks in advance x
Hi Claire. Very simply fibromyalgia is s sensitisation of your nervous system usually caused by being bombarded by other pain, and where possible that source of pain needs to be dealt with. In your case you have a variety of things causing this pain so it is no surprise sensitisation has occurred. However, I have no idea how you deal with all that has happened to you.
I was fine until I went through so much trauma with a childhood problems that caused ptsd, a seperation that I had a nervous breakdown & bought on rheumatoid arthritis, then I had to run a business with 2 kids, sell my house, money became an issue & with the pain anxiety & stress became worse & then my rheumatologist diagnosed me with fibromyalgia. For me it was caused by anxiety & stress & when my dad was diagnosed with pancreatic cancer I’ve had a chronic relapse of fibromyalgia. I know very well what bought it on & I know very well that it’s fibromaglia. It all has to do with depression & the brain.
I’m convinced that I got rid of my fibromyalgia by getting in a hot tub at 102°F for 1 hour every day. It took a few years, but I could feel differences within the first month. I’ve been without symptoms now for about 15 years.
Heat increases circulation wich helps a lot of those musculoskeletal problems,
I believe it
I can no longer tolerate heat😔
I agree even a hot tub as in a regular bathtub with some Epsom salts.
@@christinerussell1132research turmeric and black powder and how that helps and also I would suggest maybe castor oil packs.
I've been in pain since I was 9 years old, and I'm 56 now. I've joked for years that Fibromyalgia is a fancy word that means: "We don't know what your problem is, so we'll give it a complicated name that sounds impressive".
Absolutely correct, but now you've got a choice. You can go get your trigger points checked out and use the trigger point massage techniques (link at end of video).
I have felt that way for years. They have no clue what is wrong with me.
@@a.p.5429 Nor a way to fix it
I also was having excruciating pain. Recently I found something that absolutely worked. Here's what I do. I take 3,000mg of liquid liposomal C first thing when I wake up on an empty stomach. Don't take lipsomal C pills. They don't work as well. Two hours later I take 1000mg of B1 (Benfothiamine) and 10,000mg of vitamin D3 at breakfast time! These three vitamins really solved my problem in addition to the minerals I take right before bedtime. At night I take chelated magnesium (buy on Amazon) and take twice the recommended dose. I also take a zinc supplement, iodine supplement and an iron supplement. Fibromyalgia is really a condition in which the body is not able to repair itself each night because there is a deficit of vitamins and minerals. For me I discovered that because of stress my body was constantly deficient in vitamins and minerals. Other people didn't seem to have the same issues I did with being deficient when they experienced stress. I can't prove this but I really think my body absorbs vitamins and minerals less than the average person so I need higher doses! Within about 2 weeks of taking these supplements 90% of my pain was gone. Some days I don't have any pain! What a miracle!
@@jeremyamaral5346 They're poisoning our food, air and water. My Spirit is ready to exit this toxic wasteland.
I’m a Traditional Acupuncturist and have successfully treated many people with fibromyalgia. In my experience it is always rooted in past or long ongoing emotional imbalances or trauma to the body (physically, mentally or emotionally). The very reason blood tests or machines can’t detect this is because western medicine is not trained to pick up emotional imbalances they work on a physical level. This is also why western medicine struggles with dealing with mental health issues. Treating with drugs just masks the issue.
I'd normally just delete this comment as being irrelevant, but I'm curious. Yes we know that western medicine is really just the sales arm of the drug companies. However, I'm wondering how you pick up emotional balances and so forth. Do you have ying and yang meters to see if they are out of balance? Do you have life force detectors so you can see if some acupuncture point is blocking them, and if they are flowing again after you fix it? Do you have some way of checking emotional problems that's better that measures a psychologist would use? It's fine to make claims that you're balancing all this stuff, but really what do you do??? If you haven't got answers for these your's is just a tall story.
@@jlys5037 OceanSunset didn't,, are you able to explain whether you have life force detectors to see if a channel is being blocked, or how you have a better way to measure emotional problems than a psychologist would use?? Otherwise it's all just a story.
Read about the primo vascular system.
@@kayleeallen3371 I normally just delete completely ignorant posts like this, but I checked the scientific papers on it. It's a total BS story made up about a fantasy interconnection between the vascular system, the nervous system, DNA and who knows what else. There is no scientific evidence or any semblance of logic about it.
@@drgraeme I've been bamboozled.
Fibromyalgia is hell on earth.
No doctor has given me hope. They pretty much ignore that I have it.
It's really bizarre. I force myself to move 😳 some days are better than others.
So, you've watched the video. Are you going to do something about it or just tell everyone your sad story??
@@drgraemeHow rude!Where’s your compassion?
@@-xyz-012 I only care about people who want to get better. You can pander to people who don't
Try micronised creatine monohydrate (5g daily)
I want to get better
I have had this since 1962. It was “all in my head” and still is today with most docs. Glad you all are getting more enlightened providers. ❤
Enlightened providers are pretty rare. The drug companies have got the medics brainwashed, and there are a lot of crazy ideas out there.
I would suggest reading Daniel C Dantini's book "The New Fibromyalgia Remedy: Stop Your Pain Now with an Anti-Viral Drug Regimen"
That got rid of most of my pain. Then John Hill's
"Natural Treatments for Genital Herpes, Cold Sores and Shingles: A Review of the Scientific and Medical Literature" because the Epstein Barr virus and HCMV are herpes viruses.
High dose vitamin C protocol is on there.
What symptoms do you experience ?
@@drgraemeirrelevant.
Ok, I listened the whole way through.
It's not only the pain, what about the other 199 other symptoms that come with Fibromyalgia?
This condition is NOT only the pain!!
I hate it when people make ignorant comments because they don't listen. I said that sensitisation of the nervous system amplifies pain, plus because the nervous system controls pretty much every function in your body you get a host of seemingly unrelated symptoms. The worst thing is you are making comments when you should be taking the info and trying to help yourself.
@@drgraeme
Thank you for replying.
It would of helped if the other symptoms were mentioned.
Many people have the impression that it's "only" pain that we suffer. It is a huge part of it, but there is so much more to this cruel condition. 🇦🇺
Ps. I like our flag. My ancestors were convicts lol.
It is caused by insulin resistance and inflammation. The Ket/Carnivore diet cured my 15 year struggle with fibromyalgia within one month. If I eat too many carbs, pain comes back. Lower carbs down under 20, better under 10, no pain at all! Try it, what can you lose! I lost weight, lowered my A1C, watch Dr. Ken Berry or Dr. Shawn Baker, Dr. Robert Cywes
@@drgraeme you will never get anywhere if you call patients ignorant.
@@scarlettifluff On the other hand people won't get anywhere if you sugar coat and pander to their ignorance.
Isn't it funny how when you see a doctor they almost never find a cause of your problem but they always have a pill to fix it..
Yeh, funny as in not quite right, not funny ha ha
Well, most MDs are legal drug dealers. They can't cure the real diseases, just cover the symptoms with a pill.
Not if you find the right one for you
I had long term stress and anxiety (bereavement and burnout) over 5 years, became run down so caught two nasty viruses and then couldn't get up off the floor without my body feeling like a elephant was sitting on my back. Still have this. I ended up with widespread pain etc etc and got told I had Fibromyalgia. It's just hideous and you're just handed a leaflet with some info about it, pills and left to deal with it on your own so you don't know what to do.
This illustrates that fibromyalgia results from stresses on the nervous system, and that doctors have no clue.
@ Sammy - I am so sorry you are in so much pain. I know what that feels like. I was diagnosed with FM (fibromyalgia) 31 years ago, though I have had it for 33 years. It will be 34 years later this year. I was seeing a different doctor for the first 2 years, and he didn't have a clue. He told me I had early Osteoarthritis, and I thought I don't ever want to know what late OA is like, because I was in so much pain, I thought I had Bone Cancer! Anyway, two years later, I went to see a Rheumatologist, and he asked me questions the previous doctor never did, like how are you sleeping? My sleep was terrible. I was waking up around 6 to 8 times each night, and never felt rested. I would go to bed in pain, and wake up in pain every morning. I still do, though the pain is managed better during the day, and I take Amitriptyline (Elavil) at night that gets me to stage 4 sleep, and keeps me there for at least 6 hours. Six is much better than almost none, and after 6 hours my pain medication wears off, and that's what wakes me up every day. Pain.
If you're not sure if you have FM, there is a blood test for it that has been in use since 2012, and is reliable 99% of the time. I had the blood test done in 2021, better late than never, and tested positive for FM with an overall score of 93. There are a series of tests run on your blood samples, and are scored in a scale from 0 to 100. Any score at 50 or above is considered positive. If your scores are below 50, that's considered negative. Lupus is a disease that causes bodywide pain too. I don't know if the Lab that tests your blood sample will tell you if it's Lupus or some other disease or not. The test is called the FM/a® blood test, and when the Lab calls you, you can ask them if they do. The testing Lab is called
Epic-Genetics, Inc. It's in Los Angeles, CA. If there is a Quest Diagnostics Laboratory near you, you can go there to have the blood draw. Epic-Genetics will pay Quest Diagnostics to draw your blood sample.
The FM/a® test is covered by Medicare Part B, and most Private Commercial Health Insurance Companies. Epic-Genetics will check your insurance coverage for you. For more information on the test, and apply, go to:
www.fmtest.com
Applying for the test/filling out the online form is not legally binding. If you have test, and it's positive, you will be eligible to volunteer for a FDA Approved tests Epic-Genetics believes might reverse the effects (pain, sleep disirder, etc) of FM. They started the FDA approved treatment trials shortly before the Pandemic hit the USA, and when Covid19 started getting out of control, Epic-Genetics stopped the trials, because treating the volunteers and making them well, would increase the volunteers chances of catching Covid19.
Good Luck, and Good Health to You. Be well and Be Happy.
Take Rhodiola.
After a fibromyalgia diagnosis from a doctor, I went to a N.A.E.T Practitioner… 3 months later (after 3 debilitating years of suffering) turns out it WAS LAYERED FOOD ALLERGIES. Pains were all gone, and I began living my 60 yr old life like I was 20 yrs again.🥰 crazy…!!
@@Intoxicanna What were your food allergies?
I’ve been suffering horribly for 4 years and i had to bring up Fibromyalgia. Doctors don’t even want to say that word. I felt like i was laying on glass any time my body made contact with even the slightest thing, opioids making it a living hell. They gave me drug after drug and used depression and anxiety as a way to medically gaslight me.
How do I find someone who knows how to treat fibromyalgia in my city?
I've shared with you about what the scientists have found and on our website there is a massive amount of info about treating trigger points. You'll find a lot of help there.
Carnivore diet cured my 15 year struggle with fibromyalgia within one month. If I eat too many carbs, pain comes back. Lower carbs down under 20, better under 10, no pain at all! Try it, what can you lose!
Fibromyalgia is unexplained pain. The American diet is synthetic and toxic. We have chronic illnesses from this. I suffered with fibromyalgia for 11 years begging doctors for the cause. Was told “we don’t know , here take this drug “. And “ diet has nothing to do with it “
Our medical profession sucks.
Dr Anthony Chaffee on UA-cam. Please find what he says about chronic illness.
I’ve been on the carnivore diet for 5 years and pain free since. Please look into this. We are being fooled. Nobody is trying to cure anything. Just pushing a new synthetic high priced poison to add to our poison diet. No wonder we are all aggravated and depressed. Our brains are starving so we can’t even think
Omg. I cant believe they gave you opioids.. I take Lyrica, smoke CBD and MMJ, fish oil and TURMERIC !!
There is one school of thought that says the deposits of lactic acids in the muscles are what cause it. A chiropractor told me this, and that apple juice in large quantities would dissolve the lactic acid. But I said, "So the lactic acid is coming from dairy products?" He said it was. So I said, "So why don't we just stop eating dairy products?" He said, "Yes, you could do that." Since I am a sufferer of all over body pain, and an eater/drinker of milk products, I tried it out. I stayed away from dairy for a week. The pain went away. Unfortunately, like many milk/cheese addicts, I fell off the wagon. But I want to get back to eliminating it from my diet. That includes the ghee I use, which is just clarified butter. Finding quality and tasty alternatives to dairy can be a challenge.
You need to stop listening to that sort of stuff. Lactic acid is formed after exercise then dissipates. If there were deposits they would be easily detected. If a professional is telling you this that would not exactly inspire confidence.
Milk is an opioid
The doctor was probably quoting a single study where fibromyalgia patients were given sodium dichloroacetate DCA to relieve this presumed lactic acid buildup, some patients claiming some relief. The toxicity of the DCA became a problem and there were no followup studies. I tried it. Experienced no relief. Then started to get sick from the toxicity.
The trigger point remedy I believe has validity. That's probably why my insurance doesn't cover it. But then pays every dollar for my pain doctor and meds.
Often doctors quote things they've read, with which they've had no direct experience with, just to seem knowledgeable.
Good luck.
I’ve been in pain for decades. Three rheumatologist told me I have fibromyalgia. I will not take drugs. I walk a lot and try to keep on the go. At 62, I’m still dealing with the pain. Some days are better than others and Winter it seems worse. Hope everyone can find some relief. Thank you for this info Doc! 😊
Me too won't take their drugs anti inflammatory diet helps . And natural products
I came down with FM after being married to a severe narrist, When I left him, I became at peace, as soon as I was at peace, the pain came on, I lived many years tensed up, walking on egg shells, never knowing when he would strick. My body didnt know how to handle the peace and tranquility I was now living, my central nervious system was shot. Its taken me 10 years to start healing, and think my nervioys system is finally realizing that all that trauma is gone, and adjusting its self.
Yes sensitisation can be caused by many things. The same principle applies as to the trigger points, ie. remove whatever is causing the sensitisation and the nervous system will recover. As the following video discusses once you have fibromyalgia it creates its own stress that help it self-perpetuate. You have unexplained pain, dealing with medics, and not knowing if you will ever get better. Understanding what's really going on will be a big help. Wishing you the best in getting better. ua-cam.com/video/pSmMoKX7Bmw/v-deo.html
I've had this girl over 20 years. I've had constant stress since I was little. I got worse when I got married and worse with children. All kinds of abuse from parents and then my now x husband. Everyone says relax .. destress. We ell I became a single mom that had to work and handle court and all kinds of stuff. It was horrible and sooo to tired. Kids are grown and gone and still stressed trying to pay the bills. Destressing takes way longer than it does to get stressed. Thanks for this video!
See this video for a better explanation ua-cam.com/video/EOtdipKZn6s/v-deo.html
You ever tried lysine?
So sorry, please be kind to yourself and love the child within you ❤️ love from Kent in uk 🇬🇧
I couldn't have said it better you sumed up my life.
Try carnivor diet. Search it and give it a try. Made my wife heal within weeks. After three weeks drug dosage was cut to half. We are excited how much more she will heal.
Check Dr Shawn Baker or Ken Berry!
I have been a massage therapist for almost 30 years. I also do Cranial Sacral Therapy. My clients who recieve both massage and cranial sacral have the best results. It was great to see such a great video posted on this subject. True about trigger points. Find a good massage therapist and commit to regular sessions in order to heal your body. You cannot heal instantly from stress and pain that has built up over many years. Cranial Sacral Therapy is very helpful for fibromyalgia, as this technique works specifically with the nervous system.
Thanks Kimberly. Have try tried a vibration massager (not a massage gun) www.drgraeme.com/articles/2021/07/should-i-get-a-massage-gun
raniosacral therapy (CST) is a form of alternative therapy that uses gentle touch to palpate the synarthrodial joints of the cranium. CST is a pseudoscience, and its practice has been characterized as quackery.
As a massage therapist I've found several things that help fibrmialgia. 1 is diet, removing all inflammatory foods and high oxalate foods. Second massage therapy. Start with Manual Lymphatic Drainage, myofascial release, then as the client tolerates it deeper massage techniques like myotherapy and deep tissue. Regular sessions are needed.
You can do better
Rubbish
I've already figured out what caused mine, childhood narcissistic abuse. The mental and emotional abuse triggers the brain into thinking you're in physical pain, but since there's no actual physical input, the brain turns the pain receptors up because it thinks there's something wrong with them smh
The science is not correct, but the idea is OK. Check out ua-cam.com/video/EOtdipKZn6s/v-deo.html
Makes sense to me
Read the book the body keeps the score. It really goes into details on how diseases and mental health issues manifest due to trauma. The audio book is available for free on UA-cam.
There's physical damage.
Thank you for this video, a good reason to hope for a solution to such debilitating pain for me and my fellow sufferers of this disease.
My pleasure
I’ve had this condition for years and the only thing that has helped me long term is acupuncture. Acupuncture releases the pain and there’s a correlated improvement in the overall nervous system at the sand time, in my experience. Also note that many needle points are at commonly known trigger points, except they are not called ‘trigger points’ in Chinese medicine. Their names for the various points are MUCH more specific. For me, I had a lot of points on liver and gallbladder meridians. This does NOT mean there’s a problem with the organ itself, it’s the meridians (points) that are treated.
What helps me short term is using a high quality Magnesium Oil on the skin (transdermal) lathering it on my larger muscle groups like gluts, quads and across the sacrum. Or across the trapezius and shoulder joint muscles. It does something to I’ve also experienced shorty term relief through cranial osteopathy, along with a good old fashioned chiropractic adjustment. I’ve had trigger point therapy hundreds of times across 20 years. It certainly helps, but for me was just a short term alleviation,
Hi Bee Bee. Thank you for your comments. You raise a couple of worthwhile points. The first is that yes acupuncture points and trigger points are often the same. However, rather than being "much more specific" acupuncture points were discovered long before scientist science as we know it existed so so the ancient cultures made up stories about them. Your acupuncture charts might give you specific points with fancy names but to my knowledge you can't even tell if they are really involved. Do you have a life force meter you can stick on the meridian and see if it is blocked, or whether your acupuncture unblocked it? Trigger points are much more specific because scientists have actually found something they can check and test. For more info please see www.drgraeme.com/articles/2022/04/what-is-the-difference-between-trigger-points-acupressure-points-and-other-pressure-points
The second issue is that you have had trigger point therapy hundreds of times over 20 years but only had short-term relief. That is something I discuss regularly as a very bad and deceptive thing with trigger point therapies. Their goal is usually only to just deactivate trigger points, which means temporarily stop them from shooting pain. Of course they are still there though so next time you aggravate them the pain starts again. For more info (and the solution) please see www.drgraeme.com/articles/2020/08/why-do-trigger-points-keep-coming-back
Carnivore diet cured my 15 year struggle with fibromyalgia within one month. If I eat too many carbs, pain comes back. Lower carbs down under 20, better under 10, no pain at all! Try it, what can you lose!
Thank you. I have magnesium oil and going to start ASAP. I was diagnosed in 2017 after the most painful Dr session ever. I cannot tolerate the lack of energy
I can't take acupuncture, but acupressure really helped me. I wish I could find an acupressure in this area most only do acupuncture
Everything is temporary 😭
Very honest and sincere explanation of fibromyalgia and enlightening and educating the fibromyalgia sufferers.
Thanks,, I try 🙂
Interesting. I am a fibro patient in the US. I still take my meds since my fibro feeds migraines. However, I have been working on a holistic approach as well - increase in magnesium intake, seeing a chiropractor, and will soon start dry-needling. Dry-needling releases trigger points. I’ve done it before - years ago. It is said that the procedure can extreme emotional responses. I can attest that to be true since I sobbed gut-wrenching sobs. By that point, I was 41 and had been narcissistically abused since birth. It only got worse with time. So, yes, I cried, it will be interesting to see what happens this time around since 8 years has passed since then. Thanks for the info!
Lisa, I will give it to you straight. You will not win with the dry needling. You will have all the issues associated with needles. It will cost you an arm and a leg, and all you are likely to achieve is a temporary moderate improvement. Why don't you check out the video on self massage for fibromyalgia that is linked at the end of this one?
Coq10 controls migraine in fibromyalgia
My mom was diagnosed with fibromyalgia. Then my sister. Nothing helped. I didn’t bother going to the doctor with my pain, but I did seek answers when my daughter began experiencing pain in her teens. Turns out hypermobile Ehlers Danlos Syndrome runs in the family. The men inherit the gene, but are less bothered by it.
Any source of chronic (long term) pain can do it.
I am hypermobile as is my daughter and my grandkids (all girls). My daughter is suffering pain (and has done for years as have I. 😕
@@anothercampervanchannel My daughter has been helped by physical therapy to some degree. What has helped me is learning to try to stay active, but also very intentional about not doing much of any one type of motion. I hope your family (and mine) eventually find treatments that help.
@@lukethecat6341 Thank you 😊
I'm a person diagnosed with this and I'm hypermobile
Wow! This is a revelation.. How come they don't offer trigger points right away? I've been getting regular massages focused on my shoulders and upper back, every 2 weeks or so and it has helped me get my life to nearly normal. I read an article from a physician who treats Joint Hypermobility which is my underlying cause and I've been receiving beta blocker and tizanidine low doses for before bed. This has allowed me to sleep and has kept me from having too severe of fatigue. Now I still have pain and fatigue, but it's manageable and not disabling. I hope this helps. I've gotten so much better that I recently did a 5K run with 20 obstacles, which is a huge deal considering the fibromyalgia.
Hi Suzan. I'm really happy that you are getting such good results. They usually don't mention trigger points at all, as this would be detrimental to drug sales. I don't want to cut in on your massage person who is obviously doing a great job and helping people, but if you can do extra therapy yourself you can get effective therapy several times a week rather than every two weeks or so, and that makes a huge difference. Please see our article on self massage techniques: www.drgraeme.com/articles/2021/09/trigger-point-therapy-for-fibromyalgia
Which bera blocker helps you?
Thank you so much Doctor. My sister has been suffering for almost 20 years now has become almost totally disabled and has Dr's appointments sometimes 4 or 5 times a week. She even spent several years in long term care in her 40's. The doctors just keep sending her to more doctors and now she is on 32 medications including high doses of dilaudid and also I can't tell you how many anti inflammatory drugs,psychiatric meds, 3600 mgs of gabapentine just for another doctor to ONCE AGAIN tell her that there's nothing wrong with her. This may be life saving to her as she has all but given up and I worry that if all the meds don't kill her she may harm herself. THANK YOU SO VERY MUCH. This sounds exactly like what is going on with her!!!!!
My pleasure. That's a pretty disgraceful situation.
My goodness! Our little hospital doesn't even have dilaudid
I had to retire at 40 too. I have so many conditions, I am on 32 medications a day. I was finally diagnosed with non-classical Ehlers Danlos Syndrome. It's a connective tissue disorder.
If theres nothing wrong with her qhy are they givi g her 30 odd drugs. Thats incompetence or corruption for big pharma if they are medicati g her for nothi g
Try DMSO or Tumeric with nlack papper and olive oil.
Huh. My improvements have been from self-massage of trigger points. A theracane and hard balls against the wall I'm leaning towards, applied for several years, because of the immediate relief it offered. Now, my only remaining "fibromyalgia' is in my arms and hands. Your message has given me hope that those pains, too, I can overcome. Thank you!
There is a much better way than using balls ad a threacane,, check out the video linked at the fininsh
This helps me as well.
Try carnivore diet. Relieved my wife of 80% of pain in just 3 weeks. Outlook is very promising. Check Dr Shawn Baker and Ken Berry for reference.
Thank you for confirming what I have been thinking for years!
I refused all drugs the doctors wanted me to take and I will continue to fight for my right to refuse them.
I have witnessed many people taking drugs to try to make their lives with fibromyalgia better and none of them feel better than I do. In fact, many of them suffer difficult side effects. A few years ago I started to work on my trigger points myself and yes, it did help! Thank you for bringing that to my attention today!
I’m about to “refresh” my own anti-fibromyalgia routine plan, and trigger points will be part of it.
Thank you very much. It is nice to have someone who wants to do something positive. Each day I have to delete comments from people who just want a forum to tell people about how hard done by they are.
@@drgraeme It's difficult enough as it is. I never felt any comfort, support or positive feeling on any groups where people complained a lot about fibromyalgia but wouldn't try anything else than drugs. Don't get me wrong...I do complain! lol But I also try to find things that will help me in natural ways. Sometimes I succeed, sometimes I don't. The past 2 years, some life difficulties have made me neglect many of the things that used to help me and now it's time for me to reintroduce those healthy habits into my daily routines.
Finding your video and infomrations couldn't have come at a better time! Thanks again.
Thank you so much for sharing that information. It's the first time in 20 years that I have heard this 🙏 listening from Ireland 🇮🇪 ❤ ☘
Thanks Jill, hopefully you make good use of it :-)
I certainly will 🙏 Thank you again 😊
Carnivore diet cured my 15 year struggle with fibromyalgia within one month. If I eat too many carbs, pain comes back. Lower carbs down under 20, better under 10, no pain at all! Try it, what can you lose!
So glad I came across this. Some time ago, I was in physical therapy. This particular therapist worked on trigger points and boy, was it painful. However, I did feel better after each session. Unfortunately, insurance only helps with only so many visits. I does make sense to me that "knots" in the muscles could be a sort of quiet pain until your body couldn't stand it any longer. That pain overloading nerve endings and creating that very low pain thresh hold. Knowing a good massage therapist is essential for my FM, I am going to look for one that might specialize in trigger points. Thank you.
Please check out this video for fibromyalgia trigger point options that you can do yourself and aren't as painful. ua-cam.com/video/EtLyL9zuAw0/v-deo.html
Insurance won't pay for cures! Medicare has a statement that states that
Carnivore diet cured my 15 year struggle with fibromyalgia within one month. If I eat too many carbs, pain comes back. Lower carbs down under 20, better under 10, no pain at all! Try it, what can you lose!
Same experience with knots in my muscles.
If you have to keep handing over money to have somebody dig their fingers into you, you haven't found a cure, you've found a form of pain relief. Massage is a temporary distraction from the pain.
I have been diagnosed with both fibromyalgia and chronic complex pain disorder, very similar to each other
In reality they are both the same thing. They are a sensitisation of the nervous system resulting from prolonged or excessive stimuli such as pain or emotional stress. The only difference is that if the medics can identify the cause they call it chronic complex pain disorder, and if they cannot they call it fibromyalgia. I really hate it when medics mislead patients to make themselves appear less ignorant.
How do you explain Brian fog and even unbelievable fatigue? Trigger points very unlikely cause
It is the resultant sensitisation of the nervous system. Smally, it's OK to ask for clarification, but not to make completely ignorant statements.
Malabsorbtion
Thanks for the video. Now I finally know the reason why I have had sever fatigue and why my body has been aching for a very long time. And going to see a regular doctor would have been a waste of time because all they seem to do nowadays is write more and more prescriptions.
Happy to help!
Hello Dr Graeme. You might lack grace, but I appreciate you forthrightness and clear intent. Thank you.
We're dealing with real scumbags who put selling drugs ahead of humanity. I thought I was fairly subdued.
Having had fibromyalgia in 1987 after the sudden death of my husband, unable to get a diagnosis for several years until I got a rheumatologist who knew how to treat it, I know how horrible it is. Narcotics and other drugs don’t help. Acupuncture and trigger points treatments restored my life. It’s never come back. I’m pain free. Retired a few months ago! Thank you for this!
@@drgraeme You are brilliant, describing in e very day language. Thank you.
I've had fibromyalgia for years now and we have found that I have Ehlers Danlos syndrome a connective tissue disease and it has a connection to my fibromyalgia condition. It's a rare Germanic tribe genetic condition passed on by family members. My pain is not in my bones other than my arthritis but in my muscles all over my body. There is no cure for Ehlers Danlos syndrome (EDS) currently.
Hot tub therapy is what I found to help me greatly . Only you aren't supposed to stay in a hot tub more than 20+/- min.
Celiac disease or type 2 diabetes or pre diabetes along with many other inflammatory diseases can cause peripheral neuropathy. Cut gluten and sugar and look for other possible triggers for inflammation. Begin self message. Get a vibrator. Streatch, walk, and prioritize your health. I find icepacks on my trigger points very very helpful. I have celiac disease and it kicked my ass as I was diagnosed late in life. Love yourself and cut yourself some slack. Doing a whole 30 elimination diet or a gaps diet could help identify food triggers. This Doc is right. Healing can take time. Love to all. Dont give up.
I checked out the doc's website. It is a treasure. Thank you!!
My pleasure
I believe your correct Stress! I have been diagnosed with major recurrent depressive disorder with psychotic features and depression and I was a single parent with four daughters life was hard in 2009 I had a mental breakdown and I was hospitalized I ended up with alopecia areata which sent me into a further depression at the same time I had my first phase of fibromyalgia I physically wasn't able to eat sleep I was in pain constantly and ultimately I shocked my nervous system and the trauma that it caused left me with nerve damage especially throughout my hands and arms so because all these things are happening to me at once I ended up not being able to control my stress levels. I got out of the mental hospital and I stopped using pills pills for my pain pills to self-medicate. And what I'm left with now is the fibromyalgia a severe state of fibromyalgia nerve damage throughout my whole nervous system and because I don't take any pills anymore I have pain all the time it took a lot out of me and it still does everyday I would love to say that it's gotten better but it hasn't sometimes you just got to deal. So yes I believe you're correct I believe that your nervous system is is the culprit to this chronic pain disorder. So if you can learn to control ur stress levels
Check out this video ua-cam.com/video/NBqeMg8rczY/v-deo.html
@@jennifergalberth1240 I have just reported this person (Jennifergal) to YouYube for commercial spam.
I worked at the court in San Diego which many people have been leaving in recent years, and I had a horrible supervisor and manager that triggered my fibromyalgia. It felt like I was being electrocuted, was the worst symptom, about every 30 minutes. The whole place is getting worse unfortunately. They’ve been sued through arbitration multiple times and have lost. I should have sued them too. My doctor confirmed and supported me looking at my history and what I had told him over time and he suggested I leave the place if possible.
Hopefully you have left and all is good now. I've done an updated video that includes how psychological stress can be an issue as well. ua-cam.com/video/NBqeMg8rczY/v-deo.html
Seriously as a social worker I have seen some people crippled after a traumatic experience, some
From work related matters. Please just leave, Love yourself to move to a new environment, I had to do the same. Thank God for giving me another option. I pray the same for you!
There are a lot of people or doctors that just treat symptoms and don’t look for the root cause. there’s no money in the cure. Thanks for sharing. Blessings.
Well put,, you have worked them out :-)
My doctors wouldn't even spend a penny on the symptoms. I'd have been very happy to have had drugs to treat the symptoms instead of nothing at all.
@@kubhlaikhan2015 Doctors don't spend a penny,, you do. The video is about a treatable cause. Why are you posting this irrelevance???
I was injured a few times while on Active Duty, yet they kept saying I had Fibromyalgia. My general response for nearly 20 years was, "so, multiple head injuries, multiple hyper extentions and compressions of my spine, a chemical burn to my eye, metal in my eye, a spud bar across the clavicle... that has nothing to do with it? it's just an unexplained mystery?"
I'm sure trying to dodge responsibility has a bit to do with this.
I was diagnosed in 2005 and have been seen by two different Drs. The first one is the one that diagnosed me, but she left her practice to teach. The second one didn't believe in fibromyalgia. So I have been trying to find another one in my city,but the closest one is 40 miles away. I have been in pain for many years. I would try anything to rid my symptoms.
Did you get that the first doctor who has gone off to teach gave you a diagnosis that mislead you that she knew what was going on? Why are you after another and not a professional who understands trigger points?
ozone therapy is the best to cure disease
As a retired massage therapist i can attest to the fact that trigger point pain can cause wide spread , persistent and referred pain but with trigger point therapy work they do go away - melt away like boom ! Its amazing and very rewarding work 🙌
Thank you,, most people do not get these treated properly. First doctors do not recognise the cause, then eventually your nervous system becomes sensitised.
I was diagnosed with Fibromyalgia years and years ago…but, I have NEVER had the trigger point pain that they say diagnoses it! However, I have severe Deg.Disc Disease, and spinal stenosis and have had two major spine surgeries. My muscle knots have returned along with the loss of improvements from surgeries. I also have other diseases now, but firmly believe had I received proper treatment, I would still be mobile today, without all these knots all over my body, and the pain that goes with it. My knots are in my abdomen , ribs, neck, spine, arms legs….everywhere! better research and treatment would have made a difference for Thousands of people who are suffering today!
I normally just delete comments that blatantly incorrect and misleading, but decided to leave this one as an illustration of the stupidity that exists. Fibromyalgia is supposed to be diagnosed when the medics cannot find a cause of pain. yet Gizmo has has severe disc generation, stenosis and two major spinal surgeries. Gizmo says that he never had trigger point pain, but later says their where "knots" all over his/her body. "Knots" are a non technical term that describes trigger points. Lastly Gizmo says that better research and treatment would make a huge different. There is no argument about the need for better treatment, but the research has already been done. As stated in the video though that research is swept under the carpet so drug companies can sell more drugs.
Trigger points are responsible for much of what causes us problems as modern humans. Great video, thank you.
Thank you
Fibromyalgia, a wastebasket term that has only brought doubt and judgement into my already stressed life. Wish I'd never heard of it. I have been dealing with this on my own since 1997. I don't go to the doctor unless I absolutley have to, and I don't take anything. I use massage, osteopathy and accupunture to help me through. I also eat well, take certain supplements to various degrees of success, and listen to my body when it says to slow down. My version of fibro effects all my systems. I have just plowed through life with this disorder. I have been at the same job for 23 years, and only this past year, have told my boss that I deal with this as it seems worse as I get older and I need some compassion and accomodation. They have been giving me both, and I am grateful.
You are on the right track. Check out the video linked at the end for a much more efficient way
The pain gate🤔 I wish I could find a doctor like you. Thank you so much.
Any time 🙂
I have adhd and ocd. After my twins I developed lupus. I have a few other lesser issues but was told I also have fibro. I rarely tell it because lupus is enough. But my doc knows. I think my whole system is overloaded.
General principle: look at everything that is potentially overloading your nervous system. They add up.
Thank you....I will take your path. I have been dealing with it but it is awful.
Good luck with it Kelly 🙂
This is interesting and I will investigate further. My doctor never prescribed any pain relief or other medication. He did refer me to a support group.
Yes, do check it out further. Even though a lot of info is withheld from doctors many are aware of the push to sell drugs and look for other solutions.
I had a diagnosis of Fibro for around seven years. However when I got together with other Fibro patients I really did not have the same symptoms, mine were all right sided and I was getting slower year by year. Also none of the standard meds worked in fact one completely floored me. Eventually I asked to be re-referred and it was obvious my symptoms were neurological. After going through some substantial testing and observational sessions in spite of not exactly fitting the new diagnosis exactly I was diagnosed with atypical Parkinson’s. I was 52 then and widely regarded as being too young. Since then many young onset patients have emerged many far younger than I was on first symptoms. That was twenty years ago today. I am very slow and shuffled but do not have tremor. I am also as sharp as a tack at the moment! The Parkinson’s standard medication worked for me right from the off and my doctors and I between us kept them to the lowest dose possible so I do not have many of the medication side effects earlier patients often got. Fibro for me was the dustbin diagnosis I got chucked into. I was lucky to have a specialist who was very experienced and understood that not all Parkinson’s looked the same. And it really doesn’t as anyone who has been to a major Parkinson’s conference knows. A LOT of people did start off with very similar initial symptoms though…. Medicine needs to stop creating these silos of people when they do not have answers, it is dishonest and does not help patients. Moreover when the dx becomes discredited then the patient is left feeling disbelieved. No one goes to the doctors when nothing is wrong, if they are describing physical symptoms that are limiting their lives they deserve not to be the victims of medicines fragility. They really deserve a lot better than that. An acknowledgement that they are definitely unwell for instance. Unwell and untreatable because their condition is as yet not known. If those patients get sent to rheumatology rather than neurology or endocrinology for instance the chances are they will never get close to the treatment they need.
That is the big problem having a "diagnosis" for something you don't know about and make because you cannot find anything else. There's always a reason.
@@drgraeme I would amend that, there is always a root cause. There should be no shame for medicine to admit they do not always know or understand what those are. I always think that some deep listening to the patient holds so much information too. A doctor is observing a short period in time, but the patient is living with it on a daily basis.
@@lindyashford7744 They are well-meaning thoughts, but it doesn't matter how deeply a doctor listens to a patient if they have no scientific understanding or rationale.
@@drgraeme I was diagnosed with Fibro in the mid 1990’s, we knew about myofacial pain disorders then as well as trigger points, and how to work with them, even about guiafenesin etc. It was through this awareness that I became doubtful that I actually had the condition and in fact when I described my symptoms well that was the first time someone suggested Parkinson’s as she had looked after a family member with it. I was doubtful because of my age and it took years for anyone medical to suspect it. However I did learn a lot about Fibro, and also about amytriptiline etc. they were definitely not a fit for me, for a start I was not tired, I was the other way! I am really surprised things have not moved on a lot further, that was nearly 30 years ago. In my country there are still a lot of people in denial of conditions like Fibro, ME/CFS, and even encephalitis. Also I now find post sepsis syndrome and long Covid. There are commonalities with these conditions and their causes. I once met a woman who had CFS for many years, and underwent a lot of testing with cultures etc done because she was unmistakeably very ill, eventually they isolated typhus from biopsies from her deep muscles. She had in fact been in a city that had an epidemic at the same time she was there, she had fallen I’ll but in her home country they never saw such illnesses, and so had no history of treating it in modern times. Certainly the vast majority of clinicians had never seen a live case. If you scratch hard enough you will find causes for most illnesses, there are just a lot of them and not enough experienced doctors to go round.
Uhhhh.... and what causes the "trigger points" ? I agree with you on the big pharma point... great explanation there... but my trigger points are caused by Stress... Trauma (emotional)... and living in a society that suppresses Human Life well being.
For more info on trigger points please see this video ua-cam.com/video/LoTgmFd4e74/v-deo.html
Dr. Graeme: Perhaps you could Offer a video about triggerpoints themselves, what sets them up, and how they are eventually eliminated?
What a great idea,, how about you check out the video linked at the finish or the heap of others about trigger point on the channel.
I never had health issues or diagnosed with fibromyalgia until after having autoimmune reaction to the JJ cov vaccine. It started day after with a lot of pain, electric shocks and progressed to entire body nerve pain. 2.5 yrs later and now diagnosed with osteoarthritis, tinnitus, snow vision and tendon ligament issues.
This is an example of the stupidity related to diagnosing "fibromyalgia". By the medical definition, it is having the symptoms but not being able to find a cause, yet you have had a vaccine reaction, osteoarthritis and "tendon ligament issues" whatever the hell they mean by that.
Check out Dr Bryan Arias, not on UA-cam bcz he will get censored. From medical doctors on the cutting edge if I remember correctly, that all long covid peeps in their studies show micro blood clots. They diminish the normal amount of oxygen to reach everything in your body... organs, lungs etc. I kept telling my doctors that something seemed like it wasn’t connecting. This makes sense to me. I watch cutting edge docs at the front line that are researching long covid. And doctors that analyze studies. It’s like putting the pieces of the puzzle together.
Ditto
I believe it’s all molecular mimicry. Rheumatologist listed autoimmune phenomenon caused by JJ vaccine.
You and me both. But good news is today is another day and those people are out of my life. Hope you are doing well. It is so sad when parents and siblings abuse their kids. Hang in there.
This is amazing information. Thank you so much!
Glad it was helpful!
Thank you Dr Graeme a really informative video and one i personally am in agreement with 💛🙏
Thanks Dianne,, most appreciated 🙂
Why do they bring up depression anxiety I don’t have that. I’ve been prescribed anti depressions to help with pain and of course pan killers I did try them in the earlier days I was still in dreadful pain so I stopped them as I was still in pain what will help the central nervous system Their just has to be a solution …
in the mean time my quality of life is not what I would expect due to CHRONIC PAIN 😩😭
Which answer do you want: that they are really just the sales arm of the drug companies so it's their job to hook you on stuff like that, or that with all your pain and frustrations you are bound to be depressed. Now rather than giving us a sob story how about you take the info in the video and do something about it.
Same
Thank you so much! Ive been told to take drugs for the rest of my life ..i decided against it !! Very informative content ..will check more vidéos now on trigger points
Thanks Rita. We've got videos on trigger points, and there is a lot of info on our website www.drgraeme.com
I was on tramodal for 30 years & still had pain. I was sick of the fight to get it so I weened myself off of it. So glad I did that, I still get spells where it feels like every nerve in my body is in pain. I don't know if what I stumbled upon will work for you but I take one regular aspirin & two Tylenol with caffeine & it will make the pain subside for 6 hours. I also see a Chiropractor who is amazing. He does trigger point therapy & has helped me tremendously.
@@animallover4ever229 That's great. Please check out our article on trigger point therapy for fibromyalgia, and if you are not already doing so you might be able to discuss with your Chiropractor doing some extra therapy at home. The article: www.drgraeme.com/articles/2021/09/trigger-point-therapy-for-fibromyalgia
Carnivore diet cured my 15 year struggle with fibromyalgia within one month. If I eat too many carbs, pain comes back. Lower carbs down under 20, better under 10, no pain at all! Try it, what can you lose!
I discovered this more than 2 decades ago. No help from medical but I self treat with Clare Davies "Trigger Point Therapy Workbook" and a Theracane. I figured it out myself. Was DX with Fibro and CFS in 1996. It really has been a battle. Massage is the best TX but doesn't last long enough. I'm really worn out now in my 70's - it's getting harder
and a recent visit to a Rheumatologist showed me that they still know nothing. So very discouraging. I'm going to your website to see if I can find anything new. Thanks for the research.
My pleasure. On our website you'll find much better ways to deal with the trigger than using a theracane :-)
@@drgraeme Thank you SO much for your super fast reply.
I put you on my FAVS and will definitely be on your site as soon as I can. I live in a rural area and
have not found a trigger-point specialist. Found a couple that claimed to be but weren't. :^) I had
a neighbor once that was not a massage therapist but she was gifted. She was an optician but wanted to be a MT. She had her own table. Had never had a lesson and gave the best massages I'd
ever had. She had magic fingers that just went right to those knots. I'd even say a gift of healing. She moved. :^( Anyway, this sure has made life difficult. I've not even been using my
faithful old Theracane lately. I'm just too tired. Lately I've just been hobbling along and staying home and off my feet. (sigh) Anyway, when I can pull myself out of this funk, I'll check out your site. :^)
@@BlessedpbMy pleasure :-)
@@drgraeme :^D THAT is SO right! That sweet girl was SO dedicated as I suspect are you. Thank you again for that uncommonly fast reply. Why is it that
all the exceptionals are vast distances away. :^D Well, anyway, you are a great emotional boost!
Thanks so very much! p
ozone therapy is the best to cure disease
Why is the nervous system initially inflamed. What's the root cause? Perhaps early stage insulin resistance?
What a stupid comment. The nervous system is sensitised, not inflamed. There is a difference. I get morons telling me about insulin resistance all the time like it's some revelation. It's probably one of the hundreds of secondary effects, and what are you supposed to do,, get a heap of insulin injections. I'm sure that if the drug companies could patent insulin and make huge profits from it the doctors would be pushing it like crazy.
Wow thank you Sir for caring about this matter enough to attempt to help others. So many have been looking for answers that don't seem to be there. Many Blessings❤️💥🙏
Any time 🙂
Trigger points = stuck fascia (from emotional and physical trauma) = major pain. Stuck fascia = little or no nutrients and blood getting through, hence the pain. I've heard that sugar can also create sticky fascia. Find a myofascial therapist for help !!!!!!!!!!!!!!! :) PS For at home treatments, I use yoga balls (tennis balls okay but not as good) especially for the occipital lobes and knots in my back) which gives me instant relief and Paida Lajin is remarkable for relieving fatigue.
Normally when people leave comments containing information that is incorrect and ill-informed I just delete it. However, I decided to leave this as an example of the stupid ideas people have about trigger points. There is no such thing as "sticky fascia", and that bit about sugar creating it leaves me a bit lost for words. Where do people get these crazy ideas??
There are a number of medications that have Fibromyalgia pain listed as a side effect - a Doctor suggested it for symptoms to me. Yes- your body feels like broken glass,it might be rheumatic too. Often follows a bad viral infection - flu,glandular. The childhood trauma theory is a wildcard. It is an autoimmune illness.
Yes anything that can sensitise the nervous system can cause fibromyalgia, including medical side effects, but the scientists found (myofascial) trigger points to be the biggest and overlooked one. You also need to consider that the effects of these things add up and that trigger points are extremely common. It might be that medication plus trigger points caused the sensitisation, and with either eliminated the nervous system would cope.
Both my sister and I have PTSD, with her case being much worse. She has fibro and I suspect I may have. Traumas impact on the cns is real, especially the vagus nerve system. It is well known that childhood abuse impairs the development of some parts of the brain sometimes even permenantly.
HPA axis dysfunction. The feedback loop is broken / desensitized.
I guess you never had childhood trauma or been in a toxic narcissistic relationship because then you wouldn't think of calling it a "wildcard".
The weather causes flair ups of fibromyalgia. I have had it for about 30 years. Nothing helps. Drs don’t want to give pain pills for the long haul. Most Drs don’t get it
Cheers for the new avenue to explore.
My pleasure
This is interesting and sort of where I have ended up. I'm interested in learning about the development of Fibromyalgia pain and a possible association with teeth clenching, jaw grinding and nail biting. Perhaps there are trigger points that line up with the Tmj area and the neck.
Trigger points certainly affect TMJ function
I have Occipital Neuralgia on top on FM and I’ve had a lot of success with having Botox injected in various places along the occipital nerve lines. It quiets them for up to six months and also help me to not feel migraines. I went ten years without a migraine until the plague hit. Would Botox be an option for these knots in the muscles? It relaxes everything on my head, so would it not do the same for FM sufferers? Because I’ve had this for 22 years and I’m officially at the end of all attempts to find a cure.
No, injecting botox into trigger points is not a solution. I've given you the proper solution so if you can break your official end go try that. As a retired chiropractor I know that medics diagnose upper cervical problems and trigger points as suboccipital neuralgia, then inappropriately treat it and it turns into disasters like yours. For background info please see www.drgraeme.com/articles/2021/11/what-is-a-subluxation
ozone therapy is the best to cure disease
I have had chronic pain down my left side since I was in a bus crash in 2009. The pain is in my neck and in my head with tingling kn my toes and fingers. Nothing at all will help me. I am on Amitryptaline at night. I was in hospital and one Dr said he thought I had Fibromyàlgia. I was also in a bus crash in 2009 and many of these symptoms started not long after that event.
This illustrates how idiotic a lot of doctors are. Their diagnosis of fibromyalgia includes not being able to find another cause of the pain, and the pain is down one side following a bus crash.
I have tried the myofascial release techniques for months, I was better for maybe 2 or 2 days, then the pain was coming back. I could try another therapist. I am 30 and I cannot work anymore due to pain. I am not taking medications - nothing works for me. I take lots of food supplements, and having mineral bath salts everyday. the pain in the morning is unbearable. I sleep very badly, I have nightmares, and restless leg syndrome. I was diagnosed with fibromyalgia bu also arthrosis , spondylosis , scoliosis, lordosis. My hips are not the same height Most recently I got Arnold chiari INdiagnosis, which made things even more confusing,. But no one knows why I have all of this, and no one was ever able to fix me! A miracle - that's what I need .
Hi Stella. Your experiences show that mypfascial trigger points are a big part of your problem. However, seeing a therapist for myofascial release is very unlikely to fix your problem long cause. It's painful, expensive, and you are unlikely to get all the care you need. For your solution please see our article where we describe a much better way. www.drgraeme.com/articles/2022/09/how-to-massage-fibromyalgia
But I don't have painful trigger points. makes me wonder if I am misdiagnosed.
I'm sure you do. Find a professional who deals with trigger points to find out
@California Karen789 Yes, the "diagnostic criteria" for fibro is that you have the symptoms but the doctors can't find anything wrong. As discussed calling it a diagnosis is really deceptive but using their criteria if there is something it's not fibro
@californiakaren789 doctor told me they stopped using trigger points as a diagnosis.
Mine came after 43 years of losing 2 sons plus stress after stress
Check out this video ua-cam.com/video/NBqeMg8rczY/v-deo.html
Mine came after my 19 1/2 y/o son passed after 6 wks on life support. I couldn't walk down the hall at work w/o the seam in my jeans causing leg pain. I do exercises that help some but don't alleviate the pain. I don't like to get cold but I also sweat profusely - I think Cymbalta causes this. I reduced myself from 60 to 30 MG and eventually will try to get off it.
Being a lmt I find it's caused by stress, trauma, burnout. You are correct that it's associated with trigger points. It's always diagnosed in women and I have yet to see it diagnosed in a man. People don't realize how much we hold on to situations emotionally. If you've been diagnosed, find a good massage therapist and use that instead of meds to keep it under control. Also find healthy ways of dealing with trauma, stress and burnout on an emotional level.
Thanks for the comment. For more info about the role of emotional stresses and so for the please see this video ua-cam.com/video/pSmMoKX7Bmw/v-deo.html
Thankyou. This makes sense. Subbed in hope I’ll find some relief and healing. 👍🏼
🙂
I had a knot in my back which I believe you would call a trigger point. The way mine was treated was very painful using freezing spray on the spot and then pressing into it to work the knot out.
In order to keep me from tensing up, I think, he didn't warn me about what was about to happen.
I can't say it helped me and it might have just been a symptom of another issue.
But I imagine this was one of the ways to help get rid of the trigger point. But this was years before the firbro treatment was found out and I wasn't diagnosed with fibro. So this treatment maybe unrelated. But it did sound alot like what was being discussed in the video.
PS. The cold spray felt cold, but didn't hurt at all. But it made the pressure pushing into that knot really hurt. Not intolerable, but not fun.
What you describe is a ridiculous therapy that was promoted by a couple of medics who we suspect were sponsored by the makers of the cold spay. Check this out for the best way to deal with your trigger points. www.drgraeme.com/articles/2022/09/how-to-massage-fibromyalgia
One can try acupressure, ie put pressure on those trigger points, in a massaging movement. Do it until you get relief.
You could, but trigger points with fibromyalgia are tough and take effective therapy over a long time so you'd probably fail with such an approach. Check out www.drgraeme.com/articles/2022/03/massage-for-fibromyalgia
Thanks again! I’m leaving this second comment to let you know that your first video link about trigger points is not working. 😉
Thanks for that. I've removed that link and put one for an excellent article on treating trigger points.
@@drgraeme :) Wonderful! Thank you, I'll take a look at it for sure.
Childhood emotional trauma is the causal factor... Electrical activity of the brain gets very high...
Thanks, please check out this video where I've expanded on the causes and what to to. ua-cam.com/video/NBqeMg8rczY/v-deo.html
Many cases after jabs...like me... Nervous system gone and pain from 23 months, after 2nd dose of pfizer my life is ruined... Was really fit and healthy...
Check out this video for more info ua-cam.com/video/EOtdipKZn6s/v-deo.html
Covid too I didn't get the jab and my daughter bad
@@almabollinger yes but you get covid. You did not sign to ruin your life when you was healthy. Only because doctors told a lot of lies. And jabs injuries are way worse than covid one...if you are injured by covid doctors listen to you. If you are injured by jabs doctors won't even try to help. Injured are the living proof of their lies. The order is "not help and admit".
Excellent information, Thankyou.
👋💚👍
Our pleasure!
Amazingly content. Thank you 😊
What is your take on RSDS?
Probably similar mechanisms, but nothing certain,
I agree with the medical industrial complex part of this video. My FM/CFS or ME/CFS is not caused by this. I was first diagnosed in 1998 and I have figured out my cause and I now am able to control it. I spent over 10 years mostly horizontal rather than vertical. Maybe the diagnosis of FM is the problem. If it can be cured by so many different ways then it must have many different causes.
Check out this video where we deal with this :-) ua-cam.com/video/NBqeMg8rczY/v-deo.html
I just watched another video about how a study was done that claimed fibromyalgia is caused by insulting resistance. Pretty interesting.
Likely a secondary effect, not a cause. There are many. In the video I discuss how medics tend to investigate and make these out to be the real issue. If they tell you that it's insulin resistance they can sell you more insulin or some drugs to make you less resistant. There's a lot more profit in that than treating the real cause.
I am a long term experiencer of fibro. Chronic back pain plus unhelpful spinal surgeries saw decades of suffering. Now in my 60s,i have turned to yoga which I try to do daily plus trigger point therapy which I do myself. No more back pain, other prob areas flare very occasionally. Skin still hurts to touch so massage is an uncomfortable process.
Check out the video linked at the end for massage options that don't hurt :-)
My fibromyalgia went from debilitating to a nuisance when my crumbling, dysplastic knee was surgically fused. When my severe knee pain, which I needed 45-60 mg of morphine to function with (but didn't help the fibro pain at all), subsided so did the fibro pain. I now take MSM which reduces the fibro pain from a 5-6 level to 0-1 most days. Before the surgery, the MSM appeared to do very little. My fibromyalgia still flares if I do too much physical activity.
Fibromyalgia is sensitisation from other pain. Often from trigger points but in this case the knee. For more info on causes ua-cam.com/video/pSmMoKX7Bmw/v-deo.html
Having some experience with 3 generations of doctors, I believe they are getting progressively more ignorant with each iteration.
Medical schools, like the military, are forced to accept less intelligent students and trainees, and the indoctrination techniques to limit the problem solving abilities has improved.
Just appreciate that superficially they are trained to help people, but covertly they are trained to be the sales force for drugs and medical technology.
Very true !!!
I've had issues since the 90's. I've said for years and years, that if insurance would cover massage...I could rid myself of most of my pain. That, and if I had someone closer than 2 hours away that does the massage necessary to actually help. I've also been told that FM never gets worse. So why is my pain getting worse? I'm just now learning I likely have hypermobility EDS. Could there be a connection to FM?
There are perfectly good self massage options (see link). What idiot told you that FM doesn't get worse, and why did you believe them??? www.drgraeme.com/articles/2022/03/massage-for-fibromyalgia
Thank you...I'll look at it...but I'm sort of losing use of my hands some. More specifically, my thumbs and index fingers. It was a friend's doc that told them FM doesn't get worse, to start with, then a few other docs say similar and some still say it isn't real...I didn't think it was true. I brought it up because there are docs telling people this crap. I had a chiropractor tell me that the "only" people that have "real" FM are the ones that have these ridges in their muscles...and no one in the US is likely to have it. That one really ticked me off...how smug he was about it all. True or not...I did then and have the whole time, had ridges in some of my muscles. That is where I have had massage work done most of the time. Anyway, I was curious about if there was a connection between FM and HEDS because I know two other gals with EDS that also have FM. I realize that is nothing by way of crazy numbers. Just something I was thinking about.
@@th49 Yep, ,,, with the amount of misinformation unfortunately you need a pretty big BS sieve
@@drgraeme could a tens unit help in place of the vibration massager?
@@th49 Hell no!!! One is mechanical vibrations, the other electicity
Do what's the answer for people who have it now? I didn't find this helpful?
I've showed the commonly overlooked problem, and pointed you in the right direction with the video on the end screen and in the description. Others have managed to follow these and get great outcomes. If you can't understand it that's not my problem.
Hello 👋 I just happened upon your video, I subscribed because I'm very interested. I was diagnosed with fibromyalgia long ago, and I now have so many muscle spasms just about everywhere in my body. It just gets worse as time goes on 😢 I'm not understanding why I keep getting new ones and so many. I've tried so many medications, injections, physical therapy, and acupuncture. I have to keep nitroglycerin with me because my esophagus goes into spasms as well.
I wish there was a dr that could/would work with patients that have fibromyalgia because most doctors don't take it seriously 😔 I'm hoping that I can find some relief and learn more here 😊
Thank you, doctor, for being one that believes and cares ❤
Hi Linda. From the doctor's point of view fibromyalgia is symptoms when they cannot find anything going on. You definitely have some musculoskeletal/neurological condition going on.
@drgraeme from my fibromyalgia right? Dr's don't know what or why, so it's fibro 🤔
@@lindaderrick9930 Yes, it is Dr speak for "I know nufin"
Lyme or covid or EBV
❤👍🏻 Great Info ,-i never heard before ! Thank you !
🙂
I was diagnosed when I was 19 yr old, I'm almost 69. Nothing the doctors have done or given to me has helped. I have other pain causing health problems also.
Do you just want sympathy, or are you going to follow the advice and try and do something about it?
This year I thought about getting on full-time disability and I’m only 42 and I have a four year old. I have had fibromyalgia with severe chronic fatigue since youth. After I got Covid this summer, I felt like I was going to die. I had a lot of childhood trauma from a borderline narcissistic mother, and I also had severe 60* scoliosis and had a full spinal fusion at age 12. I felt very suicidal over the years, due to the chronic fatigue and chronic pain and also chronic illnesses. I felt like I was always on the verge of a sore throat. I thought maybe I had lymes, or something else and I know that I’ve had Epstein-Barr on snd off. A few things that helped me over the years were taking desecrated adrenal and Thyrroid supplements. That was night and day change, but eventually didn’t work anymore. My endocrinologist said that my hormone levels were fine prior, but I still don’t have answers as to why it helped so much, for so long, but then later stopped working as well. Taking high quality zinc staved off the Epstein-Barr virus along with liquid vitamin D. I also now take a high dose of lithium orate to help with my mood and depression. DHA for peri menopause. The only thing that has ever helped my chronic fatigue is taking D-Ribose. I’m still sorting out my issues with my crazy narc mother but I have half a Klonopin on the nights that I can’t sleep and I wake up refreshed and I don’t advise this but for me and not getting into deep sleep as what drives my physical body pain. I know that the triggerpoints help because when I get a massage it just really have something in my hot body and I feel better but it’s never a long-term fixed but I’d be interested to know more.
The main issue here is that the massages that make you feel better may temporarily quieten down any trigger points, but would have negligible long term effects. You need a proper strategy to eliminate the trigger points www.drgraeme.com/articles/2021/08/does-massage-help-fibromyalgia
@@drgraeme thanks for the link. I’ll check it out.
Please read Joe Dispenza's book, Becoming Supernatural. It can help you heal.
@@Flo1918I wonder if you would say that if her mother was physically abusive? Long term emotional abuse (which is pretty much guaranteed with a Borderline narc mother) can be equally and even more damaging.
I have been in pain all my life all trigger points
Are you going to do something about it??
I have fybromyalgia since 2004 and it’s got worse
I’ve changed my diet
I take moringa and omegas all the B vitamins .
And D vitamins so good .
Intermet fasting and it’s helped a bit but know I been diagnosed with MS
O boy …..
But I’m positive even when I’m pain …
Thankyou …
I normally just delete comments like this as totally ridiculous and irrelevant, but will leave it as an example. I've clearly stated in the video that a "diagnosis" of fibromyalgia is doctors misleading you that they have found the cause when they really haven't. However, Nonna says it's helped her to know she's been diagnosed. I've given something positive she can go and investigate, but she's carrying on about vitamins and how she is positive with pain. If you want to go check out your trigger points and possibly get better that's great. If you just want someone to tell your irrelevant story to find somewhere else.
I used to be a positive person when I was really young trauma in my childhood, something in my body changed. Forced abortion when I was 13, then I started having more pain I didn't understand. Then an abusive marriage in my early twenties my pain turn to bad case of the flu that wouldn't go away. Had kids, more trauma and stress with confronting childhood abuser when I was 30. My pain got worse, now my pains are extremely hard like pains which lasts my entire life I'm 62 now and I'm nearly crippled by it but I still do normal things and walk around or I should say hobble around. I wish I could have stayed positive but I didn't I have to take medicine for depression I cry a lot this is affected my relationship with my kids. If you have pain depression comes and with depression it's hard to be positive.
I’ve had fibromyalgia since I was a kid
I can remember how I felt and hurt back in the day
It really really got bad in February 1991
I was in a car accident in November 1990 then my son passed in Feb 1991
I’ve gotten worse through the years
I’ve lived with it so long now that it’s a way of life
Tramadol at night
Ibuprofen or Tylenol during the day
I’m 64 yrs old and have learned on my own how to treat it
I sympathise with your son passing away and the car accident, but who are you trying to convince that you've learned how to treat it by doping yourself with Ibuprofen and Tylenol? I've given you a possible solution,, go explore it rather than make these pathetic comments.
Omg, What a reply to a woman who lives with a lot of pain. Telling her to stop making pathetic comments because you don’t agree with her medication… and accusing her for doping herself on ibuprofen and tylenol. Yeah, those pills are really heavy shit, not….
(Yes, I know all drugs have sideeffects)
I have been living with fibromyalgia for 20 years, and if I had a doctor with so little empathy as you, I would rather die.
Btw, take some lessons in how to become an inspirational speaker. You are so plain and boring that the topic you are trying to teach people get lost.
@@drgraeme I read that you delete comments you don’t like, so I guess my will not be here for long….
@@kristinl.b9741 A lot of people use UA-cam comments as a forum for all sorts of stuff and most of it is irrelevant. A lot of the time they are using youtube because people in real life won't put up with them listening to their whinging, opinionated comments or stupidity. My guess is that the people in your life don't want to be involved in stupid arguments.
I know so many people like me after car accidents that have fibromyalgia. Or trauma
Thank you
I have fibromyalgia, I don't take any pain meds and I'm not pushed to as I live in the UK.
Taking loads of drugs knock out the microbiome
Understood, but it's now time for you to do something positive. www.drgraeme.com/articles/2022/09/how-to-massage-fibromyalgia
Few conventional doctors are taught about muscle knots/ trigger points as a source of many pain problems including referred pain (which can cause misdiagnoses and unnecessary surgeries that don't work). The money is in toxic drugs, surgery, and assorted diagnostic tools that really don't help and can make things worse. I had a trigger point in my mid back. A chiropractor passing said something about it as he went to treat what he could treat on me. I later went to a doctor who just happened to point it out -that same trigger point- and he injected it with a lidocaine (?). It went away. Sadly, I believe he retired.
The doctor you went to was a bit more enlightened than your typical drug pusher. However, lidocaine is just the anaesthetic dentists use which as we all know just temporarily kills pain but doesn't fix anything. Instead of telling people how much you miss this doctor why don't you do something constructive like check out the video on massage for fibromyalgia linked at the end of this video and learn how to fix your problem properly.
@@drgraeme Thanks
I thought I read somewhere that Lidocaine deactivates trigger points.
@@leoandolino4668 Correct, but deactivate just means temporarily stopping them shooting pain. Of course they are still there and start shooting pain again when something stirs them up. For more info please check out www.drgraeme.com/articles/2020/08/why-do-trigger-points-keep-coming-back
I had those muscle knots
Sensitization is plain BS.
There may be a subset of FMS that have a milder form of pain that is viewed as FMS.
The reality is that no real objective diagnose exist so multiple conditions are being called FMS..
I had CFS / Fibromyalgia for well over 40 years. Research into this disease has been suppressed since the 1950s.
Around 70 percent of people who have CFS have FMS,
I view most Fibromyalgia is an infectious type of arthritis. I cured mine completely within one to two week using minocin/minocycline in 1999. Some minocycline products don't work so just research online. I currently use minocyline for osteoarthritis. I did use boron successfully for rheumatoid arthritis. Took one month to cure.
Use antibiotic with an enzyme like bromelain, nattokinase, lumbrokinase etc to prevent antibiotic resistance biofilm.
I wonder if unexplained back pain could be caused by something similar. I started with what seemed like sciatica six months ago, the pain changed from my butt, to my calf to my foot...and then it changed sides. Apparently there is NOTHING wrong with my back and I'm not making this up so I'm wondering if I should just go and get work on my trigger points. Interesting side note here, I always had such bad knots in my back from my work which was writing on a blackboard all day. When the sciatica began, my decades long pain from knots in my traps and scapula disappeared. Could never explain that but this video has got me curious!
Absolutely yes. Trigger points are a massive cause of undiagnosed back pain, and of course if the pain becomes wide spread and medics cant find the cause they diagnose "fibromyalgia".
Nice video! I've recently been told i have this fibro thing. I'm receiving fascia treatment at physio and heing pumped with magnesium and potassium. Bloods show I'm low on protein and vitamin D. My follow-up is in 2 weeks. I would like to know more about the fascia . Fascinating stuff, thank you
Hi Veronica. Fascia is not the big deal it is made out to be. Concentrate on the trigger points as per the video linked at the end.
@@drgraeme thank you. My physio is working on those, very painfully
@@veronicastewart7239 yep, for most people fascia is not a big deal so it's a lot of pain for nothing.
What if you don’t have trigger point’s just muscle pain that feels like lactic acid build up?
It likely will be trigger points. I think you need someone proper to find them rather than thinking you just have muscle pain that feels like lactic acid build up,
@@drgraeme Trust me I have. I’ve been diagnosed with fibromyalgia. My symptoms are muscles burning. It feels like I’m always lifting weights when I raise my arms or legs. I’ve seen 2 rheumatologist.
@@melevonne Did you not get that the "diagnosis" from the two Rheumatologists you have seen just means that they could not find anything wrong, and "fibromyalgia" is a name they give you to make it seem like they did? It is highly likely that no one has checked for trigger points because it is in the best interest of drug companies that doctors are not told about them.
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hi thank you for this information. I slipped a disc in my lower back and the disc wall also split leaking out the contents and while that was going on I was also diagnosed with Endometriosis. The specialist said it was the worst they had ever seen. 2ft of bowel had died and I had massive amounts of adhesions that were sticking my organs to each other. I've had around 12 surgeries and now I'm left with chronic adhesions and no surgeon that i have seen will go inside to divide them because theres too many! I ²was diagnosed with Fibromyalga around 14yrs ago. I would give anything to be pain free or at least 50% better. 😢 I get aches and pains but at least once a week I feel like I have the flu every bit of me hurts and it feels like a virus. when this happens I can't get out of bed. Do you think it's worth going back to my drs and ask them to do other testing? I've been told I have symptoms that overlap with other illnesses like CFS, M.E, rheumatoid arthritis & polymyalgia. Is there any specific testing I should be asking them to do? what type of specialist could I ask to see? Thanks in advance x
Hi Claire. Very simply fibromyalgia is s sensitisation of your nervous system usually caused by being bombarded by other pain, and where possible that source of pain needs to be dealt with. In your case you have a variety of things causing this pain so it is no surprise sensitisation has occurred. However, I have no idea how you deal with all that has happened to you.
I discovered my doctor is one of those doctors making millions off fibromyalgia patients!
no kidding
So, what causes the trigger points?
Check this out ua-cam.com/video/ml477CjMfp0/v-deo.html
I was fine until I went through so much trauma with a childhood problems that caused ptsd, a seperation that I had a nervous breakdown & bought on rheumatoid arthritis, then I had to run a business with 2 kids, sell my house, money became an issue & with the pain anxiety & stress became worse & then my rheumatologist diagnosed me with fibromyalgia. For me it was caused by anxiety & stress & when my dad was diagnosed with pancreatic cancer I’ve had a chronic relapse of fibromyalgia. I know very well what bought it on & I know very well that it’s fibromaglia. It all has to do with depression & the brain.
Check out this video ua-cam.com/video/NBqeMg8rczY/v-deo.html