This just makes me want to cry. I have so many of these symptoms and I found out about BVD through my own research after being diagnosed with inattentive type ADHD; I also have BPD (Borderline) as well as C-PTSD and OCD. And of course other symptoms attached to these disorders like social anxiety and agoraphobia. I have had SO many experiences where specialists under my insurance DO NOT listen to me, or they think I am trying to undermine their medical degree because I come in with my own research and I don't do exactly what they want me to do according to their expertise diagnosis. Not to long ago they thought I had Giant Cell Arteritis because my inflammation levels (ESR and CRP) were high and I had temporal headaches. The neurologist called another neurologist while I was in the office and told them I was 41 female with high levels of ESR and CRP levels, and he wasn't sure if he should put me on steroids. They both agreed that I should be put on it. I do not like having to make quick decisions like this, especially when I never been on steroids, and my what if anxiety just kicks into high gear. When I went to see the Rheumatologist, he as well was trying to forcefully convince me to take the steroids. When I told him I did not meet the criteria for GCA, and I went down the list, he literally gave me a stank side eye while staring at his computer. Went to another neurologist and she as well acted like me questioning her supposable diagnosis was coming against her professional degree.. So many people telling me just take the steroid and stay away from Google. Yeah, well I will stay off of Google if you let go of your medical pride and get over yourself. Pisses me off. I found out that I had complex Borderline through my own freaking research. What do I do if my ophthalmologist on the 19th dismisses me like so many others? The biggest thing that bothers me is my writing. I love to write and I have very, very nice handwriting, but I kept writing slanted and this messed with my perfectionism. I had to start getting wide ruled paper and even skipping lines. I don't have good insurance and I don't know how much these would cost out of pocket, I am only on disability. I just need to do something; is there any options I can look into?
This hits home to my heart! This is a very similar experience to what I went through myself. This is exactly why I started creating these videos! You can either come in for an in-office exam/prism fitting or schedule a Zoom consult with me through the link in my profile. If you can’t come for an in-office evaluation, I can help you find specialists in your area that can hopefully prescribe you the correct prism rx you need.
@@vividvisionsoptometryinc Thank you for your response, so glad my story hit home for you as well. I am hopefully going to be seeing a BVD specialist soon down in Garden City NY. I called one place that my ophthalmologist recommended, but being on disability there was no way I could afford an evaluation that ran between $950-$1300. And then a 3 month reevaluation costing $590, plus the glasses would run at least $300 or more. The place I found down in Garden City, their evaluation price was $570 with a $200 dollar deposit to hold the appointment. They didn't really say anything about a follow up, but they did say the price of the glasses depended on the prescription needed in the glasses and the frames. My brother is supposed to give me $300 for next month and I am going to put in the remaining $270. With the glasses I wouldn't be able to get those until the following month. It's difficult when you have an eye disorder and you're only on Disability. To say all this, I would love to have a zoom consultation with you. I really feel that my eyes are getting worse (their really bad when I am stressed) and I have been feeling so depressed, distraught, and discouraged over this; I have goals of wanting to write a book and I can't even write half the time, I get overwhelmed by each letter having shadows, being jumbled and overlapping one another, and feeling like their moving (this symptom just not too long ago started; just made me cry). There's just so much, so I am definitely going to see about how a consultation would work, I will take all the help I can get, and I would really like to talk with someone who understands. Oh, and strangely enough, found out I actually have 20/20 vision. I thought that was impossible because I have astigmatism as well.
@@vividvisionsoptometryinc I am going to book the consultation soon, I just need to wait for someone to help me. I can't really afford $99, but I will sacrifice some things, this is very important to me; I am tired of this taking over my life.
My optometrist insisted I had astigmatism twice. New glasses. Etc. I finally went back and said he needed to look further. Then he saw it. The vertical misalignment. For two years I told him I was dizzy. On this day he asked me if I had been dizzy. Wow. So I took his diagnoses and found a new optometrist which led me to a specialist. “The best of the best in Oregon” fast forward. One week into my prisms and I put a call in to the specialist office. I used to insist i didn’t have double vision during the day. Only at night. Well now I have it during the day. I’m assuming because they didn’t listen to me. The patient. My lenses need to be tweeked Smh. Two years into this and my life has been full of anxiety. Pain. Sadness. Fear. I thought I was going crazy when I couldn’t explain my vision issues. I still can’t. But at least I know I’m not alone. I’m not crazy. These symptoms are very real. I don’t want to wear glasses forever. I’d like to fix this issue. I hate wearing glasses. This to gives me anxiety. But no doctor I’ve seen is about fixing it. Just treating it. I cannot even wrap my head around this line or thinking.
Julie try wearing Bose QuietComfort 35 II noise cancelling headphones with your prism. It worked wonders for me .Dr Debbie Feinberg recommended these headphones to me
Im having trouble looking people in the eyes. Its like my eye's cant hold up straight without straining. Cant even look up at the sky even on a cloudy day because its too bright.
I’ve been having issues where I’m floating. It’s an everyday thing. If I move my head up and down or left to right, I feel sick. It’s like I’m on a roller coaster every minute of the day. I’ve been tested for PPPD, Vertigo and menieres. I’ve been on medication for the last 9 years. I really can’t drink. I can go on and on, but if you know a place in Iowa that specializes in BVD, please please let me know.
Can BVD cause minor swelling of the optic nerve by chance? This matches exactly how I have been feeling😭 im having to rule out EVERYTHING to find out what is going on and I just want to find an answer 😔
I'm having trouble having any conversation with a person. I have to speak three of four worlds and then I'll get confused then I'll go back to the speech again. It feels like I'm having a stroke. I know what I want to say but I can't speak/read normally anymore. This is ruining my.life. 😢😢
I did my own research on this then went to an optometrist in San Francisco who diagnosed me with BVD I got a pair of glasses that were made for this, I’ve been wearing them for about 6 months or so i feel good sometimes but I still have a lot of the symptoms idk if you have any other tips to relieve the symptoms.
Hi Dr I have a question. Does BVD effect speech? I really struggle everyday to speak fluently and normally, almost like your having a stroke or stuttering. I find it very difficult to talk to people at all now and cannot communicate properly no matter how hard I try. I work in a factory so I don't know if the stimuli effects my brain. But I very rarely speak at all anymore. I've had MRIs and blood tests doctors can't find anything. I have vertical hetraphoria.
I was told by an optometrist that I have convergence insufficiency. I noticed the prisms helped at first, but now I am getting some of the symptoms back. My eyes are burning a lot, i cant focus on reading becuase i have to read the same sentence 10 times to begin to understand anything and im getting dizzy spells which scare me but my doctor says my health is good. Is it possible i need stronger prisms?
I just got my prism yesterday and what a difference. I’m sure things will have to be tweaked a little maybe. Wow! Is all I can say. 2 neurologist an ENT, PT for vertigo and years of daily headaches could not fix this. It was my physical therapist that told me it was my eyes not my ears causing vertigo. She recommended the specialist that diagnosed me after several eye drs said it was cataracts or nothing is wrong with my eyes blah, blah, blah! I know now!
This just makes me want to cry. I have so many of these symptoms and I found out about BVD through my own research after being diagnosed with inattentive type ADHD; I also have BPD (Borderline) as well as C-PTSD and OCD. And of course other symptoms attached to these disorders like social anxiety and agoraphobia. I have had SO many experiences where specialists under my insurance DO NOT listen to me, or they think I am trying to undermine their medical degree because I come in with my own research and I don't do exactly what they want me to do according to their expertise diagnosis. Not to long ago they thought I had Giant Cell Arteritis because my inflammation levels (ESR and CRP) were high and I had temporal headaches.
The neurologist called another neurologist while I was in the office and told them I was 41 female with high levels of ESR and CRP levels, and he wasn't sure if he should put me on steroids. They both agreed that I should be put on it. I do not like having to make quick decisions like this, especially when I never been on steroids, and my what if anxiety just kicks into high gear. When I went to see the Rheumatologist, he as well was trying to forcefully convince me to take the steroids. When I told him I did not meet the criteria for GCA, and I went down the list, he literally gave me a stank side eye while staring at his computer. Went to another neurologist and she as well acted like me questioning her supposable diagnosis was coming against her professional degree.. So many people telling me just take the steroid and stay away from Google. Yeah, well I will stay off of Google if you let go of your medical pride and get over yourself. Pisses me off. I found out that I had complex Borderline through my own freaking research.
What do I do if my ophthalmologist on the 19th dismisses me like so many others? The biggest thing that bothers me is my writing. I love to write and I have very, very nice handwriting, but I kept writing slanted and this messed with my perfectionism. I had to start getting wide ruled paper and even skipping lines. I don't have good insurance and I don't know how much these would cost out of pocket, I am only on disability. I just need to do something; is there any options I can look into?
This hits home to my heart! This is a very similar experience to what I went through myself. This is exactly why I started creating these videos!
You can either come in for an in-office exam/prism fitting or schedule a Zoom consult with me through the link in my profile. If you can’t come for an in-office evaluation, I can help you find specialists in your area that can hopefully prescribe you the correct prism rx you need.
@@vividvisionsoptometryinc Thank you for your response, so glad my story hit home for you as well. I am hopefully going to be seeing a BVD specialist soon down in Garden City NY. I called one place that my ophthalmologist recommended, but being on disability there was no way I could afford an evaluation that ran between $950-$1300. And then a 3 month reevaluation costing $590, plus the glasses would run at least $300 or more.
The place I found down in Garden City, their evaluation price was $570 with a $200 dollar deposit to hold the appointment. They didn't really say anything about a follow up, but they did say the price of the glasses depended on the prescription needed in the glasses and the frames. My brother is supposed to give me $300 for next month and I am going to put in the remaining $270. With the glasses I wouldn't be able to get those until the following month. It's difficult when you have an eye disorder and you're only on Disability.
To say all this, I would love to have a zoom consultation with you. I really feel that my eyes are getting worse (their really bad when I am stressed) and I have been feeling so depressed, distraught, and discouraged over this; I have goals of wanting to write a book and I can't even write half the time, I get overwhelmed by each letter having shadows, being jumbled and overlapping one another, and feeling like their moving (this symptom just not too long ago started; just made me cry).
There's just so much, so I am definitely going to see about how a consultation would work, I will take all the help I can get, and I would really like to talk with someone who understands. Oh, and strangely enough, found out I actually have 20/20 vision. I thought that was impossible because I have astigmatism as well.
@@vividvisionsoptometryinc I am going to book the consultation soon, I just need to wait for someone to help me. I can't really afford $99, but I will sacrifice some things, this is very important to me; I am tired of this taking over my life.
I also have same issue. Diagnosed with OCD and anxiety. I am from India. Can you please suggest some specialist in India.
This is my whole life right now
This is why I’m spreading awareness
go see an optometrist and they can help you @@vividvisionsoptometryinc
What cusses it?
Your not alone keep the good fight up
Your video was giving me motion sickness and a migraine. I’m definitely getting checked out soon for this issue.
My optometrist insisted I had astigmatism twice. New glasses. Etc. I finally went back and said he needed to look further. Then he saw it. The vertical misalignment. For two years I told him I was dizzy. On this day he asked me if I had been dizzy. Wow. So I took his diagnoses and found a new optometrist which led me to a specialist. “The best of the best in Oregon” fast forward. One week into my prisms and I put a call in to the specialist office. I used to insist i didn’t have double vision during the day. Only at night. Well now I have it during the day. I’m assuming because they didn’t listen to me. The patient. My lenses need to be tweeked Smh. Two years into this and my life has been full of anxiety. Pain. Sadness. Fear. I thought I was going crazy when I couldn’t explain my vision issues. I still can’t. But at least I know I’m not alone. I’m not crazy. These symptoms are very real. I don’t want to wear glasses forever. I’d like to fix this issue. I hate wearing glasses. This to gives me anxiety. But no doctor I’ve seen is about fixing it. Just treating it. I cannot even wrap my head around this line or thinking.
Julie try wearing Bose QuietComfort 35 II noise cancelling headphones with your prism. It worked wonders for me .Dr Debbie Feinberg recommended these headphones to me
Im having trouble looking people in the eyes. Its like my eye's cant hold up straight without straining. Cant even look up at the sky even on a cloudy day because its too bright.
I’ve been having issues where I’m floating. It’s an everyday thing. If I move my head up and down or left to right, I feel sick. It’s like I’m on a roller coaster every minute of the day. I’ve been tested for PPPD, Vertigo and menieres. I’ve been on medication for the last 9 years. I really can’t drink. I can go on and on, but if you know a place in Iowa that specializes in BVD, please please let me know.
I have every single symptom
Look for a binocular vision specialist in your area. Call their office and ask if they prescribe prism glasses.
I get dizzy and have loss of balance and focusing problems especially when driving
Can BVD cause minor swelling of the optic nerve by chance? This matches exactly how I have been feeling😭 im having to rule out EVERYTHING to find out what is going on and I just want to find an answer 😔
I'm having trouble having any conversation with a person. I have to speak three of four worlds and then I'll get confused then I'll go back to the speech again. It feels like I'm having a stroke. I know what I want to say but I can't speak/read normally anymore. This is ruining my.life. 😢😢
Any update? That doesn’t sound like a vision problem to me… I hope all is well
@@suppaman12 no sadly not.
I did my own research on this then went to an optometrist in San Francisco who diagnosed me with BVD I got a pair of glasses that were made for this, I’ve been wearing them for about 6 months or so i feel good sometimes but I still have a lot of the symptoms idk if you have any other tips to relieve the symptoms.
Same. It's frustrating but I heard of vision therapy and different exercises you can do
Hi Dr I have a question. Does BVD effect speech? I really struggle everyday to speak fluently and normally, almost like your having a stroke or stuttering. I find it very difficult to talk to people at all now and cannot communicate properly no matter how hard I try. I work in a factory so I don't know if the stimuli effects my brain. But I very rarely speak at all anymore. I've had MRIs and blood tests doctors can't find anything. I have vertical hetraphoria.
Anxiety and PA are my results. Ugh
I was told by an optometrist that I have convergence insufficiency. I noticed the prisms helped at first, but now I am getting some of the symptoms back. My eyes are burning a lot, i cant focus on reading becuase i have to read the same sentence 10 times to begin to understand anything and im getting dizzy spells which scare me but my doctor says my health is good. Is it possible i need stronger prisms?
Ive got this im positive but sknr know what to do
very stuggle everyday i cant drive my motorcycle bcoz of this symptoms huhu
Look for a neuro-visual or behavioral optometrist in your area. Call their office and ask if they prescribe prism glasses.
thank you so much@@vividvisionsoptometryinc
I just got my prism yesterday and what a difference. I’m sure things will have to be tweaked a little maybe. Wow! Is all I can say. 2 neurologist an ENT, PT for vertigo and years of daily headaches could not fix this. It was my physical therapist that told me it was my eyes not my ears causing vertigo. She recommended the specialist that diagnosed me after several eye drs said it was cataracts or nothing is wrong with my eyes blah, blah, blah! I know now!
What a smart physical therapist! I’m very glad to hear your story! What changes have you noticed?
Im watching this video with one eye closed