The point you make about , even doctors, not knowing about SPS and worse, ignoring it is a real problem. On the other hand I have an excellent neurologist who I would describe as an intellectual giant. I have seen just about every neurologist in Sydney (live in Australia) and I have to say overall I am getting first class treatment. My allied health workers (physios , OT speechies are also very good).
Thank you for taking people through what a big part of my life looks life, raising awareness on rare diseases such as Stiff Person Syndrome is key!
I have SPS disease. I feel your pain when you get spasms and walking problems. GOD bless you 🙏
Thank you for helping me raise awareness on Stiff Person Syndrome 🙏🏻💕
The point you make about , even doctors, not knowing about SPS and worse, ignoring it is a real problem. On the other hand I have an excellent neurologist who I would describe as an intellectual giant. I have seen just about every neurologist in Sydney (live in Australia) and I have to say overall I am getting first class treatment. My allied health workers (physios , OT speechies are also very good).
Happy to hear that! It is so rare for most patients to share such positive news 😊
Lea, if you're not in the UK & Ireland group, you should be. From Liz.
I am 🥰
Is this related to the vaccines?