The comments in the forum would select for those who have done well, because those who had a poor outcome or died would not be around to comment. -Remicade/Inflectra saved my colon, and I've been on it for 1.5 yrs. I'm very grateful for this medicine. Nevertheless, I eventually want to get off of biologics because I'm concerned about the long term increased risk of cancer and liver disease. I'm going to see my gastroenterologist this week for a routine appointment. I'm going to ask him if there are any clinical trials that offer a maintenance therapy of hyperbaric oxygen and mesalamine enemas. I'm not in a rush to try something different, but I do want to eventually switch to something that is safer long term.
I am in the same boat, it's done very well for me, I only realised the other day I have already been on this med for over 2 years! (time goes by too quick these days) I would like to find an alternative too.
This was very helpful indeed! Thank you for all these great updates. Ian is on 80mg of Prednisone/day and Mesalamine they doubled his dose. His insurance is really bad/cheap from work. He is still at the high point of his initial flare that started in July (his first diagnosis) and was getting better after 40mg of Prednisone + Mesalamine. Then a member of his family upset him and the flare came on 100x worse! So stress definitely plays a part in this Ulcerative Pancolitis of his. Thank you again, Cheers. IAN and ANN from Chicago. :)
Good luck. The Christmas Holidays are around the corner, which means more social and family pressures. You must do your best to make lowering stress a priority. Mr Ian's days of pleasing other people are over until he recovers.
Solid advice, Ian should put himself first until his strength returns. Don't engage with family members that cause stress until he feels ready to face it.
No I don't but I have it lying around incase I want to. I probably would consider taking it if flare symptoms returned as a sort of backup while I figured out a different med.
The comments in the forum would select for those who have done well, because those who had a poor outcome or died would not be around to comment. -Remicade/Inflectra saved my colon, and I've been on it for 1.5 yrs. I'm very grateful for this medicine. Nevertheless, I eventually want to get off of biologics because I'm concerned about the long term increased risk of cancer and liver disease. I'm going to see my gastroenterologist this week for a routine appointment. I'm going to ask him if there are any clinical trials that offer a maintenance therapy of hyperbaric oxygen and mesalamine enemas. I'm not in a rush to try something different, but I do want to eventually switch to something that is safer long term.
I am in the same boat, it's done very well for me, I only realised the other day I have already been on this med for over 2 years! (time goes by too quick these days) I would like to find an alternative too.
@@jacobsIBD I'll post again in a week to let you know what my doctor says.
This was very helpful indeed! Thank you for all these great updates. Ian is on 80mg of Prednisone/day and Mesalamine they doubled his dose. His insurance is really bad/cheap from work. He is still at the high point of his initial flare that started in July (his first diagnosis) and was getting better after 40mg of Prednisone + Mesalamine. Then a member of his family upset him and the flare came on 100x worse! So stress definitely plays a part in this Ulcerative Pancolitis of his. Thank you again, Cheers. IAN and ANN from Chicago. :)
Good luck. The Christmas Holidays are around the corner, which means more social and family pressures. You must do your best to make lowering stress a priority. Mr Ian's days of pleasing other people are over until he recovers.
Solid advice, Ian should put himself first until his strength returns. Don't engage with family members that cause stress until he feels ready to face it.
@@markmcla Thank you. I will share your comment with him.
@@jacobsIBD Thank you, Jacob, I am sharing your comment with him.
Do you still take pentasa as well?
No I don't but I have it lying around incase I want to. I probably would consider taking it if flare symptoms returned as a sort of backup while I figured out a different med.