Shane Needs Surgery and We Are Worried / Squirmy and Grubs
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- Опубліковано 19 лют 2021
- Squirmy and Grubs receive unexpected news about Shane’s medical situation. They explain why he needs surgery to stop an infection.
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Shane Burcaw (he/him) is the author of several award-winning books about disability. He is the President of a nonprofit organization called Laughing At My Nightmare, and a renowned public speaker who has performed across the country at places such as Harvard University, The University of Florida, The University of Connecticut, Princeton University, and many more.
Hannah Burcaw (she/her) graduated from Carleton College, where she studied Sociology and Anthropology. She films and edits the “Squirmy and Grubs” vlog, which has over 800,000 subscribers on UA-cam. Hannah has spoken at prestigious universities and Fortune 500 companies alike about the realities of ableism. On her popular Instagram account, she advocates for acceptance of all people and works to improve the way society thinks about disability.
Shane and Hannah have been together for over four years. They got married in September of 2020 in the midst of a global pandemic in their backyard, with their officiant conducting the ceremony via Zoom. Their interabled relationship often confuses people, because much of society still cannot fathom people with disabilities being involved in loving, intimate relationships. Anyone who watches these episodes will quickly see their relationship is just as “normal” as any other. Sure, Hannah helps Shane use the bathroom and brush his teeth, but those activities do not detract from the emotional, intellectual, and physical connection they experience together.
As an old surgical nurse, I’d definitely have your oral surgery in a hospital setting and NOT in an oral surgeon’s office. It’s for your safety! The concern about anesthesia is most likely related to maintaining your airway and not the medications, hence being told in the past about possibly needing a trach. As a general rule, tiny mouths present issues with airways. Good luck, Shane. Keep us posted.
As another surgical Nurse, I totally agree! Its the only safe way, and most oral surgeons have privileges to hospitals and surgery centers.
As just a plain ol' woman/mom/social worker, I wholeheartedly agree that the procedure should be done in a hospital! Good luck Shane!!
As a nurse, I agree. However....IV sedation isn't like general anesthesia. With general you're totally "asleep'' and on a ventilator. With IV sedation you're still breathing on your own, they will probably give you oxygen via a nasal cannula. You won't be in as deep a "sleep" as with general.
As a young nurse..lol. Absolutely! Airway would be my immediate concern as well plus just his medical history in general I'd say everybody in the situation would rather be safe, not sorry if heaven forbid he crashes in any way! The simple things we take for granted sometimes and my worst fear is the dentist and shane has to go through hell over a cavity! You hot this shane🖤
@@angelak9456 I wonder if they want him to be in an environment where intubation or other measures are quickly available if there is any complication?
I was in dentistry, as a dental assistant, for over 14 years at a dental school....please go to a hospital dental clinic where they are very well prepared and used to cases that are more difficult for "regular dentists and oral surgeons". Wishing you the best Shane!! You will be fine!!!
That's where my mom went for her teeth cleaning and oral surgery. There was never an issue.
I’m a pediatric dentist who sees lots of patients with complex health care needs. We do see patients in their wheel chairs and we see adult patients who have special needs. In your case, I would definitely recommend your treatment in a hospital setting. With limited opening, if a tooth particle breaks off and gets into your airway it would be a big problem. You need to have as controlled an environment as possible to protect your airway.
I’m a dental assistant and my step dad is a DMD and I completely agree with you! I was about to write the same thing!
I’m a general dentist! I agree
Well Dr. Wilson how about you invite Shane to your location and do that ma'am ... We all love Shane and Hannah 💖🐾🐕🐾
Agreed,,, I'm just a mother with a disabled child not so mutch a professional 😂 xx but definitely the hospital 👀❤️
Best of luck to you!! I’m sure things will work out great!
Shane as a practicing oral surgeon I can't emphasize enough that this procedure needs to only take place in a hospital setting. Besides the oral surgeon and his team there should also be a board certified anesthesiologist and a RN present in case your airway should become obstructed. I'm not trying to frighten you but these are actual scenarios that have the potential to occur. Much luck to you.
I would hope they do that!! When I had oral surgery for wisdom teeth I had to have it done at a hospital, fully intubated with anesthesia team due to history of laryngospasms. They weren't messing around. I appreciated it.
I’m NOT an oral surgeon but have a 9ur old son w type 2 SMA, je is fourtunate enough to have all his dentistry at the children’s hospital... I just want to second what the Dr above said... I’ve had to have my wisdom teeth removed after having chemo and it was done in a hospital setting... I am in Canada so it may be more difficult in the states but if it’s an option I also think a hospital setting would be ideal...good luck with everything.
Meditation Relaxing Music WTF I hope you mean to his tooth ... otherwise that's a terrible comment!!!!!! Yeesh.....
@@MissNeko76 of course that it was about the destist problem
@@MissNeko76 🙅🏼♂️
My son has SMA also, he’s 22 and most recently had surgery 3 years ago to place a port in his spine for his spinraza injection and did just fine coming off the vent post surgery. Also, Gillette has a dental clinic. Check there as they deal with people with disabilities all the time. We are from MN too. So sorry you are going through this!
I hope they see this comment!
Tracy & Lisa Mayer if There’s a email in description I would recommend you contact them you are just 1 of hundreds of people and I’d hate to see such valuable information got lost on them .
X2 Gillette
I go to Gillette dental too
Hi I’m glad your son is ok🙏🏼 I have muscular dystrophy at it’s almost worst. I hate the dentist,, I actually want to try the spinraza
Hi! Adult with craniofacial defect here. Often dental clinics located within hospitals specialize in treating people with unique situations including people with mobility limitations. It’s also really helpful because if the persons airway or muscle tone is not typical they often have tools and techniques that work better for some people.
Obviously our situations are different but this was a game changer in my life. In my situation it means an actual anesthesiologist is in the room doing any necessary anesthesia and the dentists/doctors use pediatric sized tools since I can’t completely open my mouth.
Awesome info.thanks for sharing.
I agree you need a pediatric maxilla facial specialist.
Superb and very useful Information! So kind of you to share ! X
Very informative! Thanks for sharing!
Yes to all the above. Also teaching programs often have a special clinic for people with complex needs. In LA USC has their Roseann Mulligan Special Patients Clinic so I'm sure there's a similar program in the midwest. Maybe Mayo?
My dad is an oral maxillofacial surgeon and one of his patients had a similar case to Shane"s. I just asked my dad and he said its possible to remove the tooth without breaking the jaw! Wish you guys all the best:)
Be very careful giving medical advice online my friend, even if you're just passing along advice or information from another source. You could face a lawsuit. I know you only have the best interests in mind and this is nigh impossible with this couple, but you never know.
^ Can't be too careful. You'd be blown away by some of the meticulous and devious ways people have filed lawsuits and won.
@Steven Glansberg a girl went to jail for texting "kill yourself" to her boyfriend.
Capitol rioters who were encouraged by their livestreaming subscribers are finding out the subscribers are being charged in some states.
Legal advice of any kind can get a youtuber sued even if in the comments.
Anyone can use anyone for just about anything.
If you find yourself in the wrong state or county or even get the wrong judge anything can happen.
Which is one of the biggest reasons there is to avoid exposing yourself to anything or anyone for any reason.
With that said, there's probably a case to be made here that they could use some help or advice.
However, it should probably be you dad who reaches out to them and the first words out of his mouth will probably be something like, "now before we begin I need to tell you......"
^ Will you stop being such an insufferable jackass just for the sake of being right?? Point is it CAN happen and probably has, but if it hasn't, oh well I warned ya!
^ but *can* it happen?
Holding your partner on your lap while they get an x-ray, that’s love. You two are amazing
I'm a wheelchair taxi driver and I've had so many dentists in my taxi to see patients whose chairs wouldn't fit through the door. Where there's a will, there's a way!
Sounds like this is a common problem. We need some advocacy to change this!
@@wildflower1397 Definitely is! Missing or too small elevators are also a problem at all kinds of doctors.
Could he tolerate a water pik? That is what I use because I have TMJ pretty bad if I open my mouth to far my jaw pops out or locks. I put warm water a bit of mouth wash and a bit of peroxide. Just a thought. I will be praying for your safety, for the success of a surgery, and a quick recovery.
One dentist's office in my city has a wooden ramp that is so steep, narrow and slippery when it's wet that we're forbidden to push a wheelchair up there on our own - but the receptionists always refuse to come help, because "someone has to stay with the phone"
@@robincranford8360 maybe a water pick and a sonic toothbrush.
Hi! So I’ve been a dental assistant in a general office for 5 years, 2 years prior to that I worked with an oral surgeon. The first thing I want to tell you is that oral surgeons typically use conscious sedation for IV sedation, which is much different than general anesthesia. The patient is unaware of what’s going on but they are able to breathe and move a little bit on their own. Also, the method they will use to open your mouth is to use a mouth prop. Essentially they will insert a “car jack” and crank it open, which we can do when patients are awake but they don’t like it 😂 Another thing I’d like to recommend is that if Shane has more wisdom teeth, he may consider removing them all at once. Most able bodied people who can open their mouths very wide are not able to reach their wisdom teeth in order to keep them clean. Shane will be fighting a losing battle trying to prevent this from happening again. Please let me know if you have any questions! I genuinely believe any surgeons I’ve worked with would be able to help you. But I have to ask - why is Shane unable to be transferred to the dental chair? Good luck guys!
Crack it open with a car Jack? Sounds terrible 😨 Maybe a bit to much information but on the other hand you have to know what the options are. Dental things make me anxious as well, while having an 30 cm open stomach that i had to clean myself for 7 months was’nt a problem😂
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I don't think he can sit/ lay into the dental chair without falling out. He can't hold himself up or still either. The straps on his chair keep him in place from leaning any further forward.
@@BrittanyLynn1106 that’s what I was thinking but wasn’t sure. I asked because if he were my patient, I would ask if we could try to use pillows to support him. I’ve done that many times for patients who are unable to lay flat.
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A tip about stretching Shane's jaw: don't just stretch it down from the front of the mouth. Instead, find the place where Shane's jaw connects to the skull on either side of the face. You can find this by placing your fingers on either side of his face and have him "chew." It's not the temples by the eyes, it's a spot that's about an inch away from the center of the ear. There are ligaments here at the TM joint and what you need to do is take your thumbs or pointer finger and press in on the spot. You can massage it with your fingers or put pressure on it, although I'm not sure how hard you will want to press with Shane specifically given his medical issues. Typically, if you've never massaged this area it will "hurt" for the first few times and get easier the more you do it. But the ligament will eventually start to release the more times you massage it and it will increase his flexibility. Most everyone holds tension here that closes up the bite. Similarly, you can grab onto Shane's chin but instead of forcing it down like you were doing, have him completely relax his jaw muscles and just move it up and down for him in a chewing motion. The key is for him not to be holding tension at all, the jaw should feel completely free for you to move. You want to be focusing on exercising/eliminating the tension from the muscles and ligaments that hold the jaw to the skull rather than just pushing down.
Yes! I hope Shane and Hannah see this!
Also a registered massage therapist who does TMJ treatments, even intra-oral (inside the mouth).
I did this exercise while reading. I really need to exercise this tendon more. Thanks!
Is it normal for the tendon/ligament to hurt after doing this? And the joints now feel swollen. I can only open my mouth comfortably about an inch maybe a little less, due to tmjd and a previous dentist said that the discs in the joints swell because of my night clenching which is what is limiting my ability to open my mouth.
After a minute, yup definitely swollen more because now I can't even close my jaw all the way
@@jvrock7 If you have never put pressure on this spot, you will definitely have sensation in the area. But if you are experiencing that adverse of a reaction where it is actually painful and causing swelling, stop the exercise. It's possible that you are massaging the wrong spot. Look up TMJ kneading/friction massage for more specific input.
This is crazy. As a dental hygienist who works in 2 offices - we have never ever turned patients down in a wheelchair. We do everything we can to accommodate anyone no matter what!
and are you american tho?
@@shan22777 absolutely not! OH CANAAADA 🇨🇦❤️
Its the same in Australia, we see people in wheelchairs all the time. The tray with the instruments on it moves around, the patient can stay in their chair. If the wheelchair leans back it would help tho. There are also special clinics for people with special needs that can accommodate alot better.
It makes my heart break every time you mention accessibility issues you encounter. Things need to change. That is just so effed up. Thank you for teaching us all how to be better humans. We need to do better!
Well said.
I think my dental office here in Stockholm has like wheel chair rooms... sad that not all places has it.. :(
They should at least know exactly who to refer him to. It would be different if they said 'we don't have the right kind of equipment or expertise to treat you, but here is the name and phone number of the nearest local person who can'. Surely there could be at least one specialist in each area, and other dentists could keep the information on hand to quickly refer patients to that specialist.
@@junbh2 Exactly! That isn't asking too much to get a referral who sees patients in wheelchair, especially when people were giving them wrong information.
This sounds crazy but for a toothbrush, go to a specialty pet store and get a small dog toothbrush. They are smaller than infant toothbrushes, have a longer handle and are triangle shaped.
That’s the greatest idea! Perfect.
Brilliant! Hope they see that comment!
Hehe.. I can so picture Shane laughing about his "small dog" toothbrush.
I mean that IS a good idea !!!
And / or ... make or adapt one using thermal beads from Amazon to morph one
Shane! This is Viola, a fellow SMAer, the next time you search for a dentist just ask whether they have a room where you can fit in with your wheelchair and then explain that you require to stay in your chair and that the chair can modify itself (tilt, raise, etc) like a dental chair can. I’ve found many dentists who were more understanding and accommodating than what you’ve encountered and I attribute that to the way the situation was explained to them. Also, go back to PA and to PENN medicine oral surgery. They’re familiar with people like us to do these types of procedures. All the best! P.S. you guys inspired us to start our own vlog, The Ginchiest, about our disability experiences.
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This just sucks big time that you two kids have to deal with a “dental dilemma”! It’s going to be a hassle to go through, but in the end Shane will be healthier and stronger than ever before. Proud of you both. All will go well. Bless you two!
Get a Waterpik or similar "oral irrigation" device. The tips are much smaller than a toothbrush and should help reach where brushing can't.
I was thinking same thing. My hygienist recommended doing waterpic in the shower when I complained of the mess. GAME CHANGER! It’s so much easier to use in the shower. Hannah could do it when she’s doing his bathing routine.
Waterpik - great idea!!!
I was going to suggest a water pic too.
Great idea to use it in the shower!
I don't think Shane showers every day.
Until you find a dentist GET a water pick. They are amazing. They get stuff out of your teeth that regular tooth brushing can't AND they get down into the smallest areas in your mouth.
Great idea!
Seconded. Water pick has saved my mouth after a countless dental issues. NO dentist ever reccomended a waterpik to me. It was a hygienist about 6 months ago who said it would help me with my inflamed gums and excessive calcified tartar buildup I have always gotten between cleanings and OH MY GOD. She was right, my teeth and gums have been obviously so so much more healthy for the first time in my life!
@@elizas3249 did you ever get rid of the calcified tartar build up??
@@rachelsmithkey9191 a hygienist always manages to scrape it off, but the waterpik has KEPT it off. And now I'm wondering why dental practices are so shady that in my 37 years this is the first this has been reccomended to me. My gums also are sooo happy, no longer red/inflamed.
If that's what I think, my dental hygienist used one at my last appointment. And honestly, that was the most painful thing I've ever had done in my mouth (and I have a few fillings!). I know my teeth and gums are sensitive, but I cried the entire time.
Listening to you talking about how dental offices wouldn’t accommodate your wheelchair makes me so angry. I’m a dental hygienist in upstate New York and we have many patients in wheelchairs that we treat. Some transfer and some can’t. Our office is 100% wheelchair accessible. I can’t believe there are so many offices around you that wouldn’t treat you because of that.
what exactly do your dental office have to make it accessible?? does the chair has different form? you can remove the chair and have the human in their wheelchair?
I'm also from Upstate NY, Honeoye Falls 20 minutes outside of Rochester.
Exactly I went to the dental surgeon for a CT yesterday and they rolled me up to it. Also they say I can stay in my chair at the actual dentist. This makes me sad that they did that too you!
When a business like this -- uh, a medical office, of all places -- says they can't accommodate a wheelchair user it's like saying, "In order for us to serve you, we require you to remove your legs."
Before all you people bash dentists, which I am sick of hearing, some offices can't handle wheelchair patients especially if it is an older office. Years ago, there were no building standards that had to be met, there were no ramps, wide hallways or doors and treatment rooms and bathrooms were small. Things changed when new laws went into effect to make everything handicapped accessible with new construction. Now, most offices can accommodate a wheelchair. Now, if my office got a call describing Shane's situation needing wisdom teeth extractions in a wheelchair with also other physical issues to consider, I would tell him we could not accommodate him, not by of wheelchair sizing, but because of his special needs, which would require hospitalization for wisdom teeth extractions. Extracting wisdom teeth can be very difficult and a good dentist will know when to treat a patient and when to refer them out to an oral surgeon who generally always have hospital privileges. Shane's call wasn't for bonding a front tooth, folks, which can easily be done in a wheelchair.
I love your positive outlook, joking and trying to keep it lighthearted. I’m sorry you’re having such a difficult time finding the assistance you need.
Sending you positive thoughts, all the best.
One thing I have learned from my primary doctor is that you don’t tell them you’re in a wheelchair. Show up and let them try to accommodate you. My chair is way bigger than yours and I am also bigger than you. My dentist sees me in my chair. They always have. I have been to two other dentists and have been accommodated as well.
I agree with you. Unfortunately when you ring a dental clinic you’re talking to a naive receptionist who knows nothing about different needs. If you just turn up like you suggested then they’re forced to get a dentist to come out and talk to you and discuss options.
Eh but some of them folks got no bedside manner at all just clinical and cold as hell... will dismiss you then and there wheelchair and all. I suppose you do have more of a chance of some being more compassionate and empathetic once they actually see you physically, but some will not also
Hello...I worked at both the (front admitting, and back surgery, of an oral surgery office). I'm not a receptionist, I 'm an RN!!..Just saying..
Sort of along the lines of “it’s easier to ask forgiveness than to ask permission”!! 😂
Prayers to find the dental surgeon to get the job done
Hi Shane and Hannah! Thank you so, so much for speaking in front of my school! (The Blake School) Your stories are so inspiring and your relationship is adorable! I recently moved to Minnesota from Colorado and I learned that you both live in Minnesota! That you so much for zooming with us. I hope to see you both again soon!
I’ll be praying for you ♥️♥️ Surgery has always been a big fear of mine and I had one late last year. Hopefully, you’ll find a great oral surgeon who can help calm your fears and do great work!
It literally breaks my heart that Shane looks like his about to cry through most of this video. Just make me what to hug them
So sorry you are going through this. I will be praying for you.
I’m a nurse & worked in oral surgery for years. I feel like there’s a good chance they’ll do your case in the hospital OR rather than in the office.
I worked for an oral surgeon. I too was thinking they'd do it at the hospital.
Oh Shane :( That's so scary, sorry you have to go through this --- sending all the good vibes your way!
I am simply amazed and happy I discovered you two. Good luck and may God keep you both wrapped in his arms forever! Thank you so much for sharing your life and you are my two new heroes!
So then it was actually a blessing that you went to the dentist and found this infection that you didn’t even know you had so now it can be taken care of.
I’m a 22 yr old addict in recovery. I used meth and heroin for almost 10 years,I got sober and went in to a dentist who then pointed to A oral surgeon to get 12 teeth surgically cut out in 1 day.. it was hard, but i felt so much better getting them out! I know your situation is different but I hope it makes you feel comforted you aren’t alone 🖤
Good job 👏
Well done ❤❤❤🙏🙏🙏🙏
Congratulations for overcoming! The "difficult factor" involved in your recovery is often misunderstood and underestimated. You are strong and powerful! :) Never forget it!
My son is a homeless heroin addict. Your recovery gives me hope. It's been 8 years. I'm grateful he's alive. I've tried to help him. It's heartbreaking. 😭
@@grandmaknows9320 prayed for your son, asking for a miracle in his life that glorifies God. 😊
I love that you kids can still laugh, even when you're stressed. I truly believe that your love for and support of one another is what helps get you through times like this. Keep it going!
There is loads of great advice and information! This is such a great, supportive little community. 🧏🏻♀️🙋🏻♀️💁🏻♂️
Kudos to that dentist for accommodating for you. I had no idea there were so many dentists that couldn’t work with wheelchairs.
Often it isn’t that dentists can’t work with wheelchairs, so much as most dentists/staff don’t want to put in the effort to accommodate wheelchairs. I’m also a powerchair user and most newer (post-ADA) clinics can move equipment and dentists chairs around to make the space accessible, it’s just a bit of a hassle. Many dentists and dental technicians are also afraid to work with disabled people who have mobility issues that might complicate their work, IMO.
I mean, shouldn't we be thinking about wheelchairs in the medical system lol. I feel like that would be important but it's a complex problem.
I thought all businesses especially hospitals,doctors offices, dentist... were required to accommodate? If it’s not required it really should be... at the very least.. they should have thought of that... when planning... it should not be that hard to receive care... doctor dentist or other... I’m so sorry you had to go through that! Absolutely love you both! Keep being wonderful! Take care!
@@archangel5395 all the dental offices I’ve worked at have had at least one room with a chair that moves, but not all dentists probably have the experience and equipment available to them to help patients with accessibility needs.
@@kelseylynnmac Right. That's a problem in my opinion.
I was a dental assistant for 8 years we weekly went to the hospital and put children and special needs patients under while we fixed the entire mouth. If you can find a pediatric dentist and or oral surgeon who routinely does that you will be in good hands. Don't worry the anesthesiologist will manage your breathing and the surgeon can take your infected molar out and nobody needs wisdom teeth they cause nothing but problems.
A pediatric OMF surgeon was exactly what I was going to recommend as well!
I worked in max fax for 25 years this is not a massive problem in the UK
Adults with special needs are aenastetised and operated on
Routinely even with this problem
Once your asleep a mouth prop or Ferguson's mouth gag will be used it's not a problem
My daughter has special needs and has a feeding tube and a ton of dental problems because she doesn't chew and water doesn't wash over her teeth to help with buildup of plaque and tarter. She has severe GI issues and anything that gets close to her mouth causes her to have severe gagging episodes that can last for 5 minutes. She had a nissen (they tied off the top of her stomach so she couldn't throw up) because she had severe reflux and couldn't keep anything down. It was the worst thing and has cause nothing but problems...such as....we can't brush her teeth. She has been going to the hospital to a special needs dentist every 2 weeks and they put her under the first 6 months probably and slowly she got to the point where she hasn't needed sedation. They are so good with her, they let her inspect each tool and ask questions and they tell her everything that it does (without the "it yanks out your teeth" talk) and the suction and drill they let her play with and they'd turn it off and on. This is exactly why she lives in Norway under the care of my best friend. The insurance crap and carelessness of the medical system in America almost killed her. We never would have found a dentist like that or been covered by insurance for it. Norway has been a dream come true. She has no issues at the dentist. She gets into the chair and is ready before anyone else is and her adoptive mom, my best friend, doesn't even have to stay in the room with her anymore. She even had braces and extractions etc. Her dirty mouth gets her into trouble, but not because she has rotten teeth! It's impressive what they can do for people with special needs
I am just going to say that I am praying for your surgery to be a success and that everything will be good to go! Positive Vibes sent your way!
When I worked as a dental assistant I actually did see one case in which the endodontist(root canal specialist) did recommend physical therapy over a couple weeks to widen the patient’s bite, so that’s not completely unheard of! It helped with access and then recovery for the jaw after since it wasn’t as abrasive to have it open after the widening. Maybe you can ask if that would help your case at all? Good luck Shane!!! Sending positivity and love to you both💜 you’ve got this!!!
Good luck. Sending positive vibes for quick healing ❤️
I have an amazing dentist where I drive my chair onto a special platform where I’m strapped down and then the platform raises to lay me down. It’s so accessible and the staff are all amazing.
Sadly for you I’m in the UK.
Wow!
@@irenedavo3768 it’s so impressive and enables me to go to the dentist after many years of not being able to.
I’m a teacher of students with Severe Multiple Disabilities in Australia. Many of my students have differences in muscle tone and limited range of motion in the jaw, they all use wheelchairs. They go to the hospital every 6-12 months to have their teeth thoroughly cleaned under general anaesthetic. Many of them have also had teeth removed under general anaesthetic without issues. No one has ever needed a tracheostomy, they all come out of it fine. It can be done! The thorough professional cleaning every 6 months is also a great preventative.
It was probably iv sedation, which(taken from anesthesiologists comments), reduces consciousness but you can still breath on your own. General anesthesia process is a deeper loss of consciousness and includes a paralytic which requires intubation to help you breathe. ... which would mean they wouldn't be able to have work on their mouths done because the trach would be in in the way lol. 😊
Probably the students and/or parents that told you confused the two which is common. I didn't even fully know the difference till reading through comments here of anesthesiologists explaining it lol.
Also I was thinking along the same lines that it might just be nerves and these procedures are common and shouldn't be an issue but the more I thought about what they said, plus other doctors' and anesthesiologists comments, explained that with Shane's SMA, the muscle wasting presents a bigger risk of the airway collapsing even with just iv sedation, and that plus how small the space is in his mouth and inability to oen it enough for intubation would mean in the event of his airway collapsing it would incredibly difficult if not impossible to incubate quickly enough to to save his life or at least prevent brain damage from the longer period of loss of oxygen.
Sending out love and support for you two. Haven't seen a new video in days, so starting to worry. Hoping you are both doing well.
As someone who has a fear of dentists I really sympathise with you Shane. Prayers it all goes ok. Xx
I just kept thinking about your access advocacy goals for this channel and this is a PERFECT example. I never even thought about the difficulty wheelchair bound people would have accessing something as basic as BASIC dentistry. More Dentists offices should look into having at least one room of a clinic being fully wheelchair accessible and how to accommodate bodily limitations. It’s not like Shane is the only person with limitations out there! GOOD LUCK!
@madge bullwinkle this is extremely ignorant and insensitive. Although some wheelchair users are able to transfer to the dental chair themselves/with assistance, if isn't possible for everyone
In the UK there's something called "community dental services" which have special facilities/dentists to provide care to patients with additional needs. Maybe this is something America needs to look into!
@madge bullwinkleyou are a heartless person. I hope you find your karma and face difficuilties n your life that makes you understand this couple's struggles. And i hope you overcome them but not without feeling what they feel. Good luck
@madge bullwinkle Did you listen them carefully? Is this your first time watchng them? If it is check out his condition. He is saying he can't find a dentist to help him with his condition. And there is no one definition of karma. I lived in India everyone has a different opinion like all religions it's open to interpretation. Call it karma call it forced emphaty.. You need to soften your heart and understand what you judge.
Just for information, we are not "bound" to our wheelchairs. We "use" them for mobility. If someone tries to bind me to mine, there will be a fight!
OMG ya''ll are so sweet, I tune into your show because I enjoy y'all so much!
Sending healing vibes and well wishes your way for your upcoming procedure, Shane. Be brave...you'll get a sticker!!!!! Much love!! ♡ -jeanne in MA.
IV sedation is titrated so that you’re still conscious and closely monitored so that you’re breathing for yourself etc - not as risky as a general anaesthetic. An oral surgeon will be able to access the tooth and have the tools to get the trickiest teeth out. No one will be breaking your jaw! 😱 You’ll be in great hands, I’m sure. Are there oral surgeons in hospital you could see who would have better equipment to accommodate you?
For future reference, there are orthodontic type toothbrushes that are basically tiny little tufts on a long handle which are great for getting to those back teeth and tricky areas!
I’m so sorry you’ve had a rough week, but I’ve worked with some amazingly talented oral surgeons and I know you’ll be absolutely fine. Best of luck and thinking of you both 😘
I go to a special needs dentist who just does everything while I’m under IV sedation. Some of my medications have just destroyed my teeth and made them so fragile, but he has never even cracked a tooth while doing work. Special needs dentists also often factor in the cost of the IV sedation since they use it all the time- mine charges $750 for it, but once the dental work is over $500 (which is every time, let’s be honest) the sedation is free. The only issue I have had with IV sedation is that I crave junk food right after, and I don’t even remember eating it since I am still under the influence of the sedation even though I look wide awake- if I’m going to make myself ill eating a Big Mac I want to at least remember it.
Go to a major hospital. A learning hosp. They have the latest equipment and very knowledgeable.
Great idea!
True I had a rare condition called reabsorption and I went to a teaching hospital. Always had students gathered round me watching their teacher work on me weird but the treatment worked. Betting the Dentist got a paper out of my case 👍☺️
Also the cost is minimal compared to a specialist.
@@judyivie4181 Also true nice one 👍☺️
Your right there in Minnesota maybe check with Mayo clinic. Everything will be ok Shane. Sending prayers your way.
Sending tons of prayers that everything goes smoothly 💕🙏💕 Love you both so much. I know I don't comment often, but I always watch 💕😘💕
Prayers and blessings to you both! Love you so much! Keep on keeping on❤️❤️❤️
There is a large difference between general anesthesia and conscious sedation by IV. I would not think IV sedation would be as dangerous.
Hi guys! I am so sorry you’re having to go through this!! BUT- I am so happy you’ve found a caring, competent dentist. Thank god for that! I am sending you all the positive love, vibes, prayers, and energy!! Set your mind in a positive manner and you got this!!!! I am hoping your video message will help you in your search for an oral surgeon!!! ♥️☀️💯🙌🏼
Prayers everything goes well and that your recovery will be quick!
Oh guys. Sending you tons of love. You managed to make me laugh even in the midst of a worrying time. That takes skill and big hearts😁❤❤❤❤
Prayers for a good outcome, and no fears and anxiety. I had my tooth pulled in January and the dentist looked at me and he could tell I was praying as his drilling my tooth out!! He actually said, Are you praying I’ll be done soon?” Yes I was!!😀😀
Will be praying for you and I'm sure you will do fine! I was able to transfer into the oral surgeons chair , but I also have issues with opening my mouth very far and I had all of my teeth removed. I have low O2 SATs and am bedridden but I did very well. Contacting a teaching hospital is probably the best idea.
I feel badly. I’m in Ontario, Canada. For me this is very strange. It is quite common to have I.V. sedation with a nurse for extraction of wisdom teeth. We accommodate patients in a wheelchair all of the time.. I’m glad you you found an office that can accommodate you. 🙏🏻
Insane to me how you pay so much for medical in the US but still get this poor of a service.
I hope all goes well. Sending you all the best wishes and praying for your wellness.
Prayers and positive vibes sent your way today tomorrow and always !
Much love from Pittsburgh
So sorry. Y'all have had a rough week. I promise everything does get better with time.
You’re a kind soul
I'm so sorry. We will be praying for both of you.
Sending lots of prayers that everything goes smoothly!!
My wisdom teeth was removed “in emergency situation “ since it was infected and it was under the gum... so they opened the gum and then saw it (or broke it) in pieces to remove it. I also have a tight squeeze in the back. Wish you the best!! ❤️
Same here, but with a sideways impacted wisdom tooth. The dentist did it; five shots of pain killer, about an hour of drilling and the pieces were still coming out a month later. TMJ didn't help either, with its restricted movement and limited opening. Best wishes to all! ☮
Sending prayers to you all. I'm sure everything will work out.
I love Shane's mindset. The amount of people I've recommended his books to are... many!
We sent a Tesla into space, but can't clean someone's teeth who's in a wheelchair?
That's because we didn't send a tesla into space all that shit is fake
Thaaaat's ableism!
I also use an electric wheelchair going to the dentist is a nightmare I live in the U.K. we have some good access imagine what it is like in a country without any access like the U.K.
@@ReZnMusic I'm gonna assume you're a flat earther.
That’s the real question right there.
Shane I know you hear this all the time but you are a true inspiration really, most people don’t deal with nearly as much as you do, I just have usual aches and pains and I don’t even want to get out bed!!! Thanks for sharing Shane and Hannah. ❤️
The stretch that Hannah demonstrated was actually recommended to me post oral surgery. And helped with my pain. Not sure how much it will loosen his jaw... but I seriously hope it does! Fingers crossed! 🤞🏼
In the UK, cases like Shane's would either be seen in a dental hospital, or a general hospital.
With Shane's condition, it's far too risky, just to be seen at a regular dentist.
I agree, I think the hospital would bed the safest place,they are more equipped to handle any thing that could come up.
I hope you will be able to relax and not get to worked up when you have your treatment when my daughter was about 7 I took her to the dentists and she was crying and running round the the room and she kicked dentist I was so embarrassed and the dentist said he could not treat her as she was so naughty she was always a good girl but she was scared she panicked I didn't take her back again
Praying for you!! Hope all goes well and you can get the tooth removed with no complications! Best wishes to you both!! You guys are truly amazing! 🖤
What a blessing your relationship is built on love and compassion.
Stay strong and share the love... you can handle anything together! 💕💖
Make sure whoever you choose you talk to him or her personally about your concerns. Dentists are usually very kind, but they need to meet you beforehand. It'll make you feel better & the dentist will know what they are getting into. (Yeah yeah, your mouth!!) Good luck 💐💐
Good luck, Shane.prayers are coming your way. Sending my Angles to watch over this procedure. You are so Amazing! You will get through this. You have such a loving family, and friends sending love for a speedy recovery.
Sending prayers your way, I’m sure you’ll find a great surgeon that will do an excellent job.
I recommend getting a children’s electric toothbrush or toothbrush head because they’re smaller so I find they can get the back teeth better.
Hearing about how Hannah balanced Shane for the X-ray. That is so mundanely sweet
Oh Shane I’m sorry to hear this! You’ll be okay! I had emergency dental surgery last year - not as risky as yours, but I understand the urgency and fear. It’s so scary, but once it’s over you’ll feel so much relief!
I’m so sorry to hear. I completely understand Shane’s apprehension. Please do make sure this is done in a good hospital and that your oral surgeon has all necessary staff booked for this. Come prepared to the first consultation with as many questions as you can. Wishing you an uneventful procedure. Please keep us posted. Best to you and lovely Hannah. 💕
I’m so aggravated that there’s not adaptive equipment for this! I mean, just an adaptable toothbrush for people with SMA would be helpful!
Totally wrong!
There are smaller toothbrushes. It sounds like they just welp it doesnt reach hopefully mouthwash does it. 🤷🏼♀️🤯
I agree. It's total crap!
Good luck for the surgery ✝️ 🙏🏻
So sorry that you're going through this, especially during these trying times. I trust you'll be fine, but I completely understand your frustration and fear.
I have had mobility issues requiring an electric wheelchair so seeing dentists, oral surgeons and maxillofacial surgeons has been really difficult. I started going to special needs clinics first Mount Sinai Hospital,Toronto. Now, Ottawa Civic Hospital. I can’t open my jaw very much so I understand what you are dealing with. Good luck to you both.❤️
I hope all goes well for you both.
Amazing strength in your couple well done xxx hope everything goes well
Once again I can count on you to educate me on the inaccessibility issues people with disabilities face. It never occurred to me that seeing a dentist would be so difficult! Sending positive thoughts your way for a quick and speedy procedure and recovery.
Thinking and praying for you!!! Got a lot on your plate
Omg! I will pray for you, Shane. You guys are gonna get through this. 🙏🏽
Remember that the sedation is not the same as a General Anaesthetic, which requires the patient to be on a ventilator.
That’s what I’m sitting here saying as I’m watching the video. Sedation for oral surgery is totally different than general anesthesia.
You don’t have to be on a ventilator for general anesthesia, as most patients can still breathe on their own, but they have to be able to fit an oral airway in your throat, which might be difficult in Shane’s case. I would definitely suggest going to a a hospital that also has oral surgeons practicing in it.
that's how I've had my wisdom teeth taken out.
@@Oldfrnd2 During any surgery that requires general anesthesia, a ventilator is necessary. There are also times when a ventilator is required after surgery, as the patient may not be able to breathe on their own immediately after the procedure.
@@thomas.alexander. You’re right. I misspoke. Thank you for correcting me.
You two are beautiful people so funny!! I hope you’re able to find a surgeon quickly and sending you positive vibes
Sending thoughts and prayers your way as you both navigate this situation. 💕
I will ask my oral surgeon if he has any suggestions. It’s shocking to me that no dentist would accommodate you all these years.
He can't open the back of his mouth is why
@@PedromyChichi07 Dentists weren’t accommodating him in his wheelchair, it had nothing to do with how wide he could open his mouth. If he could have transferred to the dentist chair they would have done his regular teeth cleaning.
The mouth not opening is only the issue now that he needs a tooth removed.
I’m sending good vibes! I’ve also been prolonging going to the dentist.... maybe this is my sign to go 😬
I wish you the best!! I know your nervous but just know we all are praying for you and all this will be over before you know it,and you'll feel so much better!
I can see by the redness on your right cheek that goes down your neck, you do indeed have a serious infection going on. Thank goodness you're on an antibiotic. Good luck with your search and prayers for you during your surgery. Keep us posted. Love your channel! 💙
I removed at an oral surgeon all 4 very impacted wisdom teeth, all at once, all while awake!! It was so difficult and hard and the pulling and pressure was just so much.. Surgery lasted 2 hours. I can only imagine the stress this is causing you due to the situation that is of course more difficult in your case.. You ve got this, it is a thing that needs to be done and get over with , and you will👏💕
Hello! I have muscular dystrophy and have a similar jaw issue. When the surgeon removed my wisdom teeth they cut my gum on the side and removed the teeth sidewise while only using local anesthetic. Maybe that is a possibility? My surgeon is in Michigan! Let me know if you'd like their info :)
I am just coming across your page and have subscribed.
You are an adorable couple!💞
Bless your heart Shane. Sending prayers your way. God knows what you need. 🙏💞Shane💞🙏
Thank you so much for sharing your life with us. I so wish I could just have coffee and sit and talk to you both. Your just awesome 😎. Sending prayers. I am so sorry to hear about your tooth.
About 10 years ago I had major dental work done and had to have surgery because I have the same issues as you. To make a long story short, things went well and I was able to go home an hour after surgery with a narco for pain. I never had any pain and later threw the medication away.
How in the world are there so few dentists who can serve those who deal with mobility challenges?
I’m really sorry that you’re having to deal with this. Prayers for a speedy resolution! 💝
Bless u guys! Really tough life stuff but a good sprinkling of humour too..hoping it works out well Shane !
Sending my love and support Shane! The dentist can be intimidating for sure. I'm sure it will all work out in the end😊