THank you for sharing< I HaVE MorvA'ns syndrome which is an autoimmune disorder, somewhat different from your condition (but in the same group - Voltage-Gage Potassium Channel positivity). Your explaination is clear, conscise and heartfelt, I hope you continue to improve. Much love.
Thank you. My dad has recently been diagnosed with LGI1 antibody positive LE. Many of the symptoms you describe were noticed in my father's decline. His first symptoms looked like onsent of dementia. Then psychosis and delusions. It wasn't until he had a seizure they started to look further. He is very early on in treatment. Your story has given me hope. Thank you.
@@warisbaba7869 hi, sadly my father passed away in May this year from a major hemmiragic bleed. The doctors said he did start to respond to the medication reluxomab. I wish you all the best.
Medication was reluxomab. Unclear about what the hemmorage was due to. He had dental surgery and was given a clotting medication also. It could have been any of those things. We declined an autopsy.
![Evaluating Autoimmune Encephalopathies, Dementias, and Epilepsies [Hot Topic]](http://i.ytimg.com/vi/3ula0hZ2rQs/mqdefault.jpg)
THank you for sharing< I HaVE MorvA'ns syndrome which is an autoimmune disorder, somewhat different from your condition (but in the same group - Voltage-Gage Potassium Channel positivity). Your explaination is clear, conscise and heartfelt, I hope you continue to improve. Much love.
Thank you. My dad has recently been diagnosed with LGI1 antibody positive LE. Many of the symptoms you describe were noticed in my father's decline. His first symptoms looked like onsent of dementia. Then psychosis and delusions. It wasn't until he had a seizure they started to look further. He is very early on in treatment. Your story has given me hope. Thank you.
@felicity Shipley.. how is your father now..can you share with me..my father is going through the same disease.
@@warisbaba7869 hi, sadly my father passed away in May this year from a major hemmiragic bleed. The doctors said he did start to respond to the medication reluxomab. I wish you all the best.
@felicity..I am sorry for your loss..what infusions your dad was given..was the hemorrhage due to the infusion or due to Lgi1..
Medication was reluxomab. Unclear about what the hemmorage was due to. He had dental surgery and was given a clotting medication also. It could have been any of those things. We declined an autopsy.
@Felicity Shipley Thanks for sharing ... God bless you.
Sounds like Multiple sclerosis. I had adem then later diagnosed with Ms. God bless you.
Thank you for sharing. My research is on Encephalitis and your story has helped me understand more. God bless you and keep you.
Thank you for sharing. My daughter also has AE.