My sister got sick on her birthday May 21 of this year. She’s been and ICU for five months and we are putting her in a rehabilitation today and I feel like I have no choice but to take her there because the doctors and the nurses are telling me that she’s too much for me to handle, I know they mean well I know this is a better decision for her. She’s only 23 years old. She’s my baby this disease has took a toll on me and my baby sister. Yes she is the one going through it but just being beside her bedside every day, it’s killing me inside and out get better Sabrina 😍 I love you Bri Bri❤
I suffered with encephalitis seven years ago.Peole thought it was the flu .But a neurological dotor diagnosed me. My life has not been the same I suffer from seizures ,memory loss ,sensitvityto light and smells that trigger seizures.Basically I don"t live my life ,like I would.Thank God I survived there where good doctors to help me along. But I got alot of problems with this illness.
My son has Rasmussens encephalitis, tried 20 different meds, 7 clinical trials, vagus nerve stimulator, separated hemispheres. I.V.IG., Rituxamab. Keto diet. Nothing works. He is 30 years old. And has several seizures everyday. We are looking for a more natural, holistic, way of treatment. If anyone has any information or can guide in any direction please 🙏 aware us. He does have memories of his childhood. His first seizure was at the age of 10. We refuse to give up. Love to all, we understand your struggle
Very informative. I suffer from Multiple Sclerosis, as well as Encephalitis. These are very challenging to live with. May God help us all with these illnesses.
Thank you for sharing with us Chad, and we are so sorry to hear of your encephalitis and MS. We are here for you. If you ever need any support, information or advice please don't hesitate to get in touch with our support team at support@encephalitis.info, or you can call us on +44(0)1653699599.
I was under the care of Nicholas Davis at Chelsea & Westminster Hospital, following admittance with HIV Encephalopathy in 2014. A wonderful man and a wonderful team saved my life. Even after all this time, I didn't completely understand, untill I watched this. Many thanks.
What a wonderful comment thank you for sharing. We will pass onto Nick and the team as well. Here if you need us for anything www.encephalitis.info. Thanks again
@@encephalitisinternational I met with Nick 14th March 2019 to discuss latest MRI scan, and was given the all clear, so just a note of encouragement to other sufferers. We go through hell, but stay positive. There is light at the end of the tunnel.
Dr Davies really and truly is one of a kind. One of the extremely few doctors, if not the best at not just being a sympathetic person, but has an extremely warm heart and great bedside manner. If i could i’d reward this man with mountains. This man deserves Dubai. . Hafsah
Thank you for watching, and for your comment Joan. We are so sorry to hear of your encephalitis many years ago. You are not alone - we are here for you. You can reach out to our support team any time you have a question by emailing support@encephalitis.info, or by calling us on +44(0)1653699599.
Thank you Perhaps the best explanation Although here in the USA We pronounce it differently En-sef-a-litice .... I’d like a print copy of the end... My daughter has impulse issues and it changed her personality and some of her educational abilities. But... she also has DiGeiorge Syndrome... what are the chances/odds of that happening
Thank you for your interesting comment, Cindy. Yes, the American pronunciation uses the soft 'c' sound (enˌsefəˈlaɪtɪs), whereas the British pronunciation uses the hard 'k' sound (enˌkefəˈlaɪtɪs). We go with the British pronunciation as we are based out of the UK. We are here for you, and your daughter. Could you please get in touch with us at support@encephalitis.info, or call us on (0)1653699599, and our support team will be happy to talk it through with you.
I am so sorry to hear that, Erica mae. You are not alone - we are here for you and your daughter. If you have any questions, or need someone to speak to please do not hesitate to get in touch with us at support@encephalitis.info, or +44(0)1653699599.
I am Gabriella. I saw Dr Nick Davies this week on 120 harley Street in London. He is a lovely man and very attentive. Since he saw me I am feeling worst. I can barely walk… I asked Mr Davies Please watch the Brain on Fire film what is about Autoimmune Encephalitis based on a true story with Susan Cahallan. Sometimes no MRI no Blood test shows it. Over 7 weeks now having worsening symptoms in this 3 days it persisted symptoms. I can barely function and the ongoing pressure on my head and the way it is harder to walk every day. Please someone help.
I got all neuroligical symptomsnow with encephalitis since the 3rd may. I do not have psychological symptoms at all just pain/ No MRI No Ct scan no blood test did not show it. I went through a million test like Susan Cahalan in Brain on Fire. Later I developed crazy ovarian pain. I went for even abdominal MRI showed nothing. And the pain in my ovary as it can cause it ovarian teratoma. What I did not have is a lumbar puncture. I have no idea how to prove the ovarian teratoma. It says I did my research that with people with anti nmdar receptor encephalitis it is harder to see the teratoma because it is too small.:(
Hi. The best option is to make sure the dog is treated against ticks. If your dog has a tick, please make sure you remove it correctly. If you need any other information please contact support@encephalitis.info
That is a very good question and thanks for reaching out. Would you be able to get in touch with our team on support@encephalitis.info and they will be able to talk this through with you. Thanks again
I have had encephalitis 4 times when I was 7 years old when I was 16 when I was 27 and then again last year I was in hospital for 4 weeks when I was 27 and last year when I had o had nmda encephalitis which is due to my immune system where it don't work like.it.should I have memory problems sezies forgetting things mood changes mussual pain iam.on.striods at the moment last time I had.it.i had a plasma exchange and riximab after
My sister got sick on her birthday May 21 of this year. She’s been and ICU for five months and we are putting her in a rehabilitation today and I feel like I have no choice but to take her there because the doctors and the nurses are telling me that she’s too much for me to handle, I know they mean well I know this is a better decision for her. She’s only 23 years old. She’s my baby this disease has took a toll on me and my baby sister. Yes she is the one going through it but just being beside her bedside every day, it’s killing me inside and out get better Sabrina 😍 I love you Bri Bri❤
HI, I am sorry to hear about your sister. Please do email up support@encephalitis.info if you would like to talk.
Why would anyone give this video a thumbs down? This is raising awareness for Encephalitis and to help save lives!!!
Thank you for the wonderful poem at the end. The entire presentation is so helpful. Like a hug for someone who had encephalitis. ❤
After the excellent explanation I recommend to listen to the beautiful song and poetic lines starting at 11:45
Great video. He explains it very well.
Thanks Brittany!
The Encephalitis Society You’re welcome
I suffered with encephalitis seven years ago.Peole thought it was the flu .But a neurological dotor diagnosed me. My life has not been the same I suffer from seizures ,memory loss ,sensitvityto light and smells that trigger seizures.Basically I don"t live my life ,like I would.Thank God I survived there where good doctors to help me along. But I got alot of problems with this illness.
My son has Rasmussens encephalitis, tried 20 different meds, 7 clinical trials, vagus nerve stimulator, separated hemispheres. I.V.IG., Rituxamab. Keto diet. Nothing works. He is 30 years old. And has several seizures everyday. We are looking for a more natural, holistic, way of treatment. If anyone has any information or can guide in any direction please 🙏 aware us. He does have memories of his childhood. His first seizure was at the age of 10. We refuse to give up. Love to all, we understand your struggle
Very informative. I suffer from Multiple Sclerosis, as well as Encephalitis. These are very challenging to live with. May God help us all with these illnesses.
Thank you for sharing with us Chad, and we are so sorry to hear of your encephalitis and MS. We are here for you. If you ever need any support, information or advice please don't hesitate to get in touch with our support team at support@encephalitis.info, or you can call us on +44(0)1653699599.
You are still in Gods hands.
I was under the care of Nicholas Davis at Chelsea & Westminster Hospital, following admittance with HIV Encephalopathy in 2014.
A wonderful man and a wonderful team saved my life.
Even after all this time, I didn't completely understand, untill I watched this.
Many thanks.
What a wonderful comment thank you for sharing. We will pass onto Nick and the team as well. Here if you need us for anything www.encephalitis.info. Thanks again
@@encephalitisinternational I met with Nick 14th March 2019 to discuss latest MRI scan, and was given the all clear, so just a note of encouragement to other sufferers. We go through hell, but stay positive. There is light at the end of the tunnel.
@@peterkennett7594 What lovely words!
Thanks so much for this brilliant scientific video! It's so educational. I wish there were more like this one. 🙂
Thank you for your lovely comment Paula! We have a Playlist called "Encephalitis Information Resources" if you are after more similar content :)
@@encephalitisinternational Thanks a lot! I will have a look.
Dr Davies really and truly is one of a kind. One of the extremely few doctors, if not the best at not just being a sympathetic person, but has an extremely warm heart and great bedside manner. If i could i’d reward this man with mountains. This man deserves Dubai. . Hafsah
Thank you for providing this video. Helpful in understanding my own experience with encephalitis many years ago.
Thank you for watching, and for your comment Joan. We are so sorry to hear of your encephalitis many years ago. You are not alone - we are here for you. You can reach out to our support team any time you have a question by emailing support@encephalitis.info, or by calling us on +44(0)1653699599.
@@encephalitisinternational Thank you so much. I appreciate your response.
This is so interesting. Very informative. My Catholic school 🏫 teacher 👩🏫 said she had a daughter 👧 with encephalitis
Thank you so much for the comment - here if anyone needs us.
Thank you
Perhaps the best explanation
Although here in the USA
We pronounce it differently
En-sef-a-litice ....
I’d like a print copy of the end...
My daughter has impulse issues and it changed her personality and some of her educational abilities.
But... she also has DiGeiorge Syndrome... what are the chances/odds of that happening
Thank you for your interesting comment, Cindy. Yes, the American pronunciation uses the soft 'c' sound (enˌsefəˈlaɪtɪs), whereas the British pronunciation uses the hard 'k' sound (enˌkefəˈlaɪtɪs). We go with the British pronunciation as we are based out of the UK.
We are here for you, and your daughter. Could you please get in touch with us at support@encephalitis.info, or call us on (0)1653699599, and our support team will be happy to talk it through with you.
Poem at the end is profound.
My daughter now is suffering from auto immune encephitis started on july 5, 2020 up to present
I am so sorry to hear that, Erica mae. You are not alone - we are here for you and your daughter. If you have any questions, or need someone to speak to please do not hesitate to get in touch with us at support@encephalitis.info, or +44(0)1653699599.
I am Gabriella. I saw Dr Nick Davies this week on 120 harley Street in London. He is a lovely man and very attentive. Since he saw me I am feeling worst. I can barely walk… I asked Mr Davies Please watch the Brain on Fire film what is about Autoimmune Encephalitis based on a true story with Susan Cahallan. Sometimes no MRI no Blood test shows it. Over 7 weeks now having worsening symptoms in this 3 days it persisted symptoms. I can barely function and the ongoing pressure on my head and the way it is harder to walk every day. Please someone help.
Please do contact Encephalitis International for support if you feel it will help.
I got all neuroligical symptomsnow with encephalitis since the 3rd may. I do not have psychological symptoms at all just pain/ No MRI No Ct scan no blood test did not show it. I went through a million test like Susan Cahalan in Brain on Fire. Later I developed crazy ovarian pain. I went for even abdominal MRI showed nothing. And the pain in my ovary as it can cause it ovarian teratoma. What I did not have is a lumbar puncture. I have no idea how to prove the ovarian teratoma. It says I did my research that with people with anti nmdar receptor encephalitis it is harder to see the teratoma because it is too small.:(
Is it possible to get encephalitis from 'tick bites" from our toy poodle?
Hi. The best option is to make sure the dog is treated against ticks. If your dog has a tick, please make sure you remove it correctly. If you need any other information please contact support@encephalitis.info
I survived... but now... 50 years later my braindamage is starting to show!! And making life more and more complicated!
Can the cognitive aftermath be mistaken for covert narcissism?? 50 years later?
That is a very good question and thanks for reaching out. Would you be able to get in touch with our team on support@encephalitis.info and they will be able to talk this through with you. Thanks again
Please raise awareness with Brain on Fire film true story on this condition! :(
We have the book on our website also :)
I have had encephalitis 4 times when I was 7 years old when I was 16 when I was 27 and then again last year I was in hospital for 4 weeks when I was 27 and last year when I had o had nmda encephalitis which is due to my immune system where it don't work like.it.should I have memory problems sezies forgetting things mood changes mussual pain iam.on.striods at the moment last time I had.it.i had a plasma exchange and riximab after