I am a RN & think you are right it doesn`t sound like it was psychosomatic to me. I think slowing it down was good & the benadryl & prednisone was good to. Just because they have medical or nursing degrees does not always make them right. People reactate differently to medication. You did a great job advocating for your daughter. Don't let it get you down.
Nurses and doctors make mistakes, too. I believe they made a mistake, and it was a real physical reaction, not psychosomatic. Wyn has such a good attitude, and didn’t seem like she was particularly anxious until she felt the symptoms. It definitely was not your influence or overreaction. You keep being you,!! Keep protecting your kids and keep speaking up when something makes no sense or you have questions. Stay strong 💪
You know your daughter better than anyone so don't let that nurse or the doctor or anyone else tell you that it was psychosomatic they may be medical professionals but you are a professional at being Wyns mother knowing her and your other children as well ! And like you always say to us on every video " you are wonderful " !
Hi there - I’m a special education teacher (not a nurse) However: In my line of work, I see moms, dads, caregivers, etcetera as the experts of their children. They are a wealth of knowledge and provide amazing insight that helps me better support and understand them. I’m so sorry you were not validated and respected. Even if they felt like that, they should have kept it to themselves. That fosters anger (understandably!) and erodes the parent’s/caregivers’ trust, breaking down the lines of communication, which ultimately negatively impacts the child. Keep advocating for your children and being the AMAZING mom you are!!
A few years ago I had a bad reaction to anesthesia my entire body was in voluntary shaking on/ off. I was in my 50”s. A nurse told me to stop shaking & told my mom that I was faking. Unbelievable especially for a pediatric nurse to treat anybody that way. I’m so sorry you had to go through that. You guys will be in my prayers.
I'm so sorry they put you & your Mom through that. Did you make a complaint? I totally would have & you would have been totally justified. To be totally honest, it shocks me that doctors & nurses in the US get away with all sorts of stuff, including that, which would never be tolerated here in the UK. If a doctor or nurse did that here, it would trigger an internal investigation & if the press picked up on it, it would go national! But I've heard of too many nurses & doctors getting away with all sorts over in the US.
I’m so sorry this happened to both of you, she definitely had a reaction 100%! I’d agree it needs to be slower and you are a awesome mom and know your child very well, the doctors and nurses need to listen better. You definitely have reasons to worry, praying for you all,so tough on you all.
One of children is severely disabled and I had a certain amount of medical personnel minimizing things I reported. I was an involved and knowledgeable mother and of course I would get emotional at times, but I was never rude to anyone, just firm at times when needed. Stay a strong advocate, Emily.
I am so sorry this happened . I would have been upset as well . I, myself , had a reaction to a med that was injected . It caused my heart rate to go sky high and yes … anxiety followed . I think Wyn did amazingly well for what she went through .
Prayers for All of you.....That nurse should Never have made you feel bad for caring about your child and wanting what is Best for her....No excuse for that attitude from anyone but most of all the professionals who are suppose to be there to help you....
Well, that'd scare anyone!! Seems logical to me that her reaction could be simply from the speed the medicine was given. Hope she has no other reactions and that the infusion accomplishes all the good it can. Sending you hugs and love. You're doing a great job, Mom! So sorry for the treatment you received -- I'm been treated the same way -- so frustrating and unnecessary!
That is terrible what that nurse said to you about making something up! That was out of line. Just the fact that you were willing to continue at a slower rate instead of stopping completely showed that you are level headed! They also contradicted themselves by saying it happens often and then later that it’s rare? So is it common or is it not? Praying the next time is without an issue. Special needs parenting is not for the faint of heart.
So frustrating, I had the same experience with my son when he was first experiencing symptoms when he was a child. I think there's a feeling that mothers are 'over emotional' about their children. Its as if their 1st response is to not believe us. So patronising. Well done for keeping your cool. X
I hate when doctors and nurses don’t listen to moms and treated us like if we are just overreacting. I believe you and go with your gut feeling always and advocate for her!🙏🏻
I'm so very sorry sweetie. Lots and lots of prayers for babygirl and mama. You are doing the right thing about her health. You know what you seen and heard from your child. Keep making them doctors and nurses understand. God bless.
I know Munchhausen‘s Syndrome by proxy is VERY real. I do not work in the medical field but I’m around it a lot and to my understanding they have to be aware that some parents make their kids sick on purpose or exaggerate what’s happening to them for a multitude of reasons. It’s terrible that you are having to go through this. Keep advocating for your babies, we know you’re telling the truth. ❤️
Girl you were so strong with how you handled that situation with the nurse, like I would’ve flipped! As a disabled person with many health issues I’m often in the hospital myself where I’ve had to deal with nurses not believing me during times of distress which is something absolutely heartbreaking to go through, I mean newsflash complications can/do happen which is why so many things require monitoring by medical professionals in the first place! Personally I completely believe what happened to Wyn really happened especially since she wasn’t anxious prior. Not only that but with her oxygen dropping so low it’s technically considered critical, and she’s only 7 like come the f on people! It’s stupid stuff like this that makes advocating for your children necessary in the first place!!! So please keep advocating for your babies no matter what just like my Nana advocates for me it really helps. Also if I were you I’d bring all of this up at her next CRMO clinic before they try labeling her as a hypochondriac, and start trying to deny her treatment or preventative medication all because of one stupid nurse who wasn’t even present until things were finally improving. Ugh I am so mad for you guys, seriously please consider reporting that nurse as not only do you not deserve how you were treated as the parent, but Wyn most certainly does not deserve being treated how she was as not only the patient but also as the innocent child in all of this!!! 🤬😡🥺…
I cant even imagine, I would have been the same way You could see it in your eyes how scared you were without trying to show fear to her. Poor girl, im sure it was real hopefully slower will work out better!
Bless y'alls heart and I will pray this does not happen again. Wyn is not old enough to know that you can have psychosomatic symptoms. It is real people! doctors! nurses! I have been dealing with lung cancer ... It was found last November and treatment started in Dec. I started chemo and radiation at the same time ...daily radiation for a total of 34 and a total of 7 - 4 hour long chemo treatments. My first day of chemo the lady sitting next to me in the infusion room had been having chemo for about 45 minutes and (I was just hooked up to my treatment) and like Wyn....the woman started with chest pain, labored breathing...and panic set in...I was scared!!! the nurses were scurrying around and the dr came in....they stopped her treatment for the day and she went home. I had tests after all my treatment and the tumor was gone, but now I have a years worth of twice monthly immunotherapy infusions ending this next May. It is not fun, people have reactions to things and I have been really blessed that so far I have been ok without a lot of "crap" except an infection that took 3 rounds of antibiotics to get rid of. I really hope that she will be okay next time and the next time and all the ones after that Take good care, love you guys
Emily, I get what you're saying. When my daughter was 2 she had several ear infections. I went to a doctor who questioned me as to why my daughter was always getting ear infections; as if it was my fault. 😡😡🤬
Sounds exactly like what happened to my reaction to my infusions for psoriatic arthritis. From than on before the infusion I get benadryl and steroids. Never had anything again
That was dead wrong for them to undermine you. I don’t like that with the medical field . How dare them . They are being judgmental and they do the same thing with mental illnesses. Things need to change . I’m so happy she’s ok and I know this was so hard on you. God Bless you and your family !!! You’re such a good Mom 💪🏻❣️🌿❣️🌿❣️🌿❣️
I hope this wasn't an allergic reaction because that has implications that will make treatment more difficult. However, it really sounds like an allergic reaction and allergic reactions aren't always immediate. I have a peanut allergy that developed in adulthood and was walking in the store when I passed a bag of peanut butter snacks for children that had popped open. I thought NOTHING of it. About twenty to forty minutes later, I started feeling nauseous and pain in my stomach. I took Benadryl and about thirty minutes later started to feel better. I'm sorry you are having to go through all of the stereotypes doctors and nurses give families that spend a lot of time in the hospital. Keep advocating and remember that you know your children's behavior the best!
Would suggest taking a video if she has any future episodes once you know it is safe to and Wyn is in the hands of doctors and nurses. This is always the best way to show doctors what is going on but especially the best way if the doctor is expressing doubt about what you’re sure you saw.
Health scientist here, with training in child development. I agree that this was a genuine reaction. It's possible to have an allergic reaction to something hours after coming into contact with it. I would definitely predose with benadryl & possibly increase the predose of steroids, as well as having the infusion go in slower next time. Just like you, there are people who metabolise meds quicker & being mother & daughter, it's entirely likely that's what happened with Wynn. Some doctors need to listen to parents more, especially when the stats back things up as you say. Children who are that young are incapable of faking something like that & not a single person can fake their oxygen dropping to 80%. I would have the hospital send the stats over to Wynn's doctor & insist they look into this. You should also make a complaint about how they treated you as Wynn's mother. That's not OK. They would never get away with treating someone like that here in the UK, they would get into a whole heap of trouble.
I understand the thinking of the doctors about anxiety inducing symptoms. I know for myself when I’m hyper aware about a symptom or situation you can see something for more than it is. However, it being an an hour and half in and her second transfusion makes me believe that it’s medicine related. Anxiety can for sure heighten the symptoms but it doesn’t mean that it’s not real.
love ur top. where did u get it? target? wyn is great with expressing her feeling. remember, drs are not always right. u know ur child at the end of the day
As a person with cerebral palsy and have constant weird reactions just say that Nure was having a bad day. I know how hard it is be having the reaction and be told you are making it up. As a guardian of your child you are aloud to request a different Nure if you are not happy with how they are treating your daughter or you. Obviously she was having a issue as the oxygen machine would not be in the 80s and your daughter was heavy breathing.
Will keep Wyn in my prayers, you as well. Hope you recover yourself. Will keep Wyn's next infusion in my prayers as well, going slower, is maybe a better way to go, everyone's body is different, reacts differently. Wyn, you where a star, you did so well and where so brave.
Thats terrible they made you feel that way Emily. I would make a complaint against that nurse if it was me. I know a few years ago there was a terrible case at Colarado children's hospital where a little girl died after her mum made her go through hundreds of unnecessary procedures and was making it all up due to Munchausen by proxy. The hospital came out really badly for allowing all this to happen so I'm guessing all the staff are hyper aware now (to the extreme). Regardless of this, that nurse was way out of line and it sounds like something very real happened to Wyn. Reactions to medication are not text book and children can react so differently. Lets hope you both have a much more positive experience next time 💗 Xx
I'm a person that's very chemically sensitive and have has reactions to medications that aren't listed as side effects. When I tell my doctor what kind of reaction I'm having and what med I started Taking he says it's not a side effect of that med but stop taking it. If it goes away then it's a side effect for you. I'm saddened at the things they said to you. You are 100 percent right about asking for meds before she starts the next infusion a d if it were my child I would let them know I want it administered at the slower pace. Her body seemed to handle it better that way along with the meds she was given and next time they will just be given beforehand. Just a suggestion.
Just because they say it’s psychosomatic and doesn’t mean it really happened the symptoms are real they just don’t know what happened. Not a doctor but I would say it’s probably a delayed allergic reaction people don’t always have allergic reactions in the same way. I’ve heard of some people eating food and having a reaction three days later. I’m glad everything was taken care of and that she’s doing OK hopefully the next infusion goes well and she doesn’t freak out about it because of this event.
Perhaps she had a panic/anxiety attack? Those are not psychosomatic...they are very real and can cause every single symptom she had. I'm so glad she is better and recovered. Hang in there.
@@barbararose88 Actually it can. Momentary stress causes the body to tense and you begin to breathe a little more shallowly. A shallow breath lowers oxygen levels in the blood, which the brain senses as stress. Breathing then becomes a little faster and shallower, which means oxygen levels fall a little more. Everything Emily has mentioned - chest pain, the breathing, all points to anxiety, which is very real & very scary to witness in such a little child. Anxiety also has a tendency to be a ‘silent creeper’, you don’t need to be an outwardly ‘anxious’ person to have that fight or flight response. It may have been the worry that she wasn’t with mummy first thing at the hospital, since it didn’t happen first time around, perhaps the build up to waiting for Emily’s arrival, taking her medication, the change over, & just the overall worry of going through it all just built up. I’m glad she’s doing much better though.
How dare that nurse say that to you I would do something about her you don't know what that nurse has written in Wyn's notes. I'm sorry your going through so much and nurses like that make your job way harder than it has to be.
I hate that they're thinking it's in her head! That one person said that it's normal for the second time sooo??? I hate that with some nurses/doctor's if it don't fit symptoms of something just right then it's in the patients head 🙄
I think Wyn had a panic attack, a couple years ago I was at the hospital getting blood drawn next thing I know. I felt nauseous, very dizzy and incredibly hot.
I would need more questions answered before anymore of this drug is given..2x poor kid has reacted. Its real forsure..she is 7yrs old. .she has NO reason to make it up..how many more treatments? Where is her doc that has prescribed this? Poor you to deal with this...
I am so sorry doctors can be jerks. A child like that can not make something like this up. Yes she can have a reaction at any time during and after the med. Doctors are dumb I have even had med reactions the following day. She may need another med if this happens again.
I am a RN & think you are right it doesn`t sound like it was psychosomatic to me. I think slowing it down was good & the benadryl & prednisone was good to. Just because they have medical or nursing degrees does not always make them right. People reactate differently to medication. You did a great job advocating for your daughter. Don't let it get you down.
Retired nurse here and I agree. The lack of rash but with other allergy symptoms including drop in O2 seems more likely an allergy.
Nurses and doctors make mistakes, too. I believe they made a mistake, and it was a real physical reaction, not psychosomatic. Wyn has such a good attitude, and didn’t seem like she was particularly anxious until she felt the symptoms. It definitely was not your influence or overreaction.
You keep being you,!! Keep protecting your kids and keep speaking up when something makes no sense or you have questions. Stay strong 💪
You know your daughter better than anyone so don't let that nurse or the doctor or anyone else tell you that it was psychosomatic they may be medical professionals but you are a professional at being Wyns mother knowing her and your other children as well ! And like you always say to us on every video " you are wonderful " !
Prayers for your whole family, especially Miss Wynn as she goes thru her infusions!!
❤🙏❤🙏😘
Hi there - I’m a special education teacher (not a nurse)
However: In my line of work, I see moms, dads, caregivers, etcetera as the experts of their children. They are a wealth of knowledge and provide amazing insight that helps me better support and understand them. I’m so sorry you were not validated and respected. Even if they felt like that, they should have kept it to themselves. That fosters anger (understandably!) and erodes the parent’s/caregivers’ trust, breaking down the lines of communication, which ultimately negatively impacts the child. Keep advocating for your children and being the AMAZING mom you are!!
Good luck at the race today
A few years ago I had a bad reaction to anesthesia my entire body was in voluntary shaking on/ off. I was in my 50”s. A nurse told me to stop shaking & told my mom that I was faking. Unbelievable especially for a pediatric nurse to treat anybody that way. I’m so sorry you had to go through that. You guys will be in my prayers.
I'm so sorry they put you & your Mom through that. Did you make a complaint? I totally would have & you would have been totally justified. To be totally honest, it shocks me that doctors & nurses in the US get away with all sorts of stuff, including that, which would never be tolerated here in the UK. If a doctor or nurse did that here, it would trigger an internal investigation & if the press picked up on it, it would go national! But I've heard of too many nurses & doctors getting away with all sorts over in the US.
I believe you Emily. I would feel exactly the same way!
I hope Wyn feels better soon. Glad they stopped and restarted.
I’m so sorry this happened to both of you, she definitely had a reaction 100%! I’d agree it needs to be slower and you are a awesome mom and know your child very well, the doctors and nurses need to listen better. You definitely have reasons to worry, praying for you all,so tough on you all.
One of children is severely disabled and I had a certain amount of medical personnel minimizing things I reported. I was an involved and knowledgeable mother and of course I would get emotional at times, but I was never rude to anyone, just firm at times when needed.
Stay a strong advocate, Emily.
I am so sorry this happened . I would have been upset as well . I, myself , had a reaction to a med that was injected . It caused my heart rate to go sky high and yes … anxiety followed . I think Wyn did amazingly well for what she went through .
My prayers are with you!
Prayers for All of you.....That nurse should Never have made you feel bad for caring about your child and wanting what is Best for her....No excuse for that attitude from anyone but most of all the professionals who are suppose to be there to help you....
Well, that'd scare anyone!! Seems logical to me that her reaction could be simply from the speed the medicine was given. Hope she has no other reactions and that the infusion accomplishes all the good it can. Sending you hugs and love. You're doing a great job, Mom! So sorry for the treatment you received -- I'm been treated the same way -- so frustrating and unnecessary!
Thank goodness Wyn is ok that sweet girl is so brave!
5:09 That made it so tense part of this video, so unexpected and a proper dramatic way to Wyn's upsetting pains
That is terrible what that nurse said to you about making something up! That was out of line. Just the fact that you were willing to continue at a slower rate instead of stopping completely showed that you are level headed! They also contradicted themselves by saying it happens often and then later that it’s rare? So is it common or is it not? Praying the next time is without an issue. Special needs parenting is not for the faint of heart.
Definitely talk to the Dr. Children don't make up pain like this
Praying for her! How is she doing now?❤️🙏💕🙏
That definitely sounds like a reaction. Poor WYN. After dance Posey smiled and she looked just like Sawyer.
Prayers going up for wyn.
So frustrating, I had the same experience with my son when he was first experiencing symptoms when he was a child. I think there's a feeling that mothers are 'over emotional' about their children. Its as if their 1st response is to not believe us. So patronising. Well done for keeping your cool. X
I hate when doctors and nurses don’t listen to moms and treated us like if we are just overreacting. I believe you and go with your gut feeling always and advocate for her!🙏🏻
That was a reaction!!!!! Poor Wyn 💗💜
She is a warrior!!! Praying for her !
I'm so very sorry sweetie. Lots and lots of prayers for babygirl and mama. You are doing the right thing about her health. You know what you seen and heard from your child. Keep making them doctors and nurses understand. God bless.
I know Munchhausen‘s Syndrome by proxy is VERY real. I do not work in the medical field but I’m around it a lot and to my understanding they have to be aware that some parents make their kids sick on purpose or exaggerate what’s happening to them for a multitude of reasons. It’s terrible that you are having to go through this. Keep advocating for your babies, we know you’re telling the truth. ❤️
Hope wyn feels better soon
Girl you were so strong with how you handled that situation with the nurse, like I would’ve flipped! As a disabled person with many health issues I’m often in the hospital myself where I’ve had to deal with nurses not believing me during times of distress which is something absolutely heartbreaking to go through, I mean newsflash complications can/do happen which is why so many things require monitoring by medical professionals in the first place! Personally I completely believe what happened to Wyn really happened especially since she wasn’t anxious prior. Not only that but with her oxygen dropping so low it’s technically considered critical, and she’s only 7 like come the f on people! It’s stupid stuff like this that makes advocating for your children necessary in the first place!!! So please keep advocating for your babies no matter what just like my Nana advocates for me it really helps. Also if I were you I’d bring all of this up at her next CRMO clinic before they try labeling her as a hypochondriac, and start trying to deny her treatment or preventative medication all because of one stupid nurse who wasn’t even present until things were finally improving. Ugh I am so mad for you guys, seriously please consider reporting that nurse as not only do you not deserve how you were treated as the parent, but Wyn most certainly does not deserve being treated how she was as not only the patient but also as the innocent child in all of this!!! 🤬😡🥺…
How scary that had to have been for you both I'm so glad she is ok ❤
Doctors are supposed to keep calm when things go bad so that could definitely be part of it.
I cant even imagine, I would have been the same way You could see it in your eyes how scared you were without trying to show fear to her. Poor girl, im sure it was real hopefully slower will work out better!
Bless y'alls heart and I will pray this does not happen again. Wyn is not old enough to know that you can have psychosomatic symptoms. It is real people! doctors! nurses! I have been dealing with lung cancer ... It was found last November and treatment started in Dec. I started chemo and radiation at the same time ...daily radiation for a total of 34 and a total of 7 - 4 hour long chemo treatments. My first day of chemo the lady sitting next to me in the infusion room had been having chemo for about 45 minutes and (I was just hooked up to my treatment) and like Wyn....the woman started with chest pain, labored breathing...and panic set in...I was scared!!! the nurses were scurrying around and the dr came in....they stopped her treatment for the day and she went home. I had tests after all my treatment and the tumor was gone, but now I have a years worth of twice monthly immunotherapy infusions ending this next May. It is not fun, people have reactions to things and I have been really blessed that so far I have been ok without a lot of "crap" except an infection that took 3 rounds of antibiotics to get rid of. I really hope that she will be okay next time and the next time and all the ones after that Take good care, love you guys
Emily, I get what you're saying. When my daughter was 2 she had several ear infections. I went to a doctor who questioned me as to why my daughter was always getting ear infections; as if it was my fault. 😡😡🤬
Sounds exactly like what happened to my reaction to my infusions for psoriatic arthritis. From than on before the infusion I get benadryl and steroids. Never had anything again
That was dead wrong for them to undermine you. I don’t like that with the medical field . How dare them . They are being judgmental and they do the same thing with mental illnesses. Things need to change . I’m so happy she’s ok and I know this was so hard on you. God Bless you and your family !!! You’re such a good Mom 💪🏻❣️🌿❣️🌿❣️🌿❣️
I hope this wasn't an allergic reaction because that has implications that will make treatment more difficult. However, it really sounds like an allergic reaction and allergic reactions aren't always immediate. I have a peanut allergy that developed in adulthood and was walking in the store when I passed a bag of peanut butter snacks for children that had popped open. I thought NOTHING of it. About twenty to forty minutes later, I started feeling nauseous and pain in my stomach. I took Benadryl and about thirty minutes later started to feel better.
I'm sorry you are having to go through all of the stereotypes doctors and nurses give families that spend a lot of time in the hospital. Keep advocating and remember that you know your children's behavior the best!
Would suggest taking a video if she has any future episodes once you know it is safe to and Wyn is in the hands of doctors and nurses. This is always the best way to show doctors what is going on but especially the best way if the doctor is expressing doubt about what you’re sure you saw.
Health scientist here, with training in child development. I agree that this was a genuine reaction. It's possible to have an allergic reaction to something hours after coming into contact with it. I would definitely predose with benadryl & possibly increase the predose of steroids, as well as having the infusion go in slower next time. Just like you, there are people who metabolise meds quicker & being mother & daughter, it's entirely likely that's what happened with Wynn. Some doctors need to listen to parents more, especially when the stats back things up as you say. Children who are that young are incapable of faking something like that & not a single person can fake their oxygen dropping to 80%. I would have the hospital send the stats over to Wynn's doctor & insist they look into this. You should also make a complaint about how they treated you as Wynn's mother. That's not OK. They would never get away with treating someone like that here in the UK, they would get into a whole heap of trouble.
I understand the thinking of the doctors about anxiety inducing symptoms. I know for myself when I’m hyper aware about a symptom or situation you can see something for more than it is. However, it being an an hour and half in and her second transfusion makes me believe that it’s medicine related. Anxiety can for sure heighten the symptoms but it doesn’t mean that it’s not real.
Bless you and your family 💜👏🏼💯🇨🇦
Hi I hope she feel better soon
I love watching your UA-cam channel
That was scary! Hope it won't happen again. Wyn... you got it girl 💟👍💟
love ur top. where did u get it? target? wyn is great with expressing her feeling. remember, drs are not always right. u know ur child at the end of the day
My daughter gets monthly infusions and they always give the Benadryl and steroid before every infusion!
I actually have a weird allergic reaction. I don’t get hives but my body turns flush and chest tightness. You did the right thing!!!
As a person with cerebral palsy and have constant weird reactions just say that Nure was having a bad day. I know how hard it is be having the reaction and be told you are making it up. As a guardian of your child you are aloud to request a different Nure if you are not happy with how they are treating your daughter or you. Obviously she was having a issue as the oxygen machine would not be in the 80s and your daughter was heavy breathing.
@@michellesmith2040 Exactly! I was going to point the O2 monitor out as well!
Will keep Wyn in my prayers, you as well. Hope you recover yourself.
Will keep Wyn's next infusion in my prayers as well, going slower, is maybe a better way to go, everyone's body is different, reacts differently. Wyn, you where a star, you did so well and where so brave.
It was a reaction but sounds like a bad panic attach
I will definitely keep her in my prayers
Thats terrible they made you feel that way Emily. I would make a complaint against that nurse if it was me. I know a few years ago there was a terrible case at Colarado children's hospital where a little girl died after her mum made her go through hundreds of unnecessary procedures and was making it all up due to Munchausen by proxy. The hospital came out really badly for allowing all this to happen so I'm guessing all the staff are hyper aware now (to the extreme). Regardless of this, that nurse was way out of line and it sounds like something very real happened to Wyn. Reactions to medication are not text book and children can react so differently. Lets hope you both have a much more positive experience next time 💗 Xx
I glad that Wynn is okay
You are the best mom, keep being g stro g and U. I believe in U.
I had CRMO a couple years ago too!
My aunt has something similar called MS. It’s painful for sure.
I have to get iron transfusion because my liver doesn’t work well
I'm a person that's very chemically sensitive and have has reactions to medications that aren't listed as side effects. When I tell my doctor what kind of reaction I'm having and what med I started Taking he says it's not a side effect of that med but stop taking it. If it goes away then it's a side effect for you. I'm saddened at the things they said to you. You are 100 percent right about asking for meds before she starts the next infusion a d if it were my child I would let them know I want it administered at the slower pace. Her body seemed to handle it better that way along with the meds she was given and next time they will just be given beforehand. Just a suggestion.
Just because they say it’s psychosomatic and doesn’t mean it really happened the symptoms are real they just don’t know what happened. Not a doctor but I would say it’s probably a delayed allergic reaction people don’t always have allergic reactions in the same way. I’ve heard of some people eating food and having a reaction three days later. I’m glad everything was taken care of and that she’s doing OK hopefully the next infusion goes well and she doesn’t freak out about it because of this event.
Sounds sooo scary. I’m sorry.
With the treatments infusion sometimes the kind of food can react to food and the staroi lds always works that kind infusions
She could not make up the low oxygen level.
U can't fake oxygen drop. I would get away from those people
Doctors say this isn't a reaction, seriously 😐
Perhaps she had a panic/anxiety attack? Those are not psychosomatic...they are very real and can cause every single symptom she had. I'm so glad she is better and recovered. Hang in there.
Sounds like anxiety to me
I agree I have panic attacks and my son had his 1st one at age 5.
I don't think so. Panic attacks don't make your oxygen drop to the 80s.
@@barbararose88 Actually it can. Momentary stress causes the body to tense and you begin to breathe a little more shallowly. A shallow breath lowers oxygen levels in the blood, which the brain senses as stress. Breathing then becomes a little faster and shallower, which means oxygen levels fall a little more.
Everything Emily has mentioned - chest pain, the breathing, all points to anxiety, which is very real & very scary to witness in such a little child. Anxiety also has a tendency to be a ‘silent creeper’, you don’t need to be an outwardly ‘anxious’ person to have that fight or flight response.
It may have been the worry that she wasn’t with mummy first thing at the hospital, since it didn’t happen first time around, perhaps the build up to waiting for Emily’s arrival, taking her medication, the change over, & just the overall worry of going through it all just built up.
I’m glad she’s doing much better though.
How dare that nurse say that to you I would do something about her you don't know what that nurse has written in Wyn's notes. I'm sorry your going through so much and nurses like that make your job way harder than it has to be.
Exactly. Make sure you get a copy of the notes for your records and have them correct if needed.
Her ashphogus is her throat. My mom is a nurse, so I know that she had anaphylaxis, like not bad, though
I hate that they're thinking it's in her head! That one person said that it's normal for the second time sooo??? I hate that with some nurses/doctor's if it don't fit symptoms of something just right then it's in the patients head 🙄
Ththey should lessen to you and here and the little girls look cute
I think Wyn had a panic attack, a couple years ago I was at the hospital getting blood drawn next thing I know. I felt nauseous, very dizzy and incredibly hot.
You are not wrong, I am a doctor and isnpossible about metabolize the meds.
I suggest don't t give sugar products day of infusions, see if that makes a difference. Just a thought.
I would need more questions answered before anymore of this drug is given..2x poor kid has reacted. Its real forsure..she is 7yrs old. .she has NO reason to make it up..how many more treatments? Where is her doc that has prescribed this? Poor you to deal with this...
Wow! They were so disrespectful.
I'm sure it was real shes too young 4 anxiety attacks!
thise a panic a tack
Praying for wyn ! Sounds like a possible panic attack
I am so sorry doctors can be jerks. A child like that can not make something like this up. Yes she can have a reaction at any time during and after the med. Doctors are dumb I have even had med reactions the following day. She may need another med if this happens again.
Absolute the probleme in this family is food. Pizza artificial juice for autoinmune disease. Is the wrong way.
Amber
Maybe the food that she eat some times can react to different kind of foods.
That's awful what the nurse said. You can't make up low oxygen levels and sudden breathing like that.
Bet you both will be nervous for the next one.