The Teenager Who Slept For 10 Days: Kleine Levin Syndrome (KLS) | Medical Documentary | Reel Truth
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- Опубліковано 26 сер 2024
- Jessica Saccone has been a healthy, happy teenager until she becomes unusually tired and sleeps for 10 straight days. She is taken to many doctors to find out the cause, including therapists, but they find nothing wrong with her. Eventually, though, a TV episode leads Jessica's parents to a doctor who finds out that she has Kleine-Levin syndrome (KLS). Edward Leigh has been a healthy, confident young man until he starts experiencing abdominal pain and diarrhoea. He also becomes nauseous, but his doctor thinks he simply has irritable bowel syndrome. To make matters worse, Edward soon experiences hemorrhaging from his rectum and even passes out. After being dismissed so much, he finally learns that he has stage 3 of colon cancer.
Every year, millions of Americans fall prey to real-life medical mysteries ailments that go undiagnosed or misdiagnosed for years. Their lives are thrown into turmoil as medical professionals struggle to understand their baffling conditions. Mystery diagnosis tells their stories. Through interviews and dramatic recreations, each medical mystery is recounted in vivid detail. Symptoms emerge, specialists are called in, but still the daily struggle continues. And then one day, because of a patients relentless pursuit of an accurate diagnosis, or a forward thinking doctor, the problem is solved and a true diagnosis given.
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So incredibly frustrating and insulting when doctors, after not finding a cause, state that it must be psychological. This happens far more often than most people realize.
yes, ever since i was diagnosed with anxiety my doctors dont take me seriously, they just say its my anxiety. i was getting so angry at myself because i thought i was imagining this pain i had because thats what the doctors said but after further testing they found something but then basically said ‘yeah this is probably whats causing your pain but you are still imagining it because of your anxiety’ 🤨
This may sound wrong to say, but it's a piety not a lot more people suffer from this disease. If there were more sufferers pharmaceutical industry would see it as an opportunity to make money and be all over finding a cure. I know it's sickening but they aren't putting in any real money in to research because they don't see a profit in it.
Doctors only follow the medical script and if you aren't on it you can fck off
@@ellajb5886 same with me .i just do not get taken seriously .everything is put down to my anxiety and depression .its got to the point i hate going to doctors or hospital..I am sure they think im a hypochondriac and i feel and understand what all these people on this program go through..some doctors are a joke .honestly don't know how they are doctors
Yeah, I have anxiety and apparently that’s just the cause of everything yet after going to so many different doctors we found out that I have coeliac disease and other undiagnosed things. I’m not crazy and I’m not imagining my pain because I have anxiety. This happens way too often, my case isn’t the most serious but it can lead to someone with a more serious illness losing their life
The second case in which Eddie had colon cancer was ridiculous. I have had no medical training and my first thought was, have they tested for bowel or colon cancer. His first doctor did not give him enough information about the tests and should not have kept sending him away so hastily, especially after the amount of blood loss he experienced. It would be like someone severing the radial artery and a doctor just saying, "you should be fine in a couple of days, just stay home and rest"
Not really. Most patients who are young present with IBS or Crohns. Often they do colonoscopy and take a biopsy to confirm diagnosis. He had all of that done. Colon cancer at young age is rare
@@gosiakulicka4156 I understand where you are coming from but there is a difference between rare and impossible. My uncle was a doctor and he always said that listening to your patient is more important than any physical symptoms. If someone is saying that there is something more seriously wrong and that they are worried then you should investigate further. Hope that made sense
@@gosiakulicka4156 He didn't get a colonoscopy the first time, they literally say that in the documentary. I guarantee you that had he gotten a colonoscopy that first time, he would've had his diagnosis years before and probably wouldn't have needed chemotherapy, because he wasn't in stage 4 yet.
I honestly wondered why they didn't start with testing for Coeliac disease (or any blood test tbh). that could've shown elevated CRP or something. Not very specific, but very clear on the: here is something amiss scale. I hope blood tests for colon cancer will appear quickly (they were actually developing specific ones about 6 years ago, maybe they exist now, no clue, but I'm curious to know).
The first doctor should be sued! Telling a patient that hemorrhoids can cause significant bleeding is such a cop-out. The patient would definitely NOT pass out and wake up covered in blood. Checking to see whether he had hemorrhoids is so easy and would have been picked up with the sigmoidoscopy in any case. Eddie's cancer could have and SHOULD have been picked up much sooner. They even say that colon cancer is very common in the USA, so why did the first doctor not even think of checking for that???
You do realize that if Eddie's medical insurance didn't change, he'd probably be dead now.
Omw thats alot of pugs
I love mystery Diagnosis. The second case was unnecessarily mysterious. The first doctor should have been more thorough with examination. Especially after all that blood loss and the combination of symptoms. And colon cancer is not as rare as other conditions. Although it may be costly, sometimes we need a second and even third opinion.
Doctors: “20-something-year-olds are notorious for thinking they’re invincible.”
Also doctors: “20-something-year-olds are young and fit - they don’t get serious diseases like colon cancer!”
Eddie should have been tested for colon cancer immediately. It is the first thing that comes to mind when people have sudden bowel problems with no history.
I am so addicted to this kind of things. Medical documentary videos
Irene Tivz me too hahahah
Me too. I'm done with criminal documentaries. Now I'm into medical documentaries 😅
@@wendydumandan9936 where did you watch criminal documentary?
My 16 year old daughter has KLS and has been sleeping for over a year now every single day from between 18 to 22 hours a day. Such a debilitating disease, seals your life. No cure, no help just understanding and continually waiitng to find a cure
I understand, I was diagnosed with KLS around the year 2014. I wish you and your daughter all the best. x
Has she gotten better?
Yay! Another Mystery Diagnosis episode!! Please upload MD eps more often
Yes. I want more mystery diagnoses episodes uploaded as well
I love Mystery Diagnosis ... Please keep them coming! 😎
I love this show
Finally another mystery diagnosis episode. I love this programme
Moral of this story: GPs in the US are either under-qualified or keep patients hanging for the insurance benefits.
Most of the people are under-qualified in the US. My son was an exchange-student there for 6 months at the age of 16, he didn't have to study anything but a little American history and had the best results (English is not his native language and still...), meanwhile the 'brightest student' came to live with us and literally had to study about 5-6 hours after school (with my help) just to keep up with the lowest levels of math, science etc. Shocking.
Under qualified as not knowing every single diagnosis, then yes. They're GP's what can they do? They treat whatever is common and let the specialists do the rest. Have you ever seen a GP coming forward with the right diagnosis on this show? It's always given by an obscure doctor in a university setting who has specialized in a certain area for years.
This happens everywhere though.
V Str, especially in the US, where there’s insurance money to be made!
This is Kanada, what are you talking about?
Eddie is made of some tough stuff! I mean when any normal person find themselves in the bathroom floor passed out surrounded with blood, they will be a helpless, blubbering, baby yet he was so considerate HE CLEANED UP AFTER. Like what?!?! How selfless is this person? I mean he comforted everyone when he was the one at risk of dying. I mean how rare of a treasure is this man!!
Your standards are still absurdly high
What happened to Eddie happened to my aunt. But because she had hypothyroidism, doctors never tested her for anemia. When they found the tumor she was already in stage 4. Sadly she died. This story hit close to home
Why didn't they test her for anemia just because her thyroid was causing problems? What does the one have to do with the other?
Parents on Mystery Diagnosis: It was the worst day of our lives...
Also parents on Mystery Diagnosis: 👁👃 👁
this level of unskillfulness as Eddie's first doctor is outrageous. My aunt had a similar situation. She went to 3 doctors within one year and no one even thought about cancer. Afterwards she was diagnosed in Moscow on stage 3 colon cancer. She died last year. This is a price of mistakes in medicine.
I was diagnosed with Kleine-Levin Syndrome in around 2014. Its not fun at all - you lose days and get very confused. Was scary for my family too. During one of my episodes, they rushed me to hospital thinking i was really ill, that i could have had viral menigitis agian and that. My episodes only happen about twice a year though, so at least thats somthing.
My daughter showed me this video as she sleeps for long periods as well and is also very fatigued and none response at times. Thank you for this will have to speak to her doctors about running test.
I've been recently diagnosed with a completely similar situation as this, any progress with your daughter? All my prays with you🙏🏼
The first case is so interesting! I have narcolepsy so i could sleep all day everyday, only thing that keeps me awake is stimulants. Then you get flare ups where even stimulants don’t help and I sleep for days only getting upto to go to the bathroom
“Eddie, Beth and their family of pugs”
im dying
best part of the documentary
lol
I wonder how this young lady and her family are going now? I hope they are well!
Doctors can save lives but they can also be absolute murders. Being that negligent almost killed this man, that’s outrageous!!!
It's very weird and disappointing that doctors don't know the diagnosis of some obvious cases.
you have no idea what she truly has, but you still put her on antidepressant medication... nice... Of course, pharmaceutical companies must survive, too...
Same was with me. I was diagnosed with CFS/ME in February, but before the doctors found out what was wrong with me I was put on antidepressant medication.... they ment i was super depressed and stuff -__- (This is in Norway btw)
Teenagers should never get antidepressants. Their brain is still under development at they often get worse from it. Oh the pills....
@@akehapkap6143 not always I have autisum they helped me as a teen
I was given a anti depressant that got me high. I took 1 pill and I was loose my control I looked crazy I was terrified thought that I we're gonna die I've lost trust in doctors since that incident😿. Doctor said it was a mistake. Can anybody tell me how I can trust doctors again?
Well in this case it was an reasonable assumption because there's no test for her condition. All her tests came back normal for a physical condition and the fatigue and sleeping a lot IS a symptom of depression.
Yay More Mystery diagnosis a new medical condition I've learnt thank you Reel truth Documentaries :)
Yay! Another episode. Finally!!
So the mystery diagnosis was one of the most common cancers? 🤔 Two minutes into the story of the colon cancer guy, I thought ”sounds like colon cancer” but then I brushed it off thinking the show is about mystery diagnosis. 🤣 Glad he’s ok, but it is really strange that it took so long to diagnose him. He had the classic symptoms. My mom had colon cancer (she’s ok now) and was also told the bleeding was probably just hemorroids, so it took a few extra months to get the correct diagnosis, but two years?? That could have killed him.
E C my grandfather passed away from colon cancer unfortunately, also due to a late diagnosis. At his funeral we asked for donations to go towards a Colon Cancer Research and Support Charity.
His treatment was going well and my nan had the house set up for him to come home and everything (guide rails on the stairs, shower chair etc). However he took a sudden turn for the worse out of nowhere, and then ended up in the ICU. He most likely would have passed away regardless, however he died very quickly due to a mistake (it was a teaching hospital). His lung got pierced when they tried to help with his breathing. His body was already weak, so he went into shock and had a heart attack. He thankfully passed very quickly, and I’m hoping he wasn’t in any pain.
The odds of his survival at that stage was low, but we would never have found out if he could have recovered, thanks to that horrible mistake.
I was young when it happened, but I remember my mother and nanna going in to have a hearing about the mistake. I’m not sure if my family took legal action or not.
Poor Jessica, physicians could easily believe this "oversleeping" symptom disease, was obviously something to do with a nervous breakdown or psychiatric issues instead of neuropediatric matter. Psychiatrical remedies are very harmful and inappropriate/inefficient, to cure her. I know, in Edward's situation, some people would feel so bad and embarrassed to complain about their very painful and alarming symptoms, that they'd keep on suffering in silence. But as usual with illness, like cancer, it's like a kind of taboo, when it concerns the intimate anatomy...The sooner it is treated, the better the prognostic is generally.
I had stage 3 colon cancer. I also had tests that didn’t show anything. So for months I was untreated and in pain. It was one night I was rushed to hospital with severe pain and one test showed I was anemic but all other tests were negative. Finally I was referred to a gastroenterologist who did the colonoscopy and that is where they found the carcinoma. It’s been 10 years now since the major surgery and I’m fine.
I am happy for you
Im glad you feel better now, hope you have a happy and healthy life from now on :)
I’ve felt that kind of tired in my life, including the child-like affect but not for anywhere near as long as 10 days, in my case it was CFS
I was depressed(suicidal) 3yr ago I was given a anti depressant pill by a doctor but it got me high after 1 pill I was terrified felt like I were gonna die. Doctor said it was a mistake . I've lost complete trust in doctors😿I want to know how can I trust doctors again?
It happened to me too. I get usually high with "normal dosis" of antidepressants,antipsychotics and so on. Is hard to trust the doctors again,i get you. One psychiatrist actually had to sit with me and be patient with me before she was able for me to trust the medicines and the doctors again. I hope you are feeling better with the depression and your symptoms, i know how horrible it can be :(
@@Vantas_Black I got manic Deppression and other disorders it's a struggle❤
@@LJONeill1997 I also have it :) with OCD, anxiety and so on
Eyes eyes. One single eye. Eyes. And look! Another pair of eyes 😂
How about firing your doctor, who thinks that losing enough blood from hemorrhoids to paint your house with, is normal and hiring a doctor who didn't get their medical license from behind the local Walmart.
lol
I m also chocked that they missed the colon cancer, so lethal! I hope he made it...
Why can’t I sleep for 10 days?
The same thing happened to my teenage daughter when she was about 15 and it turned out to be Glandular Fever.
Keep uploading these episodes!
It's so irresponsible to make people think red meat is dangerous. The 'meat is bad' assumption is based on extremely dubious info and statistical manipulation. In fact most people aren't eating enough red meat and are on the verge of being deficient in B vitamins, especially women of reproductive age who need to keep their iron stores up. Increasing my red meat consumption and lowering my carbohydrate intake has benefitted me in so many ways it's ridiculous and I'm angry that my Dr never mentioned it.
I find jessica extremely beautiful !
Ok, great
WE 👏 NEED 👏 MORE 👏 BLINKS
I got KLS too when I was teenager. I grew out of it.
So…we know that during teenage years, teenagers sleep longer, later, and are harder to rouse than either young children or adults, and we know this is hormonal.
If hormones were the issue in Klein-Levin that would likely show up in blood tests. It’s more likely that there are some receptors, or signalling cascades, that are activated in a certain way unique to the teenage/puberty growth spurt to trigger this circadian change. I expect that either as an inherited mutation or as a de novo one, people with Klein-Levin have a defective receptor and/or cascade in this highly specific way. Thus the symptoms begin as that part of puberty sets in, and fade away as it ends.
I also think mainstream society disrespects the unique and genuine physiology, and the mental/emotional characteristics, of the teenage years a lot. Adults place a huge strain on teenagers in a type of ‘tough love’ cultural tradition, in terms of school, homework, conduct expectations, and above all, ability to understand the importance of, comply with,
work towards, and get, grades and placements that affect lifelong learning and work trajectories.
Teens are NOT adults. They are post-childhood but pre-adulthood. They shouldn’t be treated like adults in terms of expectations, when it comes to things like expected independence and maturity of conduct, or when it comes to work/concentration/stress management/mental health expectations. If they are inappropriately equated with adults in these ways, it’s inevitable that underlying conditions will be especially aggravated in some at that life stage, due to the physiological insult such inappropriate frameworks of treatment and expectation constitute on the teenage body and brain.
In Africa, if a teen was to sleep so much like that, the first thing done is a pregnancy test. People need to be informed about these medical issues
I guess they did it when they took the blood. As far as i know is a standard test . Yet, in Africa is the sleep disease. So i guess if someone would sleep that much would be tested for it
True my beloved Africa
Africa is a continent with more than 50 countries with HUGE demographics and social differences, where in Africa?!
That second case made me feel sick 😫
Beth's accent is odd. Where do you think she comes from?
I think she’s tongue tied and has an accent on top of it.
There's something different about the narrators voice / tone than normal
I was the first case in Brazil, to this day 20 years later I have symptoms, no one understands me, it's difficult for the doctor to get the medicine right
a rule of thumb if you are not getting an definite answer to your medical problems with the first doctor it is time to go look for someone else for second and third opinion. in the second video he should really sue and be compensated misdiagnosing cancer is very serious. that how I lost my love ones.
This is insane. Happy that she's fine now :)
@Shreeya JOSHI she may be but some of us aren't. Hope at least is here
Taking 6 pills of ritalin a day during an episode is defintely not fine, but i hope she will outgrow it!
Please make all episodes available in the states
poor girl
eddie should sue!
It was a blessing the 2nd patient changed providers because he didn’t he literally be dead
”For these unlucky patients, diagnosis is a mystery”.. yet, every episode ends with people being diagnosed and pretty much ok. So... neither unlucky nor a undiagnosed. 🤔🤣 Great series though
Just the same with my friend, now shes sleeping already 5 days. I'm just waiting until she can wakes up. Last episodes she having amnesia. But I'm hoping she can remember everything after she wakes up. This is so hard to their life. I hope they can find ways so they will not sleep longer like this. I'm also finding watching everything so possible there's way out.
Wow that mom seems bitter about that incredibly expensive plane ticket home from Canada. You should of drive and picked her up if you was going to bear a grudge
😂😂😂😂
😂😂😂😂
1,2, Freddy’s comin’ for you” 😂
This is irrelevant but I have to say that Eddie’s wife is very beautiful for her age
I came to the comments to see if anyone said this already. She is so beautiful.
I love her accent, but I can't really place it
I know
@@TrielaRhyfel I might be wrong but it sounds like a Boston accent.
I think she is from Brazil
Is it me or is Eddie wearing makeup 💄
If I have to sleep 10-12hours per night that KLS is very scary
I'm so scared I feel so tired lately and just want to sleep
The unfortunate thing in the medical world when the doctors have no explanation why you are feel ill. They use the all too common "psychological and mental illness ' this route is extremely dangerous because they can be harbouring a potential illness left undiagnosed due to a misdiagnosed of mental illness. I have been there and now unable have children I am paying for the mistakes the doctors made.
I have syndrome Gilbert and when I was in pain doctors told to my parents I was fine and I was just looking for attention
"I don't eat red meat." How does that prove that you are healthy? What sort of evidence is that?
Lol
lol
I know why other people having Kleine Levin Syndrome, when anxiety attacks so their mind triggered. Think about it what makes your anxiety start so you can avoid it. My Friend is like that sleeping many days. I know she don't like seeing some people cause of being too shy and she start to feeling dizzy and her body become weak. That's why I told her make sure not feeling so sad and try to calm yourself all the time.
I got very tired when after seeing the first one
I think i have this episode on the first case..
Second case 22:17
Editing was disastrous
what? Colonoscopy is the FIRST test you do in Italy when you have this kind of problems!!
Mysterious medical problem need's serious test :)
Eddie is a great heroe!😊😊
The lady accent strong man........ curious of which accent.
Yes you are right and it sounds like Scottish maybe Irish but not sure.
English isn't her first language
100% not from anywhere in the UK 😂
The second guy's doctor is a freaking clown. Guy passed out covered in blood from head to toe. "well, haemorrhoids can cause some bleeding". Can't believe that guy is a licensed doctor.
I never even new just oversleeping could be bad?📱
Dietary habits are important
Antidepressants? How ridiculous foctors can get ? 😮
What a shame! here in the Philippines, if you‘ll sum up all the symptoms that eddie had , or even just for a recurrent diarrhea, the GPs would probably suggest for a colonoscopy! Lol! I thought GPs in the US are way better than here..i’ve been lied to my whole life.. in fact, colon cancer is not a rare d’se tbh
If he keeps going to the toilet and have stomach pains why didn't he go to the doctors earlier
He did.
He did.
im sorry,but am I the only one that thinks that the girls mother is the same with Ellen DeGeneres?
back in days with longer hair of course :D
I thought these diagnoses were meant to be rare and unheard of? Colon cancer? One of the most common in the world? I kept thinking oh it's gunna be something else, what is it
I guess the rare part is that the patient and his wife never heard of colonoscopy or how it´s done... like, everybody knows, especially if you´re having problems in the intestines, the least you can do is read about the symptoms and exams. So, it´s rare to have people so clueless... and so were the doctors!
As a patient for last 13 years and currently in the episode. I think researchers going on a wrong direction. They are treating patients for symtoms and not the cause. They treat for EDS . Cognitive. Mood swings. But none of them address the cause. Which is not wakefulness.. But waking up refreshed and rejuvenated.
It is the issue when we sleep and how the Nuerotramitter work in the brain and set your body and brain Perfect.. This is not happening in KLS. Please address this..
Jessica s problem is spiritual one.i can bet on that.if she only listens to fajr azaan during sleep she will wake up on her own.i know thru experience
I feel scared for her and I wish they found it soon why she sleeping for 10 days and I have never seen this before and they should of found the cancer much early and he would not have been in so much pain for a very long time
As someone who has piles u dont bleed that much so it done my head in them saying that when yes u bleed but not litres 😮😮
What is the accent of that lady Beth ???
21:20 Toxoplasmosis on Wikipedia 🐈🦠🤪😴?
I was on Ritalin too! But most I got was 30mg, 60mg is alot
Yes it is
I was on 60 at 15
They put ur dose off ur BMI
I take 60mg but I have narcolepsy . When your taking it to stay awake you need a lot more than someone taking it for adhd
Doesn't do bad shit=Gets Cancer
What a world
Wish I could hibernate!
In Australia this would not happen !!
Oh, how dramatic.....cancer instead of haemmhorides...dear doctors, what about inherited colon cancer...and my family is affected of this kind... none of my family members from the male side has become older than 49 years. All of them died of an aggressive and 100% deadly colon cancer....oh well...let's see what the future will bring....
What's Eddie's wife's accent?
German probably
@@UchihaOrnit I'm German, and no, that's definitely not a German accent. Can't place it either!
I thought it might be Dutch?
I suspect she doesn’t have an accent and it’s a heavy case of being tongue tied.
Another girl has crowns desese!
Nothing's psychological. All psychology is undiagnosed pathology. Look up, James Davis.
Does that woman in the second case, have a speech impediment, or some really heavy accent? If accent, what kind of? It's really bugging me now. :)
🤣🤣she is probably from Yugoslavia or something
@@josmclove4426tongue tied. I don't think there's anything else with her.
@@ranjittyagi9354 you reckon?
These doctors are so bad. In my country they do many many tests immediately. This is ridiculous. Glad I don't live in America.
Eddies' wife sounds like she may have a deafness problem...just a thought.
Rn
🖒
seh should drink energy drinks and coffee and some strong tea