I have Cystic Fibrosis

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  • Опубліковано 3 жов 2024
  • I have Cystic Fibrosis. A genetic chronic illness caused by an overproduction of thick, sticky, mucus. One of the biggest parts of having CF is how isolating it can be. Due to the risk of cross infection, people with Cystic Fibrosis can’t meet. The risk of passing on different bacteria to each other is why we have to keep apart - as an infection that may be pretty harmless to me, could be fatal for another. It really is cruel that the only people who truly understand what my life is like, I can never meet up with.
    This is why this video is so special. Just all being on screen together, knowing that we are supporting each other, telling our stories, & helping educate people on our illness. I’m so proud of everyone for being so honest & vulnerable - it shows real strength. It’s testament to how strong people with CF are, & I could not be prouder of everyone involved.
    Please like, comment & subscribe to help support me & my channel - you will also be helping to raise awareness for CF, see you all in the next one x
    People in this video:
    Harley - @_hjune
    Matilda - @matildaherbert
    Harry - @hazzaw20 @room18films
    Emma - @erb.cf
    Sophie - @sophjennings_
    Jodi - @jodicocker
    Mia - @miasham.cf
    Grace - @gracemegan_mua
    Phoebe - @phoebegoff
    Rachel - @monkeytoes56
    Leigha -@leighacode
    Sean - @_seanaspinall
    Izzy - @izzy.rich.cf
    Nicole - @nicoleadams91 @65rosesthebrand
    Jamie - @jamie_foxcf
    My stuff ✨
    Instagram - / gingerels
    Depop - www.depop.com/...
    Previous video - www.youtube.co....
    How can I help?
    Donate to the CF Trust - www.cysticfibr...
    Educate yourself - www.cysticfibr...
    I film using an iphone 8 plus
    I do not own any music used
    #cysticfibrosis #chronicillness #disabilityawareness

КОМЕНТАРІ • 25

  • @gingerels
    @gingerels  4 роки тому +6

    A massive thank you to everyone who took part once again, sending you so much love 💛
    Don’t forget to like & subscribe!!

  • @hazelmowle957
    @hazelmowle957 4 роки тому +1

    So very proud of you Elaina for making this. All you CF people are so special & amazing & brave for telling your stories

    • @gingerels
      @gingerels  4 роки тому +1

      Love you so much mumma ❤️

  • @miaalicia4399
    @miaalicia4399 4 роки тому +2

    Love it xx

  • @bearose4932
    @bearose4932 4 роки тому +2

    Really proud of u sweet x

  • @laurenschofield5309
    @laurenschofield5309 4 роки тому +2

    Loved watching this. In awe of all of your resilience and strength 💕

    • @gingerels
      @gingerels  4 роки тому +2

      Aw thank you so much Lauren ❤️

  • @marcusvictoria
    @marcusvictoria 4 роки тому +1

    What a brilliant video Elaina. You are all truly inspirational.

    • @gingerels
      @gingerels  4 роки тому +1

      Aw thank you so much!! X x

  • @marit2633
    @marit2633 4 роки тому +1

    came across your channel because of your comment on Isabella Demarko’s video. My little sister (13 y/o) also has cf and this video is amazing!

    • @gingerels
      @gingerels  4 роки тому +2

      oh mad no way! Aw thank you so much hope you she is doing well 🥰🥰

    • @marit2633
      @marit2633 3 роки тому +1

      @@gingerels she’s doing really well! She recently was taken into the hospital but before that, she didn’t for almost 6 years! We live in the Netherlands so healthcare is a bit different here and she also has the most common cf mutation so that really helps with having good medicines. I hope you’re doing well and just want to let you know that you are a really strong person! lots of love❤️💕

    • @gingerels
      @gingerels  3 роки тому +2

      @@marit2633 aw so pleased to hear that!! Oh wow that’s incredible good for her 🥰 yeah it is just luck of the draw which mutation you get, but having the most common one does for sure help w treatments etc - aw thank you so much, lots of love to you both, stay safe ❤️ x x

  • @hattywillmoth1432
    @hattywillmoth1432 4 роки тому +1

    Love this video!! So well put together, such a good idea, and so insightful! Well done!! ❤❤

    • @gingerels
      @gingerels  4 роки тому +2

      Thank you Hat hat!!! Hope uni is going well lots o love 🥰🥰💓

    • @hattywillmoth1432
      @hattywillmoth1432 4 роки тому +1

      @@gingerels thank you!! I hope it's going well for you toooo 💕💕

  • @dornazarei
    @dornazarei 3 роки тому +1

    Love you all warriors ♥♥♥♥♥🎈🎈🎈🎈🎈🎈🎈🥰🥰

  • @swaggydad1927
    @swaggydad1927 4 роки тому +2

    So proud of all of you. Matilda's mum and dad x

    • @gingerels
      @gingerels  4 роки тому +3

      Thank you so much!! Lots of love 🥰

  • @lilychandler6627
    @lilychandler6627 4 роки тому +2

    So insightful, thank you to everyone who bravely shared parts of their lives with us! Amazingly done Elaina x

    • @gingerels
      @gingerels  4 роки тому +2

      Aw thank you so much Lily!! 🥰 x x

  • @meganbuttle4080
    @meganbuttle4080 4 роки тому +1

    This was amazing!, you’ve done such a good job with this video, very inspiring ☺️x

    • @gingerels
      @gingerels  4 роки тому +2

      Aw thank you so much Megan!! I appreciate that 🥰💓 x