so I guess the answer to 'do all Cystic Fibrosis Patients think the same?' would be no, not really, but also yes sometimes we really do 🤣 I really hope you enjoyed today's video, if you have any questions please do comment them below! Don't forget to like & subscribe, & happy CF Month! 💛 x
@@ripbbl5053 ooo thanks! That’s a good one - for sure I think stereotypically in winter everyone must get worse right? coughs & colds season & all that I don’t know about you but I often get the more wheezier symptoms in summer with all the pollen! No time of year is safe 🥲😂
@@gingerels I seem a bit like a schizophrenic to people who don't know me very well, ha ha. The seasonal differences are so huge with me... After the summer, I am 'well' /happy/productive/useful to others (work, family, friends) for a few months and then as spring hits I am constantly ill/weak/tired/depressed/.....GRUMPY, ha ha ha! And because it's always the same months each year, ever since I was a little kid, I wondered if others also have whole 'off-season'?
@@gingerels For many years, I had REALLY really bad hayfever for about 7 months each year, but then I cut out wheat COMPLETELY out of my diet and the hayfever decreased by 95% WITHIN DAYS. Try it out =)
Thank you!!! Making vids like this is really important! Count me in on the next one, if you want one of the 'ancient' CFers in your video, ha ha. My story deffo has some tangents in it that are a bit different, - while still sharing bucket loads of the usual stuff... Thanks and God bless ♥️
Aw thanks so much for watching!!! yes omg that’d be great! phahah - honestly I think everyone has some wacky twists & turns & then exactly how you describe the ‘usual’ CF stuff 🤣 Take care hope you are well 💛
@@gingerels Seriously, thank you for making this video! I really needed that at the moment!!! I'm kind of in a new situation/environment and with new people around me, who don't understand anything about CF, much less of how much it impacts us all mentally!! They just think I 'have a bit of a cough', hahahahahaha, - yeaaah (aaarrrrrrrgh!!!) So it was really good to be reminded that it's not 'just me' 《《《HUGS》》》
Hello, I have CF and I heard you talk about Kaftrio, which have some side effects, but I was wondering if you had the option of Tricafta, which is a drug I take and is for me, with no side effects. Keep going! 💛
so I guess the answer to 'do all Cystic Fibrosis Patients think the same?' would be no, not really, but also yes sometimes we really do 🤣
I really hope you enjoyed today's video, if you have any questions please do comment them below!
Don't forget to like & subscribe, & happy CF Month! 💛 x
Here's a question suggestion for your next one: 'Do you experience seasonal differences in your level of health and if so when and what are they?'
@@ripbbl5053 ooo thanks! That’s a good one - for sure I think stereotypically in winter everyone must get worse right? coughs & colds season & all that
I don’t know about you but I often get the more wheezier symptoms in summer with all the pollen! No time of year is safe 🥲😂
@@gingerels
I seem a bit like a schizophrenic to people who don't know me very well, ha ha. The seasonal differences are so huge with me... After the summer, I am 'well' /happy/productive/useful to others (work, family, friends) for a few months and then as spring hits I am constantly ill/weak/tired/depressed/.....GRUMPY, ha ha ha!
And because it's always the same months each year, ever since I was a little kid, I wondered if others also have whole 'off-season'?
@@gingerels
For many years, I had REALLY really bad hayfever for about 7 months each year, but then I cut out wheat COMPLETELY out of my diet and the hayfever decreased by 95% WITHIN DAYS.
Try it out =)
Another ace video, ..personal and informative perspective.. 👏👏💗💖🌟🌟🌟🌟
Thank you!!!
Making vids like this is really important!
Count me in on the next one, if you want one of the 'ancient' CFers in your video, ha ha. My story deffo has some tangents in it that are a bit different, - while still sharing bucket loads of the usual stuff...
Thanks and God bless ♥️
Aw thanks so much for watching!!!
yes omg that’d be great! phahah - honestly I think everyone has some wacky twists & turns & then exactly how you describe the ‘usual’ CF stuff 🤣
Take care hope you are well 💛
@@gingerels
Seriously, thank you for making this video! I really needed that at the moment!!!
I'm kind of in a new situation/environment and with new people around me, who don't understand anything about CF, much less of how much it impacts us all mentally!! They just think I 'have a bit of a cough', hahahahahaha, - yeaaah (aaarrrrrrrgh!!!) So it was really good to be reminded that it's not 'just me'
《《《HUGS》》》
Hello, I have CF and I heard you talk about Kaftrio, which have some side effects, but I was wondering if you had the option of Tricafta, which is a drug I take and is for me, with no side effects. Keep going! 💛