Starving to Death: I can't eat & My feeding tube causes pain!
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- Опубліковано 25 сер 2024
- Since 2010, I have had significant issues with my pancreas. I have had minor procedures done to open up my bile ducts, place stents and sphincters cut. I have been prescribed pancreatic enzymes to help breakdown the food I eat. These have been stop gap measures to try to keep my pancreas functioning. In 2010, I had a feeding tube placed. It was a disaster. In 2011, my tube feedings were stopped and I ended up on IV nutrition called TPN. Over time, I was able to again eat by mouth and TPN was discontinued. I struggled to eat. I had a feeding tube again in 2017. It did not go well. I went back on TPN for a short while in 2018. I had more procedures done on my pancreas and I once again regained the ability to eat by mouth. #GodisMyStrength #StarvingtoDeath #INeedAMiracle
In February of 2020, my pancreas started acting up more and more. I started cutting out various foods. By November, all food including fruits and vegetables began aggravating my pancreas. I had to wait until December to see my GI doctor. He suggested getting a feeding tube placed into my intestines. This would hopefully rest my pancreas and allow me to get nutrition via the feeding tube. I was leery about this treatment option because previous feeding tubes have failed…but if this is what the doctor wanted and if this is what my doctor who is an expert on the pancreas recommended, I would comply.
Several weeks ago, I had the feeding tube placed. The surgery upset my GI tract and made my pancreas angry. After the surgery, I had a pancreatitis attack when I tried to drink water. The feeding tube was tried on a very slow setting, but within an hour, my pancreas was roaring in pain and spasming. The feeding tube was trialled four times. Infusing at just 10 milliliters per hour caused severe pain. The tube feedings were stopped.
Since having the surgery, I can no longer tolerate eating solid food. Everything must be processed in a blender and made into a puree. However, even pureed food causes my abdomen to swell, my intestines to spasm and my pancreas to erupt in pain. My GI tract seems to be in worse shape than what it is was before getting the feeding tube.
I want to be angry. I want to be upset. But I know God is using this situation to teach me lessons and show me things I need to understand. One of the biggest lessons I have learned is that my body cannot undergo surgery.
In 2020, I had a port-a-cath placed. That was a brutal procedure and did not go well. I ended having the port removed. It took about five months to recover. In 2017, I got my tracheotomy tube. That was an extremely easy procedure and took about a week to recover. Then, my next surgery was in 2014 when I had my intestines repaired from having a feeding tube. The surgery was a piece of cake and took several weeks to recover. And going back farther and farther, procedures and surgeries were fairly easy, and I recovered relatively quickly. Now my body is older; it takes more time for my wounds to heal, It takes more energy to overcome hurdles, obstacles and health setbacks. Even small procedures take a tremendous toll on my body.
Recently, I had an appointment with a GI doctor. He did not seem to understand the severity of my inability to eat and the pain I develop when I use my feeding tube. The appointment ended with the doctor wanting to get a MRI of my pancreas and liver. I was crushed. I thought the doctor would recognize the urgency of my need to get nutrition. I imagined he would tell me I needed TPN. I imagined he would be shocked that I had lost 5 pounds in two weeks. I thought he would have some concern and empathy toward my rapid decline in health. But instead, the only thing the doctor wanted was a test…a test which would take several weeks to set up. Then it would be many more weeks for a follow-up appointment. I was concerned. How long could I last in this state.
A few days have passed. I am having severe shortness of breath. I can barely move and then I gasp for air. I feel so weak. I feel as though I am going to fall over. My chest aches and my heart hurts. I am startled by my rapid decline. My body is working hard to keep me alive, but my lack of nutrition is quickly depleting my body of essential energy.
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Lord of heavenly hosts I come before you now I pray your healing and peace over this woman and her gi pain! Touch her heart and let her know your peace and love! Everything is possible through you lord amen
Thank you.
You should have way more subscribers, I really enjoy your channel. Although I don't have the same problems as you I still have chronic health problems and can relate to your struggle
Thank you for your kind words. I am sorry you have chronic health issues. I hope this channel encourages and inspires you.
You’re so strong and so beautiful. Keep fighting and stay strong 💕
Thank you so much for your kind words.
I agree
What a beautiful lady, lovely hair.Such a great shame she is suffering this way.May God bless her.With love from Scotland.
Thank you.
Praying for you to find the strength you need to recover 🙏
Thank you.
Bless your heart. I too have so many stomach gastric problems & have TPN for six months. Off now but troubles are back. It's extremely hard finding a good gastro doctor. I've finally got one but like you it takes so much time to schedule procedures. I'm waiting on an EDG to be done 11/9/21 I am so nauseous all the time with 3 medications for nausea. I take Donnatal 3-4 times a day for the extreme stomach pain. Nobody really understands. I'm a Christian too but constantly struggle with faith for healing. I will pray for you & hope to see more post by you to keep informed. God bless you my sister warrior.
Hello. Thank you for sharing some of your story with me. I hope everything goes well with the EGD. I hope you soon are on the path to better health. All my best to you.
You are so strong!
Thank you.
I hope and pray you find the strength to be as strong as your body has been in all these years and I pray you find complete healing 💟💟
Thank you so much.
Thank you for sharing your experience. I pray that God makes a way for your body to tolerate feeding and adequate nutrition. Watching your experience makes me so grateful and thankful for so many things I sometimes take for granted. You are a beautiful person. I pray for your healing.
Thank you for all your kind words. I appreciate your prayers.
Lots of love! Cling baby cling!
Thank you.
I have gastroparesis I’m only 23. It’s hard to eat too and drink without vomiting. Sending you love and healing. asé
I am so sorry you have gastroparesis. All my best to you.
I m so sorry for you. Stai strong. ❤️. I wish you healing from God.
Thank you.
I am praying for you
Thank you.
My heart is with you
Thank you.
Amen
God has heard my prayer for you,AMEEN
Thank you.
God bless you dear
Thank you.
Cod will.
Yes God is great but YOU need to go to the emergency department and demand something is done!! You poor girl!! I will pray for you to stay strong!
Thank you. For an update on how everything turned out, please see the following video: ua-cam.com/video/n7cx_7MrIW8/v-deo.html
@@GodisMyStrength Im just curious as to why you don’t have your pancreas removed altogether? I know it can be done in certain circumstances.. Is that something you would consider? I had severe pancreatitis when I was young and it went undiagnosed for years until I finally had an ercp and they found large amounts of stones in my gallbladder and bile ducts!! I was only 13 I ate healthy and was slim That’s why it went undiagnosed! I will never forget that horrible pain and I pray that you don’t experience it but it’s just awful! I honestly wanted to die because I felt I wasn’t being heard by the doctors until I was blessed with one who finally took me seriously and did the necessary investigations! I had a few good years then started developing the pain again and had another ERCP and stones had formed in my ducts again so they were removed and I’ve been good ever since! You are such an inspiration and you have a beautiful aura! God Bless and take care of yourself!!!
@Mavis Brmr Thank you so much for sharing your story. I am sorry you have been through so much.
A surgeon talked to me about the procedure. He said I am not a candidate. I have too many medical conditions. I probably would not survive the surgery...and if I survived the surgery, I probably would not survive the recovery process. The surgery is taxing on the body, and the recovery time is long for "healthy" people. The doctor thought the surgery would be far too much stress on my body, and it would be a complete disaster.
@@GodisMyStrength Yes I can totally understand that.. I’ll pray for a miracle for you! Your struggles have impacted me in a tremendous way, and now when I feel like things are going bad for me I think of you and your strength and perseverance and I completely change my thinking.. So thank you for being you and such an inspiration!!
@@West-rn-showvn-ist-chick Thank you so much for your kind words. I really appreciate them. And thank you for all your support. It means a lot to me.
what is the name of this disease? my mother tongue is not english and i don't know what these medical abbreviations mean. it is a bad habit and often confusing. everyone should enjoy the language again and use it to the full. Thank you
Hello. I am sorry for any confusion. A full written transcript is available in the video's description. Abbreviations used:
IV=Intravenous
TPN=total parenteral nutrition
GI=gastrointestinal
MRI=magnetic resonance imaging
The name of my medical condition is called chronic pancreatitis.
We are praying 🙏🏽 god is sending angels to heal repair in Jesus name
Thank you.
You should try reishi mushroom zinc and selenium and also omega 3 fish oil to restore pancreatic tissue !!!
Thank you for the suggestions. I have been taking zinc, selenium and omega 3 fish oil daily for the last 10 years. I rotate reishi mushrooms in and out of diet based on recommendations by a Chinese Medicine Doctor.
@@GodisMyStrength also you should drink licorice root tea very beneficial for pancreatic tissue!! It. Can protects you for developing pancreatic cancer which is very deadly !!!!
Thank you so much for this information. I drink licorice root tea daily. It is very delicious!
To God be the Gloty
What is your name as I like it so I can pray for you by name and to know you by I'm on TPN too. I need it so my small intestine can hopefully heal.
I met the woman who cleans a certain section in hospital and she was so very upset cuz last minute her fiancé had been shipped off to Japan and they weren't going to see each other for a whole year. She had barely slept in me to work and she was practically in tears telling me about it. I told her that it was going to be OK to trust in God and that I would pray for her . I prefer her for a couple minutes a little later that day. Today she came her boyfriend was sent back because it was a mistake and he's being sent to Jacksonville instead which is what they were hoping for!!! Now I can't say that things got back to normal slowly because I have prayed for her but it's really nice to see the results even if it wasn't because of me.... on the other hand what if it helped!!?So with those sites in mind I'm going to pray for you and I hope that God heals you from head to toe and or gives you the strength to deal with every situation put in front of you like I know he will and like I know he has thus far!!! God bless. I'm home now... i'm going to do my TPN in the daytime because I don't like how it wakes me up so often to use the bathroom!! If you need anything let me know!!!
Thank you so much for all your kind words. What an incredible story! I am so happy everything worked out for the woman and her fiance. I cannot imagine the rollercoaster that must have been for the couple. What a great testimony.
I hope everything goes well for you being on TPN. I hope your small intestine heals and you are soon on the path to better health. All my best to you.
Oh my goodness, how are you doing?
I am doing ok. I was able to get help from my doctor's assistant. He sent me to the hospital. For more details, here is a follow-up video: ua-cam.com/video/n7cx_7MrIW8/v-deo.html
is it no option to have the feeding tube and have painkillers for the pain so you can still have food but dont feel the pain?
Hello. Pancreatitis associated pain is extremely hard to control. Even with high doses of IV pain medicine, the pain is often only lessened and is never eliminated.
Besides the pain, a main issue with pancreatitis is that the pancreas releases digestive enzymes, and they get trapped in the pancreas. When my pancreas flares up, like it did from using the feeding tube, the pancreatic enzymes get stuck in my pancreas. The enzymes start digesting the pancreas. This can lead to life threatening complications.
In Jesus name I command for full healing to take place in your body. I believe that every part of your being will be healed and you will receive full strength in his name. You are so strong and I believe God has an amazing purpose in your life. I'll keep you in my prayers 🙏. Keep up the good fight of faith and believe that God will heal you. Nothing is impossible for him. God bless you dear❤️
Thank you.
Why won't they do TPN?
The GI doctor I saw was not my regular doctor. My regular GI doctor could not see me until the end of April. This doctor tried to read a few years worth of notes in a few minutes. The GI doctor wanted the MRI to see if there was anything causing the increase in symptoms. After getting the MRI results, the new GI doctor would make a decision about what to do about my nutrition.
@@GodisMyStrength Ohh ok 👌 I hope you can schedule the test and get some answers and get TPN so hopefully you can get the nutrition you need 😊
💕🙏🙏🙏🙏
Thank you.
None of us can understand why some people suffer so much but HE said in HIS WORD to TRUST IN THE LORD WITH ALL YOUR HEART AND LEAN NOT UNTO YOUR OWN UNDERSTANDING.
PROVERBS 3:5
Thank you. I love that verse.
My best friend died this year because she had diabetes and an eating disorder she was in and out of hospitals so many times, then I lost my other best friend to covid 19 in February this year, when Lynn was making herself sick ,she went to dr Mehrment oz for help because she didn't want to die, you can get help don't waste your life away, Lynn had both anorexia and bulimia, she covered her body in clothes so she wouldn't show her bones, her face was unrecognizable, some times she came to my house, don't die just like she did okay, get Help you're killing yourself, she would be okay for a while then get sick again you can do this ,my bff was buried, I saw her obituary online, this is just someone who lost her best friend because she was sick like you
I am so sorry to hear of all this. It sounds as though you have been through a lot. I hope you have been able to find peace and comfort.
I apologize for any confusion. I have chronic pancreatitis. My body releases digestive enzymes which get stuck in my pancreas. The enzymes then digest my pancreas. This causes extreme pain and other symptoms. Eating is very hard because every time food enters the GI tract, digestive enzymes are released which in turn digests my pancreas and causes severe pain, damages my pancreas, etc.
Since Sept 2020, I had been begging doctors for medical intervention because I was losing a significant amount of weight. In March 2021, I was able to get a feeding tube. However, the feeding tube formula caused more pancreatitis attacks.
If you would like to see a follow-up to this video, please watch the following: ua-cam.com/video/n7cx_7MrIW8/v-deo.html
My 12 year-old has pancreatic issues as well.
I am so sorry to hear that. Hugs to you both.
Please allow me to keep you in my prayers. Allow me to come in agreement with you to God for your miracle.
Please receive my love and light. I pray this is a testimony under construction in Jesus’ invincible name. Amen
Thank you for your kind words and prayers. (I apologize for the delayed response. I did not see this comment until just now.)
your doctor needs to look at gastroparesis treatments. Tpn is likely your only option at this point. If an NG and and NJ dont work, and even a peg isnt an option, then they need to just allow you to live on tpn. Utterly ridiculous. Your doctors need to watch the videos posted by the late Amy fisher and get educated.
Thank you for all the information. I was hospitalized for malnutrition after filming this video. Here is a link to the follow-up video if you wish to view it: ua-cam.com/video/n7cx_7MrIW8/v-deo.html
GET A NEW DOCTOR
It's GI TRACT. Not 'track'. 😉
Hello. Thank you for your comment. I was saying "tract" in my video, but it probably was hard to understand. When I got a tracheostomy tube, I lost the ability to speak. It took a long time to regain the ability to vocalize. Unfortunately, I have problems saying certain letters, sounds and words. I try my best to speak, but the clarity of my speech is not the best. I have a written transcript in the description box of each video to help viewers in case they cannot understand my words. Thank you for your comment. It helps me know what areas of speech I still struggle with.