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Chronic Illness: God is My Strength
Приєднався 7 січ 2021
POTS, Mast Cell, Mito & Chronic Pancreatitis plague my body. Sharing with others is my greatest joy. Every day, we have the option to rejoice or wallow in misery. When living life with chronic illness, it can be easy to allow health challenges, pain and other symptoms to cause us to choose a negative attitude over a positive outlook. This UA-cam channel is dedicated to sharing stories, providing information about medical conditions and giving words of encouragement to motivate and inspire others to live their best lives.
Cruising. Day 4. A Woman Asked Me to Leave a Tour Because I Have a Tracheostomy Tube. Bermuda
Today we are on the beautiful island of Bermuda. We saw Horseshoe Bay and the very pretty pink sand, Gibbs Lighthouse, the city of Hamilton and the St. George. In St. George, a town crier held a trial in which a few people were brought to trial. One person was dunked several harbor. Upon arriving back on the ship, my mom and I enjoyed a fantastic sailaway party on the helicopter pad. I also share some stories such as my mom ordering "French Toast" for breakfast, and a woman who asked me (in a very stern manner) to not be on the tour her family was going on. It was quite a day! #godismystrength #cruising #bermuda
For more fun and adventures please check out my blog: mitowarrior.blogspot.com
Instagram: lifewithavent
MeWe: mewe.com/join/lifewithaventilator
Facebook: Living-with-Chronic-Illness-God-is-My-Strength-105084398647155/
Email: life.with.a.vent@gmail.com
Affiliated UA-cam Channel: ua-cam.com/users/lifewithavent
For more fun and adventures please check out my blog: mitowarrior.blogspot.com
Instagram: lifewithavent
MeWe: mewe.com/join/lifewithaventilator
Facebook: Living-with-Chronic-Illness-God-is-My-Strength-105084398647155/
Email: life.with.a.vent@gmail.com
Affiliated UA-cam Channel: ua-cam.com/users/lifewithavent
Переглядів: 189
Відео
Cruising. Day 3. Fun Day at Sea Followed By Getting a Pancreatitis Attack! I am So Sick!
Переглядів 149День тому
Today was our first sea day on the cruise. There were lots of fun activities such as practicing for a flash mob, playing Deal or No Deal (where my mom was chosen and won some money and a medallion!) and a few other activities. Unfortunately, the stress and lack of sleep from the last few days caught up with me and my pancreas began hurting me. In no time, I had a full blown pancreatitis attack ...
Cruising. Day 2. Lost at Sea: I Can't Find My Mom! Embarkation Day & Stormy Sailaway
Переглядів 11114 днів тому
Today was our first official day of the cruise. We traveled from our hotel to the cruise port via a ride sharing service called Lyft. At the cruise port, we checked in for our cruise, went through security and boarded the ship. We could not watch sailaway as it was raining and there were some intense storms. In the evening, I was supposed to have met my mom for supper. Unfortunately, she went m...
Cruising. Day 1. Finding Out 12 Hours Before My Flight I Don't Have a Ticket!
Переглядів 27221 день тому
Recently, I went on an exciting cruise adventure. The beginning of my journey started out with a flight to travel to the embarkation city. When trying to check in for my flight, I could not find my reservation. My mom had a ticket, but I did not. It was a frantic situation in which I was scrambling to get a very last-minute airline ticket! #godismystrength #cruising #flying For more fun and adv...
Endometriosis: Three Supplements Which May Lessen Pain & Other Symptoms
Переглядів 66Місяць тому
Endometriosis is a condition in which tissue similar to the lining of the uterus grows on other parts of the body. The condition can cause a lot of pain and other symptoms; however, new research shows using thee supplements together a day can greatly lessen pain and other symptoms. This triple threat is being researched as a potential cure for endometriosis. #godismystrength #endometriosis For ...
87 Doctors: My Journey to Getting a POTS Diagnosis. Postural Orthostatic Tachycardia Syndrome (POTS)
Переглядів 721Місяць тому
When I abruptly became very ill with a fast heart rate (tachycardia) upon standing and many other symptoms such as dizziness, fatigue and headaches, I thought it would be simple to get a diagnosis. However, it took many, many doctor visits to finally get a diagnosis of Postural Orthostatic Tachycardia Syndrome which is often abbreviated as POTS. #godismystrength #pots #dysautonomia For more fun...
Struggling to Breathe. To the Emergency Department. Possible Blood Clots
Переглядів 500Місяць тому
For the last week, I have had pain in my left calf which is very similar to the pain I have when I get blood clots. Today, I abruptly could not breathe and decided to go to the Emergency Department to get my shortness of breath checked out to make sure I did not have blood clots in my lungs. #godismystrength #bloodclot #emergencydepartment For more fun and adventures please check out my blog: m...
Chronic Illness Myth: Your Life is Not Worth Living. Accepting My Health for What It Is
Переглядів 543Місяць тому
Recently, I received a comment on a UA-cam video that based on all the medical challenges I have, my life is not worth living. It is beyond my comprehension that anyone would believe a person's worth is based solely on his physical health and being afflicted with chronic illness means a person should end his life. Life is about so much more than physical strength; it is about supporting one ano...
Morphine Allergy. No Pain Medicine for You! The Long Battle to Get Pain Meds. Chronic Pancreatitis
Переглядів 1972 місяці тому
When I became severely ill with abdominal pain, nausea and vomiting, I was sent to the emergency department where I ultimately had my gallbladder removed. After surgery, I was given morphine for pain relief. It worked well. Upon my second exposure to morphine, I had an anaphylactic reaction. I was told to never take morphine again. With morphine being listed as an allergy, I suddenly was refuse...
How I Set Up My Intravenous (IV) Antibiotics at Home. Step by Step Instructions
Переглядів 1772 місяці тому
With having a tracheostomy tube and ventilator, I get frequent infections which require intravenous (IV) antibiotics. Setting up intravenous (IV) antibiotics at home requires a little bit of skill some patience and the following supplies: saline flushes, alcohol wipes, syringes, the antibiotic and an IV line. I used to have an infusion pharmacy do this process; however, after seven years of chr...
MASSIVE Migraines! Is Bluetooth to Blame? Radiation Poisoning from Wireless Earbuds
Переглядів 1142 місяці тому
For the last two years, I have been having significant headaches which have only increased in intensity over time and are also associated with severe nausea, neck pain, eye pain and vision changes. I accidentally discovered my wireless Bluetooth earbuds were mostly likely to blame, and they were giving me radiation poisoning. #godismystrength #bluetooth #migraines For more fun and adventures pl...
Endometriosis Update: One and a Half Years Post-Excision Surgery
Переглядів 2062 місяці тому
For most of my life, I have had endometriosis. A year and a half ago, I had endometriosis excision surgery in hopes of getting rid of my endometriosis; however, after a year and a half, the pain and associated symptoms continue to worsen and are almost as bad as what they were before surgery. #godismystrength #endometriosis #excision For more fun and adventures please check out my blog: mitowar...
Telephobia: Talking on the Phone Gives Me Anxiety!
Переглядів 963 місяці тому
When I need to make a phone call, I develop severe anxiety my heart races, I start sweating, I become short of breath and I get chest pain. I have tried various methods to overcome this fear and anxiety, but it seems telephobia (having a fear of the telephone) will just be part of my life. #godismystrength #telephone #fearandanxiety For more fun and adventures please check out my blog: mitowarr...
Getting a POTS Diagnosis Good Doctor Versus Bad Doctor Postural Orthostatic Tachycardia Syndrome
Переглядів 6393 місяці тому
Many years ago, I had a series of health events which caused an underlying medical condition called Postural Orthostatic Tachycardia Syndrome (which is often abbreviated as POTS) to reveal itself. I was constantly short of breathe and had a racing heart rate upon standing; however, getting diagnosis was challenging due to doctors' varying opinions and attitudes. #godismystrength #POTS #postural...
How to Infuse IV Vitamins into IV Nutrition (TPN). Step by Step Guide
Переглядів 1463 місяці тому
Every day I set up my IV nutrition called TPN and need to add intravenous (IV) vitamins to my bag of TPN. The process requires a few supplies such as two vials of multivitamins, a syringe, alcohol wipes and optional gloves. Join me as I discuss how I infuse the IV vitamins in a step-by-step fashion. #godismystrength #tpn #ivvitamins For more fun and adventures please check out my blog: mitowarr...
PICC Line Staph Infection. 5 Weeks of Antibiotics & Natural Remedy Attempt. PICC Line Complications
Переглядів 2133 місяці тому
PICC Line Staph Infection. 5 Weeks of Antibiotics & Natural Remedy Attempt. PICC Line Complications
When the Invitation Never Comes. 5 Ways to Handle Not Being Invited. Life with Chronic Illness
Переглядів 4414 місяці тому
When the Invitation Never Comes. 5 Ways to Handle Not Being Invited. Life with Chronic Illness
When I Get a Pancreatitis Attack. Oh the Pain! Chronic Pancreatitis
Переглядів 2724 місяці тому
When I Get a Pancreatitis Attack. Oh the Pain! Chronic Pancreatitis
Allergic Reactions & Asthma Attacks From Air Freshener & Perfume. The Fight to Breathe
Переглядів 2354 місяці тому
Allergic Reactions & Asthma Attacks From Air Freshener & Perfume. The Fight to Breathe
Life with IV Nutrition (TPN). Do You Ever Feel Hungry? Intravenous Nutrition FAQ
Переглядів 1 тис.4 місяці тому
Life with IV Nutrition (TPN). Do You Ever Feel Hungry? Intravenous Nutrition FAQ
Just Take Tylenol for the Pain. How Tylenol NEARLY Killed My Friend. Liver Failure. Miraculous Story
Переглядів 1934 місяці тому
Just Take Tylenol for the Pain. How Tylenol NEARLY Killed My Friend. Liver Failure. Miraculous Story
10 Things Not to Say to Someone with POTS. Postural Orthostatic Tachycardia Syndrome
Переглядів 1705 місяців тому
10 Things Not to Say to Someone with POTS. Postural Orthostatic Tachycardia Syndrome
Possible PICC Line Infection. To the Emergency Department. Contact Dermatitis from PICC Line
Переглядів 2,3 тис.5 місяців тому
Possible PICC Line Infection. To the Emergency Department. Contact Dermatitis from PICC Line
Medical Gaslighting: Why I Play Dumb at Medical Appointments
Переглядів 6495 місяців тому
Medical Gaslighting: Why I Play Dumb at Medical Appointments
15 Years Living with POTS: 10 Things I Did to Improve My Symptoms. Postural Orthostatic Tachycardia
Переглядів 4045 місяців тому
15 Years Living with POTS: 10 Things I Did to Improve My Symptoms. Postural Orthostatic Tachycardia
Food Allergies: How I Had an Allergic Reaction Eating at a Restaurant. Mast Cell Activation Syndrome
Переглядів 1986 місяців тому
Food Allergies: How I Had an Allergic Reaction Eating at a Restaurant. Mast Cell Activation Syndrome
Essential Tremors: Shaky Hands For Many Years #shorts
Переглядів 1206 місяців тому
Essential Tremors: Shaky Hands For Many Years #shorts
Getting a G-Tube? What to Expect & Frequently Asked Questions
Переглядів 1526 місяців тому
Getting a G-Tube? What to Expect & Frequently Asked Questions
Do You Have a Weak Immune System? 5 Natural Ways to Boost Your Immune System
Переглядів 2326 місяців тому
Do You Have a Weak Immune System? 5 Natural Ways to Boost Your Immune System
You Are Faking It! Go Home! Medical Gaslighting. Postural Orthostatic Tachycardia Syndrome (POTS)
Переглядів 3307 місяців тому
You Are Faking It! Go Home! Medical Gaslighting. Postural Orthostatic Tachycardia Syndrome (POTS)
It’s been about 6+ months since I had it happen. I still get random pains and a part of my upper forearm is almost always numb and very sensitive to touch. I also have minor weakness in said arm.
This is what I’m going through right now
I am sorry to hear that.
Kudos to your Mom for taking you on these wonderful cruises and trips, it is your Reward for achieving such a marked improvement in your health over the last few years - Rejoice and Enjoy! ….you’re Taller than I thought you were 😂💛🧡♥️🎉🎉💐🌼🌸
Thanks so much for watching. I appreciate your kindness.
@@GodisMyStrength❤
Indeed, it was from a place of love. You recognised that, of course. ❤
Thank you.
Brilliant! 😂❤
Thank you.
You have a good heart, god bless you 💕🇨🇦
Thank you.
Doctor Obulor on UA-cam is still the reason why I'm still here he helped me cure Chronic illness permanently with his herbal treatment. More good work sir,
Doctor Obulor on UA-cam is still the reason why I'm still here he helped me cure Chronic illness permanently with his herbal treatment. More good work sir,
Nice, feeling how the bloating and pain receded within approximately two months made all the difference, I simply go’ogled the latest by Tilly Strankten and her Ovarian Cyst Guide and although it really took about 10 weeks for it to totally shrink and vanish I’ve never felt so light and relaxed.
Thank you for sharing.
Cruises are so fun my fav type of vacation. It’s nice that you don’t let your medical situation stop you from traveling!
Thank you for sharing.
I briefly had an NG tube a couple of years ago while on a Vent and it definitely wasn't a pleasant experience.
Thank you for sharing.
A good physician makes the difference between getting an accurate diagnosis and with it the best treatment possible.
Yes, that is so true.
Sorry about your attack 😢, the veggies you had might have been coated in a preservative that makes them look fresher (MSG ?), anyway, hope you’re feeling better and enjoy the rest of the Cruise.
Thank you for sharing. I found out (after talking to one of the cooks) they put oil on the vegetables. I cannot tolerate fat. Oils (in particular) cause me to have pancreatitis attacks.
Hopefully you've recovered from this sudden illness and can enjoy the rest of your trip. 😊
Thank you.
I’m so sorry you have to go through that on vacation. I pray you feel better soon and be able to enjoy your vacation. 🙏❤️🇨🇦
Thank you.
Wow you're getting a pancreas attack on vacation why can't It take a vacation and leave you alone sending spoons chronic illness warrior ❤ hang in there
Thank you so much.
God bless you sweet lady ❤
Thank you.
Hope you feel better
Thank you.
I hope you could enjoy in spite of the pain an nausea. God bless you!
Nausea really sucks as I've been dealing with it a lot lately myself probably in relation to my gastro esophageal reflux disease related to an H pylori infection I had four years ago. Despite taking medication daily to keep my reflux under control it doesn't seem to be helping and my throat feels like it's effectively on fire. Right now.
@alfonsinho74 Thank you.
@michaezell4607 I am so sorry to hear you are having nausea, and your throat feels like it is on fire. I hope you soon have relief.
❤❤❤❤
Thank you.
Hope you got better quickly
Thank you.
Oh bless you, darling. If only one's health issues also took a vacation, when we do, but they simply don't. Thinking of you. 😢❤
Thank you so much.
Me too i had dye yesterday i feel unwell now tired and pins needles i know drs dont care im sorry you suffered that
Thank you for sharing. I am sorry you are having all those symptoms. I hope they soon go away.
Yay! LOL story! 🤦💟
Thank you.
I had to have a picc line briefly back in October of 23 due to some sort of blood infection. I've been having a difficult time myself with at least three hospital admits since June of this year with the most recent being a couple of weeks ago.
Thank you so much for sharing. I am sorry you have been through so much. I hope you are soon on the path to better health.
You could at least bring back some Food ! 😋🥳
That is a good idea.
Hope you don't lose your mom again if you cruise again
Thank you.
How funny!
Thank you.
Is there a third part coming?
Yes. Here is the link to part 3: ua-cam.com/video/R9PlffO6hPI/v-deo.html
Livin’ Large Girl 👍👍🎉🎉
Thank you.
That cruise is lavishly appointed. The food must be delicious 😋 . I hope you enjoyed it to the fullest.
Thank you so much.
My hand has been hurting since 3 days after the blood draw will it get better?
I hope your hand gets better. If you are concerned about your hand hurting, please seek medical attention.
@@GodisMyStrength thank you its better now
@@rohit-zr4rx That is great to hear. Thank you for sharing.
Glad you found a last minute deal on airfare.
Thank you.
Stressful but hopefully worth it
Thank you.
I like your video, It was fun!
Thank you.
You have a beautiful and very engaging smile!
Thank you so much.
Happy to see you having fun and travelling 🥰 God bless you ❤️
Thank you.
I know what goes on on these Cruises ye know - Behave Girls ! 🤣🤣😆😆😂
Will do.
Enjoy the "little " big blessings! You are such an awesome woman of God and an example on keeping the faith being long suffering. God bless you dear sister.
Thank you so much.
Another Cruise ?! TAKE ME ! 😅😅 Enjoy, Have a Great Time 🎉🎉🎉
Thank you.
How do you manage travelling alone with wheelchair TPN and ventilator?. Do you need certain certifications to fly? What happens if an issue with breathing and need to be bagged how does that work
Thank you for your questions. I use wheelchair assistance to travel through the airport. No certifications are needed to fly with TPN and a ventilator. My ventilator and TPN pump are safe to use while flying. I travel with two ventilators. I have never needed to be bagged in the 7+ years I have had a trach and vent.
Thanks for posting this. I’ve had blood drawn many times in my life and 3 days ago I had routine blood drawn and the pain was immediate when the needle went into my arm. Sharp pain shot down to my hand and is still very uncomfortable if I stretch my arm out. Good to know this should heal over some time. This is going to cause so much anxiety every time I get blood drawn now.
Thank you for sharing some of your story with me. I am so sorry you endured so much. I hope you soon have a full and complete recovery.
I really really really love perfumes and body sprays but they trigger my allergic rhinitis so badly!😭 Is there any alternative to use perfumes while not getting any allergic reactions by them? I have a big collection of perfumes and really love to use them but my doctor suggested not to use perfume sprays 😭😭😭😭😭
Hello. Thank you for sharing. I am sorry to hear the perfumes and body sprays trigger your allergic rhinitis. Have you ever looked into essential oils or other natural fragrances? I would suspect you are probably allergic to one or more of the chemicals in the perfumes and body sprays. If you try using products which have only one or very few ingredients, you may find something which does not trigger your allergic rhinitis.
@@GodisMyStrength Thank you so much! That really helps! ❤️
I see that this video has been up for 2 years already, but might I suggest a Title change to “The Day I Could Have Died” (instead of Should Have Died), yes, you had a very Close Call, but Thank God you pulled through, so I think “Should Have” is a little too strong - imho - Stay Healthy Girl.
Thanks for the suggestion.
Regarding the content of this one; I’m awfully sorry about all of that - but that wonderful speaking voice and beautiful smile can send guys running from all 50 states, and I’m from New York, so I’d have a pretty long run - we All Love You!, and all we ask is that you stay Healthy and keep making videos ❤️💚💛🧡🌹🌸🌼💐💐
Thank you so much.
@@GodisMyStrength🥳
Can you do video about suppliments which may help in weekness and fatigue
Hello. Yes, I can.
Glad you found relief
Thank you.
Any updates?
I am waiting for an appointment with my primary care provider. In the meantime, I am very thankful my breathing has slowed down from what it was in the video. I am still short of breath, but not nearly as short of breath as I was at the ER.
@GodisMyStrength I imagine breathing like that would take quite a toll. Glad it's a bit better.
@@isispilar Thank you.
I think you did a good job of explaining the grief that comes with chronic illness hijacking your life. It's very difficult to explain this to other people. And I think some people just don't want to hear it because it makes them uncomfortable. But it is reality for someone who lives with chronic illness. Every day is a battle to find purpose and stay positive.
Thank you so much for sharing this. You summed it up perfectly.
A niece of the Baron von Munchausen?
My apologies. I am not German. I am related to the royal family in Norway, but that is a story for another day.