I am always in awe at how knowledgeable and well spoken you are. I am an early interventionist (currently not working and home raising my 3 month old son) so I see sick babies and their families all the time. No parent I have ever come across has been so well informed. You are a wonderful advocate. There is a reason you were chosen to be their momma. How lucky are those boys. They will without a doubt be okay in the end because you are fantastic.
I am a Newborn Care Specialist in the Boston area, if you need any help with anything while you’re out here. Please feel free to reach out to me seriously anything at all.
The fact that you will have been able to give THREE BABIES breastmilk for a year is such a huge gift to your babies. I was able to give my preemie some breastmilk for about 7 weeks and I hated not being able to give her more, but I also know I gave her everything I could.
I love how you don't give up ever! They will know one day how hard their mama advocated for them. Glad you are back on your antidepressants. I have to take them everyday. No shame in mental health problems. I am praying the insurance let's you go to Boston..it will happen. Praying all 3 boys continue to get healthy more and more each day. Much love to your whole family. 💙💙💙❤🙏
Your strength is awesome. Many people would shy away from the challenges you are living every day. Hats off to you and Braxton for being the best parents for your boys. There are days I wish I had a magic wand. First place I’d wave it (or stick it) would be to your insurance company. Sharing your journey here in Melbourne Australia and wishing all healthy things for you and your boys. Diane x
I'm alao from Australia lol. My daughter Jennifer Kember was in the NICU for two months , which was hard, but all means nothing nearly close to what you and Braxton are going throught. Our Jennifer Kember came ho me on oxygen, had tohave anti reflex milk plus the pilesand never ever endind supply of medication. And you are tight it is HARD, but we keep going we have to there is no other way. I also had a 2yr old at home with us. His name is Thomas Oliver. ( (Jennifer Kember was a total butterfly, loved cuddles from any one, which made it hard to find her when we would first get to the NICU. THOMMAS OLIVER would run around saying "I have to find my Gentlefur...........can you help me" The nusrses THE AMAZING nurses are absolute miracle workers.I honestly believe that without thd I wouldn't have a 17yrs old sitting in front of md. Mumma just a quick 2 cents trust your gut.... us mummas know. God Bless and sending BIG HUGS LOTS OF LOVE AND PRAYERS From Karalyn Laurette from Perth Western Australia and Family.
Try calling your state representative for your area. They have ways of getting things expedited . They have many experts working under them that maybe able to get your nursing for the boys and other medical help. Hang in there you are doing a great job!!❤️🙏🏻
Continue being the great advocate for your precious boys. Boston Children's is great. The boys have come so far. Trust your mom gut. So hard to believe they're almost a year! A word of caution: If you start a Go Fund Me you have to pay taxes as it's considered "earned" income. If someone, does it for you then you don't have to pay taxes. Check it out, most people don't know beforehand. Hang in there. You are so strong. Continued prayers and blessings.
You are such an inspiration to me as a mom. (Fellow triplet boys mom! ☺️) You have already gone through so much, more than most moms will ever have to go through. You are really the best mom! Those little cuties are lucky!
I absolutely love the fact you find a positive out of situations others would be negative. Like the feeding tubes. You guys are so amazing keep your heads up.
THANK YOU FOR BEING SO REAL!!!! Being patient is the hardest part of being a mama. You’re a great mom!❤️ Side note and you probably already know but- Breast milk also works WONDERS on pink eye! 😍
Thank you so much for the update. They (and their parents) are such fighters. My miracle 24 weeker tubie will be 1 in May as well, such an emotional time! Thinking of you all 💕
**** Hey, my son was a premie too. Your description of where Croix is at fits to a T with what my son went through. He’s a major puker, he’s past 2 years old now and is still not caught up to the percentile charts. We tried various formulas, did all sorts of testing. When he was 19mo we got our results from his Whole Exome (Genome) Sequencing - the most in depth genetic testing currently available, which is the only test that truly gave us some answers. He has RFX7 Neurobehavioural Disorder, this genetic change is still pretty new to the medical world, the only medical articles about it were published in 2021. In Sept 2021 we were told only 14-15 children in the world were currently diagnosed with it, since then I’ve discovered 2 other families with a child with this RFX7 change through Facebook. Even if this isn’t what’s going on with Croix, I highly recommend getting this testing done for him. At the very least it will rule out any currently known genetic disorders that go undetected by the standard genetic testing. My son’s puking comes and goes a bit too. Some days are great with only a few mouthfuls and others he is puking multiple times with nearly every feed. **** I’ve created a Facebook group for it, its not a very active group but its there for the purpose of connecting families with it. facebook.com/groups/881453102805074/
Bravo to you for advocating for the best care for your boys. When my son was 2, I knew something was different. At 3 1/2, he was diagnosed as being on the Autism spectrum. If I hadn't advocated for him, it may have gone unnoticed for years and he would have missed out on so much important early intervention. This same son, broke his arm a few years ago. We chose to take him to Boston Children's (luckily we live just north of Boston) and he got wonderful care and had surgery there. Keep fighting for your sons. Always. ❤️. Best of luck dealing with the insurance!
I can't believe they won't approve you guys for nursing. Poor Daxon. They damaged his poor vocal chords and didn't say anything. Just...wow. I can't imagine how you and Braxton felt hearing that. But I do hope you get answers you need when you come here to Boston. I'm sending you all the good vibes with insurance and getting approved, etc. You're a great advocate for your boys. They're so lucky to have you. You keep being the voice they need. Continued prayers for you, Braxton, and the boys! Little rockstars, all three of them!
“They” didn’t damage his vocal cords!! It commonly happens to babies, esp premies because they so little and tissues more friable etc who are intubated for long periods of time or multiple times. Often times it does get better. There isn’t ways to prevent it and there isn’t anything anyone did to make it happen.
You are the BEST mommy. I miss your smile. Just b/c people say your strength is amazing doesn’t make all of this less stressful. Your knowledge is so important to there care now and in the future. You are definitely doing the right thing by going with your gut feelings. It happens all the time things are over looked, not on purpose. I have worked in pedi for 19 years and I completely understand. It is vital for the tethered cord to be released. My friend son had that done and he is now in high school and plays baseball his spine is fine! Keep fighting for these beautiful boys and take your breaks when you can. Praying for you and your family daily. God bless all of you
I have to compliment you on your knowledge you have gained during your journey with your beautiful boys - you would be the perfect nurse in the real world - however you will be the perfect in home nurse - Aubrey you are amazing!
Thank you so much for this update!! I had premature twins a year ago. They were born at 24 weeks! And I have a medically complex daughter. Your strength is so inspiring! Those beautiful boys are lucky you have you as there momma💙 we know our babies best and are there only voice! Had I not stood up for my daughter she wouldn’t be here today! You are killing it momma💙💙
Sending all the vibes your way mama, to you Braxton , your babies and your support system. It’s frustrating dealing with doctors. But being a strong advocate SAVES lives. Never stop fighting for your babies mama
You guys are amazing parents! My son also has VACTERL association. We found out at 20 weeks pregnant with him. He only does not have any trachea/esophagus issues. He was born with one kidney, 2 holes in his heart (they heal up on their own), imperforate anus, butterfly vertebrae, mild hearing loss and a floppy airway. He has had a lot of surgeries and appointments in his life but is a happy 5 year old. I am praying for you and your boys!
You are honestly such a good mum the way even after all your exhaustion ect you fight so hard for your boys . You are such An amazing mumma .. the boys are lucky they got you guys as there parents Keep up the good work there is a light at the end of the tunnel
I've been a nurse for 13 years, and most of my experience has been in Tracheostomy's, ventilators, and G-Tubes working in Home Healthcare. I currently work with a special needs patient that's 6 years of age, and Medicare will not even pay for GLOVES AND HAND SANITIZER! Private insurance has it's issues too....so I believe every single thing you're saying! Also, they've cut her PT down from twice a week to once a week...UNREAL! just hang in there; you guys will get through this, and things will work out. Prayers for your lovely family.
Sending you big time love mama-the lord surely thinks highly of you lady, such is the kind of stress and strain and strength you’ve been asked to shoulder and summon. Soo glad you’re going on a couple trips and taking care of your mental health-being a healthy mama (however we each define it) is the very best thing we can do for our children-you’re a rockstar✨
Thank you for the update on the cutest boys ever! Appreciate you keeping us in the loop. You're both amazing people and parents! Praying 🙏 Mikalyn Daugherty Wpb Florida
You are amazing. I pray for your little family every night with my family. So glad you chose your mental health, if you are not good you can’t take care of anyone else. I’m a proud Prozac mom!
I’m sorry for the issues with medical providers and insurance. I hope you have a good experience at Boston Childrens. I’ve been there - you are a great advocate.
Wow! You are amazing. I was sitting here searching for a gofundme in your description and then you say “just you watching is enough”. I will most certainly continue watching and supporting your family in any way I can! You have such a strong family and are so determined to do this with just the help of your insurance (ugh) and the people you know and love. I think that’s really admirable. Keep pushing forward and keep being persistent and trusting your gut!
Thank you Hun for the update. You are such an amazing mom. I always said that I may work, but my first and only job is to take care of my kiddos. Their needs are on me, if it's medical, educational, mental or what ever it is...then that's my job to make sure they not only get it, but they get the best. I can't imagine what you both are going through, but I do know that you will not stop until these three precious little boys get everything they need done in order to help them. Big hugs to you sweetheart and kisses to those sweet boys!💙💙💙😘
Great job momma! I'm sure u have many people who are curious about what u r dealing with concerning your babies. I'm praying for your family. Hopefully they will outgrow most of their health problems. When my daughter was a baby she had respiratory problems. Thank God she was caught up by the time she was 3. And she is now an adult with a 5 year old son of her own. He had a few minor issues compared to what your babies are going thru, but we were still terrified to know he had things going on. So it's no wonder u and your husband are having any anxiety of your own. Hang in there! Rely on each other. And u will get thru it. look how far u have come already!
I always say prayers for your entire family... so glad you will be able to get relaxing & fun time away. It amazingly is beneficial in many ways. Remember..ONE DAY AT A TIME.
Don't worry about update videos being 'less interesting'. Being honest these ones I click on as soon as I see them because I care and worry about your boys. The people who are here for you and for the right reasons would feel the same. We're not here for entertainment. We're here hoping and praying for your babies to do well and thrive xxx
Your strength is very inspiring. Thank you for the update on all of the boys. I continue to pray for all of them. You and Braxton are amazing parents. Your strong faith will continue to carry all of you through all of these challenges. Take care and sending hugs and prayers.
First and foremost, you are an amazing mom! All the advocacy you do for your boys is just amazing and I'm sorry the medical system is failing you in many ways. I did want to ask if you have any plan to incorporate baby sign? Highly recommend as it's often easier for small children and with the vocal cord problems it could give your baby an easier language to learn.
Keep your spirits up!! I am sorry about the issues with Daxon. I hope you get to Boston for an evaluation. Regardless, with you as his mom, I am sure will be fine! 😍The boys are so blessed to have you as their Mom!
The medical system is such a mess… I’ve been trying to get help for my father and it really is a full time job so I can’t imagine doing it for three. You are doing a great job advocating for them! Your family is always in my thought.
This was such a great and informative video, thank you for allowing us to be a part of your little family. I truly have such a respect for you that you are adamant to not share a go fund me and want to be self sufficient, that’s so amazing! Just remember sometimes everyone needs a little help now and again. ❤️
So glad you made a registry for the boys birthday! Hope you like the sneakers we sent the boys 💙 they are so strong and brave! They are all super heros
Oh my word,my heart just cringes at all you keep going through. I am in awe of you guys,being so young and being such amazing parents to these precious little babies! Hugs from Blue Springs 🤗💙💙💙
You’re such amazing strong parents and you especially as their mama knowing and fighting for the best for your babies💙💙💙❣️. I admire your strength and courage, I know that none of this is easy especially sharing this or being a certain way for others. God is always with you no matter what during this journey so don’t ever forget that, so hold your head high🙏🏻❣️. Mental health can be such a struggle in so many situations especially what you’re going thru so putting yourself first is priority so you can be the best mama possible💗. Sending you so much love and prayers for you, the boys and Braxton🙏🏻💜💙💙💙💙❣️😘💗
Good Mama! Women are so amazing! Men too. When it comes to caring and protecting your babies, you go girl! Part of life is knowledge seeking, and you RESEARCH! Some people would take what the Dr say and don’t study up on their condition, or seek more opinions and other therapies! I know these babies are going to thrive! You got this!
My mom had a frozen open vocal cord after a huge chest surgery. It caused problems not only with her voice(sounded like minnie mouse), but also allowed air to escape. They did a pretty remarkable surgery inserting a sylastic wedge to hold the vocal cord closed.
I also want to push for your family so much❣️❣️ and mental health because I lost my son because of the broken mental health/schools/police systems that could’ve helped him!! I never want to see anyone else suffer or go down these paths….
Check with your insurance regarding having a nurse and a CNA at the same time for more than one boy. I took care of 2 medically complex brothers as a nurse and insurance allowed a CNA to be there with me so we worked together to care for them and I handled the more medically complex things such as meds and trachs and vents and CNA did more bathing and feeding. It worked wonderfully.
Thank you for the update! You are so incredibly smart and such a great mom! I think taking Daxon for the second opinion is a very smart idea! Providers should listen to Mothers more, we have great instincts! You are handling all of this better than most would! So smart to take care of your mental health!
You have got this mom and dad. One more will be one more. When they are older, you should go to nursing school. It would be easy for you. Chin up. You guys are doing great. Babies are happy and still smiling 😃
Thanks for the update Aubrey. I'm praying very hard that Dax can go to Boston Children's Hospital. I've heard their the best hospital in the nation to help kids with rare health issues. And on hoping Ezra can definitely come home before his and his brother's 1st Birthday's in May.
Keep up fighting for your boys as a Mother I know how you feel !!!! Insurance company's are a pain they don't want to pay for anything that someone needs I have found that you just have to keep calling and you can go to the insurance commission and file a complaint!!!! Prayers and Love from Oklahoma
Thank you so much. I look forward to these updates and hearing how you are coping on your journey with your fabulous boys. Praying for a good outcome in Boston for Daxon. You’re incredibly strong and I love seeing that you are taking care of yourself by managing your mental health. Getting to one year pumping is a huge achievement and I’m thrilled you can do that and look after yourself Thanks for sharing so much. You help others in ways you will probably never know ❤️
Boston Childrens is amazing. Also the UA-cam channel Meet The Millers had a baby with the same or similar esophagus and trachea floppy thing. Their kid (Jenson) also had many blue spells, honking, needing CPR, but is doing great now.
24:00 I’m really glad you thought about you… I mean really thought of the bigger picture.. you have to be in a stable mind to even attempt to handle this triple effect of taken care of your children… I get the frustration with Daxon at that point. You just want him to really be able to breathe safely. I’m really proud that you put yourself back on track.
Thank you for sharing your journey with us. I happened to come across your website while scrolling and I began watching all your videos. I admire both of you. You are two beautiful parents who I handling so so much and doing a fantastic job 👍 I have been keeping your precious baby boys in my prayers as well as you both and your families and all your boys healthcare providers .. sending love and positive vibes to all.. 💙🙏💙🙏💙🙏
I think it’s great that you’re going down to support your sister for Summit my kiddo does Cheer and they will be down there for D2 we’re going to be down there for the week also it’s important for you to take time for yourself my cheerleader and little brother had a super hard start from feeding tubes nonstop therapies doctor appointments to this day out the Wazoo but one is a competitive cheerleader and the other is a competitive ninja warrior don’t ever set limits on the boys the sky is there only limit! Sending you all our love and support
Has Croix been tested for pylorichstinosis by chance? It's where the small intestine closes and only a bit of milk/formula goes down then the rest comes up in projectile style vomiting. A lot of people are not familiar with it. My son had it but it wasn't diagnosed until after we tried several different formulas. After doing all that and doing my own research with my mom we found info on pylorichstinosis and sure enough that's what it was. Simple lyproscopic surgery and he held down the formula. It's common more so in boys than girls and they say it's hereditary but it's not because nobody in my family or his dad's family had it. It truly wouldn't hurt to ask for that to be checked. It's a quick simple ultrasound. Def worth a shot to push for them to check it. It could make a world of difference.
Hi just found you and your wonderful family first thing I want to say is what a amazing mummy u r to the boys wish I could wave a magic wand and make the boys better for u they will be one day as u will make it happen all that u have done and all that u know is amazing I wish u al the luck and health in the world thinking of u all take care uk 🇬🇧 🤗
Listen Mama, you keep going Mama Bear for your babies. You are doing amazing job with those baby boys. Every day you get up, look in your bathroom mirror and tell yourself I am an amazing Mom!!
You are such an AMAZING mama! Thanks for the updates, so I know how to pray. I have a question....can you sue the hospital for Daxon's vocal cord damage? Or his eye? I know that you would rather have had this not happen, instead of any money. As a retired NICU RN, I know that damage to the baby is a lawsuit waiting to happen. Just putting it out there, but you've probably already thought of it. Sending my love, big hugs, and prayers from GA.💙🤗🙏
Yes mom advocate for your babies!! If your Gut tells you to listen do it! Don’t let nay sayer’s tell you otherwise till your babies are taken care of. I know you guys probably have a lot of stress trying to make Boston happen but don’t let finance be one even if it’s hard to ask start a go fund me! I will gladly help contribute and share. I haven’t been where you are but my mom has with my sister and she has moved mountains to find ways to help my sister and find her the right doctors and we both agree KC where we live has not always been it! You are such a warrior woman keep up the good fight mama!
I am always in awe at how knowledgeable and well spoken you are. I am an early interventionist (currently not working and home raising my 3 month old son) so I see sick babies and their families all the time. No parent I have ever come across has been so well informed. You are a wonderful advocate. There is a reason you were chosen to be their momma. How lucky are those boys. They will without a doubt be okay in the end because you are fantastic.
❤️
I am a Newborn Care Specialist in the Boston area, if you need any help with anything while you’re out here. Please feel free to reach out to me seriously anything at all.
The fact that you will have been able to give THREE BABIES breastmilk for a year is such a huge gift to your babies. I was able to give my preemie some breastmilk for about 7 weeks and I hated not being able to give her more, but I also know I gave her everything I could.
I love how you don't give up ever! They will know one day how hard their mama advocated for them. Glad you are back on your antidepressants. I have to take them everyday. No shame in mental health problems. I am praying the insurance let's you go to Boston..it will happen. Praying all 3 boys continue to get healthy more and more each day. Much love to your whole family. 💙💙💙❤🙏
Your strength is awesome. Many people would shy away from the challenges you are living every day. Hats off to you and Braxton for being the best parents for your boys. There are days I wish I had a magic wand. First place I’d wave it (or stick it) would be to your insurance company. Sharing your journey here in Melbourne Australia and wishing all healthy things for you and your boys. Diane x
I'm alao from Australia lol. My daughter Jennifer Kember was in the NICU for two months , which was hard, but all means nothing nearly close to what you and Braxton are going throught. Our Jennifer Kember came ho me on oxygen, had tohave anti reflex milk plus the pilesand never ever endind supply of medication. And you are tight it is HARD, but we keep going we have to there is no other way. I also had a 2yr old at home with us. His name is Thomas Oliver. ( (Jennifer Kember was a total butterfly, loved cuddles from any one, which made it hard to find her when we would first get to the NICU. THOMMAS OLIVER would run around saying "I have to find my Gentlefur...........can you help me" The nusrses THE AMAZING nurses are absolute miracle workers.I honestly believe that without thd I wouldn't have a 17yrs old sitting in front of md. Mumma just a quick 2 cents trust your gut.... us mummas know. God Bless and sending BIG HUGS LOTS OF LOVE AND PRAYERS From Karalyn Laurette from Perth Western Australia and Family.
Try calling your state representative for your area. They have ways of getting things expedited . They have many experts working under them that maybe able to get your nursing for the boys and other medical help. Hang in there you are doing a great job!!❤️🙏🏻
Continue being the great advocate for your precious boys. Boston Children's is great. The boys have come so far. Trust your mom gut. So hard to believe they're almost a year! A word of caution: If you start a Go Fund Me you have to pay taxes as it's considered "earned" income. If someone, does it for you then you don't have to pay taxes. Check it out, most people don't know beforehand. Hang in there. You are so strong. Continued prayers and blessings.
You are such an inspiration to me as a mom. (Fellow triplet boys mom! ☺️) You have already gone through so much, more than most moms will ever have to go through. You are really the best mom! Those little cuties are lucky!
I absolutely love the fact you find a positive out of situations others would be negative. Like the feeding tubes. You guys are so amazing keep your heads up.
THANK YOU FOR BEING SO REAL!!!! Being patient is the hardest part of being a mama. You’re a great mom!❤️
Side note and you probably already know but- Breast milk also works WONDERS on pink eye! 😍
So happy to hear about the progress they've made! Prayers for Daxy boy, he's strong like his mama so he'll push through ❤
Thank you so much for the update. They (and their parents) are such fighters. My miracle 24 weeker tubie will be 1 in May as well, such an emotional time! Thinking of you all 💕
The strongest family hands down!! You all are always in my prayers 🙏🏻😊❤️ and can’t wait for the well deserved trips!
You were chosen to be their momma for a reason. Prayers for the boys and for you and Braxton of course.
**** Hey, my son was a premie too. Your description of where Croix is at fits to a T with what my son went through. He’s a major puker, he’s past 2 years old now and is still not caught up to the percentile charts. We tried various formulas, did all sorts of testing. When he was 19mo we got our results from his Whole Exome (Genome) Sequencing - the most in depth genetic testing currently available, which is the only test that truly gave us some answers. He has RFX7 Neurobehavioural Disorder, this genetic change is still pretty new to the medical world, the only medical articles about it were published in 2021. In Sept 2021 we were told only 14-15 children in the world were currently diagnosed with it, since then I’ve discovered 2 other families with a child with this RFX7 change through Facebook.
Even if this isn’t what’s going on with Croix, I highly recommend getting this testing done for him. At the very least it will rule out any currently known genetic disorders that go undetected by the standard genetic testing.
My son’s puking comes and goes a bit too. Some days are great with only a few mouthfuls and others he is puking multiple times with nearly every feed. ****
I’ve created a Facebook group for it, its not a very active group but its there for the purpose of connecting families with it.
facebook.com/groups/881453102805074/
Bravo to you for advocating for the best care for your boys. When my son was 2, I knew something was different. At 3 1/2, he was diagnosed as being on the Autism spectrum. If I hadn't advocated for him, it may have gone unnoticed for years and he would have missed out on so much important early intervention. This same son, broke his arm a few years ago. We chose to take him to Boston Children's (luckily we live just north of Boston) and he got wonderful care and had surgery there. Keep fighting for your sons. Always. ❤️. Best of luck dealing with the insurance!
By the end of the year I see all the babies recovering healthier than ever❤️❤️😇🙏🏼❤️😇🙏🏼
I can't believe they won't approve you guys for nursing. Poor Daxon. They damaged his poor vocal chords and didn't say anything. Just...wow. I can't imagine how you and Braxton felt hearing that. But I do hope you get answers you need when you come here to Boston. I'm sending you all the good vibes with insurance and getting approved, etc. You're a great advocate for your boys. They're so lucky to have you. You keep being the voice they need.
Continued prayers for you, Braxton, and the boys! Little rockstars, all three of them!
“They” didn’t damage his vocal cords!! It commonly happens to babies, esp premies because they so little and tissues more friable etc who are intubated for long periods of time or multiple times. Often times it does get better. There isn’t ways to prevent it and there isn’t anything anyone did to make it happen.
You are the BEST mommy. I miss your smile. Just b/c people say your strength is amazing doesn’t make all of this less stressful. Your knowledge is so important to there care now and in the future. You are definitely doing the right thing by going with your gut feelings. It happens all the time things are over looked, not on purpose. I have worked in pedi for 19 years and I completely understand. It is vital for the tethered cord to be released. My friend son had that done and he is now in high school and plays baseball his spine is fine! Keep fighting for these beautiful boys and take your breaks when you can.
Praying for you and your family daily.
God bless all of you
I can't wait to see all the boys home together. Sending all the prays for you and the boys.😍🥰🤗😘😘
I have to compliment you on your knowledge you have gained during your journey with your beautiful boys - you would be the perfect nurse in the real world - however you will be the perfect in home nurse - Aubrey you are amazing!
Thank you so much for this update!! I had premature twins a year ago. They were born at 24 weeks! And I have a medically complex daughter. Your strength is so inspiring! Those beautiful boys are lucky you have you as there momma💙 we know our babies best and are there only voice! Had I not stood up for my daughter she wouldn’t be here today! You are killing it momma💙💙
Sending all the vibes your way mama, to you Braxton , your babies and your support system. It’s frustrating dealing with doctors. But being a strong advocate SAVES lives. Never stop fighting for your babies mama
Stay fierce, you are rocking this. Sending prayers for your continued strength and healing for little ones.
You guys are amazing parents! My son also has VACTERL association. We found out at 20 weeks pregnant with him. He only does not have any trachea/esophagus issues. He was born with one kidney, 2 holes in his heart (they heal up on their own), imperforate anus, butterfly vertebrae, mild hearing loss and a floppy airway. He has had a lot of surgeries and appointments in his life but is a happy 5 year old. I am praying for you and your boys!
You are honestly such a good mum the way even after all your exhaustion ect you fight so hard for your boys . You are such An amazing mumma .. the boys are lucky they got you guys as there parents
Keep up the good work there is a light at the end of the tunnel
You're doing an amazing job with the boys.
I've been a nurse for 13 years, and most of my experience has been in Tracheostomy's, ventilators, and G-Tubes working in Home Healthcare. I currently work with a special needs patient that's 6 years of age, and Medicare will not even pay for GLOVES AND HAND SANITIZER! Private insurance has it's issues too....so I believe every single thing you're saying! Also, they've cut her PT down from twice a week to once a week...UNREAL! just hang in there; you guys will get through this, and things will work out. Prayers for your lovely family.
I am a mama of 4, and they all hit milestones all different times! For example, I had 1 walker at 10 months and 1 walker at 16 months!
Me too had a walker at 8.5 months and my 3rd child walked (we gave in and said ok he walked) he was 14.5 months
Dang girl ... I would for sure have lost my mind already! You are such a super woman of a mother!!! Those boys are so lucky to have you! 💜
Your Amazing honey! You are such a good momma. Fight for these boys and I will keep praying for you all. 🙏
Sending you big time love mama-the lord surely thinks highly of you lady, such is the kind of stress and strain and strength you’ve been asked to shoulder and summon. Soo glad you’re going on a couple trips and taking care of your mental health-being a healthy mama (however we each define it) is the very best thing we can do for our children-you’re a rockstar✨
Thank you for the update on the cutest boys ever! Appreciate you keeping us in the loop. You're both amazing people and parents! Praying 🙏 Mikalyn Daugherty Wpb Florida
You are amazing. I pray for your little family every night with my family. So glad you chose your mental health, if you are not good you can’t take care of anyone else. I’m a proud Prozac mom!
I can see it already see him playing and eating normally very soon❤️🙏🏼😇 he has so much will to live his smile is so bright
I’m sorry for the issues with medical providers and insurance. I hope you have a good experience at Boston Childrens. I’ve been there - you are a great advocate.
You are seriously such rockstar parents! The boys are so blessed to have you. Sending so many continued prayers!
Wow! You are amazing. I was sitting here searching for a gofundme in your description and then you say “just you watching is enough”. I will most certainly continue watching and supporting your family in any way I can! You have such a strong family and are so determined to do this with just the help of your insurance (ugh) and the people you know and love. I think that’s really admirable. Keep pushing forward and keep being persistent and trusting your gut!
Your story is incredible. We only have 8 kids., naturally, one at a time! Mama, you’re my hero ❤️❤️❤️😘
Thank you Hun for the update. You are such an amazing mom. I always said that I may work, but my first and only job is to take care of my kiddos. Their needs are on me, if it's medical, educational, mental or what ever it is...then that's my job to make sure they not only get it, but they get the best. I can't imagine what you both are going through, but I do know that you will not stop until these three precious little boys get everything they need done in order to help them. Big hugs to you sweetheart and kisses to those sweet boys!💙💙💙😘
Great job momma! I'm sure u have many people who are curious about what u r dealing with concerning your babies. I'm praying for your family. Hopefully they will outgrow most of their health problems. When my daughter was a baby she had respiratory problems. Thank God she was caught up by the time she was 3. And she is now an adult with a 5 year old son of her own. He had a few minor issues compared to what your babies are going thru, but we were still terrified to know he had things going on. So it's no wonder u and your husband are having any anxiety of your own. Hang in there! Rely on each other. And u will get thru it. look how far u have come already!
I always say prayers for your entire family... so glad you will be able to get relaxing & fun time away. It amazingly is beneficial in many ways. Remember..ONE DAY AT A TIME.
Don't worry about update videos being 'less interesting'. Being honest these ones I click on as soon as I see them because I care and worry about your boys. The people who are here for you and for the right reasons would feel the same. We're not here for entertainment. We're here hoping and praying for your babies to do well and thrive xxx
Your strength is very inspiring. Thank you for the update on all of the boys. I continue to pray for all of them. You and Braxton are amazing parents. Your strong faith will continue to carry all of you through all of these challenges. Take care and sending hugs and prayers.
First and foremost, you are an amazing mom! All the advocacy you do for your boys is just amazing and I'm sorry the medical system is failing you in many ways. I did want to ask if you have any plan to incorporate baby sign? Highly recommend as it's often easier for small children and with the vocal cord problems it could give your baby an easier language to learn.
Yes we are actually!!! 💕 thank you so much!
Hugs mama, you're incredible❤. You know your boys like no one else, your intuition won't steer you wrong.
Praying for your children and your husband and you hope you can get the care you need for your boys
You sure handle all your boys health issues so well and remembering all the details. Take care of yourself and keep fighting for your boys💙💙💙
What are a great mom you are. Your so intuned to your babies and their wants/needs. Your awesome don't forget that!! ❤💪🙏
Great update! These videos are actually my favorite type. There’s so much going on with the boys and we really appreciate the update!
Keep your spirits up!! I am sorry about the issues with Daxon. I hope you get to Boston for an evaluation. Regardless, with you as his mom, I am sure will be fine! 😍The boys are so blessed to have you as their Mom!
Yes! Waiting for this one! Love you and your family ❤️
The medical system is such a mess… I’ve been trying to get help for my father and it really is a full time job so I can’t imagine doing it for three. You are doing a great job advocating for them! Your family is always in my thought.
This was such a great and informative video, thank you for allowing us to be a part of your little family. I truly have such a respect for you that you are adamant to not share a go fund me and want to be self sufficient, that’s so amazing! Just remember sometimes everyone needs a little help now and again. ❤️
I’ll pray for you and the boys tonight ❤️
I'm so glad you able to explain what to look out for for other moms that are having babies in NICU can know what to prepare for
God picked the right parents for those 3 boys. You are an amazing Mom. Sending healing love and positive vibes. 😊
Prayers for ur boys to grow stronger and heal fast and come home to be together
You're a rockstar! You are doing awesome....stay strong & keep moving forward. I really admire your strength. ❤
Praying for all of you!! God’s got this!
So glad you made a registry for the boys birthday! Hope you like the sneakers we sent the boys 💙 they are so strong and brave! They are all super heros
Oh my word,my heart just cringes at all you keep going through. I am in awe of you guys,being so young and being such amazing parents to these precious little babies! Hugs from Blue Springs 🤗💙💙💙
Woah Mama! You sound like nurse! All 3 of them are so lucky to have you as an advocate!
You’re such amazing strong parents and you especially as their mama knowing and fighting for the best for your babies💙💙💙❣️. I admire your strength and courage, I know that none of this is easy especially sharing this or being a certain way for others. God is always with you no matter what during this journey so don’t ever forget that, so hold your head high🙏🏻❣️. Mental health can be such a struggle in so many situations especially what you’re going thru so putting yourself first is priority so you can be the best mama possible💗. Sending you so much love and prayers for you, the boys and Braxton🙏🏻💜💙💙💙💙❣️😘💗
Good Mama! Women are so amazing! Men too. When it comes to caring and protecting your babies, you go girl! Part of life is knowledge seeking, and you RESEARCH! Some people would take what the Dr say and don’t study up on their condition, or seek more opinions and other therapies! I know these babies are going to thrive! You got this!
Awww i loved the update.. I know they are still things to work on but glad to hear the postives as well...
Hugs and prayers for all of you!! Extra prayers for Daxon!! I JUST realized that the boys share a birthday with my oldest son!!!
My mom had a frozen open vocal cord after a huge chest surgery. It caused problems not only with her voice(sounded like minnie mouse), but also allowed air to escape. They did a pretty remarkable surgery inserting a sylastic wedge to hold the vocal cord closed.
I also want to push for your family so much❣️❣️ and mental health because I lost my son because of the broken mental health/schools/police systems that could’ve helped him!! I never want to see anyone else suffer or go down these paths….
I need a vacation just listening to this. Bless you.
Check with your insurance regarding having a nurse and a CNA at the same time for more than one boy. I took care of 2 medically complex brothers as a nurse and insurance allowed a CNA to be there with me so we worked together to care for them and I handled the more medically complex things such as meds and trachs and vents and CNA did more bathing and feeding. It worked wonderfully.
Thank you for the update! You are so incredibly smart and such a great mom! I think taking Daxon for the second opinion is a very smart idea! Providers should listen to Mothers more, we have great instincts! You are handling all of this better than most would! So smart to take care of your mental health!
I recall when they were born!! I pray for your family every nite
My daughter was born may 7th 2018 ❤ taurus babies are the best 😅😉 praying for you and your sons always!
You are absolutely amazing. As a mom and as a human being in general 🥰
You have got this mom and dad. One more will be one more.
When they are older, you should go to nursing school. It would be easy for you. Chin up. You guys are doing great. Babies are happy and still smiling 😃
Thanks for the update Aubrey. I'm praying very hard that Dax can go to Boston Children's Hospital. I've heard their the best hospital in the nation to help kids with rare health issues. And on hoping Ezra can definitely come home before his and his brother's 1st Birthday's in May.
Keep up fighting for your boys as a Mother I know how you feel !!!! Insurance company's are a pain they don't want to pay for anything that someone needs I have found that you just have to keep calling and you can go to the insurance commission and file a complaint!!!! Prayers and Love from Oklahoma
You're so strong momma!! Prayers are with the your family and that all the boys recover and thrive after all theyve been through xoxo
BCH family here! Definitely worth it! Hopeful for an easy trip and lots of answers!
Thank you so much. I look forward to these updates and hearing how you are coping on your journey with your fabulous boys.
Praying for a good outcome in Boston for Daxon. You’re incredibly strong and I love seeing that you are taking care of yourself by managing your mental health. Getting to one year pumping is a huge achievement and I’m thrilled you can do that and look after yourself
Thanks for sharing so much. You help others in ways you will probably never know ❤️
I’ll be praying every night for Boston to happen! 💙💙💙
Sending some love and good wishes. I can't believe they are going to be 1. Sending prayers 🙏❤
Thanks 🙏 for the update. You and your family are so amazing 😻 and an inspiration.
Awesome update, will be praying for you all! You're doing great ❤️
Boston Childrens is amazing. Also the UA-cam channel Meet The Millers had a baby with the same or similar esophagus and trachea floppy thing. Their kid (Jenson) also had many blue spells, honking, needing CPR, but is doing great now.
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I’m really glad you thought about you… I mean really thought of the bigger picture.. you have to be in a stable mind to even attempt to handle this triple effect of taken care of your children… I get the frustration with Daxon at that point. You just want him to really be able to breathe safely. I’m really proud that you put yourself back on track.
Thank you for sharing your journey with us. I happened to come across your website while scrolling and I began watching all your videos. I admire both of you. You are two beautiful parents who I handling so so much and doing a fantastic job 👍 I have been keeping your precious baby boys in my prayers as well as you both and your families and all your boys healthcare providers .. sending love and positive vibes to all..
💙🙏💙🙏💙🙏
I think it’s great that you’re going down to support your sister for Summit my kiddo does Cheer and they will be down there for D2 we’re going to be down there for the week also it’s important for you to take time for yourself my cheerleader and little brother had a super hard start from feeding tubes nonstop therapies doctor appointments to this day out the Wazoo but one is a competitive cheerleader and the other is a competitive ninja warrior don’t ever set limits on the boys the sky is there only limit! Sending you all our love and support
You are amazing. Keep it up. Remember you are allowed down times but you are one awesome person. And your hubby of course xx
Has Croix been tested for pylorichstinosis by chance? It's where the small intestine closes and only a bit of milk/formula goes down then the rest comes up in projectile style vomiting. A lot of people are not familiar with it. My son had it but it wasn't diagnosed until after we tried several different formulas. After doing all that and doing my own research with my mom we found info on pylorichstinosis and sure enough that's what it was. Simple lyproscopic surgery and he held down the formula. It's common more so in boys than girls and they say it's hereditary but it's not because nobody in my family or his dad's family had it. It truly wouldn't hurt to ask for that to be checked. It's a quick simple ultrasound. Def worth a shot to push for them to check it. It could make a world of difference.
Hi just found you and your wonderful family first thing I want to say is what a amazing mummy u r to the boys wish I could wave a magic wand and make the boys better for u they will be one day as u will make it happen all that u have done and all that u know is amazing I wish u al the luck and health in the world thinking of u all take care uk 🇬🇧 🤗
Listen Mama, you keep going Mama Bear for your babies. You are doing amazing job with those baby boys. Every day you get up, look in your bathroom mirror and tell yourself I am an amazing Mom!!
Great update ... couldnt click fast enough to view the update! Love your family!
You are such an AMAZING mama! Thanks for the updates, so I know how to pray. I have a question....can you sue the hospital for Daxon's vocal cord damage? Or his eye? I know that you would rather have had this not happen, instead of any money. As a retired NICU RN, I know that damage to the baby is a lawsuit waiting to happen. Just putting it out there, but you've probably already thought of it. Sending my love, big hugs, and prayers from GA.💙🤗🙏
Also, check out CHOP Children's Hospital of Philadelphia for any future needs they are great!
Yes mom advocate for your babies!! If your Gut tells you to listen do it! Don’t let nay sayer’s tell you otherwise till your babies are taken care of. I know you guys probably have a lot of stress trying to make Boston happen but don’t let finance be one even if it’s hard to ask start a go fund me! I will gladly help contribute and share. I haven’t been where you are but my mom has with my sister and she has moved mountains to find ways to help my sister and find her the right doctors and we both agree KC where we live has not always been it! You are such a warrior woman keep up the good fight mama!
My thoughts and prayers are with you and your family
Just commenting to say…you are a Poster Momma for “fed is best” & I think you’re amazing!!!!
Your future should be something in the medical field, when the boys are much older and well 👏🏽👏🏽
Sounds like you need the trips for your mental health. Enjoy your time making some new memories.