MDUK Muscles Matter 2022: Spinal Muscular Atrophy (adult focus)

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  • Опубліковано 27 сер 2024

КОМЕНТАРІ • 4

  • @arshadmalikarshi8513
    @arshadmalikarshi8513 2 роки тому

    Pls help us my two son suffering muscular dystrophy... 1..age 12 year.. 2/age only 3 years cpk 8000

    • @MuscularDystrophyUK
      @MuscularDystrophyUK  2 роки тому

      Hi Arshad,
      Unfortunately, Muscular Dystrophy UK can only advise support services available to people living with SMA in the UK. If you would like further information on muscular dystrophy conditions, you can visit our website here: www.musculardystrophyuk.org/conditions.
      Treat-NMD the Neuromuscular Network (treat-nmd.org/patient-registry/muscular-dystrophy-registry-of-pakistan/) are undertaking a patient registry project in Pakistan. If you contact them they may also be able to advise you on support services in Pakistan.

  • @arshadmalikarshi8513
    @arshadmalikarshi8513 2 роки тому

    I'm from Pakistan pls help us

    • @MuscularDystrophyUK
      @MuscularDystrophyUK  2 роки тому

      Hi Arshad,
      Unfortunately, Muscular Dystrophy UK can only advise on support services available to people living with SMA in the UK. If you would like further information on muscular dystrophy conditions, you can visit our website here: www.musculardystrophyuk.org/conditions.
      Treat-NMD the Neuromuscular Network (treat-nmd.org/patient-registry/muscular-dystrophy-registry-of-pakistan/) are undertaking a patient registry project in Pakistan. If you contact them they may also be able to advise you on support services in Pakistan.