THE REALITY OF LIFE ON HOME IVS (10.29.17)
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- Опубліковано 29 лип 2024
- The reality of life on home iv's is that there's a ton of trash!
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Do you feel me on this one? Medical stuff = lots of trash! I guess you could say I’m a trashy person ;) haha. What should today’s get to know each other question be? Help me out, friends! Thanks guys!
what pet do you have name and age would be good and I wait up till after 4.30am Australia time just to watch you. love your entertaining family
Sometimes I watch UA-cam videos from people who are very green and low waste. I aspire to be like them. Then I will do one insulin pump change and I’m like, “Oh yeah, that ain’t me.”
The Frey Life. I understand Mary,my mum dad and myself take tablets for various health issues and theres always a little pile of pill strips at the end of the week
Happy Haloween 🎃
thank you Mary,Peter and Ollie for sharing your lifes with us
sharriegrace Fiesta my cat and she just turned 8.
Maybe a wildlife rehab center near you would be able to find a use for your used syringes, they can clean them out and use them for feeding babies or give oral medication, that way they dont have to spend money on buying them. And 'single use only' means 'use until the plunger doesnt push down smoothely anymore' in the NGO rehab world (:
Sprocking Thank you for posting this suggestion. There has to be more ideas out there.
With those boxes, when snow falls, pack them with snow so you can make frozen blocks for an igloo or snow fort! ❄️❄️🌨☃️
Haha! I literally just suggested the same thing! Great minds think alike, they say!
You guys NEVER fail to cheer me up! I have chemo every couple of weeks & watch some older videos of y’all because you’re so inspiring. Btw, Ollie is THE cutest poodle EVER. Oh & P.S Thanks for sharing so much of your most vulnerable moments with us. Before EVERY chemo session we access my port & the nurses & I say “do what you think you can’t do!” :) I can’t wait to order my shirt - it’s my new favorite quote!
Elle B hope chemo goes okay for you x
Elle B Thinking and praying for you always!!
You guys know me, I'm Chronically ill and pretty much bed bound (Also on IV's and makin LOTS o garbage lol!) and I always love hanging out with you guys so I honestly would love super long vlogs ☺️ 😘 👍🏼 I'm a lover of recycling days too, I hate throwing all of that plastic away so I try to recycle as much as humanly possible!
PS, I use my OVERCOMER bag as the carrier of my accoutrements 😂
The wind has been terrible here in Nebraska and very cold...we had a 3 story apartment building catch on fire yesterday right down the street from me and leave all the occupants without a place to live including 2 morman missionaries...if the wind would have been any worse it would have caught the other houses near by on fire also...please pray for them
I struggle with mental illness but i have found Peters amazing advice on saying noodle helps. Anytime I'm down now I just blurt out noodle no matter what I'm doing out where I am and I laugh a good laugh. Sometimes others laugh with me. Haha
XxXQuietSoulXxX I struggle with mental illness as well!!! Hello fellow warrior!!!!!! 💖💖❤️❤️ Stay strong lovely! 😊
My dexcom site will do that when it's in a place with more nerve endings or is used a lot. You probably are just hitting some nerve endings with it. It can take some getting used to.
I love that look of devotion and adoration on Mary's face when she looks at Peter! Priceless! I know that feeling. I am fortunate to have a priceless precious Godly husband too. Ollie is too cute for words especially when he is holding his doggie.
I agree. We celebrated or 28th anniversary this year. We know we are blessed and we are thankful.
I was surprised to see the dexcom transmitter on your arm. My trainer and the Dexcom people always recommend anywhere on the abdomen as the best place for readings. but obviously this is not set in stone LOL. you and the little girl from the Dale tribe both have it on your arms. I've never had any kind of pain wearing it on my abdomen. the tip of the small threaded piece that stays in your arm when the needle is removed may be hitting a muscle when you move a certain way. When you see the endocrinologist again mention that you don't feel the lows sometimes until it reaches 55 or lower. This is a sign of hypoglycemic unawareness. it another way to convince the insurance company that you need this for safety reasons.
I am very thankful that BOTH of you share your life with us. Thank you.
I just found your channel at like midnight last night and watched until 2 am and now I am out of class and ready to watch more! You two are so sweet and such an inspiration. I can already tell I will be obsessed with you guys for a long time! I know your story has and will help so many people to learn to be positive and find joy in everything. I have seen so much of the Lord and His love through you guys in just a few videos already and that is what I love to find in a channel on youtube. Much love from North Carolina!
Kayli Graves, welcome to the Frey Life family!! Peter and Mary really are such sweet people and their love for each other and for God is such an inspiration and simply beautiful to watch. I've been watching them since before they hit 10,000 subscribers (so right after they got back from Scotland). They're the 1st UA-camrs I watched every single day. Now I watch them and Chronically Jaquie. ☺
It used to be tradition to throw nurses into the scrub trough or bath at work on their last day, but infection control stopped that years ago. So one day we tricked 2 staff members onto the balcony at the end of shift and used the water guns/50ml instead! They are fun!! We haven't done that in years.
Poor Mary, feel better soon. Fiesta sends her love.
I do not have CF, but I had bronchitis last year and used a nebulizer, inhaler, and antibiotics for one month. I would cough so hard which caused headaches like I had never had before in my life. My cough sounded like you today. I CANNOT imagine this is part of your daily routine. It took a toll on my body, poisoned my appendix and I ended up having an emergency appendectomy. My ordeal ends up being so minor compared to CF life. Love the kiss from Ollie. Have a good week Frey family.
Your talking about pumpkin pie made me remember I'm craving it. Now I want a slice covered in copious amounts of whipped cream.
Loving your vlogs over the past few days - I’ve gotten a normal person cold, and as a chronically ill person, it’s wiping me out. But these vlogs are a good thing to watch for me, and it feels like having close friends over the way y’all talk!
Am I just crazy or did Ollie wink to the camera at 4:59 of the video
holly young I saw it too! 😀
holly young I thought so too I thought the wink was there thanks
Peter, Peter, pumpkin eater...😂😂😂😘 I love your videos! God bless you guys and Ollie. 😘
Some non-profit pet organizations use those coolers to make little houses for feral cat colonies in the winter time. I know this is very random but hearing about all your spare coolers in the basement made me think of it!
Good afternoon mary and peter. Thank you so much for being so brave and sharing your life with us. You two are such an inspiration. Always keep fighting
Great ending!! “Good night, get outta here”, lol, how I feel when interacting with people, lol
You should do a vlog of “deleted scenes” sometime with all your extra footage.
I love pumpkin pie too!! And cold is definitely better!
Cold! definitely! With whipped cream or cool whip! :)
right when i got ready to fold laundry i got the notification for this video! perfect timing
Rainy/cool days are the BEST for resting and staying cozy at home. 😍
We could watch you forever! LOL
Mary my mom would always tell me bring it up and spit it out lol....I am sure you don’t on camera but you’re cough today brought back the memory 😊
I like the length of your vlogs guys.
I wanted to say thank you for giving me hope that there is always happy moments in the mist of the lows. And to take things one day at a time.
I just came for the Pumpkin Pie and Oliver kisses! ,😅😂😂
What about a no edit day?
Hi Peter and Mary! I'm a new subscriber. Love your channel! Your positivity makes my days so much better :)
Ashley Bell same here you make me laugh and smile everyday :). So I appreciate it Thank You!
You can make neat community cat (feral) house out of them which can be insulated for winter with straw.
joanie caroon thats what i was gonna suggest too!
We had a pretty heavy frost here in IL last week, and the rest of my beans froze😕 I did containers this summer as well. I only had a few green beans plants and 1 tomatoes plant. I only got like 10 little cherry tomatoes😬. My green beans, I was able to pick almost 2 full gallon zip lock bags. That is going to be part of Thanks Giving dinner for us! We are supposed to get another heavy frost tonight, brrrr! You get some rest guys! Lots of love for you all!💞
The longer the better, could watch you guys all day long
I absolutely love y'alls long vlogs, when I found y'all I couldn't stop watching y'all bring me so much happiness and a feel of comfort that I can't stop watching, I watch y'all especially while I'm doing my makeup getting for my shifts at work because y'all just simply make me happy, I love y'all so much, please bring longer vlogs ❤️❤️❤️❤️❤️❤️❤️❤️❤️
Hi Mary, I was thinking about your children's book.Who better to narrate a children's book about CF than you?You could also illustrate.I think you would really be able to take some fear out of the disease and help parents to get the children to co operate.Either way even self publishing a few is still worth it.You know how it feels and what helps.with love Maz
You guys are so amazing, and you help me have a better outlook on some things I struggle with❤️, so I thank you for your vlogs!😀
Real life is good Freys and it's what we value in your videos - the chance to see how you guys live within the mess of life. Hello from Aus!
Mary, would you consider a mixed box of greeting cards for your store? I would love to see a purple bean card too! Peter, would you ever consider making a series of outtake vlogs? It would be fun to see out takes of you and Mary, of drone footage set to your favorite music, of Ollie and personally, I would like to see how you prepare for your sermons or for a funeral. Thank you both for all you do and all that you are! I am inspired every day!
I absolutely hate that feeling when you breathe and your lungs make that growling noise.. I have that now cause I’m sick! And I can’t imagine having it everyday of my life! I applaud you Mary your doing great things! And teaching everyone so much💕
you are guys are amazing. You are really helping me get through some hard stuff at the moment. Love you all xxx
Georgia Walton I’m so glad to hear that! Keep on keeping on!!!
oh my you guys replied that has made my day. I'm actually crying right now and not in the theatrical way
I could watch you for a lot longer! Great messages.
Mary.. those coolers MAKE FABULOUS plant growing containers :) the Foam keeps the root system cool in summer!
literally as your video started playing my dad came in my room to organize the boxes on boxes of iv antibiotics for this week and I had to lol at your intro...
We gotta find a way to find specialty medical recycling for the tubing and coolers :)
I think your vlogs are the perfect amount of time sure sometimes I would love a long one but I understand that can be difficult but I definitely wouldn’t want shorter lol 😂
Peter trying on the Ollie shirt was soooooo funny. If you started with the shirt the same colour as Ollie then you wouldn't notice the shedding spots so much. Anyway it was a good try and a great idea. Oliver is so cute, I just love him.
I think your vlogs are the perfect length.
8:00 Do you think it's because long sleeves are pulling on the Dexcom when you move your arm?? I'm just guessing wildly.
The videos can be a little long, so I set them to play at 1.5x the normal rate. Manually typed captions always help.
I always wonder if there is a way to make medical supplies more eco-friendly? i do home infusions every other day and theres so much trash and you cant recycle it.
I love pumpkin pie! I like it too Peter when it is refrigerated vs just baked
When I taught high school biology, we used those foam coolers all the time, but they broke down quickly from repeated use and they were expensive to buy. You might look into sharing them with a local high school or college biology lab. I would’ve taken as many as you could spare!
I also love to wach the Dale Tribe. So I was so glad you got to talk with Aspen about your dexcom. She would be the one to talk with about this kind of thing. I was wishing you could talk with them and you already knew them . Right one. I guess I like to watch Aspen and Mary about there blood surger problems because my Anut had diabetes cents she was 10yrs old. So good look and my God help you get through .
Sarah Bender NM
I can deff understand where you are coming from w/all the medical stuff,my medicine box is so full sometimes I feel like mini pharmacy lol
Peter: I think there’s a song about that
Me: Yeah your theme song 😂😂
IV. Lines are great for tying your tomato vines and your green bean plants . They stretch a little and are not very noticeable because they are clear.
I can totally understand the medical aspect of things with medical equipment and supplies. It is 5:15 a.m. and I haven't been able to get much sleep so I decided to catch up on you guys. I have to be up at 6:45 a.m. for appointments all day at Mayo Clinic. Bummed I have to fast, but very thankful all my labs can be done via my port. Woohoo! Going to bring my headphones so I can listen to your older videos again and UA-cam while in between appointments. Hang in there and hope you guys can have a good week! Take care! Love and hugs from Florida!
Love your videos 💙 😊
Why didn’t I think of using my shopping basket to get my Gel’O pillow and iPad upstairs?? Thanks Mary!
I love longer vlogs!
The longer the better!
I realllllly miss when you guys showed yourselves cooking and grocery hauls! Those were always fun!! Also I love you guys and watch daily! 😍😍😍
I love longer vlogs! ❤️
I had a basket but outgrew it so now I use a large mixing bowl
As someone who also has dozens of medical supplies, I also consider myself a trashy person :) So much packaging for so many items!
This is gonna sound crazy, but when you have your deep cough, I find myself wanting to cough FOR you..... crazy, right? Your cough doesn't bother me in the least, but I unconsciously wanna clear your lungs!! Feel better and God Bless
Denise Fallin hahah super empath :)
I have a dexcom for type 1 and I occasionally feel the "wire" in me if I move a certain way. I feel it the most on my arms and legs and not as much when it is on my belly or lower back. It's normal to feel the sensor under the skin.
Mary, I've been thinking about you a lot lately, as I've got a nasty chest cold. Not to say that I equate my chest cold with your CF; quite the opposite! You serve as a reminder that I'm lucky to be as healthy as I am, and this too shall pass. This comment is not wording itself the way I wanted; hopefully my meaning is coming across. Love you!
We use 60 ml feeding tube syringes for so many things water gun, frosting, turkey baster etc. :D Some days I also am like all this trash!! All the boxes I fold all the smaller ones into the biggest one because I need all the room in our blue bin for formula cartons, pedialyte bottles etc.
LOL Mary I have a black woven basket I got at the Dollorama I keep all my medical supplies in. I also have one for my...OK this is funny. My sweetie got a Diaper Bag full of silverware at a Thrift Store auction. I kept and cleaned the silverware. (Some are absolutely beautiful and old too.) I use the diaper bag to store my art supplies in for around the apartment. It is convenient to know I have a bag of all kinds of art supplies for anywhere. LOL
Yes...it is normal to have some pain at the insertion site. Eventually you won't feel it or notice it anymore. But I do still notice it sometimes if I am really cold. (Been using Dexcom for 4 years)
I LOVE HOW YOU ARE SO STRONG AND BRAVE MARY YOU ARE AMAZING 😉
I’m new to your vlogs. I just have a question. I have pulmonary fibrosis and I also have SLE Lupus. I do have an issue with liver issues. Well my question is what do you do for your liver disease, if you do anything for it?
When I had a to use iv bubbles my dad would fill them with water after they where empty and they where fun little water sprayers
Pumpkin pie is best cold!!! 🎃 Also, I think Mary’s basket idea is the best! I would have done the same thing. Very resourceful! 😃
I wonder if those non needle flushers thingy (lol) I wonder if they can be recycled?
I was just thinking.... go to bed, or drink coffee and then you said the same hihi. I got coffee, with 2 kids I need lots of it, to make up for my sleep 😜😂
My pastor spoke about Martin Luther as well. We were in Romans 4 and 5. But he was talking about what October 31st means in Church history. Reformation day
I love watching you too!
I had a PICC line in for three months and I felt a pain when I would move my arm in a certain position.
The Ollie kiss made my day
I use Dexcom, and the sensor can hurt sometimes, especially when you wear it on really slender areas (which seems unavoidable in your case). It shouldn’t be super painful. As long as it’s only when you move certain ways or bump it, I’d say it’s normal. If the pain is constant or extreme it usually means you hit a nerve or capillary...and while it’s not a problem physically, I’d still change it out.
Also, sometimes they bleed, that’s not anything to panic about, as long as the blood doesn’t flood the plastic piece under the transmitter, those can actually be the most accurate.
Insulation for feral cat houses for winter time.
Do you have backup power if the lights go out?
I'm making pumpkin pie for Thanksgiving!!!! (Everyone is talking about pumpkin pie guess I will too) Glad you could make it to church Mary. Be Blessed!!!
Mary, do you have backup for your nebulizer if power goes out?
Thanks for showing ur good days and bad day. But no one is perfect. Ur doing a great job spreading awareness. Ur doggie is the cutiest. Do u brush Ollie everyday? Does he gets knots?
Wakako Tsujita, nope. Poodle hair doesn't knot up at this length ☺
My brother is a diabetic, I can remember using his old syringes as water squirters. Lol great fun for kids. :)
can you bring back the Ollie cam from time to time. Its totally enjoyable
Hi Mary, where did you get your purple blanket? I’d love to order one!
Yay for cold pumpkin pie! I think it should have an emoji. I only eat the guts, though. I don’t like pie crust. I hope y’all have a wonderful week. 🐾🐾🐾🐾🐾
Your comments about the lights flickering made me wonder what the medical implications of a power outage are for Mary? I know all the pumps and nebs and the vest need to be charged, so how long can you go in a power outage before needing to go somewhere else?
Oh my goodness you two are sooo tired. I hope your sleep was restful. 😴
My dad had a total knee replacement and then got an infection and he had a pic line in his arm for a home I.v. antibiotic treatment and we had a ton of those coolers and I used them and the ice packs for camping ans they stay cool and frozen for days!!! :3 so you could use them for that 🖤🖤
I love recycling day too!
I'm use to having pumpkin pie cold as well.
My sister in law who is from Ghana serves it warm, I never heard of that until then.
I prefer it cold, but when she serves it I will eat it warm. I don't want to hurt her feelings. 😊
With your guys’ love of pumpkin pie, have you ever tried pumpkin oats? They my new obsession!!
When is Peter going to drone the fall colors?
My doctor told dexcom is to be place on the upper thigh(above the knee), on your stomach or in your lower back above your waist line(sounds painful haven’t tried it though)
do you use your black vest the one that doesn’t need a cord a great video you could use the coolers for storage or plant pots
I always click so fast on my notif 😂
The coolers could be used for warming houses for outdoor cats.