Endometriosis Story | Diagnosis | Treatment | Living with Endo
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- Опубліковано 28 кві 2020
- My name is Greer! I make videos about my health, living with endometriosis, and all things lifestyle. Be sure to subscribe and hit that bell so you know when I upload new videos!
THIS VIDEO:
This is my story about being diagnosed with endometriosis. After years of chronic pelvic pain, painful periods, frequent infections (both yeast and bacterial), food allergies, stomach problems, and even my hair falling I self-diagnosed with endometriosis.
Since then, I have had laparoscopic surgery, done pelvic floor therapy, chiropractic, traditional chinese medicine, acupuncture, pharmaceuticals, and talk therapy to try and manage my Endo.
Endometriosis has NO cure. It can only be managed and I am doing my best everyday to improve my health and manage my symptoms. I share my journey in hopes that it helps you. Please comment and let me know if there is other content that you want to see.
THINGS I MENTION
Book about endometriosis | Ask Me About My Uterus
www.amazon.com/Ask-Me-About-M...
Videos about my experience on Orilissa
Month 1: • One Month On Orilissa ...
Month 2 & 3 - • Month 2 & 3 on Oriliss... - Навчання та стиль
hi! my name is kaija and i am 16. On tuesday i got diagnosed with endometriosis too😥i had surgery on tuesday , at which they had to cut stuff from endometriosis out ( i don‘t know how to say it in english ) thank you alot for this video, it helped alot❤️stay strong! you are a beautifull strong women❤️
These doctors have to do better. I swear my period is the worst, not normal at all. Never been diagnosed at all,but this could be the problem. I have gotten MRI and etc,but still nothing. They be so dismissive when you go to them about your period. It's so sad. I'm 32 and shit i have no idea why or what is causing my period to be so worst. Systems I have, weakness , I throw up, back pain, pelvic pain,headaches, light headed, sweating cold flashes, feel like somebody stabbing me in my area, I barely can eat ,don't have no energy at all. Heavy bleeding, diarrhea, and when I do work or have an job, I always call out. I barely can walk or wash up to the bathroom. I losted some jobs cause they got tired of me calling out so much. Iam an chef, so. I used heating pads,hot bath. I Been searching, reading up or okay how to prepare myself when my period comes every month. Blood cloths , just tired.
@Briana Ankels they really are not thorough enough I do not understand it, its shocking actually
Nancys Nook group on Facebook is the best. Not a support group but a group you go to find excision specialist/surgeons. Information on endometriosis, so so many articles and studies, doctors, nurses, etc many people advocating and providing resources. It has been the biggest eye opener for me.
This group is absolutely amazing definitely worth following them. And the people who create it are so beyond helpful. I could ask for help on a certain thing and they would respond within an hour or so. This is such an amazing group
I wish I had discovered this 10 year ago , its a brilliant gem so helpful
I’m so glad you’re back.
Just found out I have endometriosis 2 days ago. I can’t wait to have surgery because I am in so much pain. Feels good to know I am not alone. Praying for any woman going through this. 🙏🏾❤️
Great video and insight and detail thank you for sharing. I shared my story recently on here and I was SO shocked how many woman I knew that were suffering from Endo too!!! I pray many woman are blessed by your story xxx And lets keep shedding light on something that is played down so much xxx
Thank you for sharing your story!! So many things are linked to Endo that we don’t realize at the time. I’m so thankful for ladies like you that are willing to speak up and speak out!! We have to be our own advocates unfortunately. But it only makes us stronger!!
Oh man your story is just like me ! Kept going to doctors and everything same !!! Omg ! Now I’m 49. I went in and demanded surgery so in three months I get one . I had to tell them no I want surgery took 3 different doctors to say ok ! I just hope I make it before then ! The pain and issues is so debilitating! For me it stops me from doing a lot of things . I missed so much work because I thought it was all GI . Thanks for doing video.
Ohh my god this is my life 😭 I got diagnosed when I was 19. I am 30 now and had all the symptoms you had. I just had my second surgery and got diagnosed with stage 3-4. I have been suffering for years with stomach issues and have never been told it could be relate to my endo. I feel like I am sensitive to everything. Thank you for sharing your story❤️
Everytime I see one of these videos I get emotional. I've been in severe pain for over 5 years, and to hear that my painful periods and everything else I've been going through all my life actually had a name and no one could tell me all this time, makes me so sad. :(
Thanks for sharing!
Thank you for this! I had surgery in 2004 and have been on hormones since! I think it’s time for surgery again do this helped so much!!
I’ve been waiting for more videos from you. It’s amazing to see others stories and how they manage their pain and other issues that come along with endo. :)
An ovarian cyst is a fluid-filled sac that develops on an ovary. They're very common and do not usually cause any symptoms. Most ovarian cysts occur naturally and The Best treatment is Natural Herbbal Remedy, get Agbara Herbal powder mix this with Warm water and shake it very well take it once daily .It will also help you to get Rid of Endometriosis Use it and this will go away within 3 weeks...... web.facebook.com/profile.php?id=100046460064213
Thank you so much for sharing your story 🙏🏻💕💕💕💕💕💕💕💕
I am so glad that I found you channel! I love your personality 💕
More on advocating for yourself at the dr office
Yes - this is so important
Please! I feel like I get all jumbled when they ask my symptoms.
I start to feel like I'm crazy and they don't believe me.
@@WeirdlyLizzie try making a checklist of your symptoms and cross things off as you discuss them with your doctor during your appointment. I'm gonna try this next time cause last time I got caught off guard and got too nervous to bring up my full symptoms
@@WeirdlyLizzie keep on going and pushing ,its not you its them ,its your health to so ask to see another doctor until you get the result you want x
I'm Brenleigh I am 20 and they're pretty sure I have it getting checked again soon. Your video was really inspiring , keep posting. :)
Omg!!! I’ve been waiting for this post! Thank you for updating. Let me catch up later.
Yay! So glad! I am back to making videos and will have lots of new content coming out soon.
Thanks for this video! I am in the process of trying to get diagnosed. I have had many of the symptoms you discussed, but when you mentioned BV and yeast infections, that blew my mind because I’ve been dealing with that as well. I thought I was going crazy. I thought I was alone. And dealing with that is horrible. Thank you, thank you, thank you for this video! I am subscribing and would love to hear more about the actual surgery process. Like what exactly do they do and do they cut your stomach or what? That’s the part I’m scared about. ❤️❤️❤️
got to love the cat in the background! super video thanks for sharing xx
I feel like I literally lived this.. I wish I had found this video while I was in the middle of it all.
Thank you for posting this. As a 20 year old who has had periods since age 11 that consistently cause me to miss class and stay in bed and constant GI problems... I needed this. I feel constantly blown off by doctors and just thrown on all sorts of birth control that never help, but they never seem to believe me when I say that something else is seriously wrong, I am very in tune with my body and things are getting progressively worse and no one will help, and it helps to know others deal with this as well!
I hope you manage to see a doctor that will help you ,ask for someone that specialises in it or see another doc do not feel bad about it either wish I had earlier took years for me to be diagnosed
You should do an updated version of a day in the life with endometriosis. Your videos have helped me a lot. I was diagnosed at 17 and im 21 now so it's been a struggle trying to figure out what a good treatment for me is. I've had already 5 surgeries. Right now they have me on the depo shot along with percocet because my pain is just unbearable. I remember I tried orilissa and it was the WORST. Excited to see you back!
I will do an updated day in the life for sure! It may be a bit bland because life in quarantine is not as eventful. Maybe I can throw some things I do to cope with endo pain in there.
I am so sorry to hear that you have struggled so much and for so long. I feel you and know how real the struggle is.
Thank you for your videos. Are you able to have caffeine without flare ups also do you have sugar in any form? Thanks! X
Watching this video makes me want to cry because I’ve had all of these symptoms for years and have been dismissed by every single doctor. They tell me I’m completely healthy but I know something is wrong. I’m making an appointment for my OBGYN today & refuse to be dismissed any longer! ♥️ thank you for sharing your story!
Try to use AGBARA HERBAL MEDICATION TO GET RID OF THIS OKAY
If You still have Endometeriosis, Just fast get Agbara Herbal powder to get Rid of it very fast
michelle herbal powder can't get rid of scar tissue from endometriosis.
@@haleyschaffer1339 What do you mean?? Go are get Agbara Herbal powder mix with Bitter Lime Shake it very well take it before your breakfast in the Morning and Evening for 3 weeks and that Infection will be cured okay,,
keep on going do not give up , ask to see another doctor until you get what you want ,doctors are dismissive and careless to be honest ,It took yeeeaaars for me to be diagnosed that should not be the case , wish you all the best x
Trying to focus on you but kept getting distracted by your adorable kitty❤ but seriously thank you for sharing your story!!! Im Trying to get diagnosed myself
Hi! Stumbled onto your channel! LOVE so much about this. Wish I could buy you coffee and chat for hours. Thanks for posting!!
Greeeeer!!!!!
Was the surgery worth it? I mean besides the fact that you officially got diagnosed which is great! Besides that, did it help with pain? I kind of felt discouraged when you said you were still dealing with endo life. Idk what I expected but I sure thought it would help a lot...
This helps me a lot my dr think I may have it
This sounds like me. Everything I constantly get infection. Been to millions of GI, urologist, pelvic area, stomach pain, and I've been on so many antibiotics, had so many labs and they always come back saying nothing is wrong. Leg pain and back pain.i can't ibuprofen or Advil or anyting else like that I can only take Tylenol and that doesn't work at all.
I wouldn't wish this on anyone
This was really helpful. I think i have endo but on the lower side. I have always had painful periods since 11/12 years old. I have always had bad cramps and heavy bleeding. I got on birth control at 18 because of my periods. My body hates hormonal birth control , so i switched to a low hormonal birth control pill. It has helped but i still get very bloated, cramping all month, painful pains after sex sometimes, and heavy bleeding the first few days of my period. I am getting tested for it soon.
Did you think that getting the laparoscopic surgery helped. I'm also suggested by my doctor to do it.😭
Again, thank you for your update. I recently came across your channel and instantly subscribed. I think I can attest that a lot of us women experienced the pre-diagnostic era where endometriosis is considered taboo to many people. I have been called crazy since my teenage years and currently, I am 30 years old who was diagnosed two years ago. I am glad that your doctor never gave up on you and continued to guide you through this journey. After your laparoscopic surgery, did you notice a change in your endo symptoms positively or negatively? Are you currently on any medications to treat endo symptoms? How is pelvic floor therapy? Also, what made your doctor test you for the additional conditions? What were the protocols for that? How do you convince your doctor to even take that route? I’m sorry for the number of questions.
I am so glad you found me! I am pumped to be back to making videos! I just made a new video with a full update on my health. I answer about life after surgery and continuing pelvic floor therapy.
I am not currently on any medications for my Endo specially. I do use CBD and THC for pain management through.
I got my doctors to keep testing me because I kept going back with more symptoms. They could not keep me away lolz! I talk more about that in my new vid as well :).
Currently looking for doctors to help get a diagnosis. Based off an ultrasound they feel like this may be the case for me. I have noticed I've had many of the same symptoms you have experienced. Please send me good vibes, and lots of strength to get through this journey. Its extremely painful, I cry all the time and I'm tired of not living my life to the fullest. I just want to feel normal again.
An ovarian cyst is a fluid-filled sac that develops on an ovary. They're very common and do not usually cause any symptoms. Most ovarian cysts occur naturally and The Best treatment is Natural Herbbal Remedy, get Agbara Herbal powder mix this with Warm water and shake it very well take it once daily .It will also help you to get Rid of Endometriosis Use it and this will go away within 3 weeks...... web.facebook.com/profile.php?id=100046460064213
hello! my name is cherie and I am a honors undergraduate student researching endometriosis for my virtual summit presentation in may. I recently just stumbled upon your youtube and saw your video about your story. I was wondering if I can use part of it in my research video. my goal is to bring more awareness to women’s health.
Can you please elaborate your symptoms further? Thanks!
Great video! Has anyone noticed the cat though?? 😂😂
Me! 😂 I was listening and then I see her cat. Lmao
Hi poh..same case to u♥️❤️♥️thank you for inspiring us♥️❤️♥️
How long was it between your appointment and surgery?
How did the IUD work out?
Thank you for sharing your journey! I'm recently in my worst bit of endometriosis, I've been puking for 2 weeks, unable to move due to pain and very out of it all the time. I am either have profuse diarrhea or I am constipated. I waking up 2-3 times a night to use the bathroom to pee.
My most recent gyno wanted me to go on Orlissa but after reading the side effects I decided it was not the best move for me. I'm trying to save up money so I can pay for the surgery myself. This has been an extremely difficult time but people like you help me through. Thank you
YOURE BEAUTIFUL AND I LOVE UR KITTY😃
do you have an instagram to follow as well? love your videos
I had two cyst that didn’t go away when i found out i had endometriosis
This is exactly my story....😪😔 I am sorry for ur pain girl, I so understand what u r going through SAME SHIT...THE DOCTORS are so shit...they are so ununderstanding especially MAN Doctors!!!
Omg🙄girl... Its like I've heard my own story with this disease😪
Hey Greer, I have just been diagnosed with endometriosis. I am scheduled to have scheduled to have surgery in April 4 days after my graduation. I am curious about your surgery and post surgery experience.
Xx Nothing can compare the joy in my
heart for being free from this terrible
disease fibroids, for 2years I suffer
from it not until I saw a review on
how Dromocure on UA-cam Cured
someone from Fibroids…I contact him
and bought his Herbal.☘️ medicine lucky for me
I was cured and free from this fibroids pain with the help of his herbal medicine....
Email ( dromo596@gmail. com )
WhatsApp. +2349033505260
. Dr Omo can also help you get rid of gallstones, Endometriosis, Ovarian cysts, Herpes, Pcos, low sperm& weak erection , Blocked tubes, infections, Infertility & bleeding. Please help me share Dr Omo herbal medicine work fine no side effects .x ✝️ ☘️ >>☘️_*∆xx.
I’ve been dealing with this sharp pain on my right side of my lower abdomen, then my lower back hurts . This pain is sooooo bad to the point where breathing hurts . I’ve gone to the hospital and was sent home cause I was “ fine “ all the urine and lab work and CT scan came out fine . I visited 2 doctors and ultrasound and x rays came out fine . But how ????? I’m still in pain !! Please help .
Have you noticed if its around the time you ovulate?
Ligia Ruiz yes and it hurts more when I ovulate and before my period . I ended up having a 2cm cyst , I went to a gynecologist and she didn’t say much I felt like she was whatever about it even though I told her I was still getting pain , all she said the fluid they found was because my cyst ruptured already and that’s it , all she said my cyst is small so if it hurts I can drink ibuprofen, like seriously that didn’t help at all , I will probably find another gynecologist.
@@crisly20200 I was in the same boat a few years back. I ended up on birth control for a few months and then I stopped and got pregnant. It was intentional (we wanted a baby)and actually helped for a while but unfortunately its back and more painful than before. Push for the endometriosis and if you have to switch, do it. I was told the same thing, take ibuprofen, take tramadol. At one point i was given amitriptyline because I was told I had a nervous stomach. Don't give up ok? Fight for treatment because nobody knows how you feel but you.
Push for laparoscopic surgery hun. DONT let your doctors hush you. You have the legal right to tell your OB/GYN that you have requested them to attend to you to get a surgery or to take you seriously and they haven’t so you are able to document it and usually that will push the doctor to do the surgery or take you seriously so they won’t lose their job. I know it sounds a little harsh but honestly doctors need to stop doing that. No one knows your body like yourself.
Same here! It’s the worst when they tell you you’re “fine” when you KNOW you are not.
this all sounds verrryyyy familiar , I wish there was a miracle cure ,I'm going to try the vegan diet as nothing else helps at all , sending lots of love to everyone suffering with endo , great video xxx
i have endometriosis as well
An ovarian cyst is a fluid-filled sac that develops on an ovary. They're very common and do not usually cause any symptoms. Most ovarian cysts occur naturally and The Best treatment is Natural Herbbal Remedy, get Agbara Herbal powder mix this with Warm water and shake it very well take it once daily .It will also help you to get Rid of Endometriosis Use it and this will go away within 3 weeks...... web.facebook.com/profile.php?id=100046460064213
Do you have any social media i could get in touch with you. Your story is similiar to mine and i have yet to be diagnosed
With your hair loss, did the surgery help you with that? I can’t find lots of information on hair loss symptoms
Usually, hair loss is a PCOS symptom (She said she has it too; and I do too have both endo & pcos).. It can improve through diet change, vitamins etc that will equilibrate the hormones
I want to know will you ever be free of pain or are you?
I have endometriosis too my love I know how it can be
I've had irregular periods for a while now. I had my usual "pms"cramps before my period started and it eased up towards the end of my cycle. The day after my cycle ended I began having the same "pms" cramps. I'm now on day 6 after period ended. I had to leave work because I had a headache in the back of my head. I felt very weak like I was going to faint.
Right now I have a headache at the top left of my crown of my head.
I've been having leg cramps /upper thigh pains like I usually have right before period. I also have lower back pain that is consistent.
Does anyone know if it could be endometriosis??
Hi there. How r u doing? Did you find out what was it? I am having the same symptoms but can't go to the Hospital due to covid. Hope you feel better. Tk
Xx Nothing can compare the joy in my
heart for being free from this terrible
disease fibroids, for 2years I suffer
from it not until I saw a review on
how Dromocure on UA-cam Cured
someone from Fibroids…I contact him
and bought his Herbal.☘️ medicine lucky for me
I was cured and free from this fibroids pain with the help of his herbal medicine....
Email ( dromo596@gmail. com )
WhatsApp. +2349033505260
. Dr Omo can also help you get rid of gallstones, Endometriosis, Ovarian cysts, Herpes, Pcos, low sperm& weak erection , Blocked tubes, infections, Infertility & bleeding. Please help me share Dr Omo herbal medicine work fine no side effects .x ✝️ ☘️ >>☘️_*∆xx.
A couple months ago I got pain in my right ovary. After an ultrasound they said I had 3 cysts 1 the size of a tennis ball. A month later I was still experiencing pain on my right ovary it hurt to push and just sit. I’m constantly on a heating pad. (I’ve always had really severe periods btw) so they did a check up ultrasound. All cysts were gone but one on my left side was BARELY too big for normal. And because I was still experiencing pain on my right side (where nothing is showing up) my gyno sent me in for a mri with and without contrast last week. Yesterday I finally got the results saying I had a lesion inside of my left ovary suspicious of endometrioma (endometriosis) or a weird type of cyst I can’t remember the name. I know it’s endometriosis. The doctor says to start birth control and if it doesn’t feel better in 3 to 6 months I will probably need to have surgery to actually diagnose me. While it’s scary, I feel so much better watching this. I’ve had so many issues over the last I don’t even know how many years. I got diagnosed years ago with IBS and now I’m wondering if maybe it’s because I have endometriosis. I always had a suspicion that I had it but never wanted to self diagnose but hearing it come from a Gynocologist mouth is a totally different thing.
Have you tried herbal medications it worked for me with no side effects whatsoever with the help of DR MABOSA HERBAL on UA-cam I'm a living testimony
@@lisamatthew7094 I have no but I will definitely look into it. Thank you!
@@Paramore433 trust me you will be surprised how fast his herbs works
I recently went to the emergency room for how bad my period pain was (I was screaming in pain unable to walk)
I was told that nothing was wrong..I have already been to the emergency room 4 times due to pain
My doctor cannot see me right now and I’m losing my mind I am about to lose my job I need help and no one believes me :(
Any advice?
Find a new doctor.
Pain during sex is what threw me over the edge too it was so bad that in would vomit and have diarrhea and it would literally ruin the mood
An ovarian cyst is a fluid-filled sac that develops on an ovary. They're very common and do not usually cause any symptoms. Most ovarian cysts occur naturally and The Best treatment is Natural Herbbal Remedy, get Agbara Herbal powder mix this with Warm water and shake it very well take it once daily .It will also help you to get Rid of Endometriosis Use it and this will go away within 3 weeks...... web.facebook.com/profile.php?id=100046460064213
Endometeriosis , Agbara herbal medication will help you to get Rid of this
If there’s one thing I’ve learned it’s that you can’t get rid of endo but thanks
@@lillialewis3 Have you use Aloe Vera Herbal medication before???? You have not use anything on this if you have it, just 3 week use natural herbal medication okay You will get Rid of it
Endo Warrior
I think I have it too I’m scared 😭😭😭😢😢😢
An ovarian cyst is a fluid-filled sac that develops on an ovary. They're very common and do not usually cause any symptoms. Most ovarian cysts occur naturally and The Best treatment is Natural Herbbal Remedy, get Agbara Herbal powder mix this with Warm water and shake it very well take it once daily .It will also help you to get Rid of Endometriosis Use it and this will go away within 3 weeks...... web.facebook.com/profile.php?id=100046460064213
I have all of these symptoms I go to the endocrinologist the end of this month I have been to the doctor's & emergency room numerous times they have done a pelvic, ultrasound CT scans ,everything I have really bad abd pain it feels like a stabbing, I'm always nauseated, & I have gained so much weight its crazy and very depressing.
*am filled with joy and happiness with my family today, because of fibroids my tubes was blocked for 5years after using Dr Omo herbal medicine I was able to shrinking my fibroid naturally, I just give birth to a boy🤱🏿last month here*❤️ Dr Omo herbal medicine work perfectly well he can also help you get rid of Endometriosis, Ovarian Cyst, Pcos*
Did you go to a real excision surgeon?
I have this I can’t do this 😭😭😭 I hate it
An ovarian cyst is a fluid-filled sac that develops on an ovary. They're very common and do not usually cause any symptoms. Most ovarian cysts occur naturally and The Best treatment is Natural Herbbal Remedy, get Agbara Herbal powder mix this with Warm water and shake it very well take it once daily .It will also help you to get Rid of Endometriosis Use it and this will go away within 3 weeks...... web.facebook.com/profile.php?id=100046460064213
I am currently going through the process to see if I have Endometriosis, at this point i think its pretty clear that I have it. I also have been suffering from infections, did you manage to cure the infections, if so how? Great Video btw!
*am filled with joy and happiness with my family today, because of fibroids my tubes was blocked for 5years after using Dr Omo herbal medicine I was able to shrinking my fibroid naturally, I just give birth to a boy🤱🏿last month here*❤️ Dr Omo herbal medicine work perfectly well he can also help you get rid of Endometriosis, Ovarian Cyst, Pcos*