Preparing for Endometriosis Surgery | Vlog Pt 1

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  • Опубліковано 28 лют 2021
  • Links to my ultimate endo surgery checklist, timestamps, and parts 2 & 3 (surgery day & recovery) below!
    Good days and bad. 5 years in pain. 1 in 10 women. #Endometriosis
    Endometriosis is so much more than painful periods. For me, it was daily pain that prevented me from sleeping, eating, hanging with friends, and even work sometimes. It was being the one in the group who is shamed for not being able to have gluten, dairy, sugar for fear of flaring up symptoms. It was not being able to enjoy a drink with friends without guilt or an excuse plan. It was being the annoying friend who had to stop every hour on a road trip to go pee. It was screaming at the top of your lungs when someone tells you the pain is in your head. It was avoiding group trips for fear I’d have a flare up that would leave me in bed. It was waking up with the equivalent of a stomach bug every day for 5 years. It was not being able to sleep for nights on end from pain that radiated from my low back to my toes and fingers. It was being ignored by doctors for 5 years. It was telling my fiance we might not be able to have kids. It was asking for a sick day at work for the 10th time this year. It was talking to my boss about a potential medical leave because I was in so much pain.
    That was my endo experience, but it’s different for everyone. Unexplained pelvic/low back pain (especially but not limited to your period), bladder & bowel issues are the warning signs although you can only have one of these symptoms and still have endometriosis. I share my story in hopes of helping anyone who finds themselves in the same boat. Reach out to me before you spend the next 5 years in pain like I did. To fight endometriosis, you truly have to be your own advocate.
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    Part 1 | Endometriosis Surgery Prep: • Preparing for Endometr...
    Part 2 | Surgery Day: • Endometriosis Surgery ...
    Part 3 | Recovery & Complications: • Endometriosis Surgery ...
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    Download my Ultimate Endometriosis Surgery Checklist!
    Includes:
    -What to Purchase Before Endo Surgery
    -Endo Surgery Bag Checklist
    -Bowel Prep Hydration Schedule
    -Questions to Ask your Dr Post Op
    -Post Op Medicine Schedule
    -Post Op Meal Ideas
    -Post Op Meal Checklist
    -Post Op Water Checklist
    -Post Op Walk Checklist
    Link:
    docs.google.com/spreadsheets/...
    ----------------------------------------------------------------------------------------
    TimeStamps:
    :23 | Emotions before Endo Surgery
    2:21 | What Endo Feels Like
    5:36 | Preparing for Bowel Prep / Looking Forward to Surgery
    7:37 | Tracking my Fertility / Ovulation Pain / Managing my Pain
    9:26 | Bowel Prep Day Begins / Day Before Surgery To Do List
    11:37 | How Endometriosis Changed my Life
    12:18 | Schedule for Bowel Prep Hydration
    14:03 | Bowel Prep Begins / Asking my Dr for a Light Bowel Prep & Why
    16:38 | Treating Myself to a New Comforter & Pillows for Post Op
    17:35 | Anti-septic Shower
    18:21 | Clothing for Surgery Day & Post Op (Linked in Surgery Checklist)
    20:28 | The Ultimate Endo Surgery Checklist
    22:34 | Packing my Surgery Bag
    23:31 | Best Way to Stay Hydrated before Endo Surgery
    24:02 | Night Before Surgery / Overview of How I Prepped
    -----------------------------------------------------------------------------------
    Learn more about endo & find a dr by joining the Nancy’s Nook for Endometriosis Facebook group: / nancysnookendoed
    To find a list of surgeons, go to the files section, open the Surgeons International Excision Surgeon list and search that document for your state or country.
    -----------------------------------------------------------------------------------
    TikTok: @julia_schuller for more videos on womens health, endo & PCOS!
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КОМЕНТАРІ • 70

  • @kaiballington55
    @kaiballington55 2 роки тому +5

    “It hurts to breathe.” True words.

  • @Quit3Cut3
    @Quit3Cut3 Рік тому +14

    I’m super excited my surgery date is December 22nd. I saw the surgeon in July and finally scheduled. My mri confirmed I have deeply infiltrating. I’m just so happy to know I have it and excited for some relief soon. I thought I was going crazy there for awhile. I feel all those emotions as well. Finally getting answers at age 34 and been dealing with this since I was 10.

    • @juliaschuller2012
      @juliaschuller2012  Рік тому +2

      wishing you well on your surgery

    • @brendac2960
      @brendac2960 Рік тому +1

      I have surgery December 5… I’m scared but more excited for all this to be over… wishing you a great surgery and recovery…. Let me know how it went

    • @minimallyleah7208
      @minimallyleah7208 Рік тому +1

      WOW 😳 what's deeply infiltrating? That sounds scary! How did your surgery go and how are you feeling? I don't have endometriosis. I have uterine fibroids, (supposed to have adenomyosis) and a little bleeding ovarian cyst 😱😭
      I'm sorry that you've been suffering for 24 years, I know it's not easy. I've been having the epic heavy periods resulting in chronic fatigue, fibromyalgia and iron deficiency for 14 years.
      I'm going to set up a myomectomy surgery for mid April hopefully. I can't decide between minimally invasive or the open surgery, which is more thorough and longer down time.

  • @aheartbeatific
    @aheartbeatific Місяць тому

    You are an angel! I’m having a surgery for fibroids as well as my doctor is going to check / look at endo stuff. I am gonna use your checklist and adapt. Thank you for this! This is invaluable.

  • @debbielynnsmellowminutesme7909

    I love your lists and checklist and recipes for smoothies.. thank you

  • @minimallyleah7208
    @minimallyleah7208 Рік тому +1

    Thanks for sharing your story and your detailed surgery prep list resource. You're a gal after my own heart--highly prepared! ❤️
    I have to get a myomectomy to remove uterine fibroids. I don't have endometriosis as far as I know but this is still super duper helpful as I prepare, research and set things up for myself.

  • @deirdresversion
    @deirdresversion Рік тому

    Thank you for posting this with the Endo Surgery Plan! My surgery is on 4/20/23 and I'm very nervous / excited!!

  • @thelettersfamily
    @thelettersfamily 2 роки тому +1

    Thank you for posting this! So comforting as I’m preparing for this surgery!

  • @chayreed4264
    @chayreed4264 Рік тому +1

    Thank you so much for sharing your story and your checklist! I told my recovery nurse about the checklist and she wished everyone used it, as I was very prepared. Thank you again!

  • @amyannshipyor4096
    @amyannshipyor4096 Рік тому +2

    I suffered from the pain from endometriosis for years and did not know it. I went in to have surgery and it was found.

  • @Daniellejcarty
    @Daniellejcarty 3 роки тому +3

    Thank you so much for sharing this, I’ve got my surgery tomorrow and this is so helpful ❤️xx

    • @juliaschuller2012
      @juliaschuller2012  3 роки тому +2

      You’re going to do great and feel so much better 🤗❤️🍾

  • @kaiballington55
    @kaiballington55 2 роки тому

    I did the exact same thing. Cleaned all the sheets, etc. Have a new comforter.

  • @shifastudios879
    @shifastudios879 Рік тому

    Thank You so much for A-Z Info!!!!

  • @audreyd6725
    @audreyd6725 Рік тому +5

    You and all of us endo women are so strong. Also, Todo is adorable ❤️

    • @NightPonyLauraTheCarrot
      @NightPonyLauraTheCarrot Рік тому

      Hysterectomy

    • @audreyd6725
      @audreyd6725 Рік тому

      What?

    • @NightPonyLauraTheCarrot
      @NightPonyLauraTheCarrot Рік тому

      Did you had hysterectomy

    • @audreyd6725
      @audreyd6725 Рік тому

      No dear not as of yet. I'm quite young for it, and a hysterectomy might not solve my other problems anyways. But maybe I might go on a pill to stop my period altogether though

  • @itzy_love2
    @itzy_love2 3 роки тому +1

    Thank you for sharing 🙏🏻

  • @deirdresversion
    @deirdresversion Рік тому

    Toto is also the cutest!!!

  • @Dollyland1713
    @Dollyland1713 Рік тому +1

    I’m having surgery this Friday I’ve never had surgery and I’m scared this has been the most mentally draining months and I just pray I will feel better afterwards

  • @l.michelle5629
    @l.michelle5629 2 роки тому +2

    I just had my second laparoscopy Thursday, totally know this feeling. I found my surgeon on Nancy's Nook as well.

    • @juliaschuller2012
      @juliaschuller2012  2 роки тому +1

      I hope it went well! 💓

    • @l.michelle5629
      @l.michelle5629 2 роки тому

      @@juliaschuller2012 it did, he found a lot my first surgeon a non nook dr missed, I wish I did my research before.

    • @Evettecord
      @Evettecord Рік тому

      Who was your Nook surgeon? Are you still happy with your excision surgery?

  • @aaronabercrombie4610
    @aaronabercrombie4610 3 роки тому +1

    Content on point.

  • @ashleigh5016
    @ashleigh5016 3 роки тому

    I get the cold thing too

  • @jessayjones
    @jessayjones 2 роки тому +5

    I always pop magnesium citrate in the freezer to get really really cold and I get the lemon flavor and sip some sprite while downing it. Makes it kind of like a lemon lime type of experience lol

  • @samdale3019
    @samdale3019 Рік тому

    Your Endometriosis surgery vlogs have helped me no end, thankyou. I'm due in for mine 25th May 23.
    I wanted to ask though, what breed is Toto lol. He's just gorgeous. I had to let my dog go very sadly due to my ill health :( xxxx

  • @animaestaudt
    @animaestaudt 3 роки тому +2

    toto is the ultimate packing partner and i love him

  • @danielledewitt1
    @danielledewitt1 Рік тому

    Yes Toto, just like my dog.

  • @Hope93942
    @Hope93942 2 роки тому

    I'm Amish and got a kick out of how you thought you looked Amish or Mennonite in the long gown😊 I'm also going for Endo surgery soon and your video was helpful.

  • @rachdanaelee
    @rachdanaelee Рік тому

    My left kidney has felt rather suffocated. Confirming endo in 4 weeks though yay!

  • @gemmavanrooyen1668
    @gemmavanrooyen1668 3 роки тому +4

    I'm so glad that people like you are doing this. I am in for my second lap tomorrow and it helps so much. Also, word of caution... My EWCM comes 4 days BEFORE my ovulation and I got preggo when charting like you did. So do temp as well! :) Wishing you lots of love and sending pain free vibes!

    • @juliaschuller2012
      @juliaschuller2012  3 роки тому +1

      You're so sweet! Thank you for the heads up!! I'm still getting the hang of charting, so this is great to know.

    • @gemmavanrooyen1668
      @gemmavanrooyen1668 3 роки тому

      Pleasure! It was a happy accident, but I was completely thrown by it, so felt I should warn you! 💛

    • @juliaschuller2012
      @juliaschuller2012  3 роки тому

      @@gemmavanrooyen1668 appreciate it :)

  • @karajohnson2184
    @karajohnson2184 8 місяців тому

    So it does take 2 weeks for recovery? My surgery is on November 3rd. I'm excited and nervous and scared.

  • @gloriawhite2214
    @gloriawhite2214 2 роки тому +2

    Great day everyone want to say a big thank you to Dr Mabosa on UA-cam 12years of PCOS gone and ENDOMETRIOSIS gone!! they told me i won't be able to conceive right now I'm pregnant 😊soon to be a mother 😍 after years of pain and hurt.....

  • @kaiballington55
    @kaiballington55 2 роки тому +1

    In the hospital right now after laparoscopic surgery.

    • @juliaschuller2012
      @juliaschuller2012  2 роки тому +1

      Hoping you have a quick recovery! Remember to take deep breaths even if it hurts to breathe to avoid atelectasis.

  • @ryleighkate3505
    @ryleighkate3505 Рік тому +2

    My surgery is in 8hrs!!! So nervous but ready to get this over with lol

  • @serena7418
    @serena7418 5 місяців тому

    What symptoms do you experience if you don’t mind me asking? 💖

  • @OlisaPrice-qq1wm
    @OlisaPrice-qq1wm Місяць тому

    How are you doing right after getting your Endometriosis surgery jullia)

  • @starlovesyouu
    @starlovesyouu 2 роки тому +1

    Is your pain better now

  • @starlovesyouu
    @starlovesyouu 2 роки тому +1

    How much magnesium citrate did you have to drink ? How does it taste

    • @itsagoodday2165
      @itsagoodday2165 2 роки тому +1

      It tasteless me, adding sea salt helps with the taste.

    • @starlovesyouu
      @starlovesyouu 2 роки тому +1

      @@itsagoodday2165 wow 😯

    • @starlovesyouu
      @starlovesyouu 2 роки тому

      I’m kinda nervous to drink it for mines

    • @itsagoodday2165
      @itsagoodday2165 2 роки тому +1

      @@starlovesyouu you will be fine. It’s a one time thing in a sense before surgery. I did a gall bladder cleanse which is why i had to drink it. Sea salt right after it help me tremendously

    • @starlovesyouu
      @starlovesyouu 2 роки тому

      @@itsagoodday2165 thank you