Відео

I’ve been on it for about 3 weeks. I’ve had hot flashes a couple of times. My pain is down significantly. I haven’t had any bad side effects yet (hopefully won’t get them) but my libido has been a lot higher and it wasn’t low before I started.

This was really helpful. I think i have endo but on the lower side. I have always had painful periods since 11/12 years old. I have always had bad cramps and heavy bleeding. I got on birth control at 18 because of my periods. My body hates hormonal birth control , so i switched to a low hormonal birth control pill. It has helped but i still get very bloated, cramping all month, painful pains after sex sometimes, and heavy bleeding the first few days of my period. I am getting tested for it soon.

those crazy showers, food and self care are some of the best times of the day :,)

😭😭😭😭 I always compare myself wishing I could do a get ready with me but I can barely brush my hair most days. Stave 5 endo and other autoimmune disorders plus mental health trauma. Will we ever feel mormal

Pain is a daily occurrence, the level of pain is undecided until it comes and smashes your mind and body into an un ethical submission, anyone who thinks we are over exaggerating, you are welcome to spend 24 hrs... I know you may tap out in 4, this isn't a joke disease, it has robbed me of my 30s 😢

This is me every day... especially the neck pain😢

I wish I could send this video to my job , family, and every friend i ever had

Change ur diet, take out sugar, dairy, all process foods, try a holistic approach.. onelove

Trying to focus on you but kept getting distracted by your adorable kitty❤ but seriously thank you for sharing your story!!! Im Trying to get diagnosed myself

It was challenging and unbearable because of how critical my health situation was. but I am grateful and happy to have ordered Dr Aluda herbal supplements on UA-cam which I used and it shrunk my multiple fibroids🥰🥰🥰

Avoid teflon pans

I’m in pain 2nd day on orilissa…. It made me nauseated & muscles felt so weak is this normal My back hurts my legs feel heavy

What blood test did u have done Oh the liver right ? I’m so nervous

Just began my rx today and took my pill Praying it helps but I really think I’ll need my ovaries removed too…

💕💕💕💕💕

So much regrets right now 😢 I should have gotten this prescription before a hysterectomy.

not feeling well My endometriosis is back and extremely painful Dr says to also remove my ovaries if pain meds doesn’t help ., I guess removing my uterus was pointless since she told me endometriosis is in the ovaries and painful each time I ovulate … it’s soooo painful .. I’m 41 years old I literally called my mom sobbing 😭

When I'm on my period I can't stand, even when I laugh my abdomen is so hurt. I can't use strength on my belly or abdomen part.. can't stand straight 😢

i commend your strength !!! it’s not easy at all to get up. i’m currently curled up in bed in pain watching this. Thank you!!!

Thank you 🙏🏽 I’m watching you from Liberia 🇱🇷

Wow im balling in pain i cant even walk

As someone with endo, I've occasionally thought about recording myself when I'm in massive amounts of pain. Not for pity points of course, but to capture the reality of the condition. I'm 26 and still dependent on my parents, and trying to figure out how I can work because I can't sit for more than 20 minutes at a time (if that) and being on my feet is also often really painful. I spend most of my time in my bedroom, lying down with my heating pads, and I'm definitely guilty of hiding my pain from others. I don't even allow my own family to see what I'm like at my worst...because frankly when I feel like shit, I want to be left alone, and there's really nothing anyone can do to help anyhow...and I don't want the people I love to beat themselves up for not being able to help. I commend your playful/positive energy, despite having to walk to your appointment, sit and wait for the bus, work, go to the grocery store, then cook when you finally get home. It's really difficult to stay positive or even resembling 'sane' when you feel like your body is sabotaging your functionality.

Thank you so much for this. Also, I must say, your drive and tenacity is so beautiful. You are a gem. 💎❤️

When. I'm on my period I'm tossing and turning and screaming I cannot show anyone when I'm goin threw it I can't do nothing! Let alone get outa bed! 😢 So sry ur going threw this too ..I promise I felt like I was the only one for awhile 😢 I cannot do none of that when I'm on my period just the thought of food makes me Wana vomit

My back and bowels hurt. It is horrid.

Thank you for sharing this!! 🤔

wow shocks me how well you’re managing. i can’t even make it to work or classes. stuck in the bed all day, can’t keep food down at all. i’ve been given soooo many prescriptions and still no real results.

I think the worst is the constipation. I agree I love cbd oil . And not eating meat and diary and vegan I thought it would be hard but it’s not .

I love the squatty potty !

Oh man your story is just like me ! Kept going to doctors and everything same !!! Omg ! Now I’m 49. I went in and demanded surgery so in three months I get one . I had to tell them no I want surgery took 3 different doctors to say ok ! I just hope I make it before then ! The pain and issues is so debilitating! For me it stops me from doing a lot of things . I missed so much work because I thought it was all GI . Thanks for doing video.

Thanks for doing these videos. I have this pain it’s so bad and I have surgery planned for 3 months out . Doctor wants me to take Orilissa or she gave me the progesterone mini pill . So which is worse ? Is it better just to take nothing just wait ? I get a lot of pain with endometriosis normally with nausea and some constipation and all over place and I eat good and changed my diet too . This is so frustrating. A lot of cramps and pain . Thanks !

Anyone get bad flu and cold symptoms in orilissa?

Thank you for sharing. I'm in pain alot and my good days seem to be the pretty limited, I completely feel you on this. Looking beautiful on the outside, feeling like crap on the inside. 🙏🏽♥️

You are such beautiful soul! You are taking care of yourself great.👍 I am just recently diagnosed…

what helps the most with cramps sounds easy but its hard but dont eat or drink anything cold it sounds weird but the cold will make your cramps way more brutal

Orilissa shrunk my tumor and eliminated the excruciating pain, BUT, it also shrunk my skeleton, permanently it seems. Couldn't fit into clothes ..became skin and bones

Thank you for making these videos on your experience with Orilissa. I'm 34 now and I had my first surgery at 23 to confirm I had stage 3 endometriosis and to remove all the growths and cysts. I was put on Lupron at first and that drug was making down right insane so I eventually got off of it. I was able to get pregnant with my daughter soon after and for 8 years I've been on an injection of Depo Prevera. My body started getting used to the Depo shot so my endo has been growing back slowly over the past couple years and now it doesn't work at all. I've been dealing with some pretty bad pain for the past 9-10 months, and it feels exactly like it did 11 years ago before my first surgery. My OBGYN put me on Orilissa a month ago and I found videos like yours of women who have actually been on it. The Orilissa has help to take the edge off of my pain but it's still there and some days it feels just as bad as it did before. I am getting the same symptoms with my liver already along with muscle tremors (especially in my lip and hands) which Orilissa is the only new medication I've been on in years. I feel like I am hungover, very nauseous, thirsty, cloudily brain, and I quit drinking 6 years ago. I've had hot flashes, insomnia, feeling fatigued and thinning of my bones for 11 years now with all the hormone drugs I've been on so that wasn't new, but the liver damage is a new thing. Thank you again for these videos, just confirms I need to get my liver tested at my next appt. My next step is finally getting a hysterotomy, I am so done with the pain and all the hormone drugs I've been on.

Thank you for doing this video I have endo and fibro and the pain I feel most days is not fun I can't work and now have developed seizure ur so strong and amazing I want to send u the biggest hug 🤗 thank u for showing people this love u

Thanks for bringing awareness to what we battle through daily! It's really a tough illness!!

Hi there Greer. I am so happy I came across your channel. I am an endo survivor dealing with the same symptoms you have, at the age of 21. I got diagnosed with endo in September, 2022. I had chronic pelvic pain, chronic back pain to the chronic fatigue. Living with this condition is horrible and I honestly don't wish it on anyone. For so long, I was trying to find a youtuber or someone on UA-cam that can discuss living with their condition as I have never heard many stories on this condition. I am glad to hear you have been diagnosed with many new symptoms and that way it can help with treatement. You are very brave and courageous to discuss this with your subscribers as many are dealing with the same symptoms almost everyday. Thank you for sharing your updates Greer, It really helps and I am praying for your health to improve and for to continue with getting the right treatement as this is important. I pray we all find a treatment that works very well for all of us dealing with this condition.

I experience severe period pains constipation my poo in pellets OMG

I suffer so badly from this disease. I called off today because I pushed myself too much at work yesterday and have nausea and pain. Orlissa has been helping me greatly though, takes the pain to a manageable level.

I’m on day 6 of this medicine I don’t think it’s really helping to be honest. I’m still having a lot of pain, constant spotting, hot flashes, nausea. Also the joint pain makes me feel like I got run over by a truck. It’s so unfair what we have to go through.

I started orlissa yesterday. After the first dose I was curled up into a ball on the floor. The joint pain was all over and excruciating. I also felt like I wasn’t in my own body. I’m on day 2 and I still have the joint pain, but my stabbing endo pain is all gone. I can’t believe how fast this medication works. I’m having surgery in 2 months for severe deep endo.

Watching this today in 2022 while I have a bad endometriosis flare up! It helps inspire me and help me not feel so alone! Thank you so much my fellow Endo warrior 🤍

I take the 200mg 2x a day. I’m currently 4 days in and I honestly already feel better. I’m supposed to be ovulating today and only minor pain and bloating. So much better than before.

I completely understand I suffer with endometriosis getting a hysterectomy next month which im so sad about but im at a breaking point. Hope your ok 🙏

Thank you so much for these videos. My dr prescribed this, and quickly went through the side effects, I had to do the research on my own, and I was terrified to start this med! I sent her several messages wanting clarification on things, such as would I need a bone scan, should I take calcium and vitamin D, should I have my liver tested periodically, and the response was just reiterating side effects and I felt as though my concern was being minimized. I did start taking it, out of desperation, and I’m very nervous about the potential side effects. 😬

I started this med 9 days ago, after a hysterectomy a year ago. I have severe endometriosis and the pill, or mini pill causes mental side effects for me. My dr suggested I try Orilissa, they got it pre approved before I went to the pharmacy. I picked it up and let it sit on my kitchen table for 2 weeks. I finally decided to bite the bullet and start taking it, I had to do something or I wasn’t going to be able to continue working! So far I haven’t noticed any weirdness, but it’s only day 9. Thank you for posting this.

I'm late but I started taking it 3 months ago. I had abdominal pain, headaches and hot flashes. So far it's ok but the joint pain. I may have to stop taking it later