Exclusive: The Boy Who Can’t Be Hugged
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- Опубліковано 1 жов 2024
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The Doctors are joined by Patrice and Matt, whose son Jonah has Epidermolysis Bullosa (EB), an illness that causes his skin to be extremely fragile and blister with the slightest touch.
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Seeing him in pain brought me to tears that poor child I just want all his pain to go away.
BTS' 8th member jungkoooookkk
BTS' 8th member me too. just can't stop crying like crazy, thinking "oh my God, poor little boy. he's so cute and handsome"
i really2 pray to God that they'll find something to cure this.
BTS' 8th member ARMY's everywhere
iPark Jiminie_kook ikr😅😂❤
BTS' 8th member Poor sweetheart
Awww, poor baby. You can tell he is in pain all the time! I feel so bad for him. He's such a sweetheart!
AWWWWWW POOOR BABY
Srsly when did youtube become the pussiest place on earth?
Dan dan AWWW WHY DON'T YOU JUST SHUT THE FUCK UP:)
Ill pray for you!
Anna Justice You're a nice woman, Anna. God bless u
Ignore stupidity....they will learn that it gets them no where. Don't let people get you upset!
This video made me realize how lucky i am 😢
Omg if anything was to happen to my baby
Alaho ukbar
Ikr Seeing All Of these people Go through this hard things, God forgive me for overreacting about a scrap or a paper Cut.May god Bless the m they don’t serve this.
Me too
Omg I hope he has a good rich life with lots of respect
While I'm here complaining about a small cut. He is so strong!.
Lol
I'm weird . . . I know!; most people do plain about every small cut. While he's here, getting his skin sheared off!!
You fuckin care😉
Poor baby :(
ikr i love u btw
Lady Baguette wth
thatmexican guythough she's kinda a famous fortnite gamer lol
right..? but he’s a strong one!
CHRISTIAN HERNAN Lmao tf that has to do anything
I hope they can find a cure so that this boy as an adult may know a pain free life. I guess we all dream of a cure for many things.
Moe Wilson they wont unless they glue his skin together
On a realistic stand point of what Jacinto said, There really cant be a cure. Its all about the skin not sticking to his body, how would you think of a cure for that? well I've come up with a little scenario, I just did some quick quick research and found that the thing that holds your skin to your body is supposedly called fascia, maybe theres a way to give a shot to the kid that increases the fascia that his body generates as it would obviously not be enough without it. But I doubt Fascia is the correct thing that holds the skin to the body.
Moe Wilson yeah I hope so poor baby😢
Moe Wilson same thing with you I hope he fell much better
me too ♥
Poor baby! I've seen this before and it hurts my heart to see these babies in so much pain!
Olivia Ivy I'm in so much pain I couldn't finish the video
F.T Nalu Lover I know its so hard to watch. 😢 you just want to take the pain away.
***** well they actually don't know until the child is born.
Olivia Ivy poor little boy
Olivia Ivy Yeah! even though I'm not a mom and dont know what it feels like.
I feel so bad..He’s One strong kid. Stay strong Jonah! 🙂😄
Thats so nice 😢😌
Aww that proud young boy you have showed me and taught me so much from this video be strong
YASSSS GIRL
it hurts me when i see my daughter in pain or sick. i could not imagine how i would feel if he were my son. talk about feeling helpless...
chavy,same😳poor thing.prayers for them
there only some things in the world that just happen i ahve 2 holes in my heart and im alive and heathly
chavy o
chavy
Mnb
H
chavy k,mnh
that's so hurtful 😭😭😭 not to be able to hold your own child it makes my eyes rub water and hurt my heart I will pray for him
Naomi Giddings 😭♥
"...To deeply love someone gives you courage..."
true :')
ya :')
bcc bg i
I were the 666th like 🔺
depressed girl this is a child
1:43 The kid who can't get hugged
Thanks for the likes
Not a hug just got hands hovered beside him like a hug
exactly
Aaron Ibrahim ik I realised that
Aaron Ibrahim oof
Aaron Ibrahim lol
Don’t worry, the 885 people who disliked this were vaporized by Thanos.
They could have disliked it because they don’t like what the kid is going through. Otherwise, yeah, you go Thanos
Thanos: I kinda like this world, it's beautiful, I should go on social media to shar-
*the 885 people that disliked this boys video that has EB*
Thanos: you know what.... FUCK IT *snaps fingers*
Ethan Nelson now its 912
disliked. still feeling good
Ethan Nelson it is 936 now
i feel so bad he does not deserve this ☹
It's just a little kitten! No one does😖
It's just a little kitten! Ikr
Ili's World yeah
It's just a little kitten! Ikr
It's just a little kitten! No one deserves it
I say I hate myself and my body... I just realized how lucky I am... And how strong this boy is...
Challenger Shallow true.
Bro never say that to ur self ur lucky to have that body never hate anything of urs always be grateful
upbestonepunch noob *pats your back* *whispers* Im trying to be your friend so you don’t hate me...
Yes i agree
Poor baby😭 keep fighting
He is a strong baby
supreme boi stronger than me and I’m a 12 year old
Not really
Volire shut up
idk lol idk lol they weren’t talking to you
idk lol idk lol I was not even talking to you!
He is so strong
ItsYourCuber Im a CUBER.
ItsYourCuber thats si true
Ol
No he cries alot
There are times when crying is appropriate if my skin blisters and rips off, bleeds everywhere and I get cuts just by being touched I think it would make sense if a young kid would cry. Just stating the obvious...
I hope there's a cure for this one day 😔 I can't imagine for someone going through pain every minute, everyday, for their whole life. Idk how he's gonna live later on when he's an adult, most likely he would still have to be watched over. But God bless him ❤️
Claudette Purisima yea there is a cure, its called praying. I mean it feels wrong to pray for something to go away , which god created. so yea but just keep praying. praying seems to work
Mike Randall Do you seriously think that simply praying is going to cure his condition?
Nebula Storm your clearly not familiar with sarcasm
How is he gonna live... their are adults in their 60s with this condition. I am 16 years old i am praying to god I live to be 60. So you comment really hurt to an EB child
I really hate seeing this boy in pain, he's miserable. I would hate going through this every day.
My mom just told me she had 2 miscared baby's and my older brother died at 4 months I didn't know for 10 whole years
random 12345678910 welp not my problem
@@camothunder7129 seriously why would you even say that if you think that way than don't say anything at all it sucks to lose people just please don't be rude at all it makes me mad and how rude people are on this Earth.!
@@kyleighkinealy7181 imagine if his brother didn't die would the person commented would probably never existed unless there were twins
@@tony-_-doge what?
@@camothunder7129 fuck up
*This boy's life must be a living hell, I feel bad for him.*
I feel bad for him
I don't
GAME MOTION dumbass out noob
Screw you
@@poliop246 dont wish that to people
Poor kid that must of hurt a lot 😭😭
Aylin Tabanico must have*
OML I'M AT THE SAD PART OF UA-cam AGAIN
Waffle Mc.Unicorn HAHAHA SAMEE
Waffle Mc.Unicorn IKR
oh yes
Me too
What is about OML?
His cry hurts my soul. You can tell the pain is unbearable 😭.
Whr is God? Things that make question his existence
You look like my firend vannasa
@@lmss3309 how you know there Cristina
@@lmss3309 I understand. But God has a wisdom behind all of this, and He will provide recompense.
It pains me to see him like this, but he's happy, he just has to go through some pain. But he's my inspiration
yeah me too its so sad but hes so strong
Yeah
I was the 666 like 😂
Edit: but yes I agree with you it’s a good thing that he is happy 😊
feel so sorry for .........him god bless you
Radha Rawat Why you are sad he survived he is a kid hero he is playing with toys and he has a happy family!
WolfGamerHereGR because he'll have to suffer for his entire life, don't get me wrong he's an amazing kid and hero but I just wanted to explain why they probably felt sorry for him
At least it appears that they realized their trouble with having children and decided to adopt though :)
Courtnayo I know I was so glad. It's nice to know there are responsible parents out there despite what it seems
Courtnayo exactly what I was thinking... I saw a documentary of a mother who had a daughter who grew excess skin and it was so painful for them yet the lady decided to have another kid knowing the chances of passing on that problem was high. The second daughter had the same thing! Smh!!
Kimberly En I saw that documentary... so sad. the father was so upset with his wife for that because he didn't want another child in that condition. she was so selfish...smh
+Tiara Robinson so not wanting to give birth to disabled kids and not ruining their life is selfish now...? Lol.
R.rockiegirl she's saying that the mom wanted another child despite the risks and the father didn't, hence why she's selfish. I think you misread the comment
I feel so bad for him I’m praying right now
No you’re not you’re are typing
Phantom killer I like to help people
Frick Man
Your god made him suffer like that. Just saying
lisi the anime memer It was original sin that brought this pain - darkness it the absence of light; bad is the absence of God. While we’re separated from God, out of Eden, badness is near. When we’re with God in heaven, all badness, evil, suffering will be gone.
When I saw him starting to cry, I was like, oh no, it must have really hurt, and then my body just started tingling. 👀 I hope he’s ok now.
Well unfortunately I don't think there's a cure for EB. All his parents can do is treat him well and love him.
When I heard him start crying, I was thinking aww, poor boy and almost started crying myself because he's to cute.
my sisters boyfriend has this condition and it's gotten a lot better. I hope his gets better too :(
that is wonderful! I was hoping to hear that the condition can improve. I'm sorry that your sister's boyfriend is still suffering though :( hope he can eventually recovers fully from it
Haley Baker. have a GREAT. day
Lizzy Helvik my sister is very young and she has it but she acts very normal because she is
oh God please heal this boy! asking ur son's name Jesus!! touch him Jesus with your blood! bless this family!!pray in Jesus name!!!thank you. we Love you !!!!
According to your religion, God created the boy that way. He therefore created this illness. Are you saying he made a mistake? Also, what kind of God would give an illness like that to a child, make him and his parents suffer, and then heal him because you're praying? Freaking nonsense.
Terry Fox none of that was addressed to you and your disrespect is rude and unnecessary. If you don't believe in something that's great. But have some respect and dignity towards those that do
Oh....what part of this is disrespectful? to say that your god supposedly created this illness and gave it to that child because it's part of his plan? or the fact that's it's absolutely cruel? or the nonsense part...
Terry Fox you couldn't have said that better, I can see where you are coming from, your not being insensitive about the boys situation. your pointing out the facts about a so called god. I'm on your side for this one. people need to open their eyes and know what's real.
All I'm saying is it's really easy not to be a twat... apparently you guys can't see that though
He a nice baby with a nice hart
Heart**
Yea dang i forgot the e 😂😂
@Alexander MacDonald you dumb fuck for calling someone dense that's correcting someone hahaha that's called smart maybe you should read a book or start school?
The baby who cant be hugged
*Hugs him*
😒😄
@@unnaturallynormal 4>3
Lmfao
*Also kills kid like a dumbass*
I hope God helps this poor boy and his family
laila and I hope that science helps him.
Gr8er than u m8 me as well
laila yee
laila why would god create this?
laila to be fair, I'm atheist too, but I just chose not to challenge your beliefs because I accept them, though I may not agree
A lot of parents would just leave the baby to adoption and move on
I love ppl that care
Kacper slezak yess they r great parents and plus the kid is a brave kid
Kacper slezak if that was my son I'll put him in foster care
Ari Mai why?😢😭😢😭😭😢
DerpyARMY._. YASS he can make his own decision
DerpyARMY._. YASS he's allowed to make that decision.
I sent all my prayers to this strong kid she is amazing!
This kid compare to some spoiled ppl that throw a fit for something small, this kid is greatful 100% 💗
peachy elle 1000%
I am nine andi am spoiled so shut up
Warrick Rhode lol its nice to be spoiled idiot
No...can someone explain to this kid who a spoiled brat is.??Its someone who will most probably throw a fit if they dont get the new barbie doll house or the new gta game.Thats the type of spoiled you are.the kind of ungrateful kind of spoiled kids.Its some body who doesnt appreciate what they get at times cause they so used to getting expensive gifts.so..shut the FUCK UP YOU SPOILED BRAT.
Norhan Sallam Fuck off spoiled brat
I think the most painful thing is that he’s smiling. He’s happy always in pain.
Dear Jonah,
I love you so much, I’ve seen 4 and a half minutes of you and you have inspired me to always be happy, because things could always be bad, but you have to be happy! I love you and I care about you! You are my inspiration, my hero, and I want to be as strong as you. I would love to meet you someday! You are amazing, keep fighting little buddy!
Love,
Jen!
I like Waffles
Meaningless comment
Love u Jonah u r inspiration for many of us.. u r amazing baby n you are a true fighter..
JenVlogz you suck!
So nice EZ SUB FOR U
1:42 they hugged which is friction... nevertheless I feel bad for the kid
zPatchmade-_- they mean like a full hug probably but I don’t know just an idea
let me take his pain. he doesn't deserve this.
god bless you.
God bless you man
God bless you 🙏🏼🙏🏼
Are you fucking kidding me.... People are believing your bullshit, congrats
God bless you.
EB is a torturous illness. It's heartbreaking that they have to be in such agony all the time.
The sad thing, is this illness will kill him. EB sufferers rarely live to old age.
Can't imagine people with EB surviving till then. It's such a painful thing to live through it every single day.
Sharlee Coulton awww poor kid!! Literally all I wanna do right now is pray for him
I have the mild version of it thank god. I was born with 4 layers of skin and a problem with the layers bonfind. but I am not in pain what so ever thank god. My prayers are with the worse off sufferers
Who ever freaking dislikes this video has no heart at all!
TagReactZ Amen
They disliked because they don't like what's happening to the person. Would you like a cat being in pain, or a baby crying?
CandyGamer exactly :(
I don't have a heart. I just like it to like it. But I do feel empathy. I guess.
TagReactZ well it is bad that he has that, but the vid was good. If that make sense lol
Oh baby boy..hearing him cry breaks my heart..he's such a beautiful boy 🌺❤️bless your family
This is So Heart Breaking It Makes My Chronic Pancreatitis Seem so Small. Wow God please Heal this baby.
Hope your bouts with Pancreatitis cease!
Thank You So Much.
Lillian Trevino may God heal you also
Thank You So Much.
gods not real
Poor boy, it just hurts me to see him look like he got beaten up by a bully
oh god just imagine him being beat up by a bully! he might be dead if that happens.
@@juIianstag Yeah, it's the law of probability. With 7.5 billion + people it's very likely to see some individuals with rare neurological and/or physiological malformations. Some people are bound to undergo the extremities of life's wrath. Anyhow, we can assert with confidence that his bad hand is a product of nature, some would call this nature "God".
Well I get beaten up by bullys all day every day so idc
Youre so rude
GAME MOTION
I see you all over the comments acting like an asswhole to this kid. Who hurt you?
My friend has EB. He has bandages wrapped around his entire legs and sometimes his arms. It's because there's no skin under those bandages. He's covered in scabs, blisters, scars, and even blood blisters. I feel so bad for him, but he is just a normal teenager on the inside. He's just like the rest of us. I won't say his name out of respect. But he was featured in a documentary called My Skin Is Killing me or something along those lines when he was a kid going through his first treatments. He even has imdb credit for it.
Tell your friend I said I hope you find a cure.
my brother had it
Sooshi Cream Technically you're right, but who wants to actually go through the trouble of finding the persons identity.
Sooshi Cream True, I forgot to think about pedophiles, they would sit up all night trying to find the person.
Raspberry_Pi_961
He smiles more than I have done living for 14 years
Wtf?
The amount of respect I have for this child is insane. He is stronger than I can ever imagine anyone to be. My prayers go out for him and his family.
These 334 people who disliked have no heart and are cruel and have no life...
Mr Troll even trolls have hearts. I now have faith in humanity
They probably disliked coz it made them cry or hated to see people in pain
Mr Troll so you like to see a kid in pain...
Jk
now its 534
Mr Troll maybe they thought the video was too sad for them because they can’t handle seeing a little baby in pain all the time. Or it’s your reason
Is Depressing to see too many young childrens go htrough alot of pain. May God bless each & every single one of the kids & families tht are going through times like this ones💛.
"Hardships often prepare ordinary people for an extraordinary destiny." If Jonah had it all easy, maybe he wouldn't be half as brave a boy as he is nor would he be the inspiration he is to everyone who hears of him.
Xadion We don’t always understand what is happening, why it’s happening, but bad things happen for the best. I’m not saying that problems aren’t real, that you shouldn’t be sad - you should be, it shows you care. While you can cry because of what someone does, who God does not control the actions of, or when something you can’t explain happens - but when you believe it’s God’s actions, cry with reassurance that it helps you or someone else somehow, you could find out how tomorrow or perhaps after you die, but it is for the best.
what a shit excuse. Not everything deserves a "metaphysical" explanation. Your god didnt do shit because god is not real, gods are created by men to create FALSE comfort, to fool yourself into believing everything happens for a reason and that everyone goes to heaven when they die. In reality, this kid suffers because of bad mutations that were formed during his formation in his mother's womb, simple as that.
Rottie Robben You do know that believing in God is not incompatible with science, right? Science explains the how, religion is a possible why. Even if it isn't the real one, it isn't a completely illogical one either. Just because you can't prove the physical existence of something, that does not mean it isn't real.
@@armindarodrigues3415 religion is a false explanation though. Why are there hundreds of different religions all claiming to know different things? There's your first clue that religions are all wrong.
God bless Jona,you will be healed i promise
i dont know how i got here , i usually dont get that sad or emotional , but after watching this i just hope that he gets better
aciDD it will get worse when he hits puberty since any type of friction can hurt him. Poor kid
I hope one day when he's feeling down he notices that his blisters and cuts begin to disappear 😪😭😭
ACIDGAMER X1903 this is not a laughing matter because this emoji 😭 is laughing just like this one 😂 if you don't understand the emojis are laughing so hard they cry
Lincoln Loud the 😭 is a crying emoji, look at the mouth. It's not grinning like this one 😂.
i am a Nurse and I have a few of those Patients. They have a very hard life. It is not only the Skin affected, also the Internal Organs like the Esophagus, so most of those patients cannot eat solid food.
Salvatore Escoti um ok Then interesting
William Has Left The Chat
Salvatore Escoti You fucking nerd neck.
@@richarl3291 stop cusing
I want to take all his pain away 🥺😭 he’s literally the most precious human being,I’ve never cried so much 🥺🥺😭😭😭
When I saw the boy smile it brightened my day
Kyla H In a way that sounds cruel
Kakashi Hatake How?
Woman Cheese he's in pain with friction but I don't think a simple smile would hurt though
Woman Cheese When she saw the boy it made her happy in a way if you think about it it sounds like she is happy when she daw the boy with his disease
s a big hugger myself the sadness I feel for Jonah is excruciating. I believe that he will get better. I respect you Jonah and hope you find a cure
And to the 403 people who disliked this... Have you no kindness?
AidenMakesStuff 550 dislikes 😕😖
AidenMakesStuff problem is they have kindness and know this is incurable because it's a defect in the DNA system. So it's not about finding a cure or praying for that, but the simple thing they just need to life with it. So I hope you'll understand its pretty mean to hope for a cure, when there simply will never be one.
How is it mean to hope for a cure?
Tara Moynihan it's a fault in your DNA system, you cannot repair your DNA. That's the God's element of being human.
AidenMakesStuff amen
This is really painful... I just cant see my child go through this...
When the mom starded with rhe tears i starded with the tears
People who disliked it must of had they're phone upside down
Kody Eynon I think they would of noticed if they’re phone was up side down and the phone screen will flip to the right side so get your facts straight
Mary Watermelon chill, it’s just a joke. You must not know the internet.
Kody Eynon *their
Mary Watermelon shut up they are just that they are not very nice people and how could you dislike this
oh my god thats so terrible... can't imagine the pain his parents must be feeling
WHO IN THE F##K WOULD DISLIKE THIS
The parents? Imagine the boy.
I am almost crying 😢😭
Oh...nope....yes, I’m crying 😭😭😭
1:15 you welcome hope you like it
I have someone in my school who has this and it makes me want to cry every time I see him because I always think of the fact he can't be hugged or kissed
I fell soooooo bad im crying
rip x I see you in every video I want
He pretty much hugged his mom at 1:44 god bless him
Laughing Kitty true but I still feel bad for him
At the end it says that they have to be super careful to hug then
Too bad he wasn't also born with CIPA Disease. Where he didn't feel pain. Poor kid
Hes not poor ok
He has a familly
"The boy who can't be hugged" They hug at 1:44
Limestar Pigs it’s called he can’t really be hugged very often
Ily for pointing that out😂😂
No because he has the bandages on.
Seriously?😕
Not that they can't be hugged, they can but because their skin are so sensitive. If they fall or they rub they skin it will became a blister. 😥
It's such a coincidence that all of these videos with kids that have some sort of "disability" are always the ones with the nicest and most caring attitudes, even though there life is difficult at points.
It makes me cry when he cries
Naleeyah Brown yes!!!😭😭😭
1:16 that is so sad and It looks so painful I feel so bad for him.People without conditions and disability’s should be grateful that they are lucky to no have none of these painful conditions 😭😭😭😭😭😭
Poor guy😭😭 I hope he'll be cure not medicine but God.. Especially the fact that he's so cute and joyable also he's still a kid..😭😭Get well soon😭😘 I'll pray everyday for ya
This video makes me so damn sad
Poor thing, I’m so inspired by him and he’s only so little. He still manages to keep a smile on his face
I’m proud of you little buddy 😘😍❤️❤️
We all are..😌.......
Good
you are so beautiful little boy 😍😍😘😘😘😘😘😘😘😘
That was an air hug, y’know, Men do it when they don’t know how to hug a women in a photo
Awww......😭😭😭😭😭😭😭😭 he’s so strong and persistent. I’m glad he has such amazing parents and supporters
I know that family in real life. Jonah Is a nice kid!
Kat Msp u do?
Lies
Sure you do
roblox fan that is toooooo perrrsooonnnaalllll
I used to have to go to school with him
How could people not see this on ultra sounds? I wouldn't be able to let my child live like this
*EDIT* to everyone whos pissed off at me because I'm pro choice, please stop arguing with me and just voice your opinion in a respectful way and agree to disagree, don't be so immature.
Amy Carter Epidermolysis Bullosa doesn't show up on scans. The skin blisters and peels due to friction (as they stated in the video). The only way the parents could've found out beforehand is if they KNEW that the disease ran in their genes and they purposely went out to get the amniotic fluid surrounding the baby, tested.
You'd kill him? You bitch.
Shakirah B thanks for letting me know! I didn't hear that in the video lol
Coriolis no I would take an unborn child out of my body so it didn't have to suffer through life.
Um it would die out of your body so you'd effectively be killing the unborn child.
We have to praise these parents, other parents would have abandoned the baby when they found this out, but these parents found a way to cope with their pain and their sons, many blessings❤
A kid like that deserves a life like us a normal and healthy life
Agreed 😭😭🙇🙇
He is so cute and adorable he has the right to live life like everyone else, I’m praying to God that he gets better God bless him. He is so strong ♥️😘😍
If people bullied him and I saw them woooooo they would of been on the floor.
I would Make them eat bird 💩 and eat there own throw up
AREAL2ND srry bout that 😣😣
Rabbits Games it's all good
I can't help but notice Kakashi
AREAL2ND I'd just straight up beat the crap outta them. Lol when you're Hispanic
Now that I saw the whole video I cried I'm not lying when I saw the mom talking ,and him crying from pain
I feel bad :O
I'm surprised he is so strong all those cuts
what about me I have only one in my lip but he has it the whole body I really hope he is ok by this day and I hope he get's better
God bless this sweet,poor boy..I'm so sad right now
My prayers will forever be with this littl boy from now on and IN JESUS'S NAME HE SHALL BE HEALED same goes for anyone out there who is having any problems weather it may be financial, emotional, sickness etc God will make a way out for all of u its up to u to believe and put in the extra push by praying. God bless you all ❤❤💪❤
Nathan Forde bless you ❤️
Amen
Nathan Forde not me
Keep praying to a fictional character in the sky. I feel sorry for the poor little guy tho
Nathan Forde I like your good heart
I don’t cry much and that made me tear up
Poor boy I fell so bad
I cant' imagin living like that... i think i wouldn't want to live
its a brent new day I dont want to live and I dont have his problem :)
Pink Fan ÅlpåcåLegiøn *VETERAN* sameeed
Who the hell would want to live going through this
200th like
Well at least i dont have it i will be crying 😭 with it
Where all the doctors at !
Get your asses together and find a cure !
Mr Tacos sadly it's not that easy. It's a genetic condition
MD Supreme nooooooooooooo 😭😭
well I wish, it's not that simple though..
Mr Tacos you can't really cure things like this.
there is diseases problems that they still didn't get cure of it and some of them take years to cure every day there is a new diseases
i can't imagine this child is in pain everyday. tears just flow down :(
Wow you can hear the hurt in the mother's voice when she talks about there son. I could only imagine how the parents must feel not being able to pick up there so and give him a Hugh hug. That little boy is a true blessing and I'm so sorry he has to go through everything that has goes through. Much blessings to the family.
What a strong family especially Jonah
I hope God heals him! And he can get rid of that awful pain, he is so adorable ! Thank god for those parents
Ocean lights god is too busy giving people cancer and hemroids
Ocean lights ya god isn't real sorry to break it to you. If it's anybody who can actually cure this child it's our amazing scientist and doctors we have
geneva marie There is no way to tell 100 percent if God is real or not. Believe what you want, but don't force opinions on others like it's a fact. And if God ends up being real then oh well we just fade from existence. And if he is (which I believe) then I guess you were wrong. But yes we do have amazing doctors and scientists and others around the world who are helping to find a cure and I'm sure anyone can appreciate that.
Ocean lights warning: incoming atheists
It's actually sad that atheists try to disprove stuff like this. I was an atheist for the majority of my life and then I opened my eyes, I tried and tried to disprove God but kept running into the problem that nothing could be sculpted like this without a super-intelligence. Each DNA is different, we are basically coded and it takes intelligence to code. Not a bang that created nothing to something. Name one time nothing has turned to something, because you won't find one.
I feel so bad and sorry for him.. god bless him. I literally started crying while watching this. 😓😪😢😥
This hurts me to see that child in pain if I could do anything and everything I would and could I couldn’t watch anymore I feel so bad all we can do is pray
For anyone interested there is a new treatment being performed right now in Minnesota. A young man named Jonathan Pitre has just had the procedure, a bone marrow transplant using his mothers stem cells, he is one of only a few people who have had this procedure it has shown to be life changing. His skin is healing now, wounds that have existed for years are healing. There is a whole lot of info online about this amazing young man, who is an ambassador for his disease and for the foundation DEBRA, as well as his struggle with EB and the bone marrow transplant.
Megan Hess He died sadly😭
Poor thing 😭 ill pray for him hes so strong i thank god for this wonderful strong little boy god please heal him lord please he does not deserve this pain lord all mighty god lord of lords king of kings i call upon you lord to put hands on this little boy named jonah lord heal him like you've never healed him before AMEN!
We take so much for granted like wrestling with our dad and siblings hugs our skin thats healthy god im sorry for all the things i take for granted 😭
I can tell that u r ether Christian or Catholic
That is sad they lost there first baby R.I.P
He reminds of the other kid I just watched with butterfly skin😢😢
Briyunta Knowles 😔😔