CYSTIC FIBROSIS ISN'T EASY!!! (10.31.14)
Вставка
- Опубліковано 31 жов 2014
- In Mary's words, "This is part of it..."
SUBSCRIBE: goo.gl/LvdRdF
***WATCH YESTERDAY'S VLOG: • A WARM HOSPITAL WELCOM...
***WATCH ONE MONTH AGO: • NO MORE NEEDLE!!! (9.2...
***WATCH TWO MONTHS AGO: • MY NEBULIZER CAUGHT ON...
oh Mary,,,I deal with chronic illness and pain and I recognize that moment you have in private where your coping skills are overwhelmed and your spirit is broken. most of our friends and family never see that and they never realize the struggles we encounter everyday. thank you for sharing such an intimate part of your life. God bless you and Peter.
Hi, my name is Kat. My friends name is Kaylene. We're teenage girls who daily vlog our lives with chronic illness, vocational school, and being DJ's. I have fibromyalgia, and many other disorders/diseases and Kaylene has Basal Cell Carcinoma Nevus Syndrome. She's basically made up of tumors growing often and everywhere, and many other complicated health issues. I was wondering if you'd check out our channel? We're trying to build a community on our channel.
I can not describe how grateful I am that you showed this. This is so true honest and raw this is what chronic illnesses and CF is like. I thought I was the only one who had moments like that. Thank you Mary for sharing this. It touched my heart
I don't have CF but have my own struggles with chronic illness/pain, and I find agree, thank you for showing this honest moments- you are always so upbeat, and even with my asthma problems (which don't come *near* what you battle daily, though I could relate to a time in another vlog post when you (Mary) did the elliptical and said it was different feeling like your body was tired, vs just pushing your lungs- I've been blessed that I was able to do some dance type stuff in high school and college, but I did the treadmill and then switched to elliptical- it didn't hurt my joints as much AND I think might have been a better workout for my lungs, so I would do THAT to get my lungs in shape enough to be able to get through a color guard routine (which is "only" about four minutes long for indoor color guard, I had an AWESOME instructor who would manage to choreograph a part in the routine where I could go to the side and have a bit of an inhaler break, lol...I'm glad I was able to have that though, I genuinely am- I just admire you so much from starting to watch your family's journey, and I am in awe of how you stand so strong and smile through the constant battle of fighting for breath- you are a warrior and you rock, as does your hubby and doggie and everyone else!
I'm sorry that you had to struggle through these really hard and likely pretty scary times- sometimes I feel like not knowing what exactly is wrong and therefore what you are up against is so frightening- I'm thinking of a good analogy and pictured the part in Monster's Inc where he had to fight Randall...it's just so frustrating to keep punching at the air with strength and energy you don't have and not knowing if you are closer or farther from the goal, but you are great because even when you don't know and don't have the strength, you keep on fighting the invisible monster with all you've got, your hubby guarding your back and (when you get back from this trip I think is when) your pup at your side!
Thank you for being brave enough to share the lows, though- I recognize that it takes courage to put that out for the world to see, but it's awful being in pain and feeling sick all the time, though I do not try and say I really understand, because I'm not in your shoes (or shirt that maybe has been on a couple days...Haha, I'm NOT in the hospital or near feeling that awful, and I think it gets me feeling more emotionally in gear when I'm all dressed and such, but I'm still pretty sure that about half my neighbors must only see me when I'm in my fuzzy pj pants and whatever comfort shirt or sweatshirt I'm into that month, haha, even when I am all dressed in clean (enough) clothes, if it's jeans and my favorite sweatshirt, with whatever shirt I threw on underneath, I'm sure I look like I'm wearing the same clothes as the other days...and some days taking care of my three goofy beagles- two of whom are naughty and one of which really seems to understand me and when I need him, so I'm hoping to keep working on training him as a service dog...we've got *quite* a ways to go for now, but he's helpful to me at home anyways ;-) ...but anyways, some days it's a big enough battle to fight the dizziness/nausea/double vision/pain/weakness/etc to manage to pick up their food bowls and let them out, get them fed, and feed myself...I'm ok with the neighbors thinking I stay in my pajamas all day, and I know many of them think I'm lazy, but lots of people have their invisible battles, and your whole little family are AWESOME warriors...I don't even know ya but I wanna hug you all and say I love ya! (I would ask before hugging the dog, of course, lol...I REALLY do know his name and your hubby's, just...brain fog got me and now that I'm thinking about it I'm completely blanking...oh, Ollie is the dog! ...partial credit for remembering? I'm gonna see hubby's name and know I knew it....
Thanks for sharing your story with the world, all y'all rock! :-D :-D :-D
I am waiting for God to give me a relationship like y'alls. This is how God wanted marriage to be. Thank you for being such an inspiration. ❤️
I wish I could tell you how the tears fell from my eyes re-watching this. Ugh.. I'm so emotional for people and pets. Anyone going through something bad (sickness, disease, hard life's, sick/hurt animals, etc) I just want to save. Lord knows if I had the power I'd heal Mary. But I'm so glad she's better now. I hated her seeing her so sick. GodBless you Mary
It truly is a blessing and a curse to be so empathetic, totally get what you mean
@@ZoeThomson00 🙏🏿
🙏🏿
Peter is so supportive and loving. Such a good man! I'm so happy Mary has him! They're such a good couple!
+Stella Von Cruel I agree :) He is amazing and I am so so thankful for him!
+The Frey Life stay hopefully I will pray for you
I just lost it.. I just started crying.. I'm with you every step of the way love you Mary and Peter.. Stay by her side.. If I was there I'll be there for her
Awe, thanks for your sweet words!
+The Frey Life i cried when mary was crying :-(
I hate cf. my oldest two boys have it. seeing your happy vids make me smile but seeing these bring me back to reality.... it sucks
As someone with a congenital degenerative disease that affects me differently every day, I have great days and terrible days just like anyone else, I appreciate that you leave the rough parts in your videos. I know, especially when I'm in the hospital, that sometimes even the littlest things can be that straw that breaks the camels back. It's so good to just see how Peter is just there for you. I know the power of someone just sitting there holding your hand when everything feels overwhelming, it is magical.
Watching in 2016..I admit..I shed a few tears watching this vlog :( ... you are so strong and Brave Mary and you have such a wonderful supportive husband. :)
Right now I am going through a rough patch with my depression & it is so wonderful to be able to watch you vlogs. You both inspire me so much! You are a beautiful couple. You are a gift that God blesses me with every day! It is only by His grace that I make it through my days. I need to laugh, like you say, "laugh every day." You bring a smile to my face and heart. May our Lord bless you richly for all you do. Thank you so much for ALL the work you put into daily vlogging. I greatly appreciate it. All my love, Becky
Praying for you, Mary. I surely hope you get better soon! It's upsetting to see someone not well and then there's nothing to do to take care of it to get fully better. I love you so much! Prayers to you and your family! 💖😢
OMGosh, this breaks my heart! I just want to hug you!!
Hey! I found your Channel some days ago and I am so thankful for your vlogs! I have CF too but i'm quite lucky with my CF. Never had very severe problems or anything but if from time to time I have a problem my boyfriend is right there, taking care and supporting me and I know how important this is. Happy to see that you have found someone like this too. Hope you feel better Mary, Blessings from Vienna, Austria.
I cried. Everything Peter does for you is amazing. Your are amazing too. 💜💜💜💜💜💜
You made me cry when you cryed keep on pushing it and at school in health we had to do a project and I did mine on CF your such a inspiration
Omgosh I am bawling! Thank you for sharing these not so great times with us. ❤
I watch some of your old videos because I find you very inspiring. Sometimes people feel like everything in their life is terrible even when they don't have to go to a hospital every other day. But seeing your videos when your so happy makes me a lot happier because I see how strong you are:)
Ashley Hanna Thank you so much for your encouragement!
That was so sad. I love Mary's spirits and seeing her cry was making me cry.
This is really showing how hard it is to live with a chronic illness.
I have EDS hypermobility type and people think its cool like "oh your elbows and fingers bend backwards thats so cool!" But they dont realize that people live in pain and its tough but we all gotta live through it and there will be a cure for things like CF soon! Praying for u guys 💜
I love you, Mary!! I'm so thankful that Peter is there to take care of you. I'm constantly keeping you in my prayers💕
This is the sweetest youtube channel I've ever stumbled upon.
+Andrea Monte Awe, thank you for those sweet words :)
It's great to watch you guys. Your so lucky to have each other and in a way I'm jealous! I have two chronic rare diseases and am considering a port and you guys are an inspiration! You always say "do what you think you can't do " but it's ok to take some time to heal and rest too. Thanks for being so comfortable and committed to get a video out! You guys rock!!
The love you guys have for each other is so pure and a joy to watch.. I am so glad I found you been back watching for two days lol
Keep fighting mary, you are stronger than you think. Watching your videos make me think about my own life and how i can become a better person. You battle and fight everyday just to do the most basic things that other people take for granted. You def inspire me and everyone in the frey life family with your courage and persistance. God bless you both.
Girl, I am pulling for you to get all of this stabilized. I've never watched your videos, but you both seem like awesome people.
Watching you cry sucks so bad, and even though it makes me want to cry when I see you cry I am kinda glad that you guys keep the camera on so we an kinda see into your world. Love you both!
Its ok Mary I know you can get through it, I believe in you, your strong.
leilani ma Thanks for your encouragement!
Hey Mary I know CF can be really tough and it hurts me to watch you suffer this is something you deal with on a daily basis and I couldn't even imagine trying to do what you do and I think you are an amazing person so stay strong and keep fighting the CF battle. You and Peter clearly put in loads of effort into your UA-cam videos and it pays off!! I enjoy watching your videos so much and I want you to know you can always talk to me! I love you Peter and Ollie so stay strong and keep fighting you soldier xxxxx❣️❤️💋 #heartsforCF ❤️❤️
It touches me so much to see you go through this and I am so thankful you show the hard times because it's awareness and this is your reality. I remember doing the same thing when I vlogged and it was definitely hard to do, but it helped show reality and it helped others know they're not alone.
I'm so sorry I hope that you can get better. I hope the tonsillitis isn't too bad, because the older you are the worse it is! The opening made me cry, because I've been in these situations from having severe asthma. Like you guys always say remember to smile everyday!😔
May and Peter you are my new favorite people. You show such strength and resilience in your day to day fight, you make bad times bearable and good days magical, thank you for that. I'm so glad of the plans God has in bringing new people into our lives, those we need. Be They teachers, friends, or just you tube viewers they are there for a special purpose. I'm thankful I saw do it on a dime and she mentioned you, so glad. God bless you two on your journey and I'll have fun catching up on past videos you've posted, New subscriber soon to be a new friend.
Joann Wilson Hi There! Thank you so much for saying hi and introducing yourself! We are so glad you decided to join The Frey Life! Thanks for your encouragement on this crazy journey!
Thank you for allowing me too take the journey with you. Good Bless
I'm not sure why this randomly popped up in my feed and Ive seen it before.... but awwwweeee its Baby Peter and Baby Mary!!!!
Geezeee its crazy this video is from *5 years* ago!!!. So glad it is the past tho. Hope you are all well!
One of the most frustrating times _for me_ is when I'm feeling so horrible but also just cannot explain what I feel. Tearing up to much. Hugs
When Mary say... *I'm Normal!*
Most relatable spoonie moment ever. 😍😍
Mary, thank you for letting us see this vulnerable side of the CF life. Painful and sad, but real. Praying for continued health at your new baseline.
+Sylvia Creswell Thank you for choosing to walk this road with us- the painful and the good things. Thanks for your encouragement!
You are welcome! You give me encouragement every day, so it is returned!
Okay, you two are AMAZING and I am officially inspired! May God bless you both abundantly! Sending love and hope...
+Brook Martinez Thank you so much for that encouragement! and THANKS for being a part of The Frey Life Family!
Awww I am so SORRY that made me cry! Your like such a positive person and strong person and SUPER cute and I love the sound of your voice and you have one of the cuter coughs most of the other CF people's coughs are pretty rough! I LOVE watching your vlogs and I love your faith in god! It's so inspiring! I'm only 16 but I know when people have a really strong faith and it just overwhelmes me to see but in the best way possible! I love you Mary! Stay strong! I'll be praying for you most definitely! Love you guys so much!❤
Clara Harness Thank you so so much for your encouragement!
The Frey Life your SO welcome I just love and adore your video's there so fun and encouraging. And they always make me smile! I wish I could meet you SO MUCH!
When you started crying I did too. I know this video is old but I hope you get better. Laugh everyday!
2:53 why is peter acting like seeing penguins is a daily occurrence 😂
I know this video is about a year old but it popped up on my UA-cam home page so I decided to watch it and man did it bring back memories of when my niece (who also has cystic fibrosis) was about two years old or so I was on one of the couch and she was asleep on the other end and we already knew she was sick but her pediatrician had said it was a cold and whatever so she was sleeping and all of a sudden she just pops up and starts screaming and crying mammie mommy my froat fire (that's what she would say when her throat hurt her really bad) and she was in tears it was so sad and scary we had to call 911 and everything my neighbor was the first to show up and he was in his pajamas but he still gets messages of when and where a call came from in case the crew was short handed on his day off but he comes knocking on my front door shortly before the fire department and the EMTs arrive and do what he can do without all his equipment but as soon as they arrived and did the checking of her vital signs and medical history and found out she has cystic fibrosis one of the emergency crew members said that every symptom being described sounded like croup (cuz his non CF child had it before) and since she has cystic fibrosis it's much much worse in her and if not treated ASAP she could be hospitalized and so he told my brother and sister in law that they (my brother and his wife) could take her or she can be rushed in the ambulance my brother decided to take her only because at the time he was very low income and couldn't afford an ambulance bill but that night scared my family badly cuz we had never heard of croup and with my niece having cystic fibrosis we didn't know what the croup could do to her especially since she was so little at the time. But even though seeing this video did make me cry a little not just because the experience my family went through when my niece was two but because I saw that even through the toughest of times Mary was still strong. I have heard people say in the past that only the weak cry and I say that's a bunch of bologna the people who cry are the ones who have been strong for far too long and finally decided to let it go. I have done that personally and after I let it out I felt so much better so Marry if you read this I think you are one of the strongest people I know and seeing how far you have come on your journey with cystic fibrosis makes me feel my niece can do it too thank you so much for yours and Peters and of course Oliver's daily videos. you guys are my favorite UA-cam channel and I look forward to seeing your videos everyday. 😊💙💛
This was so hard to watch. As a mother I always want to just comfort you both. The love you have for each other is palpable and such a rare thing to see. You are in my prayers daily along with my own three children.
April Tatum qurczfrq
Hi, my name is Kat. My friends name is Kaylene. We're teenage girls who daily vlog our lives with chronic illness, vocational school, and being DJ's. I have fibromyalgia, and many other disorders/diseases and Kaylene has Basal Cell Carcinoma Nevus Syndrome. She's basically made up of tumors growing often and everywhere, and many other complicated health issues. I was wondering if you'd check out our channel? We're trying to build a community on our channel.
Chronically Vlogging
I have a genetic disease called Ehlers Danlos Syndrome. Since I'm young, I worry about my future. I'm always worried I'll never have a career, friends to support me, or a husband. I'm always worried the only person I could ever have a chance with won't want to take care of me. Watching your videos have minimized my fears in so many ways! You've reminded me that even though life can be messy, God has a way of pulling things together. And even though I will spend the rest of my life with serious medical problems, I'm assured that I have eternal life with my savior.
So thank you for reminding me of this, and encouraging me to keep enjoying life.
My love and prayers go out to you!
I send all my love to you Mary!!💕😘hope you feel better!
i love you guys.... you are a relationship goal to many of us. tfs
Oh Mary I'm so sorry. I pray you steel better really soon. Love you all.
I'm new to this channel. Mary you are such a strong person. Peter you are such a great husband. I started watching from the beginning and going to the new ones. It is hard to stop watching.
Samantha Hemmerich Thanks so much for joining us for this adventure! And Thank you for your encouragement! So glad you are now a part of The Frey Life!
i have watched so many of your videos in the past day but im already sad watching this one cause i know you are gonna cry
Hey Mary and Peter,
I just wanted to say that you guys are adorable together. I found your videos a few days ago and have been enjoying just immersing myself in your world. CF sucks but you guys are so lucky to have found each other. Peter, you seem like an amazing support! Anyway, just wanted to say Hi, hope you're feeling OK Mary :)
I feel so bad for her.. GodBless you Mary
Mary is so inspiring
You are so strong such an inspiration bought me to tears when you got upset :( we love youu
Hey Mary! Don't cry. I know that you can always do
I'm so sorry Mary!!😔😔 hope you feel better!!!!!!😊😊
This is heart breaking.
My sister has ccystic fibrosis and she is in hospital on ivs so we didnt have her home for new years i hope you are doing ok mary and i love waching your vlogs it must be so hard for cf patients
Today is the first time I've watched one of your videos. I plan to continue to watch them. I have questions, and hopefully as I get to know you, they will be answered.
Sending positive thoughts your way.
Hi there! Thanks so much for saying hi and becoming a part of The Frey Life family!
Oh sweetheart my heart breaks for you. I suffer from Lupus and understand part of what you are going thru. You will continue to be in my prayers. I started watching your sweet family a couple of weeks ago and have gone thru most of your videos. Sending love and well wishes to you both.
omg when Mary cried i cried i pray 4 u guys love u
Every single one if your videos I break down my cousin had cystic fibrosis and she was one of my biggest inspirations and I love you cause you look and act just like her ..... Your amazing and I'm praying for you because I know God works miracles ❤️❤️ Btw I know this is from 2014 😂👌🏻
Omg this is heartbreaking to watch sometimes when we are well we take our health for granted and forget about all those suffering out there I new found appreciation for my good health and with all my heart hope that one day you will have the same ?
Sorry that was supposed to be!!! At the end of that comment stupid phone:)
Ann marie White Happens to me too. Oh technology...can't live with it, can't live without it :) and thank you for your support and encouragement! It means so much to us! Thanks for being a part of The Frey Life Family!
The Frey Life awwww
you made bawl! i hate it when someone is suffering and there is nothing you can do about it.
I'm new to the channel so this is the first time I saw this video . Mary stay strong ! I'm sure you can do it !Stay Strong !
Lots of love ,
Klara xxxx
Klara Vassallo Thanks so much Klara! Welcome to The Frey Life!
I hope she feels better much much love 💜💝💞💟😚😙💗💙💚💛💜💖💕💓❣💌
-Don't worry Mary!
God😇 will bring you through it✌
And always will👏
Just have hope👐
And always remember I'm praying for you!
-Love You, Mary👍
I did a show with someone who had CF. Lovely friend of mine at the time. Sadly lost him at the age of 25. You're so strong :-) lots of love from here in the UK
At least he suffers no more and and he is in a better place.
+Pinkcookie very true. he was such an inspiration we did shows together. when he passed away their last show was in tribute to him. and raised money for research towards research for CF
Your so adorable , love bing watching your channel. New subscriber. Fellow vlogger. Prayers for you mary
Stay strong mary
what more can I say,I was already follow Claire Wineland that you might know the channel and one of my favorite singer is gone from Cf in 2004 so ,i feel something more for those whi have this disease seing your daily life and everythings I think every single person shoould ! for realise how much they need to stop complaining for sh**...anyway love you girl keep the figh and you guys are so freaking adorable ,
Listen to Jesus bring the rain and I'll Praise you in this storm please
praying for her
Mary you are a true inspiration to me!!😊😊
+Randy Larson Thanks for your kind words! I'm so glad to be able to cheer others on in life- whatever you are walking through!
I have kidney disease and waiting for transplant. In the meantime I dialysis 3 times a week for 4hours.
I find it difficult enough to watch diet take meds,etc. You dedication to God your husband and your body is outstanding. Your spirit is truly amazing!! I really enjoy your videos and Peters message every Monday!! I started watching you guys for the last two weeks and truly you have picked up my spirits.
I also have a new understanding of God!
THANK YOU very much😊😊
Awww this made me cryed so hard . +TheFreyLife . Why does your voice sound so different? I hope u gett better. GOD IS with u.i will keep praying for u and peter.
feel better!!
I'm watching some of the Scotland videos even though I watch the more recent ones as well. I loved the beginning of this video where you talked about a 'normal person' illness - kinda made me laugh because I have Spina Bifida and I always hate normal people illnesses more than the pain from SB.
You guys are so cute and so adorable! And so amazing humans! I love you so much! I cry with you, and laught with you, your channel is amazing, thank you for share your life with world! By the way, the socks thing, happen also in Italy, lol 💜💙💜 a big hug!
Bless your hearts
This vlog made me sick, cause I feel you.... Im sorey your back in the hospital. Hopefully its a short stay. Feel better soon. :)
Im sick too right now & praying I dont have to go to the hospital again. Runninf fevers, coughing, no appetite & no energy.
*sad
Amber Hernandez We hope you feel better too! Hang in there!
Omg, when she cried I cried!!!!!!
: ( Mad me sad to see you hurting.
I am crying! I am going to be honest. I did cry. It's so hard watching people suffer and be in pain
I go to hospital allot now
It sucks
I FEEL SO BAD!!
Chronic illness is never easy but it's the plan that God has for those like us.
Stay strong xx😘
I know it's hard I have it to and can't do anything get well soon mary
I know how you guys feel.i been in and out of the hospital with my fibromyalgia abd my gastroparesis and my asthma and my high blood pressure, and my sever headach
Feel better!!!
Andrea Thomas Thanks Andrea!
When i go to the hospital, they give me iv benadryl and it makes my tongue numb and my face feels weird.
Your a trouper Mary!! I know what it's like to have CF because my little sister had it, I am always with her at the hospital and taking care of her. I hope you feel much better! ❤️❤️❤️
Oh mary my youngest getsbalot offside effects from antibiotics. My heart just broke. To be so far away from home and sick doesn't help either.
Mary, I feel sorry for you, but I don't know what its like to have tonsilitus(or however its spelled) so I guess I'm special in a way. When I was a baby (I forgot the age) I had my tonsils removed. I think my tonsil was to big for me and was blocking my throat, making diffacult to breathe. Again, I feel sorry for you, and I know this vid was from a long time a ago, so if you are sick, for whatever reason, when you read this, just now I feel sorry for all of the sickness you endured, not showing being scared, keep up that toughness, and keep up the pranks, they are awsome! Also, Peter, keep being and awsome husband! I hope me and my girlfriend end up as close as you two. You, as a couple, are so sweet, you two never fight, at least not on camera, and I love it, keep up the channel, cuz I love it, and I love you two, you are in my top 5 youtubers! As far as as vlog channels go, you are #1!
Lenny Thanks so much for your kind words and encouragement!
The Frey Life :)
I get tonsillitis like twice every month😕I feel you mary💗
I have left kidney hydrospiss and a little bit in my right so I'm in and out of the hospital
to so ur not alone
We are in this together Mary I love u guys channel
I have had my tonsil and agnots out also my golbbaltter sorry if I spelt the words wrong and I'm only 12 I had my tonsils and agnots out when I was 10 and my golbbaltter out at 11
Oh and I just hope your tonsillitis isn't as bad as my sister's her tonsils grew into her uvula and they had to cut that out which now makes her gag
I start crying too
I'm on my moms phone I've had tonsillitis hope your throat feels good
lol that normal person thing I feel you on that like I have s kidney stone and i have to have surgery for it and I don't even need to stay over night and I'm just like ok whatever
Lost it at 4:00. I know exactly how it feels to have to deal with this crap. CF sucks and I just wish there was some way to fix this stupid disease.
Hairdryer never fails.😁
What the name of the song
Painfull to see u cry....crying wid u..
Omg I love your vids and I have a question will she ever get rid of cf
+Xboxplayer 1080 There is no cure for Cystic Fibrosis