Neck Brace Update (Over 3.5 Years Later...)
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- Опубліковано 10 жов 2022
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So incredibly excited about your healing, it brings tears to my eyes to see how incredibly far you've come, I'm so proud of you
So happy for you. Praising God ✝️🙌🏼
*** thank you*** for this update, Rachel.
TOMORROW.... OCT 12, 2022, I will start my first prolotherapy on my Cervical Spine.
I was diagnosed in Jan 2022 (1 month shy of my 40th birthday) with hyper-mobile Ehlers danlos syndrome [hEDS]. I am in Canada and had been following both YOU + CARING MEDICAL [CM] separately, ... and after seeing you both I was like ..."oh man I hope Rachel can get into see Dr. Hauser!"... and wow! before I knew it.. there you were, posting your first videos at CM in JAN '22 (@ the time of my official diagnosis). so yea...tomorrow, I start prolotherapy... but I have already begun to heal today. I have probably had cervical instability since my childhood. ... fast FWD to today, and I Thank God for this team of amazing human beings [@CM] that share their knowledge in order to heal others! The Caring Medical Staff, facilities, etc, ... as well as the Fort Meyers community. MY thoughts and prayers are with you during these rebuilding times for you. Be blessed! ~Amber
It is awesome! No more RICE... its all about the MEAT baby!
How did it work out
How did it go?
So thankful for you! Dr. Hauser is my doctor too!
That’s awesome! Blessings
I’m so happy for you❤️
Thank you for your updates Rachael! Keep at it!
Awesome
That’s great news! Looking forward to your DNRS update. Just started the program a few weeks ago.
Rachel.. I would love to see a video on your advice to people starting prolotherapy, especially dealing with cervical instability... what are the things you wished you knew, or things that helped you along the way?
Yes please, I would love that too! Sooooooo appreciate your videos Rachel!
I'm really proud of you for the perspective you hold in so many different situations
So happy for you! I've been in and out (mostly in) of several cervical braces the last 5 years, from CCI to a bad neck injury (fusion revisit) it's been a rough ride. Thanks for sharing hope and really wish you the best
Fantastic !
Thank you!!
So happy for you!
Thank you Amber!
Huge victory please keep us updated always waiting to see your progress so happy for u!!!!!
Really happy for you 💕
I‘m looking forward to take mine off when I‘m upright, had C0-T2 fusion in july and have to wear it until the bones are fused. I hate it, but I‘m thankful for having it too.
Thank you for your Update and hope.
Please share The story solo on The surgery ect. Would be amazeing
I am so glad this worked for you! I wish I could afford to have the prolotherapy done, but it is way out of my reach financially.
Whoop that must be so liberating 🙌🏽
It is the best feeling!
So happy for your healing! and Thank you for sharing. I also have pots, lyme and eds with neck issues and cannot tolerate flying due to the pressure changes. I feel like my head was left back on the ground when the plane takes off and it is very scarey feeling. I am very sensative to the pressure changes. Just wondering how you are able to fly? suggestions? Thank you for sharing. Love to you
Hi Rachael! I’ve watched so many of your videos, and I couldn’t be happier for you. This is such a beautiful milestone!🙌🏼 Thank you for sharing your journey with us. I wanted to ask your opinion on something. After all that you’ve been through, where would you recommend someone to start?Caring medical? Dr. Centeno? I have hEDS, multiple autoimmune diseases, MCAS, POTS, CCI, AAI, cervicomedullary syndrome, & possible chiari. I’m currently doing PRP on my jaw and shoulder first, but I’m not sure who to see afterwards. I’ve scheduled with Dr. Henderson, but want to explore all possible regenerative options first. Thanks in advance!❤
Thank you for sharing your progress Rachael. Please know that it is of tangible help to others, like myself. I drive with a collar but shy from wearing it otherwise, which is not smart as it provides a lot of relief. My hope is vested in following the programme set by Dr Hauser and Dr Hutcheson and, in time, to return to Caring Medical for prolotherapy. The very best to you and your husband. God bless.
Congratz! not wearing it in the car is impressive. I can't get one prescribed to me even tho I really really need one for certain situations (cars flights etc) even tho I'm on the verge of passing out.
Edit: also I appreciate your brutal honesty about surgery
@Rachael Elizabeth I'm delighted with your update.God may your good progress continue
Thank you so much Graham!
congrats on your progress. unfortunately I have the same problems you were having before you're diet and prolotherapy. One problem is I can't sleep on my back either,, The SLEEPING POSITION that works for me is to sleep on my side with a pillow between my legs., rolling over every 2 hours. So far, sleeping on my side (3 years) the pain and neuro symptoms are bearable sleeping this way. I.m so thrilled with your progress.
Congratulations 🎊 so happy for you!! Please do a video on how you managed histamine..omgosh I have bad bad histamine intolerance. Thank you
Thank you so much! ❤️ Brain retraining with DNRS has been the most helpful thing for my histamine intolerance and MCAS by far. Personally I believe those reactions are a sign of a dysregulated nervous system stuck in “fight or flight”. I’ll try to share more as I can!! 😊
I bet it’s the increase in vagal tone that’ll be starting to dampen the MCAS. Would be cool to measure the blood IgE over time and see it go down as gut tolerance is restored.
Thanks so much for sharing your story Rachael you have giving me hope, I would like to know more about DNRS where do you recommend get info.
Hey Rachael, did you find that, before you were confirmed to have CCI, that you were always fiddling with your neck? Either rubbing it, digging at it, pushing at the tight spots with your fingers to loosen it etc? I'm going through the whole autonomic symptoms right now, but I find sitting in certain positions helps, or even when I'm standing, if i lean against a wall can minimize the symptoms too. One thing I found weird was pushing my lower jaw out and folding my lower lip outward (imagine trying to force as big of an underbite as possible) kind of helped. Did you experience any of this? So glad you're doing so much better. My goal is to hopefully get prolo, or at the very least PT before I drop dead. I truly think I'm going to die from this. So sick and tired of being told it's in my head and to take Naproxen or antidepressants.
Hi Rachael. How is your tinnitus after the neck curve correction and prolotherapy? Is it same, better or stopped? Thanks.
What symptoms did the neck brace help with when you first put it on
Hi, I wanted to know how your Intracranial hypertension (IIH) are you treating this?
hello Rachael
I too have to wear neck braces because of my illness. And I would like to know if you can give me advice to better support it. Especially during the night.
Thanks in advance
Yes, me too! Would LOVE advice about how to sleep with the neck brace. What kind pillow do you use? How are you able to be comfortable? Do you only sleep on your back?
@@dani88light Thank you for your reply
I use a memory foam pillow I'm comfortable putting myself on the side and not the back so I don't sleep on your back.
And I would also like advice on everyday life.
And I would try to sleep on my back.
Thanks in advance
What diet/food do you eat, I didn’t hear properly? Thanks.
Carnivore diet
Are you still on LDN ?
I’m not. I stopped it a little over a year ago. ❤️
Praise the Lord ❤😊❤👍😀
❤️️❤️️❤️️
I wonder if having the surgery as a first step then what you are doing now is the key. Like surgery alone is NOT the fix but maybe has contributed to the success? I know when I find the money careing medical in forida is where I'm headed. I just wonder if a combination of surgery and the therapies you are doing now could be why it's been so successful? I am on step one, got the mri and ct ,next neurosurgeon, but Im just looking for the issues and bracing at this point. My entire spine is a mess. I know it's not " just" aai/cci there is no way I would allow a surgeon to fuse my entire spine. And I'm sure not going to fuse one section and have the part under it fail. I'm scared. I see the neurosurgeon on Monday! I don't really trust any Dr's, ptsd at this point. So I always procede with caution. Any suggestions or questions to ask for my up coming apt?
I want you to know that your videos have been so helpful. It pains me to watch the earlier ones and all you have been through. I was praying these newer steps you have even taking were successful and seems they are!
@@danare5851how’re you doing now, are you feeling any better
you need to fix your posture! look for msk neurology here
What was your worst symptoms when u was really bad with it
How has caring medical worked out ?
i have had structural problems with my neck for over two years now the muscles won't move or work properly week by week now they seem to be gettin worse and I'm suffering with neurological problems I'm having visual problems dizziness feeling faint balance problems I don't feel right no more I keep thinking about taking my own life it's that bad it's destroying my life I feel so alone it's like everyone is living there life's and I'm like this trying to feel normal again but I feel weird all the time like I'm not in my own body it's horrible I'm so tired with it and depressed ☹️
Keep pushing. You’re loved. I have my moments as well. Fight for your life. You are worth it. It might feel like there’s no way out, or that nobody knows how it feels, or that you’re alone. I get it. Keep pushing.
@@kalebdodson8382 💙💙
I have moderate/mod-severe cervical kyphosis. I tried soooo many things. I have very similiar symptoms plus more for years. For many yrs I felt I could not hold my own head up. Felt like my head would roll off my body. Neck muscles so tight but also weak. The ONLY thing that brought me lasting relief and mostly pain free neck days is cdb therapy which is a chiro realignment therapy. Very little emphasis is placed on adjustments but rather positions/traction and excercises to reverse kyphosis over many many months. Similiar to program for scoliosis patients. I urge anyone to give it a try. Also most programs want you to come in 2 to 3 times a week for 4-12 months. I couldnt afford that so do chiro 1 week and follow traction and excercises at home. Just fyi
@@sometimeslifehandsyouapple1085 do u have visual problems ? I feel all out of co ordination a lot really bizzarw symptoms.