My wife has Giant Cell Aortits a type of vasculitis that attacks medium to large vessels. She has had a complete arch replacement with the FET open repair followed by a 17" stent placed in the descending aorta. She had isolated hypertension episodes since July following Actemra infusions to control inflammation. She was hospitalized August 25th for 9 days trying to get it under control. A CT scan revealed a type 2 endoleak in the stent graft. We travel to Cleveland Clinic tomorrow for her team there to assess her current situation. Listening to your description of your own experience with hypertensive crisis helped me understand that there may be other contributing factors for the isolated systolic hypertension she is experiencing.
Unbelievable story of determination and persistence. Great story, Kevin. Thank you for sharing. You are an inspiration.
Thanks for sharing your story, Kevin. Truly ironman level stuff.
Thank you
Thank you. You are truly inspirational
😮
Wow. If it wasn't for his knowledge and determination he would have been dead. Congrats on all the accomplishments and thriving.
My wife has Giant Cell Aortits a type of vasculitis that attacks medium to large vessels. She has had a complete arch replacement with the FET open repair followed by a 17" stent placed in the descending aorta. She had isolated hypertension episodes since July following Actemra infusions to control inflammation. She was hospitalized August 25th for 9 days trying to get it under control. A CT scan revealed a type 2 endoleak in the stent graft. We travel to Cleveland Clinic tomorrow for her team there to assess her current situation. Listening to your description of your own experience with hypertensive crisis helped me understand that there may be other contributing factors for the isolated systolic hypertension she is experiencing.
Reach out to info@aortichope.org to let us know she was taken care of! Thank you for your year of following us!