Aortic Hope
Aortic Hope
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AHTV Pre &Post Post Op Suggestions 09.13.2024
Get Aortic Dissection: The Patient Guide | bit.ly/AD-PatientGuide-Download
#ahtv​​ #weekinreview​​ #aortichope​​ | April 00, 2024
Are you an aortic dissection survivor or caregiver? Please help us share your story.
bit.ly/AHTV-SurvivorSeries-SignUp
#donations​​ | bit.ly/AorticHopeDonation​​
#hopeshop​​ | www.aortichope.org/hope-shops
Переглядів: 14

Відео

AHTV Carin is interviewed on R-U Relentless and Unstoppable? !!!
Переглядів 182 години тому
Get Aortic Dissection: The Patient Guide | bit.ly/AD-PatientGuide-Download #ahtv​​​​ #aortichope​​ | September 2024 Are you an aortic dissection survivor or caregiver? Please help us share your story. bit.ly/AHTV-SurvivorSeries-SignUp #donations​​ | bit.ly/AorticHopeDonation​​ #hopeshop​​ | www.aortichope.org/hope-shops
AHTV Diagnostic Tests 09.15.2024
Переглядів 337 годин тому
Get Aortic Dissection: The Patient Guide | bit.ly/AD-PatientGuide-Download #ahtv​​​​ #aortichope​​ | September 15, 2024 Are you an aortic dissection survivor or caregiver? Please help us share your story. bit.ly/AHTV-SurvivorSeries-SignUp #donations​​ | bit.ly/AorticHopeDonation​​ #hopeshop​​ | www.aortichope.org/hope-shops
AHTV Common Medications for Aortic Disease - 09.14.2024
Переглядів 4314 годин тому
Get Aortic Dissection: The Patient Guide | bit.ly/AD-PatientGuide-Download #ahtv​​​​ #aortichope​​ | September 14, 2024 Are you an aortic dissection survivor or caregiver? Please help us share your story. bit.ly/AHTV-SurvivorSeries-SignUp #donations​​ | bit.ly/AorticHopeDonation​​ #hopeshop​​ | www.aortichope.org/hope-shops
AHTV Genetics Screening 09.13.2024
Переглядів 3116 годин тому
Get Aortic Dissection: The Patient Guide | bit.ly/AD-PatientGuide-Download #ahtv​​​​ #aortichope​​ | September 13, 2024 Are you an aortic dissection survivor or caregiver? Please help us share your story. bit.ly/AHTV-SurvivorSeries-SignUp #donations​​ | bit.ly/AorticHopeDonation​​ #hopeshop​​ | www.aortichope.org/hope-shops
AHTV Live Q&A Promo 09.12.2024
Переглядів 2319 годин тому
Get Aortic Dissection: The Patient Guide | bit.ly/AD-PatientGuide-Download #ahtv​​ #liveqaPromo​​ #aortichope​​ | September 26, 2024 Are you an aortic dissection survivor or caregiver? Please help us share your story. bit.ly/AHTV-SurvivorSeries-SignUp #donations​​ | bit.ly/AorticHopeDonation​​ #hopeshop​​ | www.aortichope.org/hope-shops
AHTV Specialists you may see | Topic Tuesday - 09.10.2024
Переглядів 36День тому
Get Aortic Dissection: The Patient Guide | bit.ly/AD-PatientGuide-Download #ahtv​​ #topictuesday ​​ #aortichope​​ | September 10, 2024 Are you an aortic dissection survivor or caregiver? Please help us share your story. bit.ly/AHTV-SurvivorSeries-SignUp #donations​​ | bit.ly/AorticHopeDonation​​ #hopeshop​​ | www.aortichope.org/hope-shops
AHTV Marfan Foundation spreads awareness with Think Aorta!
Переглядів 45День тому
AHTV Marfan Foundation spreads awareness with Think Aorta!
AHTV Reading Resources by the Community | Aortic Disease Awareness Month 2024
Переглядів 41День тому
AHTV Reading Resources by the Community | Aortic Disease Awareness Month 2024
AHTV Survivor Series Promo 09.07.2024
Переглядів 24День тому
AHTV Survivor Series Promo 09.07.2024
AHTV Heart Valve Awareness Week | Aortic Disease Awareness Month 2024
Переглядів 1714 днів тому
AHTV Heart Valve Awareness Week | Aortic Disease Awareness Month 2024
This is Hope 2024
Переглядів 12314 днів тому
This is Hope 2024
AHTV Community Resources 09.05.2024 | Aortic Disease Awareness Month 2024
Переглядів 2214 днів тому
AHTV Community Resources 09.05.2024 | Aortic Disease Awareness Month 2024
Part B | 24 Other medications - Aldosterone antagonists
Переглядів 3114 днів тому
Part B | 24 Other medications - Aldosterone antagonists
Part B | 21 Other medications - ACE Inhibitors
Переглядів 714 днів тому
Part B | 21 Other medications - ACE Inhibitors
Part C | 04 Why do families need genetic screening
Переглядів 1114 днів тому
Part C | 04 Why do families need genetic screening
Part B | 15 Mental agility and me
Переглядів 814 днів тому
Part B | 15 Mental agility and me
Part B | 20 Other medications - Beta Blockers
Переглядів 1314 днів тому
Part B | 20 Other medications - Beta Blockers
Part B | 09 What exercise can I do long term?
Переглядів 10514 днів тому
Part B | 09 What exercise can I do long term?
Part A | 02 Type-A Dissection
Переглядів 1514 днів тому
Part A | 02 Type-A Dissection
Part B | 27 Other medications - Amiodarone
Переглядів 514 днів тому
Part B | 27 Other medications - Amiodarone
Part A | 10 What special help might I need after surgery?
Переглядів 3414 днів тому
Part A | 10 What special help might I need after surgery?
Part C | 01 For Family and Caregivers - how can family, caregivers and friends help?
Переглядів 914 днів тому
Part C | 01 For Family and Caregivers - how can family, caregivers and friends help?
Part A | 16 How should I resume activities at home? What about exercise? Summary of Part A
Переглядів 1114 днів тому
Part A | 16 How should I resume activities at home? What about exercise? Summary of Part A
Part B | 17 Medications - How should I manage my medications long term?
Переглядів 4814 днів тому
Part B | 17 Medications - How should I manage my medications long term?
Part A | 13 Resting Blood pressure and Heart Rate
Переглядів 1114 днів тому
Part A | 13 Resting Blood pressure and Heart Rate
Part B | 12 How can I regain my lost strength?
Переглядів 1414 днів тому
Part B | 12 How can I regain my lost strength?
Part A | 05 Why did I have an Aortic Dissection?
Переглядів 2114 днів тому
Part A | 05 Why did I have an Aortic Dissection?
Part A | 03 Type-B Dissection
Переглядів 1314 днів тому
Part A | 03 Type-B Dissection
Cover, Endorsements, Disclaimer, Acknowledgments, Welcome Letter, and About this Guide
Переглядів 2214 днів тому
Cover, Endorsements, Disclaimer, Acknowledgments, Welcome Letter, and About this Guide

КОМЕНТАРІ

  • @michellevanraes2925
    @michellevanraes2925 День тому

    Thank you for sharing your 5 points to live by. Happy Aortaversary!

  • @JohnStephens-bl2yn
    @JohnStephens-bl2yn 3 дні тому

    Thanks everybody! Also thanks to Aortic Hope for having me.

  • @carin-aortichope
    @carin-aortichope 3 дні тому

    You are amazing Kevin!

  • @carin-aortichope
    @carin-aortichope 3 дні тому

    Great Job!

  • @mareebrown5118
    @mareebrown5118 4 дні тому

    I wish this was my Cardiologist! So thoughtfully explained

  • @IMNUTTZZZZZ
    @IMNUTTZZZZZ 5 днів тому

    Thanks for sharing your story, John. It's so good to know you're not alone.

  • @christinakoller7489
    @christinakoller7489 5 днів тому

    Thanks John.❤

  • @KenKthulhu
    @KenKthulhu 7 днів тому

    Thanks for sharing your story, Kevin. Truly ironman level stuff.

  • @KenKthulhu
    @KenKthulhu 11 днів тому

    Martha. Thank you for sharing your inspirational story. You would have to be the survivor's survivor.

  • @christinakoller7489
    @christinakoller7489 11 днів тому

    Thanks for sharing. Very moving story. You are such a miracle.

  • @memolly
    @memolly 12 днів тому

    Good morning:)

  • @christinakoller7489
    @christinakoller7489 15 днів тому

    This is awesome. This 🤠loves it❤.Kudos Joshua.

  • @marct9587
    @marct9587 16 днів тому

    My father, shortly before he died, was found to have a large infrarenal abdominal aortic aneurysm, which they showed me an image of. They said he probably had it for decades. Big sucker, but it never burst.

  • @donnamobley4549
    @donnamobley4549 16 днів тому

    Hello

  • @donnamobley4549
    @donnamobley4549 17 днів тому

    Can you find out if you have turner syndrome?

    • @RyanRodarmer
      @RyanRodarmer 17 днів тому

      Yes, if someone suspects they may have Turner syndrome (which can cause symptoms like short stature, delayed puberty, infertility, webbed neck, and heart defects), they should request a referral for a genetics consultation and consideration of genetic testing for Turner syndrome. Their primary care provider should be able to help coordinate this referral. A genetic test called karyotyping, which analyzes a person's chromosomes, can definitively diagnose Turner syndrome.

    • @AorticHope
      @AorticHope 16 днів тому

      @@RyanRodarmer Thank you Ryan!

    • @AorticHope
      @AorticHope 16 днів тому

      Donna - Ryan is a genetics counselor and fellow survivor.

  • @donnamobley4549
    @donnamobley4549 17 днів тому

    So the asending is the only one that has to have the surgery now?

  • @donnamobley4549
    @donnamobley4549 17 днів тому

    Hello Karen

  • @christinakoller7489
    @christinakoller7489 18 днів тому

    Well said. Explained wonderfully for the newbies in our Aortic Hope world.. ❤

  • @christinakoller7489
    @christinakoller7489 18 днів тому

    Sorry I missed your live. But watching it 3.5 h later.

  • @christinakoller7489
    @christinakoller7489 19 днів тому

    Thanks Gregg. One of my blood pressure meds caused the nightmares. The doctor changed that one to one in the same group and nightmares stopped. By the way nightmares make your blood pressure go up!!

  • @KenKthulhu
    @KenKthulhu 20 днів тому

    There are many parallels with my own story to Greg's. I am almost one year post-surgery.

  • @KenKthulhu
    @KenKthulhu 20 днів тому

    Hello Greg. Thank you for sharing your story.

  • @memolly
    @memolly 21 день тому

    What an awesome and accomplished man!

  • @RuthMarsden-f9k
    @RuthMarsden-f9k 21 день тому

    Really useful presentation thank you 🙏

  • @memolly
    @memolly 24 дні тому

    Great information!

  • @TomNowetner
    @TomNowetner 24 дні тому

    Joshua

  • @TomNowetner
    @TomNowetner 24 дні тому

    Hello all

  • @bruceoroak3668
    @bruceoroak3668 25 днів тому

    Thank you. You are truly inspirational

  • @KenKthulhu
    @KenKthulhu 25 днів тому

    Thank you for taking the time to share your efforts and do this great work.

  • @TomNowetner
    @TomNowetner 25 днів тому

    Hello

  • @veldamackenzie6188
    @veldamackenzie6188 26 днів тому

    thank you Suzanne for sharing

  • @79thstreetsoundstage
    @79thstreetsoundstage 26 днів тому

    My wife has Giant Cell Aortits a type of vasculitis that attacks medium to large vessels. She has had a complete arch replacement with the FET open repair followed by a 17" stent placed in the descending aorta. She had isolated hypertension episodes since July following Actemra infusions to control inflammation. She was hospitalized August 25th for 9 days trying to get it under control. A CT scan revealed a type 2 endoleak in the stent graft. We travel to Cleveland Clinic tomorrow for her team there to assess her current situation. Listening to your description of your own experience with hypertensive crisis helped me understand that there may be other contributing factors for the isolated systolic hypertension she is experiencing.

    • @AorticHope
      @AorticHope 26 днів тому

      Reach out to info@aortichope.org to let us know she was taken care of! Thank you for your year of following us!

  • @memolly
    @memolly 27 днів тому

    Unbelievable story of determination and persistence. Great story, Kevin. Thank you for sharing. You are an inspiration.

  • @christinakoller7489
    @christinakoller7489 27 днів тому

    Wow. If it wasn't for his knowledge and determination he would have been dead. Congrats on all the accomplishments and thriving.

  • @TomNowetner
    @TomNowetner 27 днів тому

    Thank you

  • @TomNowetner
    @TomNowetner 27 днів тому

    😮

  • @enarccrane
    @enarccrane 29 днів тому

    Hope you are well...your story was well-told and captivating ... You look great considering this nightmare.!!!.I am 66 with an aneurysm trying to avoid surgery if possible. I will never feel sorry for myself having heard what you gutted your way through ...you are a lucky man!

    • @jdsguam
      @jdsguam 28 днів тому

      I was just diagnosed with a TAA of 4.5cm. I'm 69 living on the remote Island of Guam. No open heart surgery over here. I would have to be flown off-island. So, surgery is out of the question. I just hope it just knocks me out cold, ASAP, when it craps out.

  • @sharrywright641
    @sharrywright641 Місяць тому

    Carin how can I contact u

    • @AorticHope
      @AorticHope 12 днів тому

      please feel free to reach out to Carin via info@aortichope.org

  • @sharrywright641
    @sharrywright641 Місяць тому

    Wow He explained so much

  • @KevinSonger
    @KevinSonger Місяць тому

    #Qigong is amazing at supporting recovery and health for survivors!

  • @christinakoller7489
    @christinakoller7489 Місяць тому

    Thank you for sharing.

  • @rebeccalythgoe1620
    @rebeccalythgoe1620 Місяць тому

    Thank you - the three of you were a joy to watch. Really constructive interview. I like the way you constantly stress how everyone has different abilities and that the aim should not be to push oneself to attain our former level or to what other aortic athletes might be capable of.

    • @LATriBri
      @LATriBri 7 днів тому

      Thank you for watching, I'm so glad you found it helpful! 🙏 🙏 🙏

  • @johnquick5898
    @johnquick5898 Місяць тому

    Really useful, thank you

  • @bruceoroak3668
    @bruceoroak3668 Місяць тому

    Well done, Carin! You get such impressive guests -- medical rockstars.

  • @LATriBri
    @LATriBri Місяць тому

    Thank you, Jack, Carmen, and Aortic Hope! At 41:34, I should have noted that the John Ritter Foundation also wanted to see a recent heart scan before giving me the green light to participate in Team Ritter for the NYC Marathon. That was an understandable request and probably one of the important aspects of the "gauntlet" I forgot to mention.

  • @KenKthulhu
    @KenKthulhu Місяць тому

    Thanks for sharing your story, Robb. I too am a survivor. I hope to tell my story soon.

  • @glendamn6910
    @glendamn6910 Місяць тому

    I downloaded the app and have started to explore this!! very interesting!!!

  • @christinakoller7489
    @christinakoller7489 2 місяці тому

    I downloaded the app.

  • @christinakoller7489
    @christinakoller7489 2 місяці тому

    O wow that is impressive

  • @bruceoroak3668
    @bruceoroak3668 2 місяці тому

    This is amazing. I have created an account and i am exploring the website