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Aortic Hope
United States
Приєднався 1 сер 2016
Welcome to Aortic Hope TV (AHTV)! Here you will find videos from aortic dissection survivors or caregivers. As well, you can view videos of past live events Aortic Hope has hosted on Facebook. These events are Q&A sessions with cardiologist, surgeons and so much more!
AHTV Pre &Post Post Op Suggestions 09.13.2024
Get Aortic Dissection: The Patient Guide | bit.ly/AD-PatientGuide-Download
#ahtv #weekinreview #aortichope | April 00, 2024
Are you an aortic dissection survivor or caregiver? Please help us share your story.
bit.ly/AHTV-SurvivorSeries-SignUp
#donations | bit.ly/AorticHopeDonation
#hopeshop | www.aortichope.org/hope-shops
#ahtv #weekinreview #aortichope | April 00, 2024
Are you an aortic dissection survivor or caregiver? Please help us share your story.
bit.ly/AHTV-SurvivorSeries-SignUp
#donations | bit.ly/AorticHopeDonation
#hopeshop | www.aortichope.org/hope-shops
Переглядів: 14
Відео
AHTV Carin is interviewed on R-U Relentless and Unstoppable? !!!
Переглядів 182 години тому
Get Aortic Dissection: The Patient Guide | bit.ly/AD-PatientGuide-Download #ahtv #aortichope | September 2024 Are you an aortic dissection survivor or caregiver? Please help us share your story. bit.ly/AHTV-SurvivorSeries-SignUp #donations | bit.ly/AorticHopeDonation #hopeshop | www.aortichope.org/hope-shops
AHTV Diagnostic Tests 09.15.2024
Переглядів 337 годин тому
Get Aortic Dissection: The Patient Guide | bit.ly/AD-PatientGuide-Download #ahtv #aortichope | September 15, 2024 Are you an aortic dissection survivor or caregiver? Please help us share your story. bit.ly/AHTV-SurvivorSeries-SignUp #donations | bit.ly/AorticHopeDonation #hopeshop | www.aortichope.org/hope-shops
AHTV Common Medications for Aortic Disease - 09.14.2024
Переглядів 4314 годин тому
Get Aortic Dissection: The Patient Guide | bit.ly/AD-PatientGuide-Download #ahtv #aortichope | September 14, 2024 Are you an aortic dissection survivor or caregiver? Please help us share your story. bit.ly/AHTV-SurvivorSeries-SignUp #donations | bit.ly/AorticHopeDonation #hopeshop | www.aortichope.org/hope-shops
AHTV Genetics Screening 09.13.2024
Переглядів 3116 годин тому
Get Aortic Dissection: The Patient Guide | bit.ly/AD-PatientGuide-Download #ahtv #aortichope | September 13, 2024 Are you an aortic dissection survivor or caregiver? Please help us share your story. bit.ly/AHTV-SurvivorSeries-SignUp #donations | bit.ly/AorticHopeDonation #hopeshop | www.aortichope.org/hope-shops
AHTV Live Q&A Promo 09.12.2024
Переглядів 2319 годин тому
Get Aortic Dissection: The Patient Guide | bit.ly/AD-PatientGuide-Download #ahtv #liveqaPromo #aortichope | September 26, 2024 Are you an aortic dissection survivor or caregiver? Please help us share your story. bit.ly/AHTV-SurvivorSeries-SignUp #donations | bit.ly/AorticHopeDonation #hopeshop | www.aortichope.org/hope-shops
AHTV Specialists you may see | Topic Tuesday - 09.10.2024
Переглядів 36День тому
Get Aortic Dissection: The Patient Guide | bit.ly/AD-PatientGuide-Download #ahtv #topictuesday #aortichope | September 10, 2024 Are you an aortic dissection survivor or caregiver? Please help us share your story. bit.ly/AHTV-SurvivorSeries-SignUp #donations | bit.ly/AorticHopeDonation #hopeshop | www.aortichope.org/hope-shops
AHTV Marfan Foundation spreads awareness with Think Aorta!
Переглядів 45День тому
AHTV Marfan Foundation spreads awareness with Think Aorta!
AHTV Reading Resources by the Community | Aortic Disease Awareness Month 2024
Переглядів 41День тому
AHTV Reading Resources by the Community | Aortic Disease Awareness Month 2024
AHTV Heart Valve Awareness Week | Aortic Disease Awareness Month 2024
Переглядів 1714 днів тому
AHTV Heart Valve Awareness Week | Aortic Disease Awareness Month 2024
AHTV Community Resources 09.05.2024 | Aortic Disease Awareness Month 2024
Переглядів 2214 днів тому
AHTV Community Resources 09.05.2024 | Aortic Disease Awareness Month 2024
Part B | 24 Other medications - Aldosterone antagonists
Переглядів 3114 днів тому
Part B | 24 Other medications - Aldosterone antagonists
Part B | 21 Other medications - ACE Inhibitors
Переглядів 714 днів тому
Part B | 21 Other medications - ACE Inhibitors
Part C | 04 Why do families need genetic screening
Переглядів 1114 днів тому
Part C | 04 Why do families need genetic screening
Part B | 20 Other medications - Beta Blockers
Переглядів 1314 днів тому
Part B | 20 Other medications - Beta Blockers
Part B | 09 What exercise can I do long term?
Переглядів 10514 днів тому
Part B | 09 What exercise can I do long term?
Part B | 27 Other medications - Amiodarone
Переглядів 514 днів тому
Part B | 27 Other medications - Amiodarone
Part A | 10 What special help might I need after surgery?
Переглядів 3414 днів тому
Part A | 10 What special help might I need after surgery?
Part C | 01 For Family and Caregivers - how can family, caregivers and friends help?
Переглядів 914 днів тому
Part C | 01 For Family and Caregivers - how can family, caregivers and friends help?
Part A | 16 How should I resume activities at home? What about exercise? Summary of Part A
Переглядів 1114 днів тому
Part A | 16 How should I resume activities at home? What about exercise? Summary of Part A
Part B | 17 Medications - How should I manage my medications long term?
Переглядів 4814 днів тому
Part B | 17 Medications - How should I manage my medications long term?
Part A | 13 Resting Blood pressure and Heart Rate
Переглядів 1114 днів тому
Part A | 13 Resting Blood pressure and Heart Rate
Part B | 12 How can I regain my lost strength?
Переглядів 1414 днів тому
Part B | 12 How can I regain my lost strength?
Part A | 05 Why did I have an Aortic Dissection?
Переглядів 2114 днів тому
Part A | 05 Why did I have an Aortic Dissection?
Cover, Endorsements, Disclaimer, Acknowledgments, Welcome Letter, and About this Guide
Переглядів 2214 днів тому
Cover, Endorsements, Disclaimer, Acknowledgments, Welcome Letter, and About this Guide
Thank you for sharing your 5 points to live by. Happy Aortaversary!
Thanks everybody! Also thanks to Aortic Hope for having me.
You are amazing Kevin!
Great Job!
I wish this was my Cardiologist! So thoughtfully explained
Thanks for sharing your story, John. It's so good to know you're not alone.
Thanks John.❤
Thanks for sharing your story, Kevin. Truly ironman level stuff.
Martha. Thank you for sharing your inspirational story. You would have to be the survivor's survivor.
Thanks for sharing. Very moving story. You are such a miracle.
Good morning:)
This is awesome. This 🤠loves it❤.Kudos Joshua.
My father, shortly before he died, was found to have a large infrarenal abdominal aortic aneurysm, which they showed me an image of. They said he probably had it for decades. Big sucker, but it never burst.
Hello
Can you find out if you have turner syndrome?
Yes, if someone suspects they may have Turner syndrome (which can cause symptoms like short stature, delayed puberty, infertility, webbed neck, and heart defects), they should request a referral for a genetics consultation and consideration of genetic testing for Turner syndrome. Their primary care provider should be able to help coordinate this referral. A genetic test called karyotyping, which analyzes a person's chromosomes, can definitively diagnose Turner syndrome.
@@RyanRodarmer Thank you Ryan!
Donna - Ryan is a genetics counselor and fellow survivor.
So the asending is the only one that has to have the surgery now?
Hello Karen
Well said. Explained wonderfully for the newbies in our Aortic Hope world.. ❤
Sorry I missed your live. But watching it 3.5 h later.
Thanks Gregg. One of my blood pressure meds caused the nightmares. The doctor changed that one to one in the same group and nightmares stopped. By the way nightmares make your blood pressure go up!!
There are many parallels with my own story to Greg's. I am almost one year post-surgery.
Hello Greg. Thank you for sharing your story.
What an awesome and accomplished man!
Really useful presentation thank you 🙏
Great information!
Joshua
Hello all
Thank you. You are truly inspirational
Thank you for taking the time to share your efforts and do this great work.
Hello
thank you Suzanne for sharing
My wife has Giant Cell Aortits a type of vasculitis that attacks medium to large vessels. She has had a complete arch replacement with the FET open repair followed by a 17" stent placed in the descending aorta. She had isolated hypertension episodes since July following Actemra infusions to control inflammation. She was hospitalized August 25th for 9 days trying to get it under control. A CT scan revealed a type 2 endoleak in the stent graft. We travel to Cleveland Clinic tomorrow for her team there to assess her current situation. Listening to your description of your own experience with hypertensive crisis helped me understand that there may be other contributing factors for the isolated systolic hypertension she is experiencing.
Reach out to info@aortichope.org to let us know she was taken care of! Thank you for your year of following us!
Unbelievable story of determination and persistence. Great story, Kevin. Thank you for sharing. You are an inspiration.
Wow. If it wasn't for his knowledge and determination he would have been dead. Congrats on all the accomplishments and thriving.
Thank you
😮
Hope you are well...your story was well-told and captivating ... You look great considering this nightmare.!!!.I am 66 with an aneurysm trying to avoid surgery if possible. I will never feel sorry for myself having heard what you gutted your way through ...you are a lucky man!
I was just diagnosed with a TAA of 4.5cm. I'm 69 living on the remote Island of Guam. No open heart surgery over here. I would have to be flown off-island. So, surgery is out of the question. I just hope it just knocks me out cold, ASAP, when it craps out.
Carin how can I contact u
please feel free to reach out to Carin via info@aortichope.org
Wow He explained so much
#Qigong is amazing at supporting recovery and health for survivors!
Thank you for sharing.
Thank you - the three of you were a joy to watch. Really constructive interview. I like the way you constantly stress how everyone has different abilities and that the aim should not be to push oneself to attain our former level or to what other aortic athletes might be capable of.
Thank you for watching, I'm so glad you found it helpful! 🙏 🙏 🙏
Really useful, thank you
Well done, Carin! You get such impressive guests -- medical rockstars.
thanks so much!
Thank you, Jack, Carmen, and Aortic Hope! At 41:34, I should have noted that the John Ritter Foundation also wanted to see a recent heart scan before giving me the green light to participate in Team Ritter for the NYC Marathon. That was an understandable request and probably one of the important aspects of the "gauntlet" I forgot to mention.
Thanks for sharing your story, Robb. I too am a survivor. I hope to tell my story soon.
I downloaded the app and have started to explore this!! very interesting!!!
wonderful
I downloaded the app.
O wow that is impressive
This is amazing. I have created an account and i am exploring the website