I've had it on and off for over 20 years. I've had to research it for years, I know all the maneuvers and tests, i film my nystagmus, mine always comes back. Promethazine tablets from doctor are a life changer for when it hits you hard, it allows you to get through the maneuvers without vomiting. Try your best to know what canal your crystals are and then pick the proper maneuvers. When you do the Dix Halpike test, your eyes will beat or twist a particular direction, that direction will tell you what canal the crystals are in, so you will know what maneuvers are needed. Another reason doctors don't like some ppl to do it themselves, however with help, or filming your eyes, and proper research you can figure it out, however, I RECOMMEND THE DOCTORS FIRST. So like mine, usually the Eply starting on the right side is what I need. Big tip, I do the moves, then sit up and listen to a podcast or something for a bit. 10 minutes. Then I do it again. Then sit up 10 minutes. I repeat this until none of the maneuver positions cause dizziness anymore. Normally about 5 times. Then try and sleep on your back with head elevated a bit, as a general rule for me now, I never roll over face down, If I sleep on right side, and want to switch, I roll to my back then to left side. I tend to wake up with bppv if I roll face town or sleep with face facing down. I also tend to feel triggered if I'm working on things facing down for too long. Lots of pizza and beer in a night triggers mine, too much sodium and then the alcohol, anything that can mess with your bodies fluid, your inner ear fluid is so little that any change is a big change, so I watch the hydration issues. I try to balance alcohol, caffeine and sodium now. Helps. Check vit D levels, you need proper D and calcium levels, could have deficiencies. Obviously rough sports can trigger the crystals lose. The inner ear canals are like those puzzle maze games where the ball is in a thick fluid and you have to move the puzzle to make the ball go the right way. The puzzle is our head, hence the positions. You move one way, the crystal starts going, you are dizzy while the crystal is moving, it takes about 30 seconds for it to reach the other side, however waiting for about a full minute is key for me, some ppl change positions too soon, and that crystal never made it to the bottom so the move doesn't work, you just put it right back. So each move the crystal will move and your dizzy, wait till it stops, then wait a little longer then do the next move........depending on the maneuvers, one of the positions may not cause dizziness because it's just setting you up for the next, but trust the process. By the way, yes you can feel off for a couple days after, unless you caught it fast, the longer you wait, the faster your brain tries to adjust, now your really off. I'm still working on it, another thing I've don't that helps is to just do the test now and then, Dix Halpike, just to see how I'm feeling, if it's there, I just do a couple maneuvers accordingly. However this is because I get it more often than most people. If anyone else here has new studies feel free to let me know..... I'm told not miniers, no autoimmune, no other things other than some occipital nerve issues and that there could be causing some of mine because when that flares up, it's heading to and effects the same ear, so i started going lots of occipital nerve stretching and massage, look up occipital nerve and dizziness, it could be a trigger for some of you, if my right occipital area gets tight, hurts, it will cause dizziness with noise in my right ear, blurred vision with loud fast sounds, i can't pop that ear........once I stretch and use a golf ball to massage the right occipital area then the ear goes back to normal, I can pop it again and no more dissiness from noise. So I kinda got two battles. At the moment my occipital nerve area feels fine so i'm thinking my bppv today is from a bit of hard alcohol lat night, and coffee in the afternoon and too much sodium. Anyways guys, just giving you things to consider If your not dumb, you can get alot from youtube videos if you watch the right ones. Remember, you need to make sure your doing the right maneuvers for the right canal, or else you could be making it worse, that's what doctors are mostly afraid of, that and some just want your business, not all. Yes my years of dealing with it have been emotional, getting it figure out and learning to treat it, and getting the occipital ear relation figure out to has made my life much better. Anyways ((((((( If there is anyone here with up to date research or more tips please chime in. ))))))))))
Watching your videos you are a wealth of information. Cannot thank you enough.
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I've had it on and off for over 20 years.
I've had to research it for years, I know all the maneuvers and tests, i film my nystagmus, mine always comes back.
Promethazine tablets from doctor are a life changer for when it hits you hard, it allows you to get through the maneuvers without vomiting.
Try your best to know what canal your crystals are and then pick the proper maneuvers. When you do the Dix Halpike test, your eyes will beat or twist a particular direction, that direction will tell you what canal the crystals are in, so you will know what maneuvers are needed. Another reason doctors don't like some ppl to do it themselves, however with help, or filming your eyes, and proper research you can figure it out, however, I RECOMMEND THE DOCTORS FIRST.
So like mine, usually the Eply starting on the right side is what I need.
Big tip, I do the moves, then sit up and listen to a podcast or something for a bit. 10 minutes.
Then I do it again. Then sit up 10 minutes.
I repeat this until none of the maneuver positions cause dizziness anymore.
Normally about 5 times.
Then try and sleep on your back with head elevated a bit, as a general rule for me now, I never roll over face down, If I sleep on right side, and want to switch, I roll to my back then to left side. I tend to wake up with bppv if I roll face town or sleep with face facing down.
I also tend to feel triggered if I'm working on things facing down for too long.
Lots of pizza and beer in a night triggers mine, too much sodium and then the alcohol, anything that can mess with your bodies fluid, your inner ear fluid is so little that any change is a big change, so I watch the hydration issues.
I try to balance alcohol, caffeine and sodium now. Helps.
Check vit D levels, you need proper D and calcium levels, could have deficiencies.
Obviously rough sports can trigger the crystals lose.
The inner ear canals are like those puzzle maze games where the ball is in a thick fluid and you have to move the puzzle to make the ball go the right way. The puzzle is our head, hence the positions.
You move one way, the crystal starts going, you are dizzy while the crystal is moving, it takes about 30 seconds for it to reach the other side, however waiting for about a full minute is key for me, some ppl change positions too soon, and that crystal never made it to the bottom so the move doesn't work, you just put it right back.
So each move the crystal will move and your dizzy, wait till it stops, then wait a little longer then do the next move........depending on the maneuvers, one of the positions may not cause dizziness because it's just setting you up for the next, but trust the process. By the way, yes you can feel off for a couple days after, unless you caught it fast, the longer you wait, the faster your brain tries to adjust, now your really off.
I'm still working on it, another thing I've don't that helps is to just do the test now and then, Dix Halpike, just to see how I'm feeling, if it's there, I just do a couple maneuvers accordingly. However this is because I get it more often than most people.
If anyone else here has new studies feel free to let me know.....
I'm told not miniers, no autoimmune, no other things other than some occipital nerve issues and that there could be causing some of mine because when that flares up, it's heading to and effects the same ear, so i started going lots of occipital nerve stretching and massage, look up occipital nerve and dizziness, it could be a trigger for some of you, if my right occipital area gets tight, hurts, it will cause dizziness with noise in my right ear, blurred vision with loud fast sounds, i can't pop that ear........once I stretch and use a golf ball to massage the right occipital area then the ear goes back to normal, I can pop it again and no more dissiness from noise.
So I kinda got two battles.
At the moment my occipital nerve area feels fine so i'm thinking my bppv today is from a bit of hard alcohol lat night, and coffee in the afternoon and too much sodium.
Anyways guys,
just giving you things to consider
If your not dumb, you can get alot from youtube videos if you watch the right ones. Remember, you need to make sure your doing the right maneuvers for the right canal, or else you could be making it worse, that's what doctors are mostly afraid of, that and some just want your business, not all.
Yes my years of dealing with it have been emotional, getting it figure out and learning to treat it, and getting the occipital ear relation figure out to has made my life much better. Anyways
((((((( If there is anyone here with up to date research or more tips please chime in. ))))))))))
Awesome advice! Thank you for sharing!