Polycystic Kidney Disease (PKD) | Anjay Rastogi, MD | UCLAMDChat
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- Опубліковано 20 тра 2018
- UCLA nephrologist Anjay Rastogi, MD, gives an overview of Polycystic Kidney Disease (PKD), including causes, symptoms, diagnosis and treatment. Learn more at www.uclahealth.org/core-kidney/
- Наука та технологія
My daughter's grew very fast. She had a 10cm cyst removed at 9 years of age. She had a great team. Thank you for the diet information. 👍
Hello app se bat karma he nmbr digeyna
I'm sorry to hear that, but happy she is much better now. It crush my heart indeed since I have these pathology and my younger daughter is only 16. And I concern she may get that too.
How is she doing now
Thank you, Dr. Rastogi! Excellent presentation.
Thanks for posting this very informative video. Thank you also to Dr. Anjay Rastogi for his expertise and sharing his knowledge.
Thank you so much. So informative n comprehensive
My dad passed down PKD to all his kids. 3 of us. I got diagnosed in 2007. Got it all doc. I am crying.
We are 8 bro and sisters unfortunately 7 of us suffering from PKD . 2 of sisters there GFR only 10 and 11 my gfr is 27
I am 42 years old. My creatinine 229. I didn't find any cure yet.how about u?
My sister and I both inherited the PKD gene from our father. My kidneys failed 15 years ago when I was 59 and I had a very successful transplant. My sister is a year younger than I am and her kidneys failed a year ago. She is on dialysis.
@@tdewijnsoftbyte hi there tony and why your sister didn't do transplant? My gfr is 27 only. my creatinine is 230 I don't know how long still I will have until my kidney totally gone.i hope I'll have 3 to 4 years at list .
:(
@@SalehALRiyami1976 did you find a donor?
Thank you!! Question; Who would you suggest to see on the east coast, around Philadelphia or Pittsburgh areas??? I'd really like to go to UCLA...but covid and travel
If I have had a CT scan for this before like 3 years ago will I need to keep checking or am I clear of this and my children? My uncle has this on my dads side.
Very informative and deep detail information.
Great information. I wish more information would be about how pkd and bp affects the heart since it is mostly how pkd patients die
The same gene that causes PKD causes poor arteries and poor blood. Most people with PKD die from aneurysms or strokes. I have PKD and I have had a triple bypass, a DVT, a stroke from a blocked carotid artery and 15 years ago, aged 59, I had a renal transplant. The kidney came from a teenager killed in a car smash. I am now 74 and my creat level is 10% better than the average for a male with two healthy kidneys.
Excellent video!!
Thank you for this video. I have PKD since 2005. Good info to know.
interesting points ,if anyone else wants to discover
natural kidney health
try Franaar Healthy Kidney Formula ( search on google ) ? Ive heard some extraordinary things about it and my mate got amazing success with it.
I'm not sure but ,if anyone else trying to find out
foods for healthy kidneys
try Franaar Healthy Kidney Formula (should be on google have a look ) ? Ive heard some unbelievable things about it and my work buddy got cool results with it.
How old r u?
Hi Dr How do you feel about supplementing with Tripolide extracted from Thunder God Vine?
Deborah Sanders can you tell something more how you're doing now?
I'm interested in trial treatment. This PKD is so pain
Thank you so much for your information I have pkd and the pain never lets up even with painkillers
Great overview. This will help me explain what I have to others.
But how to relieve the pain. My pain is a stabbing extreme and has been for months.
Cheers for this, I've been looking for "how is polycystic kidney disease diagnosed" for a while now, and I think this has helped. You ever tried - Sanilliam Simplex Superiority - (do a search on google ) ? It is a good one of a kind product for revealing the trick to Improve your kidney function without the hard work. Ive heard some great things about it and my colleague got excellent success with it.
I have that symptoms since 1996. Now I'm 37yrs old. Last year only I go to hospital for so much back pain
Did you take any medicine for Adpkd?
Renal cortical cyst is normal cyst
Do you have a episode for long term kidney failure? I don't Pee at all ! So both my kidneys are gone I was only born with a have a function kidney
What to do for sleeplessness pkd?
My father was suffering from PKD suggest me advice to cure PKD
Very nice presentation
Gracias
I’ve been on pd but hernias caused me to have to back on hemodialysis and hate it I feel so bad after and all the time..can’t go on pd again because of the mesh one was recalled had both sides have mesh need over three yrs.. I have a prolapse the put me on hold for transplant until I get my prolapse fixed 5 specialists said no to much scar tissue..So we went to Stanford to a specialists and she was also No..she said they could do that when they take my kidney out and replace it with new kidney..So I called UCSF talked to my coordinator she said they don’t do it that way..I already knew that..I don’t know what to do! oh forgot had my left kidney removed it was just to big causing to much pain and problems...my blood pressure is up and down very high I ware a patch for blood pressure..on Dialysis my blood pressure drops very low then when I get off dialysis and they take my standing pressure it’s major hi in the 200 ....I can’t find a kidney Dr. that knows anymore than I do only difference is they can write prescriptions I can’t...that’s part of my story..Im in Hanford Ca...I have really bad dry eye yes it gets very watery but still dry eye..If you have anything at all you can help me with I would be very great full..Thank you..Marlene...my website is mshathcock@gmail.come...I’d come to you there very interested in what you are doing over there and you are not to far away...please help I know you get many of these letters but I just hope I can get a break..
interesting points ,if anyone else wants to uncover can you cure kidney disease try Morundan Kidney Carer Mastery (just google it ) ? Ive heard some amazing things about it and my colleague got excellent results with it.
Thanks for sharing teaching sharing is caring shared this
is it possible that a patient having pkd can develop hydronephrosis?
Nice Video! Forgive me for butting in, I would love your thoughts. Have you researched - Trentvorty Perfection Kidney Theorem (google it)? It is a great one off product for improving kidney function minus the normal expense. Ive heard some decent things about it and my buddy at last got amazing results with it.
My kidneys are huge the only way I can get comfortable is laying down. A lot less pain way laying 4. . I have autosomal polycystic kidney disease. .
Is there any cure to that PKD
can these disease be cured?
Is this deasease has cure
Very interesting good to know
Just wonderful, been searching for "auto dominant polycystic kidney disease" for a while now, and I think this has helped. Have you ever come across - Sanilliam Simplex Superiority - (do a search on google ) ? It is a good one off product for revealing the trick to Improve your kidney function without the headache. Ive heard some amazing things about it and my co-worker got amazing success with it.
what is adpkd treatment
I had 6 siblings on dialysis 2 aunts an uncle mother in law
You have shared a piece of great information. I too have gone through this problem. I felt very bad at that time. I went to many Reputed Hospitals but due to result not being I was losing courage. Then Someone told me about Planet Ayurveda, I went there and took treatment. Now he is fine. So, if anyone is facing such kind of problem or any other health-related problem. You should go to Planet Ayurveda.
I've been researching relieving kidney stones pain naturally and found an awesome resource at Wilfs Remedy Answer (google it if you're interested)
My mother is facing with pkd ....can you suggest me something about it's treatment. It will be very helpful .
Hi Amritpal
What did you discover?
Any luck with research?
Also UCLA is a specialty clinic for Tuberous Sclerosis Complex. TSC. Why am I bringing this up? You say that PDK can be caused be a mutation in chromosomes 4 and 16. Yet, you failed to mention Tuberous Sclerosis. For those that don't know, Chromosome 16 also is one of the genes of tuberous Sclerosis complex type 2, which is another type of mutation. TSC is genetic and causes cysts and tumors to grow on all parts of the body. With that, I disagree on the part that ADPKD should not be screened by imaging alone. Yes, ultrasounds is useful in monitoring progression. sometimes a CT scan is more affective on seeing smaller cysts that an ultrasound may not pick up. I've been getting imaging testing all my life. The reason why I know this is because I have TSC, I had to get screened for LAM cysts too. More cysts showed up on the CT scan than the ultrasound. You guys should be screening for genetic causes too. You never know who you might help when you give a patient answers. To the patients, looking for answers that your doctor won't give, ask them to Order genetic testing. Keep bugging until you get answers. There is a very strong connection between PDK and TSC. Their website is www.tscalliance.org
Dr. Rastogi, my wife has this disease, she's 28. We're interested in having children. Do you know of any research or specialists we could refer to speak with regarding ADPKD and pregnancy? Any input you may have would be greatly helpful and appreciated. She's currently taking the newly approved Jynarque.
You can do IVF and they can select the ones without PKD. Done it myself but wasn't successful. You can repeat it but it was a painfull for my wife so we stopped.
Sir, What to do when a five month pregnant fetus baby has one polycystic kidney diagonised in scanning?
Mere baby ki death b isi me Hui he
Hello, my question is, a very complicated one
I ADPKD pesiont from GUjarat
I was born with my kidney disease and I never grow very tall because of it I know mostly everything about my kidney disease except for that why does it stop you from growing I've been on dialysis for 31 years I started dialysis at seven years old and I am 38 now I'm probably only the size of a 10-year-old maybe 11 just wanna know the answer that's all?
It's really sad to know how are you now?
I'm the same I can still walk and talk and smile life is not that hard for me but I think it's because I've been sick my whole life then a person who just started dialysis I mean yes I can get really deadly and scary but I fight every year and every day I can get hit by a car tomorrow you just never know right?
@@luckystarrpaul5411 yesterday I discovered that I have pkd and I am 24. It was so sudden I was not ready for it. Life can be more unfair then what we get.
@@luckystarrpaul5411 did you think about transplant?
I had a transplant for three months when I was eight I got really sick not from the transplant but from the disease it's self and when I get older there was just never went around and after I was 29 I just got too sick for a kidney transplant my body cannot handle a kidney transplant today! But that's cool all the nurses and doctors are my family may sound silly to hear that but true I've known most of these people all my life!
For more information, please join us for the Virtual UCLA CORE Kidney Health Conference on March 21st, 2021 from 11am-12pm PST! This event is free, virtual, global, and open to the public.
This conference is focused on bringing you the very latest research information about the management of kidney disease at UCLA Health. Topics include COVID-19 and its impact, treating diverse communities, home dialysis, donation, transplantation, patient stories and much more.
Please register by visiting the UCLA CORE Kidney Program website!
I did not know wish I had known
I never drank water
Pls translate in hindi
My dr doesn't listen
All thanks to Dr Aba for curing me from Polycystic kidney disease Am forever grateful
Doctor details please sir
@@tanvika-fr5dr I drop his contact but UA-cam keeping removing it can you drops yours so I can help you forward it to him.
Stop making people fool by doing fake promotion #paid comments about Dr aba.
All thanks to Dr Aba for curing me from Polycystic kidney disease Am forever grateful sir 😭🙏
Hello sir dr aba contact number address please
Hi,
I am also PKD patient
Can you please help me in getting the contact details of Dr अबा
It will be great for me please help
Pls help me give me Dr aba ph number
Learn more about PKD and other topics surrounding kidney disease at our annual UCLA Kidney Health Fair!
Our educational day at the beach will be held on Sunday, May 5th, 2019 at Dorothy Green Park at Santa Monica Beach.
Dr. Rastogi and the rest of our expert team will be at the fair to answer all of your questions. Pre-registration is highly encouraged and can be done by following this link: connect.uclahealth.org/event/kidney-health-fair-at-the-beach/
We hope to see you all there!