Mike Shoreman | Mental Health & Ramsay Hunt Syndrome
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- Опубліковано 20 сер 2024
- Back in August I got to interview my friend Mike Shoreman about his experience with RHS and where he's at now with processing it all.
Where to find Mike:
IG: / theunbalancedpaddleboa...
FB: / eastofsixsup.standupad...
Mike's new book, OUT TODAY! www.amazon.ca/...
Winning Speaker Slam Speech: • The Diagnosis That Cha...
Both of you guys have very inspiring stories to tell..I was diagnosed with RHS last May and got fully recovered since then..Yeah indeed, there's life after the struggles and it made us better versions of ourselves..Thank you for bringing your powerful messages across..Kudos to both of you!👍🏻👍🏻👍🏻
Sorry to bother , but I am on day 15 having RHS and my face still no change. May I ask how long it took you to get some changes for the better? Thank you
@@electrikwayz6634 it depends upon your treatment and struggle !
Partial recovery = 6 months
Time span for complete recovery= 1 to 2 years
would love to see an update on how you're doing now!!! I love your videos.
I had RHS in 2019! I feel like I am still recovering! It was such a journey and I watched your videos at the time! 🤗
Hope they were able to help!! I know it’s a tough time. Just went through a relapse myself a month ago and thankfully feeling better now
He has had RHS for 2 years and he hasn't recovered as you did, why is that? I am only asking because I am currently going through it, its my 7week with RHS and no progress whatsoever and its very very... very difficult :(
We both received treatment late - Mike was unfortunately very late as doctors didn’t do proper scans to see what was going on.
I also was treated late for shingles as I was misdiagnosed and that created other neurological problems that were not visible (I received treatment for that a year ago and thankfully they have resolved but if you look at my other videos, I talk about my other symptoms in terms of walking issues, hand and arm tremors, speech difficulties, balance issues, chronic fatigue, facial spasms, nerve pain that were a part of my life for 2 and a half years).
Our bodies all respond differently. They need time and rest. I had prednisone given to me on a tapering dose for a few weeks only because I was lucky to see a specialist but that did not help the shingles infection and then what it did to my brain.
I know it’s tough especially when you don’t see improvement. I hope you see signs soon!!
Tanyatastic Talks Hi Tanya, i have seen all your videos and i follow you and I appreciate what you are doing. When i got diagnosed on the 26th of Aug 2020 (what a year eh, keeps getting worse) anyway so that day i realised that its a very rare disorder and not a lot of literature or help or awareness is out there, luckily stumbled on your videos and then later more videos which showed complete recovery from facial paralysis. I am aware though that you also have FND which is major pain in itself even more so sometimes as it cant be seen, you look and sound perfect! - keep doing what you are doing and I will keep watching your videos time to time and maybe one day hopefully God willing i will drop you a message saying that I am completely okay, Amin , God bless you
@@ganeshkumarrajput what country are you in?
Before treatment FND was getting worse but thankfully after treatment I have my life back, I’m very fortunate
@@TanyatasticTalks Hi Tanya , i live in London, UK, i am a clinical scientist and work in leukaemia diagnostic center. I read everything about RHS and FND, you are not fortunate in my personal opinion as i dont believe in luck, you are very blessed and much loved by Jesus, Because FND can sometimes cause POTS, another very disorder and it can make life difficult, problem with rare diseases is there is very little research done on them and lack of awareness makes sufferers push into isolation, therefore what you are doing is absolutely amazing, thank you for doing what you do, God bless
@@ganeshkumarrajput yes, He was with me throughout it all.
My face got better after about 6 weeks, but it took a long time for my eye to close. My hearing hypersensitivity that I developed at the onset did not improve and only got worse until finding treatment. Keep me posted!
Hi Tanya. It has a while u posted a video. How are you?
Hi Carmen!! I’m doing well, I really need to put out another video to let everyone know what I’m up to. Have been able to get back to working full time. The pandemic actually helped give my nervous system a break to be able to settle down into a new rhythm.
@@TanyatasticTalks Great. Good to hear that.