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What is Myositis? Myositis101 for patients
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- Опубліковано 14 сер 2024
- This Myositis 101 for patients video is on "What is Myositis", where Dr. Rohit Aggarwal, Co-Director of Myositis Center of University of Pittsburgh, Chair of Medical Advisory Board of The Myositis Association (TMA) and author of book "Managing Myositis: A Practical Guide" explains patients in simple words what is myositis, various myositis types and symptoms.
Dr. Aggarwal will post one myositis video for patients each week.
Please subscribe to youtube channel - Myositis101 for future videos.
Who came here after Samantha diagnosed?
Me
Me
Lool me
Me too
Me😢
The Myos explained in an easy to understand way. I appreciate these Doctors that care enough to make such videos, their passion to educate inspires all.
Helped me out a lot when I was in the hospital. Fantastic Doctor!
Thank you for encouraging awareness
These are great videos. I'm a medical student and I wish professors would start at this level of instruction before moving on to more intense, detailed material. I had a lecture where the professor started by immediately listing off the different types of myositis-related antibodies and how to make proper diagnoses, without ever explaining what myositis was in the first place!
Amazing and informative information about Myositis. Thank you, I am waiting on my test results.
Thank you for clearly stating that yes Myositis patients (some) do have pain, as well as other things you’ve addressed that shows you listen to patients. I admit to coming into watching with skepticism but was pleasantly surprised and look forward to future videos.
I been diagnosed with PM but inclusive biopsy for years because of inclusiveness resulting it’s been 10 years come September i haven’t gain back my mobility and now I got retested for NAM
Thank you. Thank you. Thank you. Excellent explanation. Clear and easy to understand. I have been very sick for 1 year, many tests, many doctors. I am now seeing doctors at Cleveland clinic, Neuromuscular/autoimmune doctors. Appointment next week. I can't wait. No one could understand why I have trouble swallowing and throat pain. Weakness. Legs feel like jello. Tired. Joint pain. Migraines. I do not have MS, No Lupus, No sarcoidosis. I think I have this!
Thanks.
Nancy
Hi how are you doing now?
Did you get Diagnosis?
I've just been diagnosed and this has been very helpful explaining it to family as it's been 4 years of trying to work out what's going on
Hi, how are you now?
Thank you I have dermatomyositis and this is really informative :) Can’t wait to see the next ones
Thank you God bless you
Excellent, so appreciated!
Wonderful video. Simple enough explanations to understand this disease. Looking forward to your other videos
Thanks
Good explanation . Clear wording, easy to understand.
This video was very informative. I can't wait to see the next video. I have polymyositis.
What medicine you have taken ??
Need 🙏
very well explained dr saab.thanks
Thank you for this informative video.
GREAT DR 👍🏼
Very high lifestyle is also dangerous to health... simple living is the only solution for all problems
Came across your channel by chance and glad I did.
Diagnosed with Dermatomyositis a couple of weeks ago.
Thank you for a brilliant, concise video.
New sub. ❤️
Did you cured?? If you do how long does it take? It would be helpful if you could give me some insight
Sir, i have diahnosed 15 days back after biopsyof muscle. Pl sugest any drugs just to revover
Thank you for your series of videos. Very helpful. Keep up the great work.
Thank you…. You have helped me a lot! 🙏🏼🙏🏼🙏🏼🙏🏼🤗
Thank You , I have myelopathy Myositis .
Who is here after hearing actress samant suffering this decease
Good morning Dr!
Thank you so very much sir for your explanation on polymyositis but I want to ask if it's a life threatening disease?
Thanks for this amazing video it's very helpful ❤️❤️❤️👍🏻
Thank you so very much.
Loved it sir.. can you make a video on crush hand injury treatment
Thnak You for your explanation! Very hepful. Could you please say me where can I make the myositis autoantibody blood test? I live in Santiago de Chile.Thank you
Hello doc I have diagnosed myositis on my ankle bone , is this serious
I m 43 n digonised with myositis from 2 years.But I have trouble in climbing strairs from not less than 10 years.I want to know does I had this disease from my age of 30s?
Thanks sir
My father 72 yrs is diagnosed with possible MND since dad was unable to go through never test we are unable to decide in the issue. Now his condition is bad and his fingers are not functioning, muscLE wasting AND unable swollen food ..is this related to myosotis ? Is there Any treatment for ALS or MND
Great video!!
Thanks Didem
Thank you!
Sir...I have apla syndrome....recently I got severe pain on the left hand near to should....that went off n comes back sometimes with slight tightness....n now I am with DVT(left lower limb).
Sir in my age of 19 years I have diagonised polymyositis in my left hand. now I am 23 years old I have taken treatment in Christian medical college in Vellore and my doctor's prescribed to consume prednisolone ( wysolone) tablet for daily. Now I am 80 percentage alright but my left eye are not able to open is there any treatment to cure my eye doctor.
Sir I have swelling in the lower digits of my fingers and left calf muscle. It developed post Covid. The doctor here went for a Color Doppler and EMG and they were normal. He then recommended a pill containing lycopene and l carnitine. Sir can it be some form of myositis??
I have refused medication and treat with natural remedies. Supplements and diet. Any recommendations???
Hello Doctor, we need your help please. My father has mostly same symptoms as described by you for Myositis, but there is no doctor in our city who can understand his problems. Can you please help us in anyway? I would really appreciate your help.
Sir I'm 41 years old and I'm suffering from polymyositis since 21 years. Mine is inflammatory type and primary muscle disease.
Is myositis treatable? Is it curable? And can a EMG test detect myositis?
Yes
Sir Dear sir mam
My mother age 75 is diagnosed with mayositis.
Pls inform exactly whom to consult which is specialist doctor for this in Mumbai India.
What is line of treatment.
Any specialist in US we can take opinion.
Please reply urgent.
Sir actually I am also medical field .....one of my family member was suffering from myositis for I want to contact with u ....sir it's possible to contact with u sir 🙏🙏???
I wish I could've seen you as my Dr
I have lupus, sjogren's, fibromyalgia, RSD,, a vascular necrosis, palpitations lung problems and lung pain. Been diagnosed with pneumonia several times, severe lymph nodes swelling often, eyesight issues from site to infections with stents put in, carry my formation of the skull my brain sex through 7 and 10 mm, major skin issues including lesions and skin basically slides right off my face if I were to try to pop some type of pimple. For the first time recently developed hives on the same day that my lymph nodes swelled up really bad never had that before, shortness of breath but I am a smoker which I know is bad I have cut down a lot, currently a bit overweight but have dropped about 15 lb now with eating right and cutting out a lot of sugar as well as eating late at night, insomnia, anxiety, memory issues, spinal stenosis cervical compressions several displacements of the spine / herniations and protrusions, transverse process fractures cause unknown, diagnosed with lupus when I was 14 the others followed I am just about to be 40, severe fatigue, neuropathy, edema and extremities face tongue, GI issues, trouble swallowing, occasional migraines, I always feel like my body needs to be stretched or broken in half backwards forwards and side to side. My question is one of my main symptoms is that I cannot help but stretch my spine mostly but my legs arms and buttocks as well, seems to stem from my torso. I have to engage in extreme flexibility exercises and stretching to fulfill this this neurological desire in order to gain some type of relief. But it is short-lived as my body gets extremely weak as if I ran a mile very quickly. I used to be extremely active even with disease. The progression is devastating and I feel that most doctors don't really understand that sometimes more than one disease as a whole is what they need to look at. They don't see that in depth they may be able to decipher this little that is my body and help me to understand what I can do to help it. I used to hike camp skydive go out with friends now I can't even sit on my bed or lay down without being compromised. I feel like I also need to take the biggest breaths possible hold it in and push almost to stretch my lungs and rib cage along with the spine. My spine has been giving me trouble since I was a kid my entire body hurt as a child. When I was a toddler all of my hair including eyelashes and eyebrows, fingernails and toenails fell off and I developed an extreme rash from head to toe that was open and raw. When I was about five or six I had a few bouts where my legs went out from under me and we're so weak they could not work and that just mysteriously went away. Pretty much my entire life I have been put through ongoing stresses of pain which is really traumatic actually and I'm still dealing with trauma of it daily. Especially when I come across a doctor or nurse practitioner or doctor's assistant who isn't taking me seriously or isn't an educated enough to understand my complexity of diseases. I often have trouble explaining what I am feeling because I think it overwhelms them and I am already overwhelmed from it as it is so I'm sure I add my anxiety into it wanting so badly to get answers and help. I must say that it is very hard to find a physician who really wants to solve the mystery. Most just tried to make things minut and it is so frustrating and really takes a toll on my emotions and mentality. Then they see me as depressed or having anxiety. Yes there were many times where I became depressed because of all of this it has been so long now and I am so fed up that it is quite hard to stay in a depressive state because that actually adds to conflicts already happening ithin my body. For many many years I was not and still in some cases I'm not being taken seriously though I have blood work and images to show things. Because of this treatment came way too late in most cases of illness diagnosed. By the time they do what I've been begging or asking it's so severe. How do I explain this to my doctor without overwhelming him with information? Your feedback is greatly appreciated and very much needed. Thank you for what you are doing. Words actually cannot explain or describe just how important you have become in my life. Thank you for doing these videos and bringing awareness to things that are life altering which most cannot understand. When a doctor asks me what my pain level is it's almost like a cop out because I have several different very particular kinds of pain and they are always all different from one another. An average person's 10 in pain is my 30 in pain. But if I say that out loud I am looked at like I am exaggerating when in truth this is really reality for me everyday and all through the night. It's really taking a toll on me and I really just miss freedom. Besides the stretching and flexible exercising, sometimes a very certain type of massaging only in certain areas helps. If other certain areas are massaged or touched it is an awful pain but the expected areas are the best feeling. It's almost the same type of feeling that I get when I do those flexible stretching exercises. I don't know where to go from here do you have any suggestions on how I can articulate these things too providers so that they will want to help and not feel like they can't wait until I'm out of the room? This is so hard. Some of them seem to expect me to have the answers. They expect me to give them timelines and remember everything. But the truth is there is just so much going on in my body. I have been hospitalized for kidney problems but that was a very long time ago although I do have severe kidney pain now and blood in my urine as well as protein. Any thoughts on that?
I'm also losing my hair and it has happened rapidly in the last 3 days at the same time that the lymph nodes all swelled up. Currently during this time I also got an eye infection. As well as weird bumps and rashes on my body. Including the knees hands and face. In coming across lymphoma I became very mind blown because what they were describing is how I feel. I am usually fighting multiple infections at once I am losing more weight than I expected eating correctly I don't think is the only reason because I have felt very nauseous and a very weird type of I guess you would say headache over my head during the lymph nodes swelling I'm going through. I feel exhausted all the way to the center of my bones. The littlest movement or degree of adjusting can significantly deplete my energy and hurt me. I have noticed in the last month that my vision is changing drastically. I had very good eyesight even with the sjogrints. But then after this month has gone in the last few days around the same time that I lost my hair and got these infections along with lymph nodes swelling, there are times when I feel like I am going blind and the left eye and losing focus and clarity in my right side. Especially when reading. If I am looking in the mirror up close I can see my normal outline of my eyes if I were to back up all of a sudden there are black line type shadows under my eyes or around my lips that I see and as I come closer to magnify it slowly disappears. If I look at le
blurry sight and trouble focusing. Worse with the left eye than right side. It seems to be worse at night. My skin I have always tried to explain that it feels like muscles nerves and the center of my bones are all going crazy at the same time. How do I explain that without confusing them or becoming overwhelmed myself? I came across something while reading and researching,I believe from Johns Hopkins, about lymphoma. I am at greater risk for developing lymphoma than most people due to the fact that I have sjograns and lupus. I had no idea about any of this and I have had lymph node issues for a long time the last major episode was about 9 months ago and my throat swelled up more than ever. Along with other areas. This lasted over a month and a half and I could not eat and barely drink I lost about 20 lb in that'll time and nothing ever came of it
Sir please give solution of myositis
dr I am the patient of mastitis/SCLODRAMA
I am wondering if this is mistaken for fibromyalgia and if people are being misdiagnosed ?
HUGE difference between fibro and myositis!
Hi sir I'm Rachelle Gulajer from Philippines I have myositis disease also..I need your help sir .bcuz here in Philippines is no doctors for my sick about myositis disease..plz help me ..I hoping your help sir thank u and Godbless ❤️
Hi mam
Tagasaan kayo?
प्लीज हिंदी मधून व्हिडिओ करा 🙏🙏