Have a Trach & Vent? Info you NEED to know! Life with a Vent
Вставка
- Опубліковано 31 жов 2020
- Getting a tracheostomy and being started on a ventilator can be a scary experience. There is a new medical device you need to know how to operate and new medical equipment you need to know how to use. Although this experience may seem overwhelming, there are some tips and essential information which can help make this transition smoother. Join me this week as I will share some techniques to help care for your tracheostomy including using an inner cannula and operating a suction machine, and I will discuss some information you will need to help trouble shoot problems which may arise. #lifewithavent #tracheostomy #ventilator
I hope this information helps guide you as you learn how to live with your medical equipment. If you have any questions or concerns, please feel free to contact me.
For more fun and adventures please check out my blog: mitowarrior.blogspot.com
Instagram: / lifewithavent
MeWe: mewe.com/join/lifewithaventil...
Facebook: / life-with-a-vent-11312...
Email: life.with.a.vent@gmail.com
Affiliated UA-cam Channel: / godismystrength
![Lp. Последняя Реальность #97 ЧЁРНАЯ МАТЕРИЯ [Анти Скинт] • Майнкрафт](http://i.ytimg.com/vi/k4MjXCzKsYw/mqdefault.jpg)
RN here and you do an amazing job of explaining trach and ventilator care in a way that anyone should be able to understand! Really impressive! 👏👏👏👏
Wow, thank you!
Met your mom today. Thank you for educating us and bless you.
Thank you.
As a respiratory therapist who works with trached patients, I love your videos!
Thank you so much for your kind words.
Came across your you tube site by accident. I am continually amazed at persons such as yourself that demonstrate such remarkable courage and positivity. You raise us up.
Thank you so much for your kind words.
You are awesome. I'm a nurse & this is the best into to vent explanation I've ever heard. Thank you for sharing.
Thank you for your kind words.
That was the best training I have ever had on home vent care!! And I am a nurse so let me tell you, it was worth the training - You covered anything and everything! It was fantastic!
Thank you so much. I appreciate all your kind words. I am glad it was helpful.
Hi! I am a new Nurse here and you do a great job explaining things. Thank you.
Thank you for your kind words.
As a primary caregiver of my father with ALS, I love and respect your videos. He has a trach+vent since May 2019 and ALS since October 2015.
Thank you for your kind words. All my best to you and your father.
Thank you so much for taking the time to make and share these videos. My grandmother is currently facing a peg and tracheostomy in the icu, following a secondary aspiration event. I am very concerned, but having access to calm, well presented information from someone living with firat hand experience is helpful, and assuring moreso than solely hearing the secondhand experiences and attestments of medical profesionals.
I am very appreciative of your knowledge and kindness
Hello. I am so sorry to hear about your grandmother. I hope she is soon on the path to better health. Thank you so much for your kind words. All my best to you and your family.
My dad is in Stanford hospital ICU with the same issue 😭🙏 I pray to god they do something 😭😭😭
@@zeek4749 Although I am sad to hear your dad is in the ICU at Stanford, I am happy he is at Stanford. It is an excellent medical facility. I hope the doctors are able to create a plan to get your father on the path to better health.
I am going through the same at the moment with my mom.
Best video I have found so far! Thank you so much!
Thank you.
Tracheostomy..I love this video
You’re an amazing teacher!
Thank you for your kind words.
You have provided so much information thank you
My pleasure. I am glad I could help.
Just found your page!! Thanks a lot for sharing this helpful videos I just got surgery last week and had to get a tracheotomy tube I live alone & little by little it’s hard but trying to learn how to adapt to having it. I don’t know if it’s temporary or forever. But I have my faith and thinking positives for me and my 2 kids!!
Thank you for sharing. I hope everything goes well for you. If you ever have questions or concerns, please feel free to reach out to me. All my best to you and your kids.
You are wonderful teachers!!! God bless you!
Thank you.
Thanks for being so strong much love ❤️
Thanks.
My cousin just got a double lung transplant and the doctor is talking about a trach for him your video is amazing and educational! Gorgeous smile and attitude. God bless you!
Thank you for sharing this with me. I hope everything goes well for your cousin. Thank you for all your kind words. All my best to you and your cousin.
I can not thank you enough for this valuable lecture...
God bless you..
Thank you.
How well you speak!!! Very nice video.
Thank you.
You did such a great job with this video! It really helped me.
Thank you for your kind words.
Thanks so much for taking the time to make this video! Very informative and helpful and also you have a great smile. God bless you
Thank you for your kind words.
Thank you -Your information is quite helpful
Thank you for your kind words.
What a wonderful and well presented video 🙏
Thank you.
Thank you. Your video is amazing.
Thanks for watching.
This is the best Trach and Vent video in the whole world. Thank you so much for sharing.
Thank you so much. I appreciate you kind words.
Thanks, this was so useful!
I am glad it was helpful.
Best wishes to you🦋Perfect and thorough lesson provided, thank you! 🦋
Thank you.
Thank you. God bless you.
Thank you for watching.
Thanks for the information I am learning a lot. I greatly appreciate
Thank you for your kind words.
I love how you explain I come across your video and it has help me on what to focus.. Thank you so much! Please continue with videos like this it helps God bless you.😊
Thank you.
I am an SLP and I appreciate this information! 💜
I am glad it was helpful.
Thank you so much for all your wonderful information. My brother went in a ventilator 7 weeks ago your videos are the best I've found.
Thank you for your kind words. All my best to you and your brother.
So informative 🤩. Thank you!
Thank you for watching.
Thank you so much for this information. I found it to be even more informative than the training I received. I wish you the best! Thanks again
Thank you so much for your kind words.
This really helped.... like the way you explain
Thank you.
I am so impressed with what u went thru
to teach yourself to speak again. You speak perfectly now. Amazing accomplishment.
Thank you. I appreciate your kindness.
Thank you!
Thank you for watching.
Thank. you,for explaining 👍👍👍❤❤❤You Did. A. Great. Job 🌹🌹🌹
Thank you for your kind words.
you are amazing 🥰
Thank you.
Your videos are so inspiring, my father was having aspiration based pneumonia from dysphagia after a major stroke, today he mechanically ventilated with a tracheotomy. Seeing you gives me so much hope.
Thank you for sharing some of your story with me. I hope everything goes well for your father.
She really need to go to respiratory school . Love you very clear instructions! Wow !
Thank you for your kind words.
Hi I am new to your channel. It just popped up a few days ago and it took awhile to find all of your videos. I am so encouraged by the sharing of your life with a vent. I didn’t even know people could have a portable ventilator. I have been on one twice when I aspirated during some normal endoscopies. I kept having repeated pneumonias that doctors couldn’t figure out was the cause of it. I also was diagnosed with IBS and for a while they thought I had Crohns so I was put on Humera , prednisone and imuran. All these meds helped my stomach problems for a while but after nearly a year on these powerful drugs my immune system just went to nothing! It turned out the problems with my lungs was from a rare fungal infection that took 6 months to cure. Thankfully I got a different gastroenterologist who took me off all the strong meds Crohns which is either gone or in remission. I am still on a feeding tube because of all the damage to my stomach and esophagus over the past few years. My swallowing is improving and I am so thankful for God who hears our prayers 🙏I am thankful for your channel also even though we struggle with different problems I am inspired by your strength and faith. You’ve been through so much but I am glad you are choosing to keep helping others who are dealing with a lot of serious problems. Thank you and God bless you in your life.❤️🙏🙂
Thank you so much for your kind words, and thank you for sharing some of your story. I am sorry you have been through so much. I hope your body continues on the path to better health.
In case it might interest you, I also have another UA-cam channel called: God is My Strength. Here is the link to the channel if you wish to visit it: ua-cam.com/users/godismystrength
Hi hope you doing well.. last week my sister passed away during tracheostomy operation, till now I don't know what's goes wrong,I love this video , thanks .
I am so sorry to hear about your sister passing away. My sympathies to you and your family.
I had a trach when I got COVID-19 in January and was on a vent for almost two months. When I woke up I was scared. I was determined to get the doctor to remove it. God helped me and in late March it was removed. My voice is getting much better. My stoma is closed. I can eat but drinking I’m still afraid to drink normal and I haven’t swallowed pills I crush them to Applesauce can’t wait to get back to normal
Thank you so much for sharing some of your story with me. I am happy to hear of all your progress. What an inspiration. All my best to you!
My brothers trach was remove 3 weeks ago. On his first week everything was fine he can breath, talk, eat and laugh very well as you do. Until the 2nd week, now he's a hard time to breath.
Please contact your brother's medical team and informed them of your brother's change of health. They need to know he is having a hard time breathing.
❤
Thank you for sharing such a nice video on tracheostomy with ventilation.
Can you provide some guidance about all equipment used during oxygen therapy and ventilation with there systemic use in tracheostomy patients.
Thank you in advance
Thank you for your inquiry. I am not a medical provider. If you need additional information beyond what is covered in this video, please consult a medical provider who works with ventilators oxygen therapy and tracheostomy tubes.
Thank you very much Im trying to bring my fiance home with a trach and vent.. I just subscribed.
I hope everything goes well. If you have any questions or concerns, please feel free to contact me: life.with.a.vent@gmail.com
@@LifewithaVent yes I’m getting very discouraged because it seems like they are not trying wean him off the vent so it’s very stressful
@@vegvixxxen829 I am so sorry to hear that.
@@vegvixxxen829 Hi how are you??? I was wondering how it ended up going with your fiance? We are having the same issue with my dad!!
@@jenniferj9025 Hey got him weaned got all the equipment at home and we have been home for about 30 days now. Message me if you need help or I can give any advice. Sorry for the late reply
I usually have 20 to 25 RR and its when i feel good, if its lower then I am short of breath. Vt is around 800 to 1000.
Thank you for sharing.
1.What happens if something goes wrong when someone is sleeping?
Does an alarm go off?
2.Is it dangerous for a senior citizen who sleeps alone to be sleeping while on this?
3.I’m worried when you say if something goes wrong and the person is rapidly losing oxygen to call an ambulance or take them to emergency.
Should someone have some kind of a backup in case an emergency happens?
Can you switch the tube from the vent to a regular home oxygen one until an ambulance arrives?
Some people may not have much time to wait if they are losing oxygen on the vent.
There has to be a better solution available if something seriously goes wrong.
Hello. Answers to your questions.
1. The ventilator has alarms on it. They go off when the machine starts operating out of the preset parameters.
2. Concerns about a patient using a ventilator and the needed care associated with it should be addressed by the patient's medical team.
3. Patients on ventilators should be furnished with a device called an ambu bag. This device is operated manually and can ventilate the lungs. This will sustain a person until other means of ventilation can be found. If you wish to see how the device operates, I discuss the device and show how to use it in the following video starting at 9 minutes 17 seconds: ua-cam.com/video/d3GXD2oN-ss/v-deo.html
Switching a person from a ventilator to home oxygen will not maintain the person's breathing needs. A ventilator uses high pressure to push air into the airways because the person cannot breathe on his own. Home oxygen only provides oxygen. Home oxygen does not push air into the lungs. If a person is not able to breathe on his own, connecting the person to home oxygen will not do anything to push air into the lungs.
If a person is rapidly declining due to an issue with his ventilator, it is best to call an ambulance. The emergency medical team on the ambulance is trained how to manually ventilate a patient. The ambulance will have an ambu bag. The medic will be able to manually ventilate the person until they get to the hospital and a hospital ventilator can be connected to the patient.
If you are concerned about the safety of a home ventilator, the best people to discuss these concerns with are the medical team and/or the durable medical equipment company.
If you have any other questions or concerns, please feel free to contact me: life.with.a.vent@gmail.com
Thanks and i pray to God for your HEALTH And Islam your way of life
AmEEn
May you be muslim
Is there any suggestions on how to control. The condensation in the ent tubing
Condensation in the tubing occurs as follows: The air inside the tubing cools down. As it cools, it loses its ability to hold water. The water collects in the tubing as condensation. To reduce this from happening, the temperature difference between the air inside the tubing and the room air should be as little as possible. One of two things can be done. First, the temperature on the heated humidifier can be lowered. Second, the temperature of the room air can be increased. Also, a tubing circuit called a heated wire circuit will help reduce condensation.
my husband is still in tracheotomy since March.. it was change to a smaller one when he transferred to a nursing facility . now he’s tolerating it and eating normal. but he talk gibberish, sometimes words that I can’t understand. They think he has aphasia but I think he still have tracheotomy.
Hello. I am happy to hear your husband is not tolerating his tracheostomy and eating normal. To get more answers as to what is causing his gibberish speech, your husband may need additional work-up: brain imaging, aphasia assessment, speech evaluation, etc. For the best direction regarding all this, ask your husband's doctors about what can be done to get a better diagnosis regarding your husband's speech. And also, ask what can be done to get him speaking better.
(If it is the tracheostomy tube causing an issue with his speech, your husband may benefit from speech therapy. Also, if he is not using it, changing to a Bivona silicone tracheostomy tube will making speaking easier too.)
Thank you! I will tell them about this. it’s hard being along with 2 kids and don’t have friends and family to help here. I’m trying to get resources to get things through.. Your videos definitely help a lot. Also praying for your fast recovery. 🙏🏻❤️
@@Notsam928 Thank you so much for the prayers. Wishing you and your family all the best.
Can they speak even when the cuff is inflated? Does it have to be deflated to suction them or for them to cough. Yesterday, it seemed like he was trying to cough but couldn't. I don't know if the cuff needs to be deflated to allow him to cough or if it's safe. The nurse said she suctioned him and there was no secretions. I felt helpless watching him gag. I just told him to stay calm and breathe slowly so as to calm himself down. He had thrown up twice and I was concerned that he aspirated. The nurse said the cuff was on when he threw up. 😔
In order to speak, the cuff must be deflated. You can suction either with the cuff inflated or deflated. Inflating the cuff will create a closed circuit in the airways and will clear the airways of more secretions.
It is very hard to cough with the cuff inflated. If your husband has a coughing spell, deflate the cuff to allow him to more effectively get rid of the irritant in the airways. It is possible your husband may have aspirated when he threw up. Although having the cuff inflated creates a seal in the airways preventing air from escaping up the airways to the nose and mouth, this seal is not 100%. You can aspirate while having the cuff inflated.
If your husband throws up again in the future and he starts coughing, deflate the cuff to allow him to cough. Once he has stopped coughing inflate the cuff. Wait 5-10 minutes until he is calm, then suction his airways.
I would watch your husband closely for the next 3-5 days. If you notice he is frequently trying to cough, has more secretions or is running a fever, contact his doctor (or nurse) or go to the emergency department. Any time a person with a tracheostomy tube throws up, there is always a possibility of aspirating (even with the cuff inflated).
All the best to you and your husband.
My wife is on a ventilator and a trachomy. She has myotonic dystrophy and is unable to walk. I will be bringing her home in about 2 weeks. The doctors think it's a mistake for me to take her home but she'd rather die living in a nursing home. I finally talked them into it and I've been training now for 2 months on the vent and trach care. I was wondering if you need a wheelchair? I plan on taking my wife out on outings when we get home. The scariest thing though is the ventilator failing while I'm walking around say at the zoo. I will have an Ambu bag for an emergency but a back up ventilator might be the way to go.
Thank you so much for your determination to bring your wife home. I hope everything goes well for you and her. I use a wheelchair. I am not sure what type of insurance your wife has or where you live, but if you live in the USA, most insurance companies follow Medicare guidelines. According to Medicare, if a person uses a wheelchair, he/she is entitled to two ventilators. One ventilator is for the bedside, and the other is to be attached to the wheelchair. (The ventilators are designated as "bedside" and "wheelchair", but they can be used any way you please.)
For the ventilator, there are brackets which can be attached to the wheelchair to mount the ventilator to the wheelchair. Ask the respiratory company about the brackets or inquire with your wife's medical company who services her wheelchair.
Another alternative is the ventilator usually comes with a ventilator stand or it is sometimes called a ventilator cart. The ventilator sits on the cart. The cart has wheels. The cart can be attached to the wheelchair and can be moved around with the wheelchair. Here is a link to a photo of a ventilator cart: cdn.shopify.com/s/files/1/1631/3403/products/new-demo-philips-respironics-rolling-cart-stand-for-trilogy-100-200-202-ec-medical-ventilator-1047410-warranty-free-shipping-179279_1024x1024.jpg?v=1576168055
Ventilators are designed to not fail. They have multi-point fail systems. This means, multiple things have to fail on the ventilator for it to stop working. If you are going out and about, I would suggest having a back-up ventilator, but leaving that in the car. Carry along an ambu bag with you. If the ventilator does fail, you can use the ambu bag until you can get back to the car and get to the back-up ventilator.
All my best to you and your wife. I sincerely hope everything goes well. Thank you for your willingness to take care of your wife.
When suctioning does the balloon in the trachea need to be deflated?
You can suction with either the cuff inflated or deflated. For me, suctioning works best when my cuff is inflated.
Hi how are you now my mother now is in TRACHEOSTOMY for almost 9 months at home she can't speak she's very weak and paralized,,,,,,,We put all the God the better decision We don't know what to do.
We pray also God to better get her than suffering the pain she's having now😭😭😭
I am so sorry your mother is suffering so much. I hope she is able to find relief from her symptoms. All my best to you and your family.
Which model number trilogy vent do you use
Trilogy 100
Can a CPAP machine be use in patient with tracheostomy?
Yes.
My partner of 3 years online relationship has a trachea tube and is unable to speak due to its placement this was done to him when he was 7 back in 80s he’s 40 years old this year . Do you have any advice for a partner who wants to learn more about trachea tubes and being non vocal?
Thank you for sharing some of your partner's story with me. Having support is really important. A resource which may be helpful is finding an online community with people who have trach tubes.
How do you talk so Clear? I have a hard time making g myself understood.
Hello. I did a video about how to speak with a tracheostomy tube. You may find some tips which may help you speak. Here is the link to the video if you wish to view it: ua-cam.com/video/FSL57g7iIN8/v-deo.html
Hi . Been on. Ventilator do you have someone staying with you 20 hours a week or are you living alone ?
I live with family.
Is it uncofteble tu suction?
Yes. The suction catheter tickles the airways and makes me cough. If you would like to see what happens when I suction, you can view the following video: ua-cam.com/video/g20GTuhC1zM/v-deo.html
I have a question here,can we use simple CPAP and BiPAP devic with trecheostomy ? Actually i wanted to know that there is a trecheostomy tube instead of CPAP or BiPAP mask how carbon dioxide get rid off ?
Hello. Yes, you can use a CPAP or BiPAP with a tracheostomy. When using CPAP or BiPAP with a trach, the tubing set-up would be the same as you see me in the video. Tubing connects the breathing machine to the tracheostomy. The tubing has an exhalation valve. When the person exhales, the carbon dioxide exits the tubing via the exhalation valve.
@@LifewithaVent thanks,i understand
Hello how do you talk without using a speaker valve ?
I am able to synchronize my speaking with my ventilator. I also have some muscle strength which allows me to push air up my airway and through my vocal cords to produce speech.
If you would like more information about talking with a tracheostomy tube, I released a video today on that topic. Here is the link to the video if you wish to view it: ua-cam.com/video/FSL57g7iIN8/v-deo.html
Are there any support groups on FB
Can you be more specific? Support groups for what condition?
Having a trach tube? Using a ventilator? Having a trach and ventilator? Having a specific medical condition such as ALS, Parkinson's, sleep apnea, etc.?
Are you looking for a support group aimed at a specific group of people such as caregivers for adults, being a patient, being a caregiver for a child or baby?
Does having a trache mean you NEED the ventilator ?
Having a trach does not mean a person needs a ventilator. People have trachs for various reasons such as having a narrowed airway or having an airway which was damaged from an accident or injury. Some people have trachs and also need a ventilator. Some people only need to use the ventilator at night while other people need to use the ventilator all the time. For me, i have a trach because I need a ventilator to breathe for me. I have respiratory failure.
Thank you ! I’m new learning on trache and vents and find your videos helpful .
You sound like a robot when you talk, no offense! It's still a beautiful voice, just different. I once heard this one Scottish guy who I could barely hear, his voice was so soft and raspy. We so often take advantage of our noses and mouths, I can't even imagine how to breathe a different way.
Why are you saying you can loose your ability to speak? That is incorrect. My 14 months old is getting a trach and the surgery does not damage the vocal cords in itself
Getting a tracheostomy tube disrupts the way a person speaks. The tracheostomy creates a hole in the airway. When trying to speak, instead of the air going up the airway, through the vocal cords and out the mouth, the air will go out the tracheostomy tube, bypassing the upper airway. When no air goes through the vocal cords, speech cannot be produced.
When a person gets a tracheostomy tube, he will have to re-learn how to speak. Some people never master this skill. Your child will most likely have to get a speaking valve. Using a speaking valve requires training as speech is not produced in the same way as a person normally talks. Additionally, using a speaking valve requires a person to breathe differently, which some people cannot tolerate.
When placing the tracheostomy tube, the procedure will cause the trachea to swell. This will make it very difficult to speak. Over time, the swelling will decrease, but please keep in mind there is a tracheostomy tube now in place. The tracheostomy tube takes up room in the trachea and will make it more difficult to force air around the tracheostomy tube and up the airway and through the vocal cords.
Also, depending on how the tracheostomy tube is placed (for example, if a breathing tube is used during the procedure), the breathing tube can damage the vocal cords.
With all these factors in mind, some people who get a tracheostomy tube lose the ability to speak.
For more information on how to talk with a tracheostomy tube, please see the following video: ua-cam.com/video/Kzg-bk3LZ0Y/v-deo.html
@@LifewithaVent that's complete misinformation. Especially in pediatrics. I'm unfollowing you you ruined my day
@@Twinmommmmmmm I am sorry to have upset you. If you have questions about your child's tracheostomy procedure, please ask the medical team.
@@Twinmommmmmmm If you would like more information about tracheostomy tubes and what to expect when getting a tracheostomy tube, here is a link to Mayo Clinic's website about tracheostomy tubes: www.mayoclinic.org/tests-procedures/tracheostomy/about/pac-20384673
If you scroll down, it discusses speaking with a tracheostomy tube. Here is an except:
"Speaking. Generally, a tracheostomy prevents speaking because exhaled air goes out the tracheostomy opening rather than up through your voice box. But there are devices and techniques for redirecting airflow enough to produce speech. Depending on the type of tube, width of your trachea and condition of your voice box, you may be able to speak with the tube in place. If necessary, a speech therapist or a nurse trained in tracheostomy care can suggest options for communicating."
Your are correct, my mom had a trache prior to getting a total laryngectomy. She completely lost her vocal cords. Like you said, some people lose that ability completely especially if that patient had too much mucus. Thank you.