MEN1 - My Story: Steph

How to you cope with being diagnosed with MEN1 when you've had no symptoms, and no one else in your family has the syndrome? When family members can't understand what you're going through, that when AMEND can help. Getting out into nature helps Steph to process the ups and downs of MEN1, and regular monitoring of her pancreatic neuroendocrine tumour gives her reassurance.

[@LaSenioritaZO3Y]

I also have this! It’s so great to hear someone else’s story with MEN type 1

[@marialaguna4053]

Hi, I also have MEN1. Great information.

[@amandaj5825]

I think I may have it. Not diagnosed yet. But, I had a benign pancreatic tumor age 20, and benign growth on my back I just had removed. My dad has the growth on his back too. Also, I have had severe anxiety, adrenaline dump feelings. I think my adrenal glands could be involved.

[@Mistreal1]

Is there a sister organization in the United States?

[@AMEND3]

We do have an affiliated org in the US: amendusa.org/

[@Mistreal1]

@@AMEND3 Thank you!

[@lindaallebach4285]

My daughter in law has MEN1 & my 2 year old grandson also tested positive positive ❤️‍🩹🧸 her dad & brother also have it