Autoimmune Polyglandular Syndrome Type 1 (APS-1) - IDF Reel Stories, Karissa Schultz
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- Опубліковано 10 вер 2024
- IDF Reel Stories is a video community designed by the Immune Deficiency Foundation (IDF), to encourage and empower fellow patients and their loved ones affected by primary immunodeficiency (PI). Viewers are able to select from a robust playlist of video testimonials that touch us on some level -- whether as individuals, families or as members of the IDF community. The video stories cover a wide array of issues and topics and can be searched by Status, Patient Life Stage, Messages, Disorders, and Treatment Options.
I'm up, well I never went to bed, searching for what is wrong with me. I remember talking with my sister when she was diagnosed with Addison's about Polyglandular Syndrome so I thought I would just see what I could find on UA-cam and your story was first up. I appreciate so much for posting your story. It is very frustrating when I feel like doctors are not hearing me.
Still your sister suffering from APS-1
Karissa is one of the best people i ever met in my life. and her having these health issues get me not liking the world much. she along with many others with health issues like this dont even remotely come close to deserving this. with how smart and sweet Karissa is. she shares that love with anyone and everyone she comes across.
Thank you so much dear for sharing your story. Felt upset about the fact that the doctors did not believe a 9 yr old because she was young.
Thank you so much for your very encouraging advice and amazing life experiences! No doubt this will be very helpful to many out there!!! 👍🙂
thank you very much for the informative history appreciated it
all the best and kudos for being robust
Thanks so much for sharing your story, can't imagine how much you have had to endure, be well keep smiling😊
Awesome Lady!
Hi I am from India my sister is 6 years old and she got autoimmune polyglandular syndrome type 1 and I am also diagnosed with this disease.
My son age 6 is diagnosed with APS type I and I don't know what to do
My sister has APS -1 please contact me
Thank you soooo much for sharing your story
Please i want to contact with you because my daughter 12 years old diagnosis Aps1 also before 5 years and i want to talk about your experience
My sister has APS -1 please contact me
Hii can I talk to you need more information
My daughter is found before one year ago
👌👌👌