My Cancer Keeps Growing Back Even After 3 Remissions | Tatijane's Leukemia Story | The Patient Story

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  • Опубліковано 19 бер 2023
  • Tatijane first knew something was wrong when she started having pain near her ribs. Her pain became so severe she was rushed to the ER and was then diagnosed with acute lymphoblastic leukemia, both B and T cells, with mutations. At 24, she was then given 6 to 8 weeks to live.
    She shares how she processed her shocking diagnosis, the different treatments she’s undergone including a double CAR T-cell therapy clinical trial, and how she’s giving back to the cancer community.
    Full story & transcript → www.thepatientstory.com/patie...
    The interview has only been edited for clarity.
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КОМЕНТАРІ • 149

  • @party518
    @party518 Рік тому +77

    Thank you all for watching this video and for all your wonderful comments! ❤ your all so amazing!

  • @kailynguilieri9478
    @kailynguilieri9478 Рік тому +39

    I went to high school with her and she was always the sweetest and kindest soul! She stayed so positive during her treatment. May she Rest In Peace 🙏😇

    • @keishasemelfort811
      @keishasemelfort811 11 місяців тому +13

      Oh no, she passed away. Sorry to hear this.

    • @nesekitty9703
      @nesekitty9703 10 місяців тому +4

      😢🙏

    • @barbcosgrove64
      @barbcosgrove64 8 місяців тому +3

      🙏❤️🙏❤️....

    • @godschild3640
      @godschild3640 8 місяців тому

      @@keishasemelfort811😭😭😭😭😭PLEASE 😭ANSWER😭 ME ….😭I have stage 4 non small cell lung cancer. On Keytruda only it shrinking. Can it grow back ,,can I be cured ..

    • @MrsOverthetop341
      @MrsOverthetop341 8 місяців тому +1

      Oh my 😢

  • @marilynhendry2061
    @marilynhendry2061 Рік тому +59

    You are absolutely amazing! When i was diagnosed with cancer, i was totally dysfunctional for months. You have a lot to offer this world young lady❤❤❤

    • @HelenAbalos
      @HelenAbalos Рік тому +2

    • @sherrybutts5947
      @sherrybutts5947 Рік тому +3

      Yes cutie pie u are amazing and so much stronger than u knew!! Hang in there for a full healing😅

  • @hollypaduano8032
    @hollypaduano8032 Рік тому +23

    Watching this as I just finished my 3rd chemo. You are a SuperHero! OMGoodness!!

  • @debrarouth855
    @debrarouth855 Рік тому +24

    My son had the same thing. ALL. Got it in 2014. He had CAR-T after it came back after chemo, then Bone marrow transplant in 2017 and he's fine today. CAR-T was his trial back then when it first came out. Saved his life!

    • @party518
      @party518 Рік тому +5

      I'm so sorry he had to fight ALL. But he's a warrior to! I'm so happy the treatments worked!

    • @FathimaSaleem-qp8uw
      @FathimaSaleem-qp8uw 11 місяців тому

      Car t is it costly

    • @debrarouth855
      @debrarouth855 11 місяців тому +1

      @@FathimaSaleem-qp8uw His insurance paid for it.

  • @ChrisKlein0
    @ChrisKlein0 Рік тому +24

    6-8 weeks to live at 24, I have no idea what I would do if I was told that so young.
    It sure seems cancers are getting more and more common and hitting people younger and younger…

    • @kailynguilieri9478
      @kailynguilieri9478 Рік тому +5

      Unfortunately she passed just a few days ago. Still so young, only 26.

    • @btudrus
      @btudrus Рік тому

      "I have no idea what I would do if I was told that so young"
      I have several ideas I would try. For example several weeks of water fasting...

    • @btudrus
      @btudrus 11 місяців тому +2

      @@okamiamaterasu5416 "that's deadly wth"
      depend on the length of the fast and your fat storage. an average adult can certainly do 4-5 weeks without any problem... someone who is overweight can even do half a year...
      my own "record" were 32.5 days of a waterfast, i know what i'm talking about...
      letting the cancer grow is definitely more deadly...

    • @SM-zm5hz
      @SM-zm5hz 9 місяців тому

      @@btudrusso true . Fasting starves cancer

    • @btudrus
      @btudrus 9 місяців тому +1

      @@SM-zm5hz "Fasting starves cancer"
      Not really. Fasting changes the cellular signalling. Saying that fasting starves cancer ist too simplistic and not really true...

  • @barbaragalletta3030
    @barbaragalletta3030 Рік тому +19

    She is an incredible young lady. To get that news at any age let alone 24 & covid time. God bless her with good health.

  • @Howiefaye1996
    @Howiefaye1996 Рік тому +5

    That’s my amazing,strong, and beautiful warrior cousin!

  • @AS-yz2iz
    @AS-yz2iz Рік тому +30

    Someone needs to pay the price of all the people who were forced to experience traumatic health situation without support.
    Good luck to you. You're very strong. My son had Acute Myeloid Luekemia in 2019.

    • @macpduff2119
      @macpduff2119 7 місяців тому +1

      America needs universal health coverage for all traumatic health events costing more than $5,000-$10,000. Major hospital bills are the major cause of bankruptcy in this country.

    • @AS-yz2iz
      @AS-yz2iz 7 місяців тому

      @@macpduff2119 No, we do not

    • @k9khodi363
      @k9khodi363 2 місяці тому

      I went to the ER myself and was told I might die (unfortunately I didn't). I went on to get a head injury I had to deal with myself and had to take care of my terminally ill 130lb dog myself while dealing with the head injury. Lots of people have ZERO help or people who harm us instead of help.

  • @stacydavis1682
    @stacydavis1682 Рік тому +8

    You are a warrior in every sense of the word. Just said a prayer for you.

  • @valorieoathout6956
    @valorieoathout6956 Рік тому +12

    You such a strong lady. Admire you a lot! God Bless❤

  • @faithf5846
    @faithf5846 Рік тому +12

    Beautiful brave girl. Thank you for sharing your brave story. You got this! Cancer will be a memory.

  • @sueu6263
    @sueu6263 Рік тому +24

    You’re incredible and so is your art! Wishing you the best💕

  • @HWolfe
    @HWolfe 9 місяців тому +2

    Rest In Peace ❤️.

  • @e.agoraphobicdickinsonpoet660
    @e.agoraphobicdickinsonpoet660 Рік тому +8

    What a lovely young woman. ❤

  • @clairebeever3038
    @clairebeever3038 9 місяців тому +2

    What a beautiful young girl the world can be such a cruel place … well cancer is ! ❤❤❤ thank you for sharing it so helps me dealing with cancer myself …. Amazing talented positive caring kind beautiful girl ❤

  • @cathytauscher6760
    @cathytauscher6760 Рік тому +31

    You are definitely a warrior and your positivity is amazing. You are DEFINITELY making a difference ❤

    • @nesekitty9703
      @nesekitty9703 10 місяців тому +2

      sadly she passed away.😢.may she R.I.P. 🙏☮🕊🌹🤍🧚‍♀✨

  • @mariatoth2649
    @mariatoth2649 Рік тому +9

    You are an incredibly brave and amazing girl ! and you're helping so many people. My daughter is also fighting a rare form of cancer, I call her "my hero" !. You are one also, a warrior ! keep this beautiful spirit. God bless you. ❤

  • @OscarsMama
    @OscarsMama Рік тому +12

    You have to be the most chill, amazing person I've ever seen. If I had your diagnosis, I would probably just crawl in a hole and die. GOD BLESS YOU!

  • @130crowd
    @130crowd Рік тому +17

    Know we are out here cheering for you. Thank you for your generosity, your bravery and your strength. ❤

  • @deirdrekiely6187
    @deirdrekiely6187 Рік тому +10

    Don't let doctors weight shame you into blowing off the proper care you should receive them. If a doctor attributes *all* your problems to weight then get a new doctor or ask the Dr. if this is the care plan they would give a thin person.

  • @agaaga2578
    @agaaga2578 Рік тому +10

    YOU are AMAZING! Wishing you the best of luck, pretty girl!

  • @vivianjones5904
    @vivianjones5904 Рік тому +9

    GOD BLESS YOU!!!❤😂

  • @kellyfarley9678
    @kellyfarley9678 Рік тому +7

    Amazing you are
    Keep fighting

  • @nesekitty9703
    @nesekitty9703 10 місяців тому +3

    her friend
    @kailynguilieri9478 posted here 2 months who went to high school with Tatijane commented sadly she passed away.😢.may she R.I.P. 🙏☮🕊🌹🤍🧚‍♀✨

  • @qratorn
    @qratorn Рік тому +10

    ❤❤Love from me in Sweden and the southest Town called Ystad.

  • @peggysue7898
    @peggysue7898 Рік тому +7

    Do you have your own UA-cam page? If so, I would love to follow your journey and give you as much support possible. Sending you prayers for healing 🙏❤

  • @journeywithjan4388
    @journeywithjan4388 Рік тому +4

    I'm told the same thing. You need to lose weight! Drs need to listen to the person who has lived in the body for however many years. Praying for you and sending hugs. You are amazing.

  • @ElephantsRock19
    @ElephantsRock19 Рік тому +4

    You are such a bright light, I feel blessed to have come across your story and wish you nothing but peace and love...🕊️🙏❤️🕯️ETA: I meant to add that 1 of my sisters very recently had mixed phenotype A.L.L., and your story and grace and positivity has helped me tremendously, thank you! 🙏❤️

  • @lucyadams2521
    @lucyadams2521 Рік тому +4

    So incredibly courageous

  • @kathyerb3134
    @kathyerb3134 Рік тому +8

    So proud of you. I wish you every success in your continued cancer journey and helping g scientists and other patients now and going forward. You are a star girl. Keep rocking. Love your personality. From Canada 🇨🇦 😊

  • @deborahevans1052
    @deborahevans1052 Рік тому +8

    Yea keep going your doing great 👍

  • @malshamaldeniya7997
    @malshamaldeniya7997 Рік тому +4

    I'm also reciving t-lymphoblastic lymphoma.. I can feel you❤ lets fight together..

    • @party518
      @party518 Рік тому +1

      You got this! Ur a warrior 💪🏼 ❤️

  • @alohatvj
    @alohatvj 6 місяців тому +1

    Thank you for sharing your survival story. You are a very strong woman. I am sending love ❤️ 😍 💖 and look forward to the day you are finally in full remission.

  • @myrnajoven9339
    @myrnajoven9339 Рік тому +2

    Let’s keep on praying to overcome the cancer . God is Good and Trust and Believe in His Healing hands.

  • @sawdust2556
    @sawdust2556 Рік тому +6

    ❤🙏Sending you hugs. You’re amazing.

  • @yasmeen66
    @yasmeen66 Рік тому +3

    Tatijane… You are a lovely person. I love your attitude.
    I wish for you the very best.❤️🌻🤲

  • @michelles9897
    @michelles9897 Рік тому +15

    💟 thank you Tatiana for sharing. I so enjoy watching your story.

    • @ThePatientStory
      @ThePatientStory  Рік тому +2

      Thanks for watching!

    • @godschild3640
      @godschild3640 8 місяців тому

      @@ThePatientStorycan 🥶cancer 🥶shrink 🥶then 🥶grow back 🥶

  • @susiebilk9905
    @susiebilk9905 Рік тому +6

    You are wonderful ❤

  • @momo43momo66
    @momo43momo66 5 місяців тому

    May she rest in Everlasting Peace 😔🕊️❤❤❤❤❤❤❤,

  • @tarawhite8847
    @tarawhite8847 Рік тому +3

    I too have cancer,,,,,I hope all the best for you

    • @party518
      @party518 Рік тому +2

      I'm sorry you have cancer to. But you got this, ur a warrior! ❤

  • @truckerhill
    @truckerhill Рік тому +8

    Wow youre my hero

    • @party518
      @party518 Рік тому +2

      Thank you❤❤❤

  • @jenniferboughton5966
    @jenniferboughton5966 Рік тому +2

    I’m praying for you my friend! Thank you for sharing your story

  • @Leah.says.the.things
    @Leah.says.the.things 9 місяців тому

    Thank you for sharing your story ❤

  • @maryellenblount6376
    @maryellenblount6376 Рік тому +5

    Your story is amazing and you are so courageous in that your desire is to help others. God bless you in your journey. You are such a beautiful spirit! ❤️🙏🏼

  • @suchitraroy1758
    @suchitraroy1758 Рік тому +3

    Prayers for your complete recovery.. 🙏 Thank you, for volunteering for this trial..

  • @helenbennett4391
    @helenbennett4391 Рік тому +3

    Wow!!! You are an amazing human being, if only there were more people like you, our world would be a far better place.
    Keep strong, keep fighting.
    I will pray to the universe for you.
    God bless ❤

  • @jimig399
    @jimig399 2 місяці тому

    So tragic and heartbreaking.

  • @lindasalera5650
    @lindasalera5650 Рік тому

    Prayers for you to keep fighting, you are amazing!🙏❤️

  • @Ceerads
    @Ceerads Рік тому +3

    Thank you for this video. It’ll help many. I wish you everything good in life.

  • @donnajanecastle4807
    @donnajanecastle4807 Рік тому +5

    Thank you for sharing this. You're a great person!

  • @createwithlinda5181
    @createwithlinda5181 11 місяців тому

    Wow, you’ve been through it…God bless you! I will add you to my prayers…stay strong!🙏🙏❤️

  • @sweetsharie66
    @sweetsharie66 10 місяців тому

    What a beautiful spirit. 🙏🏾💗

  • @crimenexdor
    @crimenexdor 7 місяців тому

    It drives me insane that doctors keep dismissing symptoms. They should be held accountable!!

  • @sarahdermody6665
    @sarahdermody6665 9 місяців тому +1

    Wow! You are such a kind and grateful person. Your positivity is inspiring ❤

  • @dianataylordeguerrero3888
    @dianataylordeguerrero3888 Рік тому +1

    Love, sending prayers and wishing you the best from Mexico.❤

  • @beverlyfensch5193
    @beverlyfensch5193 10 місяців тому +1

    What a beautiful soul❤️🙏

  • @user-wb2yv7ll9d
    @user-wb2yv7ll9d 10 місяців тому +1

    What a brave and good person.

  • @jmnightingale9055
    @jmnightingale9055 Рік тому +2

    I have AML Leukemia with the MECOM mutation and so I was given a Stem Cell Transplant in August of last year, after five days of extreme chemo which I believe was similar to what you went through. It sounds like you either had fewer side effects or you are just tougher than me because my experience was extremely traumatic while you seem to have glided through it, well, relatively. And you are right, that it is best to share everything with the docs, without worrying about TMI (too much information). I really admire your spirit and your resilience. Hang in there!

  • @Ida-Adriana
    @Ida-Adriana 8 місяців тому +1

    Lastly, please see Serrapeptase also and Nattokinase (poweful enzymes) and Lumbrokinase and their anti carcinogenic actions.

  • @NikhilSingh-ev8zw
    @NikhilSingh-ev8zw 11 місяців тому

    You are amazing. God bless you Mam 🙏❤️

  • @macpduff2119
    @macpduff2119 7 місяців тому

    I was diagnosed with the rare CMML -2 leukemia - 4 months ago. One week on Azitadine chemo and 3 weeks off. Thank you so much for posting this video - it's a big help for others like me. I am sad to read that you have passed away.

  • @clairem3543
    @clairem3543 11 місяців тому

    Sweetheart you are making a difference already.❤ Hugs to you.

  • @nikkihines3652
    @nikkihines3652 Рік тому +1

    God bless you dear. You definitely working on your soul mission 😊

  • @Begging-xm6iz
    @Begging-xm6iz Рік тому +1

    You have such a positive spirit, and I will pray that they will find the right treatment for you and others going through the same diagnosis.
    You're a beautiful young lady inside and out, and your family has to be so proud of you, putting yourself out there to help others and the doctor's, I wish you a positive recovery & remission. God bless you.🙏💕🙏

  • @carolirvine3367
    @carolirvine3367 Рік тому

    I hope you know how many people across the world are rooting for your wellbeing x

  • @countrygirl366
    @countrygirl366 11 місяців тому

    Prayers sweetie ❤️🙏❤️🙏💖🙏💖🙏❤️🙏💖🙏

  • @splash6427
    @splash6427 10 днів тому

    🙏 ❤️ 🙏
    For You
    Always & Forever

  • @FredaFlynn2008
    @FredaFlynn2008 Рік тому +3

    Such a strong woman you are and I wish you a full recovery given time, I know this can’t happen over night. Sending love and best wishes from the UK and hoping you’ll stay strong to kick cancers *ss!

    • @macpduff2119
      @macpduff2119 7 місяців тому

      According to newer comments this lovely lady has passed away. Prayers for her family

  • @Sheila612Miller
    @Sheila612Miller Рік тому +2

    I'm so sick of doctors not listening and thinking they know your body . It's so frustrating. Your amazing and you deserve all good things and a long long very long life. Life can be so unfair. Always fight . You rock girl. I wish you were my friend,you seem so fun. I love crafting and mermaids too( but u won't catch me in a mermaid tail lol.)

  • @kriscomer7118
    @kriscomer7118 Рік тому +4

    Brave! Super woman! ❤

  • @tracymcgrath1192
    @tracymcgrath1192 Рік тому +1

    So sorry. Not fair. 🙏🙏♥️♥️🌹

  • @A.L.I.S.O.N
    @A.L.I.S.O.N Рік тому +5

    2yrs kickin butt, you've got this girl! The food looks delish & I'm craving that now, lol. I had my uterine lining come out all at once. It was like giving birth to me. We didn't know what was going on so we took it to the ER & they confirmed it was my uterus lining. It happened bc I was on birth control so I was told I can't take birth control anymore bc it's too dangerous. I'm wondering what the dr will say about yours.

  • @ronlample4407
    @ronlample4407 Рік тому +2

    You are such an inspiration to all of us fighting cancer . Love and blessings to you ! You help all of us cope by showing how brave you are❤

  • @exboyjr
    @exboyjr 11 місяців тому

    ❤❤❤🙏🙏🙏 You are beautiful!

  • @janroach1852
    @janroach1852 11 місяців тому +1

    So angry at your doctors for ignoring your health problems and automatically blaming it on your weight with absolutelly no investigation. Your positive attitude is pulling you through, sheer will.

  • @jessicamariee5466
    @jessicamariee5466 7 місяців тому

    Hunny you are a special woman and very strong prayers to you ❤

  • @cindyhouston6789
    @cindyhouston6789 10 місяців тому

    You are a beautiful, strong woman. Trust God with everything and keep your pleasant , positive attitude. I'm praying for you!.

  • @danielliu9616
    @danielliu9616 9 місяців тому

    RIP

  • @sylvietezier4374
    @sylvietezier4374 Рік тому +3

    Je dénonce les diagnostiques stade 4

  • @ginaesperanza8239
    @ginaesperanza8239 Рік тому +1

    im colon cancer stage2 diagnose last march 2022 had my operation with colostomy,done 8session of chemo biopsy is negative,my 4th ct scan done last march and its ok.but in blood there still trace of cea..and my oncologist refer mi for PET SCAN..Any one experience same mine?

  • @kevanhubbard9673
    @kevanhubbard9673 Рік тому +1

    Sadly it, the cancer, often does find a way to get around the treatments.

  • @lidiawroblewska1184
    @lidiawroblewska1184 Рік тому +5

    ❤❤❤

  • @ElizabethNoelleK
    @ElizabethNoelleK Рік тому +4

    ❤️❤️❤️❤️

  • @margaretcoyle4224
    @margaretcoyle4224 11 місяців тому

    🙏🙏🙏❤️❤️❤️🏴󠁧󠁢󠁳󠁣󠁴󠁿

  • @KS-yp1jl
    @KS-yp1jl Рік тому +2

  • @tarawhite8847
    @tarawhite8847 Рік тому +3

    Were you on immunotherapy or targeted therapy at all?

    • @party518
      @party518 Рік тому +1

      I'm currently on an immunotherapy. The double car-t was a targeted therapy because it targeted my 2 cells that were infected.

  • @DutchEVP
    @DutchEVP 11 місяців тому

    Tatijane sadly died on May 4.

    • @danielanderson204
      @danielanderson204 8 місяців тому

      Oh No, was it the cancer or the therapy that she died from...
      It's so Upsetting we don't have cancer Cures in this day of Technological Advances!!!
      Beverly - breast cancer Thriver since 1-2-19
      ( on my hubby's YT account)

  • @avm1645
    @avm1645 Рік тому +7

    I pray for your healing in The Name of Jesus.
    Ask the Lord Jesus to help you and be in relationship with him as your Lord and Saviour
    He has healed me from cancer, Thanks Be to God the Father 🙏

    • @party518
      @party518 Рік тому +2

      Thank you, 🙏🏼

    • @avm1645
      @avm1645 Рік тому +2

      ​@@party518 You are more than welcome Tatijane.. praying for you always 🙏

    • @donnarobertson252
      @donnarobertson252 Рік тому +3

      A young man had stage 4 colon cancer and just ate no food. He didn't feed the cancer. He occasionally had protien like a t-bone steak once every week, but the fact that he had no sugars that cancers love to feed on healed him. His cancer diminished. He fasted for a few months. His cancer shrank to a fourth it's size and that's when he had radiation. Cured.

  • @katrinagodfrey9931
    @katrinagodfrey9931 Рік тому

    🗣🗣🙌🏿🙌🏿🙏🏾🙏🏾

  • @Gesundheit888
    @Gesundheit888 Місяць тому

    Go on a Lion diet! and look at the interview between Dr. Seyfried and Dr. Ken Berry.

  • @dennishassler605
    @dennishassler605 9 місяців тому

    TRY TOTALLY changing your diet? We all pray for you, too!!!!

  • @nikkisolo9080
    @nikkisolo9080 Рік тому +5

    I wonder if she took the jab since this happened during Covid.

    • @annmarie1689
      @annmarie1689 Рік тому +4

      All these super cancers ..God help this woman.

    • @Ceerads
      @Ceerads Рік тому +1

      Stop saying idiotic things on this site. 🤮😡

    • @keishasemelfort811
      @keishasemelfort811 11 місяців тому

      Who cares about a covid vaccine. Is that what's important here? Something is wrong with you.

  • @sharonlovely4653
    @sharonlovely4653 Рік тому +1

    Dr Lorraine Day

  • @madonnaanderson3877
    @madonnaanderson3877 5 місяців тому

    🙏🏻🙏🏻🙏🏻🙏🏻♥️♥️♥️🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻♥️♥️♥️♥️♥️

  • @nesekitty9703
    @nesekitty9703 10 місяців тому +4

    @nesekitty9703
    1 second ago
    ...and so many turbo cancers over these past 2 years...even moreso lately on a MASSIVE scale...instantly/SUDDENLY so agressive and widespread throughout thr body
    stage 3 but mostly 4😢 ... youtube,social media is with flooded so many new cases

  • @luislallave9666
    @luislallave9666 Місяць тому

    Have you tried vitamin C infusions?