We’d love to hear from you: what were some of your first symptoms? Leave us a comment below 👇 Want to share your story 👉 www.thepatientstory.com/share-your-story/?UA-cam&
Happened to me before. Around the same time that happened to me, my son was diagnosed with leukemia and very long story short, it turned out he did not!!! 😮 Also, my husband was told he most likely had lung cancer. N he did not!!! Yep! Thats exactly what the DR said "you most likely have lung cancer" but the specialist he sent us to and the second opinion Drs said no, he did not have lung cancer. My uncle repeatedly was told that he had the flu. My aunt brought him home from the Dr for the 3rd time n she found him on the bathroom floor passed away the next morning. He had a pulmonary embolism. My aunt received a settlement for that one!
It sure is. Even more alarming is virtually every video and every patient on this channel is the almost same story! They all got blown off before anyone would take them seriously!
all these years and no cures out there ? Burzynski ? Chymotripsin or pancreatic enzymes? Fenbendazole ivermectin cbd vit e cucurmin berberine melatonin ? Intravenous vit c ? All supressed ?
I am a physician and my autoimmune diagnoses plural were missed for almost 20 years. Close call with death, financial destitution, depression and complete career devastation I am now being treated right and somehow have my career back. I don’t know how I’m alive. Even as a doctor, I had to push and fight doctors to get answers. One surgeon almost killed me.
Doctors cannot agree to what I am sharing here with you today, because of what they are taught and what they must adhere to legally. People globally are curing their cancer sir. Using a protocol with de wormer and added supplements like mushroom, berberine, curcumin, Annatto, cimetidine, CBD oil, ...ya it has over 160 research papers on it. Many are now alive and cancer free...and all they want to do is shut down these groups and channels..sad very sad...Just check these out and SEE for yourself what people are saying and their different protocols. So many different cancers and end stage and terminal made a complete 100% turn around,. My gastro doctor was in shock last week, when I told him about this guy Kevin from Beating Cancer Today on FB group who cured 4 stage colon cancer, set home to die. His mouth dropped open and he got sad, he said, they don't want a cure, they will lose billions of dollars and he shook his head. So...have a look doc. The protocols work right along side with chemo and immunotherapy. Google joe tippins blog. On FB 3 groups, join them all, just to see and listen, ur mind will be blown. My Cancer Story Rocks (password is Mulligan)(over 40,000 members globally. ) Beating Cancer Today, (cured his colon cancer and since over 100 have had success with HIS protocol.) Next.....Febendazole Cancer Support Group....all these are FB groups with cancer testimonies. I am on that protocol for bladder cancer. People are coming out with shrunk tumors on scans and as they continue, many 100% cancer gone.
Interesting, very informational. I'm looking at APR resection end colostomy , and removal of part of vagina, total hysterectomy. It's after chemotherapy & radiation treatments did not get the tumor, still active 😔 I'm not sure how many infections are ahead, radical surgery. Although though it shrank significantly it's active on PET scan. Quality of life, ostomy, urinary issues, and infections are troubling. I'm on zero medication & healthy despite treatments, so I am still processing not being this healthy, and a life long customer of medicine, and infections. It's a beast, and sexual dysfunction is an understatement as to women considering the surgery, and radiation, chemotherapy after effects of trying to treat this. I'm 57, just turned 58. I was hoping chemo radiation would have been remission. Your treatment was successful, and I pray 🙏 that good health, remission, and no tumor in your future. I've had 4 children, and am celibate for 7 years, and that has helped me, otherwise I'd be devastated for my husband, so that is a positive for me now.
I hope you are doing ok. I have an extremely small family. So I know how it feels to have to do everything on my own without much help. I hope you are doing ok
As a former cancer clinical trial researcher who worked on trials exactly like yours, it's encouraging beyond all measures to hear your success story! Researchers fight so hard and feel utter discouragement when a patient is lost. Please, please, please stay on top of your follow ups for decades to come! I can't stress this enough to you. So many patients are lost years later because they became too relaxed with being "cancer free." You can do this! You are stronger than you know ❤
Very interesting. I am in awe of these people who are not bitter towards the doctors who fail to diagnose early. I have zero medical training yet if anyone mentioned blood in their stools I would instantly know they need to be checked!
Cancer depletes red blood cells. Usually, it will show up in your blood work. It won't tell them what kind of cancer, or even if you for sure have it. They may not even mention cancer to the patient and just schedule them for a Scan or colonoscopy and endoscopy to find out what is depleting the red blood cells.
Interesting. Because now people who are healthy are getting negative blood work results. Satan is turning everything good to bad and bad to good. And these responses from doctors are not normal. They only react like that to the dead. Because trust me, as much as I am skeptical about doctors, at least by the 3rd time and her picture of blood in the toilet would have allerted doctors to do much further testing. I have bizzare and outrageous stories happen to me, but nothing like a MULTITUDE of doctors from different hospitals/location all telling her she had nothing and not even performing any tests. That's unheard of to the Land of the Living.
My mother died of colon cancer in 1993. She lived for five years after her diagnosis, largely because she was in the clinical trials for the chemo port. A few years after she died, I stared working for Genentech, who developed Avastin - the first biological approved colon cancer. Now there are the next generation of treatments, like the one you are on what a blessing!
@@lindalester9151 Thank you. AvastinI was approved in 2004 for colorectal cancer. Although not a cure, it was one of the first Biotech drugs to extend lives and improve the quality of life. I believe what this person rd River is s new class of Immunotherapy drugs that are achieving these kinds of remarkable results. As the Paul Simon song says “age of miracle and wonder”. Ironically, I suffer from Macular Degeneration, and receive a small dose of Avastin in my right eye every 6 weeks to keep my vision stsble.
Got dx with colorectal cancer at 29 years old while having a 8 month old boy. Crazy how similar our story is. Glad you are doing well and so upsetting to see new young moms getting this cancer!😢
MY MOM FOUND OUT SHE HAD COLON CANCER AND SHE DIED WITHIN A MONTH. MY SISTER WENT TO ER, WHERE THEY DIAGNOSED HER WITH COLON CANCER, AND SHE DIED WITHIN TWO WEEKS. COLON CANCER IS A KILLER!!!! YOU ARE VERY LUCKY!! I'M CURRENTLY SURVIVING LUNG CANCER THAT WAS CAUGHT REALLY EARLY SINCE IT SHOWED UP IN AN X-RAY FOR SOMETHING ELSE. I WAS LUCKY, SO FAR. GOOD LUCK SISTER, I LOVE YOU!!!!!!!!!
Im sorry about your mom and sister 😢 I've had 5 relative/inlaws who've survived colon cancer. I have 8 relatives who are cancer survivors (5 colon, 1 skin, 1 one throat, and 1 breast) survivors.
The prayer of faith will heal the sick. JESUS CHRIST himself took our infirmities and bore all our sicknesses, the chastisement of our peace was upon him and with His stripes we are healed. Believe on the LORD JESUS CHRIST and you will be saved you and your family. But if the spirit of him that raised up JESUS from the dead dwell in you,he that raised up Christ from the dead shall also quicken your mortal bodies by his Spirit that dwelleth in you.
The way my jaw hit the floor after you went to the EMERGENCY ROOM and they brushed you off again!! How embarrassing for those doctors, clinics and hospital. They should be ashamed.
Just found your channel.I was 63 when I was diagnosed . I had symptoms for about a year. I told 3 of my doctors but they said it was the medication I was on. And to be fair, it could have been. I had severe constipation and that was my only symptom. I asked my GP for a colonoscopy but she was reluctant and said it was my medication and hemorrhoids. I finally told her I will keep calling and keep coming in until I get tested. She agree to the mail in test. It was positive. So they still said probably nothing but did schedule me for a colonoscopy. As soon as the doctor came in after I woke up I could tell by her face. Yup, they found a very large growth. It was the most common kind of colon cancer. So I was scheduled for a colectomy. Stage 2A and they removed a big section of my small intestine. Checked 32 lymph nodes. All were clear. The tumor had almost completely blocked my colon. But they got everything. No bag, no chemo, no radiation. I just had my year later colonoscopy and everything is clear. If you feel something is wrong, KEEP PUSHING! Advocate for yourself.
I'm glad you shared your story, sweetie. I'm in my 60s, and I'm getting a colonoscopy. I have had them before, but I feel something is wrong this time. I'm a huge advocate of taking your health into your own hands and persisting these tests. Your doctors failed you. You could have caught it early. I'm glad you're doing well.
Just seeing this now. Hope your colonoscopy went ok. I know what you mean by not feeling right. I am getting ready to get one and have the feeling somethings not right
I feel so bad for her because they didn't take her seriously. So sad that just because you're young, they assume nothing is wrong...I hope everything works out for her.
I was gaslit for over six months by a doctor who said I was depressed, had hemorrhoids, and my five days of vomiting was “just the flu”. I made them refer me to a gastroenterologist. I called them directly and they got me in the next morning. I was admitted to the hospital and the next day had a colonoscopy to confirm stage 3 rectal cancer. Controversial, but I don’t think this happens to men as much as women.
You mean the cancer or the gaslighting happens more in women? For a serious illness, I would rather go see a woman Dr.. I feel men doctors don’t take me serious for some reason. Do they think all women are hypochondriacs? I sort of feel a woman is more in tune with her body. Since giving birth many years ago, I feel like I can connect my brain to internal parts of my body and “feel”.
My niece was 33 lost her life a few weeks ago of colorectal cancer… it was beyond heartbreaking. She had her own practice in psychiatric practice for treating young children with autism by combining natural and western medicine… she ignored the symptoms and was too late…. She was a very beautiful and very smart young woman,
As a RN, I am shocked to hear that you were dismissed by many doctors especially with your later symptoms of losing weight, blood in the stool and abdominal cramps, they are the typical symptoms of colorectal / colon cancer. In Australia, we get a 50th birthday gift from the government , a free stool kit send to us not long after our 50th birthday and we receive them every 2 year (if negative) to check for blood in the stool and a few people that I've known found out their early cancer from this life saving kits. Glad you are doing well and wishing you all the best.
I'm 36 and currently experiencing these same symptoms, had my second child 18 months ago. I've taken two FIT tests both came back abnormal, I've lost so much weight and just don't feel well. Cancer runs in my family so I'm hoping I won't have to jump through any hoops to get my colonoscopy. Thank you for sharing your story.
I was gaslighted for a year. I was 37 when I started having symptoms. It took 18 months and being admitted to the hospital and saying I won't go home until they find out what is wrong with me. I knew my body and knew something was wrong. They did laproscopic surgery and the second the scope was put in they found my entire abdominal cavity filled with a bright green mucinous substance. My appendix had filled with cancer, ruptured and been dumping this stuff into my abdomen for close to two years. Since I began complaining of intense stomach pain. My doctor gaslighted me. Said it was IBS. 3 surgeries, one of which was an experimental heated chemotherapy belly wash, and 2 rounds of chemo later I was cancer free. Always advocate for yourself!
@amybelcher6908 I did not have an ultrasound. They did a CT scan, couldn't see my appendix on CT, saw fluid, told me it was a ruptured cyst and I would get better on my own. Went in a couple months later, another CT scan, no appendix in scan and fluid. Again another ruptured cyst, told me I should go on birth control. I went back in a day later in terrible pain. They did another CT and there was even more fluid. They knew there was no cyst because I'd just had a scan the day before. The fluid was coming from an unknown area. That's when the doctors began arguing over what to do. I was in the hospital on and off NPO for 3 days while they argued. Finally I told the doctor that wanted to do the surgery that he was the one I wanted to care for me and just find out what is going on. That's when they found the cancer. My appendix had been ruptured and open leaking into my abdomen for at least months since my first CT, which is why it wasn't visible.
What an inspiring message. It appears more common than not to be dismissed by healthcare providers. To get an honest answer is only by tons of research, people like you whom are transparent, willing to share your journey and learning the right questions to ask. Truly we navigate our own health. Thank you for sharing and congratulations on the birth of your new little girl. ✨💖✨
What a sweetheart you are … I am literally crying hearing you say you are having a baby tomorrow… Funny how you don’t even know a person but their story can resonate so strongly with you … I am a 69 year old gramma of 5 beautiful kiddos and I have a daughter around your age who has given me two of them ❤️ … I cannot imagine her going through all that you have so bravely endured .. You are a champion and I’m sure a fabulous mama … keep keepin on girl … You have a whole lot of Livin to do !! 🤗🇨🇦 🙏🏼praying things went well either way baby and that you are healthy and whole again
I get the part about it all hitting you later, after treatment. It was the same with my son who had leukemia at 19. He was so strong and positive during treatment, but suffered PTSD anxiety after. Honestly, I went thru the same thing as his caregiver. It's hard. When youre in the midst of the battle, you're just focused on surviving. It's not till after that you have time to reflect.
Cancer is hard on the patient and the caregiver. You’re a good mom. Hope you’re doing well now. For me the passing of time has helped. I’m glad your son survived. Wishing you both the best life, this life has to give.
Same thing happen to my 37 yr old daughter Northern NY. Baby was born and 10 days later the news was delivered. Colon cancer spread to liver. She passed 2019 leaving 2 beautiful children and husband
I am so sorry about your daughter. I lost my mom when she was 64. They all kept telling her she was bleeding due to menopause and she needed a hysterectomy. Her side hurt all the time and she would bleed heavily every two weeks. Her tumor was found off a cat scan by a regular doctor in the lining of her colon. It was the size of an orange. She was a very healthy person. She was loyal about getting those done and her previous colonoscopy was 4 months before. The doctor missed it. It was already too far gone in her liver and lymph nodes but she did the chemo. She passed away 3 months later. Now as I reflect on these stories my mom didn’t want to bother the doctors and stand firm now I blame myself for not letting me go with her because I loved her so very much and she never ever complained.
I'm about to start my colonoscopy journey next week. Every word from your story parallels my life. From symptoms, to being dismissed repeatedly. The pain, nausea, vomiting, sewage 💩 ⛽, mucusy, bloody, bile colored diarrhea or constipation that doesn't seem to end. Currently, the abominable pain is the worst, and I've had a gut feeling for months now. I sometimes have a pulling/pressure feeling in my rectum, but then won't poop. I went from working full time, with 4 kids/4 Dogs, and I'm married. I'm more tired now, than I was when I had 3 boys 4 and under and was pregnant with my 4th while working. My husband is carrying at least 85% of my 50% because I feel so sick all the time. I quit my job mostly in part of my symptoms. Praying I'll have answers soon, I'm 33 and want to be as proactive as possible, given I have autoimmune diseases on my plate as well. Thank you for your story. You validated my experience heading into this, which is also reassurance it's not "anxiety and stress". Sending you all of healing and peaceful vibes and love. ☯️
Thank you for sharing your story, Kelly. I am a breast cancer survivor. You have encouraged me to keep pushing for new screenings in areas of my body where I'm not feeling right. Yes I always worry that my cancer may return! Im trying not to over worry of course. I think you would make a great therapist or counselor for others who are going through cancer, whether they are newly diagnosed or, like me, 18 years out! The worry never goes away. It is important to keep pushing for answers when things don't feel right. Thank you again! You are so reassuring!!
Dostarlimab is proving so succesful in shrinking colorectal tumors and even totally eradicating them. Hope you can get on a new clinical trial dear Dan. The world needs wonderful men like you.
Ugh. I’m so sorry. I hate that we have to fight doctors for our health. I was diagnosed with colorectal cancer with all those same symptoms during Covid. The worst was the constipation and I couldn’t sit down for more than about 30 minutes without being in pain. They kept saying it was probably hemorrhoids! I was too young and healthy to have cancer they said. When I finally said they had to do something about my pain, they agreed to give me an MRI and because of the inflammation in my buttocks, they couldn’t see anything. Sent me to the ER and I got admitted for an emergency colonoscopy. They couldn’t even get far into my colon because I had a large tumor blocking it. Thank god I pushed and pushed. I have been in remission for almost 3 years. Radiation was the worst for me. The burns were horrible. But it did shrink my tumor a lot. Still had to have a 17 hour surgery but I’m alive.
That statement you made about “not being able to see a doctor” because you don’t have health insurance is absolutely shocking!!! This is suppose to be an “advanced” country!! WTH?
@misswinnie4.8 I have a relative that is 63 years old, in very poor health, and on Medicaid. The only way you can see a specialist is with a referral. Getting his PCP to refer him has been next to impossible. When you are poor, no one cares about your health care has been his experience. It's so very sad.
That's just not true. I have no money, and have been in the error and hospital twice recently. Youu do have to advocate for ur own Healthcare tho, whether u have insurance or not. If it's a long term illness u go on indigent care, which is medicaid, it's free
GOD Bless you! 🙏💖🙏 I had all the symptoms, exactly how you described them! Went to a specialist, turned out I had something completely unrelated…..we never know what has invaded our body, I’m glad you were aggressively pushing for answers.
It seems like this is common for new mothers. I had a brain tumor that was found 2 months after I had one of my sons in 2007. My primary doctor thought I had postpartum depression and referred me to a psychologist even though my symptoms were passing out, not eating, confusion, forgetfulness etc. My family finally took me to the ER where I was given an MRI. I’m thankful that you finally found a doctor who was willing to listen and not just brush you off again. It seems like once a doctor hears you’re a new mom, any other symptoms can’t be from anything else. I had blood in my stool and my doctor at the time had me do a stool sample and colonoscopy right away. It turned out to be nothing. Thank you for sharing your story.
I had same symptoms ( know the smell) but not much blood. I was angry when my family physician insisted i see GI & get colonoscopy. I do not have cancer but feel like a fool for my resistance. So your story helps ppl like me as well. I wish you an end to tiredness & symptoms and a a healthy life. Thanks for sharing.
As bad as the situation is, you are beyond blessed to get to take the trial drug. I’ve heard other stories of people getting fortunate enough to selected fir these trials and fir the most part they usually seem to work out with these trial drugs.
Hi Kelly, I was a new mom too at 32 and they assume my systems were due to being a new mom. I had colon cancer. I knew something was wrong like you did. I believe my daughter saved my life. God blessed me with her and the pregnancy is what saved me.
Yes I did have bleeding but they kept telling a lot of pregnant women have bleeding due to hemorrhoids. So when my daughter was 4 months, I went to my family doctor and he did a rectal exam. He sent me in for testing and that was when they diagnosed me with colon cancer.
*The amount of times I've heard doctors dismiss a patient's serious symptoms and then a nurse swoops by to give the most sage, life-altering advice is appalling*
Doctors really need to get past their pre-conceived notions. I was ignored because I am overweight. So their advice to me was lose weight. Even when I told them I am losing weight and I’m not trying to. Too many people suffer needlessly because they don’t listen. We know our bodies.
I loose weight if I reduce diet. If I do exercise of walk weight goes down very fast. I lost 8 kg in two months. If i don’t monitor my diet, my weight goes down 250 gm daily. If I take eonough food my weight donot loose.
I cannot imagine how emotionally challenging it is for anyone to go through giving birth and to deal with cancer and moving cross country within a year， very strong soul.
We women are dismissed too often. "it's period pain, it's anxiety or depression". I was dismissed for 15 years until finally a wonderful doctor tested and diagnosed me with Lupus.
What a roller coaster journey you have been through! Congrats on baby #2 through all of the things you have been through. I wish all four of you the very best that life can offer! Listening to your body is the BEST advice that you gave. Thank you!
I’ve been dismissed for 7 years. I finally met a GI who told me I’m probably constipated. I’m so glad I stood up for myself and I told him “I don’t care what you think, schedule the scopes”. I have them on Sep 26 and I really Hope they find what I’ve been feeling.
Praying your colonoscopy/endoscopy went well and you got the answers you're looking for and that it isn't cancer! How are you doing? Did they find anything? Good for you for advocating for yourself!❤
I've been suffering after my miscarriage in Feb 2023 w/ severe abdominal pain and going in and out of hospitals and doctor appointments. These doctors now a day really do just brush their patients off until it's something extremely severe. 😢
These stories are absolutely heartbreaking for us in Canada to see. We pay not a cent for our universal coverage and get whatever tests we want, when we want. I had a benign polyp removed 30 years ago and I get a colonoscopy every five years just to check. No symptoms required. It staggers the mind that the richest country in the world has a for profit health care system that gaslights young patients because they don’t want to do costly tests. Tragic!
I don’t know where you live in Canada but they is not our experience. My sister passed away from this because her dr refused to give her a colonoscopy even though she had symptoms for 10 years! By the time she got one it had spread to her ovary. She fought for three years. Now even with a family history and having had a polyp my dr said a colonoscopy is recommended only every 10 years! Even when you show symptoms it takes 3 months to even get a specialist appt or longer. We live in Vancouver.
@@slowrunner40 I am so sorry for your loss, that’s terrible she was refused a colonoscopy on time. I lived in Toronto for the thirty years this applied. I even had one in the first few months of the pandemic. I guess not all provinces are the same. I’ve returned to my home province of Nova Scotia and we are painfully underserved by family physicians and the colonoscopy waitlist is around 9 months now. I hope you are able to get the tests you need and not wait 10 years!
American taxpayers money goes everywhere in the world except its own citizens. Our healthcare system is overwhelmed by non citizens that don’t pay, it’s out of control what’s going on.
Oh please, you must be a Republican. Your contributions outside are a minuscule number of your GDP. Your healthcare is not overwhelmed by non-citizens, it’s overwhelmed by lobbyists of Big Pharma and Insurance companies that don’t want to see their grotesque profits affected by universal healthcare. @@aniello4633
What a beautiful lady! Thank you for sharing such a traumatic experience!
Рік тому+24
I live in a third world country called Paraguay. I went to the proctologist and said: I just poop blood. After a quick check he said: colonoscopy. No cancer was found, only polyps.
In India , which is a third world country we can get CT scan , colonoscopy , endoscopy or any test done whenever we want . That’s such a blessing and it’s not expensive too .
You were so encouraging! So glad it all worked out ! No colonoscopy bags…. You just never know what God will do. And that pic of the baby looking at you is priceless.❤
So sorry for the things that you went through and that you were dismissed before! :( I’m so happy that the new drug worked for you and that you don’t have cancer anymore! 🙏🏼❤️
I feel rotten, brain fog, tiredness anf headaches, I poo a dozen times a day, I've got a new 2 inch round lump in my lower abdomen, that why I'm here. Here goes> "Can I make an appointment please?" Your video is so helpful to everyone.
What a pretty girl, you are. Thank you for sharing your story. I have recently been diagnosed with the same cancer, in the exact same place. I'm experiencing the same symptoms, etc.. Life has been a whirl-wind of procedures and appointments for several weeks...that in itself has been a little overwhelming at times. I have a consultation coming up on August 12th, and my treatments will begin some time after that. It will consist of a combination of radiation and chemo for 6 weeks, and once the radiation part is complete, the chemo will continue for an additional 3 weeks (if i remember correctly). Then, possible surgery after that. Your story has given me hope...thank you, and all the best to you!
I'm going through something right now where i am scared to go ask. I kniw i don't feel right. Im having migraines, pain pushing down on my rectum randomly. Intolerable pain. My son only has me. I'm glad you popped up on my feed. You are encouraging
I want to encourage you to go to a doctor. A huge weight will be lifted off of your shoulders. You have done tough things in the past and you can do this! You won’t regret it. ( and many feels as you do so you aren’t alone❤️)
Please go see a GI Doctor. 🙏🏽 I was misdiagnosed for years. Has a hysterectomy in April 2023. Diagnosed with Stage 3 Colon C in Feb 2024. How did you not see anything a year earlier??? There is NO WAY!! Currently taking Chemotherapy. Keeping you lifted in my prayers 🙏🏽
So sad how some PCP’s or Doctors in general just brush off their patients. It just goes to show that individuals must ADVOCATE for themselves and be PERSISTENT. It might save your life. 🤦🏾
When you mentioned a sewer smell that hit me like a ton of bricks. I have smelled that several times! I wasn't sure where it was coming from and then I realized it came from me. Pretty scary. Doctors have been discounting me for years. Not even sure who to go to next. I'm beginning to think most doctors do that, not only from my own experience but he number of other patients reporting the same thing happening to them. It's no wonder so many people are sick and so many die because of late diagnoses. The medical system needs to train people alot better!
THANK YOU FOR SHARING YOUR JOURNEY WITH CANCER. YOU ARE A BEAUTIFUL LADY AND HAVE AN OPPORTUNITY TO HELP OTHERS BY DOING THIS VIDEO. I WILL HAVE TO LOOK AT YOUR SITE AND SEE YOUR NEWEST BABY....YOUR SON IS A DREAM CHILD...BEAUTIFUL LIKE HIS PARENTS. I SEND PRAYERS AND BLESSINGS FOR A WONDERFUL FULL LIFE.
Some doctors are disgusting how they brush off so many people’s symptoms and don’t look into things. It’s not fair at all. I need a new doc cos mine is not thorough at all. He is lazy. I’m sorry to hear about your diagnosis 😢
I’m surprised they didn’t pass it off as colitis. I’m so glad they found it and you fought so hard through it. I’ve had internal hemorrhoids 🤦🏻♀️ my mom is an Ostomy nurse and absolutely loves what she does. A friend of mine was just diagnosed with stage 4 colon cancer and it’s starting to spread.
Kelly shared her story in such an authentic way. It's sad that her doctors originally didn't hear her pleas and perform further testing. But, it's amazing that experimental treatment worked for her!! Imagine all the lives that will be saved and the years of better quality time patients who are able to benefit from the medicine will see! And, all because Kelly and the other early patients were brave enough to take the leap of faith and try it. It's touching that Kelly now sees the big picture and realized her newest baby will come (or maybe came! ) at the exact right time the baby was supposed to be here. Does Kelly have a social media page where we can learn more about her journey and the medication that worked for her?
Thank you so much for watching! The trial Kelly was on is Dostarlimab. Here is Kelly's full story: www.thepatientstory.com/patient-stories/colorectal-cancer/kelly-s/
I've had some weirdness I would say the last 6 months. Been working with my fiber and all that. What I'm concerned about now is if it is early stages, does anyone ever catch it? I don't have insurance. I have a couple of the symptoms including the funny smell suddenly coming on. But I've got polyps or hemorrhoids or something showing up also. My aunt died of colon cancer because she never told anyone until she was too late to save. I'm tempted to contact the cancer center first and work my way backwards but without insurance is there any hope? $7,000 to $9,000 deductible plus a monthly premium was more than I could do. I'm 62 years old so I just figured I would deal with it if something happened. I have a chance it's nothing and I have a chance of living if I catch it early enough but without insurance who's going to listen to me? I have launched my 4 kids and all are living their lives with their families. I thought this was my time to Blossom. I will get out on the website but I would welcome any First Steps advice from anyone. Raising four kids over 40 years you have a lot of contact with medical issues Plus friends and church family. This is different and it's that knowing that something's not right that is so scary. I would love to get your favorite resource for my situation. Thanks for reading
@@HopeWins777 Please consider googling to see where there are free cancer screenings near you. In my state, there is a health center that treats patients without insurance, that provides preventative tests and then, if someone does need further care; they help them apply for free insurance. Have you ever applied for insurance under your state's Medicaid program? I know able bodied, working adults who qualify based on income. One of my friends thought that she wouldn't qualify, but she did. Maybe there is a program in your area that you would qualify for. You are also near the age that your local council on aging might be able to assist you. Sending you gentle hugs.
@@HopeWins777 First, so sorry to hear that you seem to be going through this alone. We have worked with great colorectal cancer groups like Imerman Angels who will match you to a mentor, someone whose been through a similar situation. Here is their info: imermanangels.org/ .. Hope that helps with a first step. -Stephanie
So you never had surgery? My son at 46 years old went through this 2 years ago…chemo, radiation, and colostomy bag. In 2022. Please let me know….he is a constant worry to me.
It's sad that doctors don't take patients seriously! I have UC and was first diagnosed with IBS. After moving, I had trouble finding a new GI and worry about cancer.
I have a young friend about your age, Kelly, that had similar symptoms. Dismissing concerns seems to be the common denominator with young ppl getting these cancers. My young friend had her bowel, anus, vagina and all reproductive organs removed, and has a permanent ostomy. They were able to save her bladder. She had eggs frozen. I’m so thankful that this new treatment came at the perfect time. 🌻🌻🌻
I have only been seeing bright red blood in my stool. I googled what the causes could be, I saw colorectal cancer. I didn’t have stomach cramps before, but after I googled the symptoms of colorectal cancer and saw stomach aches, I immediately started having stomach aches. First I thought it was all in my head but I have had it for three days now. I am going to the ER tomorrow to insist on a colonoscopy.
I’m sorry you had to go through all this , and that’s what I tell everybody you know your own body ! Sending and saying prayers for you sweetie 🙏🏻🙏🏻🙏🏻🙏🏻
I’m an ER Dr, and blood in your stool unless caused by hemorrhoids is definitely abnormal. Was it bright red or black in color.? A sigmoidoscopy and colonoscopy should’ve been done to either rule in or out the diagnosis of internal hemorrhoids. I’m so sorry that they brushed you off. They were guessing at the diagnosis, and I feel that is malpractice for sure. I practice medicine completely differently. I always rule out the most serious diagnosis first,then move along to the less serious ones. For eg if a 50 yr old comes in with severe back pain, I have to rule out an aortic aneurysm first. Acute anxiety could be from tachycardia, thyroid storm, an adrenal tumor or other cardiovascular abnormality , all of which need to be ruled out (based on an algorithm) before settling on a dx of panic attack. That’s the way all doctors should approach a patient’s symptoms. A thorough history is invaluable. Always get more second and third opinions if you are having unusual symptoms. Internal hemorrhoids do MOT cause the symptoms you were having (except the bleeding). So happy there was no metastasis. Lab work will not help in your situation. Anemia postpartum is common, so that wouldn’t have raised an alarm. But the weight loss, constipation, and abdominal pain should have been enough to do the GI work-up. What’s the name of the drug? And was it squamous cell or adenocarcinoma?
@@Pkeats817 Did your symptoms resolve? Or did somebody jiggle out the problem? Pelvic exam? Ultrasound? Hormone replacement therapy? Lab work including thyroid?
@@Pkeats817 if you have no faith n your doctor, you should switch And for sexual dysfunction, ask about a testosterone cream preparation to apply around the vulva, but that can make the skin thin and dry which happens anyway after menopause. Whenever you are feeling like you’re not being heard or that caregivers are being dismissive, go somewhere else. Those people should not be in the health care profession.
Totally agree with your post. It baffles me that she got diagnosed with hemorrhoids without actually having anyone do a physical exam. Rectal bleeding calls for a visit to a GI specialist. Before Colonoscopy, they can do a rectoscopy for instance, which is what I had with similar symptoms. It took maybe 10 min, not more. It went about 20 cm and it did diagnose hemorrhoids and anal fissures which was actually why I was bleeding. This would’ve been a regular GI check. I’m truly shocked no one thought of sending this girl to a REAL doctor. I had to have a Colonoscopy in my early twenties due to Constipation , that required a bit more prep but It is something they do everyday. I am actually thinking of repeating it 10 years later because I’ve been having tummy cramps and a soft very often for the past year which is not the norm for me. My doctor says it’s probably IBS because I do have days when it’s normal, but I’d rather have it checked.
@@Kitten9011 Yes, but remember, IBS is also a guess, and that diagnosis falls into the basket of “the least serious answer”. I always practice medicine by ruling out the most serious cause for symptoms first. That doesn’t mean indiscriminate testing, though. It’s just that I consider aortic aneurysm rupture before I call severe back pain a lumbar strain, or heart palpitations are coming from a serious arrhythmia rather than a panic disorder etc.
@@kkdoc7864 thanks for your answer, it’s why I’ve asked to have a Colonoscopy first and then I’ll accept the IBS diagnosis if that comes clear. I’ve had a Rectoscopy done quite fast so can’t complain about that. I’m based in Poland and usually it is not difficult to get a referral for a specialist or a procedure like Colonoscopy. The waiting time could be long though. Privately it wouldn’t cost more than 200-300$ so it’s still doable.
My mom was told she had a cyst for three years! New doc immediately sent her to get colonoscopy. Stage 4 metastatic cancer. Last month she had surgery and a 90 minute chemo wash. She has no evidence of disease! As close as it comes to cured. She’s 80 years old and has many more years ahead of her! I can’t say enough good things about Oregon health sciences university and Dr Sood! And it was all covered by Medicare
Wow good for her for being so positive and optimistic but its crazy how her first thought was having another baby when she was literally given a terminal disease diagnosis. I would be struggling with that and my only thought would be fighting for my life and survival and being there for my first born child but she did say she kind of didnt even fully process it so it maybe never fully hit her but im wishing her all the good health and a long life to be there for her babies.
My youngest niece lost her battle at 40 yrs old with Stage 4 Colon Cancer, after being ignored at the ER when she went in repeatedly. They just said she was Constipated each time. While that could've been excused the 1st time or 2, when she went back Repeatedly they...they Should've done Extensive Testing, Xrays, CTs, MRIs, etc to determine WHY she was supposedly Constipated!! She too was just married, pg with her youngest of 4, & ended up going thru SYNTHETIC CHEMICALS "treatments", making her life & that of her family Miserable for years!! Now, her children are left without their Mom!!!
I heard a very wise piece of advice, when you go to any healthcare facility, make sure they note your symptoms and what you were told at that facility.
Its sad to see how much the patient has to convince the doctors to get things checked. If there is one thing I am super proud about my country, is the access to medical facilities and very less waiting time. And I am glad you are fine and happy now !!
I know a very similar story as far as someone being dismissed by the ER doctor when they went in with a whole array of symptoms. The ER doctor was dismissive and condescending, seemed to think he was all knowing. I try to give the ER Dr leeway, even despite how my relative was treated. ER Drs aren't necessarily trained up enough to recognize cancer in a CT scan. Sadly. But it doesn't help when they bring too much hubris to the situation and can't say something simple like "we aren't equipped to diagnose this kind of issue in an ER"... My relative had a long road to travel before they finally got access to a specialist who could properly diagnose the situation.
We’d love to hear from you: what were some of your first symptoms? Leave us a comment below 👇
Want to share your story 👉 www.thepatientstory.com/share-your-story/?UA-cam&
I'm so sorry for your loss.🙏
I am curious as to what the drug was called? Please share..
The amount of doctors that dismissed her symptoms is appalling. This poor woman. Glad she is doing better now.
yeah, and there are tons of videos of different people all with the same story...
Happened to me before. Around the same time that happened to me, my son was diagnosed with leukemia and very long story short, it turned out he did not!!! 😮 Also, my husband was told he most likely had lung cancer. N he did not!!! Yep! Thats exactly what the DR said "you most likely have lung cancer" but the specialist he sent us to and the second opinion Drs said no, he did not have lung cancer. My uncle repeatedly was told that he had the flu. My aunt brought him home from the Dr for the 3rd time n she found him on the bathroom floor passed away the next morning. He had a pulmonary embolism. My aunt received a settlement for that one!
It sure is. Even more alarming is virtually every video and every patient on this channel is the almost same story! They all got blown off before anyone would take them seriously!
all these years and no cures out there ? Burzynski ? Chymotripsin or pancreatic enzymes? Fenbendazole ivermectin cbd vit e cucurmin berberine melatonin ? Intravenous vit c ? All supressed ?
I am a physician and my autoimmune diagnoses plural were missed for almost 20 years. Close call with death, financial destitution, depression and complete career devastation I am now being treated right and somehow have my career back. I don’t know how I’m alive. Even as a doctor, I had to push and fight doctors to get answers. One surgeon almost killed me.
Doctors cannot agree to what I am sharing here with you today, because of what they are taught and what they must adhere to legally. People globally are curing their cancer sir. Using a protocol with de wormer and added supplements like mushroom, berberine, curcumin, Annatto, cimetidine, CBD oil, ...ya it has over 160 research papers on it. Many are now alive and cancer free...and all they want to do is shut down these groups and channels..sad very sad...Just check these out and SEE for yourself what people are saying and their different protocols. So many different cancers and end stage and terminal made a complete 100% turn around,. My gastro doctor was in shock last week, when I told him about this guy Kevin from Beating Cancer Today on FB group who cured 4 stage colon cancer, set home to die. His mouth dropped open and he got sad, he said, they don't want a cure, they will lose billions of dollars and he shook his head. So...have a look doc. The protocols work right along side with chemo and immunotherapy. Google joe tippins blog. On FB 3 groups, join them all, just to see and listen, ur mind will be blown. My Cancer Story Rocks (password is Mulligan)(over 40,000 members globally. ) Beating Cancer Today, (cured his colon cancer and since over 100 have had success with HIS protocol.) Next.....Febendazole Cancer Support Group....all these are FB groups with cancer testimonies. I am on that protocol for bladder cancer. People are coming out with shrunk tumors on scans and as they continue, many 100% cancer gone.
Can I ask which desease if you want to tell? It's like my story
omg you need to write a book
The sewer smell was it from gas? Or just a smell coming from your pores etc..?
Interesting, very informational. I'm looking at APR resection end colostomy , and removal of part of vagina, total hysterectomy. It's after chemotherapy & radiation treatments did not get the tumor, still active 😔 I'm not sure how many infections are ahead, radical surgery. Although though it shrank significantly it's active on PET scan. Quality of life, ostomy, urinary issues, and infections are troubling. I'm on zero medication & healthy despite treatments, so I am still processing not being this healthy, and a life long customer of medicine, and infections. It's a beast, and sexual dysfunction is an understatement as to women considering the surgery, and radiation, chemotherapy after effects of trying to treat this. I'm 57, just turned 58. I was hoping chemo radiation would have been remission. Your treatment was successful, and I pray 🙏 that good health, remission, and no tumor in your future. I've had 4 children, and am celibate for 7 years, and that has helped me, otherwise I'd be devastated for my husband, so that is a positive for me now.
These doctors should be reported to the Medical Review Board.
Im going through cancer and im doing it by myself, i have people around but no parents or siblings etc. I'm trying to be strong and I have God
How are you now?
❤️
I hope you are doing ok. I have an extremely small family. So I know how it feels to have to do everything on my own without much help. I hope you are doing ok
@@ccalexander1924 thank you I’m doing good thank God I’m just happy to be alive
❤. You are in my thoughts.
As a former cancer clinical trial researcher who worked on trials exactly like yours, it's encouraging beyond all measures to hear your success story! Researchers fight so hard and feel utter discouragement when a patient is lost.
Please, please, please stay on top of your follow ups for decades to come! I can't stress this enough to you. So many patients are lost years later because they became too relaxed with being "cancer free." You can do this! You are stronger than you know ❤
Laura, thanks for your work in clinical research! -Stephanie
Very interesting. I am in awe of these people who are not bitter towards the doctors who fail to diagnose early. I have zero medical training yet if anyone mentioned blood in their stools I would instantly know they need to be checked!
its like being disregarded by the doctors is the norm now
Colonoscopy is a basic procedure in these cases.
The bloodwork with many cancers always comes back fine until very late stages. So it makes me so mad when they say, "Your bloodwork is fine."
Cancer depletes red blood cells. Usually, it will show up in your blood work. It won't tell them what kind of cancer, or even if you for sure have it. They may not even mention cancer to the patient and just schedule them for a Scan or colonoscopy and endoscopy to find out what is depleting the red blood cells.
Seriously?
The body easily adapts to minor blood loss so it might be true. Not always but you know
Interesting. Because now people who are healthy are getting negative blood work results. Satan is turning everything good to bad and bad to good. And these responses from doctors are not normal. They only react like that to the dead. Because trust me, as much as I am skeptical about doctors, at least by the 3rd time and her picture of blood in the toilet would have allerted doctors to do much further testing. I have bizzare and outrageous stories happen to me, but nothing like a MULTITUDE of doctors from different hospitals/location all telling her she had nothing and not even performing any tests. That's unheard of to the Land of the Living.
I have to say : “Thanks to all of you who are brave enough to share their stories!” It’s so so important!
My mother died of colon cancer in 1993. She lived for five years after her diagnosis, largely because she was in the clinical trials for the chemo port. A few years after she died, I stared working for Genentech, who developed Avastin - the first biological approved colon cancer. Now there are the next generation of treatments, like the one you are on what a blessing!
@@lindalester9151 Thank you. AvastinI was approved in 2004 for colorectal cancer. Although not a cure, it was one of the first Biotech drugs to extend lives and improve the quality of life. I believe what this person rd River is s new class of Immunotherapy drugs that are achieving these kinds of remarkable results. As the Paul Simon song says “age of miracle and wonder”. Ironically, I suffer from Macular Degeneration, and receive a small dose of Avastin in my right eye every 6 weeks to keep my vision stsble.
@@lindalester9151 No, not the same. Googled it. Avastin is bevacizumab. This young lady received dostarlimab.
Got dx with colorectal cancer at 29 years old while having a 8 month old boy. Crazy how similar our story is. Glad you are doing well and so upsetting to see new young moms getting this cancer!😢
Too many people all ages getting too much cancer these days.....hmmmm!
Sorry to hear that...hope youre doing well
MY MOM FOUND OUT SHE HAD COLON CANCER AND SHE DIED WITHIN A MONTH. MY SISTER WENT TO ER, WHERE THEY DIAGNOSED HER WITH COLON CANCER, AND SHE DIED WITHIN TWO WEEKS. COLON CANCER IS A KILLER!!!! YOU ARE VERY LUCKY!! I'M CURRENTLY SURVIVING LUNG CANCER THAT WAS CAUGHT REALLY EARLY SINCE IT SHOWED UP IN AN X-RAY FOR SOMETHING ELSE. I WAS LUCKY, SO FAR. GOOD LUCK SISTER, I LOVE YOU!!!!!!!!!
Im sorry about your mom and sister 😢 I've had 5 relative/inlaws who've survived colon cancer. I have 8 relatives who are cancer survivors (5 colon, 1 skin, 1 one throat, and 1 breast) survivors.
🙏🏾🙏🏾🙏🏾
sorry about your mom and sister. I have 2 friends going through lung cancer now.
I’m so sorry
The prayer of faith will heal the sick.
JESUS CHRIST himself took our infirmities and bore all our sicknesses, the chastisement of our peace was upon him and with His stripes we are healed.
Believe on the LORD JESUS CHRIST and you will be saved you and your family.
But if the spirit of him that raised up JESUS from the dead dwell in you,he that raised up Christ from the dead shall also quicken your mortal bodies by his Spirit that dwelleth in you.
The way my jaw hit the floor after you went to the EMERGENCY ROOM and they brushed you off again!! How embarrassing for those doctors, clinics and hospital. They should be ashamed.
Just found your channel.I was 63 when I was diagnosed . I had symptoms for about a year. I told 3 of my doctors but they said it was the medication I was on. And to be fair, it could have been. I had severe constipation and that was my only symptom. I asked my GP for a colonoscopy but she was reluctant and said it was my medication and hemorrhoids. I finally told her I will keep calling and keep coming in until I get tested. She agree to the mail in test. It was positive. So they still said probably nothing but did schedule me for a colonoscopy. As soon as the doctor came in after I woke up I could tell by her face. Yup, they found a very large growth. It was the most common kind of colon cancer. So I was scheduled for a colectomy. Stage 2A and they removed a big section of my small intestine. Checked 32 lymph nodes. All were clear. The tumor had almost completely blocked my colon. But they got everything. No bag, no chemo, no radiation. I just had my year later colonoscopy and everything is clear. If you feel something is wrong, KEEP PUSHING! Advocate for yourself.
How bad was your bleeding, was it just on your poop or would you bleed without pooping?
Whats a colectomy?
It’s a disgrace how many health professionals missed this persistent symptoms. My heart cries for your plight. ❤️
I'm glad you shared your story, sweetie. I'm in my 60s, and I'm getting a colonoscopy. I have had them before, but I feel something is wrong this time. I'm a huge advocate of taking your health into your own hands and persisting these tests. Your doctors failed you. You could have caught it early. I'm glad you're doing well.
I pray and hope that your colonoscopy went well and that there is nothing wrong. 🙏🏻 Would love to hear an update on you.
Just seeing this now. Hope your colonoscopy went ok. I know what you mean by not feeling right. I am getting ready to get one and have the feeling somethings not right
Its concerning how dismissive and uneducated Doctors today can be.😳
Uncaring, Laura Reynolds. On the other hand, some look at you, think you look good, so think nothing could possibly be wrong!
ICAM I know they know how cancer is starting younger than ever. smdh
I agree! Its like its planned.@ogle1go
Especially Colin cancer it’s running rampant
I feel so bad for her because they didn't take her seriously. So sad that just because you're young, they assume nothing is wrong...I hope everything works out for her.
I was gaslit for over six months by a doctor who said I was depressed, had hemorrhoids, and my five days of vomiting was “just the flu”. I made them refer me to a gastroenterologist. I called them directly and they got me in the next morning. I was admitted to the hospital and the next day had a colonoscopy to confirm stage 3 rectal cancer. Controversial, but I don’t think this happens to men as much as women.
You mean the cancer or the gaslighting happens more in women? For a serious illness, I would rather go see a woman Dr.. I feel men doctors don’t take me serious for some reason. Do they think all women are hypochondriacs? I sort of feel a woman is more in tune with her body. Since giving birth many years ago, I feel like I can connect my brain to internal parts of my body and “feel”.
My niece was 33 lost her life a few weeks ago of colorectal cancer… it was beyond heartbreaking. She had her own practice in psychiatric practice for treating young children with autism by combining natural and western medicine… she ignored the symptoms and was too late…. She was a very beautiful and very smart young woman,
I’m so sorry to hear of your family member passing. It’s a frightening disease and we all navigate through it the best we can.
I'm so sorry for the loss of your niece. She is a loss for our world, as well.
What do you mean she ignored the symptoms? What did she have? Sorry to hear that. So freaking young 😢
So sorry to hear that 💔
😢❤❤❤❤
I am a great believer in clinical trials for drugs, vaccines, and devices. I appreciate your participation.
My best, Monica
As a RN, I am shocked to hear that you were dismissed by many doctors especially with your later symptoms of losing weight, blood in the stool and abdominal cramps, they are the typical symptoms of colorectal / colon cancer. In Australia, we get a 50th birthday gift from the government , a free stool kit send to us not long after our 50th birthday and we receive them every 2 year (if negative) to check for blood in the stool and a few people that I've known found out their early cancer from this life saving kits. Glad you are doing well and wishing you all the best.
I'm 36 and currently experiencing these same symptoms, had my second child 18 months ago. I've taken two FIT tests both came back abnormal, I've lost so much weight and just don't feel well. Cancer runs in my family so I'm hoping I won't have to jump through any hoops to get my colonoscopy. Thank you for sharing your story.
I pray 🙏 you're doing ok
@@Tweety22. I hope you're ok
Did you have a colonoscopy? How are you? Hope you are OK
At least push for a CT scan or MRI
I was gaslighted for a year. I was 37 when I started having symptoms. It took 18 months and being admitted to the hospital and saying I won't go home until they find out what is wrong with me. I knew my body and knew something was wrong. They did laproscopic surgery and the second the scope was put in they found my entire abdominal cavity filled with a bright green mucinous substance. My appendix had filled with cancer, ruptured and been dumping this stuff into my abdomen for close to two years. Since I began complaining of intense stomach pain. My doctor gaslighted me. Said it was IBS. 3 surgeries, one of which was an experimental heated chemotherapy belly wash, and 2 rounds of chemo later I was cancer free. Always advocate for yourself!
Holy crap! Good for you for advocating for yourself. Sorry you had to. Best wishes!
I'm so glad that you advocated for yourself and had got heeled.
Did you have an ultrasound at any point?
@amybelcher6908 I did not have an ultrasound. They did a CT scan, couldn't see my appendix on CT, saw fluid, told me it was a ruptured cyst and I would get better on my own. Went in a couple months later, another CT scan, no appendix in scan and fluid. Again another ruptured cyst, told me I should go on birth control. I went back in a day later in terrible pain. They did another CT and there was even more fluid. They knew there was no cyst because I'd just had a scan the day before. The fluid was coming from an unknown area. That's when the doctors began arguing over what to do. I was in the hospital on and off NPO for 3 days while they argued. Finally I told the doctor that wanted to do the surgery that he was the one I wanted to care for me and just find out what is going on. That's when they found the cancer. My appendix had been ruptured and open leaking into my abdomen for at least months since my first CT, which is why it wasn't visible.
Wow that is awful
What an inspiring message. It appears more common than not to be dismissed by healthcare providers. To get an honest answer is only by tons of research, people like you whom are transparent, willing to share your journey and learning the right questions to ask. Truly we navigate our own health. Thank you for sharing and congratulations on the birth of your new little girl. ✨💖✨
What a sweetheart you are … I am literally crying hearing you say you are having a baby tomorrow… Funny how you don’t even know a person but their story can resonate so strongly with you … I am a 69 year old gramma of 5 beautiful kiddos and I have a daughter around your age who has given me two of them ❤️ … I cannot imagine her going through all that you have so bravely endured .. You are a champion and I’m sure a fabulous mama … keep keepin on girl … You have a whole lot of Livin to do !! 🤗🇨🇦
🙏🏼praying things went well either way baby and that you are healthy and whole again
I get the part about it all hitting you later, after treatment. It was the same with my son who had leukemia at 19. He was so strong and positive during treatment, but suffered PTSD anxiety after. Honestly, I went thru the same thing as his caregiver. It's hard. When youre in the midst of the battle, you're just focused on surviving. It's not till after that you have time to reflect.
Cancer is hard on the patient and the caregiver. You’re a good mom. Hope you’re doing well now. For me the passing of time has helped. I’m glad your son survived. Wishing you both the best life, this life has to give.
Same thing happen to my 37 yr old daughter Northern NY. Baby was born and 10 days later the news was delivered. Colon cancer spread to liver. She passed 2019 leaving 2 beautiful children and husband
I am so sorry about your daughter. I lost my mom when she was 64. They all kept telling her she was bleeding due to menopause and she needed a hysterectomy. Her side hurt all the time and she would bleed heavily every two weeks. Her tumor was found off a cat scan by a regular doctor in the lining of her colon. It was the size of an orange. She was a very healthy person. She was loyal about getting those done and her previous colonoscopy was 4 months before. The doctor missed it. It was already too far gone in her liver and lymph nodes but she did the chemo. She passed away 3 months later. Now as I reflect on these stories my mom didn’t want to bother the doctors and stand firm now I blame myself for not letting me go with her because I loved her so very much and she never ever complained.
I pray for a total cure 🙏 ❤️ from this horrific disease.
My best wishes to you and your family.
I'm about to start my colonoscopy journey next week. Every word from your story parallels my life. From symptoms, to being dismissed repeatedly. The pain, nausea, vomiting, sewage 💩 ⛽, mucusy, bloody, bile colored diarrhea or constipation that doesn't seem to end. Currently, the abominable pain is the worst, and I've had a gut feeling for months now. I sometimes have a pulling/pressure feeling in my rectum, but then won't poop. I went from working full time, with 4 kids/4 Dogs, and I'm married. I'm more tired now, than I was when I had 3 boys 4 and under and was pregnant with my 4th while working. My husband is carrying at least 85% of my 50% because I feel so sick all the time. I quit my job mostly in part of my symptoms. Praying I'll have answers soon, I'm 33 and want to be as proactive as possible, given I have autoimmune diseases on my plate as well.
Thank you for your story. You validated my experience heading into this, which is also reassurance it's not "anxiety and stress".
Sending you all of healing and peaceful vibes and love. ☯️
Heyy
Thank you for sharing your story, Kelly. I am a breast cancer survivor. You have encouraged me to keep pushing for new screenings in areas of my body where I'm not feeling right. Yes I always worry that my cancer may return! Im trying not to over worry of course. I think you would make a great therapist or counselor for others who are going through cancer, whether they are newly diagnosed or, like me, 18 years out! The worry never goes away. It is important to keep pushing for answers when things don't feel right. Thank you again! You are so reassuring!!
❤😂
I am happy to hear Kelly the drug worked and your tumour went down. And congratulations on your new baby .
Dostarlimab is proving so succesful in shrinking colorectal tumors and even totally eradicating them. Hope you can get on a new clinical trial dear Dan. The world needs wonderful men like you.
Two weeks-for results I can’t believe how long you waited for all of this. You picked a great hospital. I hope you are doing better!!!
Ugh. I’m so sorry. I hate that we have to fight doctors for our health. I was diagnosed with colorectal cancer with all those same symptoms during Covid. The worst was the constipation and I couldn’t sit down for more than about 30 minutes without being in pain. They kept saying it was probably hemorrhoids! I was too young and healthy to have cancer they said. When I finally said they had to do something about my pain, they agreed to give me an MRI and because of the inflammation in my buttocks, they couldn’t see anything. Sent me to the ER and I got admitted for an emergency colonoscopy. They couldn’t even get far into my colon because I had a large tumor blocking it. Thank god I pushed and pushed. I have been in remission for almost 3 years. Radiation was the worst for me. The burns were horrible. But it did shrink my tumor a lot. Still had to have a 17 hour surgery but I’m alive.
How olde are you🙏
Sometimes it is very hard to get a correct diagnosis. You know your body and have to push ahead. Thank you for sharing your journey.
These stories are so important for people to hear
That statement you made about “not being able to see a doctor” because you don’t have health insurance is absolutely shocking!!! This is suppose to be an “advanced” country!! WTH?
She could have seen anyone. In America it is illegal to be turned away.
@misswinnie4.8 I have a relative that is 63 years old, in very poor health, and on Medicaid. The only way you can see a specialist is with a referral. Getting his PCP to refer him has been next to impossible. When you are poor, no one cares about your health care has been his experience. It's so very sad.
That's just not true. I have no money, and have been in the error and hospital twice recently. Youu do have to advocate for ur own Healthcare tho, whether u have insurance or not.
If it's a long term illness u go on indigent care, which is medicaid, it's free
Great interview. She is so relatable and kind. I’m very happy her story ends well.
GOD Bless you! 🙏💖🙏
I had all the symptoms, exactly how you described them! Went to a specialist, turned out I had something completely unrelated…..we never know what has invaded our body, I’m glad you were aggressively pushing for answers.
What did you have?
It seems like this is common for new mothers. I had a brain tumor that was found 2 months after I had one of my sons in 2007. My primary doctor thought I had postpartum depression and referred me to a psychologist even though my symptoms were passing out, not eating, confusion, forgetfulness etc. My family finally took me to the ER where I was given an MRI. I’m thankful that you finally found a doctor who was willing to listen and not just brush you off again. It seems like once a doctor hears you’re a new mom, any other symptoms can’t be from anything else. I had blood in my stool and my doctor at the time had me do a stool sample and colonoscopy right away. It turned out to be nothing. Thank you for sharing your story.
I had same symptoms ( know the smell) but not much blood. I was angry when my family physician insisted i see GI & get colonoscopy. I do not have cancer but feel like a fool for my resistance. So your story helps ppl like me as well. I wish you an end to tiredness & symptoms and a a healthy life. Thanks for sharing.
As bad as the situation is, you are beyond blessed to get to take the trial drug. I’ve heard other stories of people getting fortunate enough to selected fir these trials and fir the most part they usually seem to work out with these trial drugs.
Hi Kelly, I was a new mom too at 32 and they assume my systems were due to being a new mom. I had colon cancer. I knew something was wrong like you did. I believe my daughter saved my life. God blessed me with her and the pregnancy is what saved me.
Did you have bleeding? Or did you find out before the rectal bleeding start
did you have bleeding on a regular basis? Constipation?
Yes I did have bleeding but they kept telling a lot of pregnant women have bleeding due to hemorrhoids. So when my daughter was 4 months, I went to my family doctor and he did a rectal exam. He sent me in for testing and that was when they diagnosed me with colon cancer.
*The amount of times I've heard doctors dismiss a patient's serious symptoms and then a nurse swoops by to give the most sage, life-altering advice is appalling*
Doctors really need to get past their pre-conceived notions. I was ignored because I am overweight. So their advice to me was lose weight. Even when I told them I am losing weight and I’m not trying to. Too many people suffer needlessly because they don’t listen. We know our bodies.
Can u please tell what’s ur symptoms were?
I loose weight if I reduce diet. If I do exercise of walk weight goes down very fast.
I lost 8 kg in two months.
If i don’t monitor my diet, my weight goes down 250 gm daily. If I take eonough food my weight donot loose.
I cannot imagine how emotionally challenging it is for anyone to go through giving birth and to deal with cancer and moving cross country within a year， very strong soul.
We women are dismissed too often. "it's period pain, it's anxiety or depression". I was dismissed for 15 years until finally a wonderful doctor tested and diagnosed me with Lupus.
What a roller coaster journey you have been through! Congrats on baby #2 through all of the things you have been through. I wish all four of you the very best that life can offer! Listening to your body is the BEST advice that you gave. Thank you!
I’ve been dismissed for 7 years. I finally met a GI who told me I’m probably constipated. I’m so glad I stood up for myself and I told him “I don’t care what you think, schedule the scopes”. I have them on Sep 26 and I really
Hope they find what I’ve been feeling.
Praying your colonoscopy/endoscopy went well and you got the answers you're looking for and that it isn't cancer! How are you doing? Did they find anything? Good for you for advocating for yourself!❤
Good luck and its great you are advocating for yourself.
How did your scopes come out ?
What did you find out after your colonoscopy? Hope you’re fine!!!
@alyssasawyer9429 What did you find out?
A person needs to advocate for themselves...push it....❤
Couldn't agree more!
I've been suffering after my miscarriage in Feb 2023 w/ severe abdominal pain and going in and out of hospitals and doctor appointments. These doctors now a day really do just brush their patients off until it's something extremely severe. 😢
Congratulations on having another Baby, and also for beating Cancer. I hope all the best for you.
These stories are absolutely heartbreaking for us in Canada to see. We pay not a cent for our universal coverage and get whatever tests we want, when we want. I had a benign polyp removed 30 years ago and I get a colonoscopy every five years just to check. No symptoms required. It staggers the mind that the richest country in the world has a for profit health care system that gaslights young patients because they don’t want to do costly tests. Tragic!
I don’t know where you live in Canada but they is not our experience. My sister passed away from this because her dr refused to give her a colonoscopy even though she had symptoms for 10 years! By the time she got one it had spread to her ovary. She fought for three years. Now even with a family history and having had a polyp my dr said a colonoscopy is recommended only every 10 years! Even when you show symptoms it takes 3 months to even get a specialist appt or longer. We live in Vancouver.
@@slowrunner40 I am so sorry for your loss, that’s terrible she was refused a colonoscopy on time. I lived in Toronto for the thirty years this applied. I even had one in the first few months of the pandemic. I guess not all provinces are the same. I’ve returned to my home province of Nova Scotia and we are painfully underserved by family physicians and the colonoscopy waitlist is around 9 months now. I hope you are able to get the tests you need and not wait 10 years!
USA is the richest 3rd world country
American taxpayers money goes everywhere in the world except its own citizens. Our healthcare system is overwhelmed by non citizens that don’t pay, it’s out of control what’s going on.
Oh please, you must be a Republican. Your contributions outside are a minuscule number of your GDP. Your healthcare is not overwhelmed by non-citizens, it’s overwhelmed by lobbyists of Big Pharma and Insurance companies that don’t want to see their grotesque profits affected by universal healthcare. @@aniello4633
What a fantastic story!! Thank you for sharing your journey. Sending love, light and prayers to you and your family 💕
What a beautiful lady! Thank you for sharing such a traumatic experience!
I live in a third world country called Paraguay. I went to the proctologist and said: I just poop blood.
After a quick check he said: colonoscopy. No cancer was found, only polyps.
In India , which is a third world country we can get CT scan , colonoscopy , endoscopy or any test done whenever we want . That’s such a blessing and it’s not expensive too .
@chumkibasuroy817 Long live TWC.
You were so encouraging! So glad it all worked out ! No colonoscopy bags…. You just never know what God will do. And that pic of the baby looking at you is priceless.❤
So sorry for the things that you went through and that you were dismissed before! :( I’m so happy that the new drug worked for you and that you don’t have cancer anymore! 🙏🏼❤️
I feel rotten, brain fog, tiredness anf headaches, I poo a dozen times a day, I've got a new 2 inch round lump in my lower abdomen, that why I'm here.
Here goes> "Can I make an appointment please?"
Your video is so helpful to everyone.
What a pretty girl, you are. Thank you for sharing your story. I have recently been diagnosed with the same cancer, in the exact same place. I'm experiencing the same symptoms, etc.. Life has been a whirl-wind of procedures and appointments for several weeks...that in itself has been a little overwhelming at times. I have a consultation coming up on August 12th, and my treatments will begin some time after that. It will consist of a combination of radiation and chemo for 6 weeks, and once the radiation part is complete, the chemo will continue for an additional 3 weeks (if i remember correctly). Then, possible surgery after that. Your story has given me hope...thank you, and all the best to you!
I'm so sorry you went through this, at a time in your life when you should be enjoying motherhood and your sweet baby 🩷
I'm going through something right now where i am scared to go ask. I kniw i don't feel right. Im having migraines, pain pushing down on my rectum randomly. Intolerable pain. My son only has me. I'm glad you popped up on my feed. You are encouraging
I want to encourage you to go to a doctor. A huge weight will be lifted off of your shoulders. You have done tough things in the past and you can do this! You won’t regret it. ( and many feels as you do so you aren’t alone❤️)
🙏❤️
Please go see a GI Doctor. 🙏🏽 I was misdiagnosed for years. Has a hysterectomy in April 2023. Diagnosed with Stage 3 Colon C in Feb 2024. How did you not see anything a year earlier??? There is NO WAY!! Currently taking Chemotherapy. Keeping you lifted in my prayers 🙏🏽
So sad how some PCP’s or Doctors in general just brush off their patients. It just goes to show that individuals must ADVOCATE for themselves and be PERSISTENT. It might save your life. 🤦🏾
Blood in your stool is always alarming and has nothing to do with being 9 months pregnant... that does not compute. Thanks for sharing.😳
I sort of agree, yet internal hemorrhoids, which heavily pregnant women can be prone to, will likely cause bleeding.
Thank you so much for sharing your story. It has truly encouraged me to listen to my body!!
What is this treatment...thats amazing!! Praying for you❤
When you mentioned a sewer smell that hit me like a ton of bricks. I have smelled that several times! I wasn't sure where it was coming from and then I realized it came from me. Pretty scary. Doctors have been discounting me for years. Not even sure who to go to next. I'm beginning to think most doctors do that, not only from my own experience but he number of other patients reporting the same thing happening to them. It's no wonder so many people are sick and so many die because of late diagnoses. The medical system needs to train people alot better!
THANK YOU FOR SHARING YOUR JOURNEY WITH CANCER. YOU ARE A BEAUTIFUL LADY AND HAVE AN OPPORTUNITY TO HELP OTHERS BY DOING THIS VIDEO. I WILL HAVE TO LOOK AT YOUR SITE AND SEE YOUR NEWEST BABY....YOUR SON IS A DREAM CHILD...BEAUTIFUL LIKE HIS PARENTS. I SEND PRAYERS AND BLESSINGS FOR A WONDERFUL FULL LIFE.
Some doctors are disgusting how they brush off so many people’s symptoms and don’t look into things. It’s not fair at all. I need a new doc cos mine is not thorough at all. He is lazy. I’m sorry to hear about your diagnosis 😢
That baby at 26:12 is seriously cute 🥰 🚼 this was an amazing story to watch, thank you for sharing it ❤ I wish you well on your journey.
I’m surprised they didn’t pass it off as colitis. I’m so glad they found it and you fought so hard through it. I’ve had internal hemorrhoids 🤦🏻♀️ my mom is an Ostomy nurse and absolutely loves what she does. A friend of mine was just diagnosed with stage 4 colon cancer and it’s starting to spread.
I've got an ostomy myself. I wouldn't have made it if it wasn't for my wound care nurse!!!
A classic case of medical gaslighting. Absolutely disgusting
Kelly shared her story in such an authentic way. It's sad that her doctors originally didn't hear her pleas and perform further testing. But, it's amazing that experimental treatment worked for her!! Imagine all the lives that will be saved and the years of better quality time patients who are able to benefit from the medicine will see! And, all because Kelly and the other early patients were brave enough to take the leap of faith and try it.
It's touching that Kelly now sees the big picture and realized her newest baby will come (or maybe came! ) at the exact right time the baby was supposed to be here. Does Kelly have a social media page where we can learn more about her journey and the medication that worked for her?
@@JanJan-jx9ty Thank you!
Thank you so much for watching! The trial Kelly was on is Dostarlimab. Here is Kelly's full story: www.thepatientstory.com/patient-stories/colorectal-cancer/kelly-s/
I've had some weirdness I would say the last 6 months. Been working with my fiber and all that. What I'm concerned about now is if it is early stages, does anyone ever catch it? I don't have insurance. I have a couple of the symptoms including the funny smell suddenly coming on. But I've got polyps or hemorrhoids or something showing up also. My aunt died of colon cancer because she never told anyone until she was too late to save. I'm tempted to contact the cancer center first and work my way backwards but without insurance is there any hope? $7,000 to $9,000 deductible plus a monthly premium was more than I could do. I'm 62 years old so I just figured I would deal with it if something happened. I have a chance it's nothing and I have a chance of living if I catch it early enough but without insurance who's going to listen to me? I have launched my 4 kids and all are living their lives with their families. I thought this was my time to Blossom. I will get out on the website but I would welcome any First Steps advice from anyone. Raising four kids over 40 years you have a lot of contact with medical issues Plus friends and church family. This is different and it's that knowing that something's not right that is so scary. I would love to get your favorite resource for my situation. Thanks for reading
@@HopeWins777 Please consider googling to see where there are free cancer screenings near you. In my state, there is a health center that treats patients without insurance, that provides preventative tests and then, if someone does need further care; they help them apply for free insurance. Have you ever applied for insurance under your state's Medicaid program? I know able bodied, working adults who qualify based on income. One of my friends thought that she wouldn't qualify, but she did. Maybe there is a program in your area that you would qualify for. You are also near the age that your local council on aging might be able to assist you. Sending you gentle hugs.
@@HopeWins777 First, so sorry to hear that you seem to be going through this alone. We have worked with great colorectal cancer groups like Imerman Angels who will match you to a mentor, someone whose been through a similar situation. Here is their info: imermanangels.org/ .. Hope that helps with a first step. -Stephanie
Oh, bless you girl🥰 no side effects is such a blessing….
Amazing lady. ❤ Thank you for sharing your journey
So you never had surgery? My son at 46 years old went through this 2 years ago…chemo, radiation, and colostomy bag. In 2022. Please let me know….he is a constant worry to me.
Smart that you took pictures!
I had abdominal pain, blood, fatigue. I was misdiagnosed for almost a year. I was 33 stage 3C
Thank you very much for your inspiring story which is sure to help many people fight their own battles.
Congratulations on your precious pregnancy and good health❤
Wow you are such a brave amazing woman! You’re an inspiration. Thank you for sharing
It's sad that doctors don't take patients seriously! I have UC and was first diagnosed with IBS. After moving, I had trouble finding a new GI and worry about cancer.
I hope you are ok and I cant even imagine living and getting sick in the USA
You’re sharing this will help save lives! You are so brave!!!!
I have a young friend about your age, Kelly, that had similar symptoms. Dismissing concerns seems to be the common denominator with young ppl getting these cancers. My young friend had her bowel, anus, vagina and all reproductive organs removed, and has a permanent ostomy. They were able to save her bladder. She had eggs frozen. I’m so thankful that this new treatment came at the perfect time. 🌻🌻🌻
Vagina removed??
What are the symptoms
Her vagina??? What do you mean? The birth canal?
How sad for your friend, altho it's great she still survived.
It’s not just young people mist docs could give a rats behind
Thanks for sharing your story.
How are you doing now ?? Would love a follow up .....
U knew...tried to tell over and over..how stressful and frustrating. Good luck to u.
I have only been seeing bright red blood in my stool. I googled what the causes could be, I saw colorectal cancer. I didn’t have stomach cramps before, but after I googled the symptoms of colorectal cancer and saw stomach aches, I immediately started having stomach aches. First I thought it was all in my head but I have had it for three days now. I am going to the ER tomorrow to insist on a colonoscopy.
I’m sorry you had to go through all this , and that’s what I tell everybody you know your own body ! Sending and saying prayers for you sweetie 🙏🏻🙏🏻🙏🏻🙏🏻
Thank God you’re feeling better. God bless you.
I’m an ER Dr, and blood in your stool unless caused by hemorrhoids is definitely abnormal. Was it bright red or black in color.? A sigmoidoscopy and colonoscopy should’ve been done to either rule in or out the diagnosis of internal hemorrhoids. I’m so sorry that they brushed you off. They were guessing at the diagnosis, and I feel that is malpractice for sure. I practice medicine completely differently. I always rule out the most serious diagnosis first,then move along to the less serious ones. For eg if a 50 yr old comes in with severe back pain, I have to rule out an aortic aneurysm first. Acute anxiety could be from tachycardia, thyroid storm, an adrenal tumor or other cardiovascular abnormality , all of which need to be ruled out (based on an algorithm) before settling on a dx of panic attack. That’s the way all doctors should approach a patient’s symptoms. A thorough history is invaluable. Always get more second and third opinions if you are having unusual symptoms. Internal hemorrhoids do MOT cause the symptoms you were having (except the bleeding). So happy there was no metastasis. Lab work will not help in your situation. Anemia postpartum is common, so that wouldn’t have raised an alarm. But the weight loss, constipation, and abdominal pain should have been enough to do the GI work-up. What’s the name of the drug? And was it squamous cell or adenocarcinoma?
@@Pkeats817 Did your symptoms resolve? Or did somebody jiggle out the problem? Pelvic exam? Ultrasound? Hormone replacement therapy? Lab work including thyroid?
@@Pkeats817 if you have no faith n your doctor, you should switch And for sexual dysfunction, ask about a testosterone cream preparation to apply around the vulva, but that can make the skin thin and dry which happens anyway after menopause. Whenever you are feeling like you’re not being heard or that caregivers are being dismissive, go somewhere else. Those people should not be in the health care profession.
Totally agree with your post. It baffles me that she got diagnosed with hemorrhoids without actually having anyone do a physical exam. Rectal bleeding calls for a visit to a GI specialist. Before Colonoscopy, they can do a rectoscopy for instance, which is what I had with similar symptoms. It took maybe 10 min, not more. It went about 20 cm and it did diagnose hemorrhoids and anal fissures which was actually why I was bleeding. This would’ve been a regular GI check. I’m truly shocked no one thought of sending this girl to a REAL doctor. I had to have a Colonoscopy in my early twenties due to Constipation , that required a bit more prep but It is something they do everyday. I am actually thinking of repeating it 10 years later because I’ve been having tummy cramps and a soft very often for the past year which is not the norm for me. My doctor says it’s probably IBS because I do have days when it’s normal, but I’d rather have it checked.
@@Kitten9011 Yes, but remember, IBS is also a guess, and that diagnosis falls into the basket of “the least serious answer”. I always practice medicine by ruling out the most serious cause for symptoms first. That doesn’t mean indiscriminate testing, though. It’s just that I consider aortic aneurysm rupture before I call severe back pain a lumbar strain, or heart palpitations are coming from a serious arrhythmia rather than a panic disorder etc.
@@kkdoc7864 thanks for your answer, it’s why I’ve asked to have a Colonoscopy first and then I’ll accept the IBS diagnosis if that comes clear. I’ve had a Rectoscopy done quite fast so can’t complain about that. I’m based in Poland and usually it is not difficult to get a referral for a specialist or a procedure like Colonoscopy. The waiting time could be long though. Privately it wouldn’t cost more than 200-300$ so it’s still doable.
My mom was told she had a cyst for three years! New doc immediately sent her to get colonoscopy. Stage 4 metastatic cancer. Last month she had surgery and a 90 minute chemo wash. She has no evidence of disease! As close as it comes to cured. She’s 80 years old and has many more years ahead of her!
I can’t say enough good things about Oregon health sciences university and Dr Sood! And it was all covered by Medicare
This is amazing! If you and your mom are up for sharing your story, please email us at alexis@thepatientstory.com and stephanie@thepatientstory.com.
Wow good for her for being so positive and optimistic but its crazy how her first thought was having another baby when she was literally given a terminal disease diagnosis. I would be struggling with that and my only thought would be fighting for my life and survival and being there for my first born child but she did say she kind of didnt even fully process it so it maybe never fully hit her but im wishing her all the good health and a long life to be there for her babies.
Wishing you the best and congratulations!
My youngest niece lost her battle at 40 yrs old with Stage 4 Colon Cancer, after being ignored at the ER when she went in repeatedly. They just said she was Constipated each time. While that could've been excused the 1st time or 2, when she went back Repeatedly they...they Should've done Extensive Testing, Xrays, CTs, MRIs, etc to determine WHY she was supposedly Constipated!! She too was just married, pg with her youngest of 4, & ended up going thru SYNTHETIC CHEMICALS "treatments", making her life & that of her family Miserable for years!!
Now, her children are left without their Mom!!!
I heard a very wise piece of advice, when you go to any healthcare facility, make sure they note your symptoms and what you were told at that facility.
Its sad to see how much the patient has to convince the doctors to get things checked. If there is one thing I am super proud about my country, is the access to medical facilities and very less waiting time.
And I am glad you are fine and happy now !!
What country…so we can move there ❤
Congratulations on your new baby!!!
I know a very similar story as far as someone being dismissed by the ER doctor when they went in with a whole array of symptoms. The ER doctor was dismissive and condescending, seemed to think he was all knowing. I try to give the ER Dr leeway, even despite how my relative was treated. ER Drs aren't necessarily trained up enough to recognize cancer in a CT scan. Sadly. But it doesn't help when they bring too much hubris to the situation and can't say something simple like "we aren't equipped to diagnose this kind of issue in an ER"... My relative had a long road to travel before they finally got access to a specialist who could properly diagnose the situation.