It Started with a Rash - Emily | Acute Myeloid Leukemia | The Patient Story

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  • Опубліковано 30 січ 2025

КОМЕНТАРІ • 315

  • @CarolWalker-q1w
    @CarolWalker-q1w Рік тому +370

    This was me nine years ago. I have now been fully discharged, no more blood tests☺️ I hope my recovery gives you positivity in your journey Emily.

    • @brigitnunez6735
      @brigitnunez6735 11 місяців тому +15

      All good wishes for your future

    • @CarolWalker-q1w
      @CarolWalker-q1w 11 місяців тому

      @@brigitnunez6735 Thank you x

    • @kylieharrison3782
      @kylieharrison3782 11 місяців тому +10

      You are amazing Emily. Thank you for sharing your journey with me. ❤

    • @sallyrenata1409
      @sallyrenata1409 11 місяців тому +7

      I can’t thank you enough for sharing this. I just happened upon this, but you never know how this info about the symptoms will help someone else. Even your statement about how people noticed you didn’t look like yourself is helpful. People tend to just suck it up and keep going - but they shouldn’t. Thank goodness that small clinic doctor moved quickly! May you be cancer free forever.

    • @theemilytan
      @theemilytan 11 місяців тому +3

      🥰@@kylieharrison3782 thank you, Kylie!

  • @ashebw
    @ashebw 11 місяців тому +114

    Emily speaks so elegantly and beautifully about her experience. She broke it down to where everyone could understand and was so honest in her testimony. So much love to her

    • @theemilytan
      @theemilytan 11 місяців тому +3

      Thank you for sending love 💛

    • @odettec1
      @odettec1 10 місяців тому +1

      I was just about to write the similar words. xx

    • @theemilytan
      @theemilytan 10 місяців тому +1

      @o.6775 virtual hug 🌸

    • @withOphelia
      @withOphelia 5 місяців тому

  • @retrievermom1521
    @retrievermom1521 6 місяців тому +49

    I’m a 40 year survivor of stage 3b Hodgekin’s disease. Diagnosed in 1984.
    I was the 9th person to have a bone marrow transplant in 1986 in a Vancouver,BC. It’s hard to believe I’m still here & I can say I’m a 40 survivor this year, in November.
    I’m happy you’re a survivor of the unimaginable.

  • @richardhutchison3123
    @richardhutchison3123 11 місяців тому +109

    Emily I have AML and was diagnosed at age 64. I am now one month from that being two years ago. My head won't let go of the fear that this will kill me. I am not doing well about getting out and exercising. I found so much of what you said enlightening. To know that you are still here after five years is wonderful. Pray for me in Nashville, Tennessee.

    • @fabbi9548
      @fabbi9548 11 місяців тому +11

      Prayers for you, hang in there Richard ❤

    • @richardhutchison3123
      @richardhutchison3123 11 місяців тому +4

      @@fabbi9548 Thank you so much!

    • @lailabelle1029
      @lailabelle1029 11 місяців тому +4

      Prayers for you, sir❤❤

    • @marlenedeblasio2881
      @marlenedeblasio2881 11 місяців тому +6

      The LORD will guide you through I'm, and l will pray for you .

    • @janoraj4667
      @janoraj4667 11 місяців тому +6

      wish you all the best, stay strong and enjoy every day, we all might die tomorrow as far as we know so we have to live our lives to the fullest!

  • @MrZimmmy
    @MrZimmmy 3 місяці тому +5

    Hi Emily, l listened to your journey with leukemia (October 2024) and was impressed with your determination to manage each medical challenge you faced during your 30s! You expressed your journey well in words and told the listener about the highs and lows you endured as well as your remarkable ability to express the beauty of your human form in space and time. I hope the doctors have been able and willing to say you are “cancer-free” or “in remission.”

    • @theemilytan
      @theemilytan 2 місяці тому

      Hey @MrZimmy 👋 I appreciate you taking the time to share this, and sharing a slice of your encouraging energy. I wish you the best as well in health and wealth, which, health IS wealth ❤

  • @garyrosenthal5766
    @garyrosenthal5766 11 місяців тому +21

    For those of you who are able, please consider donating platelets. Cancer patients need lots of them.

  • @caroldenyer3948
    @caroldenyer3948 Рік тому +40

    Wow Emily ...you've been through a battle e.g. multiple bone marrow aspirations, gruelling anaphylaxis, host versus graft reaction. Emily you are a warrior and your resilience is all testimony to your fitness and mindfulness. As a fellow Cancer survivor -
    thank you for sharing your story.

    • @theemilytan
      @theemilytan 11 місяців тому +2

      It sounds like you're no stranger to gruelling battles yourself, Carol A privilege to hear from you and may you continue to be a light for others 😊

    • @caroldenyer3948
      @caroldenyer3948 11 місяців тому +1

      I Cancer coach now...and writing a book on Self Advocacy.

  • @alexa-e5b6r
    @alexa-e5b6r 10 місяців тому +30

    Emily, I work in oncology and I so appreciate the explanation of your personal experience. It will help me in my interaction with people going through cancer treatments.
    So happy you are doing so well !!

    • @theemilytan
      @theemilytan 6 місяців тому +2

      that is encouraging to hear! thank you for your ultimate care for people like us just trying to get through things and feeling just a little less lost 🫶🌸

  • @dennissantana3722
    @dennissantana3722 9 місяців тому +7

    Emily thank you for sharing your journey with us.

  • @KC-hk6rj
    @KC-hk6rj Рік тому +49

    Emily, you are blessed with being very well-spoken. Explaining the tests and the therapy you had to have with such poise is greatly admired. You have a very loving support circle which makes you blessed twofold. My very best to you!

    • @theemilytan
      @theemilytan 11 місяців тому +1

      My 12 year old self probably wouldn't believe it, since having to work on articulating with confidence when I moved to the US at that age 😆 Thank you for your encouragement! All the best to you too!

  • @jweno
    @jweno 10 місяців тому +24

    I’m going through treatment for AML in Canada right now and thankfully I was diagnosed in the emergency room and started treatment a week later. I have good mutations (no FLT3, no NPM1) so my prognosis is very positive and lower risk. When I did the first round of chemo I got a fungal infection that landed me in the icu and I almost died. Everyone’s experience is so different. I just found out that I don’t need a bone marrow transplant and am super grateful as it’s a very intensive treatment with lots of risk. I have one more round of chemo and then I will be considered in remission and can move on with my life. This is a scary thing to experience and you’re so strong!

    • @ArtU4All
      @ArtU4All 10 місяців тому +4

      God bless you🙏
      May you have strength and endurance 🌿🌹
      May you be surrounded by Love ❤
      Let the illness leave you• for good •

    • @AS-yz2iz
      @AS-yz2iz 8 місяців тому +2

      Praying for your health. My son was diagnosed with AML at 19. He was put in the moderate risk category. He had so much cancer in his blood, they didn't even have to do a bone marrow biopsy for diagnosis. No negative mutations, but his WBC count was almost 200k at diagnosis and he had CSF involvement. They started treatment the day after he arrived in the ER. He is now 5 years post diagnosis, married with a child. He also did not require a stem cell transplant.

    • @MsLovehurts1234
      @MsLovehurts1234 8 місяців тому

      How are you doing now

    • @jweno
      @jweno 8 місяців тому

      Mostly good. Chemo destroys your body so starting the long road to recovery. Grateful to be alive.

  • @AnneMarieBibby1966
    @AnneMarieBibby1966 Рік тому +78

    I couldn't imagine being sick and having a language barrier.
    Amazing strong young lady, much love from a grandma in Massachusetts ❤

    • @lynnthomas5795
      @lynnthomas5795 11 місяців тому +3

      And a grandma in West Virginia.

    • @theemilytan
      @theemilytan 11 місяців тому +4

      This means more than you know 💛 Thank you, Grandma.

    • @theemilytan
      @theemilytan 11 місяців тому

      @lynnthomas5795 💛💛 Thank you too, Grandma in WV!

    • @AnneMarieBibby1966
      @AnneMarieBibby1966 11 місяців тому +1

      @theemilytan
      Always remember we are strong because of the foundation we are built from. I truly believe we can accomplish anything if our foundation is strong. You were put in an extremely trying situation, and you prevailed. You found your way through! I'm so very proud of you! You're an amazing young lady. I will continue praying for you. Much love - Massachusetts Grandma ❤️🙏

    • @katherinekramer7102
      @katherinekramer7102 10 місяців тому +2

      Yes very difficult when sick with language barrier like me😢. I always have half time to understand the doctor, I’m so glad that I have my husband always take me to the doctor 🙏🏽

  • @jmnightingale9055
    @jmnightingale9055 10 місяців тому +13

    Thanks for sharing. Your experiences really sound similar to mine, though I am a 66 year-old male in Texas, 64 at the time of diagnosis. Two years ago I was diagnosed with high risk AML, having the MECOM mutation, requiring immediate chemo and an allogeneic Stem Cell Transplant, which I received at M D Anderson in Houston. Your chemo schedule sounded pretty similar to mine, both before and during the Stem Cell hospitalization, which lasted for four weeks. Your bowel problems from the chemo sounded almost exactly the same as mine. I also had antihistamine drugs before my platelet transfusions, which I needed almost every day for two weeks or so. I had no problems with the hemoglobin transfusions, which I also needed almost every day during that same period.
    Not too long ago I had my 18 month post-transplant bone marrow biopsy and it was all clear, and my oncologist is pretty confident that I am almost completely out of the woods.
    I wish you the best of luck and a long life ahead!

    • @gdiup9241
      @gdiup9241 5 днів тому

      My SO had allogenic stem cell at methodist in hou, similar reactions. Now 13 years post.

  • @Emma-Rose
    @Emma-Rose Рік тому +27

    This was one of the most informative cancer patient talks. Thank you 🙏 may I wish you good health and prosperity for your future xx

    • @caroldenyer3948
      @caroldenyer3948 Рік тому +3

      Agreed....has endowed the community with such a sense of mindfulness to know when alarm bells should ring. It always helps if you are super fit - re alerting your own internal surveillance but unfortunately works against with the medical profession.

    • @PraveenSrJ01
      @PraveenSrJ01 Рік тому +1

      Thank you 🙏

    • @richardhutchison3123
      @richardhutchison3123 11 місяців тому +2

      @Emma-Rose: you are spot on about her talking points!!!!! :)

    • @theemilytan
      @theemilytan 11 місяців тому +1

      This is encouraging, Emma-Rose. It helps remind me of the reason why I choose to share knowledge and experience, especially on days where I feel low. Thank you 💛🌱

  • @kathleenryan8545
    @kathleenryan8545 5 місяців тому +2

    Emily is one VERY VERY strong woman! Her positive attitude is why she is a survivor!

  • @alanrivas6259
    @alanrivas6259 11 місяців тому +69

    My wife was diagnosed with leukemia in September 2022 while she was 12 weeks pregnant. It was the worst news I have ever received in my life. My wife underwent 180 chemotherapies after the birth of my son, he was born, thank God, well.🙏🙏🙏🙏🙏

    • @joriejay7950
      @joriejay7950 10 місяців тому +10

      confusing comment

    • @jweno
      @jweno 10 місяців тому +3

      180?????

    • @alanrivas6259
      @alanrivas6259 10 місяців тому +2

      @@joriejay7950 what is the confusion?

    • @alanrivas6259
      @alanrivas6259 10 місяців тому +2

      @@jweno Yes, my wife had chemotherapy on Monday to Friday for 6 months.

    • @ggrace1133
      @ggrace1133 10 місяців тому +10

      How is she doing? Hope she’s in full remission forever and your little son is thriving.

  • @kristinadelossantos8049
    @kristinadelossantos8049 6 місяців тому +14

    My sister in law died of this cancer in just 6 months after being diagnosed. I didn't know people could get better from this cancer. Her doctor delayed having the chemo. She said that the patient was not in her best nutrition, she cannot eat or keep anything down. They didn't do anything to address the problem. The patient was just told to eat but the problem is, she can't eat.

  • @dianavanderclute4322
    @dianavanderclute4322 Рік тому +30

    Many of us with rare or chronic illnesses wait years to get correctly diagnosed or to get treatment. It sounds like you might have been better to get care while away....they diagnosed you so quickly and your treatment started right away! Yes, closing eyes really helps!!! Sorry you still struggle from the test.....hip might have worse because you use that joint/muscles more. Wow. You went through a lot, and bravely!!! Praying you stay well and physically strong!

    • @theemilytan
      @theemilytan 11 місяців тому +1

      I feel for you there. I know several people experiencing rare and chronic illnesses and have heard their struggles and despair. It almost seemed natural that many dive into specialities like Functional Medicine, because they couldnt' find the support they needed. I hope better support surface for you as you continue on this chapter with courage and grace ✨🌱

  • @lj9524
    @lj9524 11 місяців тому +24

    Emily, Thank you so much for sharing your journey! I too am a cancer survivor since 2009. You are an intelligent, strong, beautiful and amazing young woman. You are an inspiration to more people than you will ever realize. You are amazing…peace and blessings to you and your loved ones! 🙏❤️

    • @richardhutchison3123
      @richardhutchison3123 11 місяців тому +1

      @lj9524 The same to you! Everyone who lives past the 5 year time frame that shows that 80% of the AML patients die from the day that they are diagnosed deserves to shout out the Living "Time frame" that they are still here after 5 years!

    • @theemilytan
      @theemilytan 11 місяців тому +1

      I can tell from your comment that you are a lifter... a People Lifter! ✨😍 Your inner circle is lucky to have you. Thank you for spreading such lovely motivation, fellow thriver-who-tackled-cancer!

    • @theemilytan
      @theemilytan 11 місяців тому

      @richardhutchison3123 💯

  • @rheaharrington8585
    @rheaharrington8585 5 місяців тому +4

    Emily, thank you so much for sharing your story. I was diagnosed with CML (chronic myeloid Leukemia) but I went into blast phase with several mutation. Our stories and symptoms are so similar in many ways. I am a white female and my 100% marrow match was an Eastern European man. I had two different chemo treatment before I went into remission so I could have the transplant. My third chemo was with the transplant. I have had 10 bone marrow biopsies, months of blood and platelets (before transplant) and a bunch of strange stuff while healing from my transplant. My journey started in 4years and 7 months ago and I am 2 years and 7 months from my transplant and still here. I was strong, positive and took one day at a time. But the last 8 months I feel like it's more mental then physical for me. I have to start over with everything and thats one step at a time. I am sending you a great big hug, you are a warrior, keep smiling and continue your journey!!

    • @theemilytan
      @theemilytan 2 місяці тому +1

      Rhea, you’ve hit the nail on the head there on the challenge wave now reaching the banks of mental resilience 💪 💓 your body and soul went through so much, offering an abundance of opportunities to practice grit and discipline - I sense that you are a human of fortitude, and I wish you grace and compassion to tie this chapter in holistically ❤

    • @rheaharrington8585
      @rheaharrington8585 2 місяці тому

      @@theemilytan So very kind thank you!!

  • @gdiup9241
    @gdiup9241 5 днів тому

    Emily, glad you are past the 'rough road', thx for sharing the rough parts and the part about having your mom there. You look great and so strong again.

  • @anakirola9204
    @anakirola9204 10 місяців тому +6

    You went through so much and were so brave. Thank God You had your family was there to support u. You truly are an inspiration and a healer. God Bless You.

  • @lydialee5444
    @lydialee5444 11 місяців тому +8

    You’re such a strong woman Emily. So glad that you’re on the way to recovery . I myself was a cancer survivor too and positive mindset really help even people or drs say no cure. Just continue with your great positive attitude and with the love and support of your family. I’m sure you are on your way to being cancer free. Will say a prayer for u . God bless!

    • @theemilytan
      @theemilytan 11 місяців тому

      Hear hear! It may sound cliche to some about leading with a positive attitude but it is something that you can fully lean into when adversities present as opportunities. Hope you are well and healthy in your life after cancer, Lydia 💛✨🌱

  • @Nurse67
    @Nurse67 Рік тому +18

    Excellent presentation of your journey. You are strong both mentally and physically . May your health continue on a path of wellness

    • @theemilytan
      @theemilytan 11 місяців тому

      Thank you for this 🙌 My path indeed continues on in the realm of health, a key aspect of wellness map. I wish you wealth of health and strength too 😀

  • @vedales8670
    @vedales8670 11 місяців тому +6

    Life is so precious. It needs to be lived like that EVERYDAY! Your spirit is beautiful. The universal holy spirit is with you. So happy to know you are doing so much better.

    • @theemilytan
      @theemilytan 11 місяців тому

      RIGHT!? Love the all caps energy right up my alley 😂 May you continue to have precious days there!

  • @bekahelder537
    @bekahelder537 10 місяців тому +1

    I’m in the middle of this video and just want to say I hope you are doing better and beating this illness!!! I saw a shirt I liked “Cancer sucks in every color” and had all the different colored cancer ribbons. ❤❤❤

  • @brigitnunez6735
    @brigitnunez6735 11 місяців тому +9

    Wow amazing lovely lady so brave. Huge thank you for sharing. All good wishes for your future health and happiness.

    • @theemilytan
      @theemilytan 11 місяців тому

      Thank you for your wonderful wishes! May you receive blessings of joy and play coming your way too ✨😀

  • @preese100
    @preese100 Рік тому +19

    Very detailed and informative video. Thanks for the strength in sharing!

    • @theemilytan
      @theemilytan 11 місяців тому

      Thank you for watching! If it can help just one person feel heard and connected, it's worth the effort. 💛

  • @jennifermckeown7093
    @jennifermckeown7093 11 місяців тому +17

    I’m in remission from AML 5 years ago. I was so blessed to have had a random blood test for a medication I was prescribed that caught my leukemia. My dr told me had I not had this random testing on my blood, I would’ve not made it 2 weeks! Unfortunately, the reason I stumbled upon this video is because I suspect relapse! I have the rash which really stood out yesterday. Looking back, however, I’ve had terrible deep-almost-like-bone pain in my upper arm that’s been persistent for over 3 months now and I’ve been chalking it up to being 55 years old. Also, I look almost ashen but again, I haven’t been sleeping well due to my arm pain. And the usual fatigue but heck everyone feels tired for one reason or another! So, I’m calling my oncologist today and will request an appointment for blood work and examination of my rash (which does not go away when pressing clear glass against marks which could be an indicator of “something’s off”.
    I wish everyone well! We are warriors in love, family and friendship! God Bless. 🎗️

    • @richardhutchison3123
      @richardhutchison3123 11 місяців тому +2

      @jennifermckeown7093 Thank you for sharing your story. My skin looks very bad also. But the main factor is you and myself are still alive to tell our story! Praise God!!!!

    • @theemilytan
      @theemilytan 11 місяців тому +3

      Sometimes things unfold in a way that truly stops us in our tracks and look at things with perspective, and dare I say sparked by your own wisdom Hope things went smoothly for you after the call with your onco, and you got what you needed! ✨

    • @30daysorless8
      @30daysorless8 10 місяців тому +2

      I wish you well.

  • @Sabrina-LosAngeles
    @Sabrina-LosAngeles Рік тому +15

    Thank you for sharing your story. Your incredible physical and mental strength must be a tremendous asset in your healing journey. Truly remarkable - also great to call out the balance between eastern and western medicine - I think both have their time and place. Much continued health ~

    • @deedt8279
      @deedt8279 Рік тому

      NO ONE TALKS ABOUT - 1] what happens down the years with those hard medications. 2] Currently doctors’ practices changed to be standard typical treatments which they apply to every patient - They themselves do not know how to think outside the box. Which is harming so many people? 3] Many agriculture and meat contains Pesticides and now-a-days these type of things diseases like cancer and dementia, muscular, Tendonitis etc. are popping up like popcorn. Nobody is taking any action against those people who are providing these foods in market. Those who get the diseases - they get occupied with their internal health issues so their ability to fight gets limited with outside world. Those who survives for little longer they will think I have just touched near death experiences so let me live my life to fullest and matter for original cause of problems are not address. IN NJ they have found 500 plus cases of dementia in kids. Those kids parents should take action . This has become a game and for some doctors a play book game. I guess that is why they call they are practicing on you. At cost of your health they are practicing on you. 4] IT shocks me when doctors tell that all medicine has side effects and if you do not follow the rules which they created they cannot help. Clearly they do not want to think outside the box. 4] Radiation has so much issues with it - while taking even if you breathe it changes the position and wrong side get radiation - which means if you have on left side under you heart - your heart muscle can get damaged. Why can not do Open surgery to burn the lump or tumor etc....Why they are risking patients life to get damaged to other organs. WHY???? They are brain washing you with each medicine they put out in market - So pharma co makes profit at cost of your health.

    • @theemilytan
      @theemilytan 11 місяців тому +1

      Thank you for your message! It's so nice to hear that resonates - on the blend between eastern and western medicine. We don't have to accept things in a binary manner and to quote Bruce Lee "Absorb what is useful, discard what is useless and add what is specifically your own” 😃

  • @judi7282
    @judi7282 Рік тому +17

    What an inspiration you are. I pray that God keeps you healthy. Thank you for sharing your cancer story🙏✝️❤️

    • @theemilytan
      @theemilytan 11 місяців тому

      Thank you! I wish you a wealth of health too 🌱😀

  • @louellenstevens501
    @louellenstevens501 Рік тому +8

    Thank you for sharing. It is so important for people to know they can have hope .

  • @noelstaar
    @noelstaar 10 місяців тому +2

    super confident speaker and so detailed. very inspiring

  • @len6871
    @len6871 Рік тому +15

    @ 20' a bone marrow donor... thinking of YOU.
    So bless.. this person. Who thinks of others going trough a horrific extaction...jusst for 'others' lke you. Out of goodness of their will.
    Bless this person. Their is a person that is willing to help you. Name that person.

    • @richardhutchison3123
      @richardhutchison3123 11 місяців тому +2

      @ 20' I would like to say a huge THANK YOU for your uplifting! I'll say a few prayers for you for going through the Bone Marrow Extraction, I have so many nurses on different "teams. They remember me but I can't remember all of their names.

    • @theemilytan
      @theemilytan 11 місяців тому +1

      Bone marrow donors indeed deserve all the gratitude they get. Often times, no one even knows who has been donating since the patients are not allowed to know their donors identity in the first 1-2 years. Even more challenging when they are from a different country! Here's to all bone marrow donors! 🎉💛

    • @ArtU4All
      @ArtU4All 10 місяців тому +2

      @@theemilytan
      To all people who share of themselves and give life 🙏🌿🌹🙏❤🙏

  • @michelles9897
    @michelles9897 Рік тому +17

    💟 so nicely presented. thank you Emily.

  • @janetbuder6066
    @janetbuder6066 5 днів тому

    Thank you for all your information. I learned so much about the process and dude effects. You look beautiful and sound strong. Your hair has grown so much in 5 years! So glad you're doing well. Appreciate your sharing!

  • @4Dangert
    @4Dangert 11 місяців тому +11

    What a beautiful, life- affirming spirit Emily is! Thank you for sharing and God bless you.

    • @theemilytan
      @theemilytan 11 місяців тому

      May you be blessed with beautiful life and spirit too! ✨💛

  • @ElephantsRock19
    @ElephantsRock19 Рік тому +21

    Thank you for sharing your journey! It especially warmed my heart when you talked about how touch is great therapy, so glad your Mom was there for you to do the massage, nothing better than a Mother's touch!
    ❤✋🤚🪽 Prayers for your continued healing! 🕊️🙏❤️🕯️

    • @theemilytan
      @theemilytan 11 місяців тому +1

      Dude, I didn't expect to feel choked up upon reconnecting with that memory. It helped me remember the pure love that flourished during that chapter. Thank you for touching on this ✨🌻

    • @ElephantsRock19
      @ElephantsRock19 11 місяців тому

      🕊️🙏❤️🕯️​@@theemilytan

    • @ElephantsRock19
      @ElephantsRock19 11 місяців тому

      🤗🕊️🙏❤️🕯️​@@theemilytan

  • @suebehr507
    @suebehr507 10 місяців тому +1

    Emily-You are an amazing woman!! I’m so glad you’re continuing to get your health back and I wish you many blessings!

  • @anemariecappelletti1625
    @anemariecappelletti1625 6 місяців тому +1

    Thank you for sharing your journey. This gives us positive feedback and hope.
    Truly blessed to be able to succumb this horrible disease. Hope you continue to stay well!

  • @deborahnava2732
    @deborahnava2732 11 місяців тому +6

    Wow. This was the most impactful communication I’ve seen thus far
    Thank you for sharing so intimately!

  • @mars6447
    @mars6447 5 місяців тому +1

    Emily god with you and so happy for you share your story with world I’m sure someone going thru same and u just inspired them ❤you not alone, your love , everyone listen to your body when you feel different. God bless you Emily

  • @monicaelias3224
    @monicaelias3224 5 місяців тому +1

    Praying for all those who are in great sufferings that God's hands will be upon all of you giving you comfort, peace and love.. n most of all giving courage and strength to face realities. Love n prayers.. Grndma frm Sabah, East Malaysia

  • @symptomoftheuniverse3862
    @symptomoftheuniverse3862 10 місяців тому +2

    You my dear are a wonderful human. I too had a life altering experience, I had the same mindset as you and most of all I had a doctor who cared. I still have him and look forward to every check up.

  • @mamasscreamlicious5827
    @mamasscreamlicious5827 10 місяців тому +1

    Thank you for sharing your journey. You are an incredible inspiration for all of us. May God bless you and may you have many years of joy and happiness ahead of you.

  • @katalinaradi7472
    @katalinaradi7472 Рік тому +7

    Very nice interview, thank you for sharing your story ❤️

  • @levanhunts
    @levanhunts 9 місяців тому +9

    Emily, you are an inspiration. I am currently going through the process of finding a diagnosis for my symptoms that I fear are due to leukemia. For several months now my white blood cell count has been high, I’ve been having severe night sweats, many of the same symptoms as you, and now I am getting the pinpoint “rash” appearing on my arms and legs. I think that the main thing that bothers me the very most, if in fact I do get diagnosed with leukemia, is that I no longer have my mom to be here with me. She passed away in July of 2023.😭
    I have many chronic illnesses, 3 of which are rare diseases with no cure and it’s been incredibly difficult not having my mom. I’m starting to wonder how much more I can take?
    I’m grateful to you for sharing your story which has given me an idea of what could possibly be to come. You are a strong woman! Thank you, and best wishes in all you do.🙏🏻💜

    • @theemilytan
      @theemilytan 6 місяців тому +3

      Gosh, that's a lot to go through. You're being incredibly strong and brave to supply yourself with knowledge and connection in whatever way possible. I really hope your medical team is able to help you to their best ability. I'm sure your mom would be so very proud of you, your capabilities, and the tenacity you've needed to cultivate over the years. Keep at it ❤‍🔥Keep taking back control of your health.

  • @joheron6227
    @joheron6227 9 місяців тому +2

    Hi Emily.
    First thank you for such a detailed recount of your cancer journey. It has provided me with understandable information, calm and focus as I await testing. Your information is a God send. I wish you a long, healthy and happy life. Thank you.

    • @theemilytan
      @theemilytan 6 місяців тому

      I appreciate you gifting your attention, and I wish you the very best in this chapter of awaiting testing + hoping for the most positive outcome possible + receiving extra boost of strength and grace in whatever it is to come ❤‍🔥

  • @lizafield9002
    @lizafield9002 Рік тому +11

    Well done. Bless her, she's heroic.

    • @deedt8279
      @deedt8279 Рік тому

      NO ONE TALKS ABOUT - 1] what happens down the years with those hard medications. 2] Currently doctors’ practices changed to be standard typical treatments which they apply to every patient - They themselves do not know how to think outside the box. Which is harming so many people? 3] Many agriculture and meat contains Pesticides and now-a-days these type of things diseases like cancer and dementia, muscular, Tendonitis etc. are popping up like popcorn. Nobody is taking any action against those people who are providing these foods in market. Those who get the diseases - they get occupied with their internal health issues so their ability to fight gets limited with outside world. Those who survives for little longer they will think I have just touched near death experiences so let me live my life to fullest and matter for original cause of problems are not address. IN NJ they have found 500 plus cases of dementia in kids. Those kids parents should take action . This has become a game and for some doctors a play book game. I guess that is why they call they are practicing on you. At cost of your health they are practicing on you. 4] IT shocks me when doctors tell that all medicine has side effects and if you do not follow the rules which they created they cannot help. Clearly they do not want to think outside the box. 4] Radiation has so much issues with it - while taking even if you breathe it changes the position and wrong side get radiation - which means if you have on left side under you heart - your heart muscle can get damaged. Why can not do Open surgery to burn the lump or tumor etc....Why they are risking patients life to get damaged to other organs. WHY????

    • @GinaSherman-gc2cx
      @GinaSherman-gc2cx Рік тому +2

      She is angel , god bless 😊❤

    • @theemilytan
      @theemilytan 11 місяців тому

      Still kickin and living in the best way I know how 😆 all we ever hope for, eh? 🎉

    • @lizafield9002
      @lizafield9002 10 місяців тому +1

      @@theemilytan Yes, totally relate. Unseen battlefields & the hard effort to stay in molecule land & not die yet, develop a strange, strong independence that isn't visible & opens up the vast world of souls & God & huge love of all.

  • @JerseyLynne
    @JerseyLynne 10 місяців тому +1

    Thank you for sharing your story in such a lovely way, I was very succinct and easy to follow. This was a sudden diagnosis. I wondered how that was for you. Good family support!

    • @JerseyLynne
      @JerseyLynne 10 місяців тому

      do you have your own channel?

  • @Lesbonbons
    @Lesbonbons 10 місяців тому +1

    Thank you for sharing your story.

  • @leehedderwick3399
    @leehedderwick3399 10 місяців тому +1

    An inspirational testimony and so well presented 👌 you are a strong lady with a positive outlook ❤may you be healthy now 🙏

  • @marciawright2600
    @marciawright2600 5 місяців тому +1

    What a beautiful being! 💫

  • @rosemariebenson3720
    @rosemariebenson3720 5 місяців тому +1

    Awesome lecture! Very well explained. TY and Good Luck throughout your long life !

  • @itechfive240
    @itechfive240 10 місяців тому +2

    God bless you and your story.

  • @monicalararodriguez2594
    @monicalararodriguez2594 Рік тому +6

    Thank you for sharing your story. God bless you 🙌🏼

  • @nurdanlane6201
    @nurdanlane6201 11 місяців тому +5

    Emily you are so lucky you were in Europe to be diagnosed since here it would taken months and months to be diagnosed.. Happy to hear you are fully recovered. Have a long great life🙏🙏😍 My husband has multiple myeloma and they used hammer to process Bone Marrow Biopsy in Las Vegas..😪Lucky he is getting treatment at UCSF now and they do not use hammer here

  • @endodenise2090
    @endodenise2090 10 місяців тому +1

    You are a very brave and admirable person.

  • @Heidi-u4f
    @Heidi-u4f 3 місяці тому

    She’s so beautiful and she really smile with her eyes, beautiful

  • @hollehpazouki7623
    @hollehpazouki7623 5 місяців тому +1

    Best wishes to you, thx for telling ur story

  • @Will-si5ps
    @Will-si5ps 10 місяців тому +25

    My friend has acute meyloid leukemia. She was diagnosed with this type of cancer 5 years ago. Without chemotherapies or any type of medical treatment, which she couldn't afford, she is still alive today with high dosage vitamin C IV every week and a healthy diet of garlic, ginger, broccoli and lots of fruits. In addition to AML, she also suffers from hyperthyroidism and cardiomegaly.

    • @名氏无-j5g
      @名氏无-j5g 10 місяців тому +2

      One traditional classic formula could boost immunity. Lamb/ ginger/angelica sinensis, no side effects

    • @heide-raquelfuss5580
      @heide-raquelfuss5580 7 місяців тому

      Me too.
      Acute leucemia.
      Cured myself at home.
      I think i had enlarged heard, because my heart was working overtime, fighting to stay alive while fighting. A depletion of vitamins, minerals, fats, proteins can cause am enlarged heart> aka heartfailure ( my hypothesis ).
      Red meat, organs...fatty fish, organic eggs every day to strengthen your body and heart.
      Vitamin C ( YES ).
      Many things i did based on a book, written by a man who had terminal prostate cancer ( no doctor wanted to treat him> only 3 weeks to live ).
      So he starting reading books like crazy and wrote his own book, with what he found that cured him. Other health issues can be eased, cured also. Plus some changes you need to do in diet and avoid any vaccinations, other meds...

    • @coolio1
      @coolio1 6 місяців тому

      I'd love to hear her exact mutations and diet? 'can you provide more information?

  • @cognacsable-wb8dw
    @cognacsable-wb8dw 9 місяців тому +2

    Wishing you love and light. May God protect you.

    • @theemilytan
      @theemilytan 6 місяців тому +1

      Love and light wishes right back at ya 💛 🫶

  • @luv2learn995
    @luv2learn995 10 місяців тому +1

    Such a journey. Brave, brave lady.

  • @JennaCalifornia
    @JennaCalifornia 10 місяців тому +9

    So happy you were able to have the bone marrow transplant!!
    My father died from cancer when I was 8. He was supposed to get a bone marrow transplant and went through all the prep, had the donor, etc. At the last moment insurance said they wouldn’t cover the procedure. He fought them and won, but by the time they approved it, the window to have the procedure had passed. He didn’t make it and it may have been because of that. We sued the insurance company but lost. He was even on 60 minutes before he died. I always wonder if things would have different if he’d been able to have the procedure. Good ol Health insurance!

    • @gaillessard2786
      @gaillessard2786 10 місяців тому +3

      I'm sorry, that's awful. Yes, I'd always wonder as well.

    • @fluffyclouds555
      @fluffyclouds555 10 місяців тому +1

      Sorry you went through this ❤

  • @monarosaart
    @monarosaart 10 місяців тому +2

    I did a lot of bone marrow extract from the pelvic bones .
    Doing it from the sternum was never a choice .
    It is an easy to do for us doctors but also for
    the patient as well. Wish you all the best ❤

  • @rosaa658
    @rosaa658 Рік тому +4

    Emely thank you 🙏🏿 for sha your story , you’re a true warrior . And I love ❤️ how you explained everything you went through , and all the bone 🦴 aspirations you went through, bad reactions & belly pain . I learned so much from your story , I wish you good health . And it’s amazing how athletic you are , and it was so nice . To have your parents , family by your side . And like you said the human touch & cuddles 🥰, from your parents helped you a lot !
    And of course your friends , and glad that your dad asked questions. Because I heard from other patients, it’s good to have a loved 🥰 one with you & you can also ask your Doctor . To please allow to record ,the audio . Just in case you forget something important , not only that but to review it yourself .
    In case you might be groggy 🥴 or drugged , that you might not be able to remember . Sending you lots of prayers & a big bear 🐻 , virtual hug 🤗 !
    🥰❤️🙏🏿🤗❤️🙏🏿🥰🤗❤️

    • @theemilytan
      @theemilytan 11 місяців тому

      So many good points! I was indeed very lucky to have had my dad arrive the next day and friends who could help with the language barrier. at least now I'll never forget how to say 'pain' and 'fever' in Spanish! Also, I think having permission to film in hospitals and clinics vary with staff. It doesn't hurt to ask! ✨ Sending you love and light too, Rosaa!

  • @BeeeHonest
    @BeeeHonest 11 місяців тому +1

    I wish you well and a complete recovery.

  • @judyh5052
    @judyh5052 10 місяців тому +2

    God bless you, will pray for your good health.

  • @mycaravanoflife
    @mycaravanoflife 10 місяців тому +1

    I’m sorry to hear what you had to go through and thank you for sharing.❤

  • @00ARYA00
    @00ARYA00 10 місяців тому

    Thanks so much for sharing your journey with leukemia. 🤗❤

  • @KiKi70236
    @KiKi70236 11 місяців тому +17

    I was just diagnosed in October of 2023. I have a bad mutation along with other health issues so even though I’m 65 I opted for hospice.

    • @ChrissieSM
      @ChrissieSM 11 місяців тому +7

      Praying for you.

    • @ArtU4All
      @ArtU4All 10 місяців тому +5

      May the power of life be with you.
      May the inevitable be merciful.
      May the gentlest healing forces come to your journey.
      🙏✨🌿🌹🙏

    • @myriamtouil3347
      @myriamtouil3347 10 місяців тому

      Love you ❤❤❤

    • @19th-Nervous-Breakdown
      @19th-Nervous-Breakdown 4 місяці тому +1

      My father decided against chemotherapy too. He was told that he was incurable and decided to just let the cancer run its course. He died at 68.

  • @TheDAT573
    @TheDAT573 11 місяців тому +4

    My mother was diagnosed with multiple myeloma 5/1990. She had a hip bone marrow extraction, it was very painful for her. She died 12/8/1992.

    • @dawnskeete1102
      @dawnskeete1102 11 місяців тому +1

      😢 sorry to hear we never truly get over it. Praying was my staple. Around the same time i was diagnosed. We lost her in 99. Thought's are with everyone but you find peace once you know what your fighting. Mindfulness is very important

    • @kandacepatterson7965
      @kandacepatterson7965 10 місяців тому

      Why cant they sedate you for the extraction??? I dontunderstand.

    • @davewagner5408
      @davewagner5408 7 місяців тому

      I have gone through 2 bone marrow biopsies. They're not exactly painful,but it is an extremely uncomfortable experience. It is not pleasant.

  • @yvonnetengen158
    @yvonnetengen158 11 місяців тому +3

    You're amazing! Blessings and prayers!

  • @coolio1
    @coolio1 6 місяців тому +1

    My sister was 21 when she got diagnosed with aml high risk. She got a bone marrow (stem cell) transplant and is still thriving at 26! There's videos of her on UA-cam as well ❤

  • @nereida116
    @nereida116 18 днів тому

    Thank you for your strength and courage in giving us your patient testimony. I admire your gumption!🥰 January 2025.

  • @Yazzie101
    @Yazzie101 10 місяців тому

    Very good video and wishing you good health in the future 🙏

  • @HLJlovejoy
    @HLJlovejoy 10 місяців тому +1

    Beautiful testimony ❤

  • @jenniferfinch8929
    @jenniferfinch8929 10 місяців тому

    Thank you for sharing your journey. ❤

  • @ArtU4All
    @ArtU4All 10 місяців тому +2

    Emily…❤🙏
    What a masterfully told story of a fight.
    No matter how much love is given by the loved ones, or compassion by the clinicians, or support by the friends… The Battle Field has the One Fighter, The Cancer Fighter living through the barrage of treatments and side effects and the losses and the trade-offs….🥺
    Emily
    you have told your story with such power and poignancy ❤
    Profound gratitude to you for your openness and positivity.
    Your spirit is light and generous. Your life is giving and affirming 🌿🌳🌹🙏🌿🌳🌲

  • @roxananunez4238
    @roxananunez4238 4 місяці тому +1

    God continue blessing ❤beautiful girl 😪🙏

  • @steinervision7643
    @steinervision7643 10 місяців тому

    You are an inspiration , keep up your health training!

  • @michelegawrys7286
    @michelegawrys7286 11 місяців тому +2

    Positive thoughts for you Emily!!

  • @cascabcs
    @cascabcs 10 місяців тому

    May you heal completely.

  • @carefulconsumer8682
    @carefulconsumer8682 11 місяців тому +1

    Thank you, Emily.

  • @user-wb2yv7ll9d
    @user-wb2yv7ll9d 11 місяців тому +4

    Thanks for sharing your story. If I may ask, how did you handle having health care coverage in Spain? Or was the treatment done in a different country?

    • @theemilytan
      @theemilytan 11 місяців тому +3

      Luckily, I bought private health insurance before I moved to Spain. It's actually one of the requirements to obtain a residence visa in Spain as a foreigner. When I continued treatments in Hong Kong, I had the option for public healthcare but since my insurance coverage includes Hong Kong, I was able to get the major procedures covered. If you travel a lot or live abroad throughout several countries, I suggest looking into global insurance coverage!

  • @freqeist
    @freqeist Рік тому +15

    my cousin fell over at home hurt hi back and coughing.. his son called the ambulance they came, took him in and he was diagnosed with Leukemia, they gave him 4 months he died in two just before Christmas 2023

  • @pourquoipas971
    @pourquoipas971 6 місяців тому +1

    Facing a life threatening disease, we are powerless! That is very difficult especially for «controlling »and very active personality ! It is a little like if our body is not our’s anymore…you are very strong , young lady. Let your emotion come out. I wish you the best for i hope, a very long and beautiful life. Pascale, from France

  • @maw6456
    @maw6456 10 місяців тому +2

    I'm on my fourth round and mary j fixed my stomach issues, and able to eat❤ I wish I had done it from the beginning ❤❤❤

  • @nereida116
    @nereida116 18 днів тому

    Loving Sincere Physical Touches should be a crucial part of healing.

  • @taradoma
    @taradoma Рік тому +4

    God bless you Emily 🤗

  • @debcarr
    @debcarr Рік тому +2

    What an amazing human.

  • @pennycandyys
    @pennycandyys 10 місяців тому

    I think maybe you’re referring to a lacrimal gland and duct. I hope this finds you well. You are a strong woman. Thanks for sharing your story with us. ❤️

  • @ingridkiss3402
    @ingridkiss3402 Рік тому +5

    Quite a difference being diagnosed in US/UK vs Europe. Matter of years in the former and hours in the latter. Suppose having petechiae did raise an alarm but still. I wish you the very best!

    • @susie2251
      @susie2251 11 місяців тому

      If you have leukemia in the US, the same treatment would happen. It doesn’t help to lie or exaggerate. If you were sick with leukemia, you would end up in the ER and treated immediately. AML is lethal and fast moving. You would be dead in days so the idea you think treatment wouldn’t start for years is laughable.

    • @theemilytan
      @theemilytan 11 місяців тому

      That's what I've heard and read when I was looking up facts and evidence around AML! I think this is why sharing your experience and your advocacy journey can be incredibly helpful for others in giving them ideas on how to advocate for themselves too. Thank you for bringing this up - I wish you the best too ✨💛

    • @30daysorless8
      @30daysorless8 10 місяців тому +1

      So true.

  • @TheLizmac99
    @TheLizmac99 11 місяців тому +1

    so proud of u

  • @larryvermeer6170
    @larryvermeer6170 11 місяців тому

    Good afternoon ate emily
    Thanks 🙏 again 😊❤ and mabuhay to

  • @maryhe2053
    @maryhe2053 2 місяці тому +1

    Hi Emily what's the causes of your aml. All the best to you.

  • @kathryneast6919
    @kathryneast6919 11 місяців тому

    My brother was diagnosed with AML at 73 and despite treatment he died 7 months after diagnosis.

  • @splash6427
    @splash6427 10 місяців тому +1

    🙏 ❤️ 🙏
    For You & All

  • @vanessaleong1081
    @vanessaleong1081 11 місяців тому +4

    Hi Emily , how long does the nosebleed last? Is it like 10 min or less than that or longer than that?

    • @theemilytan
      @theemilytan 11 місяців тому +3

      Hey Vanessa! They varied. Sometimes it was a trickle and done, sometimes I need to attend to it for a solid 15 minutes and pivot from what I'm doing... like lifting heavy 😅

  • @MOAB-UT
    @MOAB-UT Рік тому +17

    How is Emily doing today? Does she have a channel- last name? She is very strong. Her fitness must have helped her. Strong body, strong mind.

    • @theemilytan
      @theemilytan 11 місяців тому +12

      Hello Utah100! What a lovely message! I am here and doing as well as I can back in Spain 😁 I do have a channel which I hope to build as a space for fellow cancer folks, as well as offer insight that might be helpful in rebuilding a life, without cancer or after cancer. You're right - years of strength training and movement explorations have helped me develop skills that transfer out of the gym... and into the hospital room lol.

    • @MOAB-UT
      @MOAB-UT 11 місяців тому +2

      @@theemilytan I am glad you are doing well. That is a lot to deal with. I think it helped you were not just physically, but mentally very resilient. How do you feel these days? I am really into nutrition and some excercise (ran 11.5 mph the other day.) Not bad for an older dude. The mind part is big- having hope and something to live for. You should read Man's Search for Meaning one day. Great book that talks about this.
      Stay well- Subscribed!

    • @theemilytan
      @theemilytan 10 місяців тому +2

      @@MOAB-UT Sounds like you're on a good running streak for wholesome longevity! :D Thanks for the book rec and thanks for asking - I've been feeling closer to harmony amidst the hustle of ambitions :)

    • @MOAB-UT
      @MOAB-UT 10 місяців тому +2

      @@theemilytan Glad you are doing well. Yeah- I dig on reading and playing music every day...and spoil my pup. Life is too short to not do what you love.
      Stay well!