It Started with a Rash - Emily | Acute Myeloid Leukemia | The Patient Story
Вставка
- Опубліковано 14 січ 2024
- Emily shares before her leukemia diagnosis, she started experiencing random nosebleeds, even during exercise. But she chalked it up to overworking and lack of sleep. She then started feeling fatigued and a loss of appetite and a persistent fever and body rash. She finally went to the emergency room, and testing ultimately confirmed her diagnosis of acute myeloid leukemia.
Full story & transcript → thepatientstory.com/patient-s...
SIGN UP FOR OUR FREE newsletter to stay informed, inspired and connected on your journey against cancer 👉 tinyurl.com/23ua4mww
🔔 SUBSCRIBE TO OUR CHANNEL!: Stay updated with the latest inspiring stories of cancer patients, empowering information, and support.
Like The Patient Story on Facebook: / thepatientstory
Follow The Patient Story on Instagram: / thepatientstory
Follow The Patient Story on Twitter: / patient_story
Follow The Patient Story on Tik Tok: / patientstory
#AML #LivingWithAML #thepatientstory #leukemia #leusm #patientstories #cancerstories #cancerpatient #cancersurvivor #bloodcancer #AMLawareness #AMLstories
This was me nine years ago. I have now been fully discharged, no more blood tests☺️ I hope my recovery gives you positivity in your journey Emily.
All good wishes for your future
@@brigitnunez6735 Thank you x
You are amazing Emily. Thank you for sharing your journey with me. ❤
I can’t thank you enough for sharing this. I just happened upon this, but you never know how this info about the symptoms will help someone else. Even your statement about how people noticed you didn’t look like yourself is helpful. People tend to just suck it up and keep going - but they shouldn’t. Thank goodness that small clinic doctor moved quickly! May you be cancer free forever.
🥰@@kylieharrison3782 thank you, Kylie!
My wife was diagnosed with leukemia in September 2022 while she was 12 weeks pregnant. It was the worst news I have ever received in my life. My wife underwent 180 chemotherapies after the birth of my son, he was born, thank God, well.🙏🙏🙏🙏🙏
confusing comment
180?????
@@joriejay7950 what is the confusion?
@@jweno Yes, my wife had chemotherapy on Monday to Friday for 6 months.
How is she doing? Hope she’s in full remission forever and your little son is thriving.
Emily speaks so elegantly and beautifully about her experience. She broke it down to where everyone could understand and was so honest in her testimony. So much love to her
Thank you for sending love 💛
I was just about to write the similar words. xx
@o.6775 virtual hug 🌸
Emily I have AML and was diagnosed at age 64. I am now one month from that being two years ago. My head won't let go of the fear that this will kill me. I am not doing well about getting out and exercising. I found so much of what you said enlightening. To know that you are still here after five years is wonderful. Pray for me in Nashville, Tennessee.
Prayers for you, hang in there Richard ❤
@@fabbi9548 Thank you so much!
Prayers for you, sir❤❤
The LORD will guide you through I'm, and l will pray for you .
wish you all the best, stay strong and enjoy every day, we all might die tomorrow as far as we know so we have to live our lives to the fullest!
I couldn't imagine being sick and having a language barrier.
Amazing strong young lady, much love from a grandma in Massachusetts ❤
And a grandma in West Virginia.
This means more than you know 💛 Thank you, Grandma.
@lynnthomas5795 💛💛 Thank you too, Grandma in WV!
@theemilytan
Always remember we are strong because of the foundation we are built from. I truly believe we can accomplish anything if our foundation is strong. You were put in an extremely trying situation, and you prevailed. You found your way through! I'm so very proud of you! You're an amazing young lady. I will continue praying for you. Much love - Massachusetts Grandma ❤️🙏
Yes very difficult when sick with language barrier like me😢. I always have half time to understand the doctor, I’m so glad that I have my husband always take me to the doctor 🙏🏽
Emily, I work in oncology and I so appreciate the explanation of your personal experience. It will help me in my interaction with people going through cancer treatments.
So happy you are doing so well !!
Wow Emily ...you've been through a battle e.g. multiple bone marrow aspirations, gruelling anaphylaxis, host versus graft reaction. Emily you are a warrior and your resilience is all testimony to your fitness and mindfulness. As a fellow Cancer survivor -
thank you for sharing your story.
It sounds like you're no stranger to gruelling battles yourself, Carol A privilege to hear from you and may you continue to be a light for others 😊
I Cancer coach now...and writing a book on Self Advocacy.
I’m going through treatment for AML in Canada right now and thankfully I was diagnosed in the emergency room and started treatment a week later. I have good mutations (no FLT3, no NPM1) so my prognosis is very positive and lower risk. When I did the first round of chemo I got a fungal infection that landed me in the icu and I almost died. Everyone’s experience is so different. I just found out that I don’t need a bone marrow transplant and am super grateful as it’s a very intensive treatment with lots of risk. I have one more round of chemo and then I will be considered in remission and can move on with my life. This is a scary thing to experience and you’re so strong!
God bless you🙏
May you have strength and endurance 🌿🌹
May you be surrounded by Love ❤
Let the illness leave you• for good •
My friend has acute meyloid leukemia. She was diagnosed with this type of cancer 5 years ago. Without chemotherapies or any type of medical treatment, which she couldn't afford, she is still alive today with high dosage vitamin C IV every week and a healthy diet of garlic, ginger, broccoli and lots of fruits. In addition to AML, she also suffers from hyperthyroidism and cardiomegaly.
One traditional classic formula could boost immunity. Lamb/ ginger/angelica sinensis, no side effects
Many of us with rare or chronic illnesses wait years to get correctly diagnosed or to get treatment. It sounds like you might have been better to get care while away....they diagnosed you so quickly and your treatment started right away! Yes, closing eyes really helps!!! Sorry you still struggle from the test.....hip might have worse because you use that joint/muscles more. Wow. You went through a lot, and bravely!!! Praying you stay well and physically strong!
I feel for you there. I know several people experiencing rare and chronic illnesses and have heard their struggles and despair. It almost seemed natural that many dive into specialities like Functional Medicine, because they couldnt' find the support they needed. I hope better support surface for you as you continue on this chapter with courage and grace ✨🌱
Emily, you are blessed with being very well-spoken. Explaining the tests and the therapy you had to have with such poise is greatly admired. You have a very loving support circle which makes you blessed twofold. My very best to you!
My 12 year old self probably wouldn't believe it, since having to work on articulating with confidence when I moved to the US at that age 😆 Thank you for your encouragement! All the best to you too!
Thank you for sharing. It is so important for people to know they can have hope .
May you heal completely.
💟 so nicely presented. thank you Emily.
Thank you, Emily.
I’m sorry to hear what you had to go through and thank you for sharing.❤
Thank you for sharing your story.
Thank you for sharing your story. God bless you 🙌🏼
I wish you well and a complete recovery.
What an amazing human.
so proud of u
Thank you for sharing your journey. ❤
Very nice interview, thank you for sharing your story ❤️
super confident speaker and so detailed. very inspiring
Such a journey. Brave, brave lady.
I was just diagnosed in October of 2023. I have a bad mutation along with other health issues so even though I’m 65 I opted for hospice.
Praying for you.
May the power of life be with you.
May the inevitable be merciful.
May the gentlest healing forces come to your journey.
🙏✨🌿🌹🙏
❤
Love you ❤❤❤
Beautiful testimony ❤
You are an inspiration , keep up your health training!
God bless you Emily 🤗
God bless you and your story.
You're amazing! Blessings and prayers!
You went through so much and were so brave. Thank God You had your family was there to support u. You truly are an inspiration and a healer. God Bless You.
Positive thoughts for you Emily!!
You are a very brave and admirable person.
I’m in the middle of this video and just want to say I hope you are doing better and beating this illness!!! I saw a shirt I liked “Cancer sucks in every color” and had all the different colored cancer ribbons. ❤❤❤
You my dear are a wonderful human. I too had a life altering experience, I had the same mindset as you and most of all I had a doctor who cared. I still have him and look forward to every check up.
Thanks for sharing. Your experiences really sound similar to mine, though I am a 66 year-old male in Texas, 64 at the time of diagnosis. Two years ago I was diagnosed with high risk AML, having the MECOM mutation, requiring immediate chemo and an allogeneic Stem Cell Transplant, which I received at M D Anderson in Houston. Your chemo schedule sounded pretty similar to mine, both before and during the Stem Cell hospitalization, which lasted for four weeks. Your bowel problems from the chemo sounded almost exactly the same as mine. I also had antihistamine drugs before my platelet transfusions, which I needed almost every day for two weeks or so. I had no problems with the hemoglobin transfusions, which I also needed almost every day during that same period.
Not too long ago I had my 18 month post-transplant bone marrow biopsy and it was all clear, and my oncologist is pretty confident that I am almost completely out of the woods.
I wish you the best of luck and a long life ahead!
Thanks so much for sharing your journey with leukemia. 🤗❤
my cousin fell over at home hurt hi back and coughing.. his son called the ambulance they came, took him in and he was diagnosed with Leukemia, they gave him 4 months he died in two just before Christmas 2023
Oh my goodness ❤😔
Sorry for your loss.
😢😢
Emily, Thank you so much for sharing your journey! I too am a cancer survivor since 2009. You are an intelligent, strong, beautiful and amazing young woman. You are an inspiration to more people than you will ever realize. You are amazing…peace and blessings to you and your loved ones! 🙏❤️
@lj9524 The same to you! Everyone who lives past the 5 year time frame that shows that 80% of the AML patients die from the day that they are diagnosed deserves to shout out the Living "Time frame" that they are still here after 5 years!
I can tell from your comment that you are a lifter... a People Lifter! ✨😍 Your inner circle is lucky to have you. Thank you for spreading such lovely motivation, fellow thriver-who-tackled-cancer!
@richardhutchison3123 💯
I’m in remission from AML 5 years ago. I was so blessed to have had a random blood test for a medication I was prescribed that caught my leukemia. My dr told me had I not had this random testing on my blood, I would’ve not made it 2 weeks! Unfortunately, the reason I stumbled upon this video is because I suspect relapse! I have the rash which really stood out yesterday. Looking back, however, I’ve had terrible deep-almost-like-bone pain in my upper arm that’s been persistent for over 3 months now and I’ve been chalking it up to being 55 years old. Also, I look almost ashen but again, I haven’t been sleeping well due to my arm pain. And the usual fatigue but heck everyone feels tired for one reason or another! So, I’m calling my oncologist today and will request an appointment for blood work and examination of my rash (which does not go away when pressing clear glass against marks which could be an indicator of “something’s off”.
I wish everyone well! We are warriors in love, family and friendship! God Bless. 🎗️
@jennifermckeown7093 Thank you for sharing your story. My skin looks very bad also. But the main factor is you and myself are still alive to tell our story! Praise God!!!!
Sometimes things unfold in a way that truly stops us in our tracks and look at things with perspective, and dare I say sparked by your own wisdom Hope things went smoothly for you after the call with your onco, and you got what you needed! ✨
I wish you well.
@ 20' a bone marrow donor... thinking of YOU.
So bless.. this person. Who thinks of others going trough a horrific extaction...jusst for 'others' lke you. Out of goodness of their will.
Bless this person. Their is a person that is willing to help you. Name that person.
@ 20' I would like to say a huge THANK YOU for your uplifting! I'll say a few prayers for you for going through the Bone Marrow Extraction, I have so many nurses on different "teams. They remember me but I can't remember all of their names.
Bone marrow donors indeed deserve all the gratitude they get. Often times, no one even knows who has been donating since the patients are not allowed to know their donors identity in the first 1-2 years. Even more challenging when they are from a different country! Here's to all bone marrow donors! 🎉💛
@@theemilytan
To all people who share of themselves and give life 🙏🌿🌹🙏❤🙏
Emily thank you for sharing your journey with us.
For those of you who are able, please consider donating platelets. Cancer patients need lots of them.
God bless you, will pray for your good health.
Emily you are so lucky you were in Europe to be diagnosed since here it would taken months and months to be diagnosed.. Happy to hear you are fully recovered. Have a long great life🙏🙏😍 My husband has multiple myeloma and they used hammer to process Bone Marrow Biopsy in Las Vegas..😪Lucky he is getting treatment at UCSF now and they do not use hammer here
Emily-You are an amazing woman!! I’m so glad you’re continuing to get your health back and I wish you many blessings!
An inspirational testimony and so well presented 👌 you are a strong lady with a positive outlook ❤may you be healthy now 🙏
Wishing you love and light. May God protect you.
Very detailed and informative video. Thanks for the strength in sharing!
Thank you for watching! If it can help just one person feel heard and connected, it's worth the effort. 💛
This was one of the most informative cancer patient talks. Thank you 🙏 may I wish you good health and prosperity for your future xx
Agreed....has endowed the community with such a sense of mindfulness to know when alarm bells should ring. It always helps if you are super fit - re alerting your own internal surveillance but unfortunately works against with the medical profession.
Thank you 🙏
@Emma-Rose: you are spot on about her talking points!!!!! :)
This is encouraging, Emma-Rose. It helps remind me of the reason why I choose to share knowledge and experience, especially on days where I feel low. Thank you 💛🌱
Hi Emily.
First thank you for such a detailed recount of your cancer journey. It has provided me with understandable information, calm and focus as I await testing. Your information is a God send. I wish you a long, healthy and happy life. Thank you.
Emely thank you 🙏🏿 for sha your story , you’re a true warrior . And I love ❤️ how you explained everything you went through , and all the bone 🦴 aspirations you went through, bad reactions & belly pain . I learned so much from your story , I wish you good health . And it’s amazing how athletic you are , and it was so nice . To have your parents , family by your side . And like you said the human touch & cuddles 🥰, from your parents helped you a lot !
And of course your friends , and glad that your dad asked questions. Because I heard from other patients, it’s good to have a loved 🥰 one with you & you can also ask your Doctor . To please allow to record ,the audio . Just in case you forget something important , not only that but to review it yourself .
In case you might be groggy 🥴 or drugged , that you might not be able to remember . Sending you lots of prayers & a big bear 🐻 , virtual hug 🤗 !
🥰❤️🙏🏿🤗❤️🙏🏿🥰🤗❤️
So many good points! I was indeed very lucky to have had my dad arrive the next day and friends who could help with the language barrier. at least now I'll never forget how to say 'pain' and 'fever' in Spanish! Also, I think having permission to film in hospitals and clinics vary with staff. It doesn't hurt to ask! ✨ Sending you love and light too, Rosaa!
Thank you for sharing your journey. You are an incredible inspiration for all of us. May God bless you and may you have many years of joy and happiness ahead of you.
Excellent presentation of your journey. You are strong both mentally and physically . May your health continue on a path of wellness
Thank you for this 🙌 My path indeed continues on in the realm of health, a key aspect of wellness map. I wish you wealth of health and strength too 😀
Good afternoon ate emily
Thanks 🙏 again 😊❤ and mabuhay to
Well done. Bless her, she's heroic.
NO ONE TALKS ABOUT - 1] what happens down the years with those hard medications. 2] Currently doctors’ practices changed to be standard typical treatments which they apply to every patient - They themselves do not know how to think outside the box. Which is harming so many people? 3] Many agriculture and meat contains Pesticides and now-a-days these type of things diseases like cancer and dementia, muscular, Tendonitis etc. are popping up like popcorn. Nobody is taking any action against those people who are providing these foods in market. Those who get the diseases - they get occupied with their internal health issues so their ability to fight gets limited with outside world. Those who survives for little longer they will think I have just touched near death experiences so let me live my life to fullest and matter for original cause of problems are not address. IN NJ they have found 500 plus cases of dementia in kids. Those kids parents should take action . This has become a game and for some doctors a play book game. I guess that is why they call they are practicing on you. At cost of your health they are practicing on you. 4] IT shocks me when doctors tell that all medicine has side effects and if you do not follow the rules which they created they cannot help. Clearly they do not want to think outside the box. 4] Radiation has so much issues with it - while taking even if you breathe it changes the position and wrong side get radiation - which means if you have on left side under you heart - your heart muscle can get damaged. Why can not do Open surgery to burn the lump or tumor etc....Why they are risking patients life to get damaged to other organs. WHY????
She is angel , god bless 😊❤
Still kickin and living in the best way I know how 😆 all we ever hope for, eh? 🎉
@@theemilytan Yes, totally relate. Unseen battlefields & the hard effort to stay in molecule land & not die yet, develop a strange, strong independence that isn't visible & opens up the vast world of souls & God & huge love of all.
Wow. This was the most impactful communication I’ve seen thus far
Thank you for sharing so intimately!
I did a lot of bone marrow extract from the pelvic bones .
Doing it from the sternum was never a choice .
It is an easy to do for us doctors but also for
the patient as well. Wish you all the best ❤
Very good video and wishing you good health in the future 🙏
Thank you for sharing your story in such a lovely way, I was very succinct and easy to follow. This was a sudden diagnosis. I wondered how that was for you. Good family support!
do you have your own channel?
You’re such a strong woman Emily. So glad that you’re on the way to recovery . I myself was a cancer survivor too and positive mindset really help even people or drs say no cure. Just continue with your great positive attitude and with the love and support of your family. I’m sure you are on your way to being cancer free. Will say a prayer for u . God bless!
Hear hear! It may sound cliche to some about leading with a positive attitude but it is something that you can fully lean into when adversities present as opportunities. Hope you are well and healthy in your life after cancer, Lydia 💛✨🌱
Wow amazing lovely lady so brave. Huge thank you for sharing. All good wishes for your future health and happiness.
Thank you for your wonderful wishes! May you receive blessings of joy and play coming your way too ✨😀
So glad your doing bettter. You are beautful. 😇
Thank you for sharing your story. Your incredible physical and mental strength must be a tremendous asset in your healing journey. Truly remarkable - also great to call out the balance between eastern and western medicine - I think both have their time and place. Much continued health ~
NO ONE TALKS ABOUT - 1] what happens down the years with those hard medications. 2] Currently doctors’ practices changed to be standard typical treatments which they apply to every patient - They themselves do not know how to think outside the box. Which is harming so many people? 3] Many agriculture and meat contains Pesticides and now-a-days these type of things diseases like cancer and dementia, muscular, Tendonitis etc. are popping up like popcorn. Nobody is taking any action against those people who are providing these foods in market. Those who get the diseases - they get occupied with their internal health issues so their ability to fight gets limited with outside world. Those who survives for little longer they will think I have just touched near death experiences so let me live my life to fullest and matter for original cause of problems are not address. IN NJ they have found 500 plus cases of dementia in kids. Those kids parents should take action . This has become a game and for some doctors a play book game. I guess that is why they call they are practicing on you. At cost of your health they are practicing on you. 4] IT shocks me when doctors tell that all medicine has side effects and if you do not follow the rules which they created they cannot help. Clearly they do not want to think outside the box. 4] Radiation has so much issues with it - while taking even if you breathe it changes the position and wrong side get radiation - which means if you have on left side under you heart - your heart muscle can get damaged. Why can not do Open surgery to burn the lump or tumor etc....Why they are risking patients life to get damaged to other organs. WHY???? They are brain washing you with each medicine they put out in market - So pharma co makes profit at cost of your health.
Thank you for your message! It's so nice to hear that resonates - on the blend between eastern and western medicine. We don't have to accept things in a binary manner and to quote Bruce Lee "Absorb what is useful, discard what is useless and add what is specifically your own” 😃
Life is so precious. It needs to be lived like that EVERYDAY! Your spirit is beautiful. The universal holy spirit is with you. So happy to know you are doing so much better.
RIGHT!? Love the all caps energy right up my alley 😂 May you continue to have precious days there!
Thank you for sharing your journey! It especially warmed my heart when you talked about how touch is great therapy, so glad your Mom was there for you to do the massage, nothing better than a Mother's touch!
❤✋🤚🪽 Prayers for your continued healing! 🕊️🙏❤️🕯️
Dude, I didn't expect to feel choked up upon reconnecting with that memory. It helped me remember the pure love that flourished during that chapter. Thank you for touching on this ✨🌻
🕊️🙏❤️🕯️@@theemilytan
🤗🕊️🙏❤️🕯️@@theemilytan
My mother was diagnosed with multiple myeloma 5/1990. She had a hip bone marrow extraction, it was very painful for her. She died 12/8/1992.
😢 sorry to hear we never truly get over it. Praying was my staple. Around the same time i was diagnosed. We lost her in 99. Thought's are with everyone but you find peace once you know what your fighting. Mindfulness is very important
Why cant they sedate you for the extraction??? I dontunderstand.
So happy you were able to have the bone marrow transplant!!
My father died from cancer when I was 8. He was supposed to get a bone marrow transplant and went through all the prep, had the donor, etc. At the last moment insurance said they wouldn’t cover the procedure. He fought them and won, but by the time they approved it, the window to have the procedure had passed. He didn’t make it and it may have been because of that. We sued the insurance company but lost. He was even on 60 minutes before he died. I always wonder if things would have different if he’d been able to have the procedure. Good ol Health insurance!
I'm sorry, that's awful. Yes, I'd always wonder as well.
Sorry you went through this ❤
Emily…❤🙏
What a masterfully told story of a fight.
No matter how much love is given by the loved ones, or compassion by the clinicians, or support by the friends… The Battle Field has the One Fighter, The Cancer Fighter living through the barrage of treatments and side effects and the losses and the trade-offs….🥺
Emily
you have told your story with such power and poignancy ❤
Profound gratitude to you for your openness and positivity.
Your spirit is light and generous. Your life is giving and affirming 🌿🌳🌹🙏🌿🌳🌲
What an inspiration you are. I pray that God keeps you healthy. Thank you for sharing your cancer story🙏✝️❤️
Thank you! I wish you a wealth of health too 🌱😀
🙏 ❤️ 🙏
For You & All
I think maybe you’re referring to a lacrimal gland and duct. I hope this finds you well. You are a strong woman. Thanks for sharing your story with us. ❤️
What a beautiful, life- affirming spirit Emily is! Thank you for sharing and God bless you.
May you be blessed with beautiful life and spirit too! ✨💛
The entire process sounds horriffic. 😢 My mother was diagnosed with lukemia at age 80. She refused all treatments. She lived to 91 yrs oldin constant pain. ❤
How is Emily doing today? Does she have a channel- last name? She is very strong. Her fitness must have helped her. Strong body, strong mind.
Hello Utah100! What a lovely message! I am here and doing as well as I can back in Spain 😁 I do have a channel which I hope to build as a space for fellow cancer folks, as well as offer insight that might be helpful in rebuilding a life, without cancer or after cancer. You're right - years of strength training and movement explorations have helped me develop skills that transfer out of the gym... and into the hospital room lol.
@@theemilytan I am glad you are doing well. That is a lot to deal with. I think it helped you were not just physically, but mentally very resilient. How do you feel these days? I am really into nutrition and some excercise (ran 11.5 mph the other day.) Not bad for an older dude. The mind part is big- having hope and something to live for. You should read Man's Search for Meaning one day. Great book that talks about this.
Stay well- Subscribed!
@@UTAH100 Sounds like you're on a good running streak for wholesome longevity! :D Thanks for the book rec and thanks for asking - I've been feeling closer to harmony amidst the hustle of ambitions :)
@@theemilytan Glad you are doing well. Yeah- I dig on reading and playing music every day...and spoil my pup. Life is too short to not do what you love.
Stay well!
Quite a difference being diagnosed in US/UK vs Europe. Matter of years in the former and hours in the latter. Suppose having petechiae did raise an alarm but still. I wish you the very best!
If you have leukemia in the US, the same treatment would happen. It doesn’t help to lie or exaggerate. If you were sick with leukemia, you would end up in the ER and treated immediately. AML is lethal and fast moving. You would be dead in days so the idea you think treatment wouldn’t start for years is laughable.
That's what I've heard and read when I was looking up facts and evidence around AML! I think this is why sharing your experience and your advocacy journey can be incredibly helpful for others in giving them ideas on how to advocate for themselves too. Thank you for bringing this up - I wish you the best too ✨💛
So true.
I'm on my fourth round and mary j fixed my stomach issues, and able to eat❤ I wish I had done it from the beginning ❤❤❤
Thanks for sharing your story. If I may ask, how did you handle having health care coverage in Spain? Or was the treatment done in a different country?
Luckily, I bought private health insurance before I moved to Spain. It's actually one of the requirements to obtain a residence visa in Spain as a foreigner. When I continued treatments in Hong Kong, I had the option for public healthcare but since my insurance coverage includes Hong Kong, I was able to get the major procedures covered. If you travel a lot or live abroad throughout several countries, I suggest looking into global insurance coverage!
Youre great Emily. Can we follow you on social media? ❤️❤️❤️
Emily, you are an inspiration. I am currently going through the process of finding a diagnosis for my symptoms that I fear are due to leukemia. For several months now my white blood cell count has been high, I’ve been having severe night sweats, many of the same symptoms as you, and now I am getting the pinpoint “rash” appearing on my arms and legs. I think that the main thing that bothers me the very most, if in fact I do get diagnosed with leukemia, is that I no longer have my mom to be here with me. She passed away in July of 2023.😭
I have many chronic illnesses, 3 of which are rare diseases with no cure and it’s been incredibly difficult not having my mom. I’m starting to wonder how much more I can take?
I’m grateful to you for sharing your story which has given me an idea of what could possibly be to come. You are a strong woman! Thank you, and best wishes in all you do.🙏🏻💜
My brother was diagnosed with AML at 73 and despite treatment he died 7 months after diagnosis.
Very sorry for your loss....
You look like you’re 25!! All the best!
You made this turning-40-soon gal's day 😂 Thank you! May you be well and joyFULL too!
Which test people can do to check through blood?
I was diagnosed with CML at 67,,I am now 80. The first year was pretty awful.Lots of hip aspirations until I finally got so sick I developed pneumonia and was hospitalized.9 pints of blood and 4 platlets later I came back to life.I was put on the target drug Gleevec and have been on it ever since.Except for a 5 month trial off the medication I have continued to be in remission.There is no cure.Only constant check ups.
IMO - I will never have a bone marrow extraction without some form of conscious sedation. From everything I have researched it is potentially a very painful procedure. I am curious: why don't medical professionals readily offer the method as an an alternative to a local anesthetic?
3:00 ibuprofen also disturbs your sleep as well
Hi Emily , how long does the nosebleed last? Is it like 10 min or less than that or longer than that?
Hey Vanessa! They varied. Sometimes it was a trickle and done, sometimes I need to attend to it for a solid 15 minutes and pivot from what I'm doing... like lifting heavy 😅
21:52 I am that way!!
Which hospital did your transplant? Is that still in Spain?
Hey Tina! I was at Queen Mary Hospital in Hong Kong for the transplant. They have an entire unit dedicated for bone marrow transplants and recognized as a top facility in Asia, if you are considering seeking care in Asia. As for Spain, one of the top haematology specialist centers is La Fe in Valencia.
a strong woman ... i probably drop dead
Cancer doesn’t care how “fit” you are…..
Meh. If you have 100 fit people and 100 unfit people, there will be more unfit people developing the disease. Most cancers are in all of us from birth. The trick is to limit exposures to things that trigger it. Lifestyle, Diet, too much Sun, Drugs. Genetics play a role but less then many think. In her case, it likely played a bigger role. To suggest however that it does not matter how fit you are is misleading. Also, her fitness surely helped her to heal and handle chemo so I would say it really does matter your level of fitness. Now, can an elite, fit athlete die from cancer. Sure. Look at Patrick Swayze. That however is more the exception then the rule. Either way, it is safe to say Cancer Sucks and F*ck Cancer.
I hope you are fit and stay healthy.
Neither does tuberculosis.....
you looking amazing for 38, more like 28❤
Red dots without itch seems more alarming thn with right 😅
🙏🏽🙏🏽🙏🏽
did you take any of the covid vaccines? many had rash.
I had a brutal rash on elbows
This cancer killed my mom 😢
❤❤❤❤
I have nose bleeds red dots night sweats terrible itch can’t breathe but doctors don’t pay me any attention
Find a doctor who listens to you! It could be severe. See a doctor as soon as possible.
Please go to the ER ASAP!!!
Where do you live? Could be that.., healthcare can be better in other countries or areas
I agree with the others in this comment thread. Don't give up. Keep advocating for your health!
Please seek oncologist doctor
I pray that all your worries will be surrendered to GOD and that he will take care of it, AMEN! 🙏