Great work man. I'm 44 w/ PPMS, dx 2015. I'm embarrassed about my MS. I'll try to hide it and lots of times will attempt to do things when nobody is around.
Sorry about the PPMS, that's a rough one.. my favorite trick is pissing my pants uncontrollably, that's always a fun discussion starter. Ugh.. this disease!
I just subbed my friend. I was diagnosed 4 years ago at 48 yrs old, definitely not an easy disease to cope with, and nobody in my family gets it. I am pretty much immobile but they still think I am the person I used to be. I was always extremely active and helpful but now I'm totally changed. We are all learning together but at least I have remained incredibly positive considering. You are doing a great thing with your channel 👍🏼
Thank you bud! I get exactly what you are talking about. Your feedback is really inspiring and keeps me motivated. Kudos to the positivity, some days are soooo dang hard.
@NeuroNerdyX I just always am inspired by my household, best wide and kids ever, they saw me go from healthy to crippled up. They are my inspiration to keep going. They mean the world to me 👍🏼
Hello, I’m a new subscriber to your channel , This topic of communication between my doctor and myself was mostly my fault. Today was different, I decided to I was going to tell him every detail of what I’m experiencing which led to a much more thorough physical exam . He was very moved to find what changes I had been living with . I was diagnosed with Secondary Progressive M.S. today. It was my fault for some reason I kept my symptoms to myself , why you may ask ? Because I don’t like being weak or appearing to be weak to others . Very timely upload my friend 😉.
Thanks for the comment! That is great to hear. In a weird way, I feel like this disease exposes an inner strength we never knew we had. I love hearing about your journey and discovery!
@@NeuroNerdyX thank you very much. I appreciate that and I think that’s why we are empowered by other people who have the same disease as us. It helps us to know that there are others. I also feel like I’m very fortunate because I’ve had multiple sclerosis since I was 18 years old that’s 35 years where I basically got off really easy of course I lost my ability to count so I lost my ability to work, but that was even a blessing because I have been working since I was a kid Probably a little too much . I still consider myself blessed because at 54. It’s the first time I’ve ever actually felt like I’m disabled . Maybe it’s something to do with wanting to not let my doctor down? I don’t know who knows the psychology around it all I know so I fixed it. I told my doctor everything and now I’m going to an MS specialist at Barnes Jewish Hospital in St. Louis.
Great work man. I'm 44 w/ PPMS, dx 2015. I'm embarrassed about my MS. I'll try to hide it and lots of times will attempt to do things when nobody is around.
Sorry about the PPMS, that's a rough one.. my favorite trick is pissing my pants uncontrollably, that's always a fun discussion starter. Ugh.. this disease!
I just subbed my friend. I was diagnosed 4 years ago at 48 yrs old, definitely not an easy disease to cope with, and nobody in my family gets it. I am pretty much immobile but they still think I am the person I used to be. I was always extremely active and helpful but now I'm totally changed. We are all learning together but at least I have remained incredibly positive considering. You are doing a great thing with your channel 👍🏼
Thank you bud! I get exactly what you are talking about. Your feedback is really inspiring and keeps me motivated. Kudos to the positivity, some days are soooo dang hard.
@NeuroNerdyX I just always am inspired by my household, best wide and kids ever, they saw me go from healthy to crippled up. They are my inspiration to keep going. They mean the world to me 👍🏼
Hello, I’m a new subscriber to your channel , This topic of communication between my doctor and myself was mostly my fault. Today was different, I decided to I was going to tell him every detail of what I’m experiencing which led to a much more thorough physical exam . He was very moved to find what changes I had been living with . I was diagnosed with Secondary Progressive M.S. today. It was my fault for some reason I kept my symptoms to myself , why you may ask ? Because I don’t like being weak or appearing to be weak to others . Very timely upload my friend 😉.
Thanks for the comment! That is great to hear. In a weird way, I feel like this disease exposes an inner strength we never knew we had. I love hearing about your journey and discovery!
@@NeuroNerdyX thank you very much. I appreciate that and I think that’s why we are empowered by other people who have the same disease as us. It helps us to know that there are others. I also feel like I’m very fortunate because I’ve had multiple sclerosis since I was 18 years old that’s 35 years where I basically got off really easy of course I lost my ability to count so I lost my ability to work, but that was even a blessing because I have been working since I was a kid Probably a little too much . I still consider myself blessed because at 54. It’s the first time I’ve ever actually felt like I’m disabled . Maybe it’s something to do with wanting to not let my doctor down? I don’t know who knows the psychology around it all I know so I fixed it. I told my doctor everything and now I’m going to an MS specialist at Barnes Jewish Hospital in St. Louis.