My uncle had these shakes REALLY bad as he got older (presumably caused by an accident in his youth) and he was such a good sport about it. I cry when i think about it. He would go to take a sip of his coffee, and it would already take ages to reach his lips, but god forbid someone say something and he responded. He would almost have the cup to his lips, and suddenly start putting it back down to talk, only to start shakily bringing it up again. His siblings (my dad and aunts) used to mess with him and joke about whether he'd ever get that cup to his lips. I miss his laugh 😂 and my dads ❤ they were the type with twisted humor, so they both found the funny in even the darkest moments. God i miss them. I hope all people will be able to find laughter in their darkest moments, while allowing their souls to heal even if their bodies cannot. Good luck to all out there with this condition or tremors of sorts.
My brother who now is 30 suffers from ET, hands and head. It's so painful to watch him picking up a glass with two hands, and the more people look at him, the worst his tremor goes. A month ago in Verona (Veneto region) in the main hospital, a machine like this one was installed, and I hope that something for my brother will change, like for the man in the video. A big encouragement to all the people who is suffering from this.
I had this exact procedure done in southern California in June 2021. After the procedure was completed and I got dressed, I could not walk. The doctor disappeared and I never saw him again. When I got home, it was time to go to the bathroom. I had to crawl to the bathroom. When I was finished, I tried to get up, but I instantly fell onto the toilet. Then once I got myself un entangled from the toilet, I had to crawl back to my bed. The next day was my follow up with the doctor. He was nowhere to be found. I was only met by the department administrator and a physical therapist. The long and short of this procedure was but I sustained a stroke and absolutely no improvement in my tremors. The ultrasound waves were so strong that they literally bounced around on my forehead because they were too strong. Again, the only thing I got out of this procedure was a stroke, no improvement of my ET and a bill for $1250!
I am so sorry to read your comment. :-( So sad. How are you now? I hope you have improvement. As to the doctor, yes, issues with brain may have risks but what type of an honesty is it to disappear after the application. You should definitely go after him legally and get him charged. Risks are one thing, disappearing is another.
This is my father and I can say the treatment has been life changing. I watched the entire procedure and it's a medical miracle in my opinion. He is so much better and has his life back. Dr Peter Baines is just awesome at St Mary's hospital. I hope they approve under the NHS for all patients who are suitable for it.
I am so happy for your father. I myself am suffering from Essential Tremor. But unfortunately, we don't have this treatment in Denmark. Congratulations to you all, the whole family. It is a miracle. Your father deserves the best life he can get.
Can you talk to your father on whatup about the operation you performed? I suffer from the same disease and I hope to relax from this thing that hinders my daily life. I hope to talk to you. My number is 006947717855743
I have ET to a slight degree and take tablets to keep it in check. I hope that this proceedure goes worlwide and becomes available to everyone who needs it....🙏
Thanks for sharing this innovative, modern procedure(s) that’s available outpatient procedure without going for surgical knife, right, superb doctors, nurses and techs. And brave Kotecha, Cheers! God bless!!
I hope they can treat voice tremor too.... Its so frustrating to have voice tremor too.... It effects our personality it made me timid and lose my confident most of the time and i also dread talking on the phone..... Im so happy for mr.dinesh cos i can relate what he gone through tho our tremor is not same
Happens with me too sometimes, and this is why I lose confidence.. People think we get nervous, but actually it is a combination of nervousness and tremors
@@abdullahashraf10 yes exactly. Whenever we have to make a speech our mind wonders if our voice is going to shake that makes us nervous a bit. Then when the actual speech making comes the combination of both makes us mess things up. Its so frustrating sometimes
My heartnached for.this man and his caring family. It seems that the Doctors could have avoided unnecesary pain in the beginning. Best wishes to this family.❤
I have Essential Tremor for years It has become much worse this year. I was at hospital recently and the Doctor noticed it. I told him I hope to get the procedure done. He knew nothing about the procedure. He never heard of it. 🥰🥳😇🌹⛽
The unfortunate part of this is that it is a progressive disease. I had DBS surgery and it worked 90%, it’s been about 5 years since the surgery and my tremors are getting worse. I had the invasive surgery and the power of the stimulater is adjusted to the highest power that I can handle without side effects.
That was a tremendous experience as I am considering getting the ultrasound because my tremors are affecting my performance and recoding work on a daily basis. I am a lifelong musician playing electric bass guitar and piano/keyboards. The ET happened at my creative prime after many years of practice and performance. It seems as though ultrasound is the only technique that can fix the issue, the only problem is that only one hand at a time can be done at a time over a 6 month period as I have the condition in both hands. Again thank you for posting this video and all envolved in creating it. This video is pricess to someone considering the technique and actually see the entire experience from start to finish and beyond is supremely valuable and inspiring. Much Appreciation!
I went through this procedure. It was wild what I experienced. During the procedure I saw lights and stars. It was an unearthly experience. The tremor in my left hand has almost disappeared. But it did nothing for the restlessness I feel throughout my body. It’s like having the chills constantly. My ability to cope with this is worse than the tremors. I can’t sleep because I feel the anxiety going through my veins constantly. This is a condition that is highly related to ET. What can we do about that because it’s driving some of us with this condition insane.
@@abrarangel5706 I have found a physical but rewarding job and that in itself has helped a lot. I’m tired when I get home so I sleep better. I feel better than I have in years. I’m in better physical and mental condition. I hope others find this procedure helpful for them. But it’s not the total fix for the condition. Working hard and good coping skills has contributed tremendously to helping with this condition. The tremors and other symptoms don’t make you useless in life. Stay active and persue life in a positive way. This will help you more than any medication they can give you. Stay strong and don’t give up.
@@girlzglam5413 I’m doing great with little to no tremor in my left hand. I would say I have noticed a decrease in all other areas of my body with the tremor. Although given some time I now have noticed an increase in fatigue and lack of strength in my left arm. I don’t know how much of this is related to the procedure, If any. I have found it odd that after the procedure I haven’t been contacted by the hospital or any staff about side effects or improvements gained from the procedure. Especially considering I was the second patient in the western half of the country to have the procedure performed. My restlessness has subsided a little over time but I still have nights where it’s extreme. Overall I have experienced relief in my left arm from the tremor which has allowed me to go back to work and achieve a happier lifestyle. I hope this helps others in their decision to have the procedure performed.
@@girlzglam5413 I’m doing pretty good. My left arm and hand hardly ever has a tremor. I still have an anxiety tingling occasionally. Other than that I’m doing great. I do believe the procedure was successful in doing what it claimed it would do. Which is calm down the tremor in the left arm and hand if not eliminate it. I still have a slight tremor intermittently that is related to the anxiety or adrenaline rushes. I hope this helps you with the decision to get the procedure done.
I wonder if proteolytic enzymes can do the same thing this procedure does to the brain. I've read that proteolytic enzymes in sufficient quantity can pass the blood-brain barrier.
Hi! I am 31 and i have been living with ET for the past 18 years. Until now propanolol has worked wonders but in the last year seems it is not enough anymore. Although not noticeable to others ,i can now feel the tremor in my head as well. Could you please tell me how is this gentleman doing after years and if there were any side effects? Thank you so much!
Hi, I suffer from this and would really like someone to guide, recommend how I can source this treatment either on the NHS or independently. Thanking all in advance as it is becoming really challenging as the days go by.
Can you please enlighten me a bit. What exactly have they done? By use of ultrasound, did they dissolve a plaque or something similar? I understand that they were able to locate what was creating the tremors. What is it? (My mother died last April of alzheimers and I am making a lot of research out of personal interest I would very much like to know what it is that they are doing here.) Thank you in advance.
They did say it's not really performed in the UK that hes one of the first patients so the US may be where it originated. I've been waiting to hear them give this procedure a name so I can look it up
Can anyone please tell me the approximate cost of this procedure in US dollars? I can't imagine anything but very expensive PPO insurance plan covering this
You'd have to google it. If doctor finds necessary you can probably be approved by any insurance to cover it. Just like with my breast reduction. Its typically seen as a cosmetic surgery so they dont normally pay for it but because my general physician is stating its necessary I get it done, they approved it.
It was free my father had it in the UK at the hospital as they were doing research. I believe it may have been approved by NHS now but its best to check with them
I am Arvind 51 years old and suffering from Ataxia SCA12. Have lots of problem of tremors and hand, wrinting tremors and tremor in tongue which effected my voice quality. Can my problem be cured or can improve my personal and social life??
Hate how they don’t mention it only works on one “hand” not side of the body and only lasts at most 3 fucking years before everything goes back to shit 😭
The left side of your brain controls the right side and the right side of your brain controls the left side. ET is a progressive disease. For some people it progresses faster than others. Someone may have the surgery and be good for years. Myself, I am not a lucky person. Do you feel lucky?
I expect that this wasn't available on the NHS in the UK. What wasn't revealed was the cost of this procedure if done privately. Could Mr Kotecha's family comment on the cost?
balletmeisterin hi there. My father had it free as part of the trial under NHS. The treatment is in the process of being approved- look in to it as NHS now provide it
This is what I am suffering from but not to the extent of this gentleman it happens when I tilt my head back it's in my hands and legs and arms I wear make up and have noticed in this last few months I cannot put my eye make up on for the tremors..I have an impacted left wisdom tooth on the upper jaw and are waiting to have it removed I will be interested to see if my tremors improve after the extraction thanks for this video..👍🏻👍🏻👍🏻👍🏻
@@colefox2882 If I have to get it done every 3 years, I am fine with that! It's better than living like a recluse because I am so humiliated by my tremors.
My uncle had these shakes REALLY bad as he got older (presumably caused by an accident in his youth) and he was such a good sport about it. I cry when i think about it. He would go to take a sip of his coffee, and it would already take ages to reach his lips, but god forbid someone say something and he responded. He would almost have the cup to his lips, and suddenly start putting it back down to talk, only to start shakily bringing it up again. His siblings (my dad and aunts) used to mess with him and joke about whether he'd ever get that cup to his lips. I miss his laugh 😂 and my dads ❤ they were the type with twisted humor, so they both found the funny in even the darkest moments. God i miss them. I hope all people will be able to find laughter in their darkest moments, while allowing their souls to heal even if their bodies cannot. Good luck to all out there with this condition or tremors of sorts.
My brother who now is 30 suffers from ET, hands and head. It's so painful to watch him picking up a glass with two hands, and the more people look at him, the worst his tremor goes. A month ago in Verona (Veneto region) in the main hospital, a machine like this one was installed, and I hope that something for my brother will change, like for the man in the video. A big encouragement to all the people who is suffering from this.
@ Mark Messes any help for your brother? Thanks
I had this exact procedure done in southern California in June 2021. After the procedure was completed and I got dressed, I could not walk. The doctor disappeared and I never saw him again. When I got home, it was time to go to the bathroom. I had to crawl to the bathroom. When I was finished, I tried to get up, but I instantly fell onto the toilet. Then once I got myself un entangled from the toilet, I had to crawl back to my bed. The next day was my follow up with the doctor. He was nowhere to be found. I was only met by the department administrator and a physical therapist. The long and short of this procedure was but I sustained a stroke and absolutely no improvement in my tremors. The ultrasound waves were so strong that they literally bounced around on my forehead because they were too strong. Again, the only thing I got out of this procedure was a stroke, no improvement of my ET and a bill for $1250!
I'm SO SORRY for you. I hope you got a good doctor to care for you now.
I think I'd tell the hospital to find Dr. Feelgood and send the bill to him. You may have a case for a malpractice lawsuit.
@@JimErvin-d2i Unfortunately, any procedure on the brain carries risks.
I hope people are not discouraged by the quack you saw
I am so sorry to read your comment. :-( So sad. How are you now? I hope you have improvement. As to the doctor, yes, issues with brain may have risks but what type of an honesty is it to disappear after the application. You should definitely go after him legally and get him charged. Risks are one thing, disappearing is another.
This is my father and I can say the treatment has been life changing. I watched the entire procedure and it's a medical miracle in my opinion. He is so much better and has his life back. Dr Peter Baines is just awesome at St Mary's hospital. I hope they approve under the NHS for all patients who are suitable for it.
how much does it cost? I have essential tremor and i am suffering
Mam is this treatment available in India...nd how much does it cost?
I am so happy for your father. I myself am suffering from Essential Tremor. But unfortunately, we don't have this treatment in Denmark. Congratulations to you all, the whole family. It is a miracle. Your father deserves the best life he can get.
Hello sir could you please reply about the cost and is it available in india?
Can you talk to your father on whatup about the operation you performed? I suffer from the same disease and I hope to relax from this thing that hinders my daily life. I hope to talk to you. My number is 006947717855743
That is fantastic. I totaly understand the appreciation of the patient, it really brings about an amazing boost to quality of life.
Incredible! Greetings from Argentina, hoping this procedure becomes a worldwide phenomenon.
I have ET to a slight degree and take tablets to keep it in check. I hope that this proceedure goes worlwide and becomes available to everyone who needs it....🙏
What tablets? Skullcap?
?
😊
That is amazing. I suffer from the seem this video proves to me that it can be treated. Thanks
For severe cases of ET, this may be the future of treatment. Kudos to the doctors who designed and implemented this treatment.
Thanks for sharing this innovative, modern procedure(s) that’s available outpatient procedure without going for surgical knife, right, superb doctors, nurses and techs. And brave Kotecha, Cheers! God bless!!
I hope they can treat voice tremor too.... Its so frustrating to have voice tremor too.... It effects our personality it made me timid and lose my confident most of the time and i also dread talking on the phone..... Im so happy for mr.dinesh cos i can relate what he gone through tho our tremor is not same
Happens with me too sometimes, and this is why I lose confidence.. People think we get nervous, but actually it is a combination of nervousness and tremors
@@abdullahashraf10 yes exactly. Whenever we have to make a speech our mind wonders if our voice is going to shake that makes us nervous a bit. Then when the actual speech making comes the combination of both makes us mess things up. Its so frustrating sometimes
My heartnached for.this man and his caring family. It seems that the Doctors could have avoided unnecesary pain in the beginning. Best wishes to this family.❤
I have Essential Tremor for years It has become much worse this year. I was at hospital recently and the Doctor noticed it. I told him I hope to get the procedure done. He knew nothing about the procedure. He never heard of it. 🥰🥳😇🌹⛽
I had this procedure done and it only lasted about 10 to 12 months. i hope it works better for him.
What is the name of the treatment or procedure?
The unfortunate part of this is that it is a progressive disease. I had DBS surgery and it worked 90%, it’s been about 5 years since the surgery and my tremors are getting worse. I had the invasive surgery and the power of the stimulater is adjusted to the highest power that I can handle without side effects.
That was a tremendous experience as I am considering getting the ultrasound because my tremors are affecting my performance and recoding work on a daily basis. I am a lifelong musician playing electric bass guitar and piano/keyboards. The ET happened at my creative prime after many years of practice and performance. It seems as though ultrasound is the only technique that can fix the issue, the only problem is that only one hand at a time can be done at a time over a 6 month period as I have the condition in both hands. Again thank you for posting this video and all envolved in creating it. This video is pricess to someone considering the technique and actually see the entire experience from start to finish and beyond is supremely valuable and inspiring. Much Appreciation!
Wonderful. 💯👏
This is great ,was hoping to have this non invasive procedure but found out this only helps with hand tremors ,not head or voice
Amazing!!!
I went through this procedure. It was wild what I experienced. During the procedure I saw lights and stars. It was an unearthly experience. The tremor in my left hand has almost disappeared. But it did nothing for the restlessness I feel throughout my body. It’s like having the chills constantly. My ability to cope with this is worse than the tremors. I can’t sleep because I feel the anxiety going through my veins constantly. This is a condition that is highly related to ET. What can we do about that because it’s driving some of us with this condition insane.
how do you feel right now
@@abrarangel5706 I have found a physical but rewarding job and that in itself has helped a lot. I’m tired when I get home so I sleep better. I feel better than I have in years. I’m in better physical and mental condition. I hope others find this procedure helpful for them. But it’s not the total fix for the condition. Working hard and good coping skills has contributed tremendously to helping with this condition. The tremors and other symptoms don’t make you useless in life. Stay active and persue life in a positive way. This will help you more than any medication they can give you. Stay strong and don’t give up.
How are u now...plz share..full detail so that people suffering with this and deciding for such therapy can be really helped.
Thx
@@girlzglam5413 I’m doing great with little to no tremor in my left hand. I would say I have noticed a decrease in all other areas of my body with the tremor. Although given some time I now have noticed an increase in fatigue and lack of strength in my left arm. I don’t know how much of this is related to the procedure, If any. I have found it odd that after the procedure I haven’t been contacted by the hospital or any staff about side effects or improvements gained from the procedure. Especially considering I was the second patient in the western half of the country to have the procedure performed.
My restlessness has subsided a little over time but I still have nights where it’s extreme. Overall I have experienced relief in my left arm from the tremor which has allowed me to go back to work and achieve a happier lifestyle. I hope this helps others in their decision to have the procedure performed.
@@girlzglam5413 I’m doing pretty good. My left arm and hand hardly ever has a tremor. I still have an anxiety tingling occasionally. Other than that I’m doing great. I do believe the procedure was successful in doing what it claimed it would do. Which is calm down the tremor in the left arm and hand if not eliminate it. I still have a slight tremor intermittently that is related to the anxiety or adrenaline rushes. I hope this helps you with the decision to get the procedure done.
This procedure has been carried out in Australia for years now. St Vincent's hospital does it. I think a Melbourne University first discovered it. 🥰☘👍
Please help me.......answer the surgery name.....cost of surgery
Good job
That's a blessing
This is very good, i have this problem, how can you treat me Doctor?
Pls reply....surgery name, which surgery he do
Is this treatment available in any other country in USA or in India? If so please give the address. Thank you.
I wonder if proteolytic enzymes can do the same thing this procedure does to the brain. I've read that proteolytic enzymes in sufficient quantity can pass the blood-brain barrier.
Excellent!! Do they do this procedure in Australia?
How is this nice man doing today?
I'm longing for this treatment.ET make my life miserable.😢
Hi there, I can relate to as my mother has the same ET and parkinson, with ET will there ca be an end to Parkinson as well, without any sideafftects
Hi!
I am 31 and i have been living with ET for the past 18 years. Until now propanolol has worked wonders but in the last year seems it is not enough anymore. Although not noticeable to others ,i can now feel the tremor in my head as well.
Could you please tell me how is this gentleman doing after years and if there were any side effects?
Thank you so much!
Hi, I suffer from this and would really like someone to guide, recommend how I can source this treatment either on the NHS or independently. Thanking all in advance as it is becoming really challenging as the days go by.
My husband has severe tremors, he is ready for this surgery. In the US they only do one side of the brain at a time.
Family do you see any kind of effect or changes to your father... for instance sluring speech etc etc?
my wife had the old surgery for ET can she have this surgery now
I want this treatment 😭
Can you please enlighten me a bit. What exactly have they done? By use of ultrasound, did they dissolve a plaque or something similar? I understand that they were able to locate what was creating the tremors. What is it? (My mother died last April of alzheimers and I am making a lot of research out of personal interest I would very much like to know what it is that they are doing here.) Thank you in advance.
Does anyone know of a dating site for people with ET? I find it impossible to get a date having this disease.
This is being done in the US…but is approved only for 1 side…
Is this performed in the US? If so, where?
They did say it's not really performed in the UK that hes one of the first patients so the US may be where it originated. I've been waiting to hear them give this procedure a name so I can look it up
Is there any treatment like this in Gernany?
What is the effectiveness of this treatment years in the future?
3 years 🙃🤬
ET is a progressive disease, it all depends on how fast it progresses everyone is different
These days those horrendous screws aren't used.
Yes they are still being used
Great, but I didn't understand what this procedure? what It’s called? and its mechanism of action.
It’s called Focused Ultrasound Ablation, i believe.
The problem with this surgery is if something does go wrong, the side effects are permanent because it scares that part of your brain..
Can anyone please tell me the approximate cost of this procedure in US dollars? I can't imagine anything but very expensive PPO insurance plan covering this
You'd have to google it. If doctor finds necessary you can probably be approved by any insurance to cover it. Just like with my breast reduction. Its typically seen as a cosmetic surgery so they dont normally pay for it but because my general physician is stating its necessary I get it done, they approved it.
It was free my father had it in the UK at the hospital as they were doing research. I believe it may have been approved by NHS now but its best to check with them
⁰
@@KishanKotechaArtist what is the name of the procedure? I am so glad that it helped your father! My sister really needs this treatment.
WHICH hospital, please? @@KishanKotechaArtist
This procedure works for Parkinson's disease too. It should be tried on all people with Motor Neurons. ❤
I am Arvind 51 years old and suffering from Ataxia SCA12. Have lots of problem of tremors and hand, wrinting tremors and tremor in tongue which effected my voice quality. Can my problem be cured or can improve my personal and social life??
Am from Nigeria, with parkinson's please help me
Is it still he life
Who does this procedure in the USA ?
DaBratt
This is a trial study done in 5 cities theyre being done now too.... Toronto, israel go to clinicaltrial. Gov
University of Penn. in Cherry Hill NJ.
NY and Boston
does this technology work on head tremor? i really need the answer, please.
Jovem Escritor thank you very much.
Any updates? Is this available in US? Thanks!
Plz share hospital location and dr. Name. I m and my brother is suffering from all tremor. #Request
Hate how they don’t mention it only works on one “hand” not side of the body and only lasts at most 3 fucking years before everything goes back to shit 😭
Understand this is still under study/experimental
Then what did they tell you to do? Take it again?
u had this prodecure?
The left side of your brain controls the right side and the right side of your brain controls the left side. ET is a progressive disease. For some people it progresses faster than others. Someone may have the surgery and be good for years. Myself, I am not a lucky person. Do you feel lucky?
I expect that this wasn't available on the NHS in the UK. What wasn't revealed was the cost of this procedure if done privately. Could Mr Kotecha's family comment on the cost?
balletmeisterin hi there. My father had it free as part of the trial under NHS. The treatment is in the process of being approved- look in to it as NHS now provide it
Kishan Kotecha hello sir how is he doing now does the tremor returned back
He is doing so so well and is life changing for him
K Kotecha hello, adress of hospital, and city pls?
Sir, Let me know this can be done for both hands? I stay in india also want to know is this procedure available in india?
What the hell is this ... Can we cure this ????? Permanently ????
Mums had tremors for years or so. Gp has never mentioned this to her, only drugs, or botox.
Has this lasted so far?!we were told this wouldn’t last much more than 15 years.
seriously you' are asking here. You need to see an actual movement disorder specialist.
Anyone here get this done? results?
I need for focus ultrasound dystonia.my live in iran my city in shiraz
Would this work for patients with essential tremor caused by Multiple sclerosis?
But, how long does it last?
The result is permamnant??
I want this treatment but I can not afford it
I'm younger patients
Lucky one I want to be a volunteer please
Please let me know if the treatment is available in INDIA.
I am having essential tremor since 20 yrs...nd whatsapp group of people who is suffering this.
Did you guys found this technology in india?
@Дмитрий Кирсанов hi
How Much Does Ultrasound Use to Treat Severe Tremors
Can tell my
009647717855743what up
Pls
Is this dbs surgery pls reply
I have essential tremor. Is this available in India? I need this treatment really bad.
What's this procedure called?
I wish they would answer your question ,I want to know also
@@winternight2038 u still wanna know?
Focused Ultrasound Ablation
@@avonloma5819 thank you!
Can this be used after having a dbs implanted?
I am also curious of your question
Great
This is what I am suffering from but not to the extent of this gentleman it happens when I tilt my head back it's in my hands and legs and arms I wear make up and have noticed in this last few months I cannot put my eye make up on for the tremors..I have an impacted left wisdom tooth on the upper jaw and are waiting to have it removed I will be interested to see if my tremors improve after the extraction thanks for this video..👍🏻👍🏻👍🏻👍🏻
karen whitehead I have the tremors also. I noticed when I could not do my eyebrows during make up. I got them micro bladed.
please post yiur result
Amazing
Wow
Tremor has not returned
Have there been any other issues related to the procedure? Thanks
That is wonderful!
Plz sir. Plz tell
Cost of this operation? Anyone in india doing this?
The effect of this treathment is permanent?
No
I think so
No only lasts 3 years at most 💩
@@colefox2882 If I have to get it done every 3 years, I am fine with that! It's better than living like a recluse because I am so humiliated by my tremors.
@@colefox2882 Well then those will be the best 3 years of my life!
I don't believe this. I have it and study about it. There is no cure
How wonderful to give hope to everyone who has Parkinsons
Shaking hand, dont grab wrist, just place other hands fingers on shaking hand (wont stop just steady it) ❤️🩹
Amazing