What is Visual Snow Syndrome?
Вставка
- Опубліковано 5 вер 2024
- To all the people who have Visual Snow that have been marginalized and/or have had trouble explaining what Visual Snow is to their friends, family, and doctors, this short video is for you. The traditional explanation of our condition is often lengthy, complex, and scary, but it doesn’t have to be. Here's a brief synopsis of Visual Snow that we could show to anyone we want to understand our condition quickly and concisely. Trying to convey the basics of VS to someone? Just show them this video! Doctors can also show this to their patients. It’s Visual Snow 101.
For additional information, please visit www.VisualSnowInitiative.org.
Follow us on social media: Facebook & Instagram: @VisualSnowInitiative & Twitter: @VisualSnowInit
For my entire life I thought everyone saw like this. Today though I find out not everyone does 😦
There was one time when I was little, maybe 5 or 6, and I was in a motel with my parents. I keep getting scared that night sleeping with them because I keep claming I saw bugs everywhere even though it was pitch black. They told me this story, jokingly, and I remeber vividly a small scene of that day, and it was my visual snow. I later when hearing this story just thought to myself that it was just the dots we all see that I thought were bugs. now today, I find out that I have a condition. This is so crazy to me to find out this is rare for people. It hasn't effected my life, but I can only wonder now how it would look without this static-ish effect
Jake Boynton. And yeah it doesn’t affect me to the point of I actually forget about it for long amounts of time
Jackie Lendel yeah exactly that’s why I thought that it was normal bc it wouldn’t normally ever bother you besides when your doing nothing
Yeah, same thing. I thought this was normal until last night when I found out about it on Imgur.
My static is pretty mild. I often forget about it during the day. Very noticable when it is dark though. I have a hard time trying to see the stars in the sky.
AifosViruset I can relate!!
I have mild visual snow. It’s strong enough to notice, but it’s mild enough to where it doesn’t affect me and I just forget it exists usually. It’s an interesting little fact to tell people though.
Same
Same
i can usually notice mine, but like you I can forget about it if im distracted. don’t you ever wonder what it looks like to see without snow blindness though?
Same but like they said I can sometimes feel like i dont exist almost like its a video game. It really impacts me but i get over if ^-^
at night it worsens so having a small light on helps. ive had it since birth tho so i get used to it
My visual snow isn’t that noticeable during the day, it’s there I just don’t pay attention to it, but when I’m in dark places its 10x worse and I can barely see.
Yeah especially driving a car when it gets dark is a pain
Same for me
there is so much light during the day that you can barely see the white dots, but at night when it is dark, they stand out more due to the almost black background. it's like writing on a black wall with a white pen
Same like it was BRIGHT DOTS EVERYWHERE I could not see my mom would always have to help me up
It's nice to know I'm not the only one.
Just remember when you look up at the night sky you see more stars then anybody else ✨💜
Yesss ! I saw stars in day light also 🥺
I can barely see the stars because of the noise.
And I love watching stars. But it's hard.
Ok when she said that ringing in the ears could also be present, im all like 👀 cuz that be me with them stars and them ringin
But, what if everyone sees like you? My friends say "oh, I see this, that is a normal"(i'm bad know english language, sorry)
Exactly!
I remember telling my mum when I was younger that I could see air. She ignored me 😂 but now I’ve found this and know what it is!
I did the same thing too XD
LOL same- I told my dad I could see atoms when I was 5 and when he said that was impossible I was so confused as to why I was seeing dots everywhere!
OH MY GOSH SAME!
But, what if everyone sees like you? My friends say "oh, I see this, that is a normal"(i'm bad know english language, sorry) and I hate people, cause we are can't understand what other feelling or see
I used to say I can see germs lol
I have pretty mild visual snow. It doesn’t effect me during the day, but when I look at walls I usually see it. At night it’s pretty bad. Also when I close my eyes I can see random blobs of colours and “static”.
I always thought everyone saw that static. I'm in my room now with my lamp on and the walls are a static mess. Just thought that was how everyone sees.
Visual snow relif on youtube helps with the colors its called photons or somthing like that that your seeing
Mine used to be like that, now I can barely function...
YESS same!
i thought everyone saw those blobs of colous when they close they eyes
I cant even imagine what it is like to see without this.
Me too
I don’t see it sometimes when looking at bright screens
i remember the time when i had normal vision instead of visual snow, realised that it is breaking your sense of reality.
without the static and other symptoms.
must be like having 4K HD eyes
When I was little and didn’t know what this was and used to think I could see germs moving on the ground
I remember telling my dad that i see lots of white dots...he said I have it too!
Omg lol
I would say atoms 😃👍
SAME!! i always thought i could see atoms or sum and my parents thought i was crazy hfgfhhjffghj
Thanks for sharing, much appreciated!
I just discovered about visual snow 25 minutes ago and OMG im So relieved .. a huge burden has lifted off my shoulders, I can finally say that Iam not crazy ! For years I’ve been seeing static like dots, ringing in my years and after many tests ( eye test , head mri’s, ect ) and Having Them all come back negative me and my doctors were lost, but now I can confidently put a name to what I’ve been dealing with for so many years , and too know that Iam not alone is a huge relief. thank you 🙏 and best of luck to everyone who suffers with this.
dame ovo same here ♥️
You’re not alone :)
Me too
Literally me
Hey did anyone cure this constant ringing in ears. How ? Pls helppp
*Who else thought this was normal?*
Yepp..
Yup
Me...
Me. I thought everyone saw this. I just thought I was being a baby about it when I tried to describe it to people. I just thought no one really noticed or thought much of it but it was something everyone saw.
Yep
Anyone else near sighted and you get mild visual snow, mild ringing in your ear, black outs when you stand up, eye floaters kind of often, and lights seem to stretch out?
Thats what I get ;-;
i get all of that too :/
do you have a problem with your jaws? Like popping, cracking
@@swikaradhikari9216 yeah
@@swikaradhikari9216 yep
Are we the same person?
I always thought I just had an iron deficiency on top of static 24/7
And I always thought my tinnitus was because of ear problems
Visual snow is actually much more common than we know. A lot of people have been seeing like this their whole lives and don't know any different. I was born with it and didn't know it wasn't normal until a year ago. I started asking peers and family and they became aware of their visual snow, like half of the people I know.
Thanks Kassandra for your feedback. Yes, we are in agreement with you.
i have been with this syndrome all my life, finally i found out there is more people like me!
hopefully one day there will be more info about how to fix it
I swear I miss having proper vision in the dark
Same here buddy
We feel you! 💗🤍
I remember staring at my classroom wall and seeing static 😂😂
Thanks for sharing!
My heart goes out to all my fellow sufferers that have a major form of visual snow. I have a mild form of visual snow that's transparent, but sometimes it looks and feels like a medium form. I've also been dealing with tinnitus off and on again in both ears for the past year and a half, since I got through nasty ear infections in both ears. We can only hope for a breakthrough and cure.
TMS has shown good results on visual snow by targeting the occupital cortex at a low frequency. Theoretically, this may show benefits due to the hyperactive cortical communication between the thalamus and the occupital cortex getting inhibited through inhibitory stimulation of the target of the hypothetical thalamocortical disrythmia.
I've had this since I was a kid. I thought everyone got it. I've only met a few people that have it. Brain needs to quit it.
Thanks for sharing your VSS experience, we appreciate it.
Thank you for making this video! Now it won't be hard explaining this to my mom because honestly nobody believes me even the doctors they keep on saying its aura migraine which is not. I hope their will be also awareness of this condition in the Philippines because its really unknown here.😔
So did you show them the video
OMG SAME SAME SAME WHEN THE DOCTORS TOLD ME THAT I FLIPPED OUT
I said mom I’m not having headaches every day and second of my life
Do you see sparkles with it
is it affected by the vaccine? I got really bad tinnitus from the vaccine... idk what to do!
Hope a cure....
Me too :( little over 10 years with it now
Amen
It Is the end
My dad said he has it when he was 18 years old he said he sees alot of stars and it just gone now and he don't know how
@@InterfectorBCEyearsago trash , he didnt hve it
I thought I had visual snow but mine isn't close to how bad they showed in the video
We all have Visual Snow at some point but those people have the Syndrome
You have this syndrome if the fact last more than 3 months
I’ve had this for all my life but it’s not distracting. I usually forget about it unless I decide not to 😂
yeah. i dont want to self diagnose, but i see static everywhere. it’s not unbearable or a burden, but if i focus i can see it. also when im outside looking at the clouds/blue sky, i see large things moving around (like bacteria under a microscope)
i literally thought i was seeing atoms/molecules? moving around lol
I have thus for about 2 months
I thought I was the only one feeling depersonalized...
Hello Michael, you're not alone. Please let us know if we can be of any help. Take care...
Want to talk about it? I might have some tips
Old Chinese Man sure man
i have vs and depersonalization.
yo man is it possible to get over the depersonalization with the visual snow?
i've had this ever since i started getting severe aura migraines in middle school (now 22) and have had tinnitus my whole life. i got in a car accident 2 years ago and it has gotten terrible, i got an MRI, went to physical therapy, got an eye exam, everything was normal. but i literally was losing my ability to see at night. i also have the other symptoms of sudden numbness in my arms and legs, and have developed a nasty anxity disorder because of it. am so glad that I am not crazy, and most importantly not alone.
I get a sudden feeling of numbness in my arms as well. I always think I’m about to get a heart attack no joke it makes my anxiety so much worse! I just hope my visual snow doesn’t get any worse :(
Thanks for sharing your experience with VSS. We are so glad you found our page. You are not alone 💗🤍
First 19-20 years I had normal, clear vision then I developed this during a time period when I was really anxious. Last 27 years I've had Visual snow, tinnitus etc.
Thank you for sharing your experience , You mentioning that it came about for you at a time you were experiencing alot of stress i think is very significant. .Its something i had believed was a possible cause for a while, because something i had found on visual snow a few years back described the function as the brain not filtering out unnecessary information like it normally would so that part of the brain in a sense gets overloaded and sends back static. I thought it was a fairly logical explanation. Ive had it ever since i can remember but i do know the first ten years of my life were extremely stressful
anxiety, autism and general mental illness is major risk factors for visual snow. And SSRIS I believe
@@yeyeman6569I wish I had never started taking an SSRI I am so anxious and depressed from getting visual snow out of the blue two months ago
@@coconutshavedice1078 I also got it from SSRIS, and the only thing that helps my symptoms at all are benzos
I have Visual Snow Syndrome, my dad has it too. One time, my vision filled with static and I became paralyzed and blinded for maybe 10 or 20 minutes. On a daily basis, I keep twitching so much and I'm constantly shaking.. I sometimes even hit my head against a wall because the twitching gets so bad I just can't control my body. So many people have no clue about this disorder or think it's fake, including doctors which is honestly so terrible.
I hope that one day there will be a cure cuz I want to know what it's like living, seeing, and having your body function normally.
i experience the same exact things as you and twitch a lot for some reason
@@ansnfbsknanssshshbsnsndnd5438 no but I don't twitch anymore
No way, the falling to the floor thing and hiting the wall has also happened to me
It's also VERY important to have basic blood panels done, especially to check electrolytes! I had visual snow when I was critically low in potassium and once levels were stable- never had it again. Not saying it always means this, but it can't hurt to get it checked out. Basic metabolic panels (BMP) are quick and easy to have done.
Thanks for sharing your feedback. :)
For mine , not that much Static..
Anyone else ?
i have minor static, but mild palinopsia
I think it's a bit exaggerated. I barely notice it in sunlight conditions. In a dark room or the night sky when there isn't much to look it, yeah it seems to fill up your vision.
My static isn’t really that bad, and doesn’t bother me really, but it’s enough that I see it all the time.
I never really paid attention to it until now. It's not that bad either, but when I think about it, it's all I notice.
I honesly felt cool with it. I was imagining that my wyes were a dslr camera and soon enough i was able to change focus ISO and aperture
I noticed this syndrome in about 2011. The thing is, it somehow fluctuates. There are seasons when I don’t notice it as much and there are painful periods of intense snow. I also noticed that the intensity is correlated to my stress level. I even think that I got my anxiety because of this syndrome. Hi guys, glad to see that I’m not alone. I thought I was crazy
Hi, that's interesting.. I've just recently started experiencing this about 8 months ago (floaters) 4 months ago consistent snow. I believe that my stress, anxiety and depression has somehow caused this through hypersensitivity.
I've seen many people say theirs is tied to their anxiety.
Same here
@@shecklers17 I'm also suffering after health anxiety disorder
@@piaaadah for sure it caused by anxiety
"while your seeing this, they're seeing alllll this" *literally blinds me*
My daughter has been in tears because of this tv snow! Thank you!
I still remember the exact moment visual snow started, I was in the rooftop with a bunch of cousins, I was looking at the moon and suddenly the tense sound same out of nowhere (which now I think was tinnitus), the moon literally zoomed towards me and so did the intensity of the music. I panicked and went downstairs, as I went towards lit enough place, I knew something was wrong, and my vision was never same again.
Feel you brother
Hi Imamul! Thanks for sharing your experience with VSS. We are so glad you found our page. You are not alone 💗🤍
Hope it gets better 🤍
this comment section feels so safe. ive suffered with this along with disassociation for a couple years now, im curious if anybody has gotten any information about a link between vs and ssri usage? i started taking medication for my anxiety 3 years ago and have noticed my symptoms have been worse since then. thank you for this video, i really wish i could have found it sooner. ^_^
I think it’s something to do with mental sensitivity
This is great! Nicely done.
Why do I feel better when I know that my friendly friend VS who doesn't want to leave and make me crazy is an brain's fault not the eyes? xD. Please guys be my heroes find a cure for us. Also, thanks for the initiative, nice presentation and transparency of the organization.
Keep moving ! You're our hope . Love from Turkey ♥️
Finally got diagnosed yesterday, it's suck a relief to finally understand what was wrong with my vision but it sucks at the same time, yall can relate.
We feel you. Stay strong!
I found out what this is called yesterday. Its difficult to describe to someone who doesnt have it and for the longest time i thought everyone had vision like that, the earliest memory i have of being aware of it was around 9 or 10, its not super distracting, i can forget about it if im in the moment but its pretty obvious, particularly in the dark or with plain images. I tried explaining it to my optician once but they said everything was fine. Its pretty relieving to finally know what it is. It could explain all the migraines, depersonalisations and light sensitivity. Its not really a hinderance but in my early teens the depersonalisation which is linked, was a pretty regular issue. Im 18 now and i still get the feeling sometimes but nowhere near as bad, i would go full days feeling like i was separate to everything a round me, like it was all fake or in my head, or just not real. And i know that most people deal with this at some point in life, but it happened a lot to me. I remember once asking my mum “ how do i know everything’s real, what if its all fake “ before school, she said “ dont be stupid “ or something like that, i spent the whole day in autopilot feeling like i was observimg reality rather than actaully taking part. It was awful, then when i got home my mum and “ i know how i can prove to you that life isnt fake “ and hugged me. I appreciated the effort but it did nothing to help, even her hug felt separate to me, like the sensation of touch wasnt real. I think a big part of those moments was the vision, sometimes it feels kind of like a filter, like theres two layers of vision, reality and the snowy haze, which sometimes messes with your depth perception a little, and can make everything feel flat and not quite real. The best solution which i could never do when i was younger is to just distract myself with whatevr activity im doing and forget about it,
I also struggle with depersonilasation and i never knew why.
But it was not always like that, life began to feel strange suddenly and like im not a part of all that was going on, like in a dream.
I remember being in our garden and staring at the trees and thinking to myself: "Are those really there?" Then went there and touched the leafes.
I just found out about that Syndrome and i hope i can find better ways to deal with it and kinda being more present.
This is so crazy! I swear I thought this was just how everyone sees, but when my sibling finally discovered it has a name it was honestly such a relief!! I’m not negatively effected by this and honestly just tune the dots out, but when I think about it they’re everywhere, especially when I close my eyes! I always thought it was like seeing a galaxy in my head 😂 Whenever I go outside it looks like it’s sprinkling out.
Same here! 😂
I was today years old when I discovered that people don't normally see this. It's not even annoying, just something I mostly forget about and then suddendly remember when I focus on something. It's almost fun sometimes.
Thanks for sharing. That's great that you can turn VSS into something positive. We hope that has continued for you.
Not that dotty for me. Mostly dark and some colors. If light is strong i dont see it that much.
Ringing i only have it in quiet.
I see floasters and blue field phenomenom. Most of my vision is clear i dont know honestly.
I only see the dots if I’m in a pitch black room, like when I’m trying to go to bed
@@sgtwoods3579 yea its not scare for me that much and it didnt get worse i am trying to clean my body i started eating healthy and i lost 10 pounds from 100kg to 88 kg
12 actually
@@sgtwoods3579 same bit they are white ish
Mata rada Have you had It your whole life?
I have it since
i haven't been diagnosed but i have ALL of the symptoms and have for all of my life
I mean it's not really diagnosable since they can't see through your eyes lol
Thanks for sharing Abby. If you are still seeking a proper diagnosis, please visit the resource directory on our website for a list of doctors that can help. Here's the link: www.visualsnowinitiative.org/visual-snow-doctors-and-specialists/
I have moderate to heavy visual snow. It caused me so much suffering for so many years. I'm just grateful that I am finally understanding it. Getting involved and looking forward to any progress in managing it.
Hey Aaron, we hope that you have still been making progress with managing your VSS symptoms. Let us know how you're doing. Stay strong!
hol up wait I thought this was normal
Me to
Same
I got the vaccine and now I'm having tinnitus and floaters along with sparkles! Idk what to do..
Guys spread the word!
Something odd I've noticed is that people with mild spectrum disorders like adhd, autism, etc. are more prone to having visual snow. My theory for this is that because of the altered state of the brain, some signals aren't transmitted at the same speed across the entirety of the signal. Causing a slight discrepancy in the signal. Nothing to cause the signal to be damaged or disrupted to an extreme or even sever extent, but more of a subtle and faint static, like visual snow. Tinnitus like symptoms could also go with this where the slight vibrations of the ear bones just from air movement might be just subtle enough to cause misfires and if the signal doesn't get received/interpreted correctly, it may just produce a faint ringing sound that echos a bit as the signal delays. Another thing that this could explain is that a stretched signal, may be similar to watching a youtube video in a slightly lower resolution, where the image overall is the same, but slight changes in the way the image is read by your brain leads to the static, which with the fact our brains need to interpret movement, the static has motion as the direction, intensity, and source of the light compared to our eyes change. Again just a theory, and I do not have enough knowledge in this field to provide evidence to support it, just a basic understanding on neurological science.
This theory makes decent sense.
i have adhd and autism and ive had mild visual snow for as long as i can remember so.... yeah that checks out. also wikipedia (i know its not the best source but its easy) says this: "The underlying mechanism [of visual snow] is believed to involve excessive excitability of neurons within the cortex of the brain, specifically the right lingual gyrus and left cerebellar anterior lobe of the brain." idk if those parts of the brain mentioned have much to do with neurodivergencies, but if they do, and this theory is correct then it makes even more sense
I have dyslexia and alot of symptoms of visual snow, static, after effects, sensitive to light and recently I've been quite a hey and fatigued
For me, I do see static in my vision, but it is not so bad that I can hardly see, but it does get worse when I focus on a word or a letter, and it also gets worse if I close one eye and use that eye to see, if I focus on a word for too long the static just swarms around outside of that spot and it makes it almost impossible to get through an eye test without the eye doctor thinking that I am basically blind. My vision is not blurry at all, but the static in my right eye is definitely worse than my left. The static does kinda get worse in the dark, but I can still see as long as it is not pitch black and the static does not exactly get better during the day when I go outside, especially if it is really bright it tends to get a bit worse, but in a well lit room I find that the static is not really noticeable, the same thing applies when I use my phone, I don’t notice the static when I look at the screen.
All of my life I thought that what I saw in my vision was completely normal, I thought that everyone saw static in their vision, so I never thought to mention it, it went pretty much unnoticed my entire life until I don’t know what prompted me to I think pester my mom to get me an eye appointment, where I wrongly described what I was seeing in my vision as “little black dots that are everywhere” and I said it was worse in my right eye, which the eye doctor said that my eye was falling asleep and relying on my Left eye to do most of the work, basically saying that I was going blind. I took an eye exam and they gave me glasses, which do not help all that much with my vision. I described what I saw as little black dots or specs in my vision that are pretty much everywhere since I did not think of static at all, so I did not describe it as static in my vision. I only recently found out about Snow Vision Syndrome when I realised that Static perfectly described what I saw with my vision. I don’t have an eye appointment until next year, so I will probably mention it next time.
Thanks Kitty for sharing your VSS experience, we appreciate hearing from you. You're not alone!
Bro exactly the same LOL.. i don't have it for long tho.. How its your situation now? Did it get better or worse, you have anything to help? Hope you can help , im trying to stay positive
the world must be so clear at night for other people
Don't forget Blue Field Entoptic Phenomenon!
Great video. And great advice about the neuro-ophthalmologist. I saw one and she helped me a lot.
They are all entoptic phenomenons but the problem with us is that our brain don't filter that noise anymore.
@@imthatim3119 I agree! Anxiety was causing my hyperawareness. An ophthalmologist helped me realize this. Treating my health anxiety actually helped my VS symptoms disappear.
My NO just told me she can’t help me.
@@VerisonMember tell me more.
And night-blindness.
The way it looks in my opinion is, when you’ve got high blood pressure and you stand up quickly then can’t see for a bit, but not as intense.
Thanks for sharing your experience.
I have floaters, Visual snow, photophobia, blue field entropic phenomenon, and after image. Floaters are the most debilitating but I did go through a time when I could only see about a foot in front with my visual snow which was scary.
I still get outside and try to live my life though.
Same here bro
2 months ago I'm having this cause of anxiety
How many floaters you have?
I feel you bro, I also have them all ;(
I didn’t know what it was called what you listed until I looked it up but have all those things too
It's so ower wellming in the dark..i want to cry sometimes
We feel your pain. Stay strong while we search for a cure and viable treatment options.
Hey! This is EXACTLY what I have. I’ve had it for 8 years. I literally can’t see in the dark with it.
Basilick same :/
Michael M. Alvarez It’s really a bummer, not as bad as other things but it’s really annoying. I’m glad people are trying to find a solution.
Basilick yess i know, I also have tinnitus. so it makes everything worse🤷🏻♂️
I'm so glad I found this video I've been wondering what's wrong for my whole life
I thought I could see air...
It’s mild, but looks so colourful.
We're glad to hear that you've been successful at turning Visual Snow into a positive thing in your life. Good job!
I have quite severe VS and I kinda dont give a damn but it makes me very sad that I am not able to see the world how it truly is like EVER.
I have this but when I go outside I don’t even see it anymore
Sometimes I can't focus because it's so distracting. Especially when I'm drawing realism, doing all those little details, and when looking at someone and seeing that vivid after image. As a kid I thought I could see their souls
Thanks for sharing, we appreciate it. 💗🤍
Nossa! Muito obrigada @VisualSnowInitiative
! Quase me matei por causa disso, passei mais de 30 anos, sempre indo em médicos e eles falando que não havia nada, fazendo exames, piorando com remédios. Agora só de saber que não sou a única já me sinto aliviada e com vontade de viver. Graças a vcs, consegui esse ano, um neuro-oftomologista bom que cuidar de mim! Eobrigada por explicar o que para mim antes era inexplicável! Muito obrigada mesmo
opa br aqui tbm, tu tem palinopsia ?
Oq vc fez pelo amor de Deus? Estou assim pos Covid
0:20 this is how i see things, I feel so validated
i have dots in my vision, after images, tinnitus on both ears with different sounds. derealization and sometimes depresonalization. really bad night vision. lightsensetivity. but its weird, it all started a few days after i got my first panic attack. maybe it can sometime be related to anxiety? because mine didnt start before i got anxiety. but its also know that anxiety causes hypersensetivity to everything in our surrounding.
martin grønberg I’ve had anxiety and visual snow my whole life I can agree to everything u just mentioned
Yea I have visual snow and anxiety as well
Hey cud u describe your tinnitus ? How exactly it hears like. I have constant buzzing sound. How to cure it
I have the same symptoms, I’ve found that anxiety does exasperate all of the Visual Snow symptoms. My symptoms just started randomly one day as well. I know how hard it can be, and I hope we have answers one day to resolve these symptoms. Take care.
Anyone else feel like they are looking through heat waves ?
I wish I was able to see clearly in the dark again :(
Maybe try very light glass its not seeable with glass
Hey, thanks for sharing your experience with us. It's been awhile, we hope that your VSS symptoms have continued to improve.
As a person with visual snow if it’s day I only see it a bit, but at night it goes crazy like it’s very hard to see I only see it a bit.
Thanks for sharing about your VSS experience, we appreciate hearing from you.
Did anyone here experience derealization, permanent snowy vision, migraine with aura and even anxiety?? Because i have this feelings for 6 months now and i want to know if people are experiencing the same as i... Any help?
Yeah i have permanent v.s. and migraine with aura like every couple months..
is...very
but i beliver we can got the best life
Hey buddy, yes, I've been through that/continue dealing with it. Woke up one day after having bad anxiety for months, and suddenly tunnel vision, the snow, all the other light symptoms, and just a severe feeling of everything not being...right. Alien. Detached. Familiar places weren't familiar, everything tasted and smelled bad, I felt terribly anxious and detached 24/7, with no emotion except fear and numbness.
Luckily, I can say with confidence, it does fade! It was the most terrifying thing I've ever experienced, as it really tears you away from your life and reality. But you do come back! The hardest thing was just living, when nothing makes you feel safe or comfortable. But slowly, over months, it lifts. You notice parts of yourself come back. It's been about 9 years now, and I still have all the visual symptoms. But my brain has brought me back to feeling emotions, feeling like a part of the world, and being able to feel joy.
It's hard, it's really hard in the beginning, especially if you read about people online who are just as anxious and freaking out. The root cause is def anxiety, rooted in genetics and brain chemistry. Who knows how or why, but the best we can do is cope and talk to people who have gone thru a similar experience. Especially when doctors don't believe you, or ignore the symptoms.
If you ever want to talk, my email is cmalander0881@gmail.com. You will feel better.
Chris Malander I really think that this is exactly what I had because my anxiety experience was just horrifying and so scary so I feel less alone at least 😢 but I just think why do I have to suffer with these mental issues and then have this visual problem thrown on top of it
I've always had visual snow. Not as strong as the examples shown in this video, but strong enough that I always know its there, see it all the time, and ALWAYS HAVE SO MANY FLOATERS!!!!! I always asked people if they experience the same thing, but the answer was always no. I thought I was the only person in the world with it, but I had no idea what "it" was. Thank you so much for this!
Hi Alex! Thanks for sharing your experience with VSS. We are so glad you found our page. You are not alone 💗🤍
You went to doc for eyes checkup and floaters?
I listened pvd is cause of floaters
Some people have it bad, some not so bad. My visual snow is debilitating however. Night vision is really bad and dimly lit places in my home frustrates me.
as someone with visual snow syndrome this video was very painful to watch with all the quick movements and bright colors.. but very informative and well said.
Noted Rasmi, thank you for your feedback.
I don’t know how I would feel without it you know I lived my life with it
I like to say that it has become as familiar as my own hearbeat.
Praise the sun
I don't see the "snow" but I see the after images, floaters, etc with my eyes open and closed
Thanks for sharing your experience with VSS. We are so glad you found our page, please sign up for our newsletter on our website for the latest on VSS news and research. www.visualsnowinitiative.org
Omg I though everyone saw the world like that wow I did not know I had a problem
I also thought that...
Thanks for sharing! You are not alone. 💗🤍
They say this condition is so rare that only 200 people worldwide have been documented to have it and here I am with this condition for over 14 years just learning about that statistic. That is not a good feeling.
I thought I was just dumb in the head and nobody believed me
Hi Brandon! We are so glad you found our page. You are not alone 💗🤍 & We believe you.
Its so nice that its got a name now♡
As a kid the doctors said I just needed glasses.
I couldn't describe it to anyone and they all either said it was just floaters or blurry vision.
It frustrated me as a kid.
Now I have a name for it and can just say that to people.
As a condition it is annoying sometimes, but other times not so much. I've never seen the world any different^^
Old movies are crisp and clear to me~ muhuhuhu~ ♡
Does anyone else have trouble reading as a result of visual snow?
@Kehkasha Khan have you found any ways to get around it?
@@teatree_ True, bigger print helps. The words are still hard to focus on, but it helps.
I haven’t. Unless I focus on mine I don’t tend to notice it too much but that’s because I’ve had it all my life. If I am focusing on the words the static-ness isn’t bad
Yes I do, it’s very exhausting focusing on the text.
sohphiemounika exactly.
I really like how the video shows others what visual snow is like. But I feel like for most people, the static isn't that crazy. The symptoms of VS (visual and non visual) are what makes this syndrome worse. I pretty much have all the symptoms and I believe others not stated. Also, my "static" isn't huge chunky dots as shown in the video. Its more like very fine pulsing black and white dots.
I would also like to say something I haven't heard a lot of VS people say. But do things disappear when you stare at them too long for anyone? sometimes when I focus on something kinda far away from my, my VS static increases in that spot and makes it "disappear". Or if I stare at the carpet it starts to move like flowing water, or really any flat surface. Other weird things I would like to talk about like this with other VS members or even specialists!
But in other words after ranting, I love how this community is coming together and recognizing VS for what it is! and we all can get through this together!
I got visual snow right after I got LASIK. I am 32 years old. LASIK damaged my vitreous and my vitreous is pulling and tugging on my retina because Of fucking LASIK. I only see visual snow when I am laying down with the lights off or when I wake up in the morning. The pressure from the pillow on my eyes causes visual snow. I never had visual snow before LASIK. I never had a single floater or flashes before LASIK. Now I have big nasty floaters. LASIK ruined my night vision and gave me painful dry eyes. LASIK needs to be banned. Retina doctor told me LASIK damaged my eyes. It is scary as Hell.
whoa I have the flowing water thing... it's hard to imagine all of my weird little mental quirks are possibly linked to the same thing.
everything u just said is everything i started developing, how do u feel now
Wow yes to both of those
I got the dissapearing and water thing too, how are you now?
I was scared when my visual snow, tinnitus and bfs was starting to beginning a few years ago
Today I know it's nothing bad,it's only an error in the matrix
Thanks for sharing. We are so glad you found our page. You are not alone 💗🤍
I have it for 7 months now and it has been a very dark time for me. Couldn't even sleep because it distracted me so much and made me feel scared. I am so relieved i'm not alone with this. I'm only 16 and feel like i have it since my birth, i miss normal sight.. Desperately hoping for a cure; hope is the only thing what's left. I've even thought about just completely giving up, but i know that someday, there'll be a cure :)
Jennifer yeah same here, there were many times were I felt like killing myself but I know things will get better for us. I hope you the best of luck in your recovery!
Michael M. Alvarez I wish u the best as well! We just have to stay strong and keep on believing that one day we will be cured ! :)
Hi there, a New treatment came out in 2022! The new treatment is by Dr.Tsang/Dr. Shidlofsky, and it is available in their clinic locations. Their information/location is on our Doctor Directory. Feel free to check it out on our Website.
@@VisualSnowInitiative I hope the cure will be shared around the world soon. I am Japanese, my friend who I met on Twitter had given up on the idea that treatment is not available in Japan. But I am willing to wait patiently. I appreciate all your efforts.
I’ve had visual snow for 3 years.I find that the more that’s going on in my visual field the less I see the symptoms
Did it go away?
Woah, I have that too. It’s quite light, and typically only comes on when meditating or relaxing, that’s awfully strange
Thanks for sharing Nick!
I started suffering from this after I started developing tinnitus in my ears from working around heavy machinery. Overtime I started noticing floaters in my eyes and then it felt like a film over my vision started developing. Heard anti seizure medicine helps and staring at a static screen.
Sounds more like retina detachment, particularly film over vision part
Did you cure tinnitus. Pls reply !!
@@learnit2759 Nope, its pretty much permanent hearing loss and the only way to get rid on the ringing is by having some kind of background noise.
@@additup671 yeah I can’t stand fully silent rooms. There has to be some sort of fan or noise going on.
Well then, after a good couple weeks of running from doctor to neurologist, I can (not so) happily say I am joining the Visual Snow Family :P
Welcome to the VSS family!
i've had it for my entire life but recently learned that it's not that normal. Has gotten my kind of obsessed to be honest.
It's only really strong in the dark, but it's also mild in light, I've also had a feeling of depersonalization since I was 7.
I pray that there will be some breakthrough, and I if there is some way I can get donate a bit to your cause? Idk. Good luck and keeping fighting the good fight.
Thank you for sharing about your VSS experience and for your kind words. We're all in this fight together!
I've always been told my condition is from having higher pressure in my eyes which is setting off photo receptors, glad I know about this now.
I also have high pressure and some of this visual snow symptoms. Did you notice these symptoms when your pressures were high?
Thanks for sharing!
@@Really_riel I see swirling colors and shapes, shimmering and pulsating all over my field of vision. It's like looking through a kaleidoscope, if anyone else saw this they'd swear they were hallucinating but you get used to it. Aside from that I'm light sensitive and can adjust to the dark quite easily, although bright light can make me see stars lol
Nicely done!
My visual snow got worse slowly as time goes by. Sick and tired to go to optometrist and eye doctor, only for them to say ‘your eyes are fine. We don’t see any abnormality. Limit caffeine, alcohol, more exercise, enough sleep.’
We feel your pain. Sorry that you've had to endure that. Stay strong! 💗🤍
Wait, others don't have it??? I thought everyone had it!
It's more common than we originally thought but no, not everyone has Visual Snow.
I always thought it was normal until I heard about it on a video somewhere and then I wanted to know more so I came here. Yeah, I am pretty sure I have it, but I am so used to it, that it almost doesn't bother me.
Same
I can’t believe I’ve only just heard of this! I vividly remember when it first showed up and my parents took me to the optometrist because I kept saying my eyes were “broken”! I’ve kind of just wondered if I’m gonna suddenly go blind even though they said(and continue to say) that everything is fine
Thanks for sharing your experience with us. 💗🤍
Snow does not cause blindness, so you can rest assured
i was diagnosed with visual snow syndrome, and ive had it my whole life and thought it was normal. I didn't even know the disorder existed until after i was professionally diagnosed with it, but i feel kind of special being in a small group of people who has it.
We hope that you're doing well and we're glad that you found our UA-cam channel.
Do not forget "Blue Field Enthoptic Phenomenon" please!
Is BFEP a visual snow symptom??
@@user-bb9nl3bo4u I think yes
I just got an autism diagnosis, I’m done getting non- life threatening diagnosis that I have been told are in my head. I will keep this weirdness to myself thanks. Good luck to everyone else.
I used to think everyone saw like this. When I was 12 I asked my mom about it and she told me she did not see any static like on the tv yet my sister did so I just figured my mom did not understand my explanation but that everyone saw life like this. Kinda weird discovering through the internet at age 20 that I actually have a neurological disease lol.
I remember getting visual snow syndrome and tinnitus as a kid. I still remember how clear and vibrant things used to look before but those memories get more vague over time.
Hello Miguel, thanks for sharing your experience with VSS. We are so glad you found our page. 💗🤍
I just realized i got it and it isn't normal.
I see like wormy things and noise but transparent or black/white?
When i try to sleep i see like flashing lights even if it's dark and it disturbs me a lot. Even in class I can't really focus and it's just me.
I also see my dreams in black-white. Sometimes i see transparent shapes and makes me zone out.
I don't have blurry vision but i just see random things everywhere at anytime.
I had this since i was born i guess.
Hi there! Thanks for sharing your experience with VSS. We are so glad you found our page. You are not alone 💗🤍
I hate it honestly :/ it makes me depersonalised. It literally is flickering static that you have to get used to.
We feel your pain. We hope that you have found effective ways to manage your symptoms.
Ooh... I thought it was because of my (low) astigmatism or something. Now I'm feeling very special :P
I guess of all the rare brain disorders one could get, that's one of the ok ones.
It's kinda interesting. Feels like a glitch in the matrix, like it needs higher ISO settings or something.
The floaters and the after-images are kinda fun to play with when you are bored, they are there, but I tend not to notice them unless I want to.
The annoying part is the constant moving grain. Impossible to not notice. I do get mild headaches often. I do feel my eyes getting tired, especially on night, very especially while working on my PC at night, which I do constantly. Also, the edges of objects are kinda weird to look, like they have an aura or something and are hard to focus on. Just the edges, I have no issue focusing on the object itself.
I feel seeing normally would be a lot more relaxing, I hope one day I can try it.
Hello, thanks for sharing your experience with VSS. We're glad you found our UA-cam channel. You are not alone and we too hope that one day you can see normal again. 💗🤍
How many floaters you have?
It fills me with hope that this is being researched. I'm thinking it's different for everyone. The grainy image on the us/them personally is far more refined. More of a low grade sizzle. Your thoughts everyone ❤
From what I know, if you see little white things moving around in the sky it dosent mean you have e visual snow immediately. It can be blood cells moving across your retinas! Hope this helped some people, ofc don’t treat me as a doctor. If you feel it is necessary go to a doctor and talk about it!
Thanks for your feedback Oliver!
@@VisualSnowInitiative what
This is how it is for me. I have visual snow and I’ve always tried to bring it up to doctors, and they kept telling me there was nothing wrong and it was normal. But the more I hear about it, the more I know it isn’t normal? There is static over everything, but I can still see relatively fine.
Hi there! We are so glad you found our page . You are not alone 💗🤍 so many people are unaware of VSS
I am Brazilian and I also have visual snow.
Thank you Fernando for sharing.
:
I honestly can't take this anymore...
tommonteck it’s harmless you will be alright my friend please talk to a doctor there is hope nothing serious you will eventually get over this issue !
You are not alone and we are always here for support and resources. Hang in there! You are strong and a warrior💙