Doc, I was listening for the first time a few videos ago and thought you might be a little different from most neurologists but when I got to minute 15 here, it ended that. I've lived 20yrs of MS. I'm 71. The last 10 have been ppms. Many people have an ms diagnosis and Don't truly have it! Sure they have a few brain lesions but so do a lot of people as we age. I have 2 first cousins who both have ms. The younger was normal 25yr old who, right after twins, ended up in a wheelchair for the rest of her life. (Rest in peace, Kathy) The other made it to 45 and had to retire from teaching but she's still going. You say Run a Marathon like it's common for people who are suffering from MS when for us who have ppms, just walking is like a Marathon. Add some heat, then the walk turns impossible to me.
I was finally diagnosed at 19 (after 10 years of no Cleveland docs that were willing to consider that a child could have MS). Oh how I wish there was someone like you available to us then! Thank you for all you’re doing ❤
Hiya! I was diagnosed at 25 too. Life's been a turbulent journey linked with many different M.S medications. I'm now 27 years into this illness. Gotta keep the pace and move forward. Inbetween much sleep and rest. Should exercise more, but too often fail.
yes, there tends to be higher rate of relapses (in populations of PwMS) during the flu/cold season. I am not surprised that you have a pattern consistent somewhat for YOU however, you're not a population or a textbook but a person!
We have absolutely no good neurologists in my area. So I’ve had to read and educate myself a lot. I also have crps, do you know much on that disease and how it can affect my ms ? Thank you!
I have no doubt that I have had MS for years. Psoratic arthritis, spinal stenosis, disk degeneration, and a few other things are confirmed. But I'm told I don't have enough lesions to ID MS. but everything i've read, from the mensis changes for women, walking, to cane needs, now walker/ wheelchair. being essential. Feet being ice bags, pains in neck, throbbing/ spasms in spine, There are often times arms, fingers lock up, weakness and tremors, right leg goes out, often feels like a clump is running through my legs or arms. Now have aneurysm, but told size suggests wait prior to surgery. Cog fog sucks. Eye specialist said I have some sort of issue that is common with ms, but didn't want to dx since they haven't officially put it on my chart. Test low for b, d and so on. You talking about affect, that's something I've noticed as well.. I feel fine but burst in tears or laugh when I shouldn't. So much more.. but is there another way to show this is what it is, never had migraines until these last couple of years. Yes, my body has dealt with extreme trauma.. guy toned my car and eats thought I was dead when the arrived. Their expressions when thry say I was calling boss to let her know we weren't making the meeting was hysterical
Yes, the down there's have been an issue as well.. bladder spasms, ibs, and tremors/ spasms.. it's just sucked ..then them delayed dx means treating symptoms but not issue. Ringing of the ears, halos and double vision, occasionally seeing darkness... I don't like the meds they give me because they seem to mask rather than help. Often I have a hard time getting up to walker, daughter has lifted me to chair.. I'm just now 57 and sick of this shit
A lot of this sounds like me. I feel like ive had a slow progression of MS for at least 8 years until optic neuritis last month raised a big flag. My vision has improved after prednisone but im exhausted again like before and you can see it in my eyes. Im certain MS is autoimmune and wish they would treat it from that angle. Like get us on a diet/activity/vitamin/mineral/supplement/antiviral schedule. Im already trying on my own but its hard because my stomach needs healing first and it doesnt agree with some of these things.
The green tea/immunoboosters analysis is great, it was about time to publish this information, hopefully some of the affected people will stumble upon this video. Wow, thank You for providing details regarding the occipital nerve block - it is nice to know, that there is an alternate option available, as meds cant tame my heavy eyebrow-located headaches. And even if the occipital nerve block probably is not the appropriate action for my eyebrow-headaches (??) (hoping to switch my DMD by summer 2019), it relieves me to know, that there is a regularly applied procedure available.
I’m glad to hear your answer on the OTC products. I had a person tell me if I didn’t take the supplement my MS was going to get worse and I should know that she told me I would get worse if I didn’t take her supplements sad
Im curious what was it? It is sad when people try and push things on vulnerable people. Having said that essential fatty acids and B vitamins are great for our brains. Not cures but to me it would make sense it could slow progression.
Dr. Boster, thank you from the bottom of my heart too the tip top, you're a exceptionally excellent Doctor, You're an 'Earth Angel', you've helped me & so many others understand our symptoms, through your caring videos. I've become more mentally positive that's thanks to you Doctor. Love & hugs to you, your family & all working at your clinic, including attending patients. Going to watch again your videos educate myself some more. Jane Co. Mayo Ireland 💜
Oh man, I can't believe I missed this today! Ironically, I was watching and sharing some of your other videos instead... Thank goodness for play-back. (Mererid, mid-Wales)
I am so glad I found your UA-cam channel. I am currently 60, I was diagnosed a little over 2 years ago with PPMS. Dr believes I have had it for more than a decade, just without any serious symptoms. 2nd opinion Dr was not convinced it was PPMS, possibly RRMS. Urged me to do a spinal tap, first Dr. revisited the MRI findings with me and said it was my decision, keep in mind, the spinal is moderately dangerous at any age, cause you unnecessary pain, and will not change diagnoses. I was on Ocrevus, but due to COVID, Dr placed me on Kesimpta. Had a concerning lesion on Spinal cord/brain stem. With the D.M.T., my next MRI showed it gone, not calcified, but gone, great news in his opinion! I have shared your links to members of my M.S. meeting group! Currently I am the only guy, but the girls don't mind =). Odd side note, My wife has MS also (RRMS) she was diagnosed nearly 25 or so, years ago, odds for both of us to have it the Dr. said was aroud4,000,000 to one, unless we were somehow, possibly related, NOT LS in CA.
A Starbucks near me used to let me get a French press for the price of two Grandes, but they don't do it anymore. I used to get "shade grown Mexican," and it was amazing! They no longer have that bean anymore either, lol!
I have PPMS feb2024 just cognitive issues no meds do to I’m 57 . Just wanted to say hi and I’m from Amsterdam Ohio but live in Virginia. My sister goes to Cleveland clinic .
Cecelia and I’m 57 years old diagnosed in Feb 2024 with PPMS just showing cognitive decline no meds because I’m older from Amsterdam Ohio but live in Virginia now. Just wanting to say hi
I've done neuro-pysch tests - fascinating! Really good in some areas but not great processing speed. My memory is very good, if I manage to take the information on board in the first place :)
Thank you for sharing your experience with us Rebecca! Any tips to share on who you grapple with the processing speed issue? We could all learn from you!
@@AaronBosterMD well, they said though I couldn't speed it up, there were ways to make the most of it! For example: don't overload the system by trying to 'multi-task - concentrate on doing one thing at a time. And spilt that one thing into small sections if you can, so for cooking, it's a) get the ingredients out, get your utensils out, put the oven on b) measure the ingredients c) chop and prep ingredients (watching the fingers on the knife!) d) follow the recipe. I often break this up over time, and often rewrite the basics to make sure they've sunk in properly if it's a new/important meal. Treat every activity like a recipe - and an achievement. Your brain wants to help. Cut down on distractions, especially if you are going to do something serious - I need silence to make an appointment on the phone cos processing dates and times can be a real challenge - (I can briefly picture what the numbers are but can't think how to say them and then they vanish). Repeat back and write down is the only way!. And don't feel as though you have to go faster than feels comfortable. Don't force it. and you will go faster than you think! I try to tell people in busy situations that I have MS and so might listen more than talk. Ooh, I could go on ;) Thanks for a chance to share! Lots of love to you all from London, where we've had an amazingly warm day!
Dr Booster, in previous live streams, lighting was a bit iffy, even camera at times struggled to keep fluid recording. This is the best one so far. What ever you used as a lightning source (or was it location itself?), keep using it. Keep up the good work!
TYVM Sasa!! I'm really trying to up my videography game. I should really take a course or something, but so far I just keep trying to teach myself by watching UA-cam vids and taking folks advice!
@@AaronBosterMD I used to be sales manager in one of our local computer shops before first noticeable MS episode struck me (and then I god fired because of that...), plus my dad was amateur photographer so I picked up few tricks lol. You mentioned in one of your previous videos that you got Logitech camera, so I am guessing it's one of these web cams, C920 or even C922? If so, they are excellent webcams but they do have some limitations. One of is what I've mentioned before, fluid or choppy recording on lower light. Other is, they can only record up to 1080p and 30 frames per second (fps). But that can be an issue only for kids who like to stream games and be cool while doing so. So no problem there lol. No point of investing more into more expensive and better quality stream camera. I know most of us had or will have an ON episode at some point, and we will appreciate good quality videos to compensate what ON did to our eyes, but we already have that from you Dr Aron. Here's one link: lifehacker.com/how-to-improve-your-photos-and-videos-with-affordable-l-1715963400 There are some good videos about light sources, plus some good reading. I hope it will help.
I was 33 with putubatary cancer and 43 with DDD then 53 with oral cancer and 54 and diagnosed with Ms and cause of COVID and no Ms doctor in my province was present but got two Ms doctors 6 months ago so I'm now getting my doctor to refer me agaian hope it doesn't take too long.
Sami from NY. I was diagnosed about a year ago and always have such intense back pain. I take a muscle relaxers as I'm sure a lot do for this issues. It helps but not a lot. Advice?
Good morning Dr. Boster, Thank you for again another informative awesome live chat!!! I’ve never tried French press coffee but I’ve heard good things about it and yours this morning certainly looked inviting so I’m going to give it a try one of these days. Thanks again for everything you do and for everything you’re helping us learn about!!! Regards,
I do clinical Pilates about once a week. I have an appointment next week to see an exercise physiologist and see what she suggests. I really just need to get motivated and get walking. Easiest, cheapest exercise there is and I live in a beautiful part of Australia
Hello Doctor ! I'm french and I want, first of all, to thank you about your work in this Channel... I'm Ms diagnosed since 2008 and nowaday i'm traited with Gilenya 0.5mg for 7 years... I'm afraid by the legends about this drug and the risk of developing a cancer... What do you think about this idea ? Sorry for my bad english and thank you by the way... Good bye
Hello I’m Nancy from Tennessee- I’m learning so much from you! What do you think of PLEX (plasma)treatment when steroids don’t work?? I recently had that treatment which actually worked.
btw, i got it in my twenties and experienced everything in this video. plus two years in a wheelchair but now my neurologist, Andrew Chancellor, says I am defying all the odds. Fully ambulatory but nonstop pain. They don't understand the pain part. Could you possibly veer into the pain issue and what we can do... He wants me only on Pregabalin. It does not work for me. :(
My name is Pat from Va and I have been diagnosed with MS 3 years ago. I have two questions.1. on my recent visit to my neurologist I was told of the two leisons found on my brain the largest was shrinking. Does that mean the ma is going away? And 2. What is smouldering MS ?
What would you say about lesions about evenly split between the brain and spinal cord? I was diagnosed with RRMS in Aug 2017. Initially optic neuritis, then again 7 months later. I got on copaxone (for a couple years) ….then Tecifidera/generic Tec/Vumerity..:.now Kesimpta (since about Aug 2022) Was told it’s likely now SPMS. Not had many symptoms other than what seems progressive right leg weakness. I’m limping terribly. Did the MS walk last year, brought trekking poles (just in case)….used towards end of my 3-mile option. This year, def wouldn’t choose 3 mile over one. And would use a trekking pole the whole time, if I go. My right leg is like having a wooden leg…just tried Botox injections about 6 weeks ago, another appointment in May. First time didn’t seem to do very much at all. She said it could take trial-and-error. Stretching alongside the injections were recommended. Due for another MRI. Any thoughts? Do Botox injections not work at all for some people or do I just need to get the dose higher?
Aaron, I exercise nearly every day 1/2 hr, we recently joined a large health gym. I am concerned about exposure to all the people there handling all the equipment, I feel like I need to be in a rubber suit and mask. ,concerned about getting sick from the extra exposure
Hi. Im from Singapore. Ive been having Ms for at least 15years I have terrible fatigues. Its so difficult to do anything. I only want to lie down I have lesions on my spine. I dont have good balance standing and walking. My 2nd Rituximab was awful. During the infusuipn ill start coughing and bad asthms do my neuro said i cant be on it.
Yep. That's my normal. I find breaking my week into high, moderate and low activity days helps with the fatigue. Like, I might do home physical therapy one day, and shopping the next. I also have limits on e.g. how far I can walk in one day. This way I avoid the all or nothing phenomenon.
Hi Dr. B! I'm sad that I always miss these. I wanted to ask you and please bear with me I'm not sure exactly how to word it, I am constantly thirsty. It doesnt matter how much water I drink, I always feel thirsty. I drink over a gallon of water every single day. Other than that I have my morning cup of coffee and that's all that I drink on a regular basis. Is dehydration more common in MS patients? I cannot not have my water with me. If I dont get all of my water I am not functioning properly. You are a wealth of knowledge Dr. B and you are so very appreciated! :)
Do doctors take into consideration the problem of costs for tests? For example I am on a fixed low income and cannot afford the MRI my new doc ordered? I don't know what to do or how to get this needed test.
It's all about risk and risk aversion. The risk in the 1st year IF you are JCV antibody positive without prior chemo ranges from a 100th to a 1000th of a percent. It's not my place to tell you that is too much or too little of a risk.
It's challenging as there are only a few head to head studies. The following is MY PERSONAL OPINION ONLY. I think it's fair, however, to group meds as such: lowest overall efficacy: injectables (interferon beta products and glatiramer acetate products) medium range efficacy: pills (fingolimod, dimethyl fumerate, teriflunomide) highest overall efficacy: monoclonal infusions (alemtuzumab, ocrelizumab, natalizumab).
@@AaronBosterMD I got my diagnosis of relapsing remitting MS. We decided on Tecfidera as a primary line of defense. If that doesn't work Cladribine. In Canada, the insurance companies won't allow Cladribine as a first line defense. They will only cover if the other doesn't work.
Aaron Boster MD ok thank you. I really Appreciate all of your videos. The info has helped me understand my husbands MS. My husband has been to 2 different neurologists that state his headache symptoms are not ms related. He never suffered headaches before his major flare. They are very debilitating and ever present. It’s just interesting to me they don’t add that to the list of his other symptoms to be ms related. Could you at some point do a video about ms and headaches?
It's called Clementine , you may have seen some information on it. As a person with MS I am always looking up information on it and stumbled across as yesterday
Howdy Elain! I visited Dubai last year and was amazed at it's beauty! Mavenclad is not available in USA as of right now. I think the mechanism of action is interesting, I think the efficacy is mid-range and Gilenya-like, and I think the safety profile isn't completely sorted out just yet.
Hi Dr Boster. I really appreciate these Q&A. My brain MRI only takes about 30 minutes. That’s with and without contrast. They do with contrast first for about 20 minutes, then put contrast in and another 10-15 minutes with the contrast. Are they doing that correctly? I feel like they must be missing views.
I disagree with imaging cervical more than thoracic. Actually because of the real estate. My worst MS problems come from transverse spinal myelitis in the thoracic spine. I have multiple lesions there with not much real estate. Hey how about a transverse myelitis video? :)
Dino I’m from Kent uk but 5 minutes from Belvedere. I want to know if you can tell me what causes muscle lock my whole right side locks up. Right eye neck pulls to the right and arms and legs
we work with the hospital system to apply for HCAP, charitable organizations to assist with copays and MRI costs and find way to get them the things they need.
Ppms is difficult but u must be each other strength, ~A very good friend of mine had ppms, we were in the nursing home together, she was married, I can tell you from being there, it was the most beautiful story on how a man loved a woman,although there's many examples..u see through every point in there life,you couldn't figure out who needed the other more, at points it was like he was her breath, he had saved her so many times , and she saved him just by exsisting, ~u see sometimes it's not so much about a focus on disease but a bigger focus on being there through it with her, n trufuly being present when ur there, it made so much of a difference in her life n I can truly a test she was healthier because of it, I too had a similar support at that time, and I again very much can say it was the difference from that time in the nursing home from the next time. Don't understand estimate ur self and you being the big part of her village,being together. I promise it matters. Also im not taking away from medical care,it's so very important but it's so different for every case.. furthermore, you are also important, and it should always be a very big focus. I very much hope this helps. On some level. Sincerely, Divine 💞🐤
Howdy Dr. Boster! Question: In your opinion, what would you do if a patient is on Tecfidera, acquires lympopenia and test positive for the JCV antibody? If the dose is reduced to once daily and their counts recover but still positive for JCV? At what time would you switch to another DMT? Your opinion is appreciated.
Divine 🐥 here, as my Ms is advancing I've noticed I keep missing your lives. Which is something I very much enjoy, ~ I'd like to say thank you, thank you for the longer stream, its the sole reason I was able to at least catch the end of the stream as my m.s. keeps me away. Questions for after party. . Is there any way in the world to truely tell the difference between splitisty and arthritic, pain? Or maybe im trying to ask what does spliticity truely feel like. ? Can there be splaticity in a joint where there's true arthritis? Or is that spliticity? Here's how it feels to me~ Like when you go to shut your front door and there's a unbearable pain in your shoulder joint for example, and then it's a very lasting memory of pain after that movement. Almost like a memory of movment but you body remembering every movement with pain instead of time. Is that splaticity? Would u be willing to do another video on this subject,? To explain splaticity farther? I wanted to ask this because as my diseases advance it's getting harder and harder to separate the symptoms, I had just emailed my palliative care about this issue, and it makes it so hard for her to help me when I can't even explain my self properly. If this sounds familiar at all, in M.s. plz I'd be so greatful to hear about ur thoughts thanks a million Dr b. And as always thanks for being a hero in our lives. Sincerely Divine 🐥 P.s. 🐔 chickens plz :*) 🐤🐥🙄 Thanks Divine🐤💞
divine4x inm.s.u Hello Divine, Sorry to hear that your MS is advancing, and, that your multiple medical problems, makes it difficult to differentiate the symptoms. I have similar issues, especially with fatigue and walking. Some days I don't know what problem is responsible, all I know is that I need to stop and rest; lie down or fall down.😴 As for spasticity, thankfully, this is not an issue for me. However, at my last neuro exam, my Doctor reported that I had increased tone in my wrist. This I knew because my hand writing had changed; I was heavier with my pen, and sometimes my writing was more messy. I hope your MS and other conditions are kind to you today, and that you can enjoy what the day has to offer.😀 Take Care, 🐢🌏
@@fedwards2023 hello , divine here, ~thanks so much for your message that was very sweet of u. ~ im hopeful that you recall your last exam, and talk about it with your Dr again, at the very least and of course Dr B, really at the very least, ... Wait no..@ the very best ask Dr boster! Also, ;*) I actually wanted to share a link about splaticity, it talks of tone issues...but I didn't want to put it on his channel, not knowing if it was ok, ~but im hopeful Dr b will talk about the splaticity agiain. How it's defined on Ms soceity website can be confusing. ... it be cool if he would unpack the chart of spatisty scale. It's just confusing to me. ~ if you have read any of my millions of comments u will see how I can't help but reply or ask questions , u see I got sick early around 14ish to 16ish yrs old. And with that said I've been to my share of drs. About 25 or so neros. So when I call out dr b. As the best I truely mean it. He pulled me out of my absolute bottom long ago, and I carried his words with me ever since, n to be honest I didn't realize how they had helped but hey they helped, n well u never know what u may say to a person that may change there life. ~Example your 🐢 made me smile( I rescued one , we saved his life...when I was at the nursing home and then donated him to wild life foundation 😂) he was almost like a companion pet for the residents. :*) Also I feel you on falling, the nursing home tough us how to fall peoperly. Lol. and resting and the confusing symptoms. Mumm is the word.... or This will be a million more... pages if I don't stop talking. But I'ma so there with u.. *The problem is m.s. is like onions we have layers!!!* Sincerely, Divine 🐥💞🙃 God bless you and ur day also :*)
Spasticity = spasms (bouncing) of a limb across a joint, just as bouncing knee or ankle OR muscle cramps like Charlie horse OR still limb that are hard to bend (like trouble bending your knee to get into the car). Chickens soon, once snow is melted and they can run about!
@@AaronBosterMD thank u, Dr. Erin. Yeah it literally feels like my bones are breaking, I know that sounds absolutely insane, and very redonkulas, but it truely feels that way, I too have arthritis in most joints so I'll just stop crying about it and get used to the increase on pain, yeah some of my joints get stuck and I literally have to let it crack just so it will move. It's the beauty of arthritis I guess within a patient with also m.s. Thanks so much for the answer. ~frustrating~ = auto immune diseases plus m.s. :*( Sincerely, Divine🐤🐤🐤🐤🙃 yay chickens :*) can't wait :*)
Hi Aaron! Loving all your videos. I’m 3 months post Lemtrada and my lymphocytes have remained at normal levels. Is this normal? Does this mean the treatment hasn’t worked? Thank you! Keep up the great work xx
Gillian from glasgow, scotland. How does the menstrual cycle effect MS symptoms. I am always very symptomatic the week before and the week of.
Some note temporary worsening of symptoms during their menses. Here's a vid on a related topic: ua-cam.com/video/a6p2-FuwvaU/v-deo.html
Teresa Weyman from Alexandria, KY.
Dear Gill, please can you TRY going to Revive MS clinic
And try the Oxygen Therapy Clinic
😊
Use the oxygen chamber weekly
😊
Good luck Gill
Iuuiiuu88ji 1:37 lbybyCT🎉😂
No@@AaronBosterMD
Doc, I was listening for the first time a few videos ago and thought you might be a little different from most neurologists but when I got to minute 15 here, it ended that.
I've lived 20yrs of MS. I'm 71. The last 10 have been ppms. Many people have an ms diagnosis and Don't truly have it! Sure they have a few brain lesions but so do a lot of people as we age. I have 2 first cousins who both have ms. The younger was normal 25yr old who, right after twins, ended up in a wheelchair for the rest of her life. (Rest in peace, Kathy) The other made it to 45 and had to retire from teaching but she's still going.
You say Run a Marathon like it's common for people who are suffering from MS when for us who have ppms, just walking is like a Marathon. Add some heat, then the walk turns impossible to me.
I was finally diagnosed at 19 (after 10 years of no Cleveland docs that were willing to consider that a child could have MS). Oh how I wish there was someone like you available to us then! Thank you for all you’re doing ❤
I was diagnosed at 25 😔 and I absolutely fell that I’m done with life there’s nothing for me anymore
Hiya! I was diagnosed at 25 too. Life's been a turbulent journey linked with many different M.S medications. I'm now 27 years into this illness. Gotta keep the pace and move forward. Inbetween much sleep and rest. Should exercise more, but too often fail.
I hope you found a treatment path that works for you 🕊
I love “Don’t worry about the flat tire you don’t have”, that is now my mantra..
I learned that from my mentor, Dr. Omar Azur Khan!
Dr B is the best teaching MS -Dr. on UA-cam 👍👍👍
TY JJ!
Rosie in Glasgow Scotland Iv had ms since I was 22 now 31 Iv loved this Chanel for years now thank you for teaching us all about it ❤️.
Tim; 61 from New Jersey Shore: Diagnosed PPMS February 1, 2008. Thank-you for this information
I live in NC my name ie Shelvey.u may c this after the live is over.i watch your videos often.wish I could c u in person.
Have you ever heard about seasonal relapses? Every year going from spring to summer I have a flair up. I dread spring.
yes, there tends to be higher rate of relapses (in populations of PwMS) during the flu/cold season. I am not surprised that you have a pattern consistent somewhat for YOU however, you're not a population or a textbook but a person!
Hawaii here! Although late. But I want to thank you for making ALL of these videos!
hi best doctor
the q&a is greet you are amazing 👍🌹
Thank you for all you do. MS sucks... but you make it more interesting and easier to understand and I’ve had it 16 years.
You're very welcome Jennifer! TY for supporting the channel by watching and commenting!!
We have absolutely no good neurologists in my area. So I’ve had to read and educate myself a lot. I also have crps, do you know much on that disease and how it can affect my ms ? Thank you!
Hello from Essex Uk. Im newly diagnosed and really appreciate the information you share and hiw you share it 🙌🏻🎁
I have no doubt that I have had MS for years. Psoratic arthritis, spinal stenosis, disk degeneration, and a few other things are confirmed. But I'm told I don't have enough lesions to ID MS. but everything i've read, from the mensis changes for women, walking, to cane needs, now walker/ wheelchair. being essential. Feet being ice bags, pains in neck, throbbing/ spasms in spine, There are often times arms, fingers lock up, weakness and tremors, right leg goes out, often feels like a clump is running through my legs or arms. Now have aneurysm, but told size suggests wait prior to surgery. Cog fog sucks. Eye specialist said I have some sort of issue that is common with ms, but didn't want to dx since they haven't officially put it on my chart. Test low for b, d and so on. You talking about affect, that's something I've noticed as well.. I feel fine but burst in tears or laugh when I shouldn't. So much more.. but is there another way to show this is what it is, never had migraines until these last couple of years. Yes, my body has dealt with extreme trauma.. guy toned my car and eats thought I was dead when the arrived. Their expressions when thry say I was calling boss to let her know we weren't making the meeting was hysterical
Yes, the down there's have been an issue as well.. bladder spasms, ibs, and tremors/ spasms.. it's just sucked ..then them delayed dx means treating symptoms but not issue. Ringing of the ears, halos and double vision, occasionally seeing darkness... I don't like the meds they give me because they seem to mask rather than help. Often I have a hard time getting up to walker, daughter has lifted me to chair.. I'm just now 57 and sick of this shit
A lot of this sounds like me. I feel like ive had a slow progression of MS for at least 8 years until optic neuritis last month raised a big flag. My vision has improved after prednisone but im exhausted again like before and you can see it in my eyes. Im certain MS is autoimmune and wish they would treat it from that angle. Like get us on a diet/activity/vitamin/mineral/supplement/antiviral schedule. Im already trying on my own but its hard because my stomach needs healing first and it doesnt agree with some of these things.
The green tea/immunoboosters analysis is great, it was about time to publish this information, hopefully some of the affected people will stumble upon this video.
Wow, thank You for providing details regarding the occipital nerve block - it is nice to know, that there is an alternate option available, as meds cant tame my heavy eyebrow-located headaches. And even if the occipital nerve block probably is not the appropriate action for my eyebrow-headaches (??) (hoping to switch my DMD by summer 2019), it relieves me to know, that there is a regularly applied procedure available.
right on, right on Martin!
I’m glad to hear your answer on the OTC products. I had a person tell me if I didn’t take the supplement my MS was going to get worse and I should know that she told me I would get worse if I didn’t take her supplements sad
Im curious what was it? It is sad when people try and push things on vulnerable people. Having said that essential fatty acids and B vitamins are great for our brains. Not cures but to me it would make sense it could slow progression.
THANK YOU SO MUCH DOCTOR BOSTER
Dr B have M S since 1997 my Journey is to beat this disease0
I do the M S walk.
One of my fears can MS stop your breathing or heart? Thank you for being so caring and your good explanations! Lots of love Sara from sweden ❤️
Dr. Boster, thank you from the bottom of my heart too the tip top, you're a exceptionally excellent Doctor, You're an 'Earth Angel', you've helped me & so many others understand our symptoms, through your caring videos.
I've become more mentally positive that's thanks to you Doctor. Love & hugs to you, your family & all working at your clinic, including attending patients.
Going to watch again your videos educate myself some more.
Jane Co. Mayo Ireland 💜
Hugs back atcha Jane!
Oh man, I can't believe I missed this today! Ironically, I was watching and sharing some of your other videos instead... Thank goodness for play-back. (Mererid, mid-Wales)
Howdy Mererid! TY for watching and TY for sharing!
Awweee, but don't be too upset , I think that's absolutely beautiful, think of all the people u helped... :")
#WeHaveMS
Good morning Michigan
Courtney
Courtney. Michigan
Excellent video. Sorry I have missed a few, back now. Thank you for teaching us.
I am so glad I found your UA-cam channel. I am currently 60, I was diagnosed a little over 2 years ago with PPMS. Dr believes I have had it for more than a decade, just without any serious symptoms. 2nd opinion Dr was not convinced it was PPMS, possibly RRMS. Urged me to do a spinal tap, first Dr. revisited the MRI findings with me and said it was my decision, keep in mind, the spinal is moderately dangerous at any age, cause you unnecessary pain, and will not change diagnoses. I was on Ocrevus, but due to COVID, Dr placed me on Kesimpta. Had a concerning lesion on Spinal cord/brain stem. With the D.M.T., my next MRI showed it gone, not calcified, but gone, great news in his opinion! I have shared your links to members of my M.S. meeting group! Currently I am the only guy, but the girls don't mind =). Odd side note, My wife has MS also (RRMS) she was diagnosed nearly 25 or so, years ago, odds for both of us to have it the Dr. said was aroud4,000,000 to one, unless we were somehow, possibly related, NOT LS in CA.
A Starbucks near me used to let me get a French press for the price of two Grandes, but they don't do it anymore. I used to get "shade grown Mexican," and it was amazing! They no longer have that bean anymore either, lol!
French Press is certainly delicious. I stick with Americano when at Starbuck personally. So smooth!
@@AaronBosterMD ☕ (:
I have PPMS feb2024 just cognitive issues no meds do to I’m 57 . Just wanted to say hi and I’m from Amsterdam Ohio but live in Virginia. My sister goes to Cleveland clinic .
Thank you Doctor my husband 69 years of age & was just diagnosed with MD
MS this is so scary we are waiting for a call from a doctor thank you for your kind help ❤
Cecelia and I’m 57 years old diagnosed in Feb 2024 with PPMS just showing cognitive decline no meds because I’m older from Amsterdam Ohio but live in Virginia now. Just wanting to say hi
Hi, Dr Boster
Thank you so much for the careing informative videos
YW Patricia!
Morning Sandra McIntosh from Trinidad and Tobago am learning so much from listening to you
I've done neuro-pysch tests - fascinating! Really good in some areas but not great processing speed. My memory is very good, if I manage to take the information on board in the first place :)
Thank you for sharing your experience with us Rebecca! Any tips to share on who you grapple with the processing speed issue? We could all learn from you!
@@AaronBosterMD well, they said though I couldn't speed it up, there were ways to make the most of it! For example: don't overload the system by trying to 'multi-task - concentrate on doing one thing at a time. And spilt that one thing into small sections if you can, so for cooking, it's a) get the ingredients out, get your utensils out, put the oven on b) measure the ingredients c) chop and prep ingredients (watching the fingers on the knife!) d) follow the recipe. I often break this up over time, and often rewrite the basics to make sure they've sunk in properly if it's a new/important meal. Treat every activity like a recipe - and an achievement. Your brain wants to help.
Cut down on distractions, especially if you are going to do something serious - I need silence to make an appointment on the phone cos processing dates and times can be a real challenge - (I can briefly picture what the numbers are but can't think how to say them and then they vanish). Repeat back and write down is the only way!.
And don't feel as though you have to go faster than feels comfortable. Don't force it. and you will go faster than you think! I try to tell people in busy situations that I have MS and so might listen more than talk.
Ooh, I could go on ;) Thanks for a chance to share! Lots of love to you all from London, where we've had an amazingly warm day!
Dr Booster, in previous live streams, lighting was a bit iffy, even camera at times struggled to keep fluid recording. This is the best one so far. What ever you used as a lightning source (or was it location itself?), keep using it. Keep up the good work!
TYVM Sasa!! I'm really trying to up my videography game. I should really take a course or something, but so far I just keep trying to teach myself by watching UA-cam vids and taking folks advice!
@@AaronBosterMD I used to be sales manager in one of our local computer shops before first noticeable MS episode struck me (and then I god fired because of that...), plus my dad was amateur photographer so I picked up few tricks lol.
You mentioned in one of your previous videos that you got Logitech camera, so I am guessing it's one of these web cams, C920 or even C922? If so, they are excellent webcams but they do have some limitations. One of is what I've mentioned before, fluid or choppy recording on lower light. Other is, they can only record up to 1080p and 30 frames per second (fps). But that can be an issue only for kids who like to stream games and be cool while doing so. So no problem there lol. No point of investing more into more expensive and better quality stream camera. I know most of us had or will have an ON episode at some point, and we will appreciate good quality videos to compensate what ON did to our eyes, but we already have that from you Dr Aron.
Here's one link: lifehacker.com/how-to-improve-your-photos-and-videos-with-affordable-l-1715963400 There are some good videos about light sources, plus some good reading. I hope it will help.
Sasa, TY so much for the tips and suggestions!! I super appreciate it!
@@AaronBosterMD No problem Dr Booster. You are doing much more for us anyways. That was least I could do.
I was 33 with putubatary cancer and 43 with DDD then 53 with oral cancer and 54 and diagnosed with Ms and cause of COVID and no Ms doctor in my province was present but got two Ms doctors 6 months ago so I'm now getting my doctor to refer me agaian hope it doesn't take too long.
Sami from NY. I was diagnosed about a year ago and always have such intense back pain. I take a muscle relaxers as I'm sure a lot do for this issues. It helps but not a lot. Advice?
Thank you Dr Boster and really appreciate you recommending Occupational Therapy (I’m an OT) 😁
Thank you. I wish I more clarity about ms before my 32 year old son passed. 😞💔
You are the best!!!!!!!
Greetings from Saskatchewan, Canada!
Good morning Byron van der Bank Pretoria South Africa 🇿🇦
Thank you again from Tennessee!
You're very welcome Brenda! #WeHaveMS
Good Evening. Karen from Houston
Good morning Dr. Boster,
Thank you for again another informative awesome live chat!!!
I’ve never tried French press coffee but I’ve heard good things about it and yours this morning certainly looked inviting so I’m going to give it a try one of these days.
Thanks again for everything you do and for everything you’re helping us learn about!!!
Regards,
French Press is the BOMB Paul!
Hello from Columbus
Howdy Stephen
Hi from Australia. Have only watched a little so far before work but love the idea of prehabilitation. Maybe that will help motivation levels. Thanks
You got this Leslie! What kinda exercise are you thinking about doing/trying out?
You got this Leslie! What kinda exercise are you thinking about doing/trying out?
I do clinical Pilates about once a week. I have an appointment next week to see an exercise physiologist and see what she suggests. I really just need to get motivated and get walking. Easiest, cheapest exercise there is and I live in a beautiful part of Australia
Hello Doctor ! I'm french and I want, first of all, to thank you about your work in this Channel... I'm Ms diagnosed since 2008 and nowaday i'm traited with Gilenya 0.5mg for 7 years... I'm afraid by the legends about this drug and the risk of developing a cancer... What do you think about this idea ? Sorry for my bad english and thank you by the way... Good bye
Sandy from Orangeville
I’m 69, yet to be diagnosed. MRI in two weeks.
Hello I’m Nancy from Tennessee- I’m learning so much from you! What do you think of PLEX (plasma)treatment when steroids don’t work?? I recently had that treatment which actually worked.
Portland Oregon
Detra Wilson, Orlando
Love your talk!
Thank you 😊
I guess I am the furthest away from this but I fight M.S. Been watching you a wee bit lately. Learning a lot. In Tauranga, Aotearoa. New Zealand :)
btw, i got it in my twenties and experienced everything in this video. plus two years in a wheelchair but now my neurologist, Andrew Chancellor, says I am defying all the odds. Fully ambulatory but nonstop pain. They don't understand the pain part. Could you possibly veer into the pain issue and what we can do... He wants me only on Pregabalin. It does not work for me. :(
22 years of fighting this now. The only one in NZ that is walking after this long! But the pain makes me want to die
Hi Dr. B. This is Vicki from Florida
Howdy Vicki
Good Morning, Dr. Boster. If an MS patient has stage 4 liver fibrosis, caused by a fatty liver, are they unable to take Ocrevus?
My name is Pat from Va and I have been diagnosed with MS 3 years ago. I have two questions.1. on my recent visit to my neurologist I was told of the two leisons found on my brain the largest was shrinking. Does that mean the ma is going away?
And 2. What is smouldering MS ?
Dear Dr B, I've been on Dr Bob Lawrence's LDN treatment since 2005!!
What's your verdict??
Can spasticity be improved.if so, how. Patricia Forbes. Co Durham. England.
Louise from Spokane Washington. My question … what does it mean when the doctor says your lesions are old but you still have MS.
Also, my ms has affected my voice- I sound like I’m on vibrate mode. What can I do about that?! Thank you again 🎗🎗🎗🎗🎗
What would you say about lesions about evenly split between the brain and spinal cord?
I was diagnosed with RRMS in Aug 2017. Initially optic neuritis, then again 7 months later. I got on copaxone (for a couple years) ….then Tecifidera/generic Tec/Vumerity..:.now Kesimpta (since about Aug 2022)
Was told it’s likely now SPMS. Not had many symptoms other than what seems progressive right leg weakness. I’m limping terribly. Did the MS walk last year, brought trekking poles (just in case)….used towards end of my 3-mile option.
This year, def wouldn’t choose 3 mile over one. And would use a trekking pole the whole time, if I go.
My right leg is like having a wooden leg…just tried Botox injections about 6 weeks ago, another appointment in May. First time didn’t seem to do very much at all. She said it could take trial-and-error. Stretching alongside the injections were recommended. Due for another MRI.
Any thoughts? Do Botox injections not work at all for some people or do I just need to get the dose higher?
Aaron, I exercise nearly every day 1/2 hr, we recently joined a large health gym. I am concerned about exposure to all the people there handling all the equipment, I feel like I need to be in a rubber suit and mask. ,concerned about getting sick from the extra exposure
I honestly would NOT let that stop me Keith. Wipe down equipment and have at it!
I honestly would NOT let that stop me Keith. Wipe down equipment and have at it!
Hi. Im from Singapore. Ive been having Ms for at least 15years
I have terrible fatigues. Its so difficult to do anything. I only want to lie down
I have lesions on my spine. I dont have good balance standing and walking.
My 2nd Rituximab was awful. During the infusuipn ill start coughing and bad asthms do my neuro said i cant be on it.
Good day dr boster. I am curious to know which symptoms your may experience with attacks on cerebellar peduncle and parietal lobe?
Dr. Boster the day after I do a lot of exercise my legs always feel worse. Is that normal?
I am in a similar position, I exercise nearly every day and I feel that I am getting weaker.
Yep. That's my normal. I find breaking my week into high, moderate and low activity days helps with the fatigue. Like, I might do home physical therapy one day, and shopping the next. I also have limits on e.g. how far I can walk in one day. This way I avoid the all or nothing phenomenon.
LOVE IT!!!
Hi
Are lentils,legumes and beans good for Ms?
Hi Dr. B! I'm sad that I always miss these. I wanted to ask you and please bear with me I'm not sure exactly how to word it, I am constantly thirsty. It doesnt matter how much water I drink, I always feel thirsty. I drink over a gallon of water every single day. Other than that I have my morning cup of coffee and that's all that I drink on a regular basis. Is dehydration more common in MS patients? I cannot not have my water with me. If I dont get all of my water I am not functioning properly. You are a wealth of knowledge Dr. B and you are so very appreciated! :)
I would talk to your provider about this concern for sure Kayla!
Thanks Dr. B!
Hello from Houston Tx. My name is Terrence Kemp
I heard the antihistamine can modestly improve the transmission of electrical signals in the optic nerve
#WeHaveMS
Do doctors take into consideration the problem of costs for tests?
For example I am on a fixed low income and cannot afford the MRI my new doc ordered? I don't know what to do or how to get this needed test.
Vicki Knox sometime the hospital will work with you.
Google MRI fund. I recall on the MS Society website there is info on funding for MRI's.
excellent tip Meloney!
for sure, my hospital system certainly does!
If I’m JCV positive, would it be okay to do Tysabri for a little while?
It's all about risk and risk aversion. The risk in the 1st year IF you are JCV antibody positive without prior chemo ranges from a 100th to a 1000th of a percent. It's not my place to tell you that is too much or too little of a risk.
Here’s a question! Can MS and leukoencephalopathy exist simultaneously? Or to put plainly, can MS eventually progress into leukoencephalopathy?
TRINIDAD & TOBAGO MARVIN
Erin White Rock, BC
Medicine for ms its expensive even with insurance ???
In USA, between insurance and assistance programs MOST folks can afford MS medications at a very reasonable price
@@AaronBosterMD thanks doc very good actions doc god bless
Ruth from New York What do you think of botox for treatment of bladder spasms?
amazing!
@@AaronBosterMD Meds not tolerated. Bladder issues are torturing me. Hoping for some relief. I will let you know what happens.
hang in there MsPerulo!
Hey Dr B. I have MS and now diagnosed with Meniers disease my gait is out of control. Any thoughts
"Sometimes nature is too generous." -Omar Azur Khan MD
Do you regularly screen patients for Lyme Disease before starting treatment for MS?
yes
Understand español doctor just wondering???
English and French only I'm afraid. Google Translate, however, is my friend!
Hi doc! Chadron NE
Howdy Melissa!
Will stem cell therapy allow a Progressive Ms to walk. Missouri
I was wondering, can the DMT's be ranked in effectiveness? Or is that too complicated of a question? I understand they all work differently.
It's challenging as there are only a few head to head studies. The following is MY PERSONAL OPINION ONLY. I think it's fair, however, to group meds as such:
lowest overall efficacy: injectables (interferon beta products and glatiramer acetate products)
medium range efficacy: pills (fingolimod, dimethyl fumerate, teriflunomide)
highest overall efficacy: monoclonal infusions (alemtuzumab, ocrelizumab, natalizumab).
@@AaronBosterMD I got my diagnosis of relapsing remitting MS. We decided on Tecfidera as a primary line of defense. If that doesn't work Cladribine. In Canada, the insurance companies won't allow Cladribine as a first line defense. They will only cover if the other doesn't work.
Vandana from New Jersey
Why aren’t headaches, pressure banding on head, buzzing on scalp, not considered MS symptoms?
PwMS are more likely to experience HAs Bethany
Aaron Boster MD ok thank you. I really Appreciate all of your videos. The info has helped me understand my husbands MS. My husband has been to 2 different neurologists that state his headache symptoms are not ms related. He never suffered headaches before his major flare. They are very debilitating and ever present. It’s just interesting to me they don’t add that to the list of his other symptoms to be ms related. Could you at some point do a video about ms and headaches?
I've been told that I have a "flat affect" is that type of symptom from the same cause as pseudobulbar affect?
flat affect = blunted affect = lack of emotional expression. Different than PBA
Dr Boster, I've read that there is an antihistamine that can help with ms symptoms,what are your thoughts on this sir?
which one did you read about?
It's called Clementine , you may have seen some information on it. As a person with MS I am always looking up information on it and stumbled across as yesterday
@@AaronBosterMD hello doctor boster thank you for getting back to me so soon. The antihistamine is called clemastine. I'm sure you've heard of it.
Hello from Dubai what is your input about Mavenclad
Howdy Elain! I visited Dubai last year and was amazed at it's beauty! Mavenclad is not available in USA as of right now. I think the mechanism of action is interesting, I think the efficacy is mid-range and Gilenya-like, and I think the safety profile isn't completely sorted out just yet.
Hi Dr Boster. I really appreciate these Q&A. My brain MRI only takes about 30 minutes. That’s with and without contrast. They do with contrast first for about 20 minutes, then put contrast in and another 10-15 minutes with the contrast. Are they doing that correctly? I feel like they must be missing views.
hard to say without looking at the protocol
Aaron Boster MD I will ask my neurologist what protocol they are requesting when ordering my MRIs. Thank you.
I disagree with imaging cervical more than thoracic. Actually because of the real estate. My worst MS problems come from transverse spinal myelitis in the thoracic spine. I have multiple lesions there with not much real estate. Hey how about a transverse myelitis video? :)
Another spinal myelitis! Dr.B you made me cry! " Your not done yet".
Dino I’m from Kent uk but 5 minutes from Belvedere. I want to know if you can tell me what causes muscle lock my whole right side locks up. Right eye neck pulls to the right and arms and legs
Yuck! Sounds like spasticity Dino. Yuck!
Is that just caused by ms or could it be lack of potassium. I just want to say I take no pharmaceutical drugs sometimes vid D
Forgot to thank you for the response I did think that too once again thank you Aaron
What would you tell your patient that cannot pay for things you order for them?
we work with the hospital system to apply for HCAP, charitable organizations to assist with copays and MRI costs and find way to get them the things they need.
Hello I was just wondering if you know of patients having functional neurological disorder plus demyelination lesions on the brain many thanks
Howdy Gemma. I'm afraid I cannot comment
Howdy Gemma. I'm afraid I cannot comment
Yes, you can have both FND and MS
@@The_real_makapaka many thanks for replying nice to know im not alone
LDN ...? Is it really beneficial?
Not in a manner that science can identify.
Can you get a Mmice attack from a infected tooth?
What can my wife do to help keep her ppms at bay?
Ppms is difficult but u must be each other strength,
~A very good friend of mine had ppms, we were in the nursing home together, she was married, I can tell you from being there, it was the most beautiful story on how a man loved a woman,although there's many examples..u see through every point in there life,you couldn't figure out who needed the other more, at points it was like he was her breath, he had saved her so many times , and she saved him just by exsisting,
~u see sometimes it's not so much about a focus on disease but a bigger focus on being there through it with her, n trufuly being present when ur there, it made so much of a difference in her life n I can truly a test she was healthier because of it, I too had a similar support at that time, and I again very much can say it was the difference from that time in the nursing home from the next time.
Don't understand estimate ur self and you being the big part of her village,being together. I promise it matters.
Also im not taking away from medical care,it's so very important but it's so different for every case.. furthermore, you are also important, and it should always be a very big focus.
I very much hope this helps. On some level.
Sincerely,
Divine 💞🐤
stay physically active, don't smoke, eat clean and supplement low vitamin D, take anti-B cell therapy (rituxan, ocrelizumab)
Howdy Dr. Boster! Question: In your opinion, what would you do if a patient is on Tecfidera, acquires lympopenia and test positive for the JCV antibody? If the dose is reduced to once daily and their counts recover but still positive for JCV? At what time would you switch to another DMT? Your opinion is appreciated.
IMO I'd switch. But of course you must talk to YOUR own provider to sort what is best for YOU at THIS time.
Find a way to notify us in advance about your live broadcasts, or at least your after party Q&A session! Greetings from Jerusalem!! ❤
Hugs!!
what relation is between high uric acid and MS
none that I'm aware of
sorry to say some dr says uric acid and MS has inverse to each other mean if a person has high uric acid he has no Ms
Divine 🐥 here, as my Ms is advancing I've noticed I keep missing your lives. Which is something I very much enjoy,
~ I'd like to say thank you, thank you for the longer stream, its the sole reason I was able to at least catch the end of the stream as my m.s. keeps me away.
Questions for after party.
. Is there any way in the world to truely tell the difference between splitisty and arthritic, pain? Or maybe im trying to ask what does spliticity truely feel like. ?
Can there be splaticity in a joint where there's true arthritis? Or is that spliticity?
Here's how it feels to me~
Like when you go to shut your front door and there's a unbearable pain in your shoulder joint for example, and then it's a very lasting memory of pain after that movement. Almost like a memory of movment but you body remembering every movement with pain instead of time. Is that splaticity?
Would u be willing to do another video on this subject,? To explain splaticity farther?
I wanted to ask this because as my diseases advance it's getting harder and harder to separate the symptoms, I had just emailed my palliative care about this issue, and it makes it so hard for her to help me when I can't even explain my self properly.
If this sounds familiar at all, in M.s. plz I'd be so greatful to hear about ur thoughts thanks a million Dr b.
And as always thanks for being a hero in our lives.
Sincerely
Divine 🐥
P.s. 🐔 chickens plz :*) 🐤🐥🙄
Thanks
Divine🐤💞
divine4x inm.s.u
Hello Divine,
Sorry to hear that your MS is advancing, and, that your multiple medical problems, makes it difficult to differentiate the symptoms. I have similar issues, especially with fatigue and walking. Some days I don't know what problem is responsible, all I know is that I need to stop and rest; lie down or fall down.😴
As for spasticity, thankfully, this is not an issue for me. However, at my last neuro exam, my Doctor reported that I had increased tone in my wrist. This I knew because my hand writing had changed; I was heavier with my pen, and sometimes my writing was more messy.
I hope your MS and other conditions are kind to you today, and that you can enjoy what the day has to offer.😀
Take Care,
🐢🌏
@@fedwards2023 hello , divine here,
~thanks so much for your message that was very sweet of u.
~ im hopeful that you recall your last exam, and talk about it with your Dr again, at the very least and of course Dr B, really at the very least, ... Wait no..@ the very best ask Dr boster! Also, ;*) I actually wanted to share a link about splaticity, it talks of tone issues...but I didn't want to put it on his channel, not knowing if it was ok,
~but im hopeful Dr b will talk about the splaticity agiain. How it's defined on Ms soceity website can be confusing. ... it be cool if he would unpack the chart of spatisty scale. It's just confusing to me.
~ if you have read any of my millions of comments u will see how I can't help but reply or ask questions , u see I got sick early around 14ish to 16ish yrs old. And with that said I've been to my share of drs. About 25 or so neros. So when I call out dr b. As the best I truely mean it. He pulled me out of my absolute bottom long ago, and I carried his words with me ever since, n to be honest I didn't realize how they had helped but hey they helped, n well u never know what u may say to a person that may change there life.
~Example your 🐢 made me smile( I rescued one , we saved his life...when I was at the nursing home and then donated him to wild life foundation 😂) he was almost like a companion pet for the residents. :*)
Also I feel you on falling, the nursing home tough us how to fall peoperly. Lol. and resting and the confusing symptoms. Mumm is the word.... or This will be a million more... pages if I don't stop talking. But I'ma so there with u..
*The problem is m.s. is like onions we have layers!!!*
Sincerely,
Divine 🐥💞🙃
God bless you and ur day also :*)
Spasticity = spasms (bouncing) of a limb across a joint, just as bouncing knee or ankle OR muscle cramps like Charlie horse OR still limb that are hard to bend (like trouble bending your knee to get into the car).
Chickens soon, once snow is melted and they can run about!
#WeHaveMS
@@AaronBosterMD
thank u, Dr. Erin.
Yeah it literally feels like my bones are breaking, I know that sounds absolutely insane, and very redonkulas, but it truely feels that way, I too have arthritis in most joints so I'll just stop crying about it and get used to the increase on pain, yeah some of my joints get stuck and I literally have to let it crack just so it will move. It's the beauty of arthritis I guess within a patient with also m.s.
Thanks so much for the answer.
~frustrating~ = auto immune diseases plus m.s. :*(
Sincerely,
Divine🐤🐤🐤🐤🙃 yay chickens :*) can't wait :*)
Can MS be a cause of stress fractures in the feet
not directly no. but if MS makes you walk with abnormal gait mechanics this can put undo stress on your joints and bones.
❣
Hi Aaron! Loving all your videos. I’m 3 months post Lemtrada and my lymphocytes have remained at normal levels. Is this normal? Does this mean the treatment hasn’t worked?
Thank you! Keep up the great work xx
Not enough info to comment. Definitely something to review with your MS provider!