Relationships and MS - Multiple Sclerosis Breaking it down podcast
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- Опубліковано 26 лис 2024
- Our relationships with the people around us, whether family, friends, partners or work colleagues, are important for our emotional health and practical support. But sometimes MS can feel like a barrier to those relationships, making it harder to maintain the ones that matter to us or develop new ones in the future. So today we are going to dive into some of those issues. We will be joined by Billy from shift. MS who lives with MS himself and Flora from or MS Trust helpline.
Episode notes:
Relationships and family life - Information from the MS Trust: www.mstrust.or...
Talking with fiends and family about MS - Information from the MS Trust: www.mstrust.or...
-Information for carers - Information from the MS Trust: www.mstrust.or...
MS Trust booklet; Someone I know has MS: www.shop.mstru...
MS Trust booklet; Kid's guide to MS: www.shop.mstru...
Caring for someone with MS - Podcast from the MS Trust: www.mstrust.or...
-MS Trust Facebook Group: / multiplesclerosistrust
-Shift.ms -a social network and community for people with MS: www.shift.ms
-Shift.ms Buddy system: www.shift.ms/t...
-Relationships and MS - webinar from MS Society Ireland: • Relationships and Mult...
Next episode
Our next podcast will be on disease modifying Drugs and MS, where we are hoping to dive into the world of MS treatments and answer some questions on the subject that you may have. If you have anything to say about DMT’s or that you want to ask about we would love to hear from you and your comment may even be featured on the episode! (it can remain totally anonymous) You can drop us a voice note or message via WhatsApp on 07458303326. Alternatively, you can email mystory@mstrust.org.uk. It can be totally anonymous.
WhatsApp messages aren’t monitored by our MS Helpline team so if you’ve got a question about life with MS that needs answering, please contact them directly on 0800 032 38 39 or email ask@mstrust.org.uk.
This is wonderful! Conversations like this are so great to share with the community. Thank you for posting this!
Oh, thank you all for this. I was diagnosed in 2011. Yes, relationships and MS is really a hard thing to manage... Hearing this is very supporting... For a long time I was alone on my island...not anymore. So thank you!!! One love, Walter
I really would like to know if any of you have or know someone who has dated someone who has M.S. as well. I hate explaining and describing symptoms and warning of possible health problems to people I want to become romantic with. I've heard, "Why do you always dwell on your MS?" He said he had dated another girl with MS and told me she never spoke/complained about it. He thought that me trying to explain my limitations was me being a Negative Nelly. I wanted to be realistic and I did not want him to think I just wanted to explain the possibilities so he would not be upset when symptoms would eventually show up.
I am still quite well, but I struggle with mobility sometimes. I have a lot of falls sometimes. My legs just give out. I can be perfectly fine, and suddenly without warning my legs turn into spaghetti. It is like passing out suddenly, but "waking up" before I hit the ground. I have heard people say they thought I was drunk or on drugs because I have balence issues and I struggle to lift my leg high enough when stepping up on a curb. I tripped and fell forward after a dinner date. I fell in front of my date and his daughter. whovwere walking in front of me. I told him I had M.S. about 2 months into dating. He said he dated someone with MS before, so I thought he would know about MS symptoms and, more specifically, the limitations and complications that could possibly arise. That night we went out to a Mexican diner. It was me, him and his 7 year old. I had one margarita. (I don't drink often and I get drunk from one drink) I was so embarrassed, then he said something about me falling because I was drunk. His daughter, who had previously really enjoyed my company became distant and aloof towards me almost suddenly. I was ashamed and knew it was a waste of time to try to explain my MS symptoms again because he obviously didn't even try to retain the information or care enough to even give me the benefit of the doubt.
I've thought ut would be awesome to date a man with MS. I imagine it would be so nice not to have to explain my disease any more. I often think about this, but I don't know any men close to me with MS. I wonder if what might happen is we both could fell apart together. Kind of the blind leading the blind, so to speak. I would really like to hear from anyone who has had a romantic relationship with a partner who had MS too. Are there any MS dating groups? Is it too hard to keep up with another sick person, especially if we both start to deteriorate mentally and/or physically at the same time. I would love to hear from anyone who has attempted this kind of relationship. I get so tired of explaining. I am often told I over explain. I guess I was absent on the day we all decided what level of explainarion was acceptable. 😂