25 Year-Old Deaf Patient Finds Out He's Going Blind Too | Chicago Med | MD TV
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- Опубліковано 10 вер 2024
- When a deaf patient learns he's also going blind because of a genetic desease called Usher Syndrome, he pushes away his also deaf girlfriend to avoid pity.
From Chicago Med Season 04, Episode 01, "Be My Better Half": Goodwin clashes with new hospital COO Gwen Garrett while April questions whether Ethan's sister is using drugs again; Charles confronts his past actions.
Chicago Med (2015) The doctors and nurses who work at the emergency ward of the Gaffney Chicago Medical Center strive to save the lives of their patients while dealing with personal and interpersonal issues.
Watch all seasons of Chicago Med here: www.justwatch....
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"She said that she'll be his eyes, and he'll be her ears" that got me, that's so sweet
My nan is 84 and is classed as blind my grandad is 87 and is deaf and this is what they call each other, the love they have is the most beautiful thing you have ever seen, my grandad still looks at my nan like he did when she was 16. Their love is unconditional, I've been with my husband for 25 yrs (I'm 40) and I hope our relationship is as beautiful as my nan and grandads is when we get to their age. X❤
blind and deaf...really makes you think about all the things we worry about in life and how meaningless they are in comparison to adversities like this
“Things could be worse”
I saw a video of a men that is deaf and blind, he uses his hands to "read" the sings form other people. otherwise, he would depand completely on brile
thats so deep, wild
Well, Helen keller was blind and deaf, but she managed well
I mean, there are definitely worse positions to be in than this.
I'm glad the entertainment industry is including ASL in their work. My youngest son was diagnosed with autism at two years old and is nonverbal. I taught all my children ASL, so he has a way to communicate with his family. In school, he has an interpreter, and his classmates are learning ASL to be able to communicate with one another. We live in Colorado and my parents live in California and they are learning ASL at the local community college to be able to communicate with their grandson. Although they're not fluent yet, they still are able to manage what they've learned to sign with him. What they don't know, my children teach them.
Am glad she realized how much the cochlear implant will help him since he will lose his sight . And also made him feel equally important to her.
The best thing about the last season of new Amsterdam is Dr. Wilder. You should check it out. Her monologue in ASL about the difficulties having a romantic relationship outside your language and culture is spectacular. while new Amsterdam is the best medical drama around imo, isn’t particularly great or anything so that scene is truly a notch above. I cannot explain how good it is, you have to see. The actress, the actual philosophical depth of the topic, the dialog writing, really really good stuff. This channel would do well to clip that
The cochlear implant is viewed differently for people who acquire hearing loss later in life than for those who are born deaf. I have personal and professional experience in the developmental disability field, specifically autism. The topic of curing or something similar is often brought up.
Yeah, in the autism community it's basically straight-up eugenics, because there's no way to prevent or treat it. If I'd somehow "become" autistic later in life, instead of being born this way, I could understand wanting some way to regain what aspects of my function were negatively impacted. But since it'd be tantamount to changing who I've always been long before I even had any choice, it's an appalling notion. There may be autistic people who would only benefit from a "cure", but I'm fine the way I am.
@@LyingTubethere is no real cure for autism specifically. people with autism can learn to mask (or hide) their autistic traits and learn to pick up on the patterns of social cues but autistic people will never view the world the way someone who isn’t autistic will.
@@LyingTube hearing the words to cure autism scares me. i like being autistic. i think its great though very hard at times.
@@LyingTubeno one is making talks about curing people currently with autism. It's about preventing more cases of autism
Very true. My Father Was born with an deformed ear, and fully devolved ear drum and ear canal that was shaped weird. Don't ask me how it was formed. My dad had to have skin surgery to at least make the ear look normal. This was the 1950s at the time so making a ear look like a ear wasn't he best but it just looks like his ear was burned. Dad went though life like normal. He even fascinated the draft doctor when he was called up for in 1973 for the Vietnam war. Dad knew he was gonna be a F4 or 4F but he felt that it was his duty to show up. He went through the test and when the doctor saw his ear he was just amazed at how it was form. The doctor have one for 40 years and had never seen an ear like my dads.
Dad could have gotten his ear worked on as the ear drum was fully formed and able to work but choose not to as that had been his way of life. He said when he got the word to give his surgery to someone who really deserved it like a kid. He did talk about the surgery with my mom and me. We told him that it was his choice and no matter what we would support him. I had told him later that i was hoping that he wouldn't get the surgery as that meant changing who he was and as someone that grew up in a hard of hearing household as both set of of grandparents were hard of hearing and someone that is my father in all but blood is hard of hearing as well. I call myself a Borderline CODA but never a CODA due to growing up the way i did. And the only drawback is that my normal speaking voice is loud but once i tell them about my family they understand.
I’m glad Bonnie came around to the cochlear implants because it was messed up how she was mad at him and said he didn’t love her because of it initially. Like, he has autonomy of his own body. It’s different when you loose abilities you once had versus never having those abilities to begin with.
Plenty of people are blind and deaf and live happy and healthy lives, just in case anyone watching this is scared.
I can't imagine that... But I'm happy for those people
Yep! ProTactile is a beautiful sign language and it's so delicate to learn. There aren't that many ProTactile Interpreters unfortunately. It's such a beautiful form of sign language
@@shiro_21 It might help you to seek out the perspectives of deafblind people then, if you have the time! On UA-cam, Jessica Kellgren-Fozard is the only one I'm aware of,and she is only blind in one eye I believe so I'm unsure if she identifies as deafblind. But there are plenty of TED talks and interviews and such, if you're interested! My ASL teacher brought in a deafblind friend of hers ever year for us to sign with when I was learning, he was really fun to talk to.
@@Mercy_LovejoyTheres people that want regular sign language taught to all children in every school but I’d rather ProTactile be taught to every child in every school as they are learning to read. Just think about how many children will grow up able to talk to literally anyone.
@@sideshowkazstuff3867 It would be a beautiful thing to see!
My friend can relate to him. She is both deaf and blind. It's not the end of the world, she said. Amazing lady!!!!!!!
how do u guys talk?
How do u guys interact
We learned about deaf culture when I was learning ASL in college. It’s such a close community of people.
I loved learning ASL (I’m a little rusty but I’ve been trying to get back into it). I tried taking Spanish because I knew nothing about ASL, but my learning disability made it so hard to learn a spoken/written language. When I finally decide to take it, I learned not just a language but a whole new understanding of deaf culture. It was eye opening.
Let me know if you find any good ways to get back into ASL! I've been thinking of joining a Discord group or something and doing video calls with sign language users but I'm a bit shy about it haha.
I was born hard of hearing, but with fully hearing parents so they raised me in the hearing world, thus I didn't learn any ASL until I became an adult and took several classes of ASL. It was a lot of fun, and the Deaf community in my area were really welcoming and nice to everyone. I hope the same holds true for your area, or the people that you meet that use ASL or any sign language.
@@Blan-Kitt I'm fully hearing, but I have a cousin who is hard of hearing and didn't know any ASL until she went to a college for the deaf and had to learn the whole language with help from her professors and classmates.
I still have the packets I got from my class I use as reference, and I've been relearning by watching ASL videos on UA-cam. Nothing crazy. Just relearning the basics, like finger spelling, counting, and words. Just a few days ago, I relearned colors and emotions.
I also used to watch Sue Thomas: F.B.Eye to help me practice. I even did a report on her for class🤓
I tried learning ASL and another language, I'm lucky I can remember English and HTML...does HTML count as a second language? LOL!
@@Blan-Kitt The Quest VR Headsets allow use of hand tracking in VRChat. There is actually a decent deaf community there that does teach ASL IIRC. I need to get a new headstrap for my Quest 2 before I even try to do it myself. Mine just broke.
I hope that Sharon, Daniel and Maggie won't leave the scene, since they're the only characters to appear in all seasons.
This reminds me of Helen Keller’s teacher and mentor Ann Sullivan. Because of some childhood illness, Helen Keller was deaf and blind. She was completely blocked from outside world. Ann Sullivan herself was partially blind but she was able to help Helen by teaching her braille from young age.
I know exactly how this feels. I started losing my hearing and eye sight in my right eye over 15 years ago. Now I'm fully deaf and completely blind in that eye. I also lost my sense of smell around the same age. It is incredibly hard not being able to smell, hear, or see anything on my right side, it makes it very difficult to interact with the world around me and other people. I've never made any friends in life and my family is no longer around. If it wasn't for my boyfriend I wouldn't be able to survive on my own. I can barely work a job anymore without one of my disabilities causing an issue and I get fired. I can't get any government assistance either. My life is very difficult and isolating, if I don't have anywhere to go or anything to do I do not leave my house. I can go months and months without leaving my house until I have a Drs appointment, or I somehow manage to get a job interview, or need to run errands or go grocery shopping. Other then that I keep myself isolated in my house that way I don't have to deal with the outside world cuz it's just to difficult for me.
I am sorry you are dealing with all that. You deserve government assistance, just because you are able bodied doesn't mean it is entirely safe for you to work with your sensory issues. It is truely unfair you have to miss out and still be expected to work a job.
@@JaboovoDNermelI've been trying to get government assistance for years but they won't accept me cuz I don't have enough doctor documentation of any of it cuz I never went to get any of it checked out until just a few months ago and I'm still waiting for some appointments and waiting for doctors to document it all so that I have actual proof and then maybe once I have all the correct paperwork I can reapply for everything and hopefully get approved
I wish you the best. It sucks you need so much paperwork that needs to be processed as paperwork can easily get mixed up in the process.
Being blind AND deaf? Suddenly all my problems seem dumb…
I love this video out of any other videos of Chicago Med because I want to become a hearing down syndrome ASL Interpreter so I could help and advocate for everyone. Because the kindness that you spread out there in the world is even more beautiful just like being part of the deaf community and using this unique language can help me jumpstart my career and find various jobs all around. Love you Maggie.
You are going to do so many amazing things with this kind of attitude! I am so happy for you
With this mindset, you are definitely gonna go far in life. ❤ I also want to learn ASL in the near future. I wish you the best!
Incredibly Sweet. I wish I could find someone who would treat me like I mattered
Sounds and looks like a match made in heaven. Good for them for having positivity and faith in each other.
I’m so happy about this ushers syndrome and RP there’s not enough awareness about it as it’s rare, I was born deaf and started losing my sight at 21 I’m from the uk and there’s only around 200 in uk who have this !!!
My dad is deaf. He has RP
The doctors told my dad he would be blind by the time he was 50. My dad is 78. He has no peripheral eyesight, but otherwise has a lot of sight. He is an anomaly. We are so blessed that he can still see. Many of his friends aren't so fortunate. Deafness and blindness tend to go hand in hand with Ushers. He is now experiencing muscle problems and other things that may linked to it, but he is still going strong. He is an inspiration. I believe Helen Keller said she would rather be blind than deaf. She would be able to hear the world. Cochlear Implants are a very sticky subject among the deaf community. They truly feel the way Bonnie stated. I used to work with deaf kids and a lot of the grown ups in the community were outraged at how many had them. I calmly explained that many of them would have gotten them also if their hearing parents had the technology available to them. Many of them agreed with that. Deaf culture is beautiful and special. I'm proud to have been raised in it.
How devastating we take so much for granted
Poor guy at least he had his finance there for him.
Something a little funky that most hearing people won't notice; The captions on this video are auto-generated. It's tons better than disabling captions outright, but auto-generated captions tend to be kind of cruddy. It's a little ironic when videos that have a topic or focus on hearing/D/deafness don't include proper captions.
Exactly. I use captions and I'm not deaf. There's no reason to not have captions on everything.
2:02 I know I shouldn't laugh but lady why are you closing the door!?!?😂
Providing a barrier to entry for other people to increase a sense of privacy
Yes, that's a sign of respect for the couples' privacy. Though I can see how it's funny.
I’m a little confused with the ending. If he’s going blind how can she be his eyes when he won’t be able to see what she signs…….
He will feel it cause she prob. will sign it on his back or hand etc.
There is something called deaf blind sign it’s more tactile it is done in the hand and arms rather than traditional sign
She can also tap on things, maybe set up helpful devices around their home. There are also tactile was to sign, sort of like different versions of the same language.
Thank you guys for educating me!!! I didn’t know about tactile sign
Retinitis Pigmentosa runs in my family. It creates tunnel vision and eventual blindness. But its not guaranteed. My dad had it and was almost completely blind. But he also had cataracts and poorly controlled diabetes. My uncle has it and can still see in his fifties.
Symptoms typically show up around eighteen. I'm going on thirty and so far they haven't found anything. I hold my breath every time my optician tests for it.
aww who’s cutting onions! 🥹🥲
I have never seen him in anything else, but that young man is a phenomenal actor and I hope to see him grow in his career. If he isn't really deaf, then this performance is mind-blowing and if he is, well he's still pretty great!
James Caverly! He is also in Only Murders in the Building as a supporting character and is great in that as well.
Yes, he is Deaf
man im over here bawling my eyes out this really hit me in the feels spot
As a person who is deaf in both ears (wears hearing aids) and is partially blind. I really understand how they feel about each other. Me and my partner are both deaf as well (both of us wear hearing aids) she does sign language as well to communicate while talking.
Oh this poor guy....One of my favorite youtubers has Retinitis pigmentosa, it's caused him to lose about 90% of his vision already, and he's very slowly losing the rest. He said that his field of vision is like looking through a straw. The rest of his field of vision is just static like on a tv. The channel is Matthew and Paul, they're very informative and funny. Anyway, that's what this character has to look forward to for the rest of his life.
One of my friends recently found out he has this disease. He's always been HoH and uses both hearing aids & ASL, but he's a writer & recently learned he's going to go blind.
Relationships are about being strong where your partner is weak and weak where your partner is strong
So sweet
Loosing my eyesight and hearing is one of my biggest fears.
If he only went deaf about 14 months prior why isn't he able to speak properly? From what I've seen, don't people who go deaf later in life speak just fine still, since they used to be able to hear?
Why can’t I find a relationship as cute as theirs, minus all the odds still sticking together and facing it head on
I wonder if it hurts to be able to hear for the first time if you were born deaf and get the implant?
Omg poor man he’s going blind I feel so so bad for Bonnie 😢😢
I'm here 0:13 is it high intracranial pressure? Or hydrocephalus?
Wow.. 3:48 .. very similar symptoms I'm way off
Blind and deaf, great combo like great rush hour traffic and roadwork go together, not
Bonnie is fricking selfish if you ask me.
I feel like she is wrong and right too like she might not believe it, but it’s not her choice. It’s his, and it was rude of her like storm out.
Think about like this. Bonnie was born Deaf and that is the way of life she lived, she didn't see anything wrong with that. Peter was born able to hear but lost his hearing at 14. He grew up in both worlds. He had a chance to hear again but that didn't mean he didn't care about Bonnie. Bonnie thought it was wrong to change who you were and seemed to be uncomfortable with that idea. She wasn't being selfish per say, she just needed a moment to relax and understand. Peter loved Bonnie that he was willing to send her away but she still came back.
As the one doctor explained, Coular Implants are are somewhat taboo in deaf community big time if you are born deaf. Yes Bonnie was being a little selfish but remember she was born into the world with how being able to hear. Peter wasn't.
We might not understand it from the view of not being deaf or blind.
@@sassbrat valid point
@@kamenriderblackman4426 I say that as I as I grew up being able to hear but was raised around people who were born half deaf or were losing their hearing. My dad turned down a surgery to open up his ear canal as it was misshaped but his ear drum was fully formed. He was also born with out an ear in the 1950s but with some really bad plastic sugery he got an ear that just makes it seem like it was burned. Dad talked to us about the surgery and we told him that it was his choice and we would support him no matter what. he turned it down saying give his spot to someone young or who really needed it as he was 50 at the time. I told him later that i was glad that he turned it down as he would be changing who he was.
I'm not saying getting surgery is a bad thing for the hearing impaired, I am just saying make sure it what you want to do. not what anyone else wants you to do.
@sassbrat Ohhh, in that case, my apologies if I offended you.
that was too cute
If he had hearing until 14 why has his speech altered?
Well, this hit posted a home that I thought it would mainly because it involves the character of the patient having a retinitspigmentosa also known as RP and as someone who actually does have RP and was diagnosed at the age of 8 1/2 and has a post in 31 1/2 years old, and was officially diagnosed as legally blind at the age of 23 way before they expected to because at a half they were told they wouldn’t be completely blind until they were in the early to mid 80s in that they wouldn’t even be legally buy until the mid to late 30s there’s more like mid 20s when they were legally blind in living most of your life, but at this point with RP it has close to home and I don’t know if I have a shoe syndrome. That’s one dactyl they actually don’t officially have for now I’m wondering because I’ve had a lot of genetic testing on, and they can’t find a course of mine, but I was born with it and so I don’t even know what the cause of minors but now I’m wondering if my. RP could be quest for the same thing or something totally different note to self. Keep that in mind to ask my retinal specialist next time I have an appointment with them but yeah, this one is a little closer home just because it mentions retinitspigmentosa good night Wes with that same diagnosis
Is he going lame too?
Maggie with the sign language?
This is so real and I thank Jesus Christ for everything
Ok so the fiancee wants him again because he will be blind and therefore still in her " community of disabled?"
I think it's rather because he is using the cochlear implants as a way to still observe the world with his vision being gone, not because he views being deaf as a negative thing
Deaf people with cochlear implants are still Deaf; she was going to leave him because she felt afraid he thought she was broken or less than. He specifically says it's because "she thinks this means I don't love her"- it has nothing to do with the cochlear implants. She came back because they were able to have a conversation and he could reassure her that just because the implants were the right choice for him, doesn't mean he thinks it should be the right choice for her. She walked out because she was emotional and scared and came back even though no one told her anything because she realized she was being impulsive.
Please, remember every disabled and Deaf (not every Deaf person will consider themselves disabled, for the record, and they have a pretty separate culture from the wider disabled community) person has a lot of experience and trauma of people trying to 'fix' them, especially people you love.
If he's got RP they should be putting dark glasses on him straight away.
House M.D. Love Is Blind
Maggie is a queen!!! 👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻
My husband has rhinitis with pigmentosa and usher syndrome he was born with it . His eyes are worse more than before now he has an eye sewing needle 🪡 left no side at all no seeing at night. Only Jesus Christ is keeping my husband and I know this . Thank you lord
This is very sweet. Though I wonder... he could probably still communicate with her by using signs and maybe she can read his lips, but how will she communicate with him? Since she's deaf since birth she cannot speak, and since he cannot see she cannot use signs with him... I'm sure there are ways, but if anybody knows them feel free to tell me, I am genuinely curious
Getting a cochlear implant should not be controversial
i imagine deaf ppl like hybrid cars
this is sad
Your back
Genuine question. How do blind and deaf people comunicate?
Tactile signing is a big way. That's what Helen Keller did.
But how can she talk to him now that he will lose his eyesight. She is mute too.
You can sign on somebodys back or hand etc. It takes practice ofc. I saw it before in a documentary.
it will take some time for him to go completely blind, he can learn to feel the signing from her
@@MsElfi90 That was how Helen Keller 'spoke'
My grandson gets his soon
My daughter has usher syndrome.
I have two step brothers withe this
Theo!
I mean, he definitely needs that implant working now, if he's going blind he can't see to sign or see her sign.
is the sign language correct?
I'm not fluent, but the signs I was able to pick up seemed to be accurate
I'm an ASL interpreter and a CODA. The signs were all correct.
@@crystalkacmar5071 wow, impressive. thanks
Im Deaf and could understand it perfectly when the signing was actually in frame.
Martin Betty Wilson Thomas Clark Jose
First
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I’m legally blind and legally deaf disabled woman🦯🦻🏾🦯✌🏾👍🏿🤟🏿I know ASL since 3 grade in special education for people with multiple disabilities. I also learned Braille in sophomore high school and now at level third grade reader. And use 🦯 cane when I’m sophomore because of anxiety about going to be blind but I still have vision because of laser eye surgery that prevented from retinal detachment and already had cataract removed with lens that treated severe myopia so I no longer wear thick strong prescription glasses anymore. I also wear hearing aids too. Plus I’m both emotional handicapped with psych meds helped me and physical handicapped with no aids except for blind cane. 🦯 I love this show. It’s my favorite . God bless 🤩 🎉😂😍🥰