Great video Dan, as always, thank you for that. I find it key to be kind to ourselves, in order to keep a strategy going, as you said. It can be a longtime work to understand why we're not kind to ourself and to change our habits of how we talk to ourself in our mind and to react. And only then, it starts to be more easy to be consistent in our strategy. Growing up, adults, teachers, parents...too often tell us what to do, to obey, and we often obey only not to be punished. That's what I did anyway 🙂. We don't learn enough to do things for us and for the greater good, in order for us and others to function well. It's always about "what am I going to get if I do this ?" or "What trouble am I going to avoid from the outside world by not doing this ?". Us and the rest of the world are the same, and what we do for us benefits for other in a more or less direct way. It's just that kindness we need to have for us as well as for others. Thinking that we're all connected, helped me be more kind to myself, that's why I'm sharing this. It helped me erase that old fear of punishment, and not feel selfish when I'm kind to myself. Because I always felt that all my actions are connected to the outside world, and "only thinking about me" always felt not right, like a piece of the puzzle was missing. So now I can "only think about me" sometimes, when I need it, because I know that "me" is always deep down a part of "us".
Only just got round to watching this video. It’s great obviously, nothing from you isn’t great Dan. So my current strategy is very simple, I get triggered, I feel a few symptoms etc but I dont think past there. I don’t question why I’ve been triggered or what ‘I’ve done wrong’ i just carry on what I’m doing but focus on reassuring ‘myself’ that I’m safe/capable/etc etc. Keeping it simple- less knowledge is helpful x
This is a great video. I recently have entered a flare, and admittedly my mindset has gotten a bit skewed. I’ve found myself questioning why this is happening and if my recovery strategies are “good enough”. How can I move forward? I know first to accept the emotions I’m feeling towards the flare, which has helped greatly. I think I need to get out of the mindset of a quick fix as well
Well, the framework hasn't changed - however, I have learned in the last decade that other factors than the dysfunctions and symptoms appear to influence recovery more. Certainly the emotional distress from the severe illness (& the gaslighting) often stops people to be able to make better progress. Some people are so rattled by this, they can barely do anything constructive to help themselves. I think anyone who has had this illness for some time can relate to this experience at times.
This is not an easy question to answer. I used to think that certain people can't recover for a whole range of reasons and I could have given you a lengthy argument why this is so - however, I have been proven wrong many times (I never said that to anyone). So having seen people recover who have been ill over 4 decades, people who were bedbound for long times, severely ill people, people who are young and elderly, people who have comorbidities like severe mental health issues, EDS, autism and others as well as people who have severe and complex PTSD or severe living challenges like being in an abusive relationship and even being homeless - these things have made me lean towards the notion that everyone can recover. However, I am not sure we can scientifically make such a statement, nor can we dispute it - but I certainly am forming such a belief and is strengthened the more experience I have.
Grateful for my nice warm home, family & friends . Permission to simplify is very important & helpful advice, thank you 🙏⭐️🎄
Great video Dan, as always, thank you for that. I find it key to be kind to ourselves, in order to keep a strategy going, as you said. It can be a longtime work to understand why we're not kind to ourself and to change our habits of how we talk to ourself in our mind and to react. And only then, it starts to be more easy to be consistent in our strategy.
Growing up, adults, teachers, parents...too often tell us what to do, to obey, and we often obey only not to be punished. That's what I did anyway 🙂. We don't learn enough to do things for us and for the greater good, in order for us and others to function well. It's always about "what am I going to get if I do this ?" or "What trouble am I going to avoid from the outside world by not doing this ?". Us and the rest of the world are the same, and what we do for us benefits for other in a more or less direct way. It's just that kindness we need to have for us as well as for others.
Thinking that we're all connected, helped me be more kind to myself, that's why I'm sharing this. It helped me erase that old fear of punishment, and not feel selfish when I'm kind to myself. Because I always felt that all my actions are connected to the outside world, and "only thinking about me" always felt not right, like a piece of the puzzle was missing. So now I can "only think about me" sometimes, when I need it, because I know that "me" is always deep down a part of "us".
A very good and interesting video. I'm gonna try to take the challenge (I know what you're gonna say: there is no try, either do or do not).
Only just got round to watching this video. It’s great obviously, nothing from you isn’t great Dan. So my current strategy is very simple, I get triggered, I feel a few symptoms etc but I dont think past there. I don’t question why I’ve been triggered or what ‘I’ve done wrong’ i just carry on what I’m doing but focus on reassuring ‘myself’ that I’m safe/capable/etc etc. Keeping it simple- less knowledge is helpful x
This is a great video. I recently have entered a flare, and admittedly my mindset has gotten a bit skewed. I’ve found myself questioning why this is happening and if my recovery strategies are “good enough”. How can I move forward? I know first to accept the emotions I’m feeling towards the flare, which has helped greatly. I think I need to get out of the mindset of a quick fix as well
Can you send me information on your courses please.
Here is a link to the intro lessons: ansrewire.com/info-request/
Have your understanding of what you need to recover change over the years you’ve been doing this worl?
Well, the framework hasn't changed - however, I have learned in the last decade that other factors than the dysfunctions and symptoms appear to influence recovery more. Certainly the emotional distress from the severe illness (& the gaslighting) often stops people to be able to make better progress. Some people are so rattled by this, they can barely do anything constructive to help themselves. I think anyone who has had this illness for some time can relate to this experience at times.
Do you believe everyone with ME/CFS can recover?
This is not an easy question to answer. I used to think that certain people can't recover for a whole range of reasons and I could have given you a lengthy argument why this is so - however, I have been proven wrong many times (I never said that to anyone). So having seen people recover who have been ill over 4 decades, people who were bedbound for long times, severely ill people, people who are young and elderly, people who have comorbidities like severe mental health issues, EDS, autism and others as well as people who have severe and complex PTSD or severe living challenges like being in an abusive relationship and even being homeless - these things have made me lean towards the notion that everyone can recover. However, I am not sure we can scientifically make such a statement, nor can we dispute it - but I certainly am forming such a belief and is strengthened the more experience I have.