Chronic Illness Weekly: POTS & Pain Flares & a day at the beach || Week 124
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- Опубліковано 24 тра 2020
- This week on Chronic Illness Weekly it is getting hotter in the UK and my POTS, despite being well managed is taking time to adjust meaning spending hot days in bed in a dark room and not getting out for my walk til much later in the evening when the weather is cooler. Friday brought cooler weather and with the wind my POTS was behaving better so I took the opportunity to head to the beach (which was very quiet and easy to be distanced). I got to say hello to my Nanna and had a picnic on the beach, built sandcastles and went for a paddle, it really improved the trajectory my mental health was diving down into. It was the best day but I did get very burnt! Unfortunately my weekend was not as fun as nerve pain plagued my back and hips.
Chronic Illness Weekly is, you guessed it, a weekly vlog showing you my life with Chronic Illness. I share my experiences with Ehlers Danlos Syndrome ( EDS ), Postural Orthostatic Tachycardia Syndrome ( POTS ) and Chronic Migraine. I fight chronic pain and fatigue and many other symptoms on a daily basis but I try not to let it stop me.
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Hey there Jenni! Hope you are feeling better? We know exactly where you are coming from, it was a bad week in our household too, pain and pots took over everything! But today is a new day and we keep smiling and battling on and seeing your happy smiling face always makes things a little brighter and let's us know that we are not alone in our daily struggles 🦓🥰
Unfortunately today is not a good day but generally much better than last week. I'm sorry you're feeling the same way but I'm also very glad I have you guys who help me feel less alone in all this. Spoons & Love x
Yesss I get it!! It is definitely a learning experience of balancing rest and risk of going over the line and paying for it later.🥺 Hugs! Absolutely love your videos as they are super helpful not just for myself but also explaining to others what it can be like as well. Thank you!💜🦓💜
definitely such a tricky balance! Thank you so much!! x
You seriously give me hope.... I am so happy I found your page
Awww thank you so much xx
I hope you feel better today sweetie. Sadly my neck has joined in the fun with your back 😢 xxxxxxxx
Oh no hope it calms down for you soon xx
Ooh look at you pacing! Yes queen!! Ooh if you want a good show on Netflix check out sweet magnolias I loved it xx
Hahah trying to! Ooo I'll have a look thanks lovely x