Multifocal Motor Neuropathy with argenx

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  • Опубліковано 22 жов 2024

КОМЕНТАРІ • 7

  • @angelinawilliamson6841
    @angelinawilliamson6841 11 місяців тому

    Glad I found y’all
    Thanks for sharing yr story

  • @samdanner6806
    @samdanner6806 11 місяців тому

    Multifocal Motor Neuropathy has changed my life.

  • @vickiebrown3687
    @vickiebrown3687 11 місяців тому

    Hello ladies. Thank you for sharing your story. I can relate to Jennifer. I was diagnosed with MMN back in 2017. I was originally diagnosed with ALS, but after a barrage of diagnostics (including the EMG/Nerve Conduction testing) I was finally diagnosed with MMN. My disease affects both of my hands pretty severely and my feet, to a lesser extent. I have been receiving IVIG for two consecutive days every 28 days and it has helped, though I feel like I’ve plateaued with any progress for the last couple of years. Best wishes to you, Jennifer. It’s so comforting to hear someone else who is going through this journey since there aren’t many of us. ❤😊

  • @Sweetearth1958
    @Sweetearth1958 7 місяців тому

    My symptoms are exactly like Jennifers. I just went to the Facebook page. And I had the most stress in my life before this started. So much stress that I thought for sure I would have a heart attack.

  • @mohammadhossain5547
    @mohammadhossain5547 6 місяців тому

    😢

  • @angelinawilliamson6841
    @angelinawilliamson6841 11 місяців тому

    How do I find Jennifer on Facebook MMN support groupm

    • @Sweetearth1958
      @Sweetearth1958 7 місяців тому

      Here: MMN Multifocal Motor Neuropathy WARRIORS