Its meant to be rare for women to get this yet it’s been 3 women who’s videos I've learned from on YT, come on men, get your vids on here, raise awareness 🤗
Just dropped in from 👏🇬🇧! 2015 GBS hell 2024 still . 2020- GBS / MMNCB more hell IVIG simply has never worked for me since day one ,so basically Foot drop (right) balance,Peripheral neuropathy, atrophy muscles,Essential tremors,fasciculations,cramps ,trips ,can’t open jars ,pill meds ,keys in car ,door keys ,help bath 🛀,shaving,list goes on …slowly deteriorate Physically mentally socially financially. Simply I never believe’You was Fully Fit active Sportsman’ you be fine in year two. Before 2015 Gym Cycling Walking Dogs walking Rugby don’t drink don’t smoke eat super healthy. But nope GBS rare 1/1000000 MMNCB rare 0.6/ 100000 Advice! Don’t be fooled by Drs Neurologists fight your corner otherwise you be just another patient and forgotten about in the massive overwhelming NHS 🇬🇧🏴 keep pushing after cancellation of appointments,politely but pushy.
You have no idea how lucky you are, as someone dealing with ALS I wished to get such a diagnosis. Count your blessings and god bless you.
What an outstanding video...thanks for creating this to help all of us patients!
IVIG doesn't work in so many cases,I heard.
Its meant to be rare for women to get this yet it’s been 3 women who’s videos I've learned from on YT, come on men, get your vids on here, raise awareness 🤗
Yes it's really hard,, I know
Just dropped in from 👏🇬🇧!
2015 GBS hell 2024 still .
2020- GBS / MMNCB more hell
IVIG simply has never worked for me since day one ,so basically Foot drop (right) balance,Peripheral neuropathy, atrophy muscles,Essential tremors,fasciculations,cramps ,trips ,can’t open jars ,pill meds ,keys in car ,door keys ,help bath 🛀,shaving,list goes on …slowly deteriorate Physically mentally socially financially.
Simply I never believe’You was Fully Fit active Sportsman’ you be fine in year two.
Before 2015 Gym Cycling Walking Dogs walking Rugby don’t drink don’t smoke eat super healthy.
But nope GBS rare 1/1000000 MMNCB rare 0.6/ 100000
Advice! Don’t be fooled by Drs Neurologists fight your corner otherwise you be just another patient and forgotten about in the massive overwhelming NHS 🇬🇧🏴 keep pushing after cancellation of appointments,politely but pushy.