Thank you for telling your story! It gives me hope! I'm a 3 year lung cancer survivor and was just told by my doctor now I have CLL. Hope your still doing well!
"Rare but potentially serious side effects include an abnormal heartbeat, chest pain, and other heart problems. Because of these possible side effects, if IL-2 is given in high doses, it must be done in a hospital." I guess that explains why every oncologist doesn't just use Car-T Cell therapy on everyone who has CLL! But if you're dying, what is there to loose?
@@Zooey413the way I think of is as a halfway point 😊 so fully half will live longer than that. I have a friend who has survived 17 years with CML and two others on the cancer forum I read, almost 20 years each with CLL ❤ and another friend literally 50 years with lymphoma, don't know which one
I am a chronic lymphocytic leukemia patient suffering since one year. Every thing is going on well after eating tablet ibrutinib. One thing I am noticing that my bodyweight is decreasing slowly. Will anyone advise and suggest that why there is decrease in weight.
@@rozanahwirt1311 Thanks for responding. When I was normal my bodyweight was approximately around 60 kg, but after being diseased it has reduced considerably and came down to 49. Since 2022 to 2024 my bodyweight is 46 to 49. I am consuming capsule Ibrutinib 140 mg two capsule daily. Rest is ok. Please it would be a boon on my if you pass suggestions and advices. Please guide me to save my life.
Wow! What a nice story.
Thank you for telling your story! It gives me hope! I'm a 3 year lung cancer survivor and was just told by my doctor now I have CLL. Hope your still doing well!
This is insane !! Why are we not promoting this therapy ????
Glad you are well
WHY ARE NOT MORE PEOPLE TREATED THIS WAY ?????? IN 2022, I DON'T UNDERSTAND.??????? 12-6-22.
This was the year that my son was diagnosed
How does one get accepted into this program?
How is Doug Olsen now?
"Rare but potentially serious side effects include an abnormal heartbeat, chest pain, and other heart problems. Because of these possible side effects, if IL-2 is given in high doses, it must be done in a hospital." I guess that explains why every oncologist doesn't just use Car-T Cell therapy on everyone who has CLL! But if you're dying, what is there to loose?
Most people do survive it
ironic how the least aggressive cancer has no cure
But I thought the life expectancy was 10 years after diagnosis?
@@Zooey413the way I think of is as a halfway point 😊 so fully half will live longer than that. I have a friend who has survived 17 years with CML and two others on the cancer forum I read, almost 20 years each with CLL ❤ and another friend literally 50 years with lymphoma, don't know which one
I am a chronic lymphocytic leukemia patient suffering since one year. Every thing is going on well after eating tablet ibrutinib. One thing I am noticing that my bodyweight is decreasing slowly. Will anyone advise and suggest that why there is decrease in weight.
That’s part of it, 10% weight loss
@@rozanahwirt1311 Thanks for responding. When I was normal my bodyweight was approximately around 60 kg, but after being diseased it has reduced considerably and came down to 49. Since 2022 to 2024 my bodyweight is 46 to 49. I am consuming capsule Ibrutinib 140 mg two capsule daily. Rest is ok. Please it would be a boon on my if you pass suggestions and advices. Please guide me to save my life.