How long does someone live with AML?

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  • Опубліковано 16 гру 2024

КОМЕНТАРІ • 174

  • @annettenewton6240
    @annettenewton6240 Рік тому +130

    I was diagnosed with AML in June of 1996. I was 32 and had 2 small children ages 2 and 4. I fought hard to live for them. During my treatment every thing that could go wrong went wrong. I never had to do the transplant which I was told I had over 250 possibly matches, but I had to do the second round of chemo because the first one did not get me in remission. Out of 7 months time I was in the hospital 4 months. I will be 60 years old in October so I have been in remission 27 years. So thankful for my doctors they were so kind.

  • @rebecca78612
    @rebecca78612 8 місяців тому +26

    My husband just got the news he has AML today. He is 55 and has health issues. Praying for miracles and struggling to remain positive and strong

    • @reshavdas2447
      @reshavdas2447 6 місяців тому

      God bless him

    • @saraswathy8207
      @saraswathy8207 5 місяців тому +1

      Stay strong...

    • @OtomeGameHell
      @OtomeGameHell 4 місяці тому +1

      Stay strong, hope things are going well. My 64 years old mother just got the news this week, also struggling to keep strong and praying all kinds of miracles

    • @reshavdas2447
      @reshavdas2447 4 місяці тому +2

      @@OtomeGameHell I am also AML patient.
      DON'T WORRY... It is curable..

    • @raguraman9006
      @raguraman9006 3 місяці тому

      Where you have been taking the treatment for AML

  • @KQuinn672
    @KQuinn672 Рік тому +46

    im in remission four years....i was diagnosed march 14 2019....had several rounds of chemo...had my bmt on july 17 same year...next year is my five year mark....so im living but its in the back of my head that it can return...so i pray for you all...im so sorry for those who have lost their loved ones to this..prayers

    • @HTUforBloodCancers
      @HTUforBloodCancers  Рік тому +1

      I'm glad to hear that you're in remission! Thank you for your support and prayers for those who need it

    • @KQuinn672
      @KQuinn672 Рік тому

      @@HTUforBloodCancers thank you....

    • @bikashpatel1358
      @bikashpatel1358 Рік тому

      Hello please help me I am also AML patient with FLT3 positive mutation please donate me midostaurin or gilteritinib to survive

    • @KQuinn672
      @KQuinn672 Рік тому

      @@bikashpatel1358 im so sorry i dont even have the money...my insurance pays for me...i pray someone can help you

    • @bikashpatel1358
      @bikashpatel1358 Рік тому

      @@KQuinn672 anyone you know him he have left midostaurin or gilteritinib he can donate me easily .
      To buy medicine from US I need US prescription but I am from Nepal one of the poorest countries I don't have even enough money to buy can you help me to buy medicine from US if you help it's very helpful to me

  • @annryan1098
    @annryan1098 2 роки тому +67

    My name is Ann Ryan I was diagnosed with alm in Sept 16 had a stem cell transplant in feb17 and doing really well thanks to my doner and hope to keep doing well

    • @QuestForGood
      @QuestForGood Рік тому

      How old are you?

    • @dbown1959
      @dbown1959 Рік тому

      Right on, glad your doing well. Im going in for a stem cell transplant at City of Hope in Duarte Ca, starting on April 24th, I'll probably be there for about a month I hope. The cancer i have started out as CMML-2 and advanced to AML. Was diagnosed on Aug. 15th. I hope the best for you good luck.

    • @bikashpatel1358
      @bikashpatel1358 Рік тому

      Hello please help me midostaurin or gilteritinib tablet I am also AML patient

    • @KQuinn672
      @KQuinn672 Рік тому +2

      so happy for you...i dont know if you have any changes...but i can say your dna will change...in fact i think next year im going to do the ancestry thing to see how much of my donor i have...also im interested in things i never was before..like colonial times and civil war so you may pick up interests that you never had...because the donor's dna is inside you...i wish you well and blessings. i do pray that my Irish ancestry stays!

    • @nicopocho8749
      @nicopocho8749 Рік тому

      How are you?

  • @jac9508
    @jac9508 Рік тому +26

    My boyfriend passed away from AML complications last month. He was only 32 years old when he passed away. I am so glad that there is more survivors of AML.

    • @HTUforBloodCancers
      @HTUforBloodCancers  Рік тому +3

      I am so very sorry to hear that! I can't imagine how you must feel. I hope all the best moving forward at this difficult time.

    • @jac9508
      @jac9508 Рік тому

      @@HTUforBloodCancers Thank you. Let's just hope that the prognosis and survival rate of AML would increase in the future

    • @Tonykayemusic
      @Tonykayemusic Рік тому +2

      Im so sorry to hear this... take care.

    • @jennifermckeown7093
      @jennifermckeown7093 Рік тому +2

      I’m very sorry for your loss…..I’m a survivor of aml since 2018 and I feel blessed. However, chemo has destroyed so much of my body that I had no knowledge of the complications that would arise. Cancer sucks..

    • @jagjitsingh-ps3fc
      @jagjitsingh-ps3fc Рік тому +1

      My girlfriend 18 years old fighting with AML, she's didn't have confidence. what can I do for her, she's always in sadness

  • @fadam132
    @fadam132 10 місяців тому +8

    I was diagnosed in Nov 2017 at age 47. Failed 3+7 but then got the venetoclax combo as a last resort. It fixed me and on Feb 8 2018 had my transplant.
    NEVER GIVE UP HOPE !

    • @FierceOfficial
      @FierceOfficial 8 місяців тому

      my father is diagnosed with AML at age 47 aswell. He will receive 7+3 chemo , and i rly hope a sustainable survival rate can be achieved

    • @VedRajak-ef8gm
      @VedRajak-ef8gm Місяць тому

      How are you now dear sir

  • @conniechloe53
    @conniechloe53 Місяць тому +2

    AML diagnosed in 2014, age 53. Relapsed twice, once each year. Had a stem cell transplant in 2016 with my half matched sister, just turned 64. I was inversion 16, which is a favorable outcome condition.

  • @karenp7046
    @karenp7046 Рік тому +22

    I was diagnosed with AML in January 2015 at age 62. Following chemo I had a stem cell transplant in August of that year from a donor that went well. I am now healthy, happy and grateful. I found a study online that found AML survivors overall report better quality of life than the general public!

    • @HTUforBloodCancers
      @HTUforBloodCancers  Рік тому +1

      This warms my heart! We're so happy that you are doing so well!

    • @bikashpatel1358
      @bikashpatel1358 Рік тому

      Hello if you can help me please help me I am also AML patient I need midostaurin or gilteritinib for my FLT3 mutations please help me donate it

    • @KQuinn672
      @KQuinn672 Рік тому +1

      amen to that! so happy for you too!! :)

    • @SarahLynnLee
      @SarahLynnLee Рік тому +1

      So very happy for your health! My husband (64) didn't make it unfortunately. He passed away on day +60 after his transplant. I wish you well!!🙏

    • @mtminds1132
      @mtminds1132 10 місяців тому

      What drugs were you prescribed Sir?

  • @annaserrao8948
    @annaserrao8948 Рік тому +16

    My dad has aml almost 3yrs and has had stem cell transplant. But the fucken cancer still comes back he is strong and positive

    • @smokekush52991
      @smokekush52991 Рік тому

      😢

    • @KQuinn672
      @KQuinn672 Рік тому +1

      so sorry...i dont understand it...ive been having survivor guilt...i lost one cousin ten years ago to colon cancer...he was 41..i just dont understand why im here but...im sorry for your loss

    • @annaserrao8948
      @annaserrao8948 Рік тому +1

      @kellydube1050 don't feel sorry ever. Be happy enjoy life do crazy things cos u leave this earth with only memories and laughter 😀👍

    • @KQuinn672
      @KQuinn672 Рік тому

      @@annaserrao8948 I know but my friend of 40 years...54...is in hospice now with a brain tumor...so i just dont understand why im here...but ill do my best...thank you!

    • @annaserrao8948
      @annaserrao8948 Рік тому

      @kellydube1050 I'm sorry for ur friend. Some people do well with treatment others not so good. My dad passed away coming onto 2mths now miss him very much 😢

  • @DanieBoshoff-x9c
    @DanieBoshoff-x9c Рік тому +11

    My mother beaten aml 6 years ago but sadly it returned more agressive and she sadly past away 2 weeks back . My heart goes out to all fam who kmows what they go thru

    • @HTUforBloodCancers
      @HTUforBloodCancers  Рік тому

      I'm so sorry to hear about your mother and how heartbroken you must feel right now! It's so great that you had 6 extra years with her. My heart goes out to you as well.

    • @SarahLynnLee
      @SarahLynnLee Рік тому

      I am so sorry to hear about your mother's passing. That is so heartbreaking, especially after six years remission. My husband passed away 60 days after his stem cell transplant a month ago.

    • @angelisone
      @angelisone Рік тому

      @@SarahLynnLee I am sorry for your loss. May I ask how was your husband? When was he labeled, "AML" and how many days/months
      My sister died in 17 days after they told her she was under remission.

    • @SarahLynnLee
      @SarahLynnLee Рік тому

      @@angelisone Thank you. He was 64. He had acute myeloid and acute lymphoid leukemia. He passed 60 days after transplant. Previously, when he was doing chemo last year, he was told he was in remission and he came out about 15 days after that and had to do different chemotherapy to try and get it in remission. He kept coming out of remission and he went through a year of treatments before they got it under control and he had a bone marrow transplant, but sadly passed two months after that.

    • @SarahLynnLee
      @SarahLynnLee Рік тому

      @@angelisone I am sorry about your sister losing her life to this. It's devastating.

  • @gwenking7700
    @gwenking7700 Рік тому +14

    I was just diagnosed with leukocytosis before Christmas. My white blood cell count is over 14,000. I am sweating bullets waiting for my next oncology visit to see if the count has risen or gone down.

    • @HTUforBloodCancers
      @HTUforBloodCancers  Рік тому +1

      We at the HealthTree Foundation are thinking of you Gwen during this time. If you are diagnosed with AML, joining our Facebook group might be helpful so you can learn from others who have been diagnosed as well: facebook.com/groups/adultaml

    • @KQuinn672
      @KQuinn672 Рік тому

      any updates how you are?

    • @gwenking7700
      @gwenking7700 Рік тому +2

      @@KQuinn672 Oncologist doesnt think it is leukemia. Thinks it is something autoimmune. Going to a rheumatoligist next month

    • @KQuinn672
      @KQuinn672 Рік тому

      @@gwenking7700 🙏🙏

    • @gwenking7700
      @gwenking7700 Рік тому

      @Kelly Dube thank you Kelly ❤️

  • @HenriVanPraet
    @HenriVanPraet 23 дні тому

    I was diagnosed with AML in September 2015, at the age of 55. I went through the first lot of chemo in hospital and the following 2 lots as an outpatient. And got admitted back into hospital both times. I've been in remission now for 9 years and am now 65. I kept working, and have just retired on my 65th birthday. I thank and am appreciative of all the doctors, nurses and the rest of the hospital staff, who cared for me, at the RAH. For those fighting AML at the moment, stay strong, stay positive and fight........ Herb

  • @ushaanand2450
    @ushaanand2450 Рік тому +12

    My 28 year old only son died due to lukemia aml after diognose immediately went to Chemotherepy but we lost our only child within two months . Before diognose he was very healthy,no any bad habits how he got this bad things happen to good people only parents we have till today very much suffering

    • @HTUforBloodCancers
      @HTUforBloodCancers  Рік тому +1

      I am deeply sorry for your loss. My heart goes out to you and your family during this difficult time.

    • @KQuinn672
      @KQuinn672 Рік тому +1

      im truly sorry...i would take his place if i could....prayers to you...

  • @igotbandaids
    @igotbandaids Рік тому +7

    God bless those with AML and their loved ones. Amen. Big hugs ❤

  • @hawwaeve4421
    @hawwaeve4421 10 місяців тому +2

    On august 2019 at the age of 59 i was diagnose with AML. Go for chemo 24/7 for 6 days. Got infected. Intubated in ICU for 13 days. Get through but bed ridden and got myself blacken left thumb. I find out i could no longer tolerate the modern medicine. Discharge myself after signing all the documents. I turn to hemeopathy. Physiotheraphy. Eats a lot of king's salad from my garden. I also take supplement aphanizomenon flos-aquae a type of algae found in Greats lakes. Remission is always on the back of my mind

  • @Katie75023
    @Katie75023 10 місяців тому +5

    18 month survival rate for AML with chemo treatments is just prolonging my suffering! So then --why even bother going through all the chemo treatments when they can't guarantee that I'll still be alive in 15-18 months? I might as well just live my life the best way I can until this blood cancer finishes me off in another year. 😢

    • @fadam132
      @fadam132 10 місяців тому

      Look at my comment above. Hope it helps.

    • @llisagomez5706
      @llisagomez5706 8 місяців тому +1

      No, fight for your life!

    • @Tonykayemusic
      @Tonykayemusic 7 місяців тому +1

      Your choice, friend! Hope you find your way.

    • @kevinyonan9666
      @kevinyonan9666 6 місяців тому

      Because there's still hope. Whether you win or lose, your fight can help make better treatments and possibly even cures! You might also be one of the people cured, so why not take that chance?

    • @darknesswinz0525
      @darknesswinz0525 4 місяці тому

      God blesss

  • @philpalma894
    @philpalma894 Рік тому +14

    Who's here after knowing Kyedae's diagnose with AML? Damn it saddens me so much.

    • @brandon-je3rh
      @brandon-je3rh Рік тому +2

      So sad man

    • @bri....7656
      @bri....7656 Рік тому +1

      She's still so young, so unfortunate

    • @QuestForGood
      @QuestForGood Рік тому +2

      @@bri....7656 nah but she is young so with chemo there is 60 - 65 percent chance of curing.

    • @ryanchen9010
      @ryanchen9010 Рік тому +1

      😢

    • @Makgeulli
      @Makgeulli Рік тому

      Yes I am doing a deep dive since then

  • @Tonykayemusic
    @Tonykayemusic Рік тому +1

    My mom passed from AML after a decade of living with a rare blood disease (APA and MDS) that very usually changes into AML. Her diagnosis was less than 2 weeks before she passed. It was very fast. Total organ/system failure.

    • @OT_Shady
      @OT_Shady 8 місяців тому

      Same here mom passed from organ/system failure in just 2 weeks of admission in the hospital 😢

    • @Tonykayemusic
      @Tonykayemusic 8 місяців тому

      @@OT_Shady so sorry to hear that. Rest easy Momma!

  • @usamahadayat7136
    @usamahadayat7136 Рік тому +4

    Well yesterday my cousin passed away he was dealing withAML M3
    With in week after chemotherapy yesterday he lost his beautiful life at age was just 35 years😢😢😢😢😢

  • @estherofori4354
    @estherofori4354 День тому

    Hi I have a friend with this disease. How do I help him?

  • @cathylaycock5598
    @cathylaycock5598 4 місяці тому

    My brother is end stage Leukemia, mutant gene DDX41. I have since been tested and I also have this mutant gene. He's treated by chemo for about 18 months. He had emergency blood transfusions a few weeks back.

  • @onlykris2468
    @onlykris2468 2 роки тому +11

    Remembering my 18 year old granddaughter that developed and lost her amazing life th this crule disease... for our jess 💞

  • @tamcocar3507
    @tamcocar3507 Рік тому +10

    I lost my dear friend of 40 years last month to AML. He had 2 vax, and 2 boosters. I have seen several people reporting AML after getting the jabs. He insisted that they weren't related, but I don't know. He was very healthy & athletic all his life until he got the shots. First blood clots & he had to have a leg amputated, then AML killed him less than a year after being diagnosed. I really would like answers.

    • @HTUforBloodCancers
      @HTUforBloodCancers  Рік тому +4

      I'm really sorry for the loss of your friend. We can understand how you're feeling and why you would be looking for answers about what happened.
      Firstly, it's important to know that the COVID-19 vaccines have been thoroughly tested and have been found to be safe and effective at preventing COVID-19 and its complications. While it's natural to wonder if there might be a link between the vaccines and your friend's diagnosis of AML, there's currently no scientific evidence to suggest such a connection.
      It's possible that your friend's diagnosis of AML was not related to the vaccines and could have happened spontaneously, as this is the case of the majority of primary AML diagnoses. However, there could also be other factors at play, like underlying health issues or risk factors, like genetics.
      If you have concerns or questions about your own health or the health of someone you care about, it's always a good idea to talk to your trusted physician. They can provide you with accurate and up-to-date information and help address any concerns you might have.
      Again, I'm really sorry for your loss, and I hope that this information can provide you with some comfort during this difficult time.

    • @Mani-fx8pb
      @Mani-fx8pb Рік тому +3

      Same happened to my mother.. She was diagnosed Cancer ALL after a dose of vaccination..

    • @jenny1234361
      @jenny1234361 Рік тому +2

      My brother had 4 jabs, was diagnosed with AML and passed away 4 months later. I saw a video where a medical person said the onset of AML was a possible outcome from the shots

    • @screenarts
      @screenarts Рік тому

      It's not the shots. My roommate got covid twice not to bad. He's now diagnosed with testicular cancer 47yo. I had all the shots and had covid twice, second time I was in the hospital. I also now have cancer, tumor in lung and lukeima at 67yo. The commonality in this house is we both suddenly have cancer, we both got covid. It's not the shots. How can you ignore covid as a catalyst of other diseases? Like long covid reported. The shots are still available, people are not dropping dead from the shot. Covid is the unknown not the vax.

    • @marks9774
      @marks9774 9 місяців тому +1

      I lost my wife to AML. We both did not take any shots / boosters, but I do still think that all the COVID everything - played some sort of a role as we both experienced abnormal things with our blood within 2-3 years after COVID.

  • @NilukshiMiranda
    @NilukshiMiranda 8 місяців тому +1

    My son is 2 years and 10 months old. He could not put his leg on the ground 4 months ago and was taken to Ledrichwe Hospital. It is up to you how successful this course will be. Because his aml status was first bonemerro 50% second 5% less now I don't know what was done yet can I know details about this

  • @bybyhycndlblt5435
    @bybyhycndlblt5435 Місяць тому

    03.04.2024 my sister was pregnant and was diagnosed with AML M4-m5. They removed the baby and she received chemotherapy. They applied 7+3 chemotherapy. daunorubicin, mitoxantrone, idorobicin. After a 2-month break, he received chemotherapy again, three days of cytarabine. took it three times, two weeks apart. 7 months have passed. Transplantation will not be performed. doctors say he is fine. I'm very curious what will happen.

  • @CrimsonBlack313
    @CrimsonBlack313 6 місяців тому

    My girlfriend was diagnosed with aml last year in October. She is going through it right now with the radiation. She had three to 4 chemotherapies before the chemo. I just want her to be better, that's all😢😢😢. It hurts me to see her in this state.

    • @damla9978
      @damla9978 5 місяців тому +1

      I hope she is doing okay now. Try to support her all the time

  • @ferdikorkmaz3347
    @ferdikorkmaz3347 2 місяці тому

    Hello i have symptoms MDS i think 3 months i have leg pain both tiredi no eating very well what can i do

  • @yaohan91
    @yaohan91 8 місяців тому

    My mum just turned AML from CML after a year. She is 68 this year. Transplant is out of the picture given her age so what doctor suggest is low intensity chemo.
    Im scared what can i do....

  • @sank4930
    @sank4930 4 місяці тому

    My mom is diagnosed with aml last month. We found that these markers are positive
    CD45-Dim positive
    CD34- positive
    CD117-partial dim positive
    CD99 - moderate positive
    HLA-DR - Positive
    CD58- positive
    MP0 - dim positive
    CD13 - Moderate positive
    CD33 - moderate positive
    CD64-positive
    CD11c - moderate positive
    CD14 - Positive
    CD36 - positive
    These are all the positive markers found. Can you please tell me the stage, treatment and prognosis.

    • @HTUforBloodCancers
      @HTUforBloodCancers  3 місяці тому

      Hi there,
      This is something that your mother's doctor will be able to tell her. In order to stage her AML and determine the best treatment, her doctor will look at the whole picture and perform other tests to see which gene mutations are positive. To learn more about AML gene mutations, you can check out those videos on our website here: healthtree.org/aml/university/courses/Ga5cTDmmrDNEtznyDBuS

  • @funwithnoorandkabeer5605
    @funwithnoorandkabeer5605 Рік тому +1

    I have been diagnsed with cancer aml. Can u tell me, if the count of copies in abl test is less thn 10k can it b cure through medicines?

    • @HTUforBloodCancers
      @HTUforBloodCancers  Рік тому

      I'm sorry to hear that. We recommend that you see an AML specialist to get that answer as it is a complicated disease. You can learn more about your cancer for free from the top AML experts in the US with our AML University healthtree.org/aml/university/courses

  • @SAGYCIVIL
    @SAGYCIVIL 7 місяців тому

    My father diagnosed with AML 64 age the low chemo of Amacitidine and venetoclox is giving by doctor today they stable but how many days survival ..for long term servival what is process stem cell or bone marroe

    • @HTUforBloodCancers
      @HTUforBloodCancers  3 місяці тому

      Hi there, to know the process of an allogenic stem cell transplant or other treatments, you can check our AML Treatment Options unit on our website. I will link it here for you: healthtree.org/aml/university/modules/iQEuDMjf8rW5X4HjslEp Hope this helps!

  • @saurabhrawat5999
    @saurabhrawat5999 Рік тому +3

    My Grandfather (aged 80) is diagnosed with AML in June 23 with RUNX1 mutation. Doctor suggested low intensity chemo (Decitabine + Venetoclax) to prevent it and help him to have a good quality of life. They rejected the idea of Bone Marrow Transplation and told that it can't be cured at this age. He don't have any comorbodities and is physically fit. Looking for a second opinion. Can anyone help here ?

    • @HTUforBloodCancers
      @HTUforBloodCancers  Рік тому

      Hi there! I'm very sorry to hear about your grandfather. A second opinion is a great idea! I recommend you search our specialist directory ( healthtree.org/aml/community/directory ) to find a second opinion from AML specialists near you!

    • @SarahLynnLee
      @SarahLynnLee Рік тому

      KU Medical Center specializes in leukemia and may be a good option. They treated my husband.

    • @fadam132
      @fadam132 10 місяців тому +1

      A transplant is very very hard on the body. That's why they don't usually do it with elderly.

  • @tulbahadurpariyar3076
    @tulbahadurpariyar3076 Місяць тому

    Aml my sister pass away coz of Aml

  • @nitinsinghania007
    @nitinsinghania007 9 місяців тому

    My mother (53) diagnose AML at 3 feb 2024 and passed away at 28 feb 2024 due to slip in hospital toilet. Due to slip She had a stroke in brain and she can't survive even 3 days after she slip.
    I lost my mother in only less then a month which is unbelievable for me.

    • @HTUforBloodCancers
      @HTUforBloodCancers  9 місяців тому

      That is heartbreaking, I'm so sorry to hear that. We hope you and your family the best during this difficult time.

    • @SAGYCIVIL
      @SAGYCIVIL 7 місяців тому

      Due to low platelet my father is also diagnosed in platelets are only 5000 but they can survival and the chemo is continuously

  • @paulinenewton2215
    @paulinenewton2215 2 роки тому +7

    My husband managed 2 years

    • @baro6217
      @baro6217 Рік тому

      where is he now

    • @paulinenewton2215
      @paulinenewton2215 Рік тому +1

      @@baro6217 passed away 16 January 2022

    • @Makgeulli
      @Makgeulli Рік тому +1

      @@paulinenewton2215so sorry for your loss

    • @nitinsinghania007
      @nitinsinghania007 9 місяців тому

      My mother (53) diagnose AML at 3 feb but passed away at 28 feb due to slip in hospital toilet. Due to slip She had a stroke in brain and she can't survive even 3 days after she slip.

  • @beijingbrandon6220
    @beijingbrandon6220 5 місяців тому

    So basically Kyedae is faking it.

  • @johnnyblaze522
    @johnnyblaze522 Рік тому +5

    Venetoclax......
    Your welcome 😊