Is there a cure for AML?
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- Опубліковано 12 тра 2022
- Is there a cure for Acute Myeloid Leukemia (AML)?
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I have AML and hospital and taking my second chemotherapy, and after this I have stamcell and bone morrow transplant, I am very new to all these so thank you for your informative video
I have this as well and I am pregnant but I haven’t tried the chemo yet am afraid of my baby dying
How r u
I m AML m4 Patient. I completely done bonemarrow transplant. Now i m suffering liver gvhd.
Day by day getting fine. By grace of God & doctors
I'm sorry to hear that you have been going through such a difficult time with your health. It's wonderful that you have such a positive attitude. If you need any more resources or information on AML you can follow our channel or visit our website at healthtree.org
Kitne .me hua bmt
Bhai❤
God bless you brother 🙏🏻❤️
PGI chandigarh (India) se huaa mera treatment.. All over 10 lakh kharcha hua
This is very helpful in understanding what my husband has
Glad you found this video helpful. You can watch many more at www.healthtree.org/aml/university!
I fought this disease with my dad of 70 but we lost him to side effects of drugs.
My son was cured of APL leukemia. At time of admission his platelet count was 11,000 (250,000+ is normal) and 10,000 is usually fatal. 🙏
That is great news!
Maybe a Stem Cell transplant might defeat it?A friend of mine had one of those for a different cancer, Mycosis Fungoides T Cell Lymphoma at the advanced stage, but it is too early to say if it'll work?
Did patient take atra capsule life time?? Plz reply
My mother passed away from this terrible cancer. oncologist tend to do a lot of test while keeping family members in the dark regarding prognosis
It's 4th day I also lost my mother from this fatal disease.This disease is not curable
i know. dont go to princess margaret hospital in toronto unless you want to die. The doctor we had could have saved my spouse, but refused to give him a top up.and it was too late.
What if a person does not have any mutations and no underlying health conditions? Patient is not eligible for transplant because of age? Can you address any of these questions?
Hi Cyndie, In this instance it would be best to speak with a specialist as all AML cases are unique. Find a specialist near you here healthtree.org/aml/community/directory
I was diagnosed with aml. and comleted stemcell transplant now iam all right
From which hospital you received your treatment?
i didn’t understand the newst therapy he mentioned at the end?? what the name of it so i search it ?please
Hello there, at the end of the video, Dr. Rizzieri mentions targeted therapy. There are many examples of AML targeted therapy that are listed in this other video: ua-cam.com/video/-UtZ2o736m8/v-deo.html. Hope that helps!
Urgent. Hi. My mom is a 60 years old Middle Eastern woman who lives out of States. She has just diagnosed with AML. Can you please let me know if ATRA is something that IT'S SAFE TO TAKE, or it should be prescribed by her Dr.? Please let me know how if I can purchase ATRA. Thank you 🙏
Hi there! I'm so sorry to hear about your mom. ATRA is a prescription medication, so she should talk to her doctor about it. To learn about this medication and what specific type of AML it is used for, you can visit this link on our website: healthtree.org/aml/community/medications/retinoids/atra . Best wishes for her!
5:23 @@HTUforBloodCancers
One of my parent is suffering from AML every chemo treatment given to her is failed like induction,FLAG-IDA, Decitabine with venitoclox. So we have continued Decitabine till today. But still platelets and blood are getting low day by day again and again after evry transfusion of blood and platelets, so can you please provide me a contact of the doctor so that I can talk little more bit deeper about it and move on to further treatments, i hope you will do the needful. Thankyou
Hi Balaji, we are updating our AML specialist directory, but currently only have it in the United States. It can be accessed here depending on what region your parent lives. healthtree.org/aml/community/directory
How many times does your parent have blood and platelets transfusion?
Cartcell
My sister have AML with monosomy in chromosome 7 and trisomy at chromosome 8, can you please tell me how much possibility of curable by chemotherapy?
My mother have AML .she got
chemo before one year,but it rutuned again .Again chemo is going on, facing more side effects than before and she got with a mild heartstok .is it safe to do BMT?
I'm sorry to hear about your mother. You should reach out to and meet with a specialist for any advice on treatment, they will have a more accurate assessment of what is possible.
Hi, my family needs help as we found that our 18 year special needs daughter has AML. She has chromosal, Monosomy 21, by birth with other pre existing condition. What’s the best way to contact you? We want to understand the targeted approach in curing AML.
Hi there. We are terribly sorry to hear what your daughter and your family are going through. You can visit our website for AML related information: healthtree.org/aml/community. You can also call or email us to speak to a patient navigator: (800) 930-5159
or support@healthtree.org.
My mom has AML, I am from Mexico and she is right now under quimio therapy, 24/7 the whole week full of that, she is 61 years old, now that I watched this video I need more information about the new treatments, do you know where in Mexico are applying this kind of medicine?
Please help
Hola Erika! En la siguiente dirección de la COFEPRIS, al seleccionar "Condición" y buscar "LEUCEMIA MIELOIDE AGUDA", aparecerá un listado de los ensayos clínicos que incluyen algunos de estos nuevos tratamientos, en cada uno encontraras el "sitio de investigación" así como una explicación mas detallada de lo que se incluye en el tratamiento: siipris03.cofepris.gob.mx/Resoluciones/Consultas/ConWebRegEnsayosClinicos.asp
Hey my father too diagnosed of aml and he is 60. Is it possible to have bone marrow transplant at this age?
@@sagarjawaress Hi Sagar, In this instance it would be best to speak with a specialist as all AML cases are unique. Find a specialist near you here healthtree.org/aml/community/directory
@@HTUforBloodCancers Dude I'm Doctor myself but making descision is really hard. I would like to know the survival benefits of routine vs palliative chemo at this age. So sharing experience would help a bit.
Hi Erika. My mom is 60 years-old and was just diagnosed with AML around your mom's age. She is about to start the therapy in a week. We are waiting for her second test result. Can you tell me how's your mom doing? I hope everything is going well with her.
Hello sir my sis in law is suffering from this dreadful disease chemotherapy has started two days back this disease can be cured or not sir plsss reply sir😥
My brother is diagnosed with AML. he is undergoing treatment. First chemotherapy has done. But still he has constant fever and zero TLC. also platelets are going down. Can you please suggest what should we do in this case.
Hello, I'm so sorry to hear about your brother, my thoughts are with your family. This question is one that needs to be discussed with his oncologist/hematologist. It may be beneficial to get a second opinion from an AML specialist. If you live in the U.S., you can look for a specialist near you here: healthtree.org/aml/community/directory
My spouse has aml. My spouse went for a first round of chemo and they stopped it because he has a slight fever. It is normal for people with AML to get chills and fever and normal for their blood counts to go down. This is why they require constant blood and platelet transfusions. Now we have to wait one week to see if he has no more fever and they can start with the 2nd round. b.t.w. AML also gives one bone pain and so does the chemo :(
P53 you say. That me and I’m currently fighting thanks for horrifying me
My brother is 1.5 years old..
Few days( 1 week) ago he diagnose AML cancer.. What can i do now? What treatment will be best? And his platelet day by day decreaseing. Doctor gave him - platelate..
Please suggest me, what can i do now?????
Hi there, I am so very sorry to hear about your brother's diagnosis! We're committed to helping patients and caregivers learn more about AML so that together with their doctor they can choose the best treatment options that fit their individual cancer. I suggest learning all you can at healthtree.org/aml/university/courses, especially the Childhood AML course. If you live in the U.S., you can utilize the specialist directory ( healthtree.org/aml/community/directory ) to find an AML specialist to obtain a second opinion. Our thoughts are with your family and we're hoping for the absolute best!
Sister how are your brother now my brother have also aml and he is just 15 year old and the doctors give him chemotherapy 😭😭😭🤭
Hello there my mum has been diagnosed with AML and the doc says she’s already become weak n he has advised us go to for targeted therapy she’s 54yrs can u pls help us know hoq much successful can ths targeted therapy be?
Hi Pooja! In the following video, an AML specialist explains more about targeted therapies, including the success rate: ua-cam.com/video/b8sib7-PyOk/v-deo.html
My father(51 years) was also diagnosed with AML(high risk) this year. Chemo was not working in his case.
Venetoclax + azacitidine helped in lowering the TLC. Later the doctor added Midostaurin also.
@@priyanshbhakuni1480 are you planning for bone marrow transplant?
@@sagarjawaress yes we were going for bone marrow transplant but unfortunately my dad passed away because of sepsis
@@priyanshbhakuni1480 thats so sad😔
Hello there One of my friends is suffering from AML TP53 mutation, has undergone chemotherapy and AML has been cured. Is there a chance of reoccurance? Please let me know.
Hi Chandini, it's good to hear that your friend's AML is in remission! AML with the TP53 mutation is a stubborn disease, and the chance of relapse is high. Fortunately, there are many clinical trials seeking to achieve better responses for relapsed patients. You can learn more at healthtree.org/aml
@@HTUforBloodCancers What is the maximum lifespan of the people with remission sir? Doctors has suggested her, bone marrow transplant but due to financial crisis she is unable to undergo transplant. Sir, Is there any alternative medicine other than transplantation?
@@ChandiniSyed Since all AML cases are unique, it is best for your friend to speak with an AML specialist to get a second opinion on the recommended treatments and/or available clinical trials, and to receive answers to other questions regarding her remission. Find a specialist near you here: healthtree.org/aml/community/directory
Hi i need ur help regarding leukemia my close one is suffering from this plz connect with me .. i really need ur help
I'm so sorry to hear that, we are here to support you! If you would like to talk to someone or find resources that help patients with aml and their loved ones, please don't hesitate to reach out via healthtree.org/aml!
Plzz give gmail ya any contact
I lost my mother this month
May God bless you.
my daughter aml
My son is AML also
I'm sorry to hear that, we are currently working on our 'Childhood AML' unit. It is currently in BETA but can still answer questions you might have. healthtree.org/aml/university/courses
Kase pta chla orr kia symptoms ty
Can you please share your mail id.. Have few doubt on the topic
Hello sir...